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I Have Hidradenitis Suppurativa

Personal Stories, Advice, and Support 1,007 People

    I Seem To Be Going Into Rmission From Stage Ii - Hello All            I am a 45yr old female, who lives in Australia. I have had HS since I was a teenager but it only...
    Jatza Jatza 41-45, F 6 Responses Jan 3, 2012

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    I strongly believe I have this disease. I'm praying to God I don't, but if I do, I will have to live with it. I did my research and I meet all of the symptoms listed. I have been...
    MiseryMagnet MiseryMagnet 16-17, F 5 Responses Mar 2

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    This Diet Has Worked Successfully For Me - I have struggled with HS for years. My Doctor verified that I have mild HS (I consider myself lucky) I sympathized with those that are...
    WorldTravelr WorldTravelr 31-35, M 9 Responses Oct 4, 2010

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    You Can Get Your Life Back. - Hi. My name is Catherine and I have been suffering with HS for over 23 years. They first started out as red bumps in the vaginal area. After repeated...
    catherine435 catherine435 56-60 9 Responses Mar 19, 2013

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    A Song That Made My Jaw Drop Open And Tears Billow Up In My Eyes! Somebody Understands! - HI! HS is nuts, crazy and something I think insurance companies/healthcare physicians...
    azera26 azera26 31-35 11 Responses Sep 23, 2011

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    Medical Marijuana For Hs -      I have been suffering from HS for about 4-5 years now and it has slowly progressed. As those of you suffering from hs know...
    4four2twenty0 4four2twenty0 22-25, F 21 Responses Sep 2, 2009

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    I Was Missed Diagnosed As A Teenager.. - I am a forty-four year old who had my first outbreak at 15 years old. It was extremely painful so i went to the hospital while i was there...
    tuscaloosa44 tuscaloosa44 41-45 1 Response Dec 17, 2012

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    The Future - I'm 15 and I have HS. It's horrible and I have in my inner thigh area. Iv had it since I hit puberty; It's pretty bad and the scars are so ugly! I really feel for...
    Amazing1132 Amazing1132 16-17, F 4 Responses Mar 23, 2013

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    Radiation For Hs - This is my second story about my condition, called Hidradenitis Suppurativa. Let's consider this sort of a follow up. To recap... I have had HS for six years...
    ohsnapitsrachael ohsnapitsrachael 18-21, F 1 Response Jan 5, 2012

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    Thankful - Hello, I have had HS for 9 years. It has been horrible. It has been passed down from my farther's side. It is very had for me to do sports. I love basketball but because...
    Alyshia5 Alyshia5 13-15 2 Responses Dec 2, 2013

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    I've had it for 11years just found out there was a name for it a week ago, and no cure, pretty ******* lame! But I've been dealing with it for 11 years! And I'm ok so i guess I'll...
    nnayy nnayy 18-21 1 Response Feb 13

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    Living With Hidradenitis Suppurativa - Hello to all,      I have been living with Hidradenitis Suppurativa since 1996 but technically I wasn't diagnosed...
    HoneyyDipp HoneyyDipp 36-40 30 Responses Apr 18, 2009

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    Still Learning To Cope - I first started showing signs of this disease when I was around 8 years old. It of course wasn't as extreme back then, but there would be an occasional...
    egoodwin415 egoodwin415 18-21, F 5 Responses Jul 18, 2011

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    I have been suffering from this skin condition for about 4-5 years. It sort of began slowly progressing as I was in high school and then further on. I used to think that this...
    Dianaangel Dianaangel 18-21, F 4 days ago

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    I am in the early stage with HS, I would like to share what has been working for me, i have tried antibiotics, topical clindamycin, bleach baths, etc. which help a little bit. but...
    cincin21 cincin21 41-45, F 1 Response Mar 18

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    I have had Hidradenitis Suppurativa since I was 8 years old, I am now 17. I feel absolutely disgusting and alone. I just cant stand looking at myself. I cant wear tank tops and It...
    bel1196 bel1196 16-17, F 4 Responses Jan 15

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    I've Never Been Formally Diagnosed... - but I've had the symptoms since I first hit puberty. I only flare up in my pubic area...lucky me. Sometimes, it becomes so painful to sit...
    kendyboo kendyboo 26-30 7 Responses Oct 3, 2008

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    As I read most of the posts on here, it's disappointing to know through my own research of it that there is no cure for it. No book is going to tell you a cure. No drugs or...
    Booksaremypassion Booksaremypassion 41-45, F 1 Response 2 days ago

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    Absolutely No Bathing Suits - I can remember right after I started my first period I began to get "sores" in between my legs. I can remember the day I noticed them. I...
    deleted deleted 26-30 9 Responses Mar 12, 2009

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    I have a question for you all: is there something that you have found that has helped at all? Any and all suggestions are appreciated. I'm just ******* tired of this
    hs8212 hs8212 26-30, F 5 Responses Mar 9

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    Lesbian With Hidradenitis - There are dyas when I don't want to get out of bed. There are days when nothing I do helps the pain. I've had this for over 15 years. I've been to...
    awful44 awful44 41-45 3 Responses Apr 25, 2012

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    My Story... - I have been living with HS for about 10 years now and everyday is a struggle.  The pain from HS is something I never felt before some days it hurts to walk, sit...
    bwynnsgirl bwynnsgirl 22-25, F 10 Responses Dec 28, 2009

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    I am 29, and have had HS for many years. Not sure when it started because I was overweight as a child and morbidly obese by the time I got to high school and I would get boils in...
    Holga1984 Holga1984 26-30, F 1 Response Dec 10, 2013

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    You are not alone in this. - I also have HS. I really didn't think I would ever come out and say this online but part of the problem is that so many of us aren't coming forward to...
    QuietSiege QuietSiege 26-30, F 3 Responses Aug 3, 2013

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    13yrs Of Hs: I'm 95% Symptom-less Now. My Story And Regimen. - I am going to try to write this as concise as possible. I have leeched information off of HS forums for the last two...
    xxxMelissaxxx xxxMelissaxxx 26-30 14 Responses Jan 12, 2012

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    Ive had HS since I was 5 years old im now 20 it took 14 years for the doctors to figure out what was going on and now my body is so scarred that I dont wear tank tops or shorts its...
    HK1093 HK1093 18-21, F 2 Responses Dec 31, 2013

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    So...its been almost four months since i last wrote on here about my HS. honestly, nothing has changed, except my meds. Accutane did not one positive things for me, and left my...
    bel1196 bel1196 16-17, F 2 days ago

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    Found Some Relief - I recently went to a new doctor and she prescribed me Clindamycin HCL 300 mg. I take one every day and I have also began using Hibiclens. I purchased a gallon...
    Oregoncoaster Oregoncoaster 36-40, F 2 Responses Mar 31, 2013

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    Hi, I am 17 years old and I have been dealing with HS for 4-5 years now. I was only diagnosed last month though because I was afraid and ashamed to tell anyone about it, including...
    ab019 ab019 16-17, F 2 days ago

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    Living With HS - I been having HS for about 6 years now. I figured out what was going on a little after giving birth to my daughter. Now its much worse. I found a Dr in the area...
    LISHA87 LISHA87 26-30, F 2 Responses Nov 26, 2013

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    Three years later and all I can say that's changed is my diagnosis. but I stay hopeful. I stay positive--or at least I try too. I now have severe HS in hurley stage three which...
    cassandrastwrt cassandrastwrt 18-21, F 2 Responses Feb 17

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    It is so nice to find people just like me cause I feel so alone. I have had HS for 11 years and I am Hurley Stage 3 Refractory. I am in complete agony. I have hit my limit. Since...
    jams0818 jams0818 31-35, F 4 Responses Feb 10

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    I have been trying to heal completely from my last outbreak. Which still seems to be draining,as long as it not a new outbreak I can deal with it. So in looking for something that...
    MrsLadiebug MrsLadiebug 46-50, F 1 Response 6 days ago

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    I have had recurring outbreaks of HS for more than a decade now. From small, dime-sized lesions that pop and go away, to gigantic baseball-sized atrocities that make it impossible...
    Volstaag Volstaag 31-35, M 1 Response Dec 19, 2013

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    PLEASE Read This!!! - Hello everybody I am new to this forum but not new to this disease. I finally diagnosed myself with HS 4 years ago and I have had it for what I can remember...
    shuswapian shuswapian 46-50, F Sep 12, 2009

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    Can I deal with this PAIN and sorrow for the rest of my days? Is anyone ever going to do something about it so that remission is possible or treatments are ever truly helpful? Is...
    Maria7780 Maria7780 31-35, F 3 Responses Feb 1

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    So I just got in from the hospital! I just found out i have Hidradenitis Suppurativa. I have done my research and I see how ugly these cases can get. I am supper nervous and dont...
    Simplyleidy Simplyleidy 18-21, F 2 Responses Jan 29

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    I've had this for 22 years. Pretty mild compared to some. I'll gladly share what has helped me as we go along. First and foremost - never NEVER use soap! Use Sorbolene only and you...
    Tracy63 Tracy63 46-50, F 1 Response Feb 23

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    i have been dealing with HS since i was 13 years old. i have had several surgeries and they are still no cure for this. I cant move sometimes or go to work or school. i just...
    kreed31 kreed31 31-35, F 1 Response Mar 23

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    I have had HS for a couple of years now it is terrible recently this week I decided to find ways to vent,spread MORE awareness, and hopefully just create more support groups with...
    armygirlfriend93 armygirlfriend93 18-21, F Dec 24, 2013

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    No Money ->no Cure ->no Hope -   I have HS. I've been getting boils for about 10 or so years. I hate it. It slowly progressed from about one or two lesions once in a...
    HSinNC HSinNC 22-25, F 18 Responses Nov 19, 2009

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    I'm 25 female, I get them terrible in my armpit and groin. I have a very large one in my armpit right now, and it's appeared to be somewhat broken but not fully burst yet. What can...
    morgandonor morgandonor 22-25, F 2 Responses 2 days ago

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    For Everyone With Hidradenitis Suppurativa - a lil encouragement to you all xWhen things go wrong as they sometimes will;When the road you're trudging seems all uphill;When the...
    Immy169 Immy169 26-30 4 Responses Feb 6, 2011

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    Stay Lifted!!!!! - I've been in bed for almost a week now but I feel more inspired than ever. Im glad I found this website and Im even more glad to find people who understand my...
    tjuane tjuane 31-35, F 1 Response May 2, 2013

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    I'm 19 and I've had it for a few years. It's all over my body and in my mind it's been ruining my life. My husband said it doesn't bother him, but it bothers me. This is a...
    Kierstypants7 Kierstypants7 18-21, F 2 Responses Dec 13, 2013

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    Hello all! I recently purchased and read the ebook "Fast Hidradenitis Suppurativa Cure". Most of the information given, I already knew through my own research. The gist of it a...
    marceeh87 marceeh87 26-30 1 Response Dec 29, 2013

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    Omg this is mind blowing there are real people like me. Someone els who actually knows my pain! I am 29 and have had HS for 20years now. My first incident was "boil" and I have to...
    mego4200 mego4200 26-30, F 3 days ago

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    Hi, my name's Nichole. I am 26 and a Stage 3 sufferer for 5 years now, and I'm tired. I have been getting lanced and drained for years and I now have the opportunity to have the...
    Nichole2688 Nichole2688 26-30, F Mar 10

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    Hi, my name's Nichole. I am 26 and a Stage 3 sufferer for 5 years now, and I'm tired. I have been getting lanced and drained for years and I now have the opportunity to have the...
    Nichole2688 Nichole2688 26-30, F 4 Responses Mar 10

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    I just got diagnosed 4 days ago by a dermatologist. The first derm did nothing but lance & give me antibiotics, which did stop the breakouts for a month & then new ones appeared...
    outwest2003 outwest2003 61-65, F 2 Responses Jan 19

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    No Diagnosis Until 3 Months Ago! - Hi, I have HS and I have been dealing with this condition since I was 20 years old. I was always told by family and various women; it's something...
    ZenQueen76 ZenQueen76 31-35, F 4 Responses Oct 10, 2012

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