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I Have Idiopathic Edema

A Idiopathic Edema anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Idiopathic Edema. You're not alone. 19 People

    Alive And Swollen

    I am 43 years old and was diagnosed with breast cancer this time last year.  I went throught chemo and radiation which were completed in May.  A few months ago I started putting on weight and swelling.  My kidneys, liver and heart are all ok.  Most of my...
    burkewife burkewife 41-45, F 2 Responses Oct 7, 2009

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    I have lost more babies

    than I can even count now. Twenty-two (yes 22!) babies have lived in my womb and have died. Each and every one of them have taken a toll on my heart, my marriage, our finances, and our lives. I want nothing more than to find a cure for this issue and give my husband a baby...
    CassiKaehn CassiKaehn 41-45 3 Responses Feb 14

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    I Am The Stay Puff Marshmallow Girl....

    It's been between 15-20 years since I started to suffer from Idiopathic Edema. I was sent to Endocrinologists first, who miss diagnosed me with Polycystic Ovary Syndrome - I was sent to Nephrologists who started out with 24 hour urine testing, blood work, and stating that I had...
    Sabrina41 Sabrina41 41-45 7 Responses Apr 1, 2011

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    Idiopathic Edema

    It has been a year and a half since I was diagnosed with ideopathic Edema. It is troubling because I get swelling on my lips, face and head. I started taking Benedryl to help the swelling to go down. After I while I thought that it disappeared and I was wrong. Now I take an...
    CurtisPhillips CurtisPhillips 51-55, M Jun 9, 2013

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    Stupid Edema!

    Has been bothering me for awhile.  I was trying to decide if I was really that fat or if it was swelling.  When I work I wear special socks for my plantar fasciitis.  When I wear those socks from the ankle down my feet are totally normal.  When I don't wear them my feet puff...
    katnipkitkat katnipkitkat 41-45, F Jul 26, 2011

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    Idiopathic Edema

    I've been dealing with this for approximately 2 1/2 years now. I can't take it anymore. I've had up to 35 lbs of extra fluid on me and doctors just don't care, tell me to deal with it. I cannot and will not go on like this. Does anyone have any stories of what's helped?
    mrg214 mrg214 31-35, F 1 Response Sep 25, 2012

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    Just Don't Know

    Well, i'm 16 i've had this since i was about seven. Back then the doctor thought i was allergic to dog hair, and then milk, and then sea food. but, i know my body and i knew it wasn't any of these.  I went to lubbock tx hospital and met a doctor that said it was idio edema. she...
    kattie13 kattie13 16-17, F 1 Response Jan 20, 2012

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    Anyone In The Northeast US With A Good Dr That Treats Idiopathic Edema

    i can't find any good docs. i live in pennsylvania. at this point, i'll go anywhere to see a doc!
    mrg214 mrg214 31-35, F 3 Responses May 15, 2013

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    I, too, had all the "normal" kidney,

    liver, heart, lung & thyroid function. Five different doctors had no idea what it was and merely suggested compression garments and low sodium diet. I am not overweight, not diabetic, and not depressed/anxious either. As a result of the edema, my legs began to cramp when I...
    ldrakecole ldrakecole 41-45, F Dec 11, 2013

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    Related Experiences

    Hi, I'm 14 years old and at the age of 13 i was diagnosed with scoliosis. This was such hard news to hear a i am a dedicated field hockey player, a dancer and a crops country...
    LiveLaughLoveDance LiveLaughLoveDance 13-15, F Oct 8

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    I have IBS (Irritable Bowel Syndrome). I've always had a very sensitive digestive system, but it became really bad in 2010-2011. It was triggered because I had severe depression...
    spacepixie spacepixie 22-25, F 1 Response 18 hrs ago

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    When I look back into my childhood, I could say that I was a happy-go-lucky child. I was one of those kids who played outside in clutters, with bikes, toys, and imagination. I didn...
    JumpingTomatoes JumpingTomatoes 16-17 17 hrs ago

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    i have a crush who works on another location but we have the same company. lets call her vina. shes the kind of girl who almost got my ideal one. shes simple, smart, caring, sweet...
    KeeyCharming KeeyCharming 22-25, F 1 Response 17 hrs ago

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    lasergraph lasergraph 61-65, M 7 Responses 15 hrs ago

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    Within the last year, I have developed an overwhelming urge to experience another man. To date I have been with 3 different guys. I have had oral, given oral, and bottomed. I have...
    dad3on26 dad3on26 51-55, M 1 Response 12 hrs ago

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    It's undiagnosed, as my other issues have taken precedence. The healthier I become, the more prominent my lesser problems become. And so it has come to this: I need to control my...
    adianoeta adianoeta 26-30, F 11 hrs ago

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    Yes I'm still alive, if it wasn't for my bf (now ex) and sister and her bf Doug I would have killed myself last night. I am checking myself in to a mental institution today to see...
    Rosaalie Rosaalie 18-21, F 2 Responses 9 hrs ago

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    Just recently found out I have PLS. I knew something was wrong and like many of you were looking in other medical directions for answers. I do feel fortunate that somehow (I'm sure...
    PGMasters PGMasters 51-55, F 9 hrs ago

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    I broke down yesterday. Between school, work, and him, I've been under too much stress. I was managing it to an extent, but the break up really pushed me over the edge. In a day I...
    danii92 danii92 18-21, F 8 hrs ago

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    So you may have seen my previous story of sleep paralysis, if not you may want to check it out. But to make a long story short, I am a long term sufferer and have experienced and...
    shellofaboy shellofaboy 18-21, M 1 Response 8 hrs ago

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    Sometimes, chaos comes into life catching you by surprise....The equilibrium you worked so hard to maintain is tipped off-balance....The ball of the pendulum is swayed from one...
    samemay54 samemay54 41-45, F 1 Response 20 hrs ago

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    Everybody has been on both sides of bullying. The bully and the victim, everybody, except maybe Gandhi. Throughout my career as a student in middle and high school, what I have...
    francake16 francake16 16-17, F 1 Response 18 hrs ago

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    Nudity isn't necessarily erotic; Children prove this to us everyday. In American society, however, we have been taught to believe that if someone is nude, we have to think of them...
    Ginkofishin Ginkofishin 18-21, F 5 Responses 17 hrs ago

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    Happy Friday...I would have been happier if I had a result. I'm just going to sit here and have a little cry. I'm too tired to be able to resist.
    cheekyhannah cheekyhannah 31-35, F 1 Response 17 hrs ago

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    I understand she is my mother and I am supposed to respect her yet I can't respect anyone who treats me the way she does. If we have a disagreement and we try to talk it out she...
    Saphic33 Saphic33 26-30, F 1 Response 17 hrs ago

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    I will have to wait for the positive people's story endings. One can't change their life until one wants to. Maybe, the love I have is only in my imagination? There were days of...
    redribbonbook redribbonbook 46-50 15 hrs ago

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    I have scars, which came after from some kind of infection. Its facial scars, on both sides of my cheeks. Its over 5 years ago now, and I still struggle with them. The worst part...
    melikebacon melikebacon 22-25, M 14 hrs ago

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    I used to be bulimic. It all started becasue of a guy I was dating. He thought I should lose a few pounds. I only weighed 125 pounds at the time. I thought I was in love so I...
    karidenley karidenley 18-21, F 1 Response 13 hrs ago

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    Tis better to have loved and lost than to have never loved at all.
    Shirousa Shirousa 22-25, F 1 Response 11 hrs ago

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    Linguistically speaking, we all have an accent. Americans have an accent to Europeans. LOL. So every single person on EP should be able to relate to this post-- of they can speak...
    mermaidstrandedonland mermaidstrandedonland 18-21, F 1 Response 11 hrs ago

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    Have snapchat but don't have many friends on it -.- anyone under 18 want to add me? My snapchat is patrick6cfc . Just want to have a nice chat with some people :)
    patrick6cfc patrick6cfc 16-17, M 11 hrs ago

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    I'm writing this now because I need to get it out. I'm having trouble deciding what to do. School's been out for a few months and since then I've tried a 30 day free trial period...
    ftmFreddy ftmFreddy 18-21, T 1 Response 8 hrs ago

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    I like to flirt and have a good time but I really just want a girl that I can devote myself to and have a serious relationship
    DKG96 DKG96 18-21, F 8 hrs ago

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    I have a friend who I will call Marie for privacy's sake. We have known each other for 15 years. I met Marie through her boyfriend at the time who happened to be my billiards...
    AnAutumnWind AnAutumnWind 36-40, M 8 hrs ago

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    I think I have post tramatic stress disorder I was raped a few months a go I have vivid nightmares where I wake up screaming and apartetly shouting no.I don't know what to do about...
    Confused848 Confused848 26-30, F 3 Responses 8 hrs ago

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    Is there anyone out there over 35 that have never had a boyfriend? Most of these similar experiences are from younger females that haven't even begun to experience life. I just...
    SW4225 SW4225 36-40 4 Responses 7 hrs ago

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    People often ask..."How can you guys do this? or "You let her sleep with other guys?" I have been reflecting back at my twenties and the 18 months before my wife and hooked up and...
    Garraway Garraway 46-50, M 1 Response 6 hrs ago

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    I wish I have a dream house. I don't have one yet.
    mother1983 mother1983 26-30, F 6 hrs ago

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    I have grand mal seizures and sometimes feel like I'm going to have a seizure but don't almost every day it's a living hell
    akumaumi akumaumi 18-21, M 6 hrs ago

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    I used have one but I had lost it. No I don't have one anymore.
    mother1983 mother1983 26-30, F 1 Response 5 hrs ago

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    Most of the time, it's fine that I don't have friends. But not too long ago, I went through a period where I wished I had some. My last girlfriend had been my best friend, and I...
    chickiebos chickiebos 31-35, F 5 hrs ago

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    I'm beginning to have trust issues today I know I shouldn't but it's getting worse Ever since my girlfriend left this site I don't know who to trust 😞 I feel so alone. No one...
    JonnyBurrows10 JonnyBurrows10 18-21, M 6 Responses 5 hrs ago

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    Would it make any difference if I said I loved you? Because I do, and no physical distance or social barriers are going to change that. The only thing that matters is what...
    hacky2012 hacky2012 18-21, F 1 Response 4 hrs ago

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    I have severe anxiety, when I was younger I would hide from everyone around me I wouldn't even eat the front of other people, i wouldn't walk up the street without fear. I have...
    Autumnflowers Autumnflowers 18-21, F 1 Response 2 hrs ago

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    This is in regards to EP user badcaseofthebefores If you have the time and the inclination Please read one of 'her' posts called 'I am a Meat Eater'.... Then read my response. Now...
    blackinc blackinc 70+, M 20 hrs ago

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    I have. I was ashamed at the times but now that I look back, I'm glad I did because it brought upon a feeling I don't want to feel again.
    clamthatjams clamthatjams 22-25, F 1 Response 20 hrs ago

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    EP has really screwed up my sleeping, because several nights in a row I have stayed up until ungodly hours waiting to talk to person, I thought was special. However I am wondering...
    RebekahWriter13 RebekahWriter13 31-35, F 4 Responses 20 hrs ago

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    I actually have three, or four with my grandmother's dog. They are a Staffordshire Bull Terrier, Cocker Spaniel, Bichon Frisé and Cavachon. It gets a bit mad at times.
    Sam1189 Sam1189 22-25, M 18 hrs ago