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I Have Idiopathic Pulmonary Fibrosis

Personal Stories, Advice, and Support

    I am no one to use my situation to my advantage. I don't seek sympathy; I prefer empathy. I don't want people to feel sorry for me; I want people to understand. It makes me angry...
    makefriendswithchaos makefriendswithchaos 18-21 Jul 1

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    I suffer from oligoarticular juvenile idiopathic arthritis, and have done since nine years old. Whenever it flares up I end up having to be given steroids by my rheumatologist.
    BeccaLives BeccaLives 13-15, F 1 Response 4 hrs ago

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    When we are assessing ourselves for how IH affects us and when we are communicating it to others it would be helpful to clearly separate and specify four different factors: 1) How...
    HyperZombia HyperZombia 41-45, M Jul 22

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    I was diagnosed with CF when I was 15 months old. I am now 17 years old and am wondering if people with CF can be Firefighters. I want to help people like they have helped me and...
    austinwitmer2015 austinwitmer2015 16-17, M 1 Response Jul 18

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    My symptoms started when I was 16. I began to experience widespread joint, muscle pain, and headaches. I was seen by multiple doctors who said that I was perfectly fine and just...
    eeeck eeeck 26-30 1 Response Jul 20

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    My symptoms started when I was 16. I began to experience widespread joint, muscle pain, and headaches. I was seen by multiple doctors who said that I was perfectly fine and just...
    eeeck eeeck 26-30 Jul 21

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    I was diagnosed with DI nearly 40 years ago and have managed well for most of my life. Recently, i began having pulmonary problems. I am now on oxygen full time. Is any one else...
    doespoon doespoon 41-45, F Jul 21

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    I never really paid too much attention to this especially when I was younger. According to my mom I slept all of the time. When I was awake I would disappear and probably just fell...
    linuxnurse linuxnurse 31-35, M 1 Response Jul 20

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    First off for all of us suffering, I know your pain is very real, and I believe you and I'm praying for you! I stumbled across this blog tonight while doing research on getting...
    Pancreasfighter Pancreasfighter 41-45, F 6 days ago

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    My life has been roller coaster in every sense. Coming from middle class family in India, I was diagnosed for Acute lymphoblastic leukemia (ALL) at 14 yrs which took me 5 months of...
    smilealllife smilealllife 31-35, M 18 hrs ago

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    Since I'm the only person in this category thus far, I suppose I'll explain what this means for me. For as long as I can remember, I have subconsciously assigned personalities to...
    Visola Visola 22-25, F 2 Responses 16 hrs ago

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    I woke up this morning feeling worse than I did yesterday. I haven't talked to my fiance about any of this and I really want too. I worry that he will dismiss my feelings and tell...
    CatLover311 CatLover311 22-25, F 13 hrs ago

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    Hi guys, I'm back and I've got a question. Do any of you lift weights? I am looking for some input. I have been lifting lately and so far the gains have been slow. I have lost a...
    Medic8or Medic8or 22-25 19 hrs ago

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    dear my EP associates, if you have added me to your circle, the only reason I havent added back is because we have not talked. if you wish to have me add you back, please talk. i...
    TheAmazingSpiderJoe TheAmazingSpiderJoe 18-21, M 18 hrs ago

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    Well I don't really but I know what it is like to have one, I used to have one till I mastered how to talk English. But it's sexy to have an accent makes you stand more IMO
    kamachulu kamachulu 22-25, M 17 hrs ago

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    1. Read a book intermittently and finished it in a decade. Yes! That tough! 2. Set (probably) 1k sqm of field on fire. 3. Had a minor accident last Saturday. 4. I played with...
    EruIluvatar EruIluvatar 70+, F 15 hrs ago

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    [Note: Most of this was posted as a comment on someone else's story.] I think jealousy comes from fear. You've met a person who rocks your world, but because he/she is attractive...
    SmartKat SmartKat 46-50, F 1 Response 12 hrs ago

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    It's been a while since I have been truly active in EP. I have used this site as a place to vent out for years and it has helped me a lot in my journey for my personal growth and...
    LackofabetterName LackofabetterName 22-25, M 11 hrs ago

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    My family has a history of diseases, especially cancer. These diseases were what left my mother and her siblings orphans at young ages. I knew that one of my grandparents was...
    JumpingTomatoes JumpingTomatoes 16-17 11 hrs ago

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    When I was 18 years old I got my 1st DUI, following that when I was 19 I came across my 2nd. I served My time, completed counseling, outpatient therapy, group classes, had an...
    BarteringJoe BarteringJoe 26-30, M 11 hrs ago

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    I'm very uncomfortable about announcing this in public, although it's kind of anonymous. For the last days every time I tend to be overeating I find myself purging in the bathroom...
    truestory101 truestory101 18-21, F 11 hrs ago

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    I have always dreamed about having a Vagina, I desperately want to be the woman I know I am full time. I have a long road ahead but I know one day I will have a full sex change and...
    LisaTG LisaTG 26-30, T 1 Response 9 hrs ago

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    This is for Michael. I’m not the kind of person who usually tells anyone but the closest of friends very intimate details of my life. I have a few stories now about a new side...
    ClaudNine ClaudNine 18-21, F 2 Responses 8 hrs ago

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    I have suffered with anxiety attacks since I was 8 years old! 1993 I was diagnosed with FMS/CFS I seemed to cope OK for a while but the anxiety crept back in over a few years along...
    faceily faceily 41-45, F 1 Response 7 hrs ago

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    to dangerous situations and people. As I was reading today's online news, it occurred to me that, as recently as a few weeks ago, I exhibited behavior that could have gotten me...
    RenewJoy RenewJoy 56-60 6 hrs ago

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    To my ep friends due to unforeseen circumstances I am currently and have been for a while using my phone. As such it means I have been unable to look at any new pics that have been...
    Mauricen1 Mauricen1 31-35, M 6 hrs ago

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    Please help ! Lesbian relationship I'm heartbroken.. This one women who I have been best friends with for 3 years we were attached at the hip.. We have always had feelings for each...
    Kaylee1894 Kaylee1894 18-21, F 1 Response 4 hrs ago

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    I have dreams about this wonderful girl I've met. I have a huge crush on her, and in my dreams we do all the things we have yet to explore. I wake up realising I've had a wet...
    Skywalker1979 Skywalker1979 31-35, M 2 hrs ago

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    You Know What Sucks? The Fact That I Want You But You Don't Want Me Back.. The Fact That All Ive Been Trying To Do Is Love You.. And All You've Ever Wanted Was Someone Else.. Well...
    HopelessLoveHer HopelessLoveHer 18-21, F 1 Response 2 hrs ago

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    This is basically my story and I hope you guys like it c: When I was about eight years old, I didn't really talk that much. I was always really shy and quiet and I began to lose...
    Daisyflow Daisyflow 13-15, F 54 mins ago

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    So many have left.... I just feel like whenever I get too close they just drift away. It always happens.
    oneandonly24 oneandonly24 16-17, F 1 Response 20 hrs ago

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    I was always taught to fear and hate people opposite of my race. I could never understand why I would want to hate another fellow human being when some of our living conditions...
    AquariusLife AquariusLife 26-30, F 1 Response 20 hrs ago

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    She is great. I have a girl crush on Felicia Day. <3 Umph.
    DarkwingGoslyn DarkwingGoslyn 31-35 20 hrs ago

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    I just have to say thank you to my mum for backing into my car this afternoon. Now I have to call the repair guy. Thanks Mom!!!! * these aren't our cars, just a photo I found...
    AquariusLife AquariusLife 26-30, F 2 Responses 20 hrs ago

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    I have spoken to a lot of people this Very early morning! 🌘 I have gotten great compliments💁, great advice 😇and met many wonderful people👫👭👫👭👫👭
    Fashionlover03 Fashionlover03 13-15, F 19 hrs ago

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    I'm still in recovery and I relapsed a few times already about a week ago I think. Sometimes I want to be fully recovered and other times I never want to end my ednos. School is...
    XxbixtchybellaxX XxbixtchybellaxX 13-15, F 1 Response 19 hrs ago

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    I'm crushing on this really gorgeous girl a grade below me. We've hung out w/ friends in the mornings before school but that's pretty much it. Talked to her some through twitter's...
    LordSynth620 LordSynth620 16-17, M 19 hrs ago

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    Recently my sister came out as a trans to the whole family. This has been very tough on us. I'm not against it, but I am having a hard time calling her a "he". I still cannot see...
    Thundrcrackr Thundrcrackr 18-21, F 2 Responses 19 hrs ago

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    laura ******* prepon. that is all i have to say
    grottymuffin grottymuffin 13-15, F 19 hrs ago

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    Demi Lovato, Ariana Grande, Justin Bieber, Josh Hutcherson, Jennifer Lawrence, and so much more bc I have no life
    osnapitzama osnapitzama 16-17, F 3 Responses 19 hrs ago

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    Anybody who has POTS have photophobia (sensitivity to light)? Mine is really bad and worsening. I don't know if it's another symptom of POTS or should I get checked out
    december789 december789 16-17, F 2 Responses 19 hrs ago

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    Im only 15 and have been: Australia New zealand Usa (florida, new york and LA) Ibiza😍 Spain France Germany Turkey Brazil My favourite was ibiza and idk why
    grac3bxo grac3bxo 13-15, F 3 Responses 18 hrs ago

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    Have to go on antidepressants to help.
    LittleBeelzebub LittleBeelzebub 18-21, F 14 Responses 18 hrs ago

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    I always have had drama, and always will have drama. The relationship between my dad and me has gotten a lot worse, I don't feel like talking to him ever after remembering all the...
    hebrokemyheart99 hebrokemyheart99 13-15, F 3 Responses 18 hrs ago

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    Has anyone else had this where they jump to rage like in an instant? I have and I can't figure it out. It will be all little things. They all annoy the **** out of me sometimes...
    darkhorsek darkhorsek 26-30, F 18 hrs ago

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    Sometimes guys just cant get what others women can, like little nuances that only occur between a woman and her friend. I mean, its not like you can eyeball a hot guy and then tell...
    Lov3intheasylum Lov3intheasylum 31-35, F 18 hrs ago

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    I so badly crave my friends boyfriend he's hot and possessive and dominant and I love everything about him and my friend is a ***** to me anyways and they have only been dating for...
    cootyboo cootyboo 22-25, F 1 Response 18 hrs ago