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I Have Hypophosphatasia

A Hypophosphatasia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hypophosphatasia. You're not alone. 7 People

    Infantile Hpp

    When I was born, I was diagnosised. I had a craniosynostosis surgery to fix all the sutures of my skull, due to them being fused already. I have not broken any bones, yet. My alkaline phospatates are reading at a 9 at the moment. I live in Texas and have trouble finding any help...
    casewild113 casewild113 31-35, M 2 Responses Jun 25, 2012

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    Hpp Choose Hope

    I too have hypophosphatasia. I was diagnosed at age 53. HPP-Choose Hope helped me. Maybe they can help you.
    Steelwheel Steelwheel 46-50 Nov 12, 2012

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    Hpp I Know There Is Hope.

    I have had hpp for a few years and a friend of mine told me about someone he knows that has Hpp also. He was just diagnosed a few months ago. He put me in contact with him and come to find out he has started a foundation that will be doing some wounderful things to bring awarness...
    adulthpp adulthpp 46-50, M Aug 11, 2012

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    Hpp Facebook Page And Soft Bones Site

    I wasn't able to comment on another post...so I'm trying this route. Too much calcium is BAD for people with HPP. (My son has this disease.) Your doctor is not doing his/her reseearch. Go to the Soft Bones website and HPP facebook page. You will find many others with the disease...
    msbadgerwi msbadgerwi 31-35 1 Response Jun 26, 2012

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    I Have Adult Hypophosphatasia

    After 2 podiatrists told me I was crazy, the 3rd podiatrist finally sent me to an Endocrinologist who not only did the normal dexa scan (which always came back normal) but did other blood work. He found the needle in the hay stack and diagnosed me in March of 2008.  Since...
    speete35 speete35 41-45 8 Responses Mar 22, 2009

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    Related Experiences

    hey. I'm Sophia.: my parents are strict. and they expect me to be elegant and graceful, have high EQ and IQ. I have to be a good role model to my sister and I cannot go back home...
    SophiaKeil SophiaKeil 13-15, F 1 hr ago

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    My experience is shorter than 25 characters but I cannot post it If it's shorter than 25 characters so I have no experience :(
    xxlilfreakxx xxlilfreakxx 16-17, F 1 hr ago

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    For as long as I can remember I've been so sad, and have dreading every day and wishing I would just disappear. Then one day about 2 years ago I decided to kill myself, I was about...
    pinapls pinapls 13-15, F 1 hr ago

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    I don't really feel like anyone else seems to realize just how severely either. I have no local friends. The others are much more introverted and able to deal with this.
    ManifestoOfThePhoenix ManifestoOfThePhoenix 26-30, M 1 hr ago

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    At the beginning of January, my friend's mother died from a painful cancer. She was in terrible pain for months, and it was no surprise to me when she passed. I stayed with my...
    metagross metagross 18-21, M 35 mins ago

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    I have always had an addictive personality. However, I think in some cases it's better described as "obsessive" rather than addictive. I'm either all in, or not at all. It's my...
    bambino420 bambino420 18-21, F 17 mins ago

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    I don't really have many friends, but even if an acquaintance I felt some attraction for asked me if I would be down to have sex, I wouldn't hesitate. I know a few of my friends...
    esthersaccount esthersaccount 18-21, F Mar 18

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    How could you fake your feelings so well? Make me believe you were different from the rest? Let me show you off to all my friends as if you were the greatest bf out there? Buy me...
    gkaren gkaren 18-21, F Mar 18

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    I am back after a long time. :) I have been through a lot, and I learnt many things since I was gone.
    Disqualify Disqualify 16-17, M Mar 18

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    An experience I can definitely relate too. It's seems all my life I've felt like I had friends but quickly realize that if I don't call, text, or make plans I won't hear from them...
    tiara29 tiara29 26-30, F 1 Response Mar 18

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    I have done a lot of mistakes in my past. Actions that I thought were the most logical at that time... I just wish I could tell the people I hurt that I am sorry for what I did...
    Disqualify Disqualify 16-17, M Mar 18

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    My mom has been sober for some time now, but I have the same anxious feeling after she comes back from work or the store or when she sleeps longer than usual, like I brave myself...
    justanotherbrokengirl justanotherbrokengirl 16-17, F Mar 18

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    I know that not all of the bits and pieces of anxiety are there, which is why I'm doubtful. I can have a conversation with people online or offline and do well. My thoughts on me...
    Niran3 Niran3 22-25, M Mar 18

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    I truly do have no friends. It is really sad because these people I used to call my 'friends' said they would be there for me, that we are the best of friends and that anything I...
    XxMisguidedxGhostxX XxMisguidedxGhostxX 13-15, F 11 Responses Mar 18

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    I am having family troubles . For the first time in my life I have stood up to my family. My younger sister is envious of me and talks badly of people behind there backs including...
    ozgirl77 ozgirl77 31-35, F 4 Responses Mar 18

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    I used to only get them when I stayed away from home. Then I started getting them on exams, assemblies and going out for a meal. Then I started getting them in lessons. Yesterday I...
    thequietone0307 thequietone0307 18-21, F 4 Responses Mar 18

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    Sometimes when I'm extremely tired I'll just drift mentally, but physically I'm awake. I'll be sitting next to a person and suddenly start talking about things that only I can see...
    LeChatCurieux LeChatCurieux 18-21, F Mar 18

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    I used to wake up terrified every morning wondering if my son had died in his sleep. I would lay in bed with my heart slowly pounding until I heard him whine and then I would...
    EarthboundMisfiti EarthboundMisfiti 22-25, F Mar 18

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    I started noticing tiny bumps all over my body sometime in 2010, I thought I had chicken box. In fact the doctor confirmed it, however It all cleared up after a week. About six...
    banksojut banksojut 36-40, M 1 Response Mar 18

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    I have scars, but not fresh ones. I'm not ashamed of what I did in the past because it only made me stronger as a person. I hate when people stereotype the ones with scars on their...
    bemyforeverlove97 bemyforeverlove97 16-17, F 1 Response Mar 18

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    I used to have a cute innie belly button. Then, one day, I went shopping as Macy's to buy a dress shirt. It was a hot day. When I got home I tossed my dress shirt on the bed (it...
    Phantasmnut Phantasmnut 41-45, M Mar 18

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    I'm alone at school. I mean, I have "friends" that I sit with on white days but on blue days, I have no one. I sit in this little room part of the art room and its just...
    Butterflyyana Butterflyyana 16-17, F 3 Responses Mar 18

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    my dad is trying to buy me, he left me because was afraid to have a daughter and now that I grew up and he was just there sometimes is trying to fix all that with money and want me...
    gmah26 gmah26 22-25, F 3 Responses Mar 18

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    this is going back to when I was an apprentice comms officer I was 17 just starting out serving on an american cargo ship under a very handsome young captain. my post was on the...
    TheShipscat22 TheShipscat22 22-25, F 1 Response Mar 18

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    I wanted to write letters to my friend in the army but I don't want my family to find out that I'm writing letters. If I send off letters, my friend going to write a letter back to...
    lorrena19 lorrena19 18-21, F 3 Responses Mar 18

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    I've been in love for 10 years... With an unreachable angel. When I realized my true love orientation I really felt weird. Asexual panromantic and poly romantic. I suffer this...
    Becca92mx Becca92mx 22-25, T Mar 18

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    I know that this is going to sound very cheesy but i need to say it. I have a crush on this guy at my school and he is 2 years older than me but only a year in front of me. (I'm...
    standandscream standandscream 18-21, F 2 Responses Mar 18

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    I would have heard of Mike Trainor in the 2010 episode at "The Smoking Gun Presents: World's Dumbest Performers 3" with the meme "Believe That!" with Roman Reigns from WWE.
    JMDGamotia JMDGamotia 18-21, M 1 Response Mar 18

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    Tons of people have been asking me lately since I have gay parents do they believe in structure in my life or disciplining me as their child! Well duh! Just because my parents are...
    Ashton9 Ashton9 16-17, F 2 Responses Mar 18

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    Tons of people have been asking me lately since I have gay parents do they believe in structure in my life or disciplining me as their child! Well duh! Just because my parents are...
    Ashton9 Ashton9 16-17, F 5 Responses Mar 18

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    I have a very bad phobia about being tickled. So bad I am actually being treated for it.
    AnnaB01 AnnaB01 13-15, F 6 Responses Mar 18

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    I have liked the taste of the ramen of the shop near the office in Tokyo. It was a minor shop that only a few around me probably knew. I liked their salty soup with thick chicken...
    katsuobushi katsuobushi 36-40, M 1 Response Mar 18

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    I have done this a few times. My last job I worked nights and weekends. I would get bored. When you get bored you know what happens. They say an idle mind is the devils work shop...
    kmac72 kmac72 41-45, M 3 Responses Mar 18

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    Well, hi. First of all I think this is my I dunno could be first or second that I share my "life". So, my mom has passed away when I was 16, it was on March 2014. It was sooooooo...
    monarch97 monarch97 16-17, F Mar 18

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    Have you ever had athlete's foot? well, imagine something that hurts just as much, except it pops up all over your body. especially where the sun don't shine. and worst of all, it...
    hopelesslyalone7654321 hopelesslyalone7654321 18-21, F 1 Response Mar 18

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    I have my Masters Degree in Oceanography fro F.I.T. I was an incredible experience working in and studying the ocean.
    melbeacher melbeacher 46-50, M 4 Responses Mar 18

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    My initial reaction to this site was "you mean everyone doesn't, but I know better. As one who has cross dressed since I was 5, hose had always been a staple. Only in the hottest...