I Have Idiopathic Hypersomnia

Personal Stories, Advice, and Support 47 People

    Have Idiopathic Hypersomnia

    When the doctor told me that I had this strange sounding illness, I just looked at him like he was crazy. AllI know was that I was tired all the time. I was so tired that I didn't trust my self to driving, I didn't even trust myself to make a sound decision. My mind felt like...
    strawberry416 strawberry416
    51-55, F
    1 Response Jun 30, 2012

    I got diagnosed 2 years ago

    and every day is a battle to stay awake and focused at work. Medication helps a bit but I'm sure it wears off too quickly. My family and friends try to understand but they think it's just a case of being 'tired' when it's more like exhaustion! Most people love it when they have...
    squishyarmadillo squishyarmadillo
    31-35, F
    1 Response Mar 22, 2014

    I am no one to use my situation to my advantage.

    I don't seek sympathy; I prefer empathy. I don't want people to feel sorry for me; I want people to understand. It makes me angry/miserable/emotionally messed up- for lack of a better expression- when people put down my "tiredness" to me being lazy and/or overdramatising...
    makefriendswithchaos makefriendswithchaos
    22-25
    1 Response Jul 1, 2014

    10 Years With No Sleep, Not Sure I Can Do 10 More

    It will be ten years this August that I got my diagnoses, this was after spending five years on seizure meds (1500mg) for seizure I never had, oh yeah, and they actually made me more sleepy. The first episode that I had was the only one of its kind. I was working on a project...
    jvavera jvavera
    36-40, M
    May 20, 2013

    Reality

    enslaved enchained ingrained in your mind a vision of comfort and ease you despise each day unrested from yesterday mind obscure, the day blurs indistinguishable from all days past and ahead beyond tired, expired you push on curse your fate, your keeper unyielding...
    HyperZombia HyperZombia
    41-45, M
    Oct 6, 2013

    My Memories Are Not My Own

    My memories are not my own and my eyes don't only show what's before me.  i constantly have to disregard the flashes of what i think i see and the environment that i know im in.  i see the worst in everything or everyone and have thoughts that would make the devil himself...
    whamo01 whamo01
    41-45, M
    Dec 31, 2012

    Find Support!

    If you have IH and are on facebook, do a search for Idiopathic Hypersomnia and join the Idiopathic Hypersomnia support group. My life took a huge turn for the better when I did. If you do, please mention that you came from EP so I know if I am reaching anyone because helping...
    HyperZombia HyperZombia
    41-45, M
    1 Response Oct 6, 2013

    It All Started In High School

    So I'm 17 I started having the symptoms  my Freshman year of high school, I am now a Senior. I mean I've never been a morning person but it got to the point where I was sleeping until 3pm missing a whole school day. At first they thought it was my thyroid because it runs in my...
    JKenagy JKenagy
    18-21, F
    1 Response Sep 12, 2013

    Over It!

    I have idiopathic hypersomnia...got diagnosed about a year and a half ago. things just arent working out. i have a 3 year old daughter. and have a job that i only work 2 hour shifts but it is 1 2 or 3 times a day..and any of it just throws me off and makes me soo tired for the...
    jnala jnala
    22-25, F
    3 Responses Mar 23, 2012

    All The Pictures Of Me

    Why are all the pictures of me are either on the couch laying down or asleep at an unusual time? When I look on my friends phones for pictures of me I have to quickly delete them because I don't want them posted on social nexworks. Its not because I look badly but if I could...
    whamo01 whamo01
    41-45, M
    1 Response May 26, 2012

    I Have Finally Been Diagnosed With Ideopathic Hypersomnia

    After years of complaining about sleep problems, and even going to a sleep clinic and being sold an expensive cpap machine, I finally got my doctor to pursue this to a new test at the sleep clinic that included a MSLT. I feel asleep for all five naps with an average just over 2...
    Bettricia Bettricia
    46-50, F
    1 Response Dec 21, 2012
More Stories