I Have Hypoparathyroidism

A Hypoparathyroidism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hypoparathyroidism. You're not alone. 20 People

    Bone Problems Due to Hypoparathyroidism

    I have hypoparathyroidism due to Sub total thyroidectomy 15 years ago.  I have been on medications since and recently I am having problems with my bones.  They are creaky - shoulders and knees.  My fingers are stiff and also my knees.  When I sit down or...
    savitriluin savitriluin
    4 Responses Jul 7, 2008

    Hypoparathyroidism At 13.

    I am 13 years old and I found out that i have Hypoparathyroidism just a month ago. I suffered from frequent headaches and went to the hospital to get checked. The blood test showed that I had low calcium and PTH levels. I was prescribed PTH supplement. The medication helped a...
    ichewchu ichewchu
    13-15, F
    6 Responses Apr 5, 2010

    I need help! I had a total thyroidectomy Nov.

    7, 2014, before I got discharged from the hospital I went into severe hypoparathyroidism/hypocalcemia and stayed in hospital in ICU for 14 days on a calcium drip and monitors. I have been admitted twice overnight since then for calcium infusion. Needless to say, I have...
    rymagsnana rymagsnana
    51-55, F
    Feb 11, 2015


    I had been having problems with tingling,tetany,cramping,pins and needles etc for over 15 years.. i had been sent for multiple tests and procedures to determine what was wrong with no result, it wasn't until i started falling over while walking that a intern at my local hospital...
    jodieb jodieb
    2 Responses Apr 24, 2012

    Had Hypoparathyroidism From Birth In '73

    Hi all, I am Phill, I was born in Houston Texas in 73.  I started getting these spasms, could not open my mouth to even eat, my hands cramped, contracted slowly, I could not open up my hands. Now back in Rockdale. My teacher and my grandmother both carried me out of the school...
    stoneofrefuge stoneofrefuge
    36-40, M
    1 Response May 18, 2011

    Could not get the calcium I have been taking

    for the last 10 years. Switched to calcium carbonate and that SCREWED my stomach up. Meanwhile my Endocrinologist goes MIA for a month with family issues. I try to see a regular doc because my blood counts were 2 points higher then normal(notttt good) but alas the Endo has been...
    KJ935 KJ935
    22-25, F
    1 Response Jun 2, 2014

    The Journey...still Rolling (phosphorous Levels???)

    Hello all! I was diagnosed with hypoparathyroidism 2 years ago, and it has been a bumpy ride both before and after. Well, I was first diagnosed with Crohn's Disease after a long battle of constant bathroom trips and complaining to my doctor. He just thought I was having a hard...
    ramyrain ramyrain
    1 Response Jan 12, 2013

    Hypoparathyroid -170 Kidney Stones

    Hi,My name is vicki.I was 22 when I past my first kidney stone.A year later,I past another and over 20 years,I so far have past 170 stones,,no joke..Later I was told I had a tumor in my neck,possible a bad parathyroid,and it needed to come out.I was taken into surgery,and when I...
    mccaret71 mccaret71
    1 Response Dec 21, 2010


    tamyjo tamyjo
    56-60, F
    Jul 18, 2013

    Lifestyle Check

    I did'nt know I had hypoparathyroidism 'til 2010.  That was the first time I was diagnosed with it.I was born in 1972, graduated from college in 1993, done missionary work for a year, went back to school and took up law, passed the bar in 1999 and in June, 2000 suffered my first...
    sherwinquilatan sherwinquilatan
    Nov 4, 2011

    Hypoparathyroidism And Kidney Disease

    I had thyroid cancer 8 years and had my thyroid removed. Ended up removing all my parathroids also. It has been very rough road. What makes matters worse is no one not even the doctors understand. People usually respond that they have thyroid problems too. Ha, wish thats all I...
    rameyjulie rameyjulie
    41-45, F
    1 Response Oct 16, 2013
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