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I Have Hyper Mobility Syndrome

Personal Stories, Advice, and Support 33 People

    Hyper Mobility Syndrome

    I'm Katie, I'm 17 years old and i was diagnosed with hyper mobility syndrome when i was 14-15 years old, at first i thought there couldn't be a downside to being flexible? and who would have thought there would be? anyway, a couple of months later my knees, spine, ankles...
    katiebaddams katiebaddams 16-17 May 14, 2012

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    What Is This Syndrome

    Hi i have just been diagnosed with hypermobility syndrome at the age of 40 after years of back pain and now all over joint pain for the past year, i was given no info of it by the rheumatoid consultant as they had no leaflets, can anyone shed a light on it
    holmscroft1 holmscroft1 36-40 Mar 2, 2012

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    In My Shoulders.

    I have hypermobility in most of my joints. I was properly diagnosed with hypermobility when I was about 17 or 18, but wasn't told how bad it was. I always get a very uncomfortable pain in my shoulders. Across the top of the shoulders and across the back at the shoulderblades...
    CrazyNinjaPirate CrazyNinjaPirate 22-25, F 1 Response Mar 12, 2011

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    I Wish I Was Normal Sometimes

    i am not sure how two do this as i am new two this but i have hypermobility syndrome and osteo arthritis i have found out the earlier hms is diagnosed the better but i was over 18 when i was diagnosed i cant remeber how old i was i start physio next week as my right knee is...
    CATLOVER36 CATLOVER36 36-40, F 1 Response Jan 19, 2010

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    It's Almost Killed Me

    I know the title sounds like an overstatement but it has, I'm hypermobile all over but when I was younger my ankles were really weak and I would collapse for no reason because my ankles would just give way. I fell over in front of cars, lorries, buses almost anything whenever I...
    Gimmyboy Gimmyboy 16-17, F 4 Responses Dec 15, 2011

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    Hypermobility All Over My Body.

    Well where do i start i am 20 years old and i have hypermobility in all my joints my hips and knees lock all the time i got diagnosed when i was 12 years old my knees,writs,fingers,ankles, and eldows swell i suffer more in cold damp rainy weather i have pain 24/7 never get a day...
    gbarlow92 gbarlow92 18-21, F 1 Response Apr 10, 2012

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    My Everyday Life Was Chronic Pain, And I'M Only 14!

    For as long as I can remember (probably since I was around 7-8), I had deep horrible pain in my limbs. The pain could last for hours, and often left me crying. No form of pain relief (pain killers, heat/cold packs, massage) would help me. My parents took me to the doctor multiple...
    genevieveg3216 genevieveg3216 16-17 2 Responses Mar 21, 2013

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    Hypermobility - Awkward Condition Or What!

    Hi, I've had Hypermobility Syndrome for years now, and it really plays havoc with daily life, although I find that the summer with the warmth and extra Vit D is easier. Although it may be that the sunny days make us happier! I work in a school and am on my feet most of the day...
    9Red 9Red 36-40 May 29, 2012

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    Hypermobility

    That's me. I never realised that a lot of the things I do (dislocating my shoulders, wrists, hips, fingers & thumb, even extra flexibility in nearly every joint) was unusual or that it even had a name. When I finally found out about hypermobility a year ago, and about every...
    Ky306 Ky306 18-21, F Oct 29, 2012

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    I have terrible hyperhidrosis. Ever since I was born, my hands and feet have sweat profusely. Kids would touch me in disgust and ask me why my hands are wet and I would just say...
    riahboo riahboo 16-17, F May 4

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    Hello fellow CES survivors my heart is out to you all I had surgery on March 4 2015 laminectomy/discectomy emergency decompression was paralyzed for 30 hours .This syndrome is one...
    clint03 clint03 36-40, M May 23

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    There are 2 wonderful doctors who work with a team of other doctors and specialist at Mayo Clinic in Scottsdale and Phoenix Arizona. These doctors are amazing. They are doctors...
    bgrady15 bgrady15 51-55, F 3 days ago

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    Hard decisions are never easy whether you have a condition or not. You have to do what is best for you even if it hurts someone else. When you really care about someone often the...
    Sakaratte Sakaratte 26-30, M May 3

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    I do. However, I have no talent in anything whatsoever, I waste a lot of time and not to mention I wasted my life pretending to be someone I wasn't and never will be. I have a lot...
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    God why are people with autism spectrum disorders so retarded and sensitive? They need to buck up! Okay so two weeks ago my other autistic friend spend the night with me because I...
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    I don't understand eye contact or facial expression I remember Making friends with someone once we talked for a while and eventually the topic somehow went into disability's, When...
    Autumnflowers Autumnflowers 18-21, F 8 Responses May 13

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    I often use my imagination in a way to create or recreate the reality to better understand some situations or to comfort my insecurities when needed. Sometimes I find myself into...
    RichardAndon RichardAndon 22-25, M May 16

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    Nowadays I blend in with society pretty well, but in kinder garden my symptoms were showing a lot and I got humiliated over and over by the sixth graders telling me "you should do...
    ortwin ortwin 16-17, M 1 Response May 17

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    I've had HH for so long and I'm sick of it. Not only do I have it on my hands, feet, and armpits but I also sweat on my bum sometimes and legs. Like what? Who sweats there??? I'm a...
    valm23001 valm23001 16-17, F 2 Responses May 18

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    It's the mild variant which just means people don't realize that I actually have a problem and thus hate me. It causes a lot of problems including with social interaction, and...
    omutsukimi omutsukimi 18-21, M 3 Responses May 19

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    Hi this is my first time on here, just cane on to get some peoples real experiences. I'm sick of reading threw endless pages of things I don't understand with all the long words...
    pinklady2989 pinklady2989 22-25, F May 24

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    I had a terrible experience the day before i had emergency surgery...i woke up one morning not being able to get out of bed because of the pain so i called an ambulance was taken...
    jszymecki1234 jszymecki1234 31-35, F a week ago

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    Hi I wanted to post that I am with a company in the US for all natural products for various medical conditions, one product that helps inflammatory issues, another product that...
    carolgem carolgem 46-50, F 6 days ago

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    Hi wanted to share my facebook page www.facebook.com/healthyproductswithcarol where I try to keep up often with testimonials from past users to show how our products have helped...
    carolgem carolgem 46-50, F 5 days ago

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    Live near NYC, does anyone know a hospital that specializes in PTS? Two rotator cuff surgeries on left shoulder, 15 months of PT and now have PTS. In pain frequently and wake up...
    satsmo satsmo 46-50, M 4 days ago

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    When I was a kid I never felt the same as any of my peers. They were always too loud, too rude, or too confusing for me to want to interact with. Most would bully me for my...
    Wandering2 Wandering2 18-21, F 1 Response May 4

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    my Dr is trying to eliminate stuff before he diagnosis me with cfs. he recently did a mono test and drug test (which was my psychiatrist idea). I wonder what he'll try next...
    kareenmarie kareenmarie 36-40, F 1 Response May 4

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    i want every cytomegalo patient to please read my testimony,my name is Tee Tee. i was cytomegalo (CMV) positive since 2013 and it affected my life. I would like to advise people...
    teeteebaby teeteebaby 31-35, F May 12

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    I started with pain in right shoulder blade on April 2, 2015 and diagnosed on May 15, 2015 with PTS. The pain is severe on the right arm, elbow, forearm, hand and fingers...
    hankvankat hankvankat 56-60, M 1 Response May 18

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    I'm a bit hesitant to add this to my experiences as I don't know for sure if I suffer from it, but due to my habit of checking the internet whenever something is not right...
    RealLifePerson RealLifePerson 26-30, M 1 Response May 21

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    Hi, I've had CFS for many years. I go out when I'm feeling ok but on the whole I'd prefer to be able to speak to people online. I'm happy and upbeat. CFS doesn't mean all we...
    LizardW13 LizardW13 46-50, F 6 days ago

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    ljade18 ljade18 26-30, M 5 days ago

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    It's more of a tourette's of the mind for me. If I'm around certain people, all these unwanted thoughts come to my mind but I never actually vocalize them.
    zarpanzur zarpanzur 26-30, M 4 days ago

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    I'm a little concerned that I may have Benign Fasciculation Syndrome. I sometimes experience random pain on parts of my body and I have a lot of muscle twitches. I really wish I...
    moose73630 moose73630 16-17, M 1 Response May 7

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    I constantly have dreams that I have wings on my back and I fly all over the place. When I wake up I feep like I have phantom limb syndrome because I can still feel them even...
    QuanMarquis QuanMarquis 22-25, M 1 Response May 17

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    I'm being such a **** baby right now.. Wahh everything is annoying life is hard wahhh Ah but I should probably get this checked out before school starts. The whole point of waiting...
    junedew junedew 18-21, F 4 days ago

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    Ok so I read my palms for fun but basically I have really weird palms ...because if u can see my head and heart lines are connected...I just have one line instead of 2... I looked...
    ERMAHGERD1 ERMAHGERD1 22-25, F 2 Responses May 10

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    I have celebrity obsession syndrome. It sounds silly doesn't it? It is, and im embarrassed to have it. Ive had it as long as I can remember, but when I was younger it was more of a...
    ToLiveYouMustDie ToLiveYouMustDie 13-15, F 7 hrs ago

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    Well she has been working for 5 weeks now and I decided it was time she had her own transport to get to work, it is her 25th birthday next week so I have brought her a second hand...
    SarahSugdon SarahSugdon 41-45, F 1 Response 5 days ago

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