Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Horner's Syndrome

A Horner's Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Horner's Syndrome. You're not alone. 37 People

    Horners Syndrome

    Hi there everyone, My boy Caden was diagnosed with horners syndrome a year ago. He is 4 years old, we did not notice it from birth and he had no trauma. He went for a mri but all is clear. He started getting bad migraines at the beginning of this year and today he is home sick...
    concin concin 31-35, F Jul 19, 2012

    Your Response

    Cancel

    Sad Looking For Help

    All throughout junior high and high school I was berated for my drooping eyelid due to complications of my birth. It really hurt my self confidence and I would joke a lot to try and hide how sad I was and am. My joking was taken as hostility by my peers and I ended up almost...
    Jordanhead11 Jordanhead11 18-21 4 Responses Jun 12, 2012

    Your Response

    Cancel

    I was diagnosed at 27 due to tadpole pupil

    episodes. I always had a smaller pupil and droopy lid. Also a long time migraine sufferer. In the past two years, I developed new symptoms including heat/exercise induced sweating and discoloration issues.
    telltalelemon telltalelemon 36-40, F Jul 29

    Your Response

    Cancel

    I'm new to EP and this forum.

    My left eye upper eyelid is shutting. The eye is more open in morning and gets worse throughout day. Probable cause-carotid artery dissection. Doctor says just wait. Are any of you receiving treatment?
    Ishut Ishut 51-55, M Jun 17

    Your Response

    Cancel

    Diagnosed Two Years Ago

    I Have Horner's Syndrome. When my PCP diagnosed me two years ago, she acted like there was nothing to it. I went to the doctors because the right side of my head would sweat profusely in the summer. It made it really hard to do my job. I noticed my left eye drooping alittle more...
    puchiwuch puchiwuch 46-50 1 Response Sep 28, 2008

    Your Response

    Cancel

    Eeye Drops Help With Ptosis

    There are some eye-drops you can buy without prescription which eliminate ptosis for several hours at a time!
    Roberta56 Roberta56 56-60 May 5, 2013

    Your Response

    Cancel

    I was just diagnosed a few months ago

    but I think I've had it for a few years now. The doctors actually found the tumor in my chest before they realized my eye drooping was Horner's. Everyone just thought it was my lazy eye causing the drooping. I also have the uneven pupils that one neuro eye doctor said was a...
    Pinkyjolie Pinkyjolie 26-30, F 3 Responses Mar 27

    Your Response

    Cancel

    I Was Born With Horner's Syndrome.

    My name is Nicole, and I'm seventeen years old from Minnesota & I was born with Horner's Syndrome. My symptoms aren't the worst, I have the mild case of it. One of my eyes is smaller than the other along with the pupil. I also sweat on ONE side of my face and I get a red line...
    x420nicolemarie x420nicolemarie 16-17 1 Response May 13, 2012

    Your Response

    Cancel

    Still Waiting For Answers

    I had a trach placed in March of 2009 because of vocal cord dysfunction and not being able to breath when my vocal cords would spasm shut.  Then I began to have other symptoms in May of 2009, problems stuttering and swallowing.  I saw a neurologist and he wanted to rule...
    wantanswers wantanswers 31-35, F 3 Responses Nov 17, 2009

    Your Response

    Cancel

    Need Help

    I get bullied in school I'm 14 about to turn 15 in the eigth grad and theirs one student who picks on me by closing his left eye when he talks to me he gets all of his freinds to do it to and he gets on my nerves and I was wondering what I should do about it
    rboss2013 rboss2013 13-15, M 2 Responses Jan 30, 2013

    Your Response

    Cancel

    Horner's After Surgery

    I developed horner's after surgery. I found this website this morning and was hopinng someone could help. I, of course, have the usual symptoms, ie not sweating on one side, droopy eyelid, small pupil. Unfortunately, I also have one eye (the affected eye) that is bloodshoot...
    Westsides Westsides 46-50, M 1 Response Aug 15, 2013

    Your Response

    Cancel

    I Have Horners Syndrome Only Two Weeks Now.

    I have Horners Syndrome since Sept 26 2012, onset was two days after going to have two teeth pulled on the upper right. Droopy lid, blurry vision, watery eye, redness, headache temple area, sensitive scalp and nauseated. Went to eye doctor day before yesterday diagnosed with...
    Carol3 Carol3 56-60 3 Responses Oct 5, 2012

    Your Response

    Cancel

    Horners And My Eye Battles

    I have Horners and was diagnosed over 2 years ago.  I honesly dont have too many side effects from it, other than my left eye droops a little and I will most likely need a left in a few years, and my left eye does not come back from dialiation at the same pace as my right...
    aravenbeauty aravenbeauty 31-35, F 1 Response Oct 1, 2010

    Your Response

    Cancel

    My Side

    It started with an eye that just didn't want to open fully for a week. I went to the opthomologist and was diagnosed. All kinds of very serious tests to rule out stroke and now down to this. My eye reacts to many things. If I have alcohol, the next day it droops more. I use over...
    Kensarasota Kensarasota 26-30 Sep 27, 2012

    Your Response

    Cancel

    Hi.

    I'm 16 years old. I have one blue eye and one green eye. My pupils are also not the same size. Also, when I do something active, my face turns half red and half white. ..why? When I was younger it stopped me from doing sports. But now that I'm doing cross cross, it happens all...
    Catwoman16 Catwoman16 16-17 Aug 14, 2012

    Your Response

    Cancel

    I'm new to EP and this forum.

    My left eye upper eyelid is shutting. The eye is more open in morning and gets worse throughout day. Probable cause-carotid artery dissection.
    Ishut Ishut 51-55, M Jun 17

    Your Response

    Cancel

    Life Is Life

    when i was a little kid i got a peace of plastic stuck in my throat and i had to go to the hospital aften for 2 years and when i came out i had horner's syndrome in both my eye and hafe my body. Because of it im going blind the doc. said by the time im 27 ill be blind and...
    redhorn70 redhorn70 13-15, M 5 Responses May 21, 2010

    Your Response

    Cancel

    Horners Depression

    Hi Everyone I have been recently diagnosed with horners although I have had the symptoms (droopy eyelid, less reactive pupil and decreased sweating) since I was around 10 years old and I am now 26. I don't really understand why my parents never got it checked out and I do hold a...
    lauraelise1986 lauraelise1986 26-30 2 Responses Aug 21, 2013

    Your Response

    Cancel

    Ineed Some Advice!

    I was born with horners syndrome and was diagnosed when I was 4 years old. I only sweat on the right side of my head and when I workout or doing anything physical one have of my face gets all red and sweaty while the other just stays the same, also one of my eyes is blue, and the...
    AaronG23 AaronG23 18-21, M 2 Responses Dec 27, 2012

    Your Response

    Cancel

    Chronic Horner Since I Can Remember

    I was diagnosed with a ganglio neuroma tumor in my right lung when I was one year old. I've had Horner since the procedure to remove that tumor, I am 23 years old now. I have complete anhydrosis from my nipple up in my right side, completely dry, even If I run or go into a sauna...
    Tente Tente 22-25, M 3 Responses Aug 4, 2013

    Your Response

    Cancel

    I Have Horner's Syndrome

    hey guys, im 15 years old and i was "born" with horner's syndrome. i have two different colored eyes, the effected eye is blue and it is droopy. the other eye is brown, and normal. i have 20/20 vision and everythings normal. i feel like if i took a picture on one side of my face...
    noellexfrankk noellexfrankk 13-15 2 Responses Aug 18, 2011

    Your Response

    Cancel

    Related Experiences

    I'm so glad I found this. Many of your stories are so similar to mine. I've seen twenty six doctors, having been diagnosed with fibromyalga, chronic migraines, osteoarthritis and...
    jsxburt jsxburt 46-50, F a week ago

    Your Response

    Cancel
    A few years ago, I moved from the east coast of the United States to the southwest to go back to university after taking a year long break from school, and I didn't know a single...
    uglyhands uglyhands 22-25, F Dec 4

    Your Response

    Cancel
    I was finally diagnosed as being on the spectrum on November 2nd, 2014. The test used was the Gilliam Asperger's Disorder Scale and it was a three hour test done over three visits...
    lyricalongings lyricalongings 31-35, F 1 Response Dec 7

    Your Response

    Cancel
    I can't meet people's gazes. I have single minded focus on certain things. I am clumsy (found a way to help that.) I usually end a conversation just because I can't continue it, I...
    Ditum Ditum 18-21, M Nov 28

    Your Response

    Cancel
    The doctor finally told me I have it a year ago but so far no one believes it. Looking to meet others who would like to talk about it.
    keravon keravon 51-55, M 1 Response Dec 8

    Your Response

    Cancel
    I've tried to use it to my advantage. I'm gifted with writing and I believe Aspergers along with an abusive home environment help to give me that as well as other skills. Being...
    KnaisGuy KnaisGuy 22-25, M 3 Responses Dec 8

    Your Response

    Cancel
    I've struggled all my life socially. I never made a single friend until I turned 14. I was always "that weird, quiet girl." People were cruel to me and I could never figure out why...
    SecretGaygent SecretGaygent 22-25, F 5 Responses Dec 14

    Your Response

    Cancel
    Has anyone else read the Michael Vey series of books. Kind of Awesome that TS has a champion. :)
    jeepers92 jeepers92 41-45, M Dec 10

    Your Response

    Cancel
    I could write a whole blog about what the side effects are of me, but the main thing is i find myself to be insecure at times because i find it sometimes difficult communicating...
    agdnn agdnn 26-30, M 2 Responses 5 days ago

    Your Response

    Cancel
    I have crohn's disease . I was diagnosed in 2003 , I would say I'm a very strong person with all the pain I go through . but it seems ever since I had my daughter 7 years ago I've...
    queenbee03 queenbee03 22-25, F Dec 10

    Your Response

    Cancel
    I am well acquainted with how disruptive motherhood can be to a woman's personal and professional autonomy. I will not be waxing poetic about it either (today of all days). I too...
    Tannasheart Tannasheart 46-50, F 3 Responses Dec 18

    Your Response

    Cancel
    Hey All, I'm a 28 year old female with what I think is CVS. Every few months I am awoken in the middle of the night with the worst stomach ache in the centre of my abdomen and I...
    starjj starjj 26-30, F 1 Response Dec 7

    Your Response

    Cancel
    I was diagnosed with HAS a few days ago - The initial cause was that I am experiencing eye issues and saw an ophthalmologist who then referred me to a neurologist who made the...
    barbarasayshi barbarasayshi 41-45, F 1 Response Dec 13

    Your Response

    Cancel
    My daughter has BCS. She's 6yrs old now. She was diagnosed when she was 18 months old. Her body was shunting itself when I was pregnant with her. She's currently on Coumadin. She...
    annagracesmom annagracesmom 41-45, F Nov 30

    Your Response

    Cancel
    I thought I needed a good vent so here goes. Sorry if there is TMI. Every since I started my period when I was 11 I would be in excruciating pain, I would have to have time off...
    xxkerry1990xx xxkerry1990xx 22-25, F 1 Response Dec 2

    Your Response

    Cancel
    At 14 he is presenting with some ridged exhausting repetitive, perseverant, behaviours. This is the first time I have felt pretty out of my depth managing his pathology. I am...
    Tannasheart Tannasheart 46-50, F Dec 17

    Your Response

    Cancel
    This **** is no joke. The pain is pretty severe. I plan on having surgery, but I have to wait till after Christmas.
    Xplictt Xplictt 22-25, M Dec 11

    Your Response

    Cancel
    I have had CFS for about 12 years and am sick of people either not believing that I have it or giving me "helpful" advice (such as: oh, just push yourself a little more each day...
    TealGirl TealGirl 31-35, F 1 Response 1 day ago

    Your Response

    Cancel
    My daughter is 3 yr old,she just had the sprengel shoulder. we had a tough time coping up with decision to have the surgery done, she's so small for all this. but then finally...
    rameshdad rameshdad 31-35, M Dec 6

    Your Response

    Cancel
    Actually, in my case, it can be better described as this magical thing called laziness.
    brevitea brevitea 13-15 3 days ago

    Your Response

    Cancel
    The last time I was in hospital I remember a man being seen by a physician, the man was covered in blood. He had an entire roll of loo paper resting under his nose that was blood...
    heyitsabike heyitsabike 31-35, F 1 Response 5 days ago

    Your Response

    Cancel
    I was diagnosed with F84.5 ...... Asperger's Syndrome is an interesting foot note on the diagnostic scale of what is know 'autism spectrum disorder' a lot of harm was done when...
    Homejames Homejames 51-55, M 1 Response Dec 8

    Your Response

    Cancel
    I'm only 16.. 3 years ago I cut myself and I have been doing it on and off since then. I don't understand what's wrong with me. I'd be out with my friends, enjoying my time. Then...
    Aly262 Aly262 16-17 1 Response Dec 1

    Your Response

    Cancel
    This is my second post today in less than 30 mins because I have a lot to get off my chest. :) My biggest issue I believe is that I want what I can't have. It's not because I can...
    GhostBride GhostBride 18-21, F 4 Responses Dec 1

    Your Response

    Cancel
    So many of us are afraid of ourselves, of our own truth, and our feeling most all. We talk about how great the concepts of life and love are, but then we hide from both every day...
    Zelaleme Zelaleme 46-50, F 4 Responses Dec 10

    Your Response

    Cancel
    Today, there are three kinds of people: the have's, the have-not's, and the have-not-paid-for-what-they-have's. Earl Wilson
    jml2000 jml2000 56-60, M 1 Response Dec 10

    Your Response

    Cancel
    Was diagnosed with Hashi's two months ago after two years of doctor after doctor, misdiagnoses and mismanaged meds. Extreme fatigue, dizziness, headaches, brain fog, exhaustion...
    craigrhodes craigrhodes 46-50 Dec 15