Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Hypophosphatasia

A Hypophosphatasia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hypophosphatasia. You're not alone. 7 People

    Hpp I Know There Is Hope.

    I have had hpp for a few years and a friend of mine told me about someone he knows that has Hpp also. He was just diagnosed a few months ago. He put me in contact with him and come to find out he has started a foundation that will be doing some wounderful things to bring awarness...
    adulthpp adulthpp 46-50, M Aug 11, 2012

    Your Response

    Cancel

    Hpp Choose Hope

    I too have hypophosphatasia. I was diagnosed at age 53. HPP-Choose Hope helped me. Maybe they can help you.
    Steelwheel Steelwheel 46-50 Nov 12, 2012

    Your Response

    Cancel

    Infantile Hpp

    When I was born, I was diagnosised. I had a craniosynostosis surgery to fix all the sutures of my skull, due to them being fused already. I have not broken any bones, yet. My alkaline phospatates are reading at a 9 at the moment. I live in Texas and have trouble finding any help...
    casewild113 casewild113 31-35, M 2 Responses Jun 25, 2012

    Your Response

    Cancel

    Hpp Facebook Page And Soft Bones Site

    I wasn't able to comment on another post...so I'm trying this route. Too much calcium is BAD for people with HPP. (My son has this disease.) Your doctor is not doing his/her reseearch. Go to the Soft Bones website and HPP facebook page. You will find many others with the disease...
    msbadgerwi msbadgerwi 31-35 1 Response Jun 26, 2012

    Your Response

    Cancel

    I Have Adult Hypophosphatasia

    After 2 podiatrists told me I was crazy, the 3rd podiatrist finally sent me to an Endocrinologist who not only did the normal dexa scan (which always came back normal) but did other blood work. He found the needle in the hay stack and diagnosed me in March of 2008.  Since...
    speete35 speete35 41-45 8 Responses Mar 22, 2009

    Your Response

    Cancel

    Related Experiences

    Good manners make a full man. They are very essential for human civilization. Without good manners, man is like a purse without money, though it is very attractive from outside...
    malak87 malak87 26-30, M 57 mins ago

    Your Response

    Cancel
    I've had insomnia for a few years now. Usually would get to bed anywhere around midnight - 3am. But the past several months it's been worse then usual. I'm now up till 6-10 am...
    Scoodaloop Scoodaloop 18-21, F 2 Responses 1 hr ago

    Your Response

    Cancel
    So I just got married and moved to a new state all within a month. It was a lot of change for me and still is. I don't know anyone besides my husband and his friend here. It's been...
    ConflictedChickThoughts ConflictedChickThoughts 18-21, F 1 hr ago

    Your Response

    Cancel
    I am so upset. Few hours ago she switched to "worship mode". I went to bed I couldn't take her constantly ignoring me. Wake up hours later and she hasn't checked on me. Say hello...
    1lonelydaisy 1lonelydaisy 41-45 1 Response 57 mins ago

    Your Response

    Cancel
    I have a nicely sized group of friends I see regularly at school. There are five girls and four guys. We are relatively all good friends with each other. Last night, I dreamt...
    PorcelainMaiden PorcelainMaiden 18-21, F 21 mins ago

    Your Response

    Cancel
    I always have dreams of getting hit and heavy with an ex but whenever he's ready to enter me I wake up....... Ughhhhh
    warmwetdeep warmwetdeep 18-21, F 2 Responses 2 hrs ago

    Your Response

    Cancel
    I really don't like tumblr actually >.> I only use it because -Im not attractive enough or interesting enough for youtube -too many old people on facebook -**** twitter -instagram...
    CanYouHearTheSilence CanYouHearTheSilence 13-15, T 2 hrs ago

    Your Response

    Cancel
    Anyone got a tattoo inbox if have
    VioletSalmon VioletSalmon 18-21, F 23 mins ago

    Your Response

    Cancel
    I wish I owned a ****** h3 The car is freaking cool... My sister husband have one. When I sit inside I feel like a big women. Big women with money..
    lorrena19 lorrena19 18-21, F 23 mins ago

    Your Response

    Cancel
    The best way to not get a broken heart, is to pretend that you don't have a heart.
    serenapaul serenapaul 13-15, F 1 Response 12 mins ago

    Your Response

    Cancel
    I have a cold and I can't breath through my nose so when I sleep I wake up every hour! My nose runs and I drool! :( it sucks
    blondie1113 blondie1113 13-15, F Feb 27

    Your Response

    Cancel
    Can you see something good in every situation?"By our words we are justified. The more we mention troubles and worries, the more we have; the more we focus on our small joys and...
    Injoy1767 Injoy1767 46-50, F 2 Responses Feb 27

    Your Response

    Cancel
    I read online about 7 common wounds of daughters with unloving mothers. A few of them really stood out to me. 1. Lack of confidence This has always been an issue and I believe is...
    imagine524 imagine524 18-21, F 2 Responses Feb 27

    Your Response

    Cancel
    ...but if you have a giant heart maybe you can cover the gaping wounds.
    4BlackForest 4BlackForest 36-40, F 1 Response Feb 27

    Your Response

    Cancel
    I havent seen him for a couple months now, and even though I know he's working I keep dreaming about him having another woman/ a second life and I worry that he may be cheating on...
    Streptococcus Streptococcus 18-21, F 1 Response Feb 27

    Your Response

    Cancel
    She's a pregnant 1 year old chihuahua that showed up on my doorstep. I can't keep her because I already have 2 & that's all I'm allowed to have according to my city & I don't know...
    ncon08 ncon08 18-21, F 9 Responses Feb 27

    Your Response

    Cancel
    On my second pair of earphones in about just over a month which lasted only a few days. It breaks super quick in one ear. One ear is much quieter and it disrupts me sleep. I am...
    1lonelydaisy 1lonelydaisy 41-45 3 Responses Feb 27

    Your Response

    Cancel
    I have been shooting various weapons for 20 years now. My father is a local law enforcement officer and took us kids out to shoot on weekends at various locations. I have shot...
    brunettewifeandmom brunettewifeandmom 31-35, F 1 Response Feb 27

    Your Response

    Cancel
    So many years of my life I have been so suicidal. Bravest thing I did was take so many pills to kill myself (sort of...) which was a mistake and I suffered the after after effects...
    1lonelydaisy 1lonelydaisy 41-45 2 Responses Feb 27

    Your Response

    Cancel
    Idk wtf. I only have it in my room. Nowhere else in the house. I sneeze so much in my room it ruins my sleep and my "me" time. I also have a sneeze attack in my english room only...
    RainbowPastel RainbowPastel 16-17, F Feb 27

    Your Response

    Cancel
    Chrohn's is the worst!! These have been the roughest 2 years of my life so far. Words can not explain my frustration with this. All I want to know is what the hell can I eat...
    beYOUtifulxo beYOUtifulxo 26-30, F 5 Responses Feb 27

    Your Response

    Cancel
    I shake in my sleep a lot as if I'm having a fit, my boyfriend always has to wake me up. I have months of the same dream until it ends up becoming true. does anyone else get this?
    livelaughlove0987 livelaughlove0987 18-21, F 1 Response Feb 27

    Your Response

    Cancel
    Offically giving up on my anixtey and **** trying to work through it. It's already ****** me up so what's the point? Not even my own family ask me to go out with them because im...
    labyrinthandinfinity labyrinthandinfinity 18-21, F Feb 27

    Your Response

    Cancel
    I find it more and more difficult to deal with everyday life. The pain keeps me up, My legs feel as though someone is stabbing them, My back aches so terrilbe, lost feeling in my...
    Alli6372 Alli6372 31-35, F Feb 27

    Your Response

    Cancel
    Yesternight we were on a family night out. I was texting and stuff and my best friend suddenly pissed me off,via text.I'm super sensitive,so I started crying ,thank God there was...
    jollie90 jollie90 22-25, F Feb 27

    Your Response

    Cancel
    An Antartian boy and his father were visiting a mall. They were amazed by almost everything they saw, but especially by two shiny, silver walls that could move apart and back...
    timothyc31 timothyc31 41-45, M 3 Responses Feb 27

    Your Response

    Cancel
    An Antartian named Babbette finds herself in dire trouble. Her business has gone bust and she's in serious financial trouble. She's so desperate that she decides to ask God for...
    timothyc31 timothyc31 41-45, M Feb 27

    Your Response

    Cancel
    I wonder when did the meaning of friendship change. Several years ago, the word "friend"seems to have a relevantly deeper meaning than it has today. These days, people use the word...
    icecoldzt icecoldzt 26-30 4 Responses Feb 27

    Your Response

    Cancel
    I was told I had stressing holds in my spine causing my agonizing migraines... she was my first thought... 12 years of memories are hard to forget. I'm in love with this girl but...
    Ikaru Ikaru 18-21 Feb 27

    Your Response

    Cancel
    Basic biology - if you make your body alkaline enough to kill cancer cells you will have killed yourself. Alkaline diets to cure cancer are a waste of money and precious time!
    SolitaryElf SolitaryElf 41-45, F 2 Responses Feb 27

    Your Response

    Cancel
    Today i learned that the person you expect who will most understand will be the first to drag you down and spit on you... I have always always carried my problems alone mainly...
    dearestL dearestL 22-25 1 Response Feb 27

    Your Response

    Cancel
    Hi I am a 20 year old girl in the uk. I was diagnosed with mosaic turners when I was born but I've never even thought about the condition that I have, it's never really effected me...
    MissLisac MissLisac 18-21, F 3 Responses Feb 27

    Your Response

    Cancel
    Hello ,i am Ann joe from United state I live here in south California ,i am 46 years old,i saw a comment posted on health remedy by Christie bolt from Texas , about a doctor she...
    ann203 ann203 46-50, F Feb 27

    Your Response

    Cancel
    I want to have a girlfriend because I hate to be single and I can't find any I don't care if she was from another country
    mohammedosama200 mohammedosama200 13-15, M Feb 27

    Your Response

    Cancel
    The Mirror of Life Life is but a mirror, Looking back at us. Everything we do each day, Should lead us to impress. And sometimes when we need, To see life differently. We have...
    MilweePetite MilweePetite 22-25, F Feb 27

    Your Response

    Cancel
    I had a crazy dream last night, a company I interviewed for (wasnt for me) ..they wanted to see me at this Texas bbq...so I reluctantly went and they decided to have a bbq on a...
    jbm1984 jbm1984 31-35, F 2 Responses Feb 27

    Your Response

    Cancel