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I Have Hypophosphatasia

A Hypophosphatasia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hypophosphatasia. You're not alone. 7 People

    Infantile Hpp

    When I was born, I was diagnosised. I had a craniosynostosis surgery to fix all the sutures of my skull, due to them being fused already. I have not broken any bones, yet. My alkaline phospatates are reading at a 9 at the moment. I live in Texas and have trouble finding any help...
    casewild113 casewild113 31-35, M 2 Responses Jun 25, 2012

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    I Have Adult Hypophosphatasia

    After 2 podiatrists told me I was crazy, the 3rd podiatrist finally sent me to an Endocrinologist who not only did the normal dexa scan (which always came back normal) but did other blood work. He found the needle in the hay stack and diagnosed me in March of 2008.  Since...
    speete35 speete35 41-45 8 Responses Mar 22, 2009

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    Hpp Choose Hope

    I too have hypophosphatasia. I was diagnosed at age 53. HPP-Choose Hope helped me. Maybe they can help you.
    Steelwheel Steelwheel 46-50 Nov 12, 2012

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    Hpp I Know There Is Hope.

    I have had hpp for a few years and a friend of mine told me about someone he knows that has Hpp also. He was just diagnosed a few months ago. He put me in contact with him and come to find out he has started a foundation that will be doing some wounderful things to bring awarness...
    adulthpp adulthpp 46-50, M Aug 11, 2012

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    Hpp Facebook Page And Soft Bones Site

    I wasn't able to comment on another post...so I'm trying this route. Too much calcium is BAD for people with HPP. (My son has this disease.) Your doctor is not doing his/her reseearch. Go to the Soft Bones website and HPP facebook page. You will find many others with the disease...
    msbadgerwi msbadgerwi 31-35 1 Response Jun 26, 2012

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    Related Experiences

    I have a lot of things. It's weird how I go on my daily life blending in with everyone else while my head is so chaotic. I have split personality: the other personality I have is...
    ponycupcake ponycupcake 18-21, F 10 hrs ago

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    My whole life my younger brother and I have had our ups and downs and his always made me feel like crap but lately since his had a new girlfriend things have gotten worse. Last...
    Mamooshka Mamooshka 18-21, F 11 hrs ago

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    I've only told one person about this my entire life, and now that person is no longer in my life yet even then, I didn't tell him the whole truth. Such is my disease. I am a...
    FireCoyote FireCoyote 26-30, F 3 hrs ago

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    I need advice! My 9 month, fixed, female, golden retriever is ripping apart everything in my back yard. She only needs to be left alone for a few mins, and she will tear apart...
    caddriss caddriss 36-40, F 5 Responses 2 hrs ago

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    Its just too soon. Too soon for me to think that you would truly care Too soon for me to have thought that you were true Too soon for me to have been dreaming of the future...
    UnalteredEmotions UnalteredEmotions 22-25, M 1 hr ago

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    I am writing this to show you that you can live with MS fairly comfortably if you are fortunate enough to find the right medication that works for you and have a good support...
    Avonexveteran Avonexveteran 56-60, M 46 mins ago

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    This is the most vivid dream I have had in a while, and I want to record it before I forget. Premonition dreams run in my family so interpretations are welcome. So in my dream I...
    1stepforward3shovesback 1stepforward3shovesback 16-17, M 5 hrs ago

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    I hate going out during day light... Hate being talked to by random people asking me questions. I dont want to be with any of my girl friends anymore, they are enjoyingly positive...
    mint15 mint15 22-25, F 1 Response 3 hrs ago

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    I have social events I go to like conventions and festivals. I go to these things to make NEW friends. She's always got to be there! She's with me 24/7! When she comes with me to...
    RainbowPastel RainbowPastel 16-17, F 11 hrs ago

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    After doing many years of psychology and sociology, I have the factual knowledge to know that some people should not have kids. If you are a parent, even if you think youre a good...
    urlaame urlaame 18-21, F 2 Responses 9 hrs ago

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    Dear Friend, I am so sorry that I hurt you. Please forgive me. You've been such a great friend to me. You've been loyal to me, patient, kind, and gentle . Even at my worst, I want...
    AquariusLife AquariusLife 26-30, F 3 Responses 8 hrs ago

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    Well I feel like I need to start working out in the mornings but like early. I just struggle to wake up but I need to really do it you know. I haven't really had time to workout...
    andreaespe andreaespe 18-21, F 4 hrs ago

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    My body craves for the touch of mashed potatoes, the soft white flesh of the vegetable sliding on my body. I haven't slept in fifteen days. Only the beautify rapturous gooey white...
    Katiepoohmm Katiepoohmm 18-21, F 5 Responses 3 hrs ago

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    Well just this morning amongst other times. I wanted to push the envelope so I targetted myself with driving naked, walking, then driving back still naked – including being in a...
    DewiNatural DewiNatural 46-50, M 1 Response 3 hrs ago

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    When I found out only my sis and I in the family used Asian Surnames and have black hair, we took some time to think, and came up with a great conclusion. High chances that my...
    TetraZL TetraZL 13-15, F 3 hrs ago

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    On rare occasions I do my part and flag profiles that have nudity in their avatars, a violation of EP's terms of service, but I have to admit I'm very diligent about flagging them...
    iRant iRant 46-50, M 3 Responses 2 hrs ago

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    I have the stomach flu and I have a exam today and tomorrow and I'm freaking out why can't I not care like other people. I get so worried that I fail
    savy1063 savy1063 18-21, F 1 hr ago

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    Not many people can say that they still have their virginity, but I can. I feel as if my mind has been corrupted lately. Thoughts of alcohol and sex were the last things to cross...
    anitamigna anitamigna 18-21, F 11 hrs ago

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    I was in the downstairs bathroom,putting up my hair as the water filled the bath tub.(I was in a bathing suit,weird right?)I sat on the edge of the tub until the water was an inch...
    MarienaMorello MarienaMorello 13-15, F 11 hrs ago

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    I seem to be messing up more and more often and I wonder how much more she will put up with. I seem to take everything to heart that is said and over react and end up pushing her...
    Sirwithherkey Sirwithherkey 31-35, M 1 Response 10 hrs ago

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    What does it feel like to commit yourself to another human being? Do you have expectations of that person going into a relationship? What are you hoping to gain from that...
    AquariusLife AquariusLife 26-30, F 2 Responses 7 hrs ago

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    So I'm still crushing on my bestfriend... Like the other day I thought for sure maybe my feelings had left since I haven't spent time with her for a whole week but then today I've...
    babii244 babii244 18-21, F 1 Response 7 hrs ago

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    I also have an amazing friend in EP. Thank you for everything. Godspeed.
    samemay54 samemay54 51-55, F 7 hrs ago

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    I always wake up the next day finding myself not wanting to see my mother, because everytime i see my mother and she sees me, the first few words that would come out from her mouth...
    TheWandAirs28 TheWandAirs28 18-21, F 1 Response 7 hrs ago

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    A few actually but i doubt any of them would work..I always think whatever guy I like can do better than me,Im too self-conscious and insecure and to top it off i feel like,well i...
    seeminglypossible seeminglypossible 22-25, F 2 Responses 6 hrs ago

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    “Ok everyone,” said the the instructor at the birthing class trying to get everyone’s attention. “We are going to do an exercise now, that’s purpose is to help the men...
    blindfoldstacy blindfoldstacy 41-45, T 2 Responses 5 hrs ago

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    Im looking for another guy to have sex with my wife in the Houston area. I really want a guy with a big **** to **** her real good. Anyone interested?
    hotguy2016 hotguy2016 26-30, M 2 Responses 5 hrs ago

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    I want a guy to have sex with my wife. Any takers?
    hotguy2016 hotguy2016 26-30, M 1 Response 4 hrs ago

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    The worse thing is the paralysis and not being able to be expressive anymore with my face. I used to have a lovely smile and now it's gone. I hope that it's temporary...It's been...
    istajam istajam 36-40, F 2 Responses 4 hrs ago

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    I manifest connection to all the projective demons possessed in the thoughts being used by my psychic attackers so be it in christ amen, I surrender love and joy and thanks for...
    verndewd verndewd 41-45 3 hrs ago

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    Five years ago i get my first anxiety and panic attack, it takes me one and a half year to understand what it is, doctors were wrong in my case, what i needed is a psychiatric and...
    whispersgod whispersgod 26-30, M 3 hrs ago

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    Five years ago i get my first anxiety and panic attack, it takes me one and a half year to understand what it is, doctors were wrong in my case, what i needed is a psychiatric and...
    whispersgod whispersgod 26-30, M 3 hrs ago

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    Five years ago i get my first anxiety and panic attack, it takes me one and a half year to understand what it is, doctors were wrong in my case, what i needed is a psychiatric and...
    whispersgod whispersgod 26-30, M 3 Responses 3 hrs ago

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    A small 1 SEATER plane crashed into a cemetery. Police have recovered 102 bodies so far and will continue to dig throughout the night.
    jml2000 jml2000 56-60, M 3 hrs ago

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    Alright, I get it. I'm awkward as **** and so out of this world I don't even think Im human. I am so weird. And awkward. Did I mention that I'm awkward? I just don't have the guts...
    LadyWhatever LadyWhatever 18-21, F 2 hrs ago

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    A few years ago I was trying to give up smoking. I was at the state fair with my girlfriends and it was late we had been there all day drinking, dancing and flirting (the state...
    bethtries bethtries 26-30, F 5 Responses 2 hrs ago

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    I was in a terrible car accident that left me in a coma, and I suffered from a traumatic brain injury. Since then, I haven't been able to get through a day without a migraine. Kill...
    ayoaddi ayoaddi 18-21, F 1 Response 1 hr ago

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    I have been to 38 countries. I enjoyed everyone of them except VietNam.
    jeri1963 jeri1963 56-60, M 1 Response 45 mins ago

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    So I have a cool *** friend from la and she's the most awesome friend ever. You should all be jealous. Lol
    lifeexperiences20 lifeexperiences20 18-21, M 1 Response 34 mins ago

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    I have nightmares all the time Sometimes I'll sit up or partially wake up in the middle which makes it seem more real And a couple times I've been able to feel myself trying to...
    JalenFrankie616 JalenFrankie616 13-15, F Aug 30

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    Literally, all in one night. Scene: Me sitting at the bar with three friends. Man is sitting next to me. Peter (guy who talks to me every time I'm at this bar): "HEYYYYYYY. What...
    YouBeTheAnchor YouBeTheAnchor 22-25, F 3 Responses Aug 30

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    I do believe that people that need drugs and alcohol are just throwing their lives away, I personally don't have any troubles with anyone drinking around me but the drugs have got...
    acissej10 acissej10 13-15, F 6 Responses Aug 30

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