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I Have Hypophosphatasia

A Hypophosphatasia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hypophosphatasia. You're not alone. 7 People

    I Have Adult Hypophosphatasia

    After 2 podiatrists told me I was crazy, the 3rd podiatrist finally sent me to an Endocrinologist who not only did the normal dexa scan (which always came back normal) but did other blood work. He found the needle in the hay stack and diagnosed me in March of 2008.  Since...
    speete35 speete35 41-45 8 Responses Mar 22, 2009

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    Infantile Hpp

    When I was born, I was diagnosised. I had a craniosynostosis surgery to fix all the sutures of my skull, due to them being fused already. I have not broken any bones, yet. My alkaline phospatates are reading at a 9 at the moment. I live in Texas and have trouble finding any help...
    casewild113 casewild113 31-35, M 2 Responses Jun 25, 2012

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    Hpp Choose Hope

    I too have hypophosphatasia. I was diagnosed at age 53. HPP-Choose Hope helped me. Maybe they can help you.
    Steelwheel Steelwheel 46-50 Nov 12, 2012

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    Hpp I Know There Is Hope.

    I have had hpp for a few years and a friend of mine told me about someone he knows that has Hpp also. He was just diagnosed a few months ago. He put me in contact with him and come to find out he has started a foundation that will be doing some wounderful things to bring awarness...
    adulthpp adulthpp 46-50, M Aug 11, 2012

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    Hpp Facebook Page And Soft Bones Site

    I wasn't able to comment on another post...so I'm trying this route. Too much calcium is BAD for people with HPP. (My son has this disease.) Your doctor is not doing his/her reseearch. Go to the Soft Bones website and HPP facebook page. You will find many others with the disease...
    msbadgerwi msbadgerwi 31-35 1 Response Jun 26, 2012

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    Related Experiences

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    BULLY FIGHTIn 1971, I was in grade three, when my mother transferred us to the nearest public school, where we moved our house from Masara Elementary School, Maco, Davao del Norte...
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    I have gained close to 70 lbs in a little over a year. I feel like it's ruining just about every aspect of my life, yet I still struggle to find the motivation to live a healthy...
    anonison anonison 18-21, F 1 Response 1 hr ago

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    I just started tenth grade. My homework for tonight: Spanish: Make 48 conjugates tables hand written. Study for Vocabulary Quiz tomorrow. Algebra: Study for Test tomorrow...
    BADLIFEFORME BADLIFEFORME 13-15, F 1 hr ago

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    This is going to sound crazy but yeah. I am scared to go back on the first day. Basically, i have an dentist appointment (that I have to go to) in the time slot of my last lesson...
    RachieBlondie RachieBlondie 13-15, F 2 hrs ago

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    I Have very random thoughts.I over think when I sleep.It stops me from sleeping right.I haven't had a ,good nights rest in 5 days.
    punkpixie13 punkpixie13 22-25, F 1 Response 2 hrs ago

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    My boyfriend is a year younger than me and is currently getting ready for his final year of A levels. From the word go his parents have been incredibly strict. School is all they...
    tinyheart8888 tinyheart8888 18-21, F 3 hrs ago

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    My family mother n father brothers sisters. They are all very negative. I have managed to find a fighting spirit from somewhere but right now I feel beat down. They're like a...
    braingarden braingarden 22-25, F 4 hrs ago

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    I have a puffy belly. But I don't really show much in my face..:) Very glad about that. My thighs are thick but not huge. I don't want that. I have been sitting more that's...
    ChelseaMonroe ChelseaMonroe 22-25, F 1 Response 4 hrs ago

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    i have always suffered with constipation for years and had episodes of terrible lower stomache pain sweating faintness and general weekness then I go ok but the last 2 episodes...
    jaynerosemary jaynerosemary 51-55, F 4 hrs ago

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    despite all the people around me I've been forced to do everything alone. my family are toxic to be around, I have no friends around me and I ended up in a toxic relationship that...
    LewisCollins LewisCollins 31-35 1 Response 4 hrs ago

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    I was scrolling through my wall and found some statuses from a few years ago. One was posted at 2 am on my birthday. I wrote that sometimes I feel like screaming, but I don't...
    hiddenkitty hiddenkitty 18-21, F 1 Response 6 hrs ago

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    I have no teeth. Half of them were knocked out, or damaged, when I was 17, the rest came out by 24. Over the years my edentulous mouth has been the cause of much mirth amongst my...
    SLD1970 SLD1970 41-45, M 6 hrs ago

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    They are no different than us. They have feelings. They feel sad, happy, angry, anxious, scared, threatened, just like us. When you yell at them, they too feel scared and sad. When...
    Wolflover1999 Wolflover1999 16-17, M 2 Responses 6 hrs ago

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    This section is becoming my most "popular" experience area, but I suppose it's easier to talk about something as I am experiencing it as opposed to in any other way. Today was, as...
    RaiseYourWhat RaiseYourWhat 26-30, F 8 hrs ago

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    I write on here to vent my feelings. Why is it okay for othet people to vent to others about people they have problems with but when i do it, im considered evil or bad? Im not here...
    HigherCalling HigherCalling 26-30, F 9 hrs ago

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    I have had this experience before people pretend to care and then you fall for it have done that before.
    DarkWorld98 DarkWorld98 16-17, F 9 hrs ago

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    I have experienced it twice. The second time was no less terrifying to the first. It felt as if something was holding me down and when I tried to call out for help I had no voice...
    mindfulmermaid mindfulmermaid 41-45, F 1 Response 9 hrs ago

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    I have posted in this thread a few times in the past. It has been 9 months since my last post. I am pleased and proud to say that my relationship is the strongest it has ever been...
    sfm21 sfm21 22-25, F 3 Responses 10 hrs ago

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    Im having a breakthrough guys. I have had severe HS for 12 years and its been an absolute living hell. My underarms are scarred and have different skin tones and I have always felt...
    bel1196 bel1196 18-21, F 10 hrs ago

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    this absolutely sucks I've joined just for this reason and i feel like i will never be able to have a serious relationship with this who wants to have sex with someone with these...
    kaitiegirlsms kaitiegirlsms 13-15, F 1 Response 10 hrs ago

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    I like being sad. I like being cold and wet. I like feeling that way when I know I will be warm and dry. I like being cold and hungry and looking into the window on Thanksgiving...
    rick4545 rick4545 36-40, M 11 hrs ago

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    Didn't know the extent of how bad until I did some research online. My thing was dustmites and mold. Holy effing sh--- part and partial was the fact I didn't know that you need to...
    Lov3intheasylum Lov3intheasylum 31-35, F 11 hrs ago

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    You left and took everything, you took the three things I cared most in this world for, You and our two dogs that we had together for 8years, what am I suppose to do when all I...
    koorie123 koorie123 22-25, M 2 Responses 12 hrs ago

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    At first glance , you'd never assume I was sick. Too young, too pretty, too normal ... 20 years young, hetero white woman, smart, vivacious.... I've yet to find any body else with...
    skippandyouube1 skippandyouube1 18-21, F 12 hrs ago

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    I want nothing more than to have crazy large family with a loving wife. I want our house to be bursting at the seems with love and life from our ever expanding brood. I don't have...
    doof3 doof3 26-30 1 Response 12 hrs ago

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    For the past few years, I have been on a quest to be happy. I was actually catapulted into this quest by a dear friend I met on here four years ago and still text daily. I...
    ANewCreation4Him ANewCreation4Him 36-40, F 12 hrs ago

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    I also have no friends because of my bpd. I want to be normal and I can't be.
    biwetgal94 biwetgal94 18-21, F 13 hrs ago

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    Me and my ex girlfriend both have bpd. I could only attach to her and understand her and I actually felt everything with her like my bpd wasn't there you know? She couldn't give...
    biwetgal94 biwetgal94 18-21, F 13 hrs ago

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    It says so on my medical records. I get incontinence pads from the NHS continence service. My incontinence and enuresis is caused by my diabetes and is not curable so I will have...
    Stillwetshisbed Stillwetshisbed 46-50, M 2 Responses 13 hrs ago

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    I had a talk this morning with my husband and his words to me was I didn't have the affair I know what it looks like but I didn't have the affair. you are gonna be the reason we...
    unhappywife16 unhappywife16 41-45, F 2 Responses 13 hrs ago

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    Her name is Nichole, but she's been Nix to me for as long as I can remember. It's hard to describe to anyone else how close we are, how well we mesh together... But it's like...
    Songsinshadow Songsinshadow 18-21, M 2 Responses 14 hrs ago

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    And, not that long ago I was known to have howled at the moon.
    Thisis4fun Thisis4fun 56-60, M 2 Responses 14 hrs ago

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    I have a southern accent because I live in Michigan how does that work
    fiberjackto45 fiberjackto45 16-17, M 2 Responses 14 hrs ago

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    I had an epiphany today. Already. 7:30 in the mornin! I hadn't wanted to move on before (past few months) because it's scary. I didn't know what was ahead, what would happen in my...
    Lilcuppa Lilcuppa 70+, F 4 Responses 14 hrs ago

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    It's been a week and I'm still reading my husband's emails that comes from her. Will it ever stop? I see she's hurt. I don't feel satisfaction I just have this shaky feeling...
    poppingcandyrulez poppingcandyrulez 36-40, F 14 hrs ago

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