I Have Hereditary Pancreatitis

A Hereditary Pancreatitis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hereditary Pancreatitis. You're not alone. 16 People

    Learning About Bravery ...

    These last 6 months have been a lesson for me on bravery.  My first born daughter is currently 2 yrs old.  When she was 4 weeks old we had her tested for the genetic mutation for hereditary pancreatitis, which came back positive.  However we had high hopes that she...
    cco0010 cco0010
    3 Responses Jun 12, 2010

    Hi everyone. I lost my dad to Pancreatitis on

    September 24th 2013, after he fought this illness for 2 and a half years, he was only 53 years old. I have created an awareness page in his memory, and am in the process of trying to promote the disease to get it the recognition it truly deserves. Please can you pop over to www...
    DonnaLouise1988 DonnaLouise1988
    26-30, F
    Dec 5, 2013

    My 3 Year Old Daughter

    Our 3 year old daughter was diagnoised at 2 years old with HP. Since then, she has had well over a dozen attacks and required 3 hospitalizations. As a nurse, I am amazed that her enzymes were on average: Amylase 15,000 and Lipase of 16,000. There have been several times where her...
    navchapdoc navchapdoc
    May 3, 2012

    I hate feeling like crap everyday!

    And I hate it more when people say to just suck it up like that is an option. I was born with pancreastitis hints the hereditary. And I have suffered in pain and eating problems since I was 7 or so. My pain is abdominal and bad like a knife at times others like a punch and some...
    emrose7 emrose7
    31-35, F
    Feb 26, 2014

    16 Years..

    I was diagnosed with chronic pancreatitis sixteen years ago, at the age of 4. I'm not sure that it is actually hereditary because the doctors haven't done gene testing (I won't allow it). But that is what we assume because they can find no other possible cause. I have spent most...
    sweetheart91 sweetheart91
    18-21, F
    1 Response Sep 10, 2011

    Painful But Positive

    I have Hereditary Pancreatitis. I was first diagnosed at age 12 although my mother tells me that as a child I had lots of stomach problems that were never properly diagnosed. I had a sphincterotomy at age 12 and that seemed to help the problem a lot and I ...
    jenalford79 jenalford79
    3 Responses Sep 28, 2009

    Hi everyone!I'm 33 and was just diagnosed with

    pancreatitis after dealing with horrible abdominal pain since I was a kid (the GI doctor covered by my parents' insurance was a complete quack and couldn't have diagnosed a cold if he tried). I now have insurance (thanks Obama!) and have finally found doctors that take me...
    MightyMouse81 MightyMouse81
    31-35, F
    Jun 13, 2015

    The Heart Ache Of Hereditary Pancreatitis

    My daughter which is 15 now was diagnosed when she was 2.When we found that she had Pancreatitis she had one large cyst along the top of her pancrease and several in the Pancrease.She had to have a tube placed in her chest for nourishment and meds.She could not have anything to...
    DeGeorge903 DeGeorge903
    41-45, F
    7 Responses Apr 7, 2010
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