I Have Hypopituitarism

A Hypopituitarism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Hypopituitarism. You're not alone. 45 People

    Hey, my name is Daniel,

    I`m 19 and have panhypopituitarism. This post is to encourage everyone of you who also have this illness. I know that we are all tired of being restricted by the chains and shackles of Hypopituitarism. You are tired and depressed of all the judgement, underestimation, insults...
    DanielMR DanielMR
    6 Responses Nov 24, 2014

    Hello! i am 22 years old

    and I have been diagnosed with hypopituitarism since i was 2, i don't display too much of the symptoms besides the dwarfism in my body and the cold sensitivity and lack of appetite and weight. I am homing to meet others who have hypopituitarism so i'll feel less alone. In the...
    rinabnyu rinabnyu
    22-25, F
    1 Response Mar 6, 2016

    Undead Or Half-living

    At birth I had a very low blood sugar that would have lead to my demise but, thankfully the doctors had saved my life but not without some complications that would change my life forever. I felt depressed and alone in this world and I did not have a easy time making friends in...
    gghhtt33 gghhtt33
    22-25, M
    1 Response Apr 22, 2012

    People With Hypopituitarism Are Unable To Find Others To Love

    To all do you find love hard if you have hypopituitarism. Well I a hypopituitarism dwarf and I am 5'11 but I have retardation in facial and skull size. So my body seems to be a adult with a kid's face and head! **** I dunno if I ever find love! I am finding ways to make my face...
    Mephisto999 Mephisto999
    1 Response Apr 12, 2013

    I am a 44 year old female BORN with cogential

    panhypopityuitarism. I had some pituitary function up until the age of 12 and that's when I had brain stroke headache pe r my endocrinologist. I am 5'1" tall with osteoporosis. It is very hard being a female unable to have children and no sexual hormones. My husband loves...
    JazLady JazLady
    46-50, F
    Aug 9, 2015

    I Have Hypopituitarism

    I have been diagnosed with hypopituitarism since i was a child i thought i was the only one. I thought that i was the only person going through this but i guess not and its a wonderful thing that iam not the only one. I would always feel left out because my sisters would be...
    lahteyvya lahteyvya
    18-21, F
    6 Responses Sep 16, 2013


    I have had Hypopituitarism all my life allways in and out of hospital ill as a babie untill the told my parents I had hypopituitarism aged 4  on the growth hormone injection every night and testostorone injections every three months as well all the hydrocortisone and thyroxine...
    danielsjack danielsjack
    14 Responses Jul 29, 2011

    Hello. I'm glad to find a few others with

    hypopit. I am 46 and was just diagnosed with idopathic after 15 years of off and on symptoms. My endocrinologist believes the cause is probably genetic mutation. It was possibly triggered by mono in my late teens. Grandma, sister and 3 cousins have similar symptoms with varying...
    artistdeb artistdeb
    46-50, F
    2 Responses Mar 31, 2014

    I was diagnosed with a pituitary tumor in my

    teen years and had three surgeries. In the second they removed my pituitary leaving me at a very tender age completely underdeveloped. While I don't envy girls who have to deal with the monthly "curse" I feel different from other people, like I am cut off from them because I don...
    tumorgirl21 tumorgirl21
    31-35, F
    Aug 15, 2014


    your right i wish there was a group that could help/support us.  for me one of my biggest fears is not my condition or my medicine because i know my body and what and when i need things but for me its the health world i cant tell you how many times i have had to educate people...
    diamondgrl3 diamondgrl3
    22-25, F
    5 Responses Jul 25, 2011

    Son Has Hypopituitarism

    I have a son that has hypopituitarism I have looked for support groups on this condition, but have found that I cannot find one. So instead of looking for one I created my own on facebook called hypopituitarism support as i felt that there is not the support as there are not many...
    ivorycole22 ivorycole22
    26-30, F
    4 Responses Nov 7, 2011

    I Have Hypopituitarism

    I was wondering if there are any groups for people with hypopituitarism, I think it is hard to find out if someone else has it, not many do, it would be encouraging to talk to people who have the same condition I do. 
    jdscencal jdscencal
    16 Responses Sep 2, 2008

    I Am Lawrence And I Have Hypopituiatairism.

    I was diagnosed in 1994, right after i had finished my senior yr of high school. I had headaches, dizziness, not eating, weight loss, and all. My parents sent me to numerous doctors and they said they didn't know what was going on. So my parents took me to Duke Hospital to do a...
    LEN2012 LEN2012
    36-40, M
    2 Responses Jun 30, 2012
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