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I Have Horner's Syndrome

A Horner's Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Horner's Syndrome. You're not alone. 36 People

    Life Is Life

    when i was a little kid i got a peace of plastic stuck in my throat and i had to go to the hospital aften for 2 years and when i came out i had horner's syndrome in both my eye and hafe my body. Because of it im going blind the doc. said by the time im 27 ill be blind and...
    redhorn70 redhorn70 13-15, M 5 Responses May 21, 2010

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    Horners Depression

    Hi Everyone I have been recently diagnosed with horners although I have had the symptoms (droopy eyelid, less reactive pupil and decreased sweating) since I was around 10 years old and I am now 26. I don't really understand why my parents never got it checked out and I do hold a...
    lauraelise1986 lauraelise1986 26-30 2 Responses Aug 21, 2013

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    Eeye Drops Help With Ptosis

    There are some eye-drops you can buy without prescription which eliminate ptosis for several hours at a time!
    Roberta56 Roberta56 56-60 May 5, 2013

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    I'm new to EP and this forum.

    My left eye upper eyelid is shutting. The eye is more open in morning and gets worse throughout day. Probable cause-carotid artery dissection. Doctor says just wait. Are any of you receiving treatment?
    Ishut Ishut 51-55, M Jun 17

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    Hi.

    I'm 16 years old. I have one blue eye and one green eye. My pupils are also not the same size. Also, when I do something active, my face turns half red and half white. ..why? When I was younger it stopped me from doing sports. But now that I'm doing cross cross, it happens all...
    Catwoman16 Catwoman16 16-17 Aug 14, 2012

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    I was diagnosed at 27 due to tadpole pupil

    episodes. I always had a smaller pupil and droopy lid. Also a long time migraine sufferer. In the past two years, I developed new symptoms including heat/exercise induced sweating and discoloration issues.
    telltalelemon telltalelemon 31-35, F Jul 29

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    My Side

    It started with an eye that just didn't want to open fully for a week. I went to the opthomologist and was diagnosed. All kinds of very serious tests to rule out stroke and now down to this. My eye reacts to many things. If I have alcohol, the next day it droops more. I use over...
    Kensarasota Kensarasota 26-30 Sep 27, 2012

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    Horners And My Eye Battles

    I have Horners and was diagnosed over 2 years ago.  I honesly dont have too many side effects from it, other than my left eye droops a little and I will most likely need a left in a few years, and my left eye does not come back from dialiation at the same pace as my right...
    aravenbeauty aravenbeauty 31-35, F 1 Response Oct 1, 2010

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    Horners Syndrome

    Hi there everyone, My boy Caden was diagnosed with horners syndrome a year ago. He is 4 years old, we did not notice it from birth and he had no trauma. He went for a mri but all is clear. He started getting bad migraines at the beginning of this year and today he is home sick...
    concin concin 31-35, F Jul 19, 2012

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    I Have Horners Syndrome Only Two Weeks Now.

    I have Horners Syndrome since Sept 26 2012, onset was two days after going to have two teeth pulled on the upper right. Droopy lid, blurry vision, watery eye, redness, headache temple area, sensitive scalp and nauseated. Went to eye doctor day before yesterday diagnosed with...
    Carol3 Carol3 56-60 3 Responses Oct 5, 2012

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    Need Help

    I get bullied in school I'm 14 about to turn 15 in the eigth grad and theirs one student who picks on me by closing his left eye when he talks to me he gets all of his freinds to do it to and he gets on my nerves and I was wondering what I should do about it
    rboss2013 rboss2013 13-15, M 2 Responses Jan 30, 2013

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    Horner's After Surgery

    I developed horner's after surgery. I found this website this morning and was hopinng someone could help. I, of course, have the usual symptoms, ie not sweating on one side, droopy eyelid, small pupil. Unfortunately, I also have one eye (the affected eye) that is bloodshoot...
    Westsides Westsides 46-50, M 1 Response Aug 15, 2013

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    Ineed Some Advice!

    I was born with horners syndrome and was diagnosed when I was 4 years old. I only sweat on the right side of my head and when I workout or doing anything physical one have of my face gets all red and sweaty while the other just stays the same, also one of my eyes is blue, and the...
    AaronG23 AaronG23 18-21, M 2 Responses Dec 27, 2012

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    Diagnosed Two Years Ago

    I Have Horner's Syndrome. When my PCP diagnosed me two years ago, she acted like there was nothing to it. I went to the doctors because the right side of my head would sweat profusely in the summer. It made it really hard to do my job. I noticed my left eye drooping alittle more...
    puchiwuch puchiwuch 46-50 1 Response Sep 28, 2008

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    I was just diagnosed a few months ago

    but I think I've had it for a few years now. The doctors actually found the tumor in my chest before they realized my eye drooping was Horner's. Everyone just thought it was my lazy eye causing the drooping. I also have the uneven pupils that one neuro eye doctor said was a...
    Pinkyjolie Pinkyjolie 26-30, F 3 Responses Mar 27

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    Sad Looking For Help

    All throughout junior high and high school I was berated for my drooping eyelid due to complications of my birth. It really hurt my self confidence and I would joke a lot to try and hide how sad I was and am. My joking was taken as hostility by my peers and I ended up almost...
    Jordanhead11 Jordanhead11 18-21 4 Responses Jun 12, 2012

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    Chronic Horner Since I Can Remember

    I was diagnosed with a ganglio neuroma tumor in my right lung when I was one year old. I've had Horner since the procedure to remove that tumor, I am 23 years old now. I have complete anhydrosis from my nipple up in my right side, completely dry, even If I run or go into a sauna...
    Tente Tente 22-25, M 3 Responses Aug 4, 2013

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    Still Waiting For Answers

    I had a trach placed in March of 2009 because of vocal cord dysfunction and not being able to breath when my vocal cords would spasm shut.  Then I began to have other symptoms in May of 2009, problems stuttering and swallowing.  I saw a neurologist and he wanted to rule...
    wantanswers wantanswers 31-35, F 3 Responses Nov 17, 2009

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    I Have Horner's Syndrome

    hey guys, im 15 years old and i was "born" with horner's syndrome. i have two different colored eyes, the effected eye is blue and it is droopy. the other eye is brown, and normal. i have 20/20 vision and everythings normal. i feel like if i took a picture on one side of my face...
    noellexfrankk noellexfrankk 13-15 2 Responses Aug 18, 2011

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    I'm new to EP and this forum.

    My left eye upper eyelid is shutting. The eye is more open in morning and gets worse throughout day. Probable cause-carotid artery dissection.
    Ishut Ishut 51-55, M Jun 17

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    I Was Born With Horner's Syndrome.

    My name is Nicole, and I'm seventeen years old from Minnesota & I was born with Horner's Syndrome. My symptoms aren't the worst, I have the mild case of it. One of my eyes is smaller than the other along with the pupil. I also sweat on ONE side of my face and I get a red line...
    x420nicolemarie x420nicolemarie 16-17 1 Response May 13, 2012

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    I am at a loss and need some help! I went to urgent care in February because I had this horribly terrible rash that itched uncontrollably and was painful. I had clusters of what...
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    I was diagnosed at age 8 with Sjogren's (I am now 22 years old) I have never talked to another person with the disease but would love to. As you know if you have this as well...
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    I used to really hate myself, I honestly did. But now, I'm happy I have what I have. When I was in elementary school, I never talked to anyone, I would walk around the playground...
    ThatRobotChick ThatRobotChick 18-21, F 4 Responses Aug 29

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    And through Asperger syndrome, I met a good friend on this website. Since then, we have met in person and he and I are beyond best friends; we are true brothers and always will be...
    chubbystringbean chubbystringbean 22-25, M 1 Response Sep 1

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    One of my more persistent tics is groping. If i notice, feel(like in a hug or brushing against me), or remember what they feel like, i have to grab a woman's breasts. I don't think...
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    I need help I can't find a girl that likes me and I mange to suppres. My tics really well and you would only really know if someone told you and well I think the girls I try to get...
    Sproketsocet Sproketsocet 18-21, M 2 Responses Aug 20

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    have plans for tonight? well too damn bad! Your getting bruises, cuts, pulled muscles, and a nice concussion, enjoy!
    thetalkingmushroom thetalkingmushroom 18-21, M 1 Response 5 days ago

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    Do any of you keep like dairy/journal
    shadowfluffy6 shadowfluffy6 18-21, F 2 Responses Aug 16

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    Got it from my dad. I'm not as bad as he is cause I fight to make it not define who I am. Though at first I felt bad but then I felt happy cause I'm gonna get money from the...
    YLIhououin YLIhououin 18-21, M 3 Responses Sep 1

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    Uncoordinated Somehow, I'm reluctant to get hit with a ball, bat, shoe, kid, or some out of the blue object when I walk into a school gym. Now every time I walk anywhere near...
    kelseytoby1337 kelseytoby1337 16-17 2 Responses Sep 2

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    Hi my name is Jaime I am 29 years old and in 2006 I was diagnosed with a very rare kidney disease called Gittleman's Syndrome its so rare that not very many people in the United...
    GSwife1313 GSwife1313 26-30 Sep 4

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    I am 15 years old I have Russell Silver Syndrome however the doctors did not diagnose me until I was 13 luckily I don't have all of the side effects however I am only 4'9 and...
    UNIJordanQUE UNIJordanQUE 13-15, F 2 Responses Sep 3

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    I have suffered with CVS my entire life, from age two to now (Im 17). Along the way I've learned how to cope and help my episodes. All these helpful tricks may work for you but are...
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    I've taken 2 clonzepam, and a Requip, and two aspirins. I have stretched and rolled on my foam roller. It's 2:00 am and it will not stop. So tired. Need to sleep.
    Deedle623 Deedle623 51-55, F 2 Responses Sep 5

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    Another terrible night. Why does it take nearly an hour for the requip and clonzepam to kick in? I will take them earlier, tonight, but they make me loopy. I tried pickle juice...
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    I don't have episodes as much as I used to but now it's just 24/7 burning and pain. Will this ever stop?
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