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I Have Hypophosphatasia

A Hypophosphatasia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hypophosphatasia. You're not alone. 7 People

    Hpp I Know There Is Hope.

    I have had hpp for a few years and a friend of mine told me about someone he knows that has Hpp also. He was just diagnosed a few months ago. He put me in contact with him and come to find out he has started a foundation that will be doing some wounderful things to bring awarness...
    adulthpp adulthpp 46-50, M Aug 11, 2012

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    I Have Adult Hypophosphatasia

    After 2 podiatrists told me I was crazy, the 3rd podiatrist finally sent me to an Endocrinologist who not only did the normal dexa scan (which always came back normal) but did other blood work. He found the needle in the hay stack and diagnosed me in March of 2008.  Since...
    speete35 speete35 41-45 8 Responses Mar 22, 2009

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    Hpp Choose Hope

    I too have hypophosphatasia. I was diagnosed at age 53. HPP-Choose Hope helped me. Maybe they can help you.
    Steelwheel Steelwheel 46-50 Nov 12, 2012

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    Hpp Facebook Page And Soft Bones Site

    I wasn't able to comment on another post...so I'm trying this route. Too much calcium is BAD for people with HPP. (My son has this disease.) Your doctor is not doing his/her reseearch. Go to the Soft Bones website and HPP facebook page. You will find many others with the disease...
    msbadgerwi msbadgerwi 31-35 1 Response Jun 26, 2012

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    Infantile Hpp

    When I was born, I was diagnosised. I had a craniosynostosis surgery to fix all the sutures of my skull, due to them being fused already. I have not broken any bones, yet. My alkaline phospatates are reading at a 9 at the moment. I live in Texas and have trouble finding any help...
    casewild113 casewild113 31-35, M 2 Responses Jun 25, 2012

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    I always hear it too... Wanna Kik? Do you have Kik? No, I don't and I'm not even sure what KIK or kikster means, but I think it's a program when you have an android phone (or other...
    DarkwingGoslyn DarkwingGoslyn 31-35 9 hrs ago

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    I feel like parents should stop being over protective and stop sheltering their kids so much. I didn't come from an overprotective family - and neither did half of my friends...
    sugarcakes143 sugarcakes143 18-21, F 7 Responses 7 hrs ago

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    i have recently been diagnosed with pcos but i know very little it other than my doctor said its the rare kind and that it is what has been causing my irregular periods which range...
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    I have multiple scars for multiple reasons. I have a scar on the top of my head from when I needed stitches after I fell and cracked my head open when I was a kid. I have 3 scars...
    AgentSickler AgentSickler 18-21, M 32 mins ago

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    So if instead your goal is to get into international exclusive banking or just about any other shape of international business banking, generally you want to would like to do is...
    Darronbanksso0 Darronbanksso0 31-35, M 1 Response 8 hrs ago

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    I HAVE MOVED A LOT OF TIMES IN MY LIFE, 11 TIMES. WHEN I WAS 12 I ALLREADY MOVED 7 TIMES AND I HAD MANY DIFFERENT EXPEIRENCESS, I WAS BEING BULLIED WHEN WE MOVED TO LONDON... I WAS...
    R5rocks4ever R5rocks4ever 13-15, F 1 Response 4 hrs ago

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    my boss is very upset with me today, cus i arrived at 9:30. always have problem getting up early in the morning. feel so tired, as if the whole previous night when i should have...
    Mangostrawberrybanana Mangostrawberrybanana 31-35, F 4 hrs ago

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    I'm not sure if this is the right place since I am not the girl but rather have a story about one. Sophomore year of 2008 I made a dear friend. She would flow with joy and we'd...
    icingh icingh 22-25, M 1 hr ago

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    i have a mental disorder and i found out when it was too late. i dont know if i am just an idiot ir have a mental disorder.
    unlovednbroken unlovednbroken 18-21, F 1 Response 14 hrs ago

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    I'm sorry, but I have to make this quick. Later, perhaps I shall add more. I have been in a loving relationship of two years. However, it all went downhill. I am writing to you a...
    AFool422 AFool422 16-17 1 Response 14 hrs ago

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    I enjoy reading. A lot. And I have this tendency to fall in love with the fictional character in the books I'm reading. Like literally fall in love with that character. Obsessed...
    oliviapalm oliviapalm 18-21, F 13 hrs ago

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    Once again I find myself as an inpatient at a psych ward. I have been under a lot of stress the last two weeks as there are projects to finish and exams coming up soon. I had been...
    lisa7 lisa7 31-35, F 1 Response 13 hrs ago

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    I have never been in love iv dated had 2 relationships it didn't work out I liked them but I was never in love with them I guess I get bored easily I'm not normal when people talk...
    Candlelight01 Candlelight01 22-25, F 1 Response 12 hrs ago

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    I'm not sure how much people will actually read this because it's going to be really long but basically I've struggled with depression my whole life . I'm not looking for attention...
    AlissaCupcakes AlissaCupcakes 16-17, F 2 Responses 12 hrs ago

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    I'm not sure how much people will actually read this because it's going to be really long but basically I've struggled with depression my whole life . I'm not looking for attention...
    AlissaCupcakes AlissaCupcakes 16-17, F 1 Response 12 hrs ago

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    "If love alone could have saved you, you never would have died..." I just needed to get that out. For it to be heard. I read it in a poem last night and I've been bawling all...
    GoddessThemis GoddessThemis 22-25, F 1 Response 8 hrs ago

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    sometimes I wonder if there's something wrong with me or if I'm just flat out choosing partners that are not going to make it to that point. I'm going to be 34 on next Sunday, and...
    FoxyNC FoxyNC 31-35, F 3 Responses 7 hrs ago

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    Yeah I have a secret, well not any more after I say it but yeah I wear girls lingerie, I no longer feel weird saying that or am ashamed of it, I love wearing it all from cami...
    Verix Verix 18-21, M 6 hrs ago

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    I have had spastic Cerebral Palsy since I was born. I am now 43 years old. I live in uk. I have had different experiences throughout my life good and bad but try and stay positive...
    GsyBTBBoots GsyBTBBoots 41-45, M 5 hrs ago

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    Hello everyone. I used to go by another name on EP but I had to get rid of that account and start this one. In short I married the wrong woman. I should have stayed with the one...
    Burai Burai 31-35, M 1 Response 3 hrs ago

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    i dont know but i just dont think rght. i do stupid things. i believe things that arent really happening. i have always been an idiot in my thinking i dont know why. is it because...
    unlovednbroken unlovednbroken 18-21, F 3 Responses 15 hrs ago

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    I use to have you, I use be glowing with hope for everything and I use to feel refresh having able to talk to u but now everything seems impossible because u will not turn back and...
    minniekoala minniekoala 22-25, F 14 hrs ago

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    To be honest I have more than just two celebrity crushes. You guys, Daniel Sharman. He's sooo beautiful!! His eyebrow and his half smile!!
    xlyricbelle xlyricbelle 18-21, F 14 hrs ago

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    Yes i have but try not to bring it out as much... :-) Only share with same minded people :-)
    openmindedd13 openmindedd13 31-35, M 3 Responses 14 hrs ago

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    When will I ever sleep again? Thinking about taking pills but have bad side effects. I don't know what to do and how to cope up with this.
    MaryJay712 MaryJay712 16-17, F 3 Responses 13 hrs ago

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    Fattybumbitch You're a fraud. Blocked just because I asked for a 'now' pic. After you sent an old (probably fake) pic. What a waste of my time...hopefully others won't be as dumb...
    blackinc blackinc 36-40, M 1 Response 12 hrs ago

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    I have yah oo account openmindedd13 . If what to talk just say hi.
    openmindedd13 openmindedd13 31-35, M 12 hrs ago

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    Those adventures which I have to sort out when I awaken are either the most exhilarating or the most terrifying dreams. Sometimes I'll wonder about a dream character's well-being...
    DiaLuz DiaLuz 22-25, F 1 Response 12 hrs ago

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    I have a sun on my upper back. I designed it and got it done when I graduated nursing school. I'd like to get another to honor my dads memory. A Luna Moth. It would look perfect on...
    sunnygrlamy sunnygrlamy 36-40, F 12 hrs ago

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    Many times and for many reasons. Most I don't know. It hurts my feelings and I know it shouldn't. I can understand my exes blocking me. They simply don't want me in their lives...
    DarkwingGoslyn DarkwingGoslyn 31-35 2 Responses 11 hrs ago

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    I seriously don't know why I bother with people. It just seems every time I help someone it backfires to make me feel like crap. About 15 minutes ago I saw a paraplegic man in a...
    Gemz2411 Gemz2411 18-21, F 2 Responses 11 hrs ago

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    Where in the human rights book does it state u have to talk to strangers?
    LikeAPrayer LikeAPrayer 18-21, F 3 Responses 10 hrs ago

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    My future's so bright I have to wear shades
    throwawaychild throwawaychild 46-50, M 4 Responses 8 hrs ago

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    I want to make a youtube channel and just have fun and be able to talk to people. walk around and blog, or talk about the korean foods i love or talk bout clothes or juts be fun...
    emiri77 emiri77 18-21, F 1 Response 8 hrs ago

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    Mostly my cousins and friends have seen me
    skinny15m skinny15m 13-15, M 4 Responses 8 hrs ago

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    I am alone at a crossroads I'm not at home in my own home And I've tried and tried To say what's on my mind You should have known Now I'm done believing you You don't know what I'm...
    Becky18 Becky18 18-21, F 7 hrs ago

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    I'm married, 2 gorgeous and very little children. Last year I had an affair which ended 2 months ago after 14 months. We got very close and started to plan a life together, but...
    michaelsotherwoman michaelsotherwoman 36-40, F 9 Responses 7 hrs ago

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    She is in another office. We are both married with children but we had this weird sexual connection. Never acted on it and have considered avoiding her at company functions...
    sunujing sunujing 36-40, M 7 hrs ago