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I Have Hyper Mobility Syndrome

Personal Stories, Advice, and Support 33 People

    Hypermobility All Over My Body.

    Well where do i start i am 20 years old and i have hypermobility in all my joints my hips and knees lock all the time i got diagnosed when i was 12 years old my knees,writs,fingers,ankles, and eldows swell i suffer more in cold damp rainy weather i have pain 24/7 never get a day...
    gbarlow92 gbarlow92 18-21, F 1 Response Apr 10, 2012

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    What Is This Syndrome

    Hi i have just been diagnosed with hypermobility syndrome at the age of 40 after years of back pain and now all over joint pain for the past year, i was given no info of it by the rheumatoid consultant as they had no leaflets, can anyone shed a light on it
    holmscroft1 holmscroft1 36-40 Mar 2, 2012

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    My Everyday Life Was Chronic Pain, And I'M Only 14!

    For as long as I can remember (probably since I was around 7-8), I had deep horrible pain in my limbs. The pain could last for hours, and often left me crying. No form of pain relief (pain killers, heat/cold packs, massage) would help me. My parents took me to the doctor multiple...
    genevieveg3216 genevieveg3216 16-17 2 Responses Mar 21, 2013

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    It's Almost Killed Me

    I know the title sounds like an overstatement but it has, I'm hypermobile all over but when I was younger my ankles were really weak and I would collapse for no reason because my ankles would just give way. I fell over in front of cars, lorries, buses almost anything whenever I...
    Gimmyboy Gimmyboy 16-17, F 4 Responses Dec 15, 2011

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    Hyper Mobility Syndrome

    I'm Katie, I'm 17 years old and i was diagnosed with hyper mobility syndrome when i was 14-15 years old, at first i thought there couldn't be a downside to being flexible? and who would have thought there would be? anyway, a couple of months later my knees, spine, ankles...
    katiebaddams katiebaddams 16-17 May 14, 2012

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    I Wish I Was Normal Sometimes

    i am not sure how two do this as i am new two this but i have hypermobility syndrome and osteo arthritis i have found out the earlier hms is diagnosed the better but i was over 18 when i was diagnosed i cant remeber how old i was i start physio next week as my right knee is...
    CATLOVER36 CATLOVER36 36-40, F 1 Response Jan 19, 2010

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    Hypermobility

    That's me. I never realised that a lot of the things I do (dislocating my shoulders, wrists, hips, fingers & thumb, even extra flexibility in nearly every joint) was unusual or that it even had a name. When I finally found out about hypermobility a year ago, and about every...
    Ky306 Ky306 18-21, F 2 Responses Oct 29, 2012

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    Hypermobility - Awkward Condition Or What!

    Hi, I've had Hypermobility Syndrome for years now, and it really plays havoc with daily life, although I find that the summer with the warmth and extra Vit D is easier. Although it may be that the sunny days make us happier! I work in a school and am on my feet most of the day...
    9Red 9Red 36-40 May 29, 2012

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    In My Shoulders.

    I have hypermobility in most of my joints. I was properly diagnosed with hypermobility when I was about 17 or 18, but wasn't told how bad it was. I always get a very uncomfortable pain in my shoulders. Across the top of the shoulders and across the back at the shoulderblades...
    CrazyNinjaPirate CrazyNinjaPirate 26-30, F 1 Response Mar 12, 2011

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    I was diagnosed with exactly same thing as you plus a swollen sc collarbone joint. I went thru 2months of 6mri and X-ray s and blood test ect first though. My name is Stephanie and...
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