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I Have Idiopathic Edema

A Idiopathic Edema anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Idiopathic Edema. You're not alone. 19 People

    Stupid Edema!

    Has been bothering me for awhile.  I was trying to decide if I was really that fat or if it was swelling.  When I work I wear special socks for my plantar fasciitis.  When I wear those socks from the ankle down my feet are totally normal.  When I don't wear them my feet puff...
    katnipkitkat katnipkitkat 41-45, F Jul 26, 2011

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    Anyone In The Northeast US With A Good Dr That Treats Idiopathic Edema

    i can't find any good docs. i live in pennsylvania. at this point, i'll go anywhere to see a doc!
    mrg214 mrg214 31-35, F 3 Responses May 15, 2013

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    Idiopathic Edema

    I've been dealing with this for approximately 2 1/2 years now. I can't take it anymore. I've had up to 35 lbs of extra fluid on me and doctors just don't care, tell me to deal with it. I cannot and will not go on like this. Does anyone have any stories of what's helped?
    mrg214 mrg214 31-35, F 1 Response Sep 25, 2012

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    Idiopathic Edema

    It has been a year and a half since I was diagnosed with ideopathic Edema. It is troubling because I get swelling on my lips, face and head. I started taking Benedryl to help the swelling to go down. After I while I thought that it disappeared and I was wrong. Now I take an...
    CurtisPhillips CurtisPhillips 51-55, M Jun 9, 2013

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    Just Don't Know

    Well, i'm 16 i've had this since i was about seven. Back then the doctor thought i was allergic to dog hair, and then milk, and then sea food. but, i know my body and i knew it wasn't any of these.  I went to lubbock tx hospital and met a doctor that said it was idio edema. she...
    kattie13 kattie13 16-17, F 1 Response Jan 20, 2012

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    I Am The Stay Puff Marshmallow Girl....

    It's been between 15-20 years since I started to suffer from Idiopathic Edema. I was sent to Endocrinologists first, who miss diagnosed me with Polycystic Ovary Syndrome - I was sent to Nephrologists who started out with 24 hour urine testing, blood work, and stating that I had...
    Sabrina41 Sabrina41 41-45 7 Responses Apr 1, 2011

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    Alive And Swollen

    I am 43 years old and was diagnosed with breast cancer this time last year.  I went throught chemo and radiation which were completed in May.  A few months ago I started putting on weight and swelling.  My kidneys, liver and heart are all ok.  Most of my...
    burkewife burkewife 41-45, F 2 Responses Oct 7, 2009

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    I have lost more babies

    than I can even count now. Twenty-two (yes 22!) babies have lived in my womb and have died. Each and every one of them have taken a toll on my heart, my marriage, our finances, and our lives. I want nothing more than to find a cure for this issue and give my husband a baby...
    CassiKaehn CassiKaehn 41-45 3 Responses Feb 14

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    I, too, had all the "normal" kidney,

    liver, heart, lung & thyroid function. Five different doctors had no idea what it was and merely suggested compression garments and low sodium diet. I am not overweight, not diabetic, and not depressed/anxious either. As a result of the edema, my legs began to cramp when I...
    ldrakecole ldrakecole 41-45, F Dec 11, 2013

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    Related Experiences

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    I've only told one person about this my entire life, and now that person is no longer in my life yet even then, I didn't tell him the whole truth. Such is my disease. I am a...
    FireCoyote FireCoyote 26-30, F 6 hrs ago

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    Its just too soon. Too soon for me to think that you would truly care Too soon for me to have thought that you were true Too soon for me to have been dreaming of the future...
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    Avonexveteran Avonexveteran 56-60, M 4 hrs ago

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    NaturallyPeculiar NaturallyPeculiar 18-21, F 1 hr ago

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    Hi Guys..ok i really need your help.. It's a very long story but I will try to shorten it..i think that's why I'm in EP, I was trying to tell my story..because I needed advices...
    Wildyoungfree Wildyoungfree 22-25, F 1 hr ago

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    Hi Guys..ok i really need your help.. It's a very long story but I will try to shorten it..i think that's why I'm in EP, I was trying to tell my story..because I needed advices...
    Wildyoungfree Wildyoungfree 22-25, F 1 Response 1 hr ago

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    Hi Guys..ok i really need your help.. It's a very long story but I will try to shorten it..i think that's why I'm in EP, I was trying to tell my story..because I needed advices...
    Wildyoungfree Wildyoungfree 22-25, F 1 hr ago

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    Well just this morning amongst other times. I wanted to push the envelope so I targetted myself with driving naked, walking, then driving back still naked – including being in a...
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    TetraZL TetraZL 13-15, F 6 hrs ago

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    On rare occasions I do my part and flag profiles that have nudity in their avatars, a violation of EP's terms of service, but I have to admit I'm very diligent about flagging them...
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    I have the stomach flu and I have a exam today and tomorrow and I'm freaking out why can't I not care like other people. I get so worried that I fail
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    LLAMAAAA LLAMAAAA 13-15, F 3 hrs ago

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    I hate being near with drunk people. I find it annoying. Especially if it's my boyfriend. My bf soon to be husband like to get wasted. He's acting like some college boys. He'd...
    LovelyLilly13 LovelyLilly13 22-25, F 2 hrs ago

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    LovelyLilly13 LovelyLilly13 22-25, F 2 hrs ago

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    i literally don't even have people i can call friends. even over the internet i don't have friends. i'm pretty much just a shut in.
    cujo2020 cujo2020 18-21, M 2 hrs ago

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    Ive been seeing an old friend to help her get over a breakup. I dont know if im doing this because i care or because i used to have a crush on her. Id like to think its the former...
    Jhosting Jhosting 22-25, M 23 mins ago

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    Not many people can say that they still have their virginity, but I can. I feel as if my mind has been corrupted lately. Thoughts of alcohol and sex were the last things to cross...
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    I seem to be messing up more and more often and I wonder how much more she will put up with. I seem to take everything to heart that is said and over react and end up pushing her...
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    I also have an amazing friend in EP. Thank you for everything. Godspeed.
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