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I Have Horner's Syndrome

A Horner's Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Horner's Syndrome. You're not alone. 32 People

    Horners Syndrome - Hi there everyone, My boy Caden was diagnosed with horners syndrome a year ago. He is 4 years old, we did not notice it from birth and he had no trauma. He...
    concin concin 31-35, F Jul 19, 2012

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    My Side - It started with an eye that just didn't want to open fully for a week. I went to the opthomologist and was diagnosed. All kinds of very serious tests to rule out stroke...
    Kensarasota Kensarasota 26-30 Sep 27, 2012

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    I Have Horners Syndrome Only Two Weeks Now. - I have Horners Syndrome since Sept 26 2012, onset was two days after going to have two teeth pulled on the upper right. Droopy lid...
    Carol3 Carol3 56-60 3 Responses Oct 5, 2012

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    Diagnosed Two Years Ago - I Have Horner's Syndrome. When my PCP diagnosed me two years ago, she acted like there was nothing to it. I went to the doctors because the right side of...
    puchiwuch puchiwuch 46-50 1 Response Sep 28, 2008

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    Still Waiting For Answers - I had a trach placed in March of 2009 because of vocal cord dysfunction and not being able to breath when my vocal cords would spasm shut.  Then I...
    wantanswers wantanswers 31-35, F 3 Responses Nov 17, 2009

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    Ineed Some Advice! - I was born with horners syndrome and was diagnosed when I was 4 years old. I only sweat on the right side of my head and when I workout or doing anything...
    AaronG23 AaronG23 18-21, M 2 Responses Dec 27, 2012

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    Sad Looking For Help - All throughout junior high and high school I was berated for my drooping eyelid due to complications of my birth. It really hurt my self confidence and I...
    Jordanhead11 Jordanhead11 18-21 4 Responses Jun 12, 2012

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    I Have Horner's Syndrome - hey guys, im 15 years old and i was "born" with horner's syndrome. i have two different colored eyes, the effected eye is blue and it is droopy. the...
    noellexfrankk noellexfrankk 13-15 2 Responses Aug 18, 2011

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    Chronic Horner Since I Can Remember - I was diagnosed with a ganglio neuroma tumor in my right lung when I was one year old. I've had Horner since the procedure to remove that...
    Tente Tente 22-25, M Aug 4, 2013

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    I was just diagnosed a few months ago but I think I've had it for a few years now. The doctors actually found the tumor in my chest before they realized my eye drooping was Horner...
    Pinkyjolie Pinkyjolie 26-30, F 1 Response Mar 27

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    Horners And My Eye Battles - I have Horners and was diagnosed over 2 years ago.  I honesly dont have too many side effects from it, other than my left eye droops a little and...
    aravenbeauty aravenbeauty 31-35, F 1 Response Oct 1, 2010

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    Horners Depression - Hi Everyone I have been recently diagnosed with horners although I have had the symptoms (droopy eyelid, less reactive pupil and decreased sweating) since I...
    lauraelise1986 lauraelise1986 26-30 Aug 21, 2013

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    I Was Born With Horner's Syndrome. - My name is Nicole, and I'm seventeen years old from Minnesota & I was born with Horner's Syndrome. My symptoms aren't the worst, I have the...
    x420nicolemarie x420nicolemarie 16-17 1 Response May 13, 2012

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    Horner's After Surgery - I developed horner's after surgery. I found this website this morning and was hopinng someone could help. I, of course, have the usual symptoms, ie not...
    Westsides Westsides 41-45, M Aug 15, 2013

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    Hi. - I'm 16 years old. I have one blue eye and one green eye. My pupils are also not the same size. Also, when I do something active, my face turns half red and half white. ..why...
    Catwoman16 Catwoman16 16-17 Aug 14, 2012

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    Eeye Drops Help With Ptosis - There are some eye-drops you can buy without prescription which eliminate ptosis for several hours at a time!
    Roberta56 Roberta56 56-60 May 5, 2013

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    Need Help - I get bullied in school I'm 14 about to turn 15 in the eigth grad and theirs one student who picks on me by closing his left eye when he talks to me he gets all of his...
    rboss2013 rboss2013 13-15, M Jan 30, 2013

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    Related Experiences

    I have Tourette's syndrome.
    mrhollingswortg1992 mrhollingswortg1992 22-25, M Apr 8

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    I have a question for everyone :) So I was diagnosed with Asperger's Syndrome a few years ago and am aware about it for a while now. Lately, however I have been having random...
    EurydiceKallos EurydiceKallos 16-17, F 2 Responses 11 hrs ago

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    I found out I had Poland's Syndrome in my 30s ( I am now 48) when I was referred to a plastic surgeon. Had an operation but had to remove the implant as my chest cavity kept...
    gamordente gamordente 46-50, M 5 days ago

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    There has been no official diagnosis. But, all my life I have felt very different from everyone else. Job after job I have had a difficult time forming close relationships and...
    pottersclay pottersclay 41-45, F 1 Response 12 hrs ago

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    Was diagnosed back in high school. Felt like it held me back from many things. Yea, I did go 2 dances, junior and senior prom, but people treated me like I was retarded. I'm highly...
    HottRoddTX HottRoddTX 26-30, M 4 Responses Mar 28

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    But it's not what everyone thinks it is. When you say 'aspergers', people think of socially awkward people who are obsessed with computers or science. But in reality, it's a lot...
    sarah19597 sarah19597 16-17, F 7 Responses Mar 27

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    I was diagnosed with TS when I was very young. My case is mild and my tics are slight but I do feel the internal side effects of TS like anxiety, hyper vigilance, and some OCD. I...
    artMusicBrew artMusicBrew 36-40, M Mar 24

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    I get reconstruction surgery July 16th!!! SO excited, but not being able to play field hockey because of it is going to suck. I'm terrified of going under but I don't even care...
    marinagrace marinagrace 13-15, F a week ago

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    I am adult ADHD and have Parkinson's. My wife has Asperger's and various chronic illnesses. I love my wife dearly, but most of our marriage I've wondered whether she loves me. I...
    rw57 rw57 56-60, M Mar 22

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    I do not have Parkinson's disease but I added this experience because I plan to become a neurologist specializing in Parkinson's disease and I love reading what you have to say...
    emily39 emily39 18-21, F Mar 24

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    I think I might have Cushing's Disease. Looking for someone who can explain what they went through with this.
    Jackson2033 Jackson2033 18-21, F Apr 4

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    I was diagnosed at the age of 17. Up until that point i spent my life with the perallasis and docters not knowing what it was. They thought i had a type od muscular distrophy and i...
    tabitha35 tabitha35 31-35, F Mar 19

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    So I am 21 years old and I suffer from Poly Cystic Ovarian Syndrome, I have done my research and unfortunately it comes with so many issues. But it is common and I would love to...
    o1Nadia1o o1Nadia1o 18-21, F Mar 28

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    I really need someone who knows what is going on to help me make sense of things. My partner of just over a year.. has spent the year breaking up with me. I am always fighting...
    maveric01 maveric01 41-45, F 1 Response Mar 20

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    I'm at a crossroads now, as I have four young children with my husband of 8 years, who has undiagnosed Autism. I have always just given my husband his way. I thought I was just...
    GMetz34 GMetz34 31-35, F Mar 20

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    I am the middle of 5 2 older brothers 2 younger sisters. My brothers were always allowed to do what ever they want. Stay up late,drive, and lots of other fun stuff. My parents took...
    Jimmy1313 Jimmy1313 22-25, M Mar 26

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    I personally don't have CFS but my mother has it and it's been one of the most difficult things to deal with on a daily basis. I have determined that my mothers stress levels...
    IamLerato IamLerato 22-25, F 1 Response 3 days ago

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    I started with pain at the first of January. Woke up one morning with the feeling that I was being stabbed in the shoulder with a knife. Used heat/ice thinking I had pulled a...
    msv123 msv123 51-55, F 2 Responses 1 day ago

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    Wow I dont know where to start.... after having being misdiagnosed on 12/27/2012 and sent home when i arrived because i was in so much pain i could not walk. Returned to the ER on...
    momndom momndom 31-35, F 3 Responses Mar 22

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    I am 32 years old, diagnosed three years ago. I have had 5 surgeries on my leg and 3 on my shoulder. I am on anti-depressants, nerve painkillers, anti-inflammatories and...
    gimpy55 gimpy55 31-35, F Mar 26

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    I've had symptoms of Crohn's Disease since I was 13. Having gone through four doctors and two negative colonoscopies (among other tests), it was kind of a relief when I was finally...
    Maeliss Maeliss 18-21, F Apr 7

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    Hello. I'm actually happy to have found a place to read others similar stories to my sons.. when he was born, he was perfect. At about 4-5 months old, my mother noticed he wasn't...
    amburk amburk 22-25, F Mar 21

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    I was just diagnosed with Forestier's Disease or DISH...Diffuse Idiopathic Skeletal Hyperostosisin in my lower spine. I've had weakness in my legs, lower back for the past 4...
    halley888 halley888 46-50, F Mar 26

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    I was first diagnosed when I was about 10 and I am now almost 35. I have been treated with many different forms of both topical ointments and oral steroids over the years...
    RizzB RizzB 31-35, F Mar 27

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    I was diagnosed last year, I have typical symptoms but my doctor said its extreme, my hands get a little cold and got pure whit e and when they warm the pins and needles start. It...
    indigo21 indigo21 16-17, F Apr 3

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    Its my daughter that has Dariers, inherited from her dad she is now 12 but was showing symptoms at 2!! she has topical ointments and washes to use but obviously its v hard for her...
    exhaustedx10 exhaustedx10 41-45, F Mar 28

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    I feel like I am failing him, all the time.
    sparklewonderpaws sparklewonderpaws 26-30, F 6 days ago

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    Anyone with this won't to talk ? Just diagnosed today and would love to talk to others with it
    Mum2one Mum2one 22-25, F 1 Response 2 days ago

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    I really want to get involved but I don't know what to say other than I'm here.
    lunaskies lunaskies 56-60, F Mar 28

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    Can anyone explain what the signs and symptoms were for them?
    Jackson2033 Jackson2033 18-21, F 1 Response Apr 5

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    I have Postural Tachycardia Syndrome, as I only have issues with my heart rate not my blood pressure when standing. Does anyone else have this? What helps? I'm waiting on a call...
    Konig316 Konig316 26-30, F 3 Responses Mar 30

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    She was found dead in her bedroom at 4am yesterday. No news yet with regards to the cause. She was one of those crazy party girls. But there was something wrong. For as...
    NekroNomikon NekroNomikon 18-21, F 4 Responses 2 days ago

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    My names Alaina, I'm 17, and about three years ago I was diagnosed with Chiari Malformation Type 1. So freshman year of high school I started having really bad headaches, and found...
    burtala burtala 16-17, F Mar 27

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    From what I understand, you need to have had S in order to get an S T D. :P
    Whoami30 Whoami30 26-30, M 1 Response 3 days ago

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