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I Have Idiopathic Edema

A Idiopathic Edema anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Idiopathic Edema. You're not alone. 20 People

    I, too, had all the "normal" kidney,

    liver, heart, lung & thyroid function. Five different doctors had no idea what it was and merely suggested compression garments and low sodium diet. I am not overweight, not diabetic, and not depressed/anxious either. As a result of the edema, my legs began to cramp when I...
    ldrakecole ldrakecole 46-50, F Dec 11, 2013

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    Idiopathic Edema

    It has been a year and a half since I was diagnosed with ideopathic Edema. It is troubling because I get swelling on my lips, face and head. I started taking Benedryl to help the swelling to go down. After I while I thought that it disappeared and I was wrong. Now I take an...
    CurtisPhillips CurtisPhillips 51-55, M Jun 9, 2013

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    I have lost more babies

    than I can even count now. Twenty-two (yes 22!) babies have lived in my womb and have died. Each and every one of them have taken a toll on my heart, my marriage, our finances, and our lives. I want nothing more than to find a cure for this issue and give my husband a baby...
    CassiKaehn CassiKaehn 41-45 3 Responses Feb 14

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    Anyone In The Northeast US With A Good Dr That Treats Idiopathic Edema

    i can't find any good docs. i live in pennsylvania. at this point, i'll go anywhere to see a doc!
    mrg214 mrg214 31-35, F 3 Responses May 15, 2013

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    Hi!! I am new here and not sure how this works!

    !! I'm looking for anyone who can tell me any kind of treatment that works for idiopathic edema!!! Any help is welcome!!!!
    carlalynnrn carlalynnrn 36-40, F Dec 11

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    Stupid Edema!

    Has been bothering me for awhile.  I was trying to decide if I was really that fat or if it was swelling.  When I work I wear special socks for my plantar fasciitis.  When I wear those socks from the ankle down my feet are totally normal.  When I don't wear them my feet puff...
    katnipkitkat katnipkitkat 41-45, F Jul 26, 2011

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    Idiopathic Edema

    I've been dealing with this for approximately 2 1/2 years now. I can't take it anymore. I've had up to 35 lbs of extra fluid on me and doctors just don't care, tell me to deal with it. I cannot and will not go on like this. Does anyone have any stories of what's helped?
    mrg214 mrg214 31-35, F 1 Response Sep 25, 2012

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    Just Don't Know

    Well, i'm 16 i've had this since i was about seven. Back then the doctor thought i was allergic to dog hair, and then milk, and then sea food. but, i know my body and i knew it wasn't any of these.  I went to lubbock tx hospital and met a doctor that said it was idio edema. she...
    kattie13 kattie13 16-17, F 1 Response Jan 20, 2012

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    I Am The Stay Puff Marshmallow Girl....

    It's been between 15-20 years since I started to suffer from Idiopathic Edema. I was sent to Endocrinologists first, who miss diagnosed me with Polycystic Ovary Syndrome - I was sent to Nephrologists who started out with 24 hour urine testing, blood work, and stating that I had...
    Sabrina41 Sabrina41 41-45 7 Responses Apr 1, 2011

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    Alive And Swollen

    I am 43 years old and was diagnosed with breast cancer this time last year.  I went throught chemo and radiation which were completed in May.  A few months ago I started putting on weight and swelling.  My kidneys, liver and heart are all ok.  Most of my...
    burkewife burkewife 41-45, F 2 Responses Oct 7, 2009

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    So this is a dream that i had about a week back. It felt so real and the content is kinda weird haha. So here goes: It was climbing period in school. Basically, a school period...
    Shimmerz479 Shimmerz479 13-15, F 3 hrs ago

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    You know I do find it funny when I come to this group to read stories. I find it funny because people my age who have no friends are rarely actually alone like me. The majority...
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    I love my "dent" my friends and I always joke about it however i wish I could wear bras that fit me properly. I'm a C/D cup but I have to wear B and even then it doesn't fit right...
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    AleaAndLexi AleaAndLexi 13-15, F 4 hrs ago

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    I hate it when people argue with me, and then end the argument by blocking me. Like. You blocking me without trying to finish the argument just takes all the fun out of it. like...
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    My jealousy issue is driving the best relationship i have in my life to the brink of an end. I just cannot trust. I've tried. I've been trying my hardest to change and try...
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    When I was on vacation with my family there was a guys soccer team at our hotel with players from all over the world. After meeting them and spending a night club hopping I got...
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    God tried to communicate with me. Sometimes when I talk to someone, I have this feeling, like if an angel is talking to me to try to make me realize that I'm in the wrong way to...
    TheBelovedMan TheBelovedMan 22-25, M 4 hrs ago

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    30 years old with not one friend. Never had any friends. Always was laughed at in school, called ugly, etc. Now I'm 30, married with 4 kids and my kids are my only entertainment. I...
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    Emiry Emiry 18-21, F 3 hrs ago

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    I have four good friends but other than that I don't really know a lot of people being that I'm in the middle of no where and there is no school.
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    I was out hunting alone and I was crossing a river when I fell and I fractured my foot so I crawled out and me and my family have this thing where if there is something wrong 3...
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    To stay in touch!!! In real life and EP. I've been going through all my old messages and it's just so pathetic how many people I've dropped for no reason! I usually cherish...
    insidious2014 insidious2014 18-21, M 2 hrs ago

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    i love a girl with a few tattoos. i have some too. ask me and i may tell you about them ;)
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    I sometimes wonder what role love will play in my life and if I will be alone. But yes I am 17 and I haven't had a real "boyfriend" or my first kiss yet.
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    Okay so my dreams are getting weirder and weirder so much so that I can't even bring myself to write them on here because I'd be considered a sick sick disgusting person. I haven't...
    hecknope hecknope 16-17, F 2 Responses 1 hr ago

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    I have no tan lines I don't like them so that's why I dont lol
    1losthope 1losthope 18-21, F 2 Responses 1 hr ago

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    I think I enjoy the idea of people, but I'm not fully committed to giving the effort that is required of me when it comes to being around people. I wish I could just BE around...
    Friability Friability 18-21 38 mins ago

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    I have anxiety.. but this post isn't about myself. This is about a woman I saw at the store. she was crying and inconsolable, saying repeatedly "I can't do this!" I just couldn't...
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    I have an African grey named Bailey, he is my baby! Parrot are so hilarious! Your birdy talk?
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    Dreamt about my old crush approaching me then he said in my ear "I have a gf that I miss so much. Why did you leave without telling me?" Then when things got existing I woke up...
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    my account name is 2ndchance2savealife have a nice night :)
    GayboySammy94 GayboySammy94 18-21 Nov 21

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    I have been disabled since 2006 and I am now starting a new business of Real Estate Investing!
    Newfie99 Newfie99 51-55, F 1 Response Nov 21

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