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I Have Hypophosphatasia

A Hypophosphatasia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hypophosphatasia. You're not alone. 7 People

    Hpp Facebook Page And Soft Bones Site

    I wasn't able to comment on another post...so I'm trying this route. Too much calcium is BAD for people with HPP. (My son has this disease.) Your doctor is not doing his/her reseearch. Go to the Soft Bones website and HPP facebook page. You will find many others with the disease...
    msbadgerwi msbadgerwi 31-35 1 Response Jun 26, 2012

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    I Have Adult Hypophosphatasia

    After 2 podiatrists told me I was crazy, the 3rd podiatrist finally sent me to an Endocrinologist who not only did the normal dexa scan (which always came back normal) but did other blood work. He found the needle in the hay stack and diagnosed me in March of 2008.  Since...
    speete35 speete35 41-45 8 Responses Mar 22, 2009

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    Infantile Hpp

    When I was born, I was diagnosised. I had a craniosynostosis surgery to fix all the sutures of my skull, due to them being fused already. I have not broken any bones, yet. My alkaline phospatates are reading at a 9 at the moment. I live in Texas and have trouble finding any help...
    casewild113 casewild113 31-35, M 2 Responses Jun 25, 2012

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    Hpp Choose Hope

    I too have hypophosphatasia. I was diagnosed at age 53. HPP-Choose Hope helped me. Maybe they can help you.
    Steelwheel Steelwheel 46-50 Nov 12, 2012

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    Hpp I Know There Is Hope.

    I have had hpp for a few years and a friend of mine told me about someone he knows that has Hpp also. He was just diagnosed a few months ago. He put me in contact with him and come to find out he has started a foundation that will be doing some wounderful things to bring awarness...
    adulthpp adulthpp 46-50, M Aug 11, 2012

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    Related Experiences

    Holy doolie what a crap day! I would love to know when grieving stops! I thought things were getting much better. Have been feeling generally so much better. It's the holidays...
    willbefreeiwill willbefreeiwill 36-40, F 1 hr ago

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    I had just turned 20 and I had been living with my first love for a year and a half, a handsome, charming man who abused me physically and emotionally. One day when he'd been...
    Brainyblonde Brainyblonde 66-70, F 1 Response 2 hrs ago

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    Hey, I am 18 and preparing for my university enterance exam. There is this course that helps you to practice for it. And there is a boy of course. Normally I am never sure if I...
    CutePerfectionist CutePerfectionist 18-21, F 2 hrs ago

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    I'm only 20 years old, and I've had premonitions since I was younger. I still remember the very first time it happen. At first, I didn't know what it ment when I suddenly felt...
    sde715 sde715 18-21, F 1 hr ago

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    I'm only 20 years old, and I've had premonitions since I was younger. I still remember the very first time it happen. At first, I didn't know what it ment when I suddenly felt...
    sde715 sde715 18-21, F 1 hr ago

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    Twice and by two different men, in London, I have heard the saying.... If I told you you have a beautiful body would you hold it against me. It seemed uncanny that two guys would...
    Skjeggstad Skjeggstad 22-25, F 2 Responses 24 mins ago

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    first off i'm not looking for attention i'm looking for a way out of heart break and any suggestions are ok. i messed up when i moved away from my boyfriend of 3 yrs (fiancee for...
    beautifuldisaster1206 beautifuldisaster1206 18-21, F 2 hrs ago

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    And I still do... Whenever I think about you. Even if it has been years, I still feel the chills and butterflies whenever I think of the moments we have shared...... And I don't...
    MsDemeanorMe MsDemeanorMe 31-35, F 1 Response 2 hrs ago

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    Well, this group title is somewhat misleading, but I'll explain. Idk why, but I notice when I talk to people while they're depressed, they are more interesting. I mean, yeah sure...
    NatashaRose NatashaRose 18-21, F 53 mins ago

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    finally have one after all my friends beged me to make one
    jamesb21 jamesb21 22-25, M 2 hrs ago

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    This may sound pathetic but I like the "time change" where it gets dark around 4:50pm. I feel more better because people can't see me. I do it subcontiously it's really weird...
    kjonesr kjonesr 18-21, F 1 hr ago

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    As an honest person that I am and tell things how they are, I would always appreciate and respect someone for telling me the truth back no matter how bad or hard it would be, i don...
    xxSTEVE7xx xxSTEVE7xx 31-35, M 1 Response 1 hr ago

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    I started my course of champix.. 3rd time lucky after 14 years of smoking on and off. My next door neighbour has emphysema and the sound he makes when he's coughing every few...
    heyitsabike heyitsabike 31-35, F 1 hr ago

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    I've lived in five countries, gone to five schools. In these schools I've always had a lot of friends. This isn't me trying to show off or anything, but people always wanted me to...
    TxSS TxSS 13-15, F 1 Response 1 hr ago

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    A few times here in Norway, and once in England when visiting a beach in Hampshire with my long ex boyfriend there. It's almost always more satisfying because of the public nature...
    Skjeggstad Skjeggstad 22-25, F 15 mins ago

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    After these three months apart I should be ok. But I wake each morning questioning my existence. Why am I alive when the one I love doesn't care? I wake in agony knowing his world...
    sar4952 sar4952 26-30, F Nov 28

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    Matter and energy. The two basic foundations of everything, and of which cannot be created, not destroyed. With their existence, you take away the existence of time. If they cannot...
    JohnBobMac JohnBobMac 16-17, T Nov 28

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    This was a couple days ago~ This was around 9 PM I went to the restroom to brush my teeth I was looking at the wall and I notice something strange about my shadow? I moved so to...
    RainbowWolf13 RainbowWolf13 13-15, F 2 Responses Nov 28

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    So I'm just up thinking and writing away everything I'm feeling. I'm gonna have to get up and a few hours because I'm going to the mountains. I can't wait.
    Itsnotareligion Itsnotareligion 22-25, F 2 Responses Nov 28

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    I suppose I could call it insomnia. It has been both productive and destructive in my life. I can remember as a child having great difficulty sleeping. When I discovered books I...
    TunnelofTrees TunnelofTrees 36-40, M Nov 28

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    This past summer I encountered NOT ONE mosquito. What does this mean? Our area, the Canadian Niagara region, has a Carolinian climate, hot and very humid in summer. While it is...
    paulie138 paulie138 66-70, M 2 Responses Nov 28

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    I just accidently sucked all the co2 out of a whipcream can and i still have half a pie left, everythings closed....the struggle is real...
    AntonioV AntonioV 46-50, M 5 Responses Nov 28

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    Look within you. The questions are all there. But look without and encounter a world that needs no answers. If you choose to question it you will be led astray, not by the natural...
    paulie138 paulie138 66-70, M Nov 28

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    My so-called "Random Thoughts" really are random. Most of them appear to me in the middle of the night. They might occur after I've smoked a nice fat joint, or be inspired by what...
    paulie138 paulie138 66-70, M Nov 28

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    iwant that someone to talk to again. someone that’ll listen & not judge cause I get more than enough of that already. nothing is ever rainbows & butterflies. a modern fairy tale...
    defiantlittlewolf defiantlittlewolf 22-25, F 3 Responses Nov 28

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    If you have brown hair and brown eyes message me because I will love you ❤️
    littleflowerx littleflowerx 16-17, F Nov 28

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    I have earned masters degree in forensic psychology after I earned my bachelors degree in behavioral science. I am a graduate from major research universities in America.
    oldernudistwifeandmom oldernudistwifeandmom 51-55, F 2 Responses Nov 28

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    I have attended many concerts in my short little life but my groupie experience was pretty fun. It was with a well know dj and his crew. Damn that was a hot and fun night in an...
    PoojaTimberlake PoojaTimberlake 18-21, F 2 Responses Nov 28

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    I sometimes wonder what my life would have been like if I wasn't diagnosed with cancer. If I could still walk and do things normal teens do.
    tiaa26 tiaa26 16-17, F 1 Response Nov 28

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    cant sleep and I have work in 2 hours.... sigh
    Efoile Efoile 22-25, M 2 Responses Nov 28

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    Yesterday (Thanksgiving) sucked. I woke up, having had an usually good night's sleep - which never happens. I felt half way decent so made plans for the day. I live with my...
    Soulsurvivor83 Soulsurvivor83 51-55, F Nov 28

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    Why dose you think she cry?, you think she cried because she want to?, have you ever give her chance to show her true color?. I wouldn't ask you for much, but just one, please make...
    BellerMoo BellerMoo 18-21, F 1 Response Nov 28

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    The clown from Steven King's IT was introducing everyone to their twin/clone. It was weird. I didn't have one. I asked him what it meant. He didn't talk. I flew into a rage and...
    Luckybird Luckybird 26-30, F 3 Responses Nov 28

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    On My Mind I find that you’re on me mind, More often than any other thought. Sometimes I bring you there purposely, To console me, or warm me, or just to make my day a little...
    RavenS45 RavenS45 18-21, F Nov 28

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    My version: 10 Things I Hate About You I hate how you play with my mind and have me lost in space I hate that you fail to escape my thoughts, day in and day out I hate how you...
    RavenS45 RavenS45 18-21, F 1 Response Nov 28

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    I feel like curling into a ball and saying "wake me in September". at least if almost a yr passes me by. some things will have naturally cut away. id wake up different. hey a...
    wickedlilangel69 wickedlilangel69 31-35, F Nov 28

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    So I'm off work until Tuesday and have absolutely no idea what to do with myself. Do I take my dog hiking in the mountains and just escape from technology for the weekend? Do I...
    AreYouDaft25 AreYouDaft25 31-35, M 5 Responses Nov 28

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    I would love to have a family of my own some day.
    kellywedgieknickers kellywedgieknickers 18-21, F Nov 28

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    I'm fairly certain I would be a much happier person if I could just cut my contact with my Mother. As an only child though, I don't have a lot of choice. Someone has to take care...
    whynot13 whynot13 46-50, F 1 Response Nov 28

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    I have this little cousin who is so annoying!
    DarkGamer18 DarkGamer18 13-15, M Nov 28

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