I Have Hemiplegic Migraine, Familial Type 1

A Hemiplegic Migraine, Familial Type 1 anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hemiplegic Migraine, Familial Type 1. You're not alone. 34 People

    Extremely happy to find other people

    who suffer with this disease. Anyone want to share their story? I'm currently in a really bad cycle and am mostly using a walker/wheelchair to move around the house.
    wightlotus wightlotus
    18-21, F
    1 Response Jun 4, 2015

    Wonderful World Of Hemiplegic Migraine

    where to start?  diagnosed with basilar-type migraine ten+ years ago.  this year rediagnosed with hemiplegic migraine.  i know you will all hate to hear this, but i have no pain.  yes, you heard correct, no headaches.   it happens when i wake up...
    jibberish jibberish
    9 Responses Dec 3, 2010

    Midlife Hemiplegic Migraine Diagnosis

    I am 47 years old and have just recently been given the dx of hemiplegic migraine although I do not have results from genetic testing yet. Migraines definitely run in my family, but nothing like what I am experiencing. I hjave had migraines for years but in February of 2010 I...
    laurabraggins laurabraggins
    46-50, F
    7 Responses Feb 23, 2011

    Hi I recently turned 14

    and have been diagnosed with HM type 1. I started having migraines around the age of 9. I had went bungee jumping and felt really lightheaded afterwards but ignored it (I also drank a chocolate milkshake, which is my big trigger) I went back to my friends house and just remember...
    meganicole meganicole
    16-17, F
    1 Response Dec 8, 2013

    My Story...

     I never had a single migraine until I was 20 years old.   It all started after going to see a movie. After leaving the theater I was seeing strange zigzagging lines in my vision. They were almost flashing and in neon colors. I just thought it was from the movie and...
    TickTackJo TickTackJo
    22-25, F
    3 Responses Sep 19, 2010

    I Also Have Hemiplegic Migraines.

     Hi I have suffered from this rare type of migraine for 8 years now. At first they said I had tias and had little treatment. It's only been in the last 5 years they diagnosed me. I take sandomigan for my migraines but it is still not working I did try topamax but had a bad...
    sbear sbear
    36-40, F
    2 Responses Nov 17, 2009

    I get terrifying hemiplegic migraines,

    I've had then since I was about seven. I get paralysed down One Side of my body, and my head feels as though it is being repeatedly hit by a hammer, and I throw up a lot. It hurts so much. I don't know anyone else who gets it, except my mum and uncle.
    Charlottexoxx Charlottexoxx
    13-15, F
    1 Response Feb 4, 2014

    Hemiplegic What???!!!

    I was nine when my vision started to get bad. The sickness was awful and the pain in my head was like nothing I had ever known! My local doctor thought I was making it up. Of course, children didnt suffer fromĀ  igraine did they...THIS one did! My parents eventually rushed me to...
    ruthbenton1 ruthbenton1
    4 Responses Jan 6, 2011

    How I Cope Now

    I am a suffer of FHM. I was diagnosed in 2005. I used to take midrin that was the only thing that would help relieve them. I could take them at the onset and I wouldn't be stuck in my wheelchair. They quit making it. So every time one would hit it would mean a trip to the...
    mafuson mafuson
    31-35, F
    Sep 8, 2013
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