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I Have Ichthyosis Vulgaris

A Ichthyosis Vulgaris anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ichthyosis Vulgaris. You're not alone. 51 People

    I have been a member of the Ichthyosis Vulgaris

    club for over sixty years. I just found the right drug. Acitretin 25 mg ... generic for Soriatane 25 mg. One pill per day, and I have skin like a baby. Price is very high (about 2,000.00 per month). You can not use this drug and plan to have children. You will also need a blood...
    Mark189 Mark189 61-65, M Feb 24

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    All My Life

    I have been afflicted with Ichthyosis Vulgaris all my life. I've bought expensive creams and lotions but recently I've found something simple that has the scales peeling like crazy and still leaving my skin soft. I use Palmer's cocoa butter lotion right after I step out of the...
    momosoftskn momosoftskn 36-40 Jan 27, 2013

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    I cannot stop crying right

    now :) :( tears of joy and sadness. Reading these stories bought me to tears. People that are like me!! On my body it causes my scaley skin and my hands and feet are wrinkly It took me until now to realize how much my setbacks revolve around this condition! I am 24 and still...
    teagoddess teagoddess 22-25, F 2 Responses Jul 3

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    Itch Till I Bleed

    I scratch so much till I bleed It is no fun having fish scales Have tryed many different lotions that didn't help.
    kpitz kpitz 51-55, M 1 Response Nov 19, 2009

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    Ichthyosis Vulgaris

    at 69 years old, I have suffered from ichthyosis vulgaris all my life.  Only recently have I found some relief from this skin disorder. After shower or bath, I slather my body with proyplene glycol (over the counter purchase at walmart pharmacy) while still wet ( I DO NOT towel...
    Daniel102 Daniel102 66-70 1 Response Mar 19, 2011

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    Still Dealing But Accepting

    As I just sat an read a lot of these posts I couldn't help but to ball my eyes out. They brought back so many memories of childhood. Being called an alligator and getting bullied on a daily basis if I wore shorts to school. I remember at an early age begging my parents to take...
    Jfallen Jfallen 31-35, F Nov 30, 2012

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    Accept It!

    I have been suffering from ichthyosis since birth... from scalp to my heels.. ! its been tough all through but now I have courage to lie the way i am.. accepted what I am.. and believe me its nobody's fault.. U have to accept.. It was you!I am 22.. n still one thing that I cant...
    motii motii 22-25 Jun 11, 2012

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    Ichthyosis Vulgaris Is Aggressive While Taking Sweets And Drinks Having Sugar

    Dear Friends, I also have Ichthyosis Vulgaris since almost 20 years.. I know , It is not my mistake. When i consult doctors, they are saying It is a Hereditary ichthyosis vulgaris. but i observed it on my legs with black spots during age 21. i feel it is an acquired...
    srinivasub srinivasub 41-45 Apr 6, 2013

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    Probably The Biggest Contributor To My Personality, Which Is Kind Of Sad

    I hate my body more than anything else in the world. It's weird, that the smoothness of you skin can affect who you are in such a dramatic way. At a young age, I knew I was different, and was incredibly insecure. You know how they say all bullies are insecure? Well I was a bully...
    flashman92 flashman92 18-21, M 8 Responses Sep 27, 2012

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    Scared but Hoping To Be Finally Happy

    i'm so glad to have come across this helpful site. i too, suffer from a form of itchyosis since i was born. Extremely dry skin all over and very deep fold and lines in my hands and feet. i am 43 years old and have a hands and feet of a 90 year old woman. My condition has been...
    foreverconcious foreverconcious 41-45, F 1 Response Aug 30, 2012

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    Hi every body. I hope I can add some extra help.

    I'm working for a thermal mineral water curing center in Turkey. We live very happy "skin diseases healing stories" including ichthyosis and i want to share it. I can give more details if you are interested in. My mail is raufunal@yahoo.com
    runal1 runal1 41-45, M Mar 10

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    I Am Beautiful :)

    I'm 19 and I have had Ichthyosis vulgaris since I was little, although I only came to know about the name of the skin disorder when I was 16. Since young, people have always commented about my rough skin - on how my palms have too many lines or how scaly my legs are. I had to put...
    lilian1993 lilian1993 18-21, F 4 Responses Jul 3, 2012

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    I Have Icthyosis Vulgaris

    This is the harsh story all icthyosis sufferers have to share but never get the chance to share until they find anonymous channels such as this. When we say we dont feel normal we know we sound off like the average human just self doubting their looks in comparison to social...
    anonymous1112 anonymous1112 18-21 1 Response Nov 3, 2012

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    Misguided For Years....now Truly Diagnosed

    ..with Ichthyosis Vulgaris. You see, for as long as I can remember, I have had severe dry skin---and was always told it was excema. As a child I would sit in a warm bath and de scale my legs. My scalp was always dry, my ears waxy. I knew I was "different", but dealt as best as I...
    Adrift4years Adrift4years 41-45 2 Responses Apr 17, 2012

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    Me Too

    I know it's a big no-no but sun beds help with my ichytiosis amazingly. I'm 40 but have been managing this for most if my life. Have just bought some SR lotion and am waiting for it to arrive. Also find dermaltherapy a good brand to use. I absolutely hate the condition. I go...
    Thenunnery Thenunnery 41-45 3 Responses Jun 28, 2013

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    I have struggled with icthyosis vulgaris

    for a long time . I first got diagnosed when i was 12 and have tried a myriad of creams and ointments without much success . It has been an extremely frustrating experience especially with very little knowledge of the condition among the general public . I started using a lotion...
    shetty87 shetty87 26-30, M Oct 12

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    I Cry For My Baby

    My daughter is only 4 years old and started showing symptoms of IV at 3 months old. The drs kept telling us with skin treatments and special creams she would grow of it but as shes gotten older its gotten worse. She never gets a peaceful nights sleep, she wakes up in the middle...
    kykymom kykymom 26-30, F 1 Response May 27, 2011

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    Another Ichthyosis Vulgaris Case

    I can relate to everyone saying they have this rare skin disorder because i have one too.   It all started when i was in college, fish scale thingy started to show in my thighs and legs.  I wad diagnosed with ichthyosis vulgaris.   I thought it can be...
    mjsalvador mjsalvador 31-35, F 6 Responses Apr 28, 2010

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    Itch Till I Bleed

    I scratch so much till I bleed It is no fun having fish scales Have tryed many different lotions that didn't help.
    kpitz kpitz 51-55, M 1 Response Nov 19, 2009

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    Related Experiences

    Is that it is diet related! Most of the time. Dairy products are mainly the reason for outbreaks, as cows milks is designed for calfs and not humans, it's loaded with hormones, is...
    Whinny00 Whinny00 26-30, F 2 Responses Oct 25

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    I have suffered from hh since about 16 years of age(I am now 40).I have generalised sweating when I am nervous or anxious only, although I do have more generalised sweating when...
    Shez74 Shez74 36-40, F 10 hrs ago

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    I'm only 20 and I feel I've been through hell in my life when I was younger I was emotionally and physically abused I've never felt loved or cared for until I met my husband in our...
    mzk94 mzk94 18-21, F 5 hrs ago

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    I'm 21 years old and have an anxiety disorder. I was borderline for most of my life, and then had a complication with an ADHD medication. This particular medication, Adderall...
    MidnightLaughter MidnightLaughter 18-21, F 4 hrs ago

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    As a senior in college, I live in an all boys' dorm. In the morning at 5 AM, there's a super hot freshman girl (age 18) who cleans the bathroom when I'm there. She's always happy...
    Triangulate Triangulate 22-25, M 1 Response 16 hrs ago

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    I think this is started in August,I have a crush on my classmate/friend,I don't know why,because this is the first that it occurred in my life.Not to mention,she's pretty,good at...
    kcjml07 kcjml07 13-15, F 2 Responses 12 hrs ago

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    Couldn't post this as a question because they don't give you enough room. I figured I needed to explain a little before posing the question, so here goes. My husband and I have...
    zanyzoey zanyzoey 36-40, F 5 Responses 11 hrs ago

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    Trying to cope with the upcoming holidays with My mom. I tend to believe because she demonstrates the signs of Borderline Personality Disorder. I am adopted and for years I felt...
    lynn0483 lynn0483 31-35, F 2 Responses 9 hrs ago

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    I have had selective mutism since 2nd grade. I was always unable to answer the questions the teachers ask me and i would never respond back. I always sat alone during recess and i...
    amivii amivii 16-17, F 1 Response 8 hrs ago

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    My relationship with my father means everything to me. We haven't been as close as we always were lately though. He's been working more since he started his small business and it...
    anonymoussouthernbabe anonymoussouthernbabe 16-17, F 5 hrs ago

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    In my old house I used to have a Rottweiler, name of course Roty. He was te runt and we chose him because we knew no ones else would. He was the only one who survived. He was my...
    ShadowedLover ShadowedLover 16-17, F 5 hrs ago

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    I think (know, really) that I must have BPD. But I still wish someone would validate me by telling me that I do... Any takers? This is desperate, I know...-I fly into a rage at my...
    phoenixsfire phoenixsfire 22-25, F 1 Response 4 hrs ago

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    I definitely have no problem with interracial relationships what so ever. I am a white female and I am married to a black male. I have been dating black men for 25 years now. I...
    mississippiblondegal mississippiblondegal 36-40, F 3 Responses 4 hrs ago

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    I'm always in the dark; hidden from sight. No one will ever find out who the real me is.. no one. Yes, my gleefulness and mildly-optimistic character is just a facade. I have an...
    mercifulpennies mercifulpennies 18-21, F 1 Response 3 hrs ago

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    what is your opinion on single sex schools? In my opinion - I think single sex schools are worse for students then co-educational schools. Single-sex schools are schools that only...
    sugarcakes143 sugarcakes143 18-21, F 23 mins ago

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    Thank you ep for being there thru a tough time in my life . I am leaving you but not without gaining something amazing . I met my bf here with no intent to do so . Yet blessed it...
    BornOnDaBayou337 BornOnDaBayou337 31-35, F 16 hrs ago

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    I have crazy strong feelings for matthew gray gubler, I've never been one to have crushes on celebrities... because I don't actually know the person and it's just so unrealistic...
    sofamiliaragleam sofamiliaragleam 18-21, F 1 Response 16 hrs ago

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    I been going to Greece every year for years in mid summer. On mykonos they have several clothing optional beaches. Most of the time I am the only one naked on them beaches. I see...
    Niko864 Niko864 41-45, M 15 hrs ago

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    I have mixed emotions about a certain person who I'm very close with. A part of me want everything that's best for them because of course me being your friend i want nothing but...
    cookii cookii 18-21, F 14 hrs ago

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    We have been through a lot these past months. But I know we will keep continuing to help each other out. He's so amazing and everything I have ever wanted. It's hard being 1,000...
    moonskull moonskull 13-15, F 13 hrs ago

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    Not really suppose to have feelings for a guy. But It's just he's cute, funny, sarcastic and when I'm around him I can't keep eye contact but I have to stop myself from looking at...
    JohnoCA JohnoCA 18-21, M 1 Response 11 hrs ago

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    Last year, my boyfriend got so tired of living in the loud city around neighbors who drove us crazy. He found a house 40 miles away in the country. I don't like the country, but I...
    screaminginside81 screaminginside81 31-35, F 1 Response 11 hrs ago

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    So far I ahve made a starfish (at a class) and a larger desert/cactus sunrise. I have drawn up a whale splashing in the moon nearly 3 feet by 2 feet. I can not wait to start it. I...
    ashorashe ashorashe 26-30, M 10 hrs ago

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    I just realized how much I hate the show keeping up with the kardashians. Really? A TV show literally because you people are rich and pretty? There are tons of people who are...
    sugarcakes143 sugarcakes143 18-21, F 10 Responses 8 hrs ago

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    I wish I had a social life! I had a great social life when I was in college, but then I moved away and so did my friends. I have since lost touch with them and moved back to my...
    lovingleila329 lovingleila329 22-25, F 6 hrs ago

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    I have so many favorable memories that I could never forget about. I have great memories from my school days, traveling to Europe, Hawaii and the other states, Australia, and...
    mississippiblondegal mississippiblondegal 36-40, F 2 Responses 5 hrs ago

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    Dreams can be based on hopes,fears and desires! I do believe dreams mean something like some dreams can be warning like letting you know something's wrong or something is going to...
    MilweePetite MilweePetite 18-21, F 4 hrs ago

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    Combine it with major depression and you have a classic recipe for disaster. I suppose as far as the condition goes it must be extremely common to suffer both at the same time...
    morea morea 22-25, F 4 hrs ago

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