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I Have Hyper Mobility Syndrome

Personal Stories, Advice, and Support 29 People

    In My Shoulders. - I have hypermobility in most of my joints. I was properly diagnosed with hypermobility when I was about 17 or 18, but wasn't told how bad it was. I always get a...
    CrazyNinjaPirate CrazyNinjaPirate 22-25 1 Response Mar 12, 2011

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    Hypermobility All Over My Body. - Well where do i start i am 20 years old and i have hypermobility in all my joints my hips and knees lock all the time i got diagnosed when i was...
    gbarlow92 gbarlow92 18-21, F 1 Response Apr 10, 2012

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    I Wish I Was Normal Sometimes - i am not sure how two do this as i am new two this but i have hypermobility syndrome and osteo arthritis i have found out the earlier hms is...
    CATLOVER36 CATLOVER36 36-40, F 1 Response Jan 19, 2010

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    Hypermobility - That's me. I never realised that a lot of the things I do (dislocating my shoulders, wrists, hips, fingers & thumb, even extra flexibility in nearly every joint...
    Ky306 Ky306 18-21, F Oct 29, 2012

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    Hypermobility - Awkward Condition Or What! - Hi, I've had Hypermobility Syndrome for years now, and it really plays havoc with daily life, although I find that the summer with the...
    9Red 9Red 36-40 May 29, 2012

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    My Everyday Life Was Chronic Pain, And I'M Only 14! - For as long as I can remember (probably since I was around 7-8), I had deep horrible pain in my limbs. The pain could last for...
    genevieveg3216 genevieveg3216 13-15 1 Response Mar 21, 2013

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    What Is This Syndrome - Hi i have just been diagnosed with hypermobility syndrome at the age of 40 after years of back pain and now all over joint pain for the past year, i was...
    holmscroft1 holmscroft1 36-40 Mar 2, 2012

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    I was told about 8 years ago that I have hyper mobility syndrome. It came about because I had pulled my back by merely vacuuming on the job. My entire life I have been able to...
    Soultryst Soultryst 26-30, F 1 Response Feb 27

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    Hyper Mobility Syndrome - I'm Katie, I'm 17 years old and i was diagnosed with hyper mobility syndrome when i was 14-15 years old, at first i thought there couldn't be a downside...
    katiebaddams katiebaddams 16-17 May 14, 2012

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    Related Experiences

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    I was diagnosed with TS when I was very young. My case is mild and my tics are slight but I do feel the internal side effects of TS like anxiety, hyper vigilance, and some OCD. I...
    artMusicBrew artMusicBrew 36-40, M Mar 24

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    I was diagnose with hyper prolactin after a 500 prolactin level and after a mri with a hyperplas pituitary gland .After 2 months in cabergoline and feeling weak dizzy head aches I...
    lifeguardpr lifeguardpr 36-40, M 3 days ago

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    I was diagnosed at the age of 17. Up until that point i spent my life with the perallasis and docters not knowing what it was. They thought i had a type od muscular distrophy and i...
    tabitha35 tabitha35 31-35, F Mar 19

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    I've known I've had some type of eating disorder for a while now, but not anorexia or bullemia, since I don't completely starve myself, and I definitely don't purge. I looked up...
    Katalo10 Katalo10 13-15, F 1 Response Mar 23

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    So I am 21 years old and I suffer from Poly Cystic Ovarian Syndrome, I have done my research and unfortunately it comes with so many issues. But it is common and I would love to...
    o1Nadia1o o1Nadia1o 18-21, F 1 Response Mar 28

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    Was diagnosed back in high school. Felt like it held me back from many things. Yea, I did go 2 dances, junior and senior prom, but people treated me like I was retarded. I'm highly...
    HottRoddTX HottRoddTX 26-30, M 4 Responses Mar 28

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    I was diagnosed with hyperthyroidism when I was 4, the doctor wanted me to have surgery and have my tonsils removed. My mom said she doesn't want to have surgery so I've been...
    osorange osorange 13-15, M Apr 7

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    I found out I had Poland's Syndrome in my 30s ( I am now 48) when I was referred to a plastic surgeon. Had an operation but had to remove the implant as my chest cavity kept...
    gamordente gamordente 46-50, M 6 days ago

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    I have a question for everyone :) So I was diagnosed with Asperger's Syndrome a few years ago and am aware about it for a while now. Lately, however I have been having random...
    EurydiceKallos EurydiceKallos 16-17, F 3 Responses 1 day ago

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    And I've just had a week ling reprieve due to anti sickness medication at last, after a spent a day in hospital on a drip. I feel its so unfair in expected to just get on with...
    sylviaturner sylviaturner 26-30, F Mar 18

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    I am the middle of 5 2 older brothers 2 younger sisters. My brothers were always allowed to do what ever they want. Stay up late,drive, and lots of other fun stuff. My parents took...
    Jimmy1313 Jimmy1313 22-25, M Mar 26

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    I was just diagnosed a few months ago but I think I've had it for a few years now. The doctors actually found the tumor in my chest before they realized my eye drooping was Horner...
    Pinkyjolie Pinkyjolie 26-30, F 1 Response Mar 27

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    And I have to day that it is starting to ruin my life. It started when I was I'm grade school and it has gotten worse and worse until no I'm a sophomore in high school. I'm on the...
    iSwim98 iSwim98 13-15, M 1 Response Apr 7

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    I personally don't have CFS but my mother has it and it's been one of the most difficult things to deal with on a daily basis. I have determined that my mothers stress levels...
    IamLerato IamLerato 22-25, F 1 Response 4 days ago

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    I started with pain at the first of January. Woke up one morning with the feeling that I was being stabbed in the shoulder with a knife. Used heat/ice thinking I had pulled a...
    msv123 msv123 51-55, F 2 Responses 2 days ago

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    There has been no official diagnosis. But, all my life I have felt very different from everyone else. Job after job I have had a difficult time forming close relationships and...
    pottersclay pottersclay 41-45, F 2 Responses 1 day ago

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    Wow I dont know where to start.... after having being misdiagnosed on 12/27/2012 and sent home when i arrived because i was in so much pain i could not walk. Returned to the ER on...
    momndom momndom 31-35, F 3 Responses Mar 22

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    I am 32 years old, diagnosed three years ago. I have had 5 surgeries on my leg and 3 on my shoulder. I am on anti-depressants, nerve painkillers, anti-inflammatories and...
    gimpy55 gimpy55 31-35, F Mar 26

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    But it's not what everyone thinks it is. When you say 'aspergers', people think of socially awkward people who are obsessed with computers or science. But in reality, it's a lot...
    sarah19597 sarah19597 16-17, F 7 Responses Mar 27

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    That unsettling moment when an introduction between two individuals involve a confident, firm grip and a nice shake. I swear time freezes as I prepare myself for utter...
    deleted deleted 26-30 6 days ago

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    I get reconstruction surgery July 16th!!! SO excited, but not being able to play field hockey because of it is going to suck. I'm terrified of going under but I don't even care...
    marinagrace marinagrace 13-15, F Apr 9

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    Anyone with this won't to talk ? Just diagnosed today and would love to talk to others with it
    Mum2one Mum2one 22-25, F 1 Response 3 days ago

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    I've been diagnosed now. The lady that did the deed seems rather concerned about my mental well being. I don't know how I feel now I'm officially registered as disabled, I'll post...
    Teab Teab 41-45, M 1 Response 1 day ago

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    As a young teen I was just constantly thrown on pain killers for back and hip pain. It wasn't until Nov last year it was diagnosed as Fibromyalgia. My energy levels just...
    XanthiaJo XanthiaJo 22-25, F 1 Response 5 days ago

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    I have Postural Tachycardia Syndrome, as I only have issues with my heart rate not my blood pressure when standing. Does anyone else have this? What helps? I'm waiting on a call...
    Konig316 Konig316 26-30, F 3 Responses Mar 30

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    My names Alaina, I'm 17, and about three years ago I was diagnosed with Chiari Malformation Type 1. So freshman year of high school I started having really bad headaches, and found...
    burtala burtala 16-17, F Mar 27

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    I did so much gym I think I worked all my fat off. Bahahah. Almost.... Sort of. Half way. Quack, I'm a duck, flying through the ocean. :-/ I'm in a weird mood. Hyperdrive. I'm a...
    Lunarflowerrr Lunarflowerrr 22-25, F 1 Response 10 hrs ago

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    Okay this very rare virus I contacted just over 26 years ago. Now I still can't get up from the ground in the sitting position without help. Do more exercise to strengthen your...
    JohnCrighton JohnCrighton 51-55, M 2 Responses Mar 27

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    Having EN is an experience that I do not want to re-live again. I cannot count the number of times that I cried in despair because of this. Aside from having very painful and...
    anya1988 anya1988 22-25 Mar 31

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    All aboard on EP wd me plzzz BEAWARE!!!!!!!! I am extremely sensitive n when it over my limit....I get hyper n get a lil fussy.....so pllxxxxxxxxx if I misbehave or hurt someone...
    Mughee Mughee 22-25, F 3 Responses Apr 6

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    Like now! I'm hyper! And I don't know why! But I like it! I wanna go play! I'm actually getting work done!! Im gonna be burnt out in like 2 hours! Ahhhhh!!!! X3
    EmoSakurachan EmoSakurachan 16-17, F Apr 10

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    No matter how well you ready yourself, and no matter how hard you try to condition your mind before undergoing a life-changing operation... No one is ever prepared of the effects...
    grey019 grey019 31-35, M Mar 22

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    What the heck? About three and a half years ago I began to get soreness and stiffness in my hips, legs, and shoulders that increased steadily until I got to my doctor after weeks...
    DavidScott7 DavidScott7 56-60, M 1 Response Mar 24

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    Two last night! In the first, I was still in highschool I guess. I was on the bus ride home after a long and exhausting day and the girl sitting next to me asked if I wanted to go...
    PinkMellow PinkMellow 18-21, F 3 Responses Mar 18

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    Adrenal Fatigue, Hypothyroidism, Heavy metal toxins, elevated melatonin, low vitamin D, food intolerances Its best to start from the beginning, so here goes….I have been a...
    AnxietySoldier AnxietySoldier 36-40, M 1 Response Mar 24

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    Hello, I'm a mother of one handsome 9 month old boy. When my husband and I left the hospital June 29, 2013. We were never told that our son was born with Poland Syndrome. After his...
    Bernadzikowski Bernadzikowski 26-30, F 2 Responses Apr 2

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    Intramarine Isolation Syndrome. It is what I have, my disease. Cool. Quiet. Sometimes green, sometimes blue. Dark, or shining in the sun, but it always feels like no one ever...
    WickedScullyOfTheWest WickedScullyOfTheWest 31-35, F Apr 6

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    I was diagnosed with Graves Disease in 2007. My thyroid tests, T3 and T4 were only mildly high but my TSH was less than 0.01. My symptoms were rapid heart rate and dry and...
    purpleizzybee purpleizzybee 61-65 a week ago

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    I'm 38 and I recently had a craniotomy for a colloid cyst. On Feb 19th of this year I had a headache so bad that I couldn't open my eyes and it made me sick to my stomach. I had...
    survivor2014 survivor2014 36-40, F 6 days ago

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    I am new to this as I noticed several posts about pots syndrome I was wondering if someone could help me? I have suffered with this since I was 14 (I am now 19) but was only...
    potsie2222 potsie2222 18-21, F 3 days ago

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    I've hyperventilated a couple of times at really random moments, wish I could stop having these recollections :(
    MINIONPOP MINIONPOP 16-17 1 Response Mar 23