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I Have Hypophosphatasia

A Hypophosphatasia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hypophosphatasia. You're not alone. 7 People

    Hpp I Know There Is Hope.

    I have had hpp for a few years and a friend of mine told me about someone he knows that has Hpp also. He was just diagnosed a few months ago. He put me in contact with him and come to find out he has started a foundation that will be doing some wounderful things to bring awarness...
    adulthpp adulthpp 46-50, M Aug 11, 2012

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    Hpp Facebook Page And Soft Bones Site

    I wasn't able to comment on another post...so I'm trying this route. Too much calcium is BAD for people with HPP. (My son has this disease.) Your doctor is not doing his/her reseearch. Go to the Soft Bones website and HPP facebook page. You will find many others with the disease...
    msbadgerwi msbadgerwi 31-35 1 Response Jun 26, 2012

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    Infantile Hpp

    When I was born, I was diagnosised. I had a craniosynostosis surgery to fix all the sutures of my skull, due to them being fused already. I have not broken any bones, yet. My alkaline phospatates are reading at a 9 at the moment. I live in Texas and have trouble finding any help...
    casewild113 casewild113 31-35, M 2 Responses Jun 25, 2012

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    Hpp Choose Hope

    I too have hypophosphatasia. I was diagnosed at age 53. HPP-Choose Hope helped me. Maybe they can help you.
    Steelwheel Steelwheel 46-50 Nov 12, 2012

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    I Have Adult Hypophosphatasia

    After 2 podiatrists told me I was crazy, the 3rd podiatrist finally sent me to an Endocrinologist who not only did the normal dexa scan (which always came back normal) but did other blood work. He found the needle in the hay stack and diagnosed me in March of 2008.  Since...
    speete35 speete35 41-45 8 Responses Mar 22, 2009

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    Related Experiences

    I've gotten better about it, though. I still get a feeling that I know means I'm going to have nightmares but I don't always stay awake for as long as I pssibly can because of it...
    boklenHolley7 boklenHolley7 18-21, F 29 mins ago

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    Netflix use to suck, but lately they've added some great shows. I watched Transformers Prime, House, FarScape, Star Trek, Alias, Roswell, Star Wars: Clone Wars and now on...
    JadeKnight JadeKnight 26-30, T 29 mins ago

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    Everyone sees me as a stable person. They always think that i'll have all the answers. Everyone depends on me, and I feel like i have no one to go to. I feel like I can't go to...
    1004love 1004love 13-15, F 1 hr ago

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    I just graduated high school. I'm worried I will always regret what I did to be able to say that. First semester of my senior year I was applying to schools but I had been...
    AnnaSpahn AnnaSpahn 18-21, F 1 hr ago

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    I've grown up separately from my Brother and only managed to track him down 3 years ago. We've spent a lot of time on the phone speaking/texting to get to know each other and we've...
    Borealis1 Borealis1 31-35, F 1 hr ago

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    There are some here that have thousands of experiences but when you go to read, it's just because they hit the "Me Too" button. one of these days I might just sit and do that, then...
    MrFoolery MrFoolery 41-45, M 1 hr ago

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    If you can show me you care about me I tend to get emotionally attached to you. If you show me that you trust me and what I have to say. If you trust me to lay your issues out and...
    Raptax231 Raptax231 18-21, M 1 hr ago

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    Learn to accept the differences in people and their opinions, you don't have to change your views and beliefs to do so
    Markyb8376 Markyb8376 36-40, M 1 hr ago

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    I am 24, and never been kissed. Where I am proud of it, because when I'll reunite with my Twin Flame, I'd have with him and he'll be my first and last with whom I share my lips...
    DragonSheep DragonSheep 22-25, F 1 Response 1 hr ago

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    It was a society where we were regularly forced to participate in these trials, kind of like the hunger games, except ours was like a massive complex obstacle course. It wasn't a...
    PinkMellow PinkMellow 18-21, F 1 hr ago

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    I have 7 sisters! We are 28, 25, 22, 18, 16, 15, 14, 13. 6 of us were adopted also! I have 15 cousins also and 13 of them are girls! They are all 31, 30, 27, 27, 26, 25, 25, 25, 24...
    YogaBabeChloe YogaBabeChloe 18-21, F 1 Response 1 hr ago

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    Uncomfortable one last night. We went on our family vacation but everyone was younger (except my little cousins and sisters who were oddly the same age) I was like 11 or 12 again...
    PinkMellow PinkMellow 18-21, F 2 hrs ago

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    My first kiss, I had it forced on me by my cousin. He was 14 and I was 13 when it happened. He also molested me every time I stayed at his house for a week or two during summer. I...
    AndanteModerato AndanteModerato 13-15, M 2 hrs ago

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    I have been eating compulsively all weekend. I ride my bike to school Monday -Thursday, but it doesn't justify my bad eating habits. Also, I would lose weight if I ate better, but...
    Spoticus Spoticus 18-21, F 2 Responses 3 hrs ago

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    if she don't listen to Future we probably don't have one together.
    LOVExSEXxDREAMS LOVExSEXxDREAMS 16-17, M 1 Response 3 hrs ago

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    *bad radio noises and the screen is all but static.* hello? Hello? Anyone out there? Work damn it. *hits the machine* got it. Hello everyone. Been a while since I last reported in...
    cloudycarnage cloudycarnage 16-17, M 3 hrs ago

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    I have messed things up pretty badly. Last weekend I cheated on my husband with my boss. He recently became part owner of the company and so has been working in the office the...
    naomig79 naomig79 31-35, F 1 Response 4 hrs ago

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    I get to swim with these amazing creatures every single day as I work with them. they are so smart and beautiful. I truly believe I have one of the best jobs in the world
    alex2123 alex2123 18-21, T 4 hrs ago

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    Being single, I have endured some very painful house chore consequences. One is pouring an oil on heated frypan from head high causing the oil to burst causing burns on my skin...
    katsuobushi katsuobushi 36-40, M 2 Responses 4 hrs ago

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    I have small lips ._. Curses!!!!
    BrokenInnocence BrokenInnocence 13-15, F 4 hrs ago

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    Our elder project leader asked I and a female young colleague where we wanted to eat for lunch. (We usually asked for his decision.) She said to him I (me) had talked about an...
    katsuobushi katsuobushi 36-40, M 1 Response 4 hrs ago

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    I've been told I have that stereotypical New York accent, which isn't surprising since I'm from New York. But it kinda sucks because of my blunt personality, and it makes me sound...
    CaricatureRenaitre CaricatureRenaitre 70+, M 2 Responses 5 hrs ago

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    Hey it's my birthday today!!! Let's all have a great day!!! :))))
    buscameenelcielo buscameenelcielo 26-30, F 14 Responses 5 hrs ago

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    Looking for an attractive man aged 26-40 to have a discrete relationship with my husband & I.
    PollyAmoreMMF PollyAmoreMMF 31-35, F 3 Responses 6 hrs ago

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    Im so sad thinkinf about my joints. My elbows are inflamed, red and swollen everyday. My knees are also swollen and i feel pain everywhere basically. I've seen doctors and im being...
    HigherCalling HigherCalling 26-30, F 1 Response 6 hrs ago

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    So for the longest time I grew up pulling mainly my lashes. Then it turned into pulling at my brows, too. Now I'm at the point where I've been able to grow more lashes than I've...
    mcoulter94 mcoulter94 18-21, F 7 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 1 Response 8 hrs ago

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    I'm having a terrible day. I've worked 30 of 48 hours, I broke it off with my boyfriend, I have a migraine, I can't sleep, I'm probably going to be fired, and none of my friends...
    DancesWithUnicorns DancesWithUnicorns 22-25, F 2 Responses 8 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 8 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 8 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 8 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 8 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 8 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 8 hrs ago

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    Which Keirsey Personality Type Are You?The RationalsYou're a Rational! Rationals are abstract and objective thinkers that seek knowledge. You strive to learn as many subjects as...
    4BlackForest 4BlackForest 36-40, F 1 Response 8 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 8 hrs ago

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    I kind of do.... I mean first of all, we have only explored less than 1% of Earths oceans, so if you look at that and say mermaids aren't real, then you're just an idiot. Then...
    CloverMermaid CloverMermaid 13-15, F 9 hrs ago