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I Have Hyper Mobility Syndrome

Personal Stories, Advice, and Support 31 People

    Hypermobility - Awkward Condition Or What!

    Hi, I've had Hypermobility Syndrome for years now, and it really plays havoc with daily life, although I find that the summer with the warmth and extra Vit D is easier. Although it may be that the sunny days make us happier! I work in a school and am on my feet most of the day...
    9Red 9Red 36-40 May 29, 2012

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    What Is This Syndrome

    Hi i have just been diagnosed with hypermobility syndrome at the age of 40 after years of back pain and now all over joint pain for the past year, i was given no info of it by the rheumatoid consultant as they had no leaflets, can anyone shed a light on it
    holmscroft1 holmscroft1 36-40 Mar 2, 2012

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    My Everyday Life Was Chronic Pain, And I'M Only 14!

    For as long as I can remember (probably since I was around 7-8), I had deep horrible pain in my limbs. The pain could last for hours, and often left me crying. No form of pain relief (pain killers, heat/cold packs, massage) would help me. My parents took me to the doctor multiple...
    genevieveg3216 genevieveg3216 16-17 1 Response Mar 21, 2013

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    Hypermobility

    That's me. I never realised that a lot of the things I do (dislocating my shoulders, wrists, hips, fingers & thumb, even extra flexibility in nearly every joint) was unusual or that it even had a name. When I finally found out about hypermobility a year ago, and about every...
    Ky306 Ky306 18-21, F Oct 29, 2012

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    It's Almost Killed Me

    I know the title sounds like an overstatement but it has, I'm hypermobile all over but when I was younger my ankles were really weak and I would collapse for no reason because my ankles would just give way. I fell over in front of cars, lorries, buses almost anything whenever I...
    Gimmyboy Gimmyboy 16-17, F 4 Responses Dec 15, 2011

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    I was told about 8 years ago

    that I have hyper mobility syndrome. It came about because I had pulled my back by merely vacuuming on the job. My entire life I have been able to stretch and move in odd ways, giving no second thought as to what this might mean for my body in the long run. My understanding is...
    Soultryst Soultryst 26-30, F 1 Response Feb 27, 2014

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    Hypermobility All Over My Body.

    Well where do i start i am 20 years old and i have hypermobility in all my joints my hips and knees lock all the time i got diagnosed when i was 12 years old my knees,writs,fingers,ankles, and eldows swell i suffer more in cold damp rainy weather i have pain 24/7 never get a day...
    gbarlow92 gbarlow92 18-21, F 1 Response Apr 10, 2012

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    Hyper Mobility Syndrome

    I'm Katie, I'm 17 years old and i was diagnosed with hyper mobility syndrome when i was 14-15 years old, at first i thought there couldn't be a downside to being flexible? and who would have thought there would be? anyway, a couple of months later my knees, spine, ankles...
    katiebaddams katiebaddams 16-17 May 14, 2012

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    In My Shoulders.

    I have hypermobility in most of my joints. I was properly diagnosed with hypermobility when I was about 17 or 18, but wasn't told how bad it was. I always get a very uncomfortable pain in my shoulders. Across the top of the shoulders and across the back at the shoulderblades...
    CrazyNinjaPirate CrazyNinjaPirate 22-25, F 1 Response Mar 12, 2011

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    I Wish I Was Normal Sometimes

    i am not sure how two do this as i am new two this but i have hypermobility syndrome and osteo arthritis i have found out the earlier hms is diagnosed the better but i was over 18 when i was diagnosed i cant remeber how old i was i start physio next week as my right knee is...
    CATLOVER36 CATLOVER36 36-40, F 1 Response Jan 19, 2010

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    Related Experiences

    I'm currently in the process of analyzing some videos for my psychology class. The videos are the videos of dysfunctional families with young children that keep screaming for...
    RichardAndon RichardAndon 22-25, M 1 Response Apr 11

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    I have hyperhidrosis on my hands and feet I've had it since I was 12 it's hard having this condition Only 3 years ago every one in class had to stand up and shake a women's hand...
    deleted deleted 26-30 Apr 13

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    So, I went to see my doctor today and he suggested that I might have Asperger's syndrome. I don't really know much about it, so was hoping someone on here could enlighten me...
    Ambernonymous Ambernonymous 18-21, F 1 Response Apr 17

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    not me but my youngest son. we adopted him and his birth parents were drug and alcohol addicted. I am only just learning about this syndrome and the problems that my son will have...
    RobertaSunset RobertaSunset 36-40, F Mar 26

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    Hi there Aspies! I'm currently working on a short presentation about MDD (Maladaptive Daydreaming Disorder) and I've came to the point where I have to describe what are the usual...
    RichardAndon RichardAndon 22-25, M 2 Responses Apr 1

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    I've had HH (hyperhidrosis) ever since I was 5 . I suffer from having sweaty armpits every day & it really brings me down . I've tried literally everything you can think of & I...
    momo335 momo335 13-15, F Apr 1

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    Hyperhidrosis has been with me since I can remember. The doctor told my mom that nothing could be done about it, and that some people feel butterflies when they are nervous, but I...
    flightattendantlife flightattendantlife 31-35, F Apr 11

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    All through my short life I have experienced the troubles of being an outcast, being told to simply "get involved" but that's not at all easy. Well not for me anyway. I can do...
    thedimone thedimone 13-15, F 3 Responses Mar 26

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    For as long as I can remember I had felt....a little different than others. I didn't care about most things. I didn't want or need much social activities. I had, and still have, a...
    secretlyhonest1 secretlyhonest1 22-25, M 3 Responses Mar 28

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    Just diagnosed this week although they called it neuralgic amyotrophy. I believe there is another name for it as well, do you know? Does this all mean our immune system has...
    tickatocken tickatocken 41-45, F 1 Response Mar 28

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    I never really understood why I acted the way I acted and said some of the things I said until I was diagnosed . I never knew why most of my relationships never worked out and why...
    JoshRobin JoshRobin 18-21, M 4 Responses Mar 29

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    I recently realised that I had never been able to feel what others feel. i feel bad for people, but I can't put myself in their shoes... when I see someone crying I generally...
    loafemon1 loafemon1 18-21, F 2 Responses Mar 30

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    One of the struggles i have found myself having is speaking with other people i have the words i want to say but they won't come out. I want to meet a person because she has been...
    Autumnflowers Autumnflowers 18-21, F 5 Responses Apr 1

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    It's when your body has excessive sweat glands. I have them mostly in my hands,feet and armpits. It makes me sweat like crazy, even when it's not hot. I can just be standing there...
    Petepot Petepot 13-15, F 2 Responses Apr 3

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    I have aspergers and I thought meeting other people who have it would help me cope but it hasn't . It's like I can't even relate to those people who have it because were too alike...
    JoshRobin JoshRobin 18-21, M 2 Responses Apr 5

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    Yes, another malady. Actually I've had it since age 20 when I injured my elbow pitching. I loved to pitch and was asked to walk on to the UW Madison team back in 1975. I'll...
    steverick steverick 56-60, M Apr 7

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    I'm 10 weeks prego been battling HG since week 2. it's been a rough go was in the middle of moving and job changing when I got diagnosed. constantly in and out of the hospital...
    inthismoment7106 inthismoment7106 26-30, F Apr 10

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    I am starting to branch out. To be honest, it doesn't have to be over night, but very gradual. I used to think remaining silent and unnoticed would be better for me, but then you...
    LeaderOfThePack LeaderOfThePack 13-15, M 2 Responses Apr 13

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    I have this but I have periods of denial which mess me up mentally because admitting to having such a disabling disease is so difficult. I go to college because my parents forced...
    fallenstar23 fallenstar23 22-25, F Apr 16

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    Ever since I have been diagnosed with Aspergers my parents have always said no i dont. However, they really dont know the half of it. I know i have it mild but i still have it and...
    internationalkoala internationalkoala 18-21, F 6 Responses Apr 17

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    anyone here from the Uk who has it? finding the nhs not that helpful ty
    mysmugcat mysmugcat 41-45, F 2 Responses Mar 26

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    Every couple of weeks I vomit atleast once every ten to twenty minutes for no less than a week at a time. Its totally debilitating. Any one else? I Would like to talk to someone...
    salcla salcla 26-30, F 1 Response Mar 27

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    My son left home 18 months ago and I still feel I need to look after him, I miss his company as my husband and i don't talk much
    pinky221157 pinky221157 56-60, F 1 Response Mar 31

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    my life has always been hard since the day i was born.
    dacosta4949 dacosta4949 22-25, M 3 Responses Apr 13

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    I am Hispanic, female, 49 years old. On September 2012 started with progressive serious problems in my health. Weakness on my extremities, drastic loss of weight , foot drop...
    Matty65 Matty65 46-50, F Mar 27

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    aunt T, she is an excellent example of how we should get older. aunt T has AHD syndrome, called everything but not to be down syndrome. Always on the top. She, being seventy-seven...
    redribbonbook redribbonbook 46-50 Mar 31

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    I am a friendly person. I am social. I trust people easily. I don't know how to not trust people right away. I am very caring. I also am very forgiving and give people chances. I...
    blankcheck4urhart blankcheck4urhart 36-40, F Mar 27

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    i am wondering if anyone has these features with their pd. 1. when i get freezing and i cant lift my feet to walk across a room i can still walk up stairs. 2. when i freeze and...
    whatchimecallit whatchimecallit 56-60, F Mar 29

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    I am currently beside myself! I think my partner (and father of my 17month old) has Asperger's Syndrome. We are currently separated but "trying to work it out" except he insists...
    graciesplayground graciesplayground 36-40, F 4 Responses Mar 30

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    Hi I am wondering if others have experienced that their spouse is asexual due to the syndrome ? This is my first time writing here. Thank you
    v636 v636 41-45, F 3 Responses Apr 2

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    I'm only 24 and I'm having severe back pain. Has anyone with Larsen Syndrome had back pain that was diagnosed and treated? What can I do? From what I can tell my problem might...
    Coiraingeal Coiraingeal 22-25, F Apr 16

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    Hi I'm Chelsea. I was diagnosed with Duane Syndrome (Type 1) at a very early age as the first few weeks I was born were scary for my mom because she's told me about my left eye...
    lovelymoon11 lovelymoon11 18-21, F a week ago

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