I Have Iih

I Have IIH 36 People

    Living With Idiopathic Intracranial Hypertension

    I was diagnosed December 7, 2010 with (IIH) my life now has been disassembled and rearranged. I was a happy, outgoing, intelligent 25 year old, wife and mother of two amazing little boys! I had been really sick off and on since August of 2010, I kept seeing my PCP, he stated...
    ArmyWife514 ArmyWife514
    22-25, F
    1 Response Jan 10, 2011

    I Have IH

    Hi i was diagnosed with Benign Intercranial Hypertension in Nov 12. I woke up one morning in the Jan 2012 and i was fine. I went for a walk to the shops and when i can out of the store i could see 2 of everything.It was horrible. I was ok the rest of the day and when i looked at...
    Irishgir01 Irishgir01
    41-45, F
    Apr 10, 2013

    My Iih Story

    Hi. I was diagnosed 5 months ago at the age of 14. I was slightly overweight. I started feeling very sick, I had to miss two terms of school because of the migranes, nausea, tiredness, eye problems, back, neck and arm pain. I went to the eye doctor and he saw papliadema and put...
    wishesinabottle wishesinabottle
    13-15, F
    1 Response Mar 10, 2012

    I Have This Stupid Condition..

    Sigh..so i guess i can say its nice to know there's others like me out there..i hate iih..i was diagnosed in june..i went blind in my left eye..i was 28weeks preg and a day when i went blind..i was pregnant with my 15th pregnancy..i only have one living..anyways i went to UCLA to...
    acarmody28 acarmody28
    31-35, F
    Jul 30, 2013

    Diagnosed In July Of 2011

    Yeah I recently became diagnosed with this disease, and its been HELL ever since. Meaning, Medications not working, giving me horrible side affects. I have extreme headaches, but that comes with the disease. I have the same pressure and pain down my spine, which causes me to be...
    OpalSay OpalSay
    26-30, F
    3 Responses Sep 19, 2011

    Reading this everyone's story has touched me

    individually, I find it hard to find other people that have the same issues as myself. I also have IIH I was diagnosted suddenly in August 2013. I had jumped off my boat into a lake. And the next day started experiencing a stiff neck and extremely paralyzingly headache...
    Sweetmisery3 Sweetmisery3
    26-30, F
    Dec 31, 2013

    My Story

    Im was 17 when I found out that I had IIH. I was so scared. The meds didn't work so know its off to surgery.mi feel like I went from one happy teenager to a very depressing person. I don't sleep. I don't eat. I was taking out of work. They say I might not ever be able to work...
    Kaylaboobaby Kaylaboobaby
    18-21, F
    Sep 2, 2012

    A Little History, And Frustration.

    I moved to Canada about 9 months ago. To change everything about who I was. I had family in this country, and I was finally ready to go back to school. Before I moved to Canada, I had an eye checkup, where the doctor told me I had the warning signs of Glaucoma, as my nerves were...
    canamerica88 canamerica88
    22-25, F
    Nov 26, 2011

    My Story

    I have been diagnosed with iih for the past four years.I joined this group to get feed back as i live in Ireland and there are no support groups that i am aware of. I struggle most days with extreme tiredness, dizzness, pressure on the back of my head,and recently pain and...
    mcgfar mcgfar
    Sep 15, 2012

    I wanted to talk to anyone

    who has IIH. I have been sick for a long time and now have a headache that never goes away. I get a strange whooshing sound when I lay on either ear and it pulsates with my heart. I can even feel it in my fingers. My legs and arms are so weak it's hard to function. I have many...
    Marnster Marnster
    36-40, F
    1 Response Jan 28, 2014
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