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I Have Horner's Syndrome

A Horner's Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Horner's Syndrome. You're not alone. 41 People

    I was diagnosed at 27 due to tadpole pupil

    episodes. I always had a smaller pupil and droopy lid. Also a long time migraine sufferer. In the past two years, I developed new symptoms including heat/exercise induced sweating and discoloration issues.
    telltalelemon telltalelemon 36-40, F Jul 29, 2014

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    My Side

    It started with an eye that just didn't want to open fully for a week. I went to the opthomologist and was diagnosed. All kinds of very serious tests to rule out stroke and now down to this. My eye reacts to many things. If I have alcohol, the next day it droops more. I use over...
    Kensarasota Kensarasota 26-30 Sep 27, 2012

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    Need Help

    I get bullied in school I'm 14 about to turn 15 in the eigth grad and theirs one student who picks on me by closing his left eye when he talks to me he gets all of his freinds to do it to and he gets on my nerves and I was wondering what I should do about it
    rboss2013 rboss2013 13-15, M 2 Responses Jan 30, 2013

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    Ineed Some Advice!

    I was born with horners syndrome and was diagnosed when I was 4 years old. I only sweat on the right side of my head and when I workout or doing anything physical one have of my face gets all red and sweaty while the other just stays the same, also one of my eyes is blue, and the...
    AaronG23 AaronG23 18-21, M 2 Responses Dec 27, 2012

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    Still Waiting For Answers

    I had a trach placed in March of 2009 because of vocal cord dysfunction and not being able to breath when my vocal cords would spasm shut.  Then I began to have other symptoms in May of 2009, problems stuttering and swallowing.  I saw a neurologist and he wanted to rule...
    wantanswers wantanswers 31-35, F 3 Responses Nov 17, 2009

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    Hi.

    I'm 16 years old. I have one blue eye and one green eye. My pupils are also not the same size. Also, when I do something active, my face turns half red and half white. ..why? When I was younger it stopped me from doing sports. But now that I'm doing cross cross, it happens all...
    Catwoman16 Catwoman16 16-17 Aug 14, 2012

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    I Was Born With Horner's Syndrome.

    My name is Nicole, and I'm seventeen years old from Minnesota & I was born with Horner's Syndrome. My symptoms aren't the worst, I have the mild case of it. One of my eyes is smaller than the other along with the pupil. I also sweat on ONE side of my face and I get a red line...
    x420nicolemarie x420nicolemarie 16-17 1 Response May 13, 2012

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    Horners And My Eye Battles

    I have Horners and was diagnosed over 2 years ago.  I honesly dont have too many side effects from it, other than my left eye droops a little and I will most likely need a left in a few years, and my left eye does not come back from dialiation at the same pace as my right...
    aravenbeauty aravenbeauty 31-35, F 1 Response Oct 1, 2010

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    I Have Horners Syndrome Only Two Weeks Now.

    I have Horners Syndrome since Sept 26 2012, onset was two days after going to have two teeth pulled on the upper right. Droopy lid, blurry vision, watery eye, redness, headache temple area, sensitive scalp and nauseated. Went to eye doctor day before yesterday diagnosed with...
    Carol3 Carol3 56-60 3 Responses Oct 5, 2012

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    I'm new to EP and this forum.

    My left eye upper eyelid is shutting. The eye is more open in morning and gets worse throughout day. Probable cause-carotid artery dissection.
    Ishut Ishut 51-55, M Jun 17, 2014

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    Chronic Horner Since I Can Remember

    I was diagnosed with a ganglio neuroma tumor in my right lung when I was one year old. I've had Horner since the procedure to remove that tumor, I am 23 years old now. I have complete anhydrosis from my nipple up in my right side, completely dry, even If I run or go into a sauna...
    Tente Tente 22-25, M 3 Responses Aug 4, 2013

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    Horner's After Surgery

    I developed horner's after surgery. I found this website this morning and was hopinng someone could help. I, of course, have the usual symptoms, ie not sweating on one side, droopy eyelid, small pupil. Unfortunately, I also have one eye (the affected eye) that is bloodshoot...
    Westsides Westsides 46-50, M 1 Response Aug 15, 2013

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    Life Is Life

    when i was a little kid i got a peace of plastic stuck in my throat and i had to go to the hospital aften for 2 years and when i came out i had horner's syndrome in both my eye and hafe my body. Because of it im going blind the doc. said by the time im 27 ill be blind and...
    redhorn70 redhorn70 13-15, M 5 Responses May 21, 2010

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    Sad Looking For Help

    All throughout junior high and high school I was berated for my drooping eyelid due to complications of my birth. It really hurt my self confidence and I would joke a lot to try and hide how sad I was and am. My joking was taken as hostility by my peers and I ended up almost...
    Jordanhead11 Jordanhead11 18-21 4 Responses Jun 12, 2012

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    Eeye Drops Help With Ptosis

    There are some eye-drops you can buy without prescription which eliminate ptosis for several hours at a time!
    Roberta56 Roberta56 56-60 1 Response May 5, 2013

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    I Have Horner's Syndrome

    hey guys, im 15 years old and i was "born" with horner's syndrome. i have two different colored eyes, the effected eye is blue and it is droopy. the other eye is brown, and normal. i have 20/20 vision and everythings normal. i feel like if i took a picture on one side of my face...
    noellexfrankk noellexfrankk 13-15 3 Responses Aug 18, 2011

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    I'm new to EP and this forum.

    My left eye upper eyelid is shutting. The eye is more open in morning and gets worse throughout day. Probable cause-carotid artery dissection. Doctor says just wait. Are any of you receiving treatment?
    Ishut Ishut 51-55, M Jun 17, 2014

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    Diagnosed Two Years Ago

    I Have Horner's Syndrome. When my PCP diagnosed me two years ago, she acted like there was nothing to it. I went to the doctors because the right side of my head would sweat profusely in the summer. It made it really hard to do my job. I noticed my left eye drooping alittle more...
    puchiwuch puchiwuch 46-50 1 Response Sep 28, 2008

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    Recently diagnosed with horners

    and holmes syndrome.. after over 10 years and going to many drs about me not sweating I finally found out why.. and this added to my many other issues ptsd.. anxiety ... panic attacks and severe depression it looks like I am in for one hell of a ride
    baidal88 baidal88 36-40, M 1 Response 2 days ago

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    Horners Depression

    Hi Everyone I have been recently diagnosed with horners although I have had the symptoms (droopy eyelid, less reactive pupil and decreased sweating) since I was around 10 years old and I am now 26. I don't really understand why my parents never got it checked out and I do hold a...
    lauraelise1986 lauraelise1986 26-30 2 Responses Aug 21, 2013

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    Horners Syndrome

    Hi there everyone, My boy Caden was diagnosed with horners syndrome a year ago. He is 4 years old, we did not notice it from birth and he had no trauma. He went for a mri but all is clear. He started getting bad migraines at the beginning of this year and today he is home sick...
    concin concin 31-35, F Jul 19, 2012

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    I was just diagnosed a few months ago

    but I think I've had it for a few years now. The doctors actually found the tumor in my chest before they realized my eye drooping was Horner's. Everyone just thought it was my lazy eye causing the drooping. I also have the uneven pupils that one neuro eye doctor said was a...
    Pinkyjolie Pinkyjolie 26-30, F 3 Responses Mar 27, 2014

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    I was diagnosed with Asperger's (autism) about a year ago but I didn't accept the diagnosis because I had a lot of misunderstandings about what it meant. After continuing treatment...
    ExtrovertedAspie ExtrovertedAspie 31-35, M 1 Response 1 day ago

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    It really bugs me when people dismiss my or other people's struggles with a bit of whataboutery. Or even just saying things like "pull yourself together". I don't deny that there...
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    There's days where I forget I am autistic. Surprising isn't it. Today was not one of those days. Too many people today. Too many emotions. Too many decisions. Too many things to...
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    I am pretty sure my husband of 11 years has aspergers. We have three children, he is a stay at home dad. I love him but I feel like I am the only one making any effort in our...
    eriesisgod eriesisgod 26-30, F 2 days ago

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    I haven't really written anything in a few years, and it makes me sad, I used to love writing fiction, but I could never figure out what to write about... help please
    internetkid internetkid 18-21, F 1 Response 3 days ago

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    Phew!!! Major dramas in a group I help admin on Facebook. (Hostile takeover and rescue attempts for a group of 20 000 aspies) I am going to have a busy couple of days. What with...
    jacquelinejones jacquelinejones 46-50 1 Response 3 days ago

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    I've had the worst writer's block of my entire life for the past year now. Writing is my passion, but since I've developed depression I haven't been able to write for more than a...
    FayetheBrilliant FayetheBrilliant 16-17, F 3 days ago

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    I do. However, I constantly talk to myself, act out scenes and think negative. It's ruining my life and it's decreasing my time to practice drawing.
    FoxFan64 FoxFan64 13-15, M 2 Responses 5 days ago

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    They yell at you that you're not normal. That you always **** things up. You leave to your room, crying. You overhear them in the other room: What did we do wrong? How could we not...
    EurydiceKallos EurydiceKallos 18-21, F 6 Responses 5 days ago

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    my boss had a good point this label and every other label that people are diagnosed with is stupid some idiot decided back in the 1930s that whatever human being back then till...
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    How it's going? I have been suffering Queratitis TSPK for 15 years. It's really annoying and I'm pretty upset. The only treatment that really works is corticoides FML but it...
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    It all started 2 years ago when every time I was working ( at a nursing home ) I was fainting. Everytime this happened I went to the hospital and I got told nothing was wrong with...
    klousie klousie 22-25, F a week ago

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    Hi I am Madison, I am 16 years old and developed Darier’s disease when I was 2. The condition started with just a few bumps around my mouth, and by the time I was about eight I...
    Maddie314 Maddie314 16-17, F a week ago

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    Hi. I am new to this site. I am a 50-year-old female. I started getting migraines around age 30. They became chronic after a few years and have been having them chronically...
    KarenMac2 KarenMac2 46-50, F 1 Response a week ago

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    She just vanished.... She and I had had a relationship for about a month and a week, when she suddenly started being more and more distant. She stopped communicating on days that...
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    so i found out i have polycystic ovary syndrome a few days ago and it sucks since me and my husband have been trying and now reading about it is making me even more down about it...
    sweety7268 sweety7268 18-21, F Jul 21

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    I hate my life. There are some days when I want to run away and never come back. I have a great husband that any woman would be blessed to have. He's hardworking, loving, kind...
    BadlyBent BadlyBent 36-40, F 5 Responses Jul 20

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    Hi, I am male and retired and was diagnosed with EF in July 2014. I started treatment in August 2014 and now it is a year later and I am already much better. I hope that gives you...
    mogfitz mogfitz 66-70, M Jul 20

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    I've been thinking about this a lot recently, so hopefully writing about it will get it out of my mind. I don't really know where to start. First of all, just for some background...
    brint0n brint0n 16-17, F 2 Responses Jul 20

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