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I Have Imperforate Anus

A Imperforate Anus anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Imperforate Anus. You're not alone. 34 People

    I am an 18 year old female college student

    living in the U.S. I was born with an imperforate anus, and have never fully understood the defect. I was also born with a cleft lip and pallet and therefor all the attention was put on that as I grew up. I've had around 13 surgeries for my cleft and only one on my anus when I...
    Errka109 Errka109
    18-21, F
    3 Responses Mar 24, 2014

    So it's actually my 4 yr old son was born with

    it. He had all of the surgeries before his first bday. Now, 3 years, 2 gastro specialist (seeing a third next week) and a specialty urologist because his bladder and kidneys were effected, he still isn't and won't potty train. And I have to catheterize him two times a day...
    Jentheteller Jentheteller
    31-35, F
    2 Responses Jul 30, 2015

    Just A Little About Me

    Im a 23 male from Ireland. I was born with imperforate anus and im looking for other people born with it as i was lucky enough to be in hospital as a child with an other person who had it but was stupid enough to lose contact with them and havnt spoken to anyone with it since. Iv...
    imperforate imperforate
    26-30, M
    23 Responses Mar 1, 2013

    Hi! I'm so happy to find this!

    My son was born with IA & he is now 14. He has severe constipation. Right now we only use laxatives on the weekend which means he goes all week with no bowel movement. I worry about the damage this may be doing to his colon. He has a mega colon because of this & has had many...
    sunshine2002 sunshine2002
    36-40, F
    Feb 23

    I have never posted anything online like this.

    IT is truely inspiring to see these postings, to know that there are others out there like me, struggling and trying to figure out what the next best steps are. This condition seems to deteriorate over time, so I think this will be helpful for all of us. For me personally, It...
    Scottyfromct Scottyfromct
    41-45, M
    5 Responses Aug 29, 2014

    40 from us I was also was born with a

    imperforate anus I have suffered all my life with loose and uncontrollable bowel movement. Growing up with this has been a struggle because of the way people treat you. I was told not bye my mother but family and friends that I was lazy stupid weird .. Just be course I couldn...
    Mattman177 Mattman177
    1 Response Jan 1

    I have obviously dealt with this birth defect

    my whole life and I think that in order to deal with the embarrassment of this defect, I've allowed myself to believe that the side effects of this would get better as I got older but I'm find that to not be the case. My mom was absolutely amazing taking care of me as a child...
    eaoswald eaoswald
    26-30, F
    Dec 13, 2015

    I totally forgot about this website.

    .. I want to say a HUGE THANKS to everyone who responded/joined. Im going through a little bit of a rough time and feeling crappy/lonely/crappy again. This group and storys really cheered me up:):) Thank you Thank you Thank you
    imperforate imperforate
    26-30, M
    1 Response Nov 16, 2015

    Hi everyone - I am part of a FB group

    for adults specifically if you'd like to join let me know xx
    ChristiBZ ChristiBZ
    Dec 6, 2015

    Hi, Iam ryan, from philippines,

    same with all of you guys, i do have imperforate anus, and I was already undergo surgey when I was 3 I think. I am thankful because there is a charity here that supports the sick children for financial purposes. Life with this case is so hard especially reaching adolescence year...
    Ryanpaolo Ryanpaolo
    1 Response Nov 17, 2015

    I am 59 yr old woman

    who had surgical reconstruction at birth and as a kid. The last 9 yrs I have had issues as the reconstruction was breaking down and not functioning well. Looking for others to connect with. Concerned that this group really doesn't exist. Is anyone actually here?
    BettyCM BettyCM
    56-60, F
    2 Responses Jul 20, 2015

    Hi. I am so glad I found this group.

    My 5 year old son is going to have the Malone procedure done next March. I am wondering if anyone has any input o experience with this.
    Kenziegirl16662 Kenziegirl16662
    1 Response Sep 22, 2015

    I have an imperforated anus.

    I am an 18 year old female. I feel as if I'm alone, is there anyone who is going through the same thing?
    Victoria10395 Victoria10395
    18-21, F
    2 Responses Dec 17, 2013
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