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I Have Idiopathic Subglottic Tracheal Stenosis

A Idiopathic Subglottic Tracheal Stenosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Idiopathic Subglottic Tracheal Stenosis. You're not alone. 53 People

    Subglottic Stenosis Stinks! :) - I got diagnosed with subglottic stenosis exactly one year ago...when I was 5 weeks pregnant. I will have my fifth dilation next Tuesday. The...
    HolyZapato HolyZapato 36-40, F Aug 14, 2013

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    Never Ending Road - I was diagnosed in 1997 just after my 40th birthday. I am also asthmatic, so the doctors kept treating me for asthma until my breathing became so labored that I...
    BB211 BB211 56-60, F 1 Response Jan 1, 2013

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    Mystery For 6 Years - I have been diagnosed with Idiopathic subglottic stenosis. Over the past 6 years I have had multiple balloon dilations the last one included a laser. I have...
    fosterapup fosterapup 46-50, F Aug 18, 2013

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    Wanting To Know Why - I was diagnosed with ISS this July and the doctors have no idea why this happened. I had my first dilation and it was very successful. I had no idea that this...
    SlpSuzanne SlpSuzanne 36-40, F 2 Responses Sep 17, 2013

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    Recently Diagnosed With Subglottic Tracheal Stenosis - I have been recently diagnosed with Subglottic Tracheal Stenosis and am awaiting laser surgery and dilation within a week. I...
    niter13 niter13 56-60 2 Responses Apr 10, 2013

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    Over 35 Tracheal Dilations And Still Going Strong! - In 1994, I began having trouble breathing. I would get out of breath taking a walk along my kids' soccer field. My GP sent me...
    busylady344 busylady344 51-55, F 2 Responses Oct 26, 2012

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    I've had it for 25 years, since birth because of an intubation error. My voice is largely affected and it has an impact on my social interactions. I love my voice but people are so...
    LittleNicole89 LittleNicole89 22-25 Apr 6

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    I was diagnosed in 2007 and last week I had my 5th balloon dilation. I've been told that this treatment option is the best for me at this point, but I'm getting more and more...
    Jen53669 Jen53669 36-40, F Jan 15

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    I was diagnosed in July 2013 after several years of being misdiagnosed. I was actually at the point of passing out during a workout when my niece who is a respiratory therapist...
    kmcdhl65 kmcdhl65 46-50 2 Responses Jan 9

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    Resection Journey - Hi Everyone, It’s a little over a week until my resection so I thought I would start a blog of my experiences. http://livingwithsubglotticstenosis.wordpress...
    kesselt kesselt 31-35 Oct 25, 2012

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    Trachea Stenosis Is Back Again - I was diagnosed with this in 2000 and after repeated conservative surgery I had a trachea resection in March of 2004. I have been feeling great...
    lastcall55 lastcall55 36-40 1 Response Apr 1, 2012

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    Don't Eat Guinea Pig In Peru! - As the title implies, my Subglottic Tracheal Stenosis all started around 3 years ago in Cusco Peru. We had a wonderful hike around Machu Picchu and...
    BruceRTL BruceRTL 51-55 2 Responses Aug 22, 2011

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    Idiopathic Subglottic Stenosis - I have just been told that I have Idiopathic Subglottic Stenosis. I have been having trouble breathing for 3-4 yrs now and have gone back and...
    sue1576 sue1576 36-40 4 Responses Oct 18, 2012

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    Huh?? -  what the heck is that?
    Beauphord Beauphord 46-50, M 7 Responses May 21, 2009

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    My Subglottic Stenosis ( By Fay In Australia) - Me Thank you for your reports on your subglottic stenosis. It is good to at last hear of someone else with the condition. For 2...
    fayw fayw 66-70, F Jul 17, 2013

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    Living With Idiopathic Subglottic Stenosis - Almost 4 years ago I was diagnosed with Idiopathic Subglottic Stenosis.  I am looking at facing my 8th dilatation and wondering if it...
    Losgunna Losgunna 36-40, F 20 Responses Sep 3, 2011

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    Related Experiences

    I got diagnosed 2 years ago and every day is a battle to stay awake and focused at work. Medication helps a bit but I'm sure it wears off too quickly. My family and friends try to...
    squishyarmadillo squishyarmadillo 26-30, F 1 Response Mar 22

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    I have been diagnosed with Spinal Stenosis and degenerative disc disease. Also I seem to have a bulging disc. My lower back is in a lot of pain. Meds and the epidural shots did not...
    markemark03 markemark03 51-55, M Mar 28

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    I have Spinal Stenosis. Was diagnosed two years ago. On bad days, it feels like a short circuit in my brain. Like the wires are live. It is all on the left side of my head. I have...
    jaml jaml 41-45, M 3 Responses Mar 29

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    I have spinal stenosis, degenerative disc and arthritis at L 4 and L5. Am allowed to have 3 shots for pain, then may be told that I need surgery. Am very leary of surgery, but...
    gibsoel gibsoel 66-70, F 1 Response 6 days ago

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    I was just diagnosed with Forestier's Disease or DISH...Diffuse Idiopathic Skeletal Hyperostosisin in my lower spine. I've had weakness in my legs, lower back for the past 4...
    halley888 halley888 46-50, F Mar 26

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    No hate. I really want to get pregnant and be a mother. I feel like even though I am young, I am ready for the responsibility of being a parent. I have wanted a baby for a long...
    justanotherpixie justanotherpixie 16-17, F 4 Responses 7 hrs ago

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    I found this support group through google. I have been suffering with keloids on both of my ears since I was nine years old. I have had a total of 7 surgeries all to which the...
    Marquinta Marquinta 22-25, F 7 hrs ago

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    I haven't been diagnosed with Hemi but I'm pretty sure I have it. I'm a 17 year old girl and I do pay attention to my body a lot. About a year a go I really started to notice how...
    thaliatjan thaliatjan 16-17, F 7 hrs ago

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    It's my birthday tomorrow.. Is it to much to ask for someone that you love to spend time with you? I don't want gifts. I want quality time with the people I love. My entire life...
    hawksgirl hawksgirl 41-45, F 4 Responses 5 hrs ago

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    in like all kinds. My aunt and uncle hate me and I have to stay with them lots of times. They hate when I bother them and make them work and they let it feel me. I just have to...
    SabrinaInTears SabrinaInTears 13-15, F 2 Responses 3 hrs ago

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    h e got in touch through facebook, he hadn't changed much and we arranged to meet for a drink. didn't plan anything but he told me he wanted to have me again so I went back to his...
    kirstyisback kirstyisback 36-40, F 2 Responses 3 hrs ago

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    I always had vivid dreams but after my son was born they have become extremely vivid and when I wake up I remember them. I had serious, serious nightmares last night I woke up and...
    funsnowgal funsnowgal 22-25, F 1 Response 3 hrs ago

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    Lately, I have been having memory losses. I don't remember a thing that I did this past Saturday other than doing a research project in the morning and leaving the library. The...
    bkf2 bkf2 22-25, M 1 Response 2 hrs ago

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    I don't have any friends. I used to. I actually had quite a lot when I was in high school. But that was 5 years ago, and I'm in college, have a boyfriend and a busy job. They all...
    RunningFree32 RunningFree32 18-21, F 1 Response 31 mins ago

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    I've been telling it for a while now, but this is me. There are over 70 parts including what I love, what I hate, what I've been through, and all the creative bits of writing...
    LaurenJFisher LaurenJFisher 22-25 8 hrs ago

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    I have a crush.. My friend likes the same person as me.. Should I tell her?
    itzlexx itzlexx 16-17, F 2 Responses 8 hrs ago

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    I have a crush on one of my really good friends Matthew. Hes kind of a manwhore though and he can be an *** sometimes. But i feel like the times when he's nice or does stupid...
    Kittenfire Kittenfire 16-17, F 2 Responses 7 hrs ago

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    I did not want to admit this to myself.. Unfortunately, it's true. It's just awkward since I can't imagine us together ever, I also see him every day, and we have different tastes...
    Professionalgriefer Professionalgriefer 18-21, F 1 Response 7 hrs ago

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    i have never though of myself as beautiful. as people make fun of me for being tall and having a healthy skinny figure. :/
    nicolepie nicolepie 22-25, F 9 Responses 6 hrs ago

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    I hardly have any friends that do drugs plus I'm a Mormon (not really)? I think the main reason I do drugs is to battle my anxiety
    molestay molestay 13-15, F 6 hrs ago

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    I love kids so much. I honestly can't wait to have children of my own :)
    HeyItsMirandaa HeyItsMirandaa 18-21, F 3 Responses 6 hrs ago

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    I am going to have a really bad day.. forgot half of my cloths at home.. and i'm travelling with friends..School trip....
    adrinnasweet adrinnasweet 18-21, F 5 Responses 5 hrs ago

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    I am the kind of woman who gives her all in a relationship. It is pretty intense. I find myself to be very different from my friends who can't stay with a guy for long.I loved...
    Susana1985 Susana1985 26-30, F 3 Responses 4 hrs ago

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    lol who doesnt i guess !every healthy human being should have a naughty side as being straight face is soo boring !
    romell romell 36-40, M 1 Response 3 hrs ago

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    Hi guys :) Well I have this secret crush who is in the other class and he always look at me and he even smiled at me(tender smile), also there is one time I maintained eye contact...
    chocolateicecreamxoxo chocolateicecreamxoxo 13-15, F 2 hrs ago

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    I met this little person here on EP. She brightens my day, which begins with a joke , making me laugh so much, oh so much. She's so little, has a busy day, fights with her school...
    Qatalyst Qatalyst 22-25, F 2 hrs ago

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    Just because I'm sick of having to repeat myself over and over... The one thing I hate, is sounding like I'm a business deal to another person constantly, especially after the...
    Lunarflowerrr Lunarflowerrr 22-25, F 1 hr ago

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    This constant feeling of bad nausea. This anxiety - nausea is taking over my life. It's taking away my ability to function outside. I can't go out to eat. I can't take a shower...
    BGS9 BGS9 22-25, M Mar 16

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    I hide my true feelings behind jokes and humorous gestures. Unable to really express myself due to the fear of being judged. I laugh during serious and stressful situations which...
    toyaawright toyaawright 16-17, F 8 Responses Mar 16

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    RELATIONSHIPS .. Mixed emotions about the person i love . I don't think its the same. I don't know if its me or her.. I never been through so much stress , and confusion on if she...
    alvaroyalty alvaroyalty 18-21, M Mar 16

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    So this is goin to sound really unrealistic... I'm just ganna come right out and say it. It's like I can analyze my day in my sleep. And I can do it at will to. Like if I got a cut...
    Ranchsavvy16 Ranchsavvy16 16-17, F Mar 16

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    What a Feat! Each time I leave the gym where I work out, I get 2 cups of coffee which I bring with me to work. Just like how I usually do it, I put the 2 cups of coffee on...
    ladybug1234 ladybug1234 46-50, F Mar 16

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    I am a werewolf I have not transformed yet .. And need tips on how to possibly speed up my transformation...
    sassylilrebel sassylilrebel 13-15, F Mar 16

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    Ever since I had the very first signs of puberty I have been an emotional wreck. It's been ten years now and I'm 18 years old. I can't even keep a smile on my face. I was always...
    Twichl Twichl 18-21, F 1 Response Mar 16

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    When I was young I was in a long line of traffic when this car blew up right in front of my I was around 5-6 years old just barely starting life and something like this happens...
    Meeppeep Meeppeep 16-17, M 1 Response Mar 16

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    I know my life isn't as bad as some. This is my depression and self hate story. It started when I was young. My dad practically hated me. He never took my side. He was never nice...
    thoughtfulstars thoughtfulstars 13-15, F 2 Responses Mar 16