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I Have Idiopathic Edema

A Idiopathic Edema anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Idiopathic Edema. You're not alone. 18 People

    I Am The Stay Puff Marshmallow Girl....

    It's been between 15-20 years since I started to suffer from Idiopathic Edema. I was sent to Endocrinologists first, who miss diagnosed me with Polycystic Ovary Syndrome - I was sent to Nephrologists who started out with 24 hour urine testing, blood work, and stating that I had...
    Sabrina41 Sabrina41 41-45 7 Responses Apr 1, 2011

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    Idiopathic Edema

    I've been dealing with this for approximately 2 1/2 years now. I can't take it anymore. I've had up to 35 lbs of extra fluid on me and doctors just don't care, tell me to deal with it. I cannot and will not go on like this. Does anyone have any stories of what's helped?
    mrg214 mrg214 31-35, F 1 Response Sep 25, 2012

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    I have lost more babies

    than I can even count now. Twenty-two (yes 22!) babies have lived in my womb and have died. Each and every one of them have taken a toll on my heart, my marriage, our finances, and our lives. I want nothing more than to find a cure for this issue and give my husband a baby...
    CassiKaehn CassiKaehn 41-45 3 Responses Feb 14

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    Idiopathic Edema

    It has been a year and a half since I was diagnosed with ideopathic Edema. It is troubling because I get swelling on my lips, face and head. I started taking Benedryl to help the swelling to go down. After I while I thought that it disappeared and I was wrong. Now I take an...
    CurtisPhillips CurtisPhillips 51-55, M Jun 9, 2013

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    I, too, had all the "normal" kidney,

    liver, heart, lung & thyroid function. Five different doctors had no idea what it was and merely suggested compression garments and low sodium diet. I am not overweight, not diabetic, and not depressed/anxious either. As a result of the edema, my legs began to cramp when I...
    ldrakecole ldrakecole 41-45, F Dec 11, 2013

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    Just Don't Know

    Well, i'm 16 i've had this since i was about seven. Back then the doctor thought i was allergic to dog hair, and then milk, and then sea food. but, i know my body and i knew it wasn't any of these.  I went to lubbock tx hospital and met a doctor that said it was idio edema. she...
    kattie13 kattie13 16-17, F 1 Response Jan 20, 2012

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    Anyone In The Northeast US With A Good Dr That Treats Idiopathic Edema

    i can't find any good docs. i live in pennsylvania. at this point, i'll go anywhere to see a doc!
    mrg214 mrg214 31-35, F 3 Responses May 15, 2013

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    Alive And Swollen

    I am 43 years old and was diagnosed with breast cancer this time last year.  I went throught chemo and radiation which were completed in May.  A few months ago I started putting on weight and swelling.  My kidneys, liver and heart are all ok.  Most of my...
    burkewife burkewife 41-45, F 2 Responses Oct 7, 2009

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    Stupid Edema!

    Has been bothering me for awhile.  I was trying to decide if I was really that fat or if it was swelling.  When I work I wear special socks for my plantar fasciitis.  When I wear those socks from the ankle down my feet are totally normal.  When I don't wear them my feet puff...
    katnipkitkat katnipkitkat 41-45, F Jul 26, 2011

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    Related Experiences

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    I was just diagnosed with Forestier's Disease or DISH...Diffuse Idiopathic Skeletal Hyperostosisin in my lower spine. I've had weakness in my legs, lower back for the past 4...
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    I have taken three classes with one professor. Initially, he was just a teacher to me. Gradually, he became so much more. He is funny, intelligent, and down to earth - as well as...
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    After losing such a close friend it has become more evident that the stigma that comes with someone being mentally ill needs to be removed. Depression, anxiety, panic attacks etc...
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    I just love them. Everyone with their own personalities. It is nice to have a common space and the occasional inbox. Everyone in my circle is a LOVER in the sense of caring for...
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    It doesnt just end there... I have an interest in women who are big in various ways. If they have huge boobs, its incredibly attractive. Watching them grow bigger? Even more...
    chemicals14 chemicals14 22-25, M 5 hrs ago

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    Learning to love my body has got to be the hardest task I have ever tried! Years of been told you are fat, years of been told you are horrible have taken their toll! I've cried a...
    Sandyshaw13 Sandyshaw13 36-40, F 1 Response 5 hrs ago

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    I battle GAD every time something new happens in my life. Am I only suppose to live in a confined space where nothing new happens? But I find that I do live there in my little...
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    My eyes change colours all the time and I never know what to say when people ask what colour they are. But on the bright side I always get told I have beautiful or gorgeous eyes!
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    Actually I have no friends right now. But when I did have friends it used to be more guys than girls. Not because girls suck or anything(no pun intended)but because of my own...
    nekerd nekerd 18-21, F 1 Response 2 hrs ago

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    I have ocd, if something isn't in the right spot or facing the right way it drives me nuts. Oh well :-)
    sweetlikesuga sweetlikesuga 26-30, F 1 Response 6 hrs ago

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    Bills, bills, and more bills. Why haven't these people figured out I dont want them! Ahhhhhh!
    danii92 danii92 18-21, F 6 hrs ago

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    THIS IS A REAL AND LEGITMATE FORM OF ABUSE. I struggle with the fact that not only was my ex emotionally abusive, but so was my own father. I can legitimately say that I am...
    cemarie128 cemarie128 18-21, F 1 Response 6 hrs ago

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    It's hard to explain. I am sick of being used as fwb. I don't wanna b ****** with no more. But I also miss that attention. Just receiving any form of attention from a guy. I feel...
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    After a testy relationship with a mentally unstable woman, of which many lies were spit from her very mouth to my face, I had to leave her. I had a daughter who was tiny, and she...
    brainbroodling brainbroodling 26-30, M 1 Response 5 hrs ago

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    Hi, my fish have got white spot. I've don't tank clean n turned up heater, done salt, anything else to do before medication?? Cheers
    MostlyHorny MostlyHorny 36-40, M 1 Response 4 hrs ago

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    Well, it saves you money that you would have used buying lip balm, every little helps..
    NTC123 NTC123 13-15, F 1 Response 3 hrs ago

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    I have a crush on my drug dealer. He's a super friendly and ******* interesting guy and I love to be around him... Only thing is he has a girlfriend and that's shady.
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    Iv had it for a while now, i used to have a i phone 3 but i was fishing with my brother and it fell outta my pocket into the lake and it was about 50 degreese outside and i had to...
    RavenHearts RavenHearts 16-17, F 1 Response 1 hr ago

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    Indeed I have! The first was in February 1979 in the fridgid state of North Dakota. The second was in July 1991 in Mexico. Magnificent, awesome, incredible. Stars become visible...
    CinnamonSusan CinnamonSusan 41-45, M 1 hr ago

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    It's hereditary.. I remember the doctor telling me when I was kid, "Only five percent of people never outgrow a stutter. So you should be okay." I found out later that the chances...
    adorea adorea 70+, F 53 mins ago

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    Life will have it's ups and downs, be happy with the ups and deal with or turn the downs into ups.
    KawaiiBoy KawaiiBoy 18-21, M 41 mins ago

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    lets have some fun. Looking for like minded people.
    BUC01 BUC01 41-45, M 8 mins ago

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    Whois always doing the best for me and since I've been with her, I have get to cheat.I am more than happy to be able to say in august it will be 1yr
    Marwil4real Marwil4real 22-25, M Mar 23

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    I was never sick as a child-actually, quite the opposite. I was strong, rambunctious, energetic, and was constantly getting in to this I wasn't supposed to. Lol. So, fast forward...
    RustyJames2130 RustyJames2130 31-35, F Mar 23

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    REALWORDS823 REALWORDS823 16-17, F 1 Response Mar 23

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    I have borderline personality disorder, major depression, anxiety and EDNOS.
    elleohzed elleohzed 22-25, F 1 Response Mar 23

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    It all happened yesterday. I went out to a work dinner party and we had free drinks from my boss. We all got wasted drunk. There was a new coworker from Texas and him and I got...
    hellsvien hellsvien 22-25, M 1 Response Mar 23

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    TubaAtheist TubaAtheist 18-21, F Mar 23

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    Within the past few months a few strangers have came up to me and pulled me a aside to tell me that my aura is strong and that they are drawn to me. They tell me a few things. Well...
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    How do you handle fear and anxiety? I always have this thought that i am not good enough, i cant stop comparing myself.
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    this is true,I have such fantasies,I also want stranger girls telling me about sex experiences or their kinky fantasies.
    areermetr areermetr 22-25, M 1 Response