Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Hyper Mobility Syndrome

Personal Stories, Advice, and Support 33 People

    My Everyday Life Was Chronic Pain, And I'M Only 14!

    For as long as I can remember (probably since I was around 7-8), I had deep horrible pain in my limbs. The pain could last for hours, and often left me crying. No form of pain relief (pain killers, heat/cold packs, massage) would help me. My parents took me to the doctor multiple...
    genevieveg3216 genevieveg3216 16-17 2 Responses Mar 21, 2013

    Your Response

    Cancel

    It's Almost Killed Me

    I know the title sounds like an overstatement but it has, I'm hypermobile all over but when I was younger my ankles were really weak and I would collapse for no reason because my ankles would just give way. I fell over in front of cars, lorries, buses almost anything whenever I...
    Gimmyboy Gimmyboy 16-17, F 4 Responses Dec 15, 2011

    Your Response

    Cancel

    What Is This Syndrome

    Hi i have just been diagnosed with hypermobility syndrome at the age of 40 after years of back pain and now all over joint pain for the past year, i was given no info of it by the rheumatoid consultant as they had no leaflets, can anyone shed a light on it
    holmscroft1 holmscroft1 36-40 Mar 2, 2012

    Your Response

    Cancel

    Hypermobility All Over My Body.

    Well where do i start i am 20 years old and i have hypermobility in all my joints my hips and knees lock all the time i got diagnosed when i was 12 years old my knees,writs,fingers,ankles, and eldows swell i suffer more in cold damp rainy weather i have pain 24/7 never get a day...
    gbarlow92 gbarlow92 18-21, F 1 Response Apr 10, 2012

    Your Response

    Cancel

    In My Shoulders.

    I have hypermobility in most of my joints. I was properly diagnosed with hypermobility when I was about 17 or 18, but wasn't told how bad it was. I always get a very uncomfortable pain in my shoulders. Across the top of the shoulders and across the back at the shoulderblades...
    CrazyNinjaPirate CrazyNinjaPirate 26-30, F 1 Response Mar 12, 2011

    Your Response

    Cancel

    I Wish I Was Normal Sometimes

    i am not sure how two do this as i am new two this but i have hypermobility syndrome and osteo arthritis i have found out the earlier hms is diagnosed the better but i was over 18 when i was diagnosed i cant remeber how old i was i start physio next week as my right knee is...
    CATLOVER36 CATLOVER36 36-40, F 1 Response Jan 19, 2010

    Your Response

    Cancel

    Hyper Mobility Syndrome

    I'm Katie, I'm 17 years old and i was diagnosed with hyper mobility syndrome when i was 14-15 years old, at first i thought there couldn't be a downside to being flexible? and who would have thought there would be? anyway, a couple of months later my knees, spine, ankles...
    katiebaddams katiebaddams 16-17 May 14, 2012

    Your Response

    Cancel

    Hypermobility - Awkward Condition Or What!

    Hi, I've had Hypermobility Syndrome for years now, and it really plays havoc with daily life, although I find that the summer with the warmth and extra Vit D is easier. Although it may be that the sunny days make us happier! I work in a school and am on my feet most of the day...
    9Red 9Red 36-40 May 29, 2012

    Your Response

    Cancel

    Hypermobility

    That's me. I never realised that a lot of the things I do (dislocating my shoulders, wrists, hips, fingers & thumb, even extra flexibility in nearly every joint) was unusual or that it even had a name. When I finally found out about hypermobility a year ago, and about every...
    Ky306 Ky306 18-21, F 2 Responses Oct 29, 2012

    Your Response

    Cancel

    Related Experiences

    My name is Tiffani and I am looking for another person with KSS for my brother, Keith. He is 42 now and was diagnosed at 24. He started showing signs in his late teens, first by...
    Tiffanimorgan Tiffanimorgan 18-21, F 19 hrs ago

    Your Response

    Cancel
    I came across this site reading everyone's stories feeling amazed about how I am not alone. I feel a little disappointed because everyone's stories are mostly or similarly the same...
    whyme96 whyme96 18-21, F 1 Response 3 days ago

    Your Response

    Cancel
    This is in regards to a friend of mine who suffers from carpel tunnel. In addition to this...it also seems like the muscle, tendon, etc. in his arm is calcifying making it feel...
    jlg813 jlg813 26-30, F 1 Response 3 days ago

    Your Response

    Cancel
    Today, I was diagnosed with Duane Syndrome. After 17 long years of wandering what's wrong with me, and why my eyes are so different from other peoples', I finally have closure. I...
    katiebug7 katiebug7 16-17, F 4 days ago

    Your Response

    Cancel
    Good evening! I have been diagnosed with Marfan Syndrome when I was three months old by an ophthalmologist in a hospital in Poland. I am now 6'2", after two cardiac surgeries and...
    sakrona sakrona 18-21, F 4 Responses 4 days ago

    Your Response

    Cancel
    Just found out my 11 year old son has Asperger's syndrome. I have suspected for a while, and the reason it went undiagnosed for so long is because he is so academically gifted. In...
    SoShellyBye SoShellyBye 41-45, F 2 Responses 4 days ago

    Your Response

    Cancel
    I don't know for sure, but I know it's not normal. How can you be so tired from nothing? And this condition is what makes me depressed. Like I can be perfectly normal and then...
    fcksociety fcksociety 22-25, F 4 days ago

    Your Response

    Cancel
    Getting old fears me. True. I am shocked that i am no longer a teenager, but why is it like only my age increases? I feel like my mentality when i was a teenager is the same as i...
    blitzkrieg7 blitzkrieg7 22-25, F 4 Responses 5 days ago

    Your Response

    Cancel
    It was during the summer. I was out of school and house hopping since I had no stable home to go back to. It was a difficult year. I felt like dying every day. I had bouts of...
    starsheepie starsheepie 22-25, F 2 Responses 6 days ago

    Your Response

    Cancel
    im in the early stages of carpal tunnel syndrome in my right hand. i dont wear a brace yet. i go through pain and numbness in my fingers. its kinda weird.
    noaht43 noaht43 41-45, T a week ago

    Your Response

    Cancel
    Thick blood (also known as hypercoagulability, Antiphospholipids, and Hughes Syndrome) is a condition where the blood is more viscous (thicker and stickier) than normal. The...
    topcap2017 topcap2017 41-45, M 1 Response Feb 5

    Your Response

    Cancel
    I’ve been friends with benefits with this guy, recently, whom I’ve noticed weird things about. But then again I might be paranoid, and it’s all fine. First red flag: We...
    Masquerade91 Masquerade91 22-25, F 9 Responses Feb 5

    Your Response

    Cancel
    There's the oldest There's the youngest There's the only boy And then there's me...
    DreamRiver DreamRiver 70+, F 4 Responses Feb 4

    Your Response

    Cancel
    Another bout has struck me down, looks like another few days of severe rest. Lucky me(!)
    ProjectExperienceNameUser ProjectExperienceNameUser 26-30, M Feb 4

    Your Response

    Cancel
    I don't understand why they are subjecting me to this? They first suggested Turner Syndrome to me 2 years ago and referred me for yet more bloodwork on my hormones - the laugh of...
    LoneSouls LoneSouls 31-35, F Feb 4

    Your Response

    Cancel
    i have several mental illnesses. i have been hospitalized many times and in rehabs. i take medication every day. i hate stigma and discrimination. it is wrong. i have...
    coffeeonice coffeeonice 31-35, F 1 Response Feb 3

    Your Response

    Cancel
    Broken Heart Syndrome is real. SO happy I DiDN'T GET THAT! But I was HEARTBROKEN for MANY, MANY months. It took another guy to help me forget and keep me distracted but that dude...
    endlessl0ve endlessl0ve 26-30, F 2 Responses Feb 3

    Your Response

    Cancel
    I would like to write an ebook about peoples daily struggles with hyperhidrosis I think it will help people to understand the condition. Who would be interested in helping to...
    pbarn pbarn 31-35, M 1 Response Feb 2

    Your Response

    Cancel
    I would like to write an ebook about peoples daily struggles with hyperhidrosis I think it will help people to understand the condition. Who would be interested in helping to...
    pbarn pbarn 31-35, M Feb 2

    Your Response

    Cancel
    Any way to stop feeling fatigued? Anyone had any luck gaining energy back?
    WhiskeyT WhiskeyT 22-25, F 2 Responses Feb 2

    Your Response

    Cancel
    i'm 40 years old and have polands syndrome.i was always told that i just had a birth defect and that was it but finally a doctor diagnosed me.i was fine when i was younger but for...
    Brewdogg Brewdogg 36-40, M 1 Response Feb 1

    Your Response

    Cancel
    Well, puberty hit me like a ton of bricks. And its just now that I learned ho to take care of my skin. Also I have hyper pigmentation, so if I get a bug bite, acne, or a cut or...
    Lacrimosadies Lacrimosadies 18-21, F Jan 31

    Your Response

    Cancel
    I have the pais syndrome an intersex condition. I am a FTM/Libragender and I have bottom dysphoria and I am happy though that I'm intersex, though worried too.
    Yviroc Yviroc 22-25, T Jan 31

    Your Response

    Cancel
    Actually this happened last year when I was in class. I just sat down and had this pained look on my face and my friends asked me if I was okay but instead of answering I just...
    Himidio Himidio 13-15, F 1 Response Jan 31

    Your Response

    Cancel
    Does anyone else experience a great feeling of anxiety and impending constant doom from this? Like something is terribly wrong...does anyone else feel this horrific panic deep in...
    myreality1 myreality1 36-40, M Jan 30

    Your Response

    Cancel
    I can get hyper enough at times anyways lol xD
    Tagstar2000 Tagstar2000 13-15, M Jan 30

    Your Response

    Cancel
    My husband and I have been trying to get pregnant for the past year. Nothing. I have two beautiful twin daughters. Natural conception, first pregnancy. I finally went to see a...
    Butterflykiss707 Butterflykiss707 22-25, F Jan 30

    Your Response

    Cancel
    I chose to get off of my medication like maybe 6 or 7 months ago and since then my attention span has improved a lot (I'm still complete **** in Science and Math at school) but I...
    DanielTheEVO DanielTheEVO 13-15, M 1 Response Jan 29

    Your Response

    Cancel
    New low: as some of my friends may know, I was violently abused, raped and borderline tortured my my stepmother and stepsister following my fathers passing, and I left when I was...
    Nihl Nihl 18-21, M 1 Response Jan 26

    Your Response

    Cancel
    My 10yo son has a missing right pec muscle, but no other symptoms of Poland. He's very sporty and it has made no difference to what he can do, in fact he has developed a huge...
    TKDmum TKDmum 41-45, F Jan 26

    Your Response

    Cancel
    My name is Kristen Phelan and I'm a casting director working with Watercooler Casting. We are currently in development of a new TV project that is looking to document and bring...
    thekp129 thekp129 41-45, F Jan 25

    Your Response

    Cancel
    I was born with it. This disorder has really changed my life. All my symptoms of it: ----I tend to be socially anxious at times, not know what to say, I am not very good at...
    RainbowBlaze RainbowBlaze 13-15 2 Responses Jan 25

    Your Response

    Cancel