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I Have Hyper Mobility Syndrome

Personal Stories, Advice, and Support 33 People

    It's Almost Killed Me

    I know the title sounds like an overstatement but it has, I'm hypermobile all over but when I was younger my ankles were really weak and I would collapse for no reason because my ankles would just give way. I fell over in front of cars, lorries, buses almost anything whenever I...
    Gimmyboy Gimmyboy 16-17, F 4 Responses Dec 15, 2011

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    I Wish I Was Normal Sometimes

    i am not sure how two do this as i am new two this but i have hypermobility syndrome and osteo arthritis i have found out the earlier hms is diagnosed the better but i was over 18 when i was diagnosed i cant remeber how old i was i start physio next week as my right knee is...
    CATLOVER36 CATLOVER36 36-40, F 1 Response Jan 19, 2010

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    My Everyday Life Was Chronic Pain, And I'M Only 14!

    For as long as I can remember (probably since I was around 7-8), I had deep horrible pain in my limbs. The pain could last for hours, and often left me crying. No form of pain relief (pain killers, heat/cold packs, massage) would help me. My parents took me to the doctor multiple...
    genevieveg3216 genevieveg3216 16-17 2 Responses Mar 21, 2013

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    What Is This Syndrome

    Hi i have just been diagnosed with hypermobility syndrome at the age of 40 after years of back pain and now all over joint pain for the past year, i was given no info of it by the rheumatoid consultant as they had no leaflets, can anyone shed a light on it
    holmscroft1 holmscroft1 36-40 Mar 2, 2012

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    Hypermobility

    That's me. I never realised that a lot of the things I do (dislocating my shoulders, wrists, hips, fingers & thumb, even extra flexibility in nearly every joint) was unusual or that it even had a name. When I finally found out about hypermobility a year ago, and about every...
    Ky306 Ky306 18-21, F Oct 29, 2012

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    Hypermobility - Awkward Condition Or What!

    Hi, I've had Hypermobility Syndrome for years now, and it really plays havoc with daily life, although I find that the summer with the warmth and extra Vit D is easier. Although it may be that the sunny days make us happier! I work in a school and am on my feet most of the day...
    9Red 9Red 36-40 May 29, 2012

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    Hyper Mobility Syndrome

    I'm Katie, I'm 17 years old and i was diagnosed with hyper mobility syndrome when i was 14-15 years old, at first i thought there couldn't be a downside to being flexible? and who would have thought there would be? anyway, a couple of months later my knees, spine, ankles...
    katiebaddams katiebaddams 16-17 May 14, 2012

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    Hypermobility All Over My Body.

    Well where do i start i am 20 years old and i have hypermobility in all my joints my hips and knees lock all the time i got diagnosed when i was 12 years old my knees,writs,fingers,ankles, and eldows swell i suffer more in cold damp rainy weather i have pain 24/7 never get a day...
    gbarlow92 gbarlow92 18-21, F 1 Response Apr 10, 2012

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    In My Shoulders.

    I have hypermobility in most of my joints. I was properly diagnosed with hypermobility when I was about 17 or 18, but wasn't told how bad it was. I always get a very uncomfortable pain in my shoulders. Across the top of the shoulders and across the back at the shoulderblades...
    CrazyNinjaPirate CrazyNinjaPirate 22-25, F 1 Response Mar 12, 2011

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    Related Experiences

    My therapist was setting up my new treatment plan and had been talking about how she wanted to find a new diagnosis for me, because she felt my difficulties went beyond the...
    Emeryael Emeryael 26-30, F 5 hrs ago

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    Could be me. Need to schedule an appointment and get assessed.
    Western9 Western9 36-40, M 2 days ago

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    I don't mind Aspergers. It has benefited my intelligence greatly, and I have a small group of friends who understand that I may not be the most entertaining or talkative person in...
    XenonVirus XenonVirus 13-15, M 3 days ago

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    Hate the empty nest. Use to have sons friends Ina bs out...so quite here. On a good note ...grocery bill has gone way down.
    sharipie sharipie 51-55, F 2 Responses 3 days ago

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    Want to know me better? Autism is funny. And terrifying. (Just like EP really) Just now, as I sat reading a short passage of keywords about autism titled 'Am I OKay' I did my...
    jacquelinejones jacquelinejones 46-50 3 Responses 4 days ago

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    I was diagnosed from my kidney doc after a Biopsy that I had sjogrens, but my Rhuemetologist says no ( I don't like him and am changing to a new one) I already have kidney disease...
    katsass katsass 46-50, F 6 days ago

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    and am glad there are others out there that have it too, because i'm not crazy.(At least not half as crazy as they were making me out to be)But...I would never, ever wish this...
    katiebabydoll13 katiebabydoll13 26-30, F 6 days ago

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    Hi I have recently found out that have hypermoblity and EDS type3 all my life and when I much younger and still to this day I get picked on about it. People are always saying...
    bendy235 bendy235 13-15, F 1 Response a week ago

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    Im 16 and I struggle with Poland syndrome just as much as everyone else. I was fortunate in my case as I am only missing my right peck and an arm muscle. Other than that, I have no...
    FreeWilly04 FreeWilly04 16-17, M 1 Response Jun 25

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    I was diagnosed with Raynards in 1987 and then with CREST Syndrome in 1989. It was a scary time for me as my doctor called my whole family in and told them I has 3 to 4 years to...
    1990ppaul 1990ppaul 51-55 Jun 23

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    I am a 40 year old female. I have developed Hyperthyroidism last June and of course it became Graves Disease too. it started out with basic symptoms , I was tired and full of...
    lauriecl12 lauriecl12 36-40, F Jun 23

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    I know a person can die from a broken heart (Broken Heart Syndrome ) and I wonder if a person can die from an empty heart?
    5catjenny 5catjenny 61-65, F 2 Responses Jun 22

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    Daimyan is 9 and our journey began at his birth. He would like to ask everyone for support on a new support group on facebook. Search LUNAR to find it. Thank you
    LunarDayDay LunarDayDay 36-40, M Jun 22

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    I think a good male friend of mine may have Klinefelter syndrome. He fits many of the symptoms mentioned online including he is tall, a bit socially awkward, very wide hips and...
    pennyjd pennyjd 36-40, F Jun 22

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    FIRST I want to ask if any of you have had or thought about having surgery done to fix the webbed-neck and low hairline most of us are born with? I’m considering having it...
    CousinV CousinV 18-21, F Jun 21

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    I just found out I have Hyperthyroidism, but I have to wait and see an endocrinologist in July. Hopefully it's nothing too serious!
    NoUserName1107 NoUserName1107 18-21, F Jun 21

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    I've been fine for a while, but now I've started fainting a lot again. My mum and I were going to go shopping for my dads fathers day present, but because I will need a wheelchair...
    anon1995 anon1995 18-21, F Jun 20

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    Hey everyone! Thank you so much for sharing your stories! I am doing a research project on the practice of pica during pregnancy, and would love to interview anyone who is...
    snowflakesintown snowflakesintown 18-21, F Jun 20

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    Asperger's Syndrome in high school was tough. I didn't have a lot of friends and I was alone a lot but still hung out with a few peers. I remember being in the vocal club and band...
    AspieGirl97 AspieGirl97 18-21, F 4 Responses Jun 18

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    Hi I am Penny and have CVS. I've had it now for 2 plus years and am having a hard time dealing with it. It is so difficult to deal with right now, my life is on hold. Does it...
    PHowland PHowland 51-55, F Jun 18

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    I am 44 years old I have experienced Bi polar with mixed episodes, Mania and depression Anxiety and panic PTSD and Scizophrenia. never diagnosed but clearly have dealt with...
    smalltownwitch smalltownwitch 41-45, F Jun 18

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    hi, i am kiran and i have poland syndrome pretty fun say becoz recently i came to knw to that i'm suffering from it. All of my life till now i was wondering why is my right chest...
    kirankoundinya kirankoundinya 22-25, M Jun 17

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    I remember the worst panic attack I ever had. I was with my boyfriend and we were making out and all of a sudden I had a flash back to when my ex sexually assaulted me. I...
    LoserMaterial LoserMaterial 16-17, F 2 Responses Jun 16

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    Sometimes having Aspergers Syndrome sucks ****. I got diagnosed when I was a little girl. My dad said i was born with it. I guess I AM born learning disabled. Anyways, I didn't...
    ArtLover24 ArtLover24 22-25, F 1 Response Jun 16

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    My life often feels and looks almost as if I am in a painting or a hyper illusion... (lol)
    Jhayne8 Jhayne8 31-35, F Jun 16

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    Hey everyone. I have had HH since I was born, but once I hit puberty things spiraled out of control. My HH has taken over my life and affected my self esteem greatly. I lived in...
    aidenwinford aidenwinford 18-21, F 2 Responses Jun 16

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    I was diagnosed back in 2007 by my doctor.I have a hard time making friends and relationships last. They always leave me and i think i am not good enough.My anxiety is a daily...
    punkglampire punkglampire 22-25, F 3 Responses Jun 16

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    I have Aspergers not only that I also had speech problem. I didn't talk in full sentences till I was 5 years old. When I was in school it was hard for me to make friends because I...
    GuyFromTennessee GuyFromTennessee 41-45, M Jun 16

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    When I first got diagnosed with polycystic ovaries my first and instant reaction was to google the syndrome to find out as much as I could about disease I knew very little about...
    cocochanel92 cocochanel92 22-25, F 1 Response Jun 16

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    I probably have it too, based on the info I've studied. But I never got tested.
    GreenButtercup GreenButtercup 36-40, F Jun 16

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    I feel abnormal because I have Asperger's Syndrome which is high functioning autism. I dont have a whole LOT of friends because of it. I've been through depression, anxiety and so...
    AspieGirl97 AspieGirl97 18-21, F 9 Responses Jun 15

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    I probably have the most disgusting type of all: I eat boogers, and literally any bodily secretions except urine, feces, and menstrual blood. I used to be more omnivorous and ate...
    0902FRIENDs 0902FRIENDs 18-21, F Jun 15

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    Omg i have never heard that syndrome Vomiting is my phobia
    fauxlady fauxlady 22-25, F Jun 14

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