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I Have Idiopathic Edema

A Idiopathic Edema anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Idiopathic Edema. You're not alone. 19 People

    Stupid Edema!

    Has been bothering me for awhile.  I was trying to decide if I was really that fat or if it was swelling.  When I work I wear special socks for my plantar fasciitis.  When I wear those socks from the ankle down my feet are totally normal.  When I don't wear them my feet puff...
    katnipkitkat katnipkitkat 41-45, F Jul 26, 2011

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    Just Don't Know

    Well, i'm 16 i've had this since i was about seven. Back then the doctor thought i was allergic to dog hair, and then milk, and then sea food. but, i know my body and i knew it wasn't any of these.  I went to lubbock tx hospital and met a doctor that said it was idio edema. she...
    kattie13 kattie13 16-17, F 1 Response Jan 20, 2012

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    I, too, had all the "normal" kidney,

    liver, heart, lung & thyroid function. Five different doctors had no idea what it was and merely suggested compression garments and low sodium diet. I am not overweight, not diabetic, and not depressed/anxious either. As a result of the edema, my legs began to cramp when I...
    ldrakecole ldrakecole 46-50, F Dec 11, 2013

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    I have lost more babies

    than I can even count now. Twenty-two (yes 22!) babies have lived in my womb and have died. Each and every one of them have taken a toll on my heart, my marriage, our finances, and our lives. I want nothing more than to find a cure for this issue and give my husband a baby...
    CassiKaehn CassiKaehn 41-45 3 Responses Feb 14

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    I Am The Stay Puff Marshmallow Girl....

    It's been between 15-20 years since I started to suffer from Idiopathic Edema. I was sent to Endocrinologists first, who miss diagnosed me with Polycystic Ovary Syndrome - I was sent to Nephrologists who started out with 24 hour urine testing, blood work, and stating that I had...
    Sabrina41 Sabrina41 41-45 7 Responses Apr 1, 2011

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    Anyone In The Northeast US With A Good Dr That Treats Idiopathic Edema

    i can't find any good docs. i live in pennsylvania. at this point, i'll go anywhere to see a doc!
    mrg214 mrg214 31-35, F 3 Responses May 15, 2013

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    Idiopathic Edema

    It has been a year and a half since I was diagnosed with ideopathic Edema. It is troubling because I get swelling on my lips, face and head. I started taking Benedryl to help the swelling to go down. After I while I thought that it disappeared and I was wrong. Now I take an...
    CurtisPhillips CurtisPhillips 51-55, M Jun 9, 2013

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    Alive And Swollen

    I am 43 years old and was diagnosed with breast cancer this time last year.  I went throught chemo and radiation which were completed in May.  A few months ago I started putting on weight and swelling.  My kidneys, liver and heart are all ok.  Most of my...
    burkewife burkewife 41-45, F 2 Responses Oct 7, 2009

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    Idiopathic Edema

    I've been dealing with this for approximately 2 1/2 years now. I can't take it anymore. I've had up to 35 lbs of extra fluid on me and doctors just don't care, tell me to deal with it. I cannot and will not go on like this. Does anyone have any stories of what's helped?
    mrg214 mrg214 31-35, F 1 Response Sep 25, 2012

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    Related Experiences

    I am engaged to my best friend of 8 years, partner of 3 years who happens to be in the military. We both want kids someday. We are not in the situation currently to have a child...
    Lexx42 Lexx42 18-21, F 1 Response 20 hrs ago

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    A few years ago I was participating in a marathon event and at the half way mark I was super tired and felt just like I was running through treacle. As I am keen on fitness I...
    jjthornton jjthornton 41-45, M 18 hrs ago

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    It is so tough to change or heal. When for my entire adult life, I have been in bad relationships. I have no more relationships( boyfriends) the past 2 years but I still get...
    Howtobeme Howtobeme 51-55, F 12 hrs ago

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    Wonder if anyone can help. Ive been in a relationship with a Romanian man for just over 7 months now. I myself am british and although at first there were language barriers its...
    beckalem beckalem 36-40, F 5 Responses 11 hrs ago

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    I have been this way since I was 12 Yrs old, due to my parents divorcing and me having to live in 2 other towns at different times. I became suicidal at age 15 and that lasted up...
    psychologicallydamaged psychologicallydamaged 41-45, F 11 hrs ago

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    I want Confindence in myself. I have been battling what i now know as rosacea since i was 12. In turn its made me extremely shy and self conscious about myself. I don't have flare...
    ARP90 ARP90 22-25, F 8 hrs ago

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    The Royal Library of Alexandria EXISTS! By Paul Dale Roberts, HPI Esoteric Detective Halo Paranormal Investigations - HPI International https://www.facebook.com/#!/groups...
    PaulDaleRoberts PaulDaleRoberts 51-55, M 8 hrs ago

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    Am I the only one who hates that we HAVE to rely on people to live. We have to rely on doctors to help when sick, same with surgeons. We have to rely on farmers to get us our food...
    akaShaun akaShaun 16-17, M 5 Responses 6 hrs ago

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    Live And Let Live. (EP Edition)This website has been up since 2007.Millions of people have joined since. From different backgrounds. Different lifestyles. Different views and...
    DoctorSheldonCooper DoctorSheldonCooper 18-21 5 hrs ago

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    Seriously! at my age my friends are always teasing me for being single, their words are "When are you going to sentenced yourself to life imprisonment" and i am just trying to joke...
    ShadesofWhite67 ShadesofWhite67 26-30, F 1 Response 2 hrs ago

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    Some people say love is hard. Some say true love is even harder. Is it true? I'm not the one to answer that question. When it comes to love I'm a three time loser. Can I say I was...
    Leeza1964 Leeza1964 46-50, M 1 Response 44 mins ago

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    Just found out... I wasn't surprised when the doctor told me the news. I had already been doing my research on it and my symptoms were practically identical to everything I was...
    anomalnonomous anomalnonomous 26-30, F 1 Response 19 hrs ago

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    sorry i need to vent yesterday i found out tmy mom does have lung cancer im probably youn g i went had a few glasses of wine then i was like a kid phoned people its cause im not a...
    hannahabbie hannahabbie 46-50, F 15 hrs ago

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    Top 4 questions/requests people have asked me by mail. 1) Hi ZA, why do health experts say light Brown three are the healthiest stools? Anyway we can achieve it too? My A to him...
    ZADoubleMesser ZADoubleMesser 22-25, F 13 hrs ago

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    If at least two of them have a Yes as your answer, you're a great friend to bond with :) 1. Do you enjoy messing yourself? 2. Do you enjoy messing stuff up? 3. Do you plan your...
    ZADoubleMesser ZADoubleMesser 22-25, F 13 hrs ago

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    Let's talk about sp*rm donors. Okay, so, ever think that popular sp*rm donors ever wonder how many children they have out there? (Imagine like 20+ kids o_o) (now I know this one...
    sugarcakes143 sugarcakes143 18-21, F 2 Responses 10 hrs ago

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    i'm only 15, and i have so many issues and have made so many mistakes that i regret. i also have been heart broken, i swear to god i thought i was f*cking dying. it hurt so bad. it...
    courtneythepizzaqueen courtneythepizzaqueen 13-15, F 1 Response 9 hrs ago

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    well the reason i've never dated anyone is because the schools i went to all had really mean students that bullied me all the time mainly because i have long hair, have acne, and...
    viper1024 viper1024 16-17, M 5 hrs ago

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    some ****** up ******* wrote this scenario. It's time to start fancying it if there is no other job. Why are you so upset? asked the Donkey. I am to play the role of a heroine...
    redribbonbook redribbonbook 46-50 4 hrs ago

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    So it's raining now. I was late today,about 15mins..Not good,I arrived at 6.45 am. Weird dream, that's the culprit. I'm on duty with my female colleague today so its kinda...
    DNightTrain DNightTrain 26-30, M 3 hrs ago

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    I think. I'm no doctor, but I was reading the symptoms and I know I know that's no way tell tell if you have it. I'm emotionless, I don't make eye contact, I'm clumsy and awkward...
    PsychedelicSmile PsychedelicSmile 18-21, F 3 hrs ago

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    Dreamt about my old crush approaching me then he said in my ear "I have a gf that I miss so much. Why did you leave without telling me?" Then when things got existing I woke up...
    itsjustme11119 itsjustme11119 16-17, F 1 Response 21 hrs ago

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    Sorry just deleting some people on my circle. I'd rather have few on my circle than have a long list but you never actually spoken to them.
    Lakee112812 Lakee112812 36-40, F 2 Responses 18 hrs ago

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    For most of my adult life I've suffered from alcoholism. For years I lived under the illusion of control, 'I got this, I can handle this, I know what I'm doing' were my standard...
    Allysoninaz Allysoninaz 46-50 2 Responses 14 hrs ago

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    I want to know, have you ever seen the rain? I want to know, have you ever seen the rain Comin' down on a sunny day?
    jml2000 jml2000 56-60, M 13 hrs ago

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    This certain friend crush thing is weird. I knew I liked him as a friend but but took me half a year to figure out that I had an insanely huge crush on him. He was just walking by...
    fivesaucewhoop fivesaucewhoop 13-15, F 12 hrs ago

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    Here's one that shouldn't have been too big of a deal- but it was.Some of you know the Honesty Box app on Facebook. It's where one can anonymously say what they think about another...
    insidious2014 insidious2014 18-21, M 1 Response 11 hrs ago

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    well.i had to face my fast again through a friend I know who told me to see a specialist who cure ppl throw energy of color and yoga etc..so I went to her and I was so nervous. She...
    denez denez 22-25, F 10 hrs ago

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    I've never trusted anyone in my entire life. not even the people I love the most in my life. I mean you have to have basic trust in people to do simple things but trusting...
    pikapup17 pikapup17 18-21 10 hrs ago

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    I have, yes it isn't something I'm proud of. And I know I shouldn't have. I know I shouldn't. So why do I? I don't know.
    wedgieshurtalot wedgieshurtalot 16-17, F 2 Responses 9 hrs ago

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    I don't have a brother. I have 3 brothers. Their way older then me. Same for sisters way older then me :(
    lorrena19 lorrena19 18-21, F 1 Response 9 hrs ago

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    I have self harmed for quite a long time, though it has been around three months since I last did it and I really hope that I can keep it up. Though I try not to be ashamed of my...
    ExPButterfly ExPButterfly 16-17, F 1 Response 7 hrs ago

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    I am partially incontinent due to a minor car accident and a childhood psychological block in my unconscious. Most days I have bladder control. But on occasional days, I have no...
    heyimalive heyimalive 18-21, M 5 hrs ago

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    I like talking about haircuts but I really would like to find a girl that wants to actually cut her hair. More precisely have it cut by me. There are so many girls here that have...
    Jackson3421 Jackson3421 31-35, M 2 Responses 5 hrs ago

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    A prospective client contacted me for a job. It's a dream job I'd gladly do with him. He's from Italy. And yet, he's a stranger. I've never met the guy before other than email and...
    bowbowdown bowbowdown 26-30 1 Response 4 hrs ago

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    Indeed I do. I think I get this from my Aunt - since she's the only one in my family that has this. (that I know of). In our case, we have : "winter depression" or also known as...
    sugarcakes143 sugarcakes143 18-21, F 1 Response 3 hrs ago

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    I have seen some girls get disgusted when they're drinking something, then their boyfriend drinks out of the same bottle as them... I don't get it. You can swap spit, play tonsil...
    sugarcakes143 sugarcakes143 18-21, F 3 hrs ago