I Have Hidradenitis Suppurativa


Read true personal stories, chat & get advice, support and help from a group of 422 people who all say I Have Hidradenitis Suppurativa

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220 Stories

Hs Athritis Fibro.... When Does It Stop!!!

I am 33 now but the first time i ever got a sore was in my groin around 15 yrs old. I was so embarrassed. I thought something was wrong with...

For Everyone With Hidradenitis Suppurativa

a lil encouragement to you all xWhen things go wrong as they sometimes will;When the road you're trudging seems all uphill;When the funds...

Hs Sufferers Please Read

Are you suffering from HS?? Please visit this facebook page to find 1000 other HS sufferers and learn more about this horrible disorder...

A Song That Made My Jaw Drop Open And Tears Billow Up In My Eyes! Somebody Understands!

HI! HS is nuts, crazy and something I think insurance companies/healthcare physicians should take more seriously than they do now. It seems...

Terror

I've probably had HS for 7 yrs, but was diagnosed a yr ago. This disease is very debilitating. I have about 5 boils and an abcess on my...

My Story...

I have been living with HS for about 10 years now and everyday is a struggle.  The pain from HS is something I never felt before some...

No Money ->no Cure ->no Hope

  I have HS. I've been getting boils for about 10 or so years. I hate it. It slowly progressed from about one or two lesions once in a...
Members Sharing the Experience "I Have Hidradenitis Suppurativa"
421 Members
I Have Hidradenitis Suppurativa Questions & Answers
This Experience at a Glance
Story highlights
These snippets show some of the most common themes mentioned in this experience's stories:
  • "It used to just be on my inner thighs, but now it's traveled to just below my armpits and I'm getting blister like things that hurt even worse than the pimple things..."
  • "I might try birth control and see if it helps..."
  • "but i can remember my mom getting surgery on her sweat glands in her 30s under her arms..."
And the Story Awards Go to...
Statistics:

100% of people in this group think this is a bad experience. 100% believe this experience makes them sad. 100% believe this is a boring experience. 90% believe this is a scary experience. 100% think this experience is hard. 80% believe this is expensive. 100% believe that, if they had the choice, they would not do it again. 100% say they would not recommend this to others. 90% believe they find this experience unattractive in others.

37% of people who have this experience are in their twenties, 27% are in their thirties, and 19% are in their teens. 87% of people who have this experience are women.

You may cite any I Have Hidradenitis Suppurativa statistics, provided you link back to this page
Check out this group's What Is It Like To Have Hidradenitis Suppurativa guide, where people with this experience share their tips and hints.

Here are a few tips...
  • Accutane does not cure HS. It is an acne treatment, HS is not acne. It does nothing for HS.
  • it has nothing to do with personal hygein
  • I wish i would have went to the Doctor after the First boil and not waited until it was way out of control.
Members said this page is also related to: Do You Have Hidradenitis Suppurativa? , What is it like to Have Hidradenitis Suppurativa? ,Have Hidradenitis Suppurativa personal stories, Have Hidradenitis Suppurativa personal experiences

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