Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Horner's Syndrome

A Horner's Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Horner's Syndrome. You're not alone. 37 People

    Need Help

    I get bullied in school I'm 14 about to turn 15 in the eigth grad and theirs one student who picks on me by closing his left eye when he talks to me he gets all of his freinds to do it to and he gets on my nerves and I was wondering what I should do about it
    rboss2013 rboss2013 13-15, M 2 Responses Jan 30, 2013

    Your Response

    Cancel

    I'm new to EP and this forum.

    My left eye upper eyelid is shutting. The eye is more open in morning and gets worse throughout day. Probable cause-carotid artery dissection.
    Ishut Ishut 51-55, M Jun 17

    Your Response

    Cancel

    I Have Horner's Syndrome

    hey guys, im 15 years old and i was "born" with horner's syndrome. i have two different colored eyes, the effected eye is blue and it is droopy. the other eye is brown, and normal. i have 20/20 vision and everythings normal. i feel like if i took a picture on one side of my face...
    noellexfrankk noellexfrankk 13-15 2 Responses Aug 18, 2011

    Your Response

    Cancel

    Horners Syndrome

    Hi there everyone, My boy Caden was diagnosed with horners syndrome a year ago. He is 4 years old, we did not notice it from birth and he had no trauma. He went for a mri but all is clear. He started getting bad migraines at the beginning of this year and today he is home sick...
    concin concin 31-35, F Jul 19, 2012

    Your Response

    Cancel

    Eeye Drops Help With Ptosis

    There are some eye-drops you can buy without prescription which eliminate ptosis for several hours at a time!
    Roberta56 Roberta56 56-60 May 5, 2013

    Your Response

    Cancel

    My Side

    It started with an eye that just didn't want to open fully for a week. I went to the opthomologist and was diagnosed. All kinds of very serious tests to rule out stroke and now down to this. My eye reacts to many things. If I have alcohol, the next day it droops more. I use over...
    Kensarasota Kensarasota 26-30 Sep 27, 2012

    Your Response

    Cancel

    I was just diagnosed a few months ago

    but I think I've had it for a few years now. The doctors actually found the tumor in my chest before they realized my eye drooping was Horner's. Everyone just thought it was my lazy eye causing the drooping. I also have the uneven pupils that one neuro eye doctor said was a...
    Pinkyjolie Pinkyjolie 26-30, F 3 Responses Mar 27

    Your Response

    Cancel

    Sad Looking For Help

    All throughout junior high and high school I was berated for my drooping eyelid due to complications of my birth. It really hurt my self confidence and I would joke a lot to try and hide how sad I was and am. My joking was taken as hostility by my peers and I ended up almost...
    Jordanhead11 Jordanhead11 18-21 4 Responses Jun 12, 2012

    Your Response

    Cancel

    Still Waiting For Answers

    I had a trach placed in March of 2009 because of vocal cord dysfunction and not being able to breath when my vocal cords would spasm shut.  Then I began to have other symptoms in May of 2009, problems stuttering and swallowing.  I saw a neurologist and he wanted to rule...
    wantanswers wantanswers 31-35, F 3 Responses Nov 17, 2009

    Your Response

    Cancel

    Hi.

    I'm 16 years old. I have one blue eye and one green eye. My pupils are also not the same size. Also, when I do something active, my face turns half red and half white. ..why? When I was younger it stopped me from doing sports. But now that I'm doing cross cross, it happens all...
    Catwoman16 Catwoman16 16-17 Aug 14, 2012

    Your Response

    Cancel

    Horners And My Eye Battles

    I have Horners and was diagnosed over 2 years ago.  I honesly dont have too many side effects from it, other than my left eye droops a little and I will most likely need a left in a few years, and my left eye does not come back from dialiation at the same pace as my right...
    aravenbeauty aravenbeauty 31-35, F 1 Response Oct 1, 2010

    Your Response

    Cancel

    I Have Horners Syndrome Only Two Weeks Now.

    I have Horners Syndrome since Sept 26 2012, onset was two days after going to have two teeth pulled on the upper right. Droopy lid, blurry vision, watery eye, redness, headache temple area, sensitive scalp and nauseated. Went to eye doctor day before yesterday diagnosed with...
    Carol3 Carol3 56-60 3 Responses Oct 5, 2012

    Your Response

    Cancel

    I was diagnosed at 27 due to tadpole pupil

    episodes. I always had a smaller pupil and droopy lid. Also a long time migraine sufferer. In the past two years, I developed new symptoms including heat/exercise induced sweating and discoloration issues.
    telltalelemon telltalelemon 31-35, F Jul 29

    Your Response

    Cancel

    Life Is Life

    when i was a little kid i got a peace of plastic stuck in my throat and i had to go to the hospital aften for 2 years and when i came out i had horner's syndrome in both my eye and hafe my body. Because of it im going blind the doc. said by the time im 27 ill be blind and...
    redhorn70 redhorn70 13-15, M 5 Responses May 21, 2010

    Your Response

    Cancel

    Ineed Some Advice!

    I was born with horners syndrome and was diagnosed when I was 4 years old. I only sweat on the right side of my head and when I workout or doing anything physical one have of my face gets all red and sweaty while the other just stays the same, also one of my eyes is blue, and the...
    AaronG23 AaronG23 18-21, M 2 Responses Dec 27, 2012

    Your Response

    Cancel

    I Was Born With Horner's Syndrome.

    My name is Nicole, and I'm seventeen years old from Minnesota & I was born with Horner's Syndrome. My symptoms aren't the worst, I have the mild case of it. One of my eyes is smaller than the other along with the pupil. I also sweat on ONE side of my face and I get a red line...
    x420nicolemarie x420nicolemarie 16-17 1 Response May 13, 2012

    Your Response

    Cancel

    Horner's After Surgery

    I developed horner's after surgery. I found this website this morning and was hopinng someone could help. I, of course, have the usual symptoms, ie not sweating on one side, droopy eyelid, small pupil. Unfortunately, I also have one eye (the affected eye) that is bloodshoot...
    Westsides Westsides 46-50, M 1 Response Aug 15, 2013

    Your Response

    Cancel

    I'm new to EP and this forum.

    My left eye upper eyelid is shutting. The eye is more open in morning and gets worse throughout day. Probable cause-carotid artery dissection. Doctor says just wait. Are any of you receiving treatment?
    Ishut Ishut 51-55, M Jun 17

    Your Response

    Cancel

    Diagnosed Two Years Ago

    I Have Horner's Syndrome. When my PCP diagnosed me two years ago, she acted like there was nothing to it. I went to the doctors because the right side of my head would sweat profusely in the summer. It made it really hard to do my job. I noticed my left eye drooping alittle more...
    puchiwuch puchiwuch 46-50 1 Response Sep 28, 2008

    Your Response

    Cancel

    Horners Depression

    Hi Everyone I have been recently diagnosed with horners although I have had the symptoms (droopy eyelid, less reactive pupil and decreased sweating) since I was around 10 years old and I am now 26. I don't really understand why my parents never got it checked out and I do hold a...
    lauraelise1986 lauraelise1986 26-30 2 Responses Aug 21, 2013

    Your Response

    Cancel

    Chronic Horner Since I Can Remember

    I was diagnosed with a ganglio neuroma tumor in my right lung when I was one year old. I've had Horner since the procedure to remove that tumor, I am 23 years old now. I have complete anhydrosis from my nipple up in my right side, completely dry, even If I run or go into a sauna...
    Tente Tente 22-25, M 3 Responses Aug 4, 2013

    Your Response

    Cancel

    Related Experiences

    Honestly, learning I had it destroyed my hopes of being able to belong in society. Sorry i'm not being positive about my experience but that doesn't make it any less real. Let me...
    Darknessisgrowing Darknessisgrowing 18-21, M 4 Responses Nov 6

    Your Response

    Cancel
    So many people without it have no idea of the pain it brings along. Today, I'm meeting with the Lender for our new house, and I can't control the neck tics and I'm hurting on a 8...
    jeepers92 jeepers92 41-45, M 2 Responses 4 days ago

    Your Response

    Cancel
    I think. I'm no doctor, but I was reading the symptoms and I know I know that's no way tell tell if you have it. I'm emotionless, I don't make eye contact, I'm clumsy and awkward...
    SunsetTears SunsetTears 18-21, F 5 days ago

    Your Response

    Cancel
    Its harmed me a lot. I was bullied mercilessly up until the end of high school, and I'm still worried that people would want to exclude me socially. Although I now appear to be...
    Almostanonymous Almostanonymous 22-25, M 2 Responses Nov 9

    Your Response

    Cancel
    Do any of get to do anything alone?
    shadowfluffy6 shadowfluffy6 18-21, F 5 Responses Nov 11

    Your Response

    Cancel
    This is my first post on EP but looking forward to sharing with others. I have Crohn's disease and life has never been easy. I'm a glass half full kind of guy so even on bad days I...
    BrianIBD BrianIBD 31-35, M 1 Response Nov 12

    Your Response

    Cancel
    I got a really bad call from the school yesterday. He's been supposedly acting out in class. He says his teacher never believes when he says another student is picking on him. My...
    flypiggie flypiggie 26-30, F 1 Response Nov 4

    Your Response

    Cancel
    This will be long and rambly, mostly because this is the first place I've found where I can vent to others who may be in similar situations that’s not FB related where everyone I...
    lisabug75 lisabug75 36-40, F 4 Responses Nov 17

    Your Response

    Cancel
    Hi, Im new to this site, and anything like this. I recently found out that my BF, and as of last month, Husband has AS. I am not a Doctor, but he has all the characteristics and...
    Metalmissys Metalmissys 46-50, F 1 Response 2 days ago

    Your Response

    Cancel
    I learned I had it at age 5 and they said I was lucky to be alive. The only downside is that I have trouble learning in school
    metalchick18 metalchick18 18-21, F 1 Response Nov 4

    Your Response

    Cancel
    I have random tremors that occur especially when I talk to my friends or hang out with them I have mini tremors that feel like they're inside my abdomen. I feel like my speech is...
    SammiSakura SammiSakura 13-15, F 1 Response Oct 30

    Your Response

    Cancel
    I don't but my boyfriend does. It's hard on him :(
    LustlyVareDe LustlyVareDe 18-21, F 1 Response Oct 31

    Your Response

    Cancel
    Yellow numb painful fingers and toes... I was on propranolol for it but I switched doctors and lost the rx. It's any time the temp drops below about 50 if I'm not wearing the right...
    ranchlife14 ranchlife14 18-21, F Oct 31

    Your Response

    Cancel
    Every once in a while there is a breakthrough in Parkinson's research that gets me hopeful that there will be a cure, or at least a really significant improvement in treatment...
    LifeinWoodinville LifeinWoodinville 41-45, M 1 Response Nov 7

    Your Response

    Cancel
    I work with endocrinology patients. This may help some of you, so I would like to put it out there.I would like to take a moment to share a new research article with you that...
    kmr9346 kmr9346 22-25, F a week ago

    Your Response

    Cancel
    I was diagnosed with Crohn's Disease when I was 9, somewhere around 2005-07. I had the worst case you've ever seen, but luckily don't have a colostomy/colon resection, I'm thankful...
    ilovemckayla ilovemckayla 26-30, F Nov 3

    Your Response

    Cancel
    Had it for around six hours now :(
    TreeHuggingHippie000 TreeHuggingHippie000 41-45, F 2 Responses Nov 5

    Your Response

    Cancel
    I've suffered with RLS most of my 55 years. Found out gluten is a huge trigger. Especially at night. Take Requip 4mgs at night also. Definitely helps avoiding gluten.
    Sirkutter Sirkutter 51-55 Nov 15

    Your Response

    Cancel
    We've had a bad experience with icy hot when I put it on his shoulders...I thought he was going to cry. He said that it wasn't the worst pain he felt but definitely close. I forget...
    LustlyVareDe LustlyVareDe 18-21, F Oct 31

    Your Response

    Cancel
    I was diagnosed when i was 3 and when i was 10 i got really sick and stayed in the hospital for over a year, it was hard but now im on a new medication that really helps.
    Hmaster69 Hmaster69 18-21, M Nov 19

    Your Response

    Cancel
    It turns out I have polycystic ovary syndrome and that causes my testosterone levels to be dangerously high, estrogen to be dangerously low, insulin to be really screwed up...
    polyglotparrot polyglotparrot 13-15, F Nov 14

    Your Response

    Cancel
    Was diagnosed with Hashi's two months ago after two years of doctor after doctor, misdiagnoses and mismanaged meds. Extreme fatigue, dizziness, headaches, brain fog, exhaustion...
    craigrhodes craigrhodes 46-50 1 Response Nov 10

    Your Response

    Cancel
    I know that we all have secrets and so surprised me to see so few people have joined this experience. That was my way of telling myself that I'm not a terrible person for what I'm...
    KelseyLeigh123 KelseyLeigh123 22-25, F 1 Response Nov 11

    Your Response

    Cancel
    1993. My boyfriend was born in 1982 and he said how weird it was when people started throwing 80's parties and he said it must be weird for me now too because bars and stuff are...
    sweetbee33 sweetbee33 18-21, F 4 days ago

    Your Response

    Cancel
    Oh, where to begin... I'm not sure if he has NPD or if he's just very narcissistic, but he's definitely not an easy person to live with. I experienced abuse as a child from my...
    chococat159 chococat159 18-21 3 days ago

    Your Response

    Cancel
    I am happy to say since I've met my new boyfriend all my troubles have gone from the cheating exs to the rape, it has all gone I love him so much, no matter what problem I have...
    mparker7789 mparker7789 22-25, M Nov 4

    Your Response

    Cancel
    It's good to be back on this site. A few posts made me reevaluate certain things and pushed me to a feeling I didn't want to have. It's good to see how I've changed from old posts...
    GDPunk GDPunk 16-17, F Nov 18