I Have Hydrocephalus

A Hydrocephalus anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hydrocephalus. You're not alone. 63 People

    Biggest Obstacles In Life

    I've had this condition since I was in the womb. It could have been a lot worse, but luckily, there were doctors who tracked it down before it got to be a huge issue. For one thing, I do not have a large head, and I don't get headaches as often as I used to. I have a VP shunt...
    caree97 caree97
    13-15, F
    2 Responses Sep 3, 2011

    My Brave Little Man

    I wish to share the story of my little boy, Robbie if I may. He was born on the 2nd February, 2005, at 3:58pm, with hydrocephalus. (My doctors had been keeping a close eye on my pregnancy, because he started to show abnormalities of the head, in the womb.) He was offered a...
    AngelsMama AngelsMama
    31-35, F
    1 Response Dec 9, 2012

    Diagnosed at six Had a shunt put in Agonising

    headaches Sick Nausea Had slowed motor development as a child Few after effect I had some coordination and balance issues as well fine motor skills issues but not sure if it's brain damage or dyspraxia Had to revised at 11 going on 12 They screwed up Caught it late Had double...
    deleted deleted
    5 Responses Jan 4, 2014

    I am 12 years old have had 24 shunt revisions

    and I lost sight in my right eye from the doctors say nothing was wrong and can't walk I have brain cancer and 15 other non-cancerous tumors on my body
    photographyismylife photographyismylife
    16-17, F
    1 Response Apr 10, 2015

    I am wondering how many others are like me with

    this!!!!! I am sitting at the doctors now looking around and feeling out of place. I am about to get my annual memory screen for what is considered early onset dementia (even though that's not what my chart says) I can't really remember (ironic huhhh) My shunt can't keep...
    lu7998 lu7998
    36-40, F
    2 Responses Feb 18, 2015

    Going to meet my new neurologist on the 28th.

    I'm afraid I'm going to be diagnosed with IH. :(
    Lovelybaby18 Lovelybaby18
    22-25, F
    1 Response Apr 15, 2015

    Me, Myself And Linda

    Posted July 17th, 2011 at 1:12PM In 1991, at the age of 40, I was told that I had Normal Pressure Hydrocephalus. For many years I had lived with daily, almost constant severe headaches. They brought me to my knees many times, causing me to be someone that my family had to live...
    Kevinlcpc Kevinlcpc
    Aug 17, 2011

    Experience Project

    hi i have hydrocephalus and spina bifida i have a vp shunt to control the pressure to the brain.
    gilliansweet67 gilliansweet67
    18-21, F
    May 23, 2012

    I Have Hydro, Hydro Doesn't Have Me: My Story

    http://pepperknowsbest.blogspot.com/2009/05/i-have-hydro-hydro-doesnt-have-me.html this is my story... and my blog... if it helps one person it was all worth it
    monicad1974 monicad1974
    31-35, F
    Nov 13, 2009

    Hydrocephalus At 6 Weeks Old

    When I was born my hed was a normal baby size. But after 6 weeks it was getting bigger, because I had hydrocephalus there was a blockage in my brain keeping a fluid from flowing through my head causing it to build up.I was saved after to surgeries getting a shunt in the right...
    dreamydresses dreamydresses
    26-30, T
    Apr 21, 2012

    My Fetus On The Womb Of My Wife Of 5 Months

    My fetus has 5 months of pregnancy and the sonogram revealed an apparent severe case of Hydrocephalus. Please advice me with your advice and suggestions towards the best outcome of the pregnancy. Thank you.
    Jan 8, 2013

    My Daughter Has Hydrocephalus

    hi my name is laura i was 20 years old when cindy was born and i was told she had hydrocephlus cindy is now 32 and lives in a group home she grew up to be a wonderful women to whom i look up to and thank God for she has enriched my life beyond measure...
    sunandrain sunandrain
    51-55, F
    Sep 10, 2010

    I Had Hydrocephalus When I Was Little

    Hey guys, I know that the name of the group is in the present tense, but I wanted to join because I have some questions about others that have gone through it or are currently living with hydrocephalus. When I was little, my mom took me in for my 6 week checkup and noted to the...
    thosphoenix thosphoenix
    26-30, M
    1 Response Jul 2, 2012

    I've been lucky with mine though.

    Only have had about 3 full revisions in my entire life and I'm 25. Very lucky.
    Kierstyne Kierstyne
    26-30, F
    3 Responses Aug 31, 2014

    Does the rainy weather make anyone else feel

    hung over? the dropping barometer really affects my hydrocephalus.
    Morganks88 Morganks88
    26-30, F
    1 Response Jun 2, 2015

    Hydrocephalus: My Story 2012

    I developed severe headaches in my early twenties. I was diagnosed with Migraines, but never treated for those type of headaches. I continually got worse over the months ahead. I saw numerous doctors who thought maybe I was just depressed and stressed out. But I wasn't and I...
    Sinceage24 Sinceage24
    51-55, F
    1 Response Aug 1, 2012

    Is anyone else getting headaches lately?

    i know i have a lot going on at the moment with a part time job, im about to start my internship and im doing some wedding planning. im getting married in november. i know its a lot to take on but im just curious if stress makes it worse or is thats a tall tale? ive had...
    musicalsoul10 musicalsoul10
    26-30, F
    2 Responses May 17, 2014

    Short Intro...

    I was born with hydrocephalus but somehow endured without a shunt or any treatment until age 36 when a very slight bump on the head resulted in being diagnosed with hydrocephalus. The diagnosis gave explanation to many of the problems I have had throughout my life - short...
    Diffie Diffie
    3 Responses Aug 29, 2008
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