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I Have Hyper Mobility Syndrome

Personal Stories, Advice, and Support 29 People

    Hypermobility - Awkward Condition Or What!

    Hi, I've had Hypermobility Syndrome for years now, and it really plays havoc with daily life, although I find that the summer with the warmth and extra Vit D is easier. Although it may be that the sunny days make us happier! I work in a school and am on my feet most of the day...
    9Red 9Red 36-40 May 29, 2012

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    Hypermobility

    That's me. I never realised that a lot of the things I do (dislocating my shoulders, wrists, hips, fingers & thumb, even extra flexibility in nearly every joint) was unusual or that it even had a name. When I finally found out about hypermobility a year ago, and about every...
    Ky306 Ky306 18-21, F Oct 29, 2012

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    I was told about 8 years ago

    that I have hyper mobility syndrome. It came about because I had pulled my back by merely vacuuming on the job. My entire life I have been able to stretch and move in odd ways, giving no second thought as to what this might mean for my body in the long run. My understanding is...
    Soultryst Soultryst 26-30, F 1 Response Feb 27

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    I Wish I Was Normal Sometimes

    i am not sure how two do this as i am new two this but i have hypermobility syndrome and osteo arthritis i have found out the earlier hms is diagnosed the better but i was over 18 when i was diagnosed i cant remeber how old i was i start physio next week as my right knee is...
    CATLOVER36 CATLOVER36 36-40, F 1 Response Jan 19, 2010

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    Hyper Mobility Syndrome

    I'm Katie, I'm 17 years old and i was diagnosed with hyper mobility syndrome when i was 14-15 years old, at first i thought there couldn't be a downside to being flexible? and who would have thought there would be? anyway, a couple of months later my knees, spine, ankles...
    katiebaddams katiebaddams 16-17 May 14, 2012

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    In My Shoulders.

    I have hypermobility in most of my joints. I was properly diagnosed with hypermobility when I was about 17 or 18, but wasn't told how bad it was. I always get a very uncomfortable pain in my shoulders. Across the top of the shoulders and across the back at the shoulderblades...
    CrazyNinjaPirate CrazyNinjaPirate 22-25 1 Response Mar 12, 2011

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    Hypermobility All Over My Body.

    Well where do i start i am 20 years old and i have hypermobility in all my joints my hips and knees lock all the time i got diagnosed when i was 12 years old my knees,writs,fingers,ankles, and eldows swell i suffer more in cold damp rainy weather i have pain 24/7 never get a day...
    gbarlow92 gbarlow92 18-21, F 1 Response Apr 10, 2012

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    My Everyday Life Was Chronic Pain, And I'M Only 14!

    For as long as I can remember (probably since I was around 7-8), I had deep horrible pain in my limbs. The pain could last for hours, and often left me crying. No form of pain relief (pain killers, heat/cold packs, massage) would help me. My parents took me to the doctor multiple...
    genevieveg3216 genevieveg3216 13-15 1 Response Mar 21, 2013

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    What Is This Syndrome

    Hi i have just been diagnosed with hypermobility syndrome at the age of 40 after years of back pain and now all over joint pain for the past year, i was given no info of it by the rheumatoid consultant as they had no leaflets, can anyone shed a light on it
    holmscroft1 holmscroft1 36-40 Mar 2, 2012

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    It's Almost Killed Me

    I know the title sounds like an overstatement but it has, I'm hypermobile all over but when I was younger my ankles were really weak and I would collapse for no reason because my ankles would just give way. I fell over in front of cars, lorries, buses almost anything whenever I...
    Gimmyboy Gimmyboy 16-17, F 4 Responses Dec 15, 2011

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    Related Experiences

    I learned only a few years ago that I have Asperger's Syndrome and am clumsy as well as frequently speak very wierdly sometimes, and am socially awkward. I am also narrow minded in...
    Fenrirfenn Fenrirfenn 18-21, M 4 Responses Jul 3

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    I have Russell silver syndrome. It has given me health problems,I am way under the average weight for a normal 15yr old, I am 4'9 and will no longer grow.
    EvaJL EvaJL 13-15, F Jul 13

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    I am going to a geneticist on Thursday to be studied and diagnosed. All of my joints bend further than necessary. The worst pain of my life is when my SI joint and my C-1 and C-2...
    Soultryst Soultryst 26-30, F 1 Response Jun 23

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    I have EDS and chronic joint pain. I also have Tendonitis. I wonder if my Tendonitis has anything to do with my EDS.
    elenanicole elenanicole 16-17, F Jul 11

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    Hyperthyroidism, especially when it is misdiagnosed or let to run rampant, is a very dark disease. It really messes with your mind and when you combine it with the incredible...
    hcafaculty hcafaculty 46-50, M 1 Response 19 hrs ago

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    Hello there ^^I was diagnosed with Hyperthyroidism after a bout of Glandular fever when I was 11 years old, I am now 18 and was told last year that the chances of me ever...
    TinyBlondie TinyBlondie 18-21, F Jul 1

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    OK! I don't believe then this not more out here for women with Ovarian Remnant Syndrome. I was told 12 yrs ago I have ORS and have had 5 surgeries to take the remnants out. I still...
    Julieban Julieban 46-50, F 1 Response Jun 25

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    23+ years ago I was diagnosed with MS, even though I never had a positive test. No blood test, MRI, spinal tap,etc was ever positive for MS. My symptoms were never an exact match...
    bonsaigirl bonsaigirl 56-60, F Jun 29

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    This is my second time being pregnant, my second time with HG. Right now I am laying in bed, where I've been for the past few weeks, enjoying the few minutes of relief I have. I...
    ReeseThompson0424 ReeseThompson0424 18-21, F 1 Response Jul 12

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    I've noticed that this topic is followed by quite a few parents of children with RSS, as well as young persons who are looking for others who can relate to them, so I thought I...
    jahein137 jahein137 18-21, F 3 Responses Jun 23

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    **** I get when I tell someone I have aspergers "But you’re nothing like ____!"
Sometimes I’ll tell someone I have aspergers and they’ll just happen to have a friend or...
    nikkianni nikkianni 13-15, F 4 Responses Jun 29

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    I feel like my universe is just so out of alignment.....everything i have known for so long is just not there anymore :0(
    itswonder4all itswonder4all 41-45, F 2 Responses Jun 30

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    Hello im Amiee i'm 17 going on 18 on July 20th you may have remembered my mothers post Cheryl about my condition. I am still having the hip pain in both my hips. I had the MRI of...
    KiraAyita KiraAyita 16-17, F Jun 30

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    It has been seven weeks since I woke with severe ear pain. I had a few weeks of dizziness and what seem to feel like water in my ear before that. I went to ER later that day...
    ksrooney ksrooney 56-60, F Jul 1

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    I was diagnosed with TTS when I was 24, but my symptoms really started when I was about 21. I am currently 29. It always felt like I was walking barefoot on gravel, no matter what...
    happymegwv happymegwv 26-30, F Jul 8

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    It's the reason 95% of everyone I have ever known has eventually pushed me away. I'm not trying to sound like a pity party but that's been my real world experience. I'm lonely...
    KusanagiShiro KusanagiShiro 26-30, M 4 Responses Jul 10

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    I was diagnosed with Asperger's when I was 16, because the school nurse recommended that I get tested for AS. My teachers thought I was [pause] different. When somebody says you...
    RazorKenny RazorKenny 26-30, M 1 Response Jul 13

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    I think I have Asperger's. I have been diagnosed with many disorders over the years, depression, anxiety, ocd, ptsd, and we have touched on Asperger's, but never has it been a...
    13thgen 13thgen 36-40, M 2 Responses 6 days ago

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    Ugh. Joint pain is so bad when it rains. I just want to wrap up in a huge heating pad.
    ImBatmanNow ImBatmanNow 51-55, M 1 Response Jul 7

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    It sucks and I think I'm just a nothing that no one wants.
    kenzix09 kenzix09 13-15, F 2 Responses Jun 27

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    I was just diagnosed today :( I'm scared!
    prettybum prettybum 18-21, F 5 Responses Jun 23

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    I just got my diagnosis not sure what to do now
    prettybum prettybum 18-21, F 5 Responses Jun 24

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    Something I am having increasing difficulty with at the moment is that nobody knows exactly how difficult things are for me. This includes myself. I don't know how easy...
    Teab Teab 41-45, M 1 Response Jun 29

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    My autism ruined most of my life. I wish I could relive as an autistic anthro fox
    Miserablechildhood Miserablechildhood 13-15, M 4 Responses Jun 29

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    I was just diagnosed this week. Now what?
    VBLOVE1106 VBLOVE1106 22-25, F 4 Responses Jul 5

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    my parents didn't tell me until i was eleven years old, so i found it a big shock. i spent my whole life thinking i was your usual normal-person-without-any-major-challenges...
    hans13 hans13 51-55, F Jul 5

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    NO ONE CARES ABOUT ME !! I WISH MY YOUNGER BROTHER WAS NEVER BORN THEN I WOULD NEVER BE SAD AND CRYING RIGHT NOW😭😭😫😭😭😭😫😢
    bela5562 bela5562 13-15, F 2 Responses Jul 6

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    Sometimes I wonder what my family thinks with me having Asperger's or how long they've been keeping it from me. When I found out in February, my mom confessed to knowing I had it...
    kelseytoby kelseytoby 16-17 3 Responses Jul 8

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    My Battle With Marfan's Syndrome I am a Marfan.. i.e. I have Marfan’s Syndrome. It is very rare and most of you reading this might not have even heard of it. I never knew that I...
    Eddiecrow Eddiecrow 41-45, M Jun 29

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    My Battle With Marfan's Syndrome I am a Marfan.. i.e. I have Marfan’s Syndrome. It is very rare and most of you reading this might not have even heard of it. I never knew that I...
    Eddiecrow Eddiecrow 41-45, M 1 Response Jun 29

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    I used to think I was adopted. I have 5 siblings, and they each have several thick photo albums from when they were kids. I have maybe two photos from when I was a kid, but no baby...
    Solfeggio Solfeggio 36-40, F 1 Response Jun 24

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    I have Oral Allergy Syndrome
    n0ceur n0ceur 18-21, F Jul 7

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    I have Oral Allergy Syndrome. For those who aren't aware of what it is; it basically means that I can't eat raw fruits or vegetables, or else I'll succumb to an itchy mouth/throat...
    n0ceur n0ceur 18-21, F Jul 7

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    When we are assessing ourselves for how IH affects us and when we are communicating it to others it would be helpful to clearly separate and specify four different factors: 1) How...
    HyperZombia HyperZombia 41-45, M 3 hrs ago

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    Ugh the struggle of stairs. With my hyperventilation I feel like Hazel Grace when she makes it to the top of the Anna Frank in the Fault in Our Stars movie. Literally one flight...
    kelizabeth13 kelizabeth13 18-21, F Jun 25

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    I have never heard of it but apparently its an obsessive disorder and people with borderline personality and anxiety disorder have it. I don't know how i am going to stop because i...
    Gentleandlovingsoul Gentleandlovingsoul 36-40, F Jul 1

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    I had my first one in the end of freshman year. I had to stop going to school because I couldn't handle being in a classroom. I would run out and freak out, hyperventilate, shake...
    dianeemariee dianeemariee 13-15, F 14 hrs ago

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    It's interesting that the Japanese tv dramas always like the stories about people with double sides of personality. It's like, the same person, but in one period of time is being...
    kekehuang kekehuang 36-40, F Jul 12

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