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I Have Hypophosphatasia

A Hypophosphatasia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hypophosphatasia. You're not alone. 7 People

    Hpp Facebook Page And Soft Bones Site

    I wasn't able to comment on another post...so I'm trying this route. Too much calcium is BAD for people with HPP. (My son has this disease.) Your doctor is not doing his/her reseearch. Go to the Soft Bones website and HPP facebook page. You will find many others with the disease...
    msbadgerwi msbadgerwi 31-35 1 Response Jun 26, 2012

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    Infantile Hpp

    When I was born, I was diagnosised. I had a craniosynostosis surgery to fix all the sutures of my skull, due to them being fused already. I have not broken any bones, yet. My alkaline phospatates are reading at a 9 at the moment. I live in Texas and have trouble finding any help...
    casewild113 casewild113 31-35, M 2 Responses Jun 25, 2012

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    I Have Adult Hypophosphatasia

    After 2 podiatrists told me I was crazy, the 3rd podiatrist finally sent me to an Endocrinologist who not only did the normal dexa scan (which always came back normal) but did other blood work. He found the needle in the hay stack and diagnosed me in March of 2008.  Since...
    speete35 speete35 41-45 8 Responses Mar 22, 2009

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    Hpp I Know There Is Hope.

    I have had hpp for a few years and a friend of mine told me about someone he knows that has Hpp also. He was just diagnosed a few months ago. He put me in contact with him and come to find out he has started a foundation that will be doing some wounderful things to bring awarness...
    adulthpp adulthpp 46-50, M Aug 11, 2012

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    Hpp Choose Hope

    I too have hypophosphatasia. I was diagnosed at age 53. HPP-Choose Hope helped me. Maybe they can help you.
    Steelwheel Steelwheel 46-50 Nov 12, 2012

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    Related Experiences

    I really need to tell this story without revealing who I am. Thank you for reading if you are and thank you ep for letting me let it all out. It's a long story and I really can't...
    seabird9 seabird9 16-17, F 12 mins ago

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    I think I might have three spirit guides so far, but I'm not entirely sure. The first one I met was the toad. It happened when I was 14, a few weeks before Christmas. I had been...
    Torapie Torapie 22-25, F 2 Responses 47 mins ago

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    I have haphephobia--the fear of being touched. I don't remember how it started, I don't even remember noticing it. I knew I was uncomfortable with having people get too close...
    baconette baconette 18-21 34 mins ago

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    I do, he lives down the street. He's seriously the nicest person I've ever met aside from that he looks like a blonde freaking Andy Biersack. I also have absolutely no chance with...
    EmbraceForever EmbraceForever 13-15, F 1 Response 13 mins ago

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    I have an Instagram, wanna follow? Brown_shoogar
    brownzugar brownzugar 16-17, M Aug 21

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    my best friend,messaged me from her hotel room,in egypt,were she is on vacation with her family. terrified and just scared. telling me how some pig. grabbed her,groped her,and...
    VoloNoscere VoloNoscere 22-25, M 2 Responses Aug 21

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    I have an idea for a Power Ranger Series: Power Rangers Celebrities. Justin Timberlake would be the red ranger, Chris Rock would be the blue ranger, Ashton Kutcher would be the...
    Erik9393 Erik9393 18-21, M 1 Response Aug 21

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    Our home was also conveniently just a brief moment stroll to Kuramathi Spa. Ever considering that exposing Johnny to the superb entire world of massages in Thailand, heR17;s been...
    Willy52yt Willy52yt 31-35, M 1 Response Aug 21

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    Tomorrows my first day at my new job!!! Wish me luck... Brand new people. Brand new environment. Brand new field. Hopefully deeply satisfying... I am moving on! That time then...
    Shoutittotheworld23 Shoutittotheworld23 26-30, M 1 Response Aug 21

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    After arriving at the unit, I've became completely and utterly disgruntled. I don’t care anymore! I really don’t give a ****, and that’s bad, but it’s becoming increasingly...
    sithdeominca sithdeominca 26-30, M Aug 21

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    I think my favorite thing about Pac Rim is that it gave us the term drift compatible because in English there is no good way to explain a very deep, often, platonic, love and...
    InhuldibleCrelk InhuldibleCrelk 36-40 1 Response Aug 21

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    Well, I'm 25 years old and I have been picking my skin for 15 years at least. It really bothers me because I feel shame to be in social situations after a skin picking episode... I...
    carolinagarcia carolinagarcia 22-25, F Aug 21

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    i don't like being touch. in pictures, i am very aware of my distance with others. it started with narc mother and continue with abusive boyfriend. we were walking next to each...
    fien fien 26-30, F 1 Response Aug 21

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    Yes I would and have actually done just that. He's so lucky I love him so much...
    roselani2005 roselani2005 26-30, F 1 Response Aug 21

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    Hi I found out you're willing to help. I recently found out that my 27-year-old wife had affairs with at least two men. Very furious I traced her and installed a GPS and a recorder...
    Babak1357 Babak1357 36-40, M Aug 21

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    Hi I found out you're willing to help. I recently found out that my 27-year-old wife had affairs with at least two men. Very furious I traced her and installed a GPS and a recorder...
    Babak1357 Babak1357 36-40, M 1 Response Aug 21

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    My dad used to do drugs and was abusive to my mom and my little brother and I. We used to run away from him growing up. Never been stable. Have mental issues. When he drinks...
    roselani2005 roselani2005 26-30, F 1 Response Aug 21

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    The entire of humanity could have been at apocalyptic war with itself, just beyond the confines of her warm living room, for all we cared. Tablets of Zen led the way. A heavy drug...
    s0undgarden s0undgarden 16-17, M Aug 21

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    The ability was pretty cleanse and the team was extremely courteous and caring. The vet who observed our Dante was Dr. Kleiman, who was Ill himself.Our expertise might have not...
    Tysonlk318 Tysonlk318 31-35, M 1 Response Aug 21

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    So I've been thinking... (when I say this you know I'm about to tell you about my half-baked idea or theory) xP I have decided that it doesn't really make sense to have set...
    Friability Friability 18-21 2 Responses Aug 21

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    I don't know if it's a daddy complex, since all the complex' I've heard of is people lacking a father figure growing up. I've always known my dad, and we have always been really...
    leejoonnieoppa leejoonnieoppa 18-21, F 1 Response Aug 21

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    I keep telling myself that the easier I wake up for work, the more time I have howitzer drink coffee of **********. There can only be one.
    purposebuilt purposebuilt 22-25, M 2 Responses Aug 21

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    Its Lions!!! You see lions in discovery channels and Madagascar but i saw one, and i almost peed in my pants. It was back in highschool,...in my country everyone after finishing...
    suziewuzie suziewuzie 18-21, F 1 Response Aug 21

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    Shall I warn people that I'll be spamming this experience group during all of my waking hours today? I shall. Maybe it would be a good idea to just group my "random thoughts...
    Friability Friability 18-21 1 Response Aug 21

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    I don't have enough blood since I was borned. Both of my hands are always as cold as ice even it's a sunny day e.e When I run during P.E. my friend told me that my face and lips...
    mandy0928 mandy0928 13-15, F Aug 21

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    Does your family trust you? I don't think mine does, I haven't given them a reason to. I'm a very private, maybe even secretive person offline. I think my family has become a bit...
    Friability Friability 18-21 1 Response Aug 21

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    I think doing something stupid is better when you have someone to do it with.
    AgentSickler AgentSickler 18-21, M 5 Responses Aug 21

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    Yes...just when I had accepted that I would live the rest of my life alone, I found love. AND...not JUST love, but that true, deep, unconditional love I had always believed existed...
    midagehippie midagehippie 56-60 1 Response Aug 21

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    I just got out of a mental hospital for suicdal thoughts and planning hated every second won't go back in my own cops will have to take me
    Jungle46 Jungle46 46-50, F 4 Responses Aug 21

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    I am currently in Atlanta. My boyfriend and I live in Columbus, GA. He's homeless and he'd recently started working at a kiosk in the mall. He was on ninety days unsupervised...
    michelleeads michelleeads 18-21, F Aug 21

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    It's "discovery" is recent, but it's been here since forever. I don't have any of the crazy music-colour stuff, or anything like that. Just plain old grapheme-colour, with a touch...
    wrizza wrizza 16-17, F 2 Responses Aug 21

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    **** this... Do half you ******* that claim you have BPD even know what the **** it is? It's no ******* joke... all people to people with BPD is kick'em when they're down... You...
    Yu12 Yu12 26-30, M 4 Responses Aug 21

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    English is not my mother language so i hope you can understand me.. i'm 21 and i have also BC, since half year of 2012..it is big as marble or lollipop i think..but i started doing...
    crisa21 crisa21 22-25, F Aug 21

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    I have a girlfriend. I love her. But for some reason, it just doesn't feel right. She's emo as well, and we cut our wrists together. But I'm still sad, even though I love her and...
    endmylife endmylife 13-15, M 2 Responses Aug 21

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    I am more than ecstatic to be able to give hope to all sufferers today by being able to truthfully tell you that I managed to rip myself out of bulimia completely in the time space...
    mel95 mel95 18-21, F 1 Response Aug 21

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    I have so much to say...i don't know Where to start
    Mka1989 Mka1989 22-25, F 1 Response Aug 21

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    Expedia will help save you dollars and time when reserving your reservations in a Rangali Island resort so that you can delight in your trip instead of stress about preparing along...
    Jacksonpj05 Jacksonpj05 31-35, M 1 Response Aug 21

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    I kinda have a crush on a person I just met and I know we just met but im kinda into them and i hope they feel the same. its so sudden bt their falling for them and vice versa. i...
    LoevlyEmily LoevlyEmily 22-25, F 3 Responses Aug 21

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    I'm getting ready to be in a pageant I'm freaking out my mom hasn't coached me all that much and I don't know what color eyeshadow to wear or in what way to put it on I have a pic...
    Khaleesi1Regan Khaleesi1Regan 13-15, F 1 Response Aug 21

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    “Sensitive people are the most genuine and honest people you will ever meet. There is nothing they won’t tell you about themselves if they trust your kindness. However, the...
    Wiltingflower Wiltingflower 36-40, F 3 Responses Aug 21

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    Hi! I'm an area Seattle photographer who loves to bring out the entertaining and wonder in people. I have been a marriage and portrait photographer for more than five years...
    Michael749y5lj9 Michael749y5lj9 31-35, M 1 Response Aug 21

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    My boyfriend doesnt deal with our personal problems with me, he talks horribly about me to his friends to vent out his frustration and I only found out last week. He apologised and...
    idealorious idealorious 18-21, F 10 Responses Aug 21

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