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I Have Hypophosphatasia

A Hypophosphatasia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hypophosphatasia. You're not alone. 7 People

    I Have Adult Hypophosphatasia

    After 2 podiatrists told me I was crazy, the 3rd podiatrist finally sent me to an Endocrinologist who not only did the normal dexa scan (which always came back normal) but did other blood work. He found the needle in the hay stack and diagnosed me in March of 2008.  Since...
    speete35 speete35 41-45 8 Responses Mar 22, 2009

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    Hpp Choose Hope

    I too have hypophosphatasia. I was diagnosed at age 53. HPP-Choose Hope helped me. Maybe they can help you.
    Steelwheel Steelwheel 46-50 Nov 12, 2012

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    Hpp I Know There Is Hope.

    I have had hpp for a few years and a friend of mine told me about someone he knows that has Hpp also. He was just diagnosed a few months ago. He put me in contact with him and come to find out he has started a foundation that will be doing some wounderful things to bring awarness...
    adulthpp adulthpp 46-50, M Aug 11, 2012

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    Hpp Facebook Page And Soft Bones Site

    I wasn't able to comment on another post...so I'm trying this route. Too much calcium is BAD for people with HPP. (My son has this disease.) Your doctor is not doing his/her reseearch. Go to the Soft Bones website and HPP facebook page. You will find many others with the disease...
    msbadgerwi msbadgerwi 31-35 1 Response Jun 26, 2012

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    Infantile Hpp

    When I was born, I was diagnosised. I had a craniosynostosis surgery to fix all the sutures of my skull, due to them being fused already. I have not broken any bones, yet. My alkaline phospatates are reading at a 9 at the moment. I live in Texas and have trouble finding any help...
    casewild113 casewild113 31-35, M 2 Responses Jun 25, 2012

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    Related Experiences

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    They gray skies correctly illustrates the somber mood I am in. The brief and random thunder describes a sadness within. Light drizzle falls upon me as I take leisurely stroll in...
    FightingPhoenix FightingPhoenix 46-50, M 1 Response 2 hrs ago

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    I think everyone is entitled to beliefs and opinions. Obviously we all have them and I think everyone has the right to be heard as long as it is said in a non demeaning way and as...
    stargirl58 stargirl58 26-30, F 1 Response 1 hr ago

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    I'm 25 years old, female and Ive been ruminating as long as I can remember. Maybe it developed when I was very young? As far as I know, Ive always had it and Ive always just...
    Cintilatingsynchrony Cintilatingsynchrony 22-25, F 2 hrs ago

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    Apologizing doesn't have to be admittance of guilt, or regret. If you've done something that hurt someone you care about, you can apologize just to let them know you care. There's...
    LIVISHA LIVISHA 18-21, F 1 Response 1 hr ago

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    It's like a jungle in there. it's not my fault though! i JUST moved into a new place and i dnt really have anywhere to put my stuff so its scattered. and also when i cnt find...
    Muffin19 Muffin19 18-21, F 2 Responses May 2

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    Any cool people still here? i also have an instagram. my posts are movies,music,books,birds,selfies... i don't need followers but friends. if you are same,please let me know.
    deleted deleted 26-30 1 Response May 2

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    You miss a person and miss talking to him. You wake up, call him, hoping to start your day with a nice conversation. But that conversation did not go as you had hoped. He did not...
    LoneDolll LoneDolll 26-30, F 4 Responses May 2

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    "Giving up" and "Letting go" carry the same meaning. However, giving up sounds more negative compared to letting go. That's just how powerful words can be, that's why we have to be...
    deleted deleted 26-30 1 Response May 2

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    Thankfully I haven't broken any bones yet haha. I have a messed up knee from an injury, sucks.
    deleted deleted 26-30 May 2

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    My night time anxiety can be the worse sometimes... I hate it! I have such high anxiety tonight, and I don't exactly know why. To the point where all of the sudden I have trouble...
    PsychGirl94 PsychGirl94 18-21, F 5 Responses May 2

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    I've had a miscarriage and am no longer with my ex husband. after that having a baby is all I want regardless if I'm with someone or not. I have a bf... we don't use protection, he...
    LUzunov LUzunov 18-21, F 8 Responses May 2

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    I don't have time to clean it. I have ADD, and between school work, stress, my job, and my social life, I just don't have time. Also doesn't help that I'm an alcoholic
    BowtiesRcool BowtiesRcool 22-25, M May 2

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    Well, when I say friend, I mean my grandmom. but she was the first person who died who was really close to me. and I'm old enough to have it effect me more. My grandpa died when I...
    BowtiesRcool BowtiesRcool 22-25, M May 2

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    Always-have had this vision.....yes-I chop off a ladies hair-am female-however, then allow, the beautiful lady-to cut/chop off my hair-in whatever way she likes!!!
    deleted deleted 26-30 1 Response May 2

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    I can make up my mind, have it figured out and the change my mind again and again and again. I never settle and it makes me annoyed. I just can't figure out what is best. It's over...
    1lonelydaisy 1lonelydaisy 41-45 1 Response May 2

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    I've noticed lately that lol really means I have nothing else to say. LOLOLOL
    RedHwaiting RedHwaiting 18-21, F 5 Responses May 2

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    This morning I got up feeling really nauseous, so I called to report myself sick, because I already threw up 4 times on an empty stummach. She told me to come over and just try...
    mydailylifeasme mydailylifeasme 18-21, F 2 Responses May 2

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    i have had my faith in people restored by my professor in college. He started teaching my class three years ago. I wait for his lecture from one week to the other. he is the main...
    candles700 candles700 22-25, F May 2

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    9 years of friendship and still counting. Our friendship is exactly what I imagine friendships should be like. It's the simplest things that make me realize how much I love her n...
    candles700 candles700 22-25, F 1 Response May 2

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    So I'm looking for advice or something along the lines of help.... As many of you know I'm a person who has had his fair share of experiences, so I can deal with many things, but...
    Arizv11 Arizv11 22-25, M May 2

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    I've known my best friend since we were 7 years old, now we're 18 and we have spent most of our life together. I had my girlfriends and he had his, but recently I've been having...
    LipieCastro LipieCastro 18-21, M 1 Response May 2

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    Too all of the self harmers, suicidals, depressionists etc, here are a few motivational and inspiring quotes that I hope will make you feel better... Pain is only temporary...
    deleted deleted 26-30 May 2

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    EP Nerd Team, Get Your A'ss To WorkNow the EP nerd team needs to improve their filters. I'd like them to keep filters that would enable the users to bl'ock people of any age range...
    ThenNowForever ThenNowForever 22-25 1 Response May 2

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    I love my parents with all honesty. I really do. Whenever I want something, it has to be exactly my dads way. Then, my mom pushes me to do certain things that I'm not comfortable...
    Hippodippo257 Hippodippo257 16-17, F May 2

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    :-) And now thanks to my brother and my aunt I have somewhere comfortable to sit. It arrived today. I no longer feel like I am squatting. I have somewhere I can bring a friend...
    grommit3 grommit3 36-40, F 1 Response May 2

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    There are a billion pins, knifes and pills in my house that are easy to get reach of, but I'm scared. I want to kill myself, I want to end this life but I'm scared of dying. But I...
    khadij khadij 13-15, F 4 Responses May 2

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    I know some of you like reading some of my "off the wall" rants or stories but just haven't been on here in a while. Life has really gotten me down. I'm not the type to sulk or...
    Josh1978 Josh1978 36-40, M 1 Response May 2

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    Yep, hyperthyroid for 15 years now. It's confusing sometimes, because I have some very hypothyroid symptoms. Fatigue, cold intolerance and weight gain, but TSH is consistently low...
    wh15hyperT wh15hyperT 61-65, F May 2

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    I have been single since 23. Now I m turning 25 ... I had a few hookups lately. Met some guys who are hot and with outstanding professional credentials. There's one who is an...
    thousandcuts thousandcuts 22-25, F 1 Response May 2

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    This is a huge fantasy of mine. I used to have a fwb who would promise he would pull out and then he wouldn't. I'm not on the pill, so I eventually stopped seeing him because I don...
    blazerfan blazerfan 36-40, F 9 Responses May 2

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    I've done this with 3 men so far, and I wish I had a regular, daily partner to do this with. (Although maybe it's been hotter because it's been with strangers?) It's been...
    blazerfan blazerfan 36-40, F 10 Responses May 2

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    I've been diagnosed since I was 17 so just over a year ago yay I have a tendency to make social blunders and meltdown at the smallest things I am also a somewhat rare female Aspie
    Robinwing Robinwing 13-15 2 Responses May 2

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    Last night I was driving on a two-lane Texas road, minding my own business, and talking to an EP friend on the phone. Then suddenly there was this cow, this huge black cow...
    lostit77 lostit77 46-50, F 8 Responses May 2

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    I have done this many times. As a woman, you have to be incredibly careful, and I've stopped doing it as frequently because I wonder if my luck will run out at some point. I'll...
    blazerfan blazerfan 36-40, F 8 Responses May 2

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    I have a form of autism was I tested whan I was 18 my from is called pdd-NOS but that does not mean you should treat me differently
    animafan1 animafan1 22-25, F 1 Response May 2

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