Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Hypothyroidism

Personal Stories, Advice, and Support 899 People

    Ive Got Hypothyroidism Too It Stinks

    i was put on sythinthroud i know i misspelled it but oh well, the side effects were bad it was almost 90 out side and i had a full winter coat on i was so cold i know i need to get back on my meds , and talk about gaining weight lord ive put sents ive gotten off my meds . i gain...
    lunnas lunnas 41-45, F 7 Responses Jan 26, 2008

    Your Response

    Cancel

    I think I might have it actually I'm not 100%

    sure Since July my beautiful silky usually greasy hair has become very dry and brittle and my scalp is very dry and flaky. I've been more tired and depressed and VERY anxious. I'm losing CLUMPS of hair and have become miserable. Does this sound like I could have it?
    kelbel95 kelbel95 18-21, F 2 Responses Oct 22, 2014

    Your Response

    Cancel

    HYPO At Sixteen

    I was diagnosed as being HYPO when was 16 years old. I didn't think much off it until I was told "you'll be on medicine for the rest of your life". Oh god did I feel like an AIDS paitent, I was so bumed out. I did reasearch online and read that women who have HYPO have...
    pinappleprincess pinappleprincess 19-21, F 4 Responses Dec 14, 2007

    Your Response

    Cancel

    Does Your Doctor Take Your Thyroid Condition Seriously???

    Hey there! I am a sufferer of Hypothyroidism too, and what really annoys me is how my doctor never takes my symptoms seriously!! All they care about is what comes up on the blood test results and not how their patient is really feeling... What i want to know is if your doctor...
    Salamander333 Salamander333 16-17 4 Responses Dec 14, 2010

    Your Response

    Cancel

    So it has been a week

    since I started my medication for hypothyroidism and I feel worse than before! I am tired, moody, I ache all over and I can't do my job at my best! I can't wait for this to get better, I need it now! How long does it take to have energy again and feel like a normal human being...
    youngteach youngteach 22-25, F 3 Responses Oct 21, 2014

    Your Response

    Cancel

    It's so exhausting. I have been on medication

    for about 3 and a half years and I am told that my levels are normal sense I take my medication but I still have all the symptoms. I am tired all the time. I wake up tired I lay in bed at night trying to fall asleep and I feel tired but I can't actually fall asleep most times...
    maggiemae89 maggiemae89 22-25, F 3 Responses Dec 8, 2014

    Your Response

    Cancel

    Has anyone had any luck in finding something to

    help loose the extra weight. I have bought every work out there is and tried changing my diet.... I used to be so tiny, I am 5'0 and am at my heaviest weight of 140. :(
    SoberJessica SoberJessica 31-35, F Jul 30, 2014

    Your Response

    Cancel

    I have been on Sythroid

    for almost 2 years now. I have heard that its not the best to take, my dosage is 125 mg Has anyone had bad experiences and been switched and noticed a much better change?
    SoberJessica SoberJessica 31-35, F 4 Responses Jul 30, 2014

    Your Response

    Cancel

    This Is One Of Those Bad Days...

    I am feeling more severely fatigued today. My knees are both hurting and it doesn't feel too good to walk. I am cold most of the day and especially at night. I can't sleep without my socks on. Before I fall asleep I have these muscle jerks/twitches/kicks. It could come from my...
    putrjnky putrjnky 41-45, F Jun 6, 2012

    Your Response

    Cancel

    An Answer To Most Of My Medical Problems!

    The excessive weight gain, muscle and joint pain, fatigue, and depression are the worst of my symptoms. I honestly just thought all the symptoms were due to my depression until I started excessively gaining weight. I gained 25lbs from June to November despite working outdoors and...
    Rachelle18 Rachelle18 22-25, F 1 Response Nov 22, 2013

    Your Response

    Cancel

    Hypothyroid And Completely Unable To Gain Weight?

    Hello there. Yes, I know my title sounds a little confusing, and no, I'm not hyperthyroidic, and I don't have Hashimoto's. I'm a 22 year old mother of a beautiful two (almost three!) year old daughter, a full time psychology/pre nursing student, and a part time employee. I'm...
    ashesmomma10 ashesmomma10 22-25, F 6 Responses Sep 23, 2012

    Your Response

    Cancel

    20, Diagnosed And Not Feeling Better.

     I was just diagnosed a few months ago with hypothyroidism and when I found out and looked it up on webmd it seemed like this one little magic pill was going to solve all my health problems. My Primary Care Doc. led me to believe this condition was an easy fix but I am...
    Hypo54 Hypo54 18-21, F 1 Response Nov 4, 2009

    Your Response

    Cancel

    Not severe by any means,

    but I have struggled for years with fatigue, depression, anxiety, weight, etc. Was just put on Levothyroxine and Liothyronine (Synthroid & Triostat). Would love to hear someone else's experience with these medications, and it it actually helped, especially the fatigue. But also...
    squirrelbounce squirrelbounce 41-45, F 4 Responses May 24, 2014

    Your Response

    Cancel

    At Wit's End...

    I'm new to this group, but not new to the whole hypothyroid thing.  I've thought for years that I have it, but have gotten no satisfaction.  I've been turned away from this diagnosis so much that I'm starting to think I'm out of my mind....then I learn more...
    whywontthiswork whywontthiswork 36-40, F 7 Responses Apr 12, 2010

    Your Response

    Cancel

    I tried adding Cytomel (Liothyronine) back in

    to improve my overall lab values (and to feel better) but it's not working for me, even at 5 mcg. I get super anxious with chest pain. Anyone else feel this? I'm nervous about switching to Armour if the effect will be the same. Taking Synthroid (Levothyroxine) now but I'm still...
    squirrelbounce squirrelbounce 41-45, F 3 Responses Sep 16, 2014

    Your Response

    Cancel

    i went to the doctors one day

    for a physical, the lady sent me to endocrinologist. he took my blood work and said my levels were very low and i was too take a pill of 88 milligrams ive had several different dosages and 88 works the best i guess. and i would have to take pill for the rest of my life and he...
    lovershated lovershated 18-21, F 1 Response Sep 1, 2014

    Your Response

    Cancel

    Weight ... why must you fluctuate?

    I was never super thin but always within the healthy weight range on the bmi charts. When I was diagnosed as a teen, I didn't understand how devastating the effects could be on the human body. A little tired yes, but nothing too serious, and it certainly didn't hinder my social...
    JustaCherry JustaCherry 22-25, F Apr 15, 2012

    Your Response

    Cancel

    Someday so feel so lethargic I can hardly move.

    I take levo but my t3 &t4 never even out. My hair is falling out and I'm depressed
    jussme91 jussme91 22-25, F 5 Responses Dec 12, 2014

    Your Response

    Cancel

    I've been consistently taking my medication

    for the past three weeks now. (150 mg) i'm going to get my blood work done next week but recently I've been feeling my body temp go up which is nice and some other symptoms subsiding which I am way to embarrassed to talk about. A big thing I've noticed is that my sex drive is...
    Arelia Arelia 22-25, F Aug 6, 2014

    Your Response

    Cancel

    Damn You, Thyroid.

    Yep, I'm hypothyroid.  Gotta take pills every day for the rest of my life.  Woo! The most important thing that I could say to someone that's got a thyroid disorder (or any disorder, for that matter!) is to never let a doctor tell you that something's right or normal...
    deleted deleted 26-30 7 Responses Apr 10, 2008

    Your Response

    Cancel

    I Hate Hypothyroidism

    I try so very hard not to get consumed by this rotten stinking thing known as hypotyroidism.  I know that depression is a symptom of this disease, but the lack of energy, weight gain, lack of interest and so on effects my marriage and my husband is now the only real...
    charlene002 charlene002 46-50 2 Responses Mar 15, 2011

    Your Response

    Cancel

    I've been struggling with it un-diagnosed on

    and off for years. In mid 2011 it hit full force and now I struggle to control it. I am taking levothyroxin because that's the only thyroid medicine my ins will pay for. I've also been shuffled from one doctor to another over the years, and each one starts over with me which...
    StuckWithin StuckWithin 46-50, F Jun 25, 2014

    Your Response

    Cancel

    My Battle

    I am heavy set. I am only 17 years old. I used to be on track and was a great weight. However, I started getting cravings and started eating more... Finally the doctors found out that I have hypothyroidism. It's something that has to do with your thyroid and it's underactive with...
    ilychristinaa ilychristinaa 16-18, F 6 Responses May 5, 2007

    Your Response

    Cancel

    Finally felt good today

    and then hit a wall as I was driving home. This has to be a good sign though...right?
    youngteach youngteach 22-25, F Nov 3, 2014

    Your Response

    Cancel

    Me Too

    I was diagnosed about ten yrs ago with hypothyroidism.  It took three yrs. to get it and thank goodness I kept at it. I now take 100 mcg of Synthroid and have my levels tested twice a yr. I am not tired as much as I was and not nearly was cold as I used to be. I also have...
    brokemom brokemom 41-45, F 1 Response Aug 29, 2010

    Your Response

    Cancel

    I was diagnosed a little over 3 yrs ago.

    Was on Synthroid which didn't really work well with me. Been on Desiccated Thyroid for a bit over a year and it's been working much better. What totally ****** me off though is that this disease is invisible so people treat you like you're perfectly healthy and their...
    Agusia Agusia 36-40, F 3 hrs ago

    Your Response

    Cancel

    I have Hashimoto's and hypothyroidism.

    Nothing new, was diagnosed over a year ago. However, my symptoms have become out of control. I need my medication adjusted. While I'm waiting though, I literally cannot live. I just want to die. I'm so exhausted I can't even describe it. I was driving before and felt like I...
    justb33 justb33 36-40, F 1 Response Aug 13, 2014

    Your Response

    Cancel

    How Long Till I Feel Better

    I am fairly new to the Hypothyroid madness. I have been unable to work for over 6 months now and was being treated for depression, which didn't make sense but I had all the symptoms so went along with it all. My voice was getting very deep and hair falling out and every part of...
    edw01ard edw01ard 51-55 1 Response Apr 14, 2011

    Your Response

    Cancel

    Tired of Being Tired!!!

    I was officially diagnosed with hypothyroidism a year after my son was born.  The dr put me on levoxyl and I get blood drawn every 3 months.  And I am still tired, muscle aches, no energy what so ever, and have given up trying to lose weight.  I worked out with a...
    kerette kerette 36-40, F 2 Responses Jul 13, 2008

    Your Response

    Cancel

    How Do I Get My Husband To Understand?

    When my husband met me, I was energetic, allert, and in control. I kept a tight ship, as far as housework went. I could easily keep track of him and our six kids. Then I started getting sick. My husband, who is military, thinks it is all in my head our just an excuse to be lazy...
    AvidDreamer AvidDreamer 31-35, F 9 Responses Apr 6, 2012

    Your Response

    Cancel

    Yeah, it sucks. I also struggle with anxiety,

    and the sudden occurrence of the symptoms of HT last year amplified my anxiety to an extreme degree. Along with this, HT made me really tired, but the anxiety lead to insomnia. I was kinda dead. My parents thought I had a cold, or was faking, or it was just my anxiety. After...
    mairesequin mairesequin 16-17, F Jul 17, 2014

    Your Response

    Cancel

    I've been consistently taking my medication

    for the past three weeks now. (150 mg) i'm going to get my blood work done next week but recently I've been feeling my body temp go up which is nice and some other symptoms subsiding which I am way to embarrassed to talk about. A big thing I've noticed is that my sex drive is...
    Arelia Arelia 22-25, F 1 Response Aug 6, 2014

    Your Response

    Cancel

    I'm tired of struggling with this condition

    and everything it entails. I was dismissed from my doctor's office because I "dared" to have a thyroid ultrasound somewhere else and the money did not go to them. I had requested one in the beginning of my disease but was denied for no reason. My condition got worse with...
    deleted deleted 26-30 1 Response Aug 29, 2014

    Your Response

    Cancel

    Just got switched to NATURETHROID - would love

    to hear if anyone has tried it and what the experience was, especially if you took synthetic before. Yes, I realize it works different for every one, I simply am curious about your experience.
    squirrelbounce squirrelbounce 41-45, F 1 Response Nov 12, 2014

    Your Response

    Cancel

    does anyone take armor thyroid medication?

    I am on it but not sure what to think. opinions?
    kristykaz121 kristykaz121 18-21, F 2 Responses 5 days ago

    Your Response

    Cancel

    Turns out I have subclinical hypohyoidsm.

    Basically my pituitary gland is wishing hard to get my thyroid gland to work. my TSH levels were high but my t4 and t3 were in normal ranges. hopefully I recover soon
    elnleah elnleah 22-25, F Jan 7

    Your Response

    Cancel

    It's Been 20 Years Now.

    I remember the undiagnosed symtoms.  I was nuts!  Bursting into tears in the most inappropriate times...to being downright suicidal.  When I was finally diagnosed, the docs said I was off the chart.  That was 20 years ago.  My doctor tells me that I should feel normal on my...
    megsmith megsmith 56-60, F 3 Responses Nov 14, 2011

    Your Response

    Cancel

    I was diagnosed in 2004.

    It was Mother's Day and I went into a seizure. We had no idea. I was taken to a hospital who gave me an IV, couple rolls of tums and a map quest on how to get home passing the most hospitals. I had another seizure in the lobby of that fine medical center. They took me to another...
    KJ935 KJ935 18-21, F May 18, 2014

    Your Response

    Cancel

    I had a right side thyroidectomy about two

    years ago, because of some problems with insurance I didn't start taking medication, until a couple of months ago. I have a problem remembering when to take the pill, so it got to a point where I'd stop and start taking it again. I am not feeling okay at all, I have pain...
    ofthisgirl90 ofthisgirl90 22-25, F 1 Response Oct 26, 2014

    Your Response

    Cancel

    Okay, so how did one such

    as I come to be diagnosed with hypothyroidism? Well after being diagnosed with ADHD and an anxiety disorder and being put on an anti-depressant for anxiety and having "bad side effects" such as: dizziness, heart fluttering, head aches, fatigue, etc. I went to student health at...
    klw081192 klw081192 22-25, F 5 Responses Jun 23, 2014

    Your Response

    Cancel

    I gained so much weight

    since I've had hypothyrpidsm. I got diagnosed about a month ago and started meds about 2 weeks ago. I just want to be my normal self, fit back in to my clothes, feel rested when I sleep and not break out so much. My body has changed so much...I hate it.
    elnleah elnleah 22-25, F 1 Response Dec 27, 2014

    Your Response

    Cancel

    Hypothyroidism Can Kill And Cause Complications

    I never thought I'd write those words in the title when I was first diagnosed in 2003 by a nurse practitioner (NP). I believed HypoT, as I'll refer to it from here on, was a mild disease and that my NP was treating me correctly. Boy was I in for a surprise! Through her under...
    Lionyx Lionyx 56-60 4 Responses Jun 28, 2010

    Your Response

    Cancel

    Started synthetic T3

    and T4 but about 3 weeks later I felt very anxious and fingers were tingling and numb. Starting T4 meds again (gen. Synthroid) - worried it will happen again. Anyone have similar experience?
    squirrelbounce squirrelbounce 41-45, F 1 Response Jul 8, 2014

    Your Response

    Cancel

    Dose Anyone Alse Have This Going On?

    i have had hypothyroidism now for over a year. i have always been underweight and small.  and the meds that my doctor has me on with is the synthroid makes me lose even more weight. i always thought that people with this gain weight. i guess i was wrong. just recently i had...
    soldiergirl1979 soldiergirl1979 26-30, F 7 Responses Feb 3, 2010

    Your Response

    Cancel

    Finally Some Light At The End Of The Tunnel........or Maybe Not ?

    This is going to be a rant  about my latest experience with members of the medical profession , dizziness and a thyroid disfunction. So bear with me  but, let me tell you, they ALL  suck, big time !! I have been suffering from vertigo since May. I am getting tired of feeling...
    underconstruction underconstruction 41-45, F 34 Responses Aug 13, 2011

    Your Response

    Cancel

    A possible cure? Iodine supplements.

    I'm all too familiar with the incessant fatigue, unpredictable mood swings, and I have myriad of other problems along with hypothyroidism. I find it surprising how physicians dismiss the potency of natural remedies. Of course, I recognize everyone is different. No individual's...
    bronzedout bronzedout 18-21, F 1 Response Jun 3, 2014

    Your Response

    Cancel

    How Often Should You Get Blood Drawn

    Hi everyone, I just moved to Japan 2 months ago so I have a new doctor,well the first time I saw my new doctor he told me that he would see me every 3 months.Does this seem right to you,Shouldnt you be seen every month for hypothyroidsm. He didnt even take blood to see what my...
    AmberDawnJanney AmberDawnJanney 26-30, F Sep 21, 2009

    Your Response

    Cancel

    Just added cytomel / liothyroinine (t3) to my

    regimen (already taking levothytoxine since summer) and lo and behold - I get a cold again. Same thing just happened when I started the levo. Coincidence? Plus, I'm feeling pretty anxious, but it's only been a week - what did you experience when starting Cytomel / Liothyroinine...
    squirrelbounce squirrelbounce 41-45, F Sep 5, 2014

    Your Response

    Cancel

    My Life With Hypothyroidism

    I am a nineteen year old girl who was just trying to get through college and experience life when I got diagnosed with Hypothyroidism about five months ago. At first I really didn't understand that it would have such a big role in my life I felt that since their are Meds for it...
    Dancinggirl11s Dancinggirl11s 18-21, F 5 Responses Dec 10, 2012

    Your Response

    Cancel

    I was diagnosed with hypothyroidism about 3

    and a half years ago. After feeling like I had something stuck in my throat for three months and being told by the people around me I was fine and it was all in my head I went to the doctor and low and behold I have this disease. :/ the doctor told me it wasn't to low but...
    maggiemae89 maggiemae89 22-25, F 4 Responses Dec 8, 2013

    Your Response

    Cancel

    I Can't Do This Anymore

    It's to hard on me. I hurt so much everyday. I'm not getting any support and I'm completely alone in this world. I'm breaking down....
    deleted deleted 26-30 2 Responses Oct 18, 2010

    Your Response

    Cancel