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I Have Hyper Mobility Syndrome

Personal Stories, Advice, and Support 33 People

    Hypermobility

    That's me. I never realised that a lot of the things I do (dislocating my shoulders, wrists, hips, fingers & thumb, even extra flexibility in nearly every joint) was unusual or that it even had a name. When I finally found out about hypermobility a year ago, and about every...
    Ky306 Ky306 18-21, F Oct 29, 2012

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    Hypermobility - Awkward Condition Or What!

    Hi, I've had Hypermobility Syndrome for years now, and it really plays havoc with daily life, although I find that the summer with the warmth and extra Vit D is easier. Although it may be that the sunny days make us happier! I work in a school and am on my feet most of the day...
    9Red 9Red 36-40 May 29, 2012

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    Hyper Mobility Syndrome

    I'm Katie, I'm 17 years old and i was diagnosed with hyper mobility syndrome when i was 14-15 years old, at first i thought there couldn't be a downside to being flexible? and who would have thought there would be? anyway, a couple of months later my knees, spine, ankles...
    katiebaddams katiebaddams 16-17 May 14, 2012

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    Hypermobility All Over My Body.

    Well where do i start i am 20 years old and i have hypermobility in all my joints my hips and knees lock all the time i got diagnosed when i was 12 years old my knees,writs,fingers,ankles, and eldows swell i suffer more in cold damp rainy weather i have pain 24/7 never get a day...
    gbarlow92 gbarlow92 18-21, F 1 Response Apr 10, 2012

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    What Is This Syndrome

    Hi i have just been diagnosed with hypermobility syndrome at the age of 40 after years of back pain and now all over joint pain for the past year, i was given no info of it by the rheumatoid consultant as they had no leaflets, can anyone shed a light on it
    holmscroft1 holmscroft1 36-40 Mar 2, 2012

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    My Everyday Life Was Chronic Pain, And I'M Only 14!

    For as long as I can remember (probably since I was around 7-8), I had deep horrible pain in my limbs. The pain could last for hours, and often left me crying. No form of pain relief (pain killers, heat/cold packs, massage) would help me. My parents took me to the doctor multiple...
    genevieveg3216 genevieveg3216 16-17 2 Responses Mar 21, 2013

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    In My Shoulders.

    I have hypermobility in most of my joints. I was properly diagnosed with hypermobility when I was about 17 or 18, but wasn't told how bad it was. I always get a very uncomfortable pain in my shoulders. Across the top of the shoulders and across the back at the shoulderblades...
    CrazyNinjaPirate CrazyNinjaPirate 26-30, F 1 Response Mar 12, 2011

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    I Wish I Was Normal Sometimes

    i am not sure how two do this as i am new two this but i have hypermobility syndrome and osteo arthritis i have found out the earlier hms is diagnosed the better but i was over 18 when i was diagnosed i cant remeber how old i was i start physio next week as my right knee is...
    CATLOVER36 CATLOVER36 36-40, F 1 Response Jan 19, 2010

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    It's Almost Killed Me

    I know the title sounds like an overstatement but it has, I'm hypermobile all over but when I was younger my ankles were really weak and I would collapse for no reason because my ankles would just give way. I fell over in front of cars, lorries, buses almost anything whenever I...
    Gimmyboy Gimmyboy 16-17, F 4 Responses Dec 15, 2011

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    Related Experiences

    I often wonder why me? I sometimes don't feel normal, and it sucks because I want to me wear my cute clothes and flip-flops and simply not sweat. High school was a challenge...
    JordanTre JordanTre 18-21, F 53 mins ago

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    Un des coloris est effectivement en vente pour moins de 100 $ Nike Air Max 90 Hyperfuse femme (en photo dans la premi.re semble avoir été allégée pour une plus grande une...
    chaussuresfemmenike chaussuresfemmenike 22-25, M 1 day ago

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    I was diagnosed with PTS almost 3 years ago after undergoing surgery to remove a bone spur. I still don’t have full use of my arm and still suffer pain, but have learned what...
    PDG1 PDG1 46-50 1 day ago

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    I was diagnosed with Asperger's (autism) about a year ago but I didn't accept the diagnosis because I had a lot of misunderstandings about what it meant. After continuing treatment...
    ExtrovertedAspie ExtrovertedAspie 31-35, M 1 Response 1 day ago

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    Recently diagnosed with horners and holmes syndrome.. after over 10 years and going to many drs about me not sweating I finally found out why.. and this added to my many other...
    baidal88 baidal88 36-40, M 1 Response 1 day ago

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    There's days where I forget I am autistic. Surprising isn't it. Today was not one of those days. Too many people today. Too many emotions. Too many decisions. Too many things to...
    jacquelinejones jacquelinejones 46-50 1 Response 2 days ago

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    Phew!!! Major dramas in a group I help admin on Facebook. (Hostile takeover and rescue attempts for a group of 20 000 aspies) I am going to have a busy couple of days. What with...
    jacquelinejones jacquelinejones 46-50 1 Response 3 days ago

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    me having Aspergers since i was 4 has really sucked. it makes me seem like a horrible person but in reality i just don't know what's appropriate or how to act or what to say in...
    izzzy098 izzzy098 13-15, F 3 days ago

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    I was told to "just calm down". I hate it. I ended up crying, shaking and hyperventilating in my bed all night. Yay.
    dzbura dzbura 18-21, F 2 Responses 4 days ago

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    faster than hypersonic flight
    parkourakiko27kablamo parkourakiko27kablamo 13-15, M 4 days ago

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    Young Adonis Once, I was drop-dead gorgeous. I remember vividly visiting a woman’s magazine on business. As I walked through the editorial pool, a young Adonis unaware, a...
    anthonyseverus anthonyseverus 56-60, M 4 days ago

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    Young Adonis Once, I was drop-dead gorgeous. I remember vividly visiting a woman’s magazine on business. As I walked through the editorial pool, a young Adonis unaware, a...
    anthonyseverus anthonyseverus 56-60, M 4 days ago

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    I do. However, I constantly talk to myself, act out scenes and think negative. It's ruining my life and it's decreasing my time to practice drawing.
    FoxFan64 FoxFan64 13-15, M 2 Responses 5 days ago

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    They yell at you that you're not normal. That you always **** things up. You leave to your room, crying. You overhear them in the other room: What did we do wrong? How could we not...
    EurydiceKallos EurydiceKallos 18-21, F 6 Responses 5 days ago

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    This is my very first pregnancy; I am 19 years old. I don't usually find myself needing outside support from other than my husband or my family....but this has become completely...
    melissa1313 melissa1313 18-21, F 5 days ago

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    my boss had a good point this label and every other label that people are diagnosed with is stupid some idiot decided back in the 1930s that whatever human being back then till...
    aaronpayne aaronpayne 22-25, M 5 days ago

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    I took an online quiz for bipolar disorder and I got 100%. My older sister has been diagnosed with bipolar disorder. I remember all my life I would have periods of hyperactivity...
    SparkleSwirl SparkleSwirl 18-21, F 6 days ago

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    I have autism but my question is how does autism come about is it vaccinattions or is it because of use of drugs idk but id like to see in the future a cure or maybe our government...
    aaronpayne aaronpayne 22-25, M 6 days ago

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    I can start hyperventilating. It's gotten that bad. I just always feel like someone is judging me. Like, no one wants me around. When somebody tries to talk to me, I just freeze up...
    deleted deleted 26-30 3 Responses a week ago

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    She just vanished.... She and I had had a relationship for about a month and a week, when she suddenly started being more and more distant. She stopped communicating on days that...
    GeorgeRashnikov GeorgeRashnikov 18-21, M Jul 21

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    so i found out i have polycystic ovary syndrome a few days ago and it sucks since me and my husband have been trying and now reading about it is making me even more down about it...
    sweety7268 sweety7268 18-21, F Jul 21

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    Finally getting the surgery this week for my hands! If anyone wants to know how it goes after the surgery and results just message me and I'll tell you everything!
    valm23001 valm23001 16-17, F 1 Response Jul 20

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    Hi, I am male and retired and was diagnosed with EF in July 2014. I started treatment in August 2014 and now it is a year later and I am already much better. I hope that gives you...
    mogfitz mogfitz 66-70, M Jul 20

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    She is hyperreligious. She believes that God is speaking directly to her. She abandoned her family- including her 3 beautiful grandchildren- 3 weeks ago to get a job at a bible...
    Jmb850 Jmb850 36-40, M Jul 19

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    My best friend just got diagnosed with Aspergers. It's been really hard for her. Is there anything anyone can suggest that might help her cope with the news? Also does anyone have...
    ThinspirationNation ThinspirationNation 18-21, F 6 Responses Jul 18

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    I admit there were times I didn't want to be this. I admit there were days in which all I did was cry, asking God or whatever kind of diety is up there watching why did I have to...
    elsasaunt elsasaunt 16-17, F 2 Responses Jul 18

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    You know. If there's one thing I would change about my life it would be the years of 'trying to be normal' that I am now trying to dismantle. I am seeing so many parts of myself...
    jacquelinejones jacquelinejones 46-50 3 Responses Jul 18

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    I have a child that may have Pendred's syndrome. This is a rare recessive gene, passed down by parents causing deafness in one or both ears. My daughter has deafness in one ear...
    arebella arebella 41-45, F Jul 18

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    hey i just got told i have this and i have no idea what it means can someone please help me?
    deleted deleted 26-30 1 Response Jul 18

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    I've had a lot of injuries, especially from cheer .-. But not all were broken bones or anything. I've had - my nose broken 5 times (cheer) - two fingers on each hand broken...
    Bflyboo14 Bflyboo14 13-15, F 13 Responses Jul 16

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    what helps me a lot is to have everything in its place. If I misplace it, God forbid. If you are not my twin, and you move it, it's really bad. Anyone else feel like this?
    PJBelle PJBelle 46-50, F 2 Responses Jul 15

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    Why I can't do **** right?! Sometimes I do things I don't realize I'm doing. Like if I'm very slow and whatever, someone pushes me very hard or even get pissed off at me for being...
    BigGirlWithLove BigGirlWithLove 22-25, F 9 Responses Jul 15

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    There seems to be more and more mobility scooters at the grocery stores. Maybe they should put devices in them to keep those carts away from the fattening rows.
    deleted deleted 26-30 Jul 14

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