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I Have Hidradenitis Suppurativa Polls

771 Members Say This

Take polls and surveys to share your thoughts about the experience, I Have Hidradenitis Suppurativa. Choose from the polls below, or create your own poll today.

Founder: endilwen09

Recent Group Activity

MikeOH shared their story, Dermatologist Says I Don'T Have HS Now. 5 hours ago

tonesofhome shared their story, Been Suffering For Almost 17 Years 2 days ago

tonesofhome said "I Have Hidradenitis Suppurativa" 2 days ago

Happylassie commented on the story, Seems To Help 2 days ago

whitney83204 shared their story, Why Me???????????/ 2 days ago

leightheterrible said "I Have Hidradenitis Suppurativa" 2 days ago

Filippousa commented on the story, Hello There All :) 3 days ago

cosmonautllama commented on the story, Genetic??? 3 days ago

cosmonautllama said "I Have Hidradenitis Suppurativa" 3 days ago

This Experience at a Glance

Story highlights
These snippets show some of the most common themes mentioned in this experience's stories:

"It used to just be on my inner thighs, but now it's traveled to just below my armpits and I'm getting blister like things that hurt even worse than the pimple things..."
"but i can remember my mom getting surgery on her sweat glands in her 30s under her arms..."
", and I recently went to a new plastic surgeon Im scheduled to have surgery next month but Im so scared not sure if its worth it..."

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And the Story Awards Go to...

Top Rated: Found Some Relief

Most Popular: Going For Surgery

Most Recent: Dermatologist Says I Don'T Have HS Now.

Most Commented: Going For Surgery

Most Entertaining: I've Never Been Formally Diagnosed...

Saddest: Absolutely No Bathing Suits

Happiest: I've Never Been Formally Diagnosed...

Statistics:

100% of people in this group say this is a bad experience. 100% of people in this group say this experience makes them sad. 100% say this is a boring experience. 90% think this is a scary experience. 100% believe this experience is hard. 80% think this is expensive. 100% think that, if they had the choice, they would not do it again. 100% think they would not recommend this to others. 90% think they find this experience unattractive in others. 31% of people who have this experience are in their twenties, 23% are in their thirties, and 19% are in their teens. 89% of people who have this experience are women.

You may cite any I Have Hidradenitis Suppurativa statistics, provided you link back to this page

Guides

Find tips and hints on What Is It Like To Have Hidradenitis Suppurativa from people who share this experience.

Here are a few tips...

I have had HS for 32 years, all of my life, (just recently discovered that it was HS a year ago). I was born very prematurely and needed catheters placed into my veins and where the doctors made the incisions healed into the ugliest "scar" I have ever.
I wish i would have went to the Doctor after the First boil and not waited until it was way out of control.
Accutane does not cure HS. It is an acne treatment, HS is not acne. It does nothing for HS.

See all What is it Like tips

No
Yes
Does Nothing
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Yes, An Autoimmune Diet Helps A Ton!
Yes, I Stopped Eating Pork And I'm Basically Cured!
Yes, Cow Products (meat & Dairy) Were My Nemesis!
Yes, I Steer Clear Of "diet" Products With Fake Sugars!
Yes And All I Had To Do Was Stop Eating Potatoes!
Yes, But None Of These Pertains To Me.
All Of The Above!
No, I've Never Tried. It's All A Bunch Of Hooey!
No, I Tried It For A Couple Weeks But Who Can Stop BACON!
No And I Was An Extreme Stickler & Tried For Over A Year!
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Yes, Best Decision I Ever Made!
Yes, But As The Yrs Pass Im Continually Upping My Dosage.
Yes, It Used To But It No Longer Seems To Do Any Good.
Well, I Tried But Other Homeopathics Work Better For Me.
Nah, That Hippy Dippy Stuff Is For The Birds!
No, I Got Some Off Brand And It Didn't Do Anything For Me.
No, I Got Some High End Product And It Just Didn't Work!
Curcu...whaaaA??!
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Groin
Arm Pits
Buttock
Breasts
Back
Thighs
Under Belly
My Face
2-4 Of These Choices.
5-All Of These Choices.
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Yup.
Not That I Know Of.
Nope.
I'm A Dude O_O
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I Got My Diagnosis Immediately.
A Couple Months To A Few Years.
3 To 6 Years To Get A Proper Diagnosis.
6 To 10 Years Of Suffering Before Finally... A Name.
Oh, Heck. It Was Well Over A Decade Before They Knew.
I Talked To A Friend/family Member And Learned It That Way.
I've Never Been Officially Diagnosed, I Learned Via The Internet.
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Heck Yeah, A Couple Days Before And It's Bump City!
As Soon As It Starts Is When My Life Seems To Stop!
Mine Seems More Prominent After My Cycle Is Over.
Paying Good Attention, I've Noticed No Correlation.
I'm A Dude O_o
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