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I Have Horner's Syndrome

A Horner's Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Horner's Syndrome. You're not alone. 39 People

    I was just diagnosed a few months ago

    but I think I've had it for a few years now. The doctors actually found the tumor in my chest before they realized my eye drooping was Horner's. Everyone just thought it was my lazy eye causing the drooping. I also have the uneven pupils that one neuro eye doctor said was a...
    Pinkyjolie Pinkyjolie 26-30, F 3 Responses Mar 27, 2014

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    I Have Horner's Syndrome

    hey guys, im 15 years old and i was "born" with horner's syndrome. i have two different colored eyes, the effected eye is blue and it is droopy. the other eye is brown, and normal. i have 20/20 vision and everythings normal. i feel like if i took a picture on one side of my face...
    noellexfrankk noellexfrankk 13-15 2 Responses Aug 18, 2011

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    Horner's After Surgery

    I developed horner's after surgery. I found this website this morning and was hopinng someone could help. I, of course, have the usual symptoms, ie not sweating on one side, droopy eyelid, small pupil. Unfortunately, I also have one eye (the affected eye) that is bloodshoot...
    Westsides Westsides 46-50, M 1 Response Aug 15, 2013

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    I was diagnosed at 27 due to tadpole pupil

    episodes. I always had a smaller pupil and droopy lid. Also a long time migraine sufferer. In the past two years, I developed new symptoms including heat/exercise induced sweating and discoloration issues.
    telltalelemon telltalelemon 36-40, F Jul 29, 2014

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    Need Help

    I get bullied in school I'm 14 about to turn 15 in the eigth grad and theirs one student who picks on me by closing his left eye when he talks to me he gets all of his freinds to do it to and he gets on my nerves and I was wondering what I should do about it
    rboss2013 rboss2013 13-15, M 2 Responses Jan 30, 2013

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    Ineed Some Advice!

    I was born with horners syndrome and was diagnosed when I was 4 years old. I only sweat on the right side of my head and when I workout or doing anything physical one have of my face gets all red and sweaty while the other just stays the same, also one of my eyes is blue, and the...
    AaronG23 AaronG23 18-21, M 2 Responses Dec 27, 2012

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    Chronic Horner Since I Can Remember

    I was diagnosed with a ganglio neuroma tumor in my right lung when I was one year old. I've had Horner since the procedure to remove that tumor, I am 23 years old now. I have complete anhydrosis from my nipple up in my right side, completely dry, even If I run or go into a sauna...
    Tente Tente 22-25, M 3 Responses Aug 4, 2013

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    Hi.

    I'm 16 years old. I have one blue eye and one green eye. My pupils are also not the same size. Also, when I do something active, my face turns half red and half white. ..why? When I was younger it stopped me from doing sports. But now that I'm doing cross cross, it happens all...
    Catwoman16 Catwoman16 16-17 Aug 14, 2012

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    Horners And My Eye Battles

    I have Horners and was diagnosed over 2 years ago.  I honesly dont have too many side effects from it, other than my left eye droops a little and I will most likely need a left in a few years, and my left eye does not come back from dialiation at the same pace as my right...
    aravenbeauty aravenbeauty 31-35, F 1 Response Oct 1, 2010

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    Sad Looking For Help

    All throughout junior high and high school I was berated for my drooping eyelid due to complications of my birth. It really hurt my self confidence and I would joke a lot to try and hide how sad I was and am. My joking was taken as hostility by my peers and I ended up almost...
    Jordanhead11 Jordanhead11 18-21 4 Responses Jun 12, 2012

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    I'm new to EP and this forum.

    My left eye upper eyelid is shutting. The eye is more open in morning and gets worse throughout day. Probable cause-carotid artery dissection. Doctor says just wait. Are any of you receiving treatment?
    Ishut Ishut 51-55, M Jun 17, 2014

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    Life Is Life

    when i was a little kid i got a peace of plastic stuck in my throat and i had to go to the hospital aften for 2 years and when i came out i had horner's syndrome in both my eye and hafe my body. Because of it im going blind the doc. said by the time im 27 ill be blind and...
    redhorn70 redhorn70 13-15, M 5 Responses May 21, 2010

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    I Have Horners Syndrome Only Two Weeks Now.

    I have Horners Syndrome since Sept 26 2012, onset was two days after going to have two teeth pulled on the upper right. Droopy lid, blurry vision, watery eye, redness, headache temple area, sensitive scalp and nauseated. Went to eye doctor day before yesterday diagnosed with...
    Carol3 Carol3 56-60 3 Responses Oct 5, 2012

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    Horners Depression

    Hi Everyone I have been recently diagnosed with horners although I have had the symptoms (droopy eyelid, less reactive pupil and decreased sweating) since I was around 10 years old and I am now 26. I don't really understand why my parents never got it checked out and I do hold a...
    lauraelise1986 lauraelise1986 26-30 2 Responses Aug 21, 2013

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    Horners Syndrome

    Hi there everyone, My boy Caden was diagnosed with horners syndrome a year ago. He is 4 years old, we did not notice it from birth and he had no trauma. He went for a mri but all is clear. He started getting bad migraines at the beginning of this year and today he is home sick...
    concin concin 31-35, F Jul 19, 2012

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    I Was Born With Horner's Syndrome.

    My name is Nicole, and I'm seventeen years old from Minnesota & I was born with Horner's Syndrome. My symptoms aren't the worst, I have the mild case of it. One of my eyes is smaller than the other along with the pupil. I also sweat on ONE side of my face and I get a red line...
    x420nicolemarie x420nicolemarie 16-17 1 Response May 13, 2012

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    My Side

    It started with an eye that just didn't want to open fully for a week. I went to the opthomologist and was diagnosed. All kinds of very serious tests to rule out stroke and now down to this. My eye reacts to many things. If I have alcohol, the next day it droops more. I use over...
    Kensarasota Kensarasota 26-30 Sep 27, 2012

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    I'm new to EP and this forum.

    My left eye upper eyelid is shutting. The eye is more open in morning and gets worse throughout day. Probable cause-carotid artery dissection.
    Ishut Ishut 51-55, M Jun 17, 2014

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    Eeye Drops Help With Ptosis

    There are some eye-drops you can buy without prescription which eliminate ptosis for several hours at a time!
    Roberta56 Roberta56 56-60 1 Response May 5, 2013

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    Still Waiting For Answers

    I had a trach placed in March of 2009 because of vocal cord dysfunction and not being able to breath when my vocal cords would spasm shut.  Then I began to have other symptoms in May of 2009, problems stuttering and swallowing.  I saw a neurologist and he wanted to rule...
    wantanswers wantanswers 31-35, F 3 Responses Nov 17, 2009

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    Diagnosed Two Years Ago

    I Have Horner's Syndrome. When my PCP diagnosed me two years ago, she acted like there was nothing to it. I went to the doctors because the right side of my head would sweat profusely in the summer. It made it really hard to do my job. I noticed my left eye drooping alittle more...
    puchiwuch puchiwuch 46-50 1 Response Sep 28, 2008

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    Related Experiences

    Indeedly--makes effective communication a ***** I gotta say. And then there's the difficulty to quickly adapt, and sometimes people say stuff in a way that you just don't get and...
    Cryx Cryx 16-17, F 4 hrs ago

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    I have it. Mayve yes or maybe no. I dont know but there are signs. Although I wasnt diagnosed coz going to a psychiatrist or something has a negative stigma in my place. When I was...
    WifeOfVegeta WifeOfVegeta 26-30, F 1 Response Feb 4

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    As an Aspie, I get very tired having to socialize and talk to people. I'm often accused of being aloof, standoffish, or downright rude. It's not my intention to be mean or...
    Sorgun Sorgun 26-30, M 3 Responses a week ago

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    social norms always confuses me. Still normal though. :)
    WifeOfVegeta WifeOfVegeta 26-30, F 1 Response Feb 1

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    i am aspie and i am proud of it. it makes me who i am and ucan all say like it makes some things i know i was diagnosed last year with this and high functioning augism and this is...
    prodemonz prodemonz 13-15, M 3 Responses 4 days ago

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    One year ago is when I started getting sick. It's started out as maybe an hour in the morning I would feel extremely nauseous and most of the time I would get sick and then go on...
    kateyrose98 kateyrose98 16-17, F Feb 9

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    Hello: My daughter has Parkes Weber Syndrome. I'm wondering if anyone in this group is from Ontario?
    Momofgirl Momofgirl 41-45, F Feb 5

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    My 13yr old daughter is an aspie .It runs on my husband's side of our family. He himself is an aspie so is his 17yr old son. Our 11yr old son has autism. It primarily has affected...
    Allie9273 Allie9273 41-45, F Feb 6

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    I am 31 and my husband is 31 as well?we are a gay couple? for the last 7 years My husband has been aware of his Aspergers Diagnosis and I, Have done a very extensive amount of...
    KnightOfTheMadHatter KnightOfTheMadHatter 31-35, M 6 days ago

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    It's so tough to get exercise. I want to exercise so much...but I can't because it hurts and my joints pop every time i do:(
    Enpfor12 Enpfor12 18-21, F Feb 10

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    Hi, I'm 21. I slipped a disc in December 2014. I had CES symptoms for 2 weeks before having my disc removed as I was on a cruise ship. I guess I'm lucky as I can walk normally with...
    sdavis313 sdavis313 18-21, F 1 Response Feb 15

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    I can't say 100% that I have this (just 98%) I wish I knew how to get better because I also have pseudotumor cerebri and the two are going in circles with each other right now...
    lu7998 lu7998 31-35, F Feb 16

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    Dear CFS: **** you! I hate not being able to think clearly. I hate not being able to play with my kids Saturday *and* Sunday. Instead, I have to pick one day and then use the...
    LookingForIt987 LookingForIt987 41-45, M 2 Responses Feb 11

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    Hi everyone! So I'll be posting my full story later but just wanted to do a short version. I'm 17 and was diagnosed in October 2014, they found out it was BCS after only being...
    Abbyrk Abbyrk 16-17, F 1 Response Feb 15

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    Hi I'm 24 years old and currently being diagnosed with pts. 5 months ago I had my first symptom which came out of no where and was severe! I have had sooo many tests as you would...
    megzeee megzeee 22-25, F 1 Response Feb 18

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    I was born weighing two pounds and couldn't eat on my own. I wasn't eating food of any kind and was diagnosed with RSS when i was an infant. At first i was put on a N G tube (a...
    RTKDcarmichael1stdegree RTKDcarmichael1stdegree 18-21, M 1 Response 3 days ago

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    Have any of you kept up with news recently? Apparently, there are studies now that show this is a disease and the medical community will start treating it as a disease. Looks like...
    awesomesauce2 awesomesauce2 22-25, M 3 Responses 3 days ago

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    Iv had Crohn's pretty much my entire life. I had my whole large bowel out 3 yrs ago, Stoma for a year (thank god it was reversible) but since then I have suffered agonising fatigue...
    strawberryblonde89 strawberryblonde89 26-30, F 2 Responses Feb 9

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    Well I thought, for some silly reason, that I was the only person with Parkinson's Disease that had the horrible morning toes problem. Turns out it's more common then I thought...
    LifeinWoodinville LifeinWoodinville 41-45, M 2 Responses Feb 6

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    I've just started training full time at a circus school in Australia (NICA), and am struggling every day to keep up and to not feel sick. Almost every day I have to sit down for a...
    krazykrazne krazykrazne 22-25, F Feb 18

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    I was diagnosed at 9 (now I'm 14). It can be really hard but what makes it soo much easier for me is camp oasis (summer camp for people with Crohn's and colitis)...ITS SO AMAZING...
    ellajade ellajade 13-15, F a week ago

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    PAN (Patient Access Network) Foundation Launches Financial Assistance for Patients Living with Parkinson’s Disease: http://www.panfoundation.org/news-article-list/365-pan...
    LifeinWoodinville LifeinWoodinville 41-45, M 1 Response 5 days ago

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    Chrohn's is the worst!! These have been the roughest 2 years of my life so far. Words can not explain my frustration with this. All I want to know is what the hell can I eat...
    beYOUtifulxo beYOUtifulxo 26-30, F 3 Responses 1 day ago

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    I'm 22 years old the mother of two and one on the way. for the past month i have been out of my doctors and endocrinologist whom thought i had hypothyroidism until i had an...
    jesskap jesskap 22-25, F a week ago

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    hi guys , 4 months ago i started getting pain from left wrist , i workout alot so i thought it was from training but after 2 week and pain was still there , i went to doctor and...
    Al1r3zA Al1r3zA 18-21, M Feb 20

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    I've had it since I was 9 years old
    ellajade ellajade 13-15, F a week ago

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    My sister does, and I'm that sibling. I have asperger's syndrome, a form of high-functioning autism. When I was younger I would get angry at the littlest things. I remember...
    ftmFreddy ftmFreddy 18-21, T 1 Response Feb 9