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I Have Idiopathic Edema

A Idiopathic Edema anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Idiopathic Edema. You're not alone. 18 People

    Just Don't Know

    Well, i'm 16 i've had this since i was about seven. Back then the doctor thought i was allergic to dog hair, and then milk, and then sea food. but, i know my body and i knew it wasn't any of these.  I went to lubbock tx hospital and met a doctor that said it was idio edema. she...
    kattie13 kattie13 16-17, F 1 Response Jan 20, 2012

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    Idiopathic Edema

    It has been a year and a half since I was diagnosed with ideopathic Edema. It is troubling because I get swelling on my lips, face and head. I started taking Benedryl to help the swelling to go down. After I while I thought that it disappeared and I was wrong. Now I take an...
    CurtisPhillips CurtisPhillips 51-55, M Jun 9, 2013

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    I have lost more babies

    than I can even count now. Twenty-two (yes 22!) babies have lived in my womb and have died. Each and every one of them have taken a toll on my heart, my marriage, our finances, and our lives. I want nothing more than to find a cure for this issue and give my husband a baby...
    CassiKaehn CassiKaehn 41-45 3 Responses Feb 14

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    I, too, had all the "normal" kidney,

    liver, heart, lung & thyroid function. Five different doctors had no idea what it was and merely suggested compression garments and low sodium diet. I am not overweight, not diabetic, and not depressed/anxious either. As a result of the edema, my legs began to cramp when I...
    ldrakecole ldrakecole 41-45, F Dec 11, 2013

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    Stupid Edema!

    Has been bothering me for awhile.  I was trying to decide if I was really that fat or if it was swelling.  When I work I wear special socks for my plantar fasciitis.  When I wear those socks from the ankle down my feet are totally normal.  When I don't wear them my feet puff...
    katnipkitkat katnipkitkat 41-45, F Jul 26, 2011

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    Anyone In The Northeast US With A Good Dr That Treats Idiopathic Edema

    i can't find any good docs. i live in pennsylvania. at this point, i'll go anywhere to see a doc!
    mrg214 mrg214 31-35, F 3 Responses May 15, 2013

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    I Am The Stay Puff Marshmallow Girl....

    It's been between 15-20 years since I started to suffer from Idiopathic Edema. I was sent to Endocrinologists first, who miss diagnosed me with Polycystic Ovary Syndrome - I was sent to Nephrologists who started out with 24 hour urine testing, blood work, and stating that I had...
    Sabrina41 Sabrina41 41-45 7 Responses Apr 1, 2011

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    Idiopathic Edema

    I've been dealing with this for approximately 2 1/2 years now. I can't take it anymore. I've had up to 35 lbs of extra fluid on me and doctors just don't care, tell me to deal with it. I cannot and will not go on like this. Does anyone have any stories of what's helped?
    mrg214 mrg214 31-35, F 1 Response Sep 25, 2012

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    Alive And Swollen

    I am 43 years old and was diagnosed with breast cancer this time last year.  I went throught chemo and radiation which were completed in May.  A few months ago I started putting on weight and swelling.  My kidneys, liver and heart are all ok.  Most of my...
    burkewife burkewife 41-45, F 2 Responses Oct 7, 2009

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    Related Experiences

    I have had this feeling all of my life just simple things to start with such as I just knew that a car was coming around the corner (living in the mountains of Kentucky on one-lane...
    Danni1982 Danni1982 31-35, F 9 hrs ago

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    Hey everyone. I hope my experience can help people just as much as so many of your experiences have helped me. Im 26 and have had HS for 9 years (i think) thats how long i can...
    Meganvan Meganvan 26-30, F 1 Response 2 hrs ago

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    Here's something for you guys. Ok, if anyone is interested, I am a man and I can have multiple orgas.ms. Yes, it's possible for males also. Actually, there is a slight difference...
    Vrime Vrime 22-25, M 1 Response 1 hr ago

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    Im 23 years old i have a half sister from my father samuel bracey. All i know about my sister is her name is Heather she is 6months younger then i am so she would have been born in...
    jessicawilliamson jessicawilliamson 22-25, F 9 hrs ago

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    I can't be sure and I don't want to be sure. But I have a feeling that its true. It's a very strange story I have only told 1 person and I think they judge me because of it. I...
    whatevernobody whatevernobody 31-35, F 1 Response 7 hrs ago

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    This awful disease makes me think terrible things that I really don't want to think about then it makes me want to confess them to someone, especially if the thoughts involve them...
    somethingx3 somethingx3 31-35, M 1 Response 5 hrs ago

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    i have worn lipstick lots of times when i have privacy, i just love the way it looks on my lips. my favourite colors of lipstick are red, hot pink and black, was thinking of trying...
    girlsrule2015 girlsrule2015 26-30, M 1 Response 4 hrs ago

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    It's so difficult.. I am a graduate student, and I've always done well academically. But sometimes I get so consumed in self-doubt and anxiety that I have forgotten something or...
    BeautifulinElevation BeautifulinElevation 22-25, F 1 Response 3 hrs ago

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    It affects my life far too much. Even in 'relaxed' situations such as going for a drink, my legs feel jelly, breathing is sometimes laboured, I'm hypervigilant and want to be near...
    Reallifeperson Reallifeperson 22-25, M 1 Response 3 hrs ago

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    This actually still scares me when I think about it so maybe it's good to get it out. Two of my closest female friends knew this guy. I never really knew much about him besides...
    Bewail Bewail 22-25, F 4 Responses 3 hrs ago

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    I fell from the stairs at school about one story high and knocked myself out 😓 and by the time I woke up (just now) I find my big brother going through my phone (Bruno I'm so...
    johannesc4 johannesc4 13-15, M 3 hrs ago

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    Ive had friends I've talked to on the phone and thru video chat saying i have a calm voice haha i just simply talk and try not to be boring Thanks for reading!
    goofysk8 goofysk8 22-25 9 mins ago

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    I have one again, hopefully this goes better than all those others, even the after effects. Wish me luck.
    LilRedFoxTail LilRedFoxTail 18-21, M 1 Response 9 hrs ago

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    Mortal kombat, street fighter I want those games at this moment would have been a nice mind blowing distraction it's so much fun
    xomariposaxo xomariposaxo 26-30, F 3 Responses 8 hrs ago

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    There have been a few that had their friends tell me in the past, but I always wondered who else had a crush on me.
    roselani2005 roselani2005 26-30, F 8 hrs ago

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    I have a pretty decent size penis. It's thick, veiny, brown, heavy and it's long. My gf loves it :)
    youguyssuck69 youguyssuck69 18-21, M 8 hrs ago

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    My toes are long and bony. "Finger toes" is what everyone who looks at them says! I have had more than one man look at me feet and say "Well, I knew there had to be a flaw...
    greeneyedlifenewb greeneyedlifenewb 26-30, F 1 Response 6 hrs ago

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    I lived in Tennessee for a few years then moved into the city so my accent faded but I have an accent on some words and my friends figured out the words and always find ways to get...
    ooprincess27oo ooprincess27oo 18-21, F 6 hrs ago

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    I have to finish that past year differential equations paper by to night. If I don't, u all are welcome to say rude and mean things bout me loot at my stories and experiences. See...
    minyue minyue 18-21, F 2 Responses 5 hrs ago

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    I have commitment issues. Acceptance is the first stage in recovery :)
    VousEtesBelleCM VousEtesBelleCM 18-21, F 1 Response 5 hrs ago

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    I wanna make friends with people that understand hat I'm going through. People who have been with or are with drug addicts. Or new mothers. Or people who suffer with depression...
    flosserette flosserette 18-21, F 5 hrs ago

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    Jesikah,i have been told its rare for the spelling
    jesikahluv jesikahluv 18-21, F 4 hrs ago

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    I have to admit I am a sucker for adorable black guys 💖 I think their skin colour makes their smile more obvious which is something that I think makes people happy 😊😊
    tealeaf5 tealeaf5 18-21, F 2 Responses 3 hrs ago

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    Your Dominant Intelligence is Logical-Mathematical Intelligence. You are great at finding patterns and relationships between things. Always curious about how things work, you...
    iwantacar98 iwantacar98 16-17, M 2 hrs ago

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    Oh several I expect. Guilty pleasures are my reward for whatever else I have to deal with.
    picklebobble picklebobble 46-50, M 2 hrs ago

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    I have just been diagnosed with dry AMD. I'm finding it very hard to accept and keep crying all the time. Its in the very early stages apparently. Is there anything anywhere I can...
    Lottie4me Lottie4me 70+ 1 hr ago

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    Hi, I've read a lot of your experiences and most of you talk about "black outs". How does it feel? How can your alters be so disrespectful towards you? I want to know because mine...
    SemperFilthy SemperFilthy 16-17, F 1 Response 1 hr ago

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    I have nothing but admiration for artists and potters. Painters and the like. But. Sad to say. There's more talent in a biro than there is in me. Couldn't draw a straight line if...
    picklebobble picklebobble 46-50, M 1 Response 1 hr ago

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    This girl at work said she wanted us to talk and get closer we talked for about 4 days and nothing bad was ever said but I haven't gotten any responses to my text
    mybigcock696969 mybigcock696969 41-45, M 1 Response 25 mins ago

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    Can't live to my age and not have a few "Phew. That was close!" Moments.!!
    picklebobble picklebobble 46-50, M 16 mins ago

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    Wilfred is over! Damnit! Man why does everything have to end?? The finale was satisfying, yet it wasn't. Didn't really give me that much closure with what the show was all about...
    DrakeLineous DrakeLineous 22-25, M Aug 16

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    I hate this. Been waiting to hear back from this job but they haven't been in contact since I went in for the induction. Since then I've just lost motivation to wake up or do...
    TaylaT21 TaylaT21 18-21, F Aug 16

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    Well...I stayed and I am still in the same boat! Sitting here, he is passed out drunk AGAIN! AS USUAL! WTF is wrong with me? I let him fool me once again. I think I am scared. I...
    ShonieGETYOLIFE1 ShonieGETYOLIFE1 36-40, F Aug 16

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    I have a crush in the other class at my school and I only get to see him 20 min and I don't know if he likes me back I need advice
    Midnightthetimberwolf Midnightthetimberwolf 13-15, F 1 Response Aug 16

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    My mom is not as mentally Ill but instead mentally disabled. It has been difficult growing up with her because the doctors have said she had the mentality of a 12 year old. So my...
    MacKenziePatriciaLee MacKenziePatriciaLee 16-17, F Aug 16

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    And I feel like she's trying to control me... I know that we all have things we like and dislike, but we shouldn't shove it down each other's throats. I like manga, and I like...
    melodicnoodles melodicnoodles 16-17, F 1 Response Aug 16

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    I have really bad anxiety attacks. I almost died a few nights ago because of a dizzy spell that triggered my anxiety attack, and they did not blend well. I've been really freaking...
    myusername22 myusername22 13-15, F Aug 16

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    Why is it difficult for me to make and keep my friends? I have accumulated sufficient social knowledge and experience to be able to make a good judgement over social issues. To...
    spinningtime7 spinningtime7 18-21, M Aug 16

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    Took my wig off for a growth check. I feel great. I still have some work to do. Every year I get better with pulling in this area . I've accepted the fact that no matter how much...
    niko031 niko031 16-17, F 2 Responses Aug 16

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