I Have Hirschsprung's Disease

A Hirschsprung's Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hirschsprung's Disease. You're not alone. 11 People

    Mr.

    I am a 23 year old male who grew up with HD. I had 2 operations as an infant and have dealt with the disease ever since. Ask me anything.
    Gbhewitt Gbhewitt
    22-25, M
    1 Response Nov 25, 2012

    My Dad Had It, I Had It, Now My Baby Daughter Has It

    hello there,my name is gemma and i had hirschsprungs disease. i am now 28 years old, and am leading a normal life.my dad had hirschsprungs as a child, that was 51 years ago. i was treated at great ormond street hospital (was born in norwich at the n and n). my first op left me...
    nell2198 nell2198
    26-30
    1 Response Jun 7, 2012

    I wasnt diagnosed until i was 21.

    My life up until that point was horror. Several times i nearly died, and for whatever reason no one ever suspected hirschsprungs until the summer of 2013 when i didnt go to the restrooom for 13 weeks. even after diagnosis they didnt pt me in surgery, a life saving surgery. I...
    StillHanging92 StillHanging92
    22-25, F
    Jun 7, 2014

    I have a 12 year old son with HD,

    my heart hurts for him. He's going through so much mentally and socially with this disease. Friends pick once they find out that he has it. His very first girlfriend broke up with him a couple of days ago and said the reason was because he sh**s on himself. Imagine his pain. I...
    JamaicaJoy JamaicaJoy
    31-35, F
    2 Responses Jan 8, 2014
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