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I Have Ichthyosis Vulgaris

A Ichthyosis Vulgaris anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ichthyosis Vulgaris. You're not alone. 51 People

    Still Dealing But Accepting

    As I just sat an read a lot of these posts I couldn't help but to ball my eyes out. They brought back so many memories of childhood. Being called an alligator and getting bullied on a daily basis if I wore shorts to school. I remember at an early age begging my parents to take...
    Jfallen Jfallen 31-35, F Nov 30, 2012

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    All My Life

    I have been afflicted with Ichthyosis Vulgaris all my life. I've bought expensive creams and lotions but recently I've found something simple that has the scales peeling like crazy and still leaving my skin soft. I use Palmer's cocoa butter lotion right after I step out of the...
    momosoftskn momosoftskn 36-40 Jan 27, 2013

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    Ichthyosis Vulgaris Is Aggressive While Taking Sweets And Drinks Having Sugar

    Dear Friends, I also have Ichthyosis Vulgaris since almost 20 years.. I know , It is not my mistake. When i consult doctors, they are saying It is a Hereditary ichthyosis vulgaris. but i observed it on my legs with black spots during age 21. i feel it is an acquired...
    srinivasub srinivasub 41-45 Apr 6, 2013

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    I have been a member of the Ichthyosis Vulgaris

    club for over sixty years. I just found the right drug. Acitretin 25 mg ... generic for Soriatane 25 mg. One pill per day, and I have skin like a baby. Price is very high (about 2,000.00 per month). You can not use this drug and plan to have children. You will also need a blood...
    Mark189 Mark189 61-65, M Feb 24

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    Itch Till I Bleed

    I scratch so much till I bleed It is no fun having fish scales Have tryed many different lotions that didn't help.
    kpitz kpitz 51-55, M 1 Response Nov 19, 2009

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    Hi every body. I hope I can add some extra help.

    I'm working for a thermal mineral water curing center in Turkey. We live very happy "skin diseases healing stories" including ichthyosis and i want to share it. I can give more details if you are interested in. My mail is raufunal@yahoo.com
    runal1 runal1 41-45, M Mar 10

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    I have struggled with icthyosis vulgaris

    for a long time . I first got diagnosed when i was 12 and have tried a myriad of creams and ointments without much success . It has been an extremely frustrating experience especially with very little knowledge of the condition among the general public . I started using a lotion...
    shetty87 shetty87 26-30, M Oct 12

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    Misguided For Years....now Truly Diagnosed

    ..with Ichthyosis Vulgaris. You see, for as long as I can remember, I have had severe dry skin---and was always told it was excema. As a child I would sit in a warm bath and de scale my legs. My scalp was always dry, my ears waxy. I knew I was "different", but dealt as best as I...
    Adrift4years Adrift4years 41-45 2 Responses Apr 17, 2012

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    I Have Icthyosis Vulgaris

    This is the harsh story all icthyosis sufferers have to share but never get the chance to share until they find anonymous channels such as this. When we say we dont feel normal we know we sound off like the average human just self doubting their looks in comparison to social...
    anonymous1112 anonymous1112 18-21 1 Response Nov 3, 2012

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    Accept It!

    I have been suffering from ichthyosis since birth... from scalp to my heels.. ! its been tough all through but now I have courage to lie the way i am.. accepted what I am.. and believe me its nobody's fault.. U have to accept.. It was you!I am 22.. n still one thing that I cant...
    motii motii 22-25 Jun 11, 2012

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    I Am Beautiful :)

    I'm 19 and I have had Ichthyosis vulgaris since I was little, although I only came to know about the name of the skin disorder when I was 16. Since young, people have always commented about my rough skin - on how my palms have too many lines or how scaly my legs are. I had to put...
    lilian1993 lilian1993 18-21, F 4 Responses Jul 3, 2012

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    I cannot stop crying right

    now :) :( tears of joy and sadness. Reading these stories bought me to tears. People that are like me!! On my body it causes my scaley skin and my hands and feet are wrinkly It took me until now to realize how much my setbacks revolve around this condition! I am 24 and still...
    teagoddess teagoddess 22-25, F 2 Responses Jul 3

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    Ichthyosis Vulgaris

    at 69 years old, I have suffered from ichthyosis vulgaris all my life.  Only recently have I found some relief from this skin disorder. After shower or bath, I slather my body with proyplene glycol (over the counter purchase at walmart pharmacy) while still wet ( I DO NOT towel...
    Daniel102 Daniel102 66-70 1 Response Mar 19, 2011

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    Scared but Hoping To Be Finally Happy

    i'm so glad to have come across this helpful site. i too, suffer from a form of itchyosis since i was born. Extremely dry skin all over and very deep fold and lines in my hands and feet. i am 43 years old and have a hands and feet of a 90 year old woman. My condition has been...
    foreverconcious foreverconcious 41-45, F 1 Response Aug 30, 2012

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    Another Ichthyosis Vulgaris Case

    I can relate to everyone saying they have this rare skin disorder because i have one too.   It all started when i was in college, fish scale thingy started to show in my thighs and legs.  I wad diagnosed with ichthyosis vulgaris.   I thought it can be...
    mjsalvador mjsalvador 31-35, F 6 Responses Apr 28, 2010

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    Itch Till I Bleed

    I scratch so much till I bleed It is no fun having fish scales Have tryed many different lotions that didn't help.
    kpitz kpitz 51-55, M 1 Response Nov 19, 2009

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    Probably The Biggest Contributor To My Personality, Which Is Kind Of Sad

    I hate my body more than anything else in the world. It's weird, that the smoothness of you skin can affect who you are in such a dramatic way. At a young age, I knew I was different, and was incredibly insecure. You know how they say all bullies are insecure? Well I was a bully...
    flashman92 flashman92 18-21, M 8 Responses Sep 27, 2012

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    Me Too

    I know it's a big no-no but sun beds help with my ichytiosis amazingly. I'm 40 but have been managing this for most if my life. Have just bought some SR lotion and am waiting for it to arrive. Also find dermaltherapy a good brand to use. I absolutely hate the condition. I go...
    Thenunnery Thenunnery 41-45 3 Responses Jun 28, 2013

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    I Cry For My Baby

    My daughter is only 4 years old and started showing symptoms of IV at 3 months old. The drs kept telling us with skin treatments and special creams she would grow of it but as shes gotten older its gotten worse. She never gets a peaceful nights sleep, she wakes up in the middle...
    kykymom kykymom 26-30, F 1 Response May 27, 2011

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    Related Experiences

    Is that it is diet related! Most of the time. Dairy products are mainly the reason for outbreaks, as cows milks is designed for calfs and not humans, it's loaded with hormones, is...
    Whinny00 Whinny00 26-30, F 2 Responses Oct 25

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    Hey friends! I cannot thank you enough for all the amazing posts and comments you all have left me. You all gave me the support and confidence I needed and more! So I have good...
    Lovelaurenx3 Lovelaurenx3 18-21, F 6 Responses 17 hrs ago

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    And my alters have decided that they have found us the one. I'm just wondering if anyone else has alters like mine. Because of my alters all being me, and the fact that I have no...
    AbyssalSilence AbyssalSilence 13-15, F 9 hrs ago

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    I know that I definitely have depression and I suffer desperately from suicidal thoughts, but I shouldn't! I have a generally loving family, I am doing well for someone who is...
    PinkWink PinkWink 18-21, F 8 hrs ago

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    lately, ive been wanting to have a baby. i have a bf now but idk if i want to have a kid with him, at least not now...im not even sure if i want to have a kid yet either. i just...
    neesieluv neesieluv 22-25, F 6 hrs ago

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    Ok this is an odd and a very personal post. And pretty stupid too, so I hope you don't judge for my following feelings. I have been betrayed by god, big time.. the big guy...
    Melancholiactic Melancholiactic 22-25, M 2 Responses 3 hrs ago

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    Being stalked well was one of the weirdest and f**ked up time of my life, Recently Graduated tertiary studies and was about to join my dream career, So anyway at the start of 2013...
    Arizv11 Arizv11 18-21, M 2 hrs ago

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    People brag about having trust issues but that's how I can tell who does or does not have them because those of us who really have trust issues are at war with it. We don't like it...
    SheIsBroken SheIsBroken 18-21, F 4 Responses 15 hrs ago

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    People brag about having trust issues but that's how I can tell who does or does not have them because those of us who really have trust issues are at war with it. We don't like it...
    SheIsBroken SheIsBroken 18-21, F 1 Response 15 hrs ago

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    It's like 4 days before thanksgiving and I wasn't invited or heard anything from ANYONE in my family. I know me and my parents aren't talking but seriously? I know they are doing...
    kittcatt96 kittcatt96 18-21, F 7 hrs ago

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    I cannot look at him without every thought that I have ever had being sucked away from my grasp. I try to speak but nothing will come out. I will have a whole speech planed and...
    bjssoi bjssoi 31-35, F 53 mins ago

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    I used to have a love. He came to me when I least expected it and blindsided me. Somehow, he got past all my defenses and went straight for that secret place in my heart I'd...
    abrokenlittlegirl abrokenlittlegirl 46-50, F 2 Responses 15 hrs ago

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    I too would like to have nice breasts and bust line. I am man that has breasts. Since I have natural breasts I would like for them to be nice ones. I am currently a B cup. I think...
    Adam59 Adam59 56-60, M 13 hrs ago

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    Charming, attentive, interested, witty, flirtatious - these are all the traits. He knows exactly how to make a woman feel special, different from the rest, and like his one and...
    stiltcourt stiltcourt 41-45, F 2 Responses 12 hrs ago

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    I have a kiwi accent from having grown up in New Zealand. My mother is German though so I can speak German without my kiwi accent though. I am in China at the moment for 5 months...
    VelvetBoat VelvetBoat 18-21, F 2 Responses 11 hrs ago

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    I would too. As a male I have had breasts most of my life. Now I need a bra to support them. They feel good and I would like to have bigger breasts.
    Adam59 Adam59 56-60, M 1 Response 10 hrs ago

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    Married for 7 years, had an affair for over a year which ended at the start of August. Completely lost, thought husband and MM didn't love me, but they do. I hadn't realised until...
    michaelsotherwoman michaelsotherwoman 36-40, F 8 hrs ago

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    When I was 6 years old, my parents separated and I ended up moving in with my mom and step-dad, visiting my dad on the weekends. When I was 10 years old, the abuse started. It...
    sunisburning sunisburning 18-21, F 7 hrs ago

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    So about an hour ago, this guy called me a succubus in the middle of class because of the black mini and fishnet stockings Im wearing today (only because I'm going to surprise...
    HeyyMrsCarter HeyyMrsCarter 22-25, F 6 hrs ago

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    I hold his watch in my shaking hand I wish I’d have noticed he needed a new band It’s so beautiful with its diamonds and background of blue Just like the original owner’s...
    McCannT12 McCannT12 41-45, F 1 Response 6 hrs ago

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    i was just told i have Pcos couple days ago although i did my own research and knew i had it for years now it still doesnt seem fair on why we have to go through with this. i hate...
    jenny2491 jenny2491 22-25, F 5 hrs ago

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    I think I've become one of those people who doesn't shut up about their pets. Every time I see one of my roommates, I end up going on and on about something funny that Magic did...
    TheBadgeringWitness TheBadgeringWitness 26-30 1 Response 3 hrs ago

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    I have had a GJ tube for almost a year and recently (the past couple of weeks) it has been nothing but problematic. Whatever gets fed into the J part gets vented back out through...
    starasong starasong 22-25, F 3 hrs ago

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    I suffer severely with mental problems, I have so many cos of some ****** up things that have happened, plus I was never a "normal kid" anyway. I hate it, I can't make friends cos...
    kyleishurt kyleishurt 16-17, M 2 hrs ago

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    I have had herpes since 2011 and the doctor diagnosed it by the sores as something entirely else, but I know that is what it is. My fiance at the time had a cold sore on his mouth...
    iamdiva iamdiva 22-25, F 2 hrs ago

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    Things have become steadily worse over the last few weeks. The state of the house, the frequency of finding my obese roommate slung across the couch in a drug-induced stupor, and...
    signaltone signaltone 31-35, M 1 hr ago

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    I am tired of the endless favoritism my parents have always shown my sister. I am tired of the endless criticism. I am tired of the endless bullying from my mother and tired of...
    Bonaria Bonaria 41-45, F 1 Response 1 hr ago

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    My family and I were in China on a missions trip in my dream. During this trip, my husband, my three year old daughter Angelica and I went to the local market. At first, all...
    WarriorPrincess862 WarriorPrincess862 36-40, F 1 Response 17 hrs ago

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