I Have Hemochromatosis

Personal Stories, Advice, and Support 30 People

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    1 Response Aug 1, 2013


    I was told I had hh 4 years ago. The VA is treating me. What levels of Iron do the want use to be at.
    Michael035817 Michael035817
    66-70, M
    1 Response Jul 31, 2013

    The Real Ironman

    I am thankful to my Oncologist, she took my case after I moved to Vancouver Wa from the Seattle area, via Central Oregon. Ha ha~~ I'm a 58 year old male with HH. I haven't been able to convince my siblings to get tested, for this silent killer. My ferritin number was 1565, my...
    tcsheets tcsheets
    2 Responses Aug 19, 2012

    My Hemochromatosis Story

     My story is a lot like yours. If you have HH ,  you know about the phlebotomies and pain. The blood test and trying to understand them is a pain in the but, almost as painful as my joints.  The thing that gets me the most is how my doctors don't seem to relate my problems...
    mjb10 mjb10
    5 Responses Mar 28, 2011

    My Hemochromatosis Saga

    As a bit of background... I was anemic as a child, and I remember my parents being told to feed me eggs and anything that had iron in it. So, they fed me eggs, and more eggs. I then developed an egg allergy. Over the last few years, my blood-work has consistently shown me to be...
    pipermac pipermac
    61-65, M
    Apr 19, 2013

    Only Just Found Out

    So I was feeling pretty flat and wandered off to the Doctor about 5 months ago. After multiple blood tests, they've come back with HH. My last count was 876 and prior to that, 841. Have done one blood  let thus far (1litre) and felt like absolute crap the next day! Haven't felt...
    deleted deleted
    3 Responses Jan 15, 2012
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