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I Have Hyper Mobility Syndrome

Personal Stories, Advice, and Support 30 People

    I was told about 8 years ago

    that I have hyper mobility syndrome. It came about because I had pulled my back by merely vacuuming on the job. My entire life I have been able to stretch and move in odd ways, giving no second thought as to what this might mean for my body in the long run. My understanding is...
    Soultryst Soultryst 26-30, F 1 Response Feb 27, 2014

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    Hypermobility

    That's me. I never realised that a lot of the things I do (dislocating my shoulders, wrists, hips, fingers & thumb, even extra flexibility in nearly every joint) was unusual or that it even had a name. When I finally found out about hypermobility a year ago, and about every...
    Ky306 Ky306 18-21, F Oct 29, 2012

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    What Is This Syndrome

    Hi i have just been diagnosed with hypermobility syndrome at the age of 40 after years of back pain and now all over joint pain for the past year, i was given no info of it by the rheumatoid consultant as they had no leaflets, can anyone shed a light on it
    holmscroft1 holmscroft1 36-40 Mar 2, 2012

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    Hypermobility All Over My Body.

    Well where do i start i am 20 years old and i have hypermobility in all my joints my hips and knees lock all the time i got diagnosed when i was 12 years old my knees,writs,fingers,ankles, and eldows swell i suffer more in cold damp rainy weather i have pain 24/7 never get a day...
    gbarlow92 gbarlow92 18-21, F 1 Response Apr 10, 2012

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    I Wish I Was Normal Sometimes

    i am not sure how two do this as i am new two this but i have hypermobility syndrome and osteo arthritis i have found out the earlier hms is diagnosed the better but i was over 18 when i was diagnosed i cant remeber how old i was i start physio next week as my right knee is...
    CATLOVER36 CATLOVER36 36-40, F 1 Response Jan 19, 2010

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    In My Shoulders.

    I have hypermobility in most of my joints. I was properly diagnosed with hypermobility when I was about 17 or 18, but wasn't told how bad it was. I always get a very uncomfortable pain in my shoulders. Across the top of the shoulders and across the back at the shoulderblades...
    CrazyNinjaPirate CrazyNinjaPirate 22-25, F 1 Response Mar 12, 2011

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    Hyper Mobility Syndrome

    I'm Katie, I'm 17 years old and i was diagnosed with hyper mobility syndrome when i was 14-15 years old, at first i thought there couldn't be a downside to being flexible? and who would have thought there would be? anyway, a couple of months later my knees, spine, ankles...
    katiebaddams katiebaddams 16-17 May 14, 2012

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    Hypermobility - Awkward Condition Or What!

    Hi, I've had Hypermobility Syndrome for years now, and it really plays havoc with daily life, although I find that the summer with the warmth and extra Vit D is easier. Although it may be that the sunny days make us happier! I work in a school and am on my feet most of the day...
    9Red 9Red 36-40 May 29, 2012

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    It's Almost Killed Me

    I know the title sounds like an overstatement but it has, I'm hypermobile all over but when I was younger my ankles were really weak and I would collapse for no reason because my ankles would just give way. I fell over in front of cars, lorries, buses almost anything whenever I...
    Gimmyboy Gimmyboy 16-17, F 4 Responses Dec 15, 2011

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    My Everyday Life Was Chronic Pain, And I'M Only 14!

    For as long as I can remember (probably since I was around 7-8), I had deep horrible pain in my limbs. The pain could last for hours, and often left me crying. No form of pain relief (pain killers, heat/cold packs, massage) would help me. My parents took me to the doctor multiple...
    genevieveg3216 genevieveg3216 13-15 1 Response Mar 21, 2013

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    Related Experiences

    I have hyperhidrosis and Iv had it for quite a long time. I never knew what it was for a long time and to be honest, I thought it was normal. I was maybe 6 or 7 when I would...
    Joanna2468 Joanna2468 13-15, F 1 Response Jan 10

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    I think i might anyways . Im 6'4 its either i have hyperthyroidism or just some good genetics haha.
    TonyMontanah TonyMontanah 13-15, M Jan 11

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    Ok so this is important for anyone who has CFS or anything like it. I have had this illness for 4 1/2 years now, and I've been to a fair number of doctors. But it took awhile to...
    Invisibleninja12 Invisibleninja12 18-21, F 1 Response Jan 14

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    Hello, My name is Mathilda Panzarella i have 17 years old and i'm a french girl so excuse me for my bad english.. I sign up on this social network, because since a long time, i...
    PanzarellaMathilda PanzarellaMathilda 16-17, F 5 hrs ago

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    I'm a 21 year old female with possible hypermobility syndrome/EDS Type 3 or fibromyalgia. My mum has hypermobile joints but hasn't been diagnosed with HMS/EDS but has been...
    Kari9349 Kari9349 18-21, F Jan 1

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    my name is Ciara and I'm 19 and I am currently in the hospital post laminectomy. I have had back pain for about a year now. I had an inflamed SI joint that I recieved 3 steroid...
    cjacobs34 cjacobs34 18-21, F 1 Response 12 hrs ago

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    I had my diagnosis at 19, I have several other medical problems which have resulted in very limited mobility. I have good bouts where I can move much more easily but I have 'flare...
    noonespecial44 noonespecial44 26-30, F Jan 19

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    A new information website has been developed for stiff-person syndrome to educate, empower, and advocate. www.thetinman.org
    TheTinManOrg TheTinManOrg 51-55 Jan 2

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    My partner was diagnosed with Stiff Person Syndrome in July 2014. Due to my own ignorance about the illness and my own selfish needs of refusing to accept her sudden disability, i...
    GeekyGirl82 GeekyGirl82 31-35, F Jan 12

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    Hello there! I'm currently making some researches about Maladaptive Daydreaming Disorder. A disorder in which the person uses daydreaming as a defense mechanisme to escape from...
    RichardAndon RichardAndon 22-25, M 6 Responses Jan 20

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    Can someone please tell me they're symptoms of polycistic ovarian syndrome x
    iwantababy111 iwantababy111 16-17, F Jan 21

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    I'm 16 weeks with my second child and I have hg.... Again. I feel like I'm dying and guilty for wishing this was over already. I love my daughter and I know I will love this baby...
    noley87 noley87 26-30, F Dec 31, 2014

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    I have it. My favorite symptom is that people with it prefer nonfiction over fiction which I do.
    bobherry bobherry 16-17, M 1 Response Jan 6

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    Having more problems with my right bicept, I guess I'll talk to my doctor about it, Still under stress from an unsuccessful consult about my neck injury, Doctors seem to judge me...
    JEM404 JEM404 41-45, M Jan 17

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    Post diagnosis things went sour, my carefully constructed world started collapsing around me. Everything I had done to cope with a condition I didn't realise I had became...
    Teab Teab 41-45, M Jan 20

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    Around 10 or 11 the problem began. At first I was unaware but my stepmom would tell me to go wash under my arms, I would, but she would still complain afterwards. With me the...
    Girlolimberlost Girlolimberlost 31-35, F 1 Response 5 days ago

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    When you have this it's easy to become absolutely obsessed with things, and that's not easy to deal with, even when I became devastated after finishing a book series that there are...
    Dakurti99 Dakurti99 13-15, M 4 days ago

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    how do people react when you tell them you have aspergers? I am always so nervous to tell people!
    kristykaz121 kristykaz121 18-21, F 11 Responses 3 days ago

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    Asperger's is like a curse to me. I didn't ask to have panic attacks in cluttered noises. I didn't ask to not have a normal social. I CERTAINLY didn't ask to drag my family and...
    msvlogwars msvlogwars 16-17, F 18 hrs ago

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    Got in trouble at school so many times because of it. Its ruining my life to be honest.
    idfwuu idfwuu 13-15, M 4 Responses Jan 1

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    How do you guys manage CFS? Seems like I can't live a normal life like I used to.
    awesomesauce2 awesomesauce2 22-25, M 4 Responses Jan 8

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    This is an oddly specific group
    Gabbi97 Gabbi97 18-21, F 2 Responses Jan 12

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    Which explains why everybody hates me. :D
    Symbiopsychotaxiplasm Symbiopsychotaxiplasm 26-30, F 4 Responses Jan 16

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    Found a very good read! Check it out http://www.drmyhill.co.uk/wiki/CFS_-_The_Central_Cause:_Mitochondrial_Failure#Explanation_of_the_Fatigue_Problems_in_CFS_Patients
    awesomesauce2 awesomesauce2 22-25, M Jan 18

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    Asperger's symdrome is something thats gives me a lot and takes a lot too, I can recite 100 digits of pi easily, dolve a rubix cube in 1 min 13 seconds, and tell you anything about...
    Kringle95 Kringle95 18-21, F 2 Responses Jan 20

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    I always wanted to meet someone with aspergers like me wish I knew someone near :(
    kittyanthony kittyanthony 22-25, M 3 Responses Jan 20

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    Ugh. It's nearly midnight and my legs are still twitching and jumping. I've taken the meds, done all my stretches, taken aspirin, rolled on the foam roller. I'm so sleepy. It...
    Deedle623 Deedle623 51-55, F 3 Responses 1 day ago

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    Yes, and I've learned many ways about how to adapt to and around NTs. Contact me if you would like. :)
    wuiop wuiop 31-35, M 1 Response 1 day ago

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    I have Asperger's Syndrome and am depressive as well, I would love new friends
    deanratzloff deanratzloff 13-15 1 Response a week ago

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    It's a little inconvenient and lonely, because when people come home from work, I'm just going to start my 'day' lol ;) the offices close, the shops/cafes closed at night so I...
    rainyrainsky rainyrainsky 26-30, F 1 Response 5 hrs ago

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    Extremely worried about BP I like to start off by saying I've been dealing with health anxiety and OCD since I was a teenager. I am 32 now. I've been with my doctor for over 6...
    highbpguy highbpguy 31-35, M 1 Response 4 days ago

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    I was diagnosed on with what is lovingly called "EF", I see, on 1/8/2014. I am 46, Caucasian female, living in the Midwest, USA. I am not an athlete though I pretend I can...
    Kimbrulea Kimbrulea 46-50 1 Response Jan 13

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    Hello, Im a 15 year old boy and live in Finland, since i havent told anyone ever about my duane's syndrome type 1 i tought it would be a good idea to share my story here. I was...
    thundercoolmint thundercoolmint 13-15, M Jan 11

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    Does anyone out there have antiSRP myopathy? I was diagnosed 3 years ago. With excellent medical care I am so far still able to work full time and take care of my family... but I...
    colleen2842 colleen2842 46-50, F Jan 6

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    I was finally diagnosed properly fifteen years ago after years of trying to deal with individual symptoms. In some ways it was a relief, but I also had to accept that I had a...
    padraig17325 padraig17325 51-55, M Jan 16

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    It's coming up to 2 years since it was suggested that I have Turner Syndrome... and one thing that I'm really struggling with is gender identity. Obviously, I have all the girly...
    LoneSouls LoneSouls 26-30, F Dec 31, 2014

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