I Have Hemiplegic Migraine, Familial Type 1

A Hemiplegic Migraine, Familial Type 1 anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hemiplegic Migraine, Familial Type 1. You're not alone. 34 People

    I Also Have Hemiplegic Migraines.

     Hi I have suffered from this rare type of migraine for 8 years now. At first they said I had tias and had little treatment. It's only been in the last 5 years they diagnosed me. I take sandomigan for my migraines but it is still not working I did try topamax but had a bad...
    sbear sbear
    36-40, F
    2 Responses Nov 17, 2009

    How I Cope Now

    I am a suffer of FHM. I was diagnosed in 2005. I used to take midrin that was the only thing that would help relieve them. I could take them at the onset and I wouldn't be stuck in my wheelchair. They quit making it. So every time one would hit it would mean a trip to the...
    mafuson mafuson
    36-40, F
    Sep 8, 2013

    I get terrifying hemiplegic migraines,

    I've had then since I was about seven. I get paralysed down One Side of my body, and my head feels as though it is being repeatedly hit by a hammer, and I throw up a lot. It hurts so much. I don't know anyone else who gets it, except my mum and uncle.
    Charlottexoxx Charlottexoxx
    16-17, F
    1 Response Feb 4, 2014

    My Story...

     I never had a single migraine until I was 20 years old.   It all started after going to see a movie. After leaving the theater I was seeing strange zigzagging lines in my vision. They were almost flashing and in neon colors. I just thought it was from the movie and...
    TickTackJo TickTackJo
    22-25, F
    3 Responses Sep 19, 2010

    Hi I recently turned 14

    and have been diagnosed with HM type 1. I started having migraines around the age of 9. I had went bungee jumping and felt really lightheaded afterwards but ignored it (I also drank a chocolate milkshake, which is my big trigger) I went back to my friends house and just remember...
    meganicole meganicole
    18-21, F
    1 Response Dec 8, 2013

    Midlife Hemiplegic Migraine Diagnosis

    I am 47 years old and have just recently been given the dx of hemiplegic migraine although I do not have results from genetic testing yet. Migraines definitely run in my family, but nothing like what I am experiencing. I hjave had migraines for years but in February of 2010 I...
    laurabraggins laurabraggins
    46-50, F
    7 Responses Feb 23, 2011

    Hemiplegic What???!!!

    I was nine when my vision started to get bad. The sickness was awful and the pain in my head was like nothing I had ever known! My local doctor thought I was making it up. Of course, children didnt suffer fromĀ  igraine did they...THIS one did! My parents eventually rushed me to...
    ruthbenton1 ruthbenton1
    4 Responses Jan 6, 2011

    Wonderful World Of Hemiplegic Migraine

    where to start?  diagnosed with basilar-type migraine ten+ years ago.  this year rediagnosed with hemiplegic migraine.  i know you will all hate to hear this, but i have no pain.  yes, you heard correct, no headaches.   it happens when i wake up...
    jibberish jibberish
    9 Responses Dec 3, 2010

    Extremely happy to find other people

    who suffer with this disease. Anyone want to share their story? I'm currently in a really bad cycle and am mostly using a walker/wheelchair to move around the house.
    wightlotus wightlotus
    18-21, F
    1 Response Jun 4, 2015
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