I Have Ivemark Syndrome

A Ivemark Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ivemark Syndrome. You're not alone.

    I Have Ivemark Syndrome And I Am 20

    I was told a while ago that i had something called ivemark syndrome i thought ok i don't care. A few yearsago iwas told that Ivemark syndrome is a rare and in most cases fatal disorder. I had been born with my stomach upsidown and my intestines twisted i had major sugery to fix...
    misty1710 misty1710
    18-21, F
    Oct 4, 2011

    Related Experiences

    So here we are, Ep is about to close. It's been nice talking to some of you, finding out there was someone else with the same issues. I wish you all the best :)
    vanetuli vanetuli
    18-21, F
    Apr 21
    My attacks started 6yrs ago,woke up one morning and felt really sick,like a virus but it kept coming back every other day. I feel it was triggered by stress and a tender tum as I...
    SoothingSoozie SoothingSoozie
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    1 Response Apr 19
    My 3rd grader has struggled in school from Headstart up to this very point. I noticed delays in his speech right before two years old. I expressed my concerns to his pediatrician...
    Vette601 Vette601
    36-40, F
    Apr 19
    Well my story is a lot like some of yours, I started young on comet and sometimes dirt from my backyard... I like to eat things with gritty texture for most of my childhood and...
    BadMomKira BadMomKira
    22-25, F
    1 Response Apr 19
    Hey.. My name is Thomas and i have Poland's syndome. I was born in 1970 and didn't know what it even was til i was around 28. I had a really hard time growing up. Kids can be very...
    tommymac70 tommymac70
    41-45, M
    Apr 17
    My symptoms of WPW started about the time that I was in the fifth grade. One day I was home and I felt really dizzy, to the point that I had turned white all over and felt as if I...
    adrienleigh adrienleigh
    13-15, F
    Apr 17
    Hi, I was just diagnosed with SMA Syndrome after 10 years of my stomach being sick and multiple hospitalizations for being unable to eat or drink. I currently have a j tube after...
    jaclynleigh6 jaclynleigh6
    22-25, F
    Apr 17
    I am a 23 year old female who suffers from Poland's Syndrome. It's actually good to know there are some people out there who can relate to all the daily problems PS creates. We...
    uocgreece uocgreece
    22-25, F
    Apr 17
    I am 19 now, almost 20... I haven't been on here for a few years, but I think I'll give it a go. My parents and I thought I had Chronic Fatigue Syndrome for 4 years before...
    Invisibleninja12 Invisibleninja12
    18-21, F
    Apr 17
    Hi my name is Sherrie and i was diagnosed as a teenager. I am 58 years old now and i have whst i would call a good life. I am married for 30 years and we have adopted 3 children...
    Sherrie50 Sherrie50
    56-60
    Apr 13
    This is my story. It is long, but I hope you all can relate to it. A year ago I went on a catholic retreat called Kairos and I gave a speech on my ideals and how to find them and...
    cmom96 cmom96
    18-21, F
    Apr 9
    My boyfriend hasn't been diagnosed or anything, but I was watching a programme about Asberger's and something resonated with me. If he does have it, I'm sure it's only mild, but it...
    anniechan anniechan
    18-21, F
    2 Responses Apr 7
    I was born with PruneBelly Syndrome (lack of abdominal muscles) I had some corrective surgery at age three and the dr cut through and removed my navel, so I don't really remember...
    Jmacaroon Jmacaroon
    51-55, F
    Apr 7
    SVP makes roughly half a mil. SVP has phone phobia. SVP asks me to make his phone calls. I'm not an assistant or admin. i don't make half a mil. i don't want to do the easiest part...
    deleted deleted
    26-30
    1 Response Apr 7
    I'm back...after what? A year? And I'm looking over my profile and smile. God I'm stupid hahaha I've changed since all that Or at least I think I have. I'm still hyper and weird...
    Blade345 Blade345
    16-17, F
    1 Response Apr 7
    i have fear of losing people around me. I'm that kind of suicidal person, I see death as an answer to all of my problems. I want to die as soon as possible so that I will never be...
    icesky icesky
    18-21, F
    Apr 7
    I have good news! This Saturday I'm goin to the therapy center for a day visit. A day visit is when I join the program for a day. I'm gonna see what my dorm room looks like! I can...
    SuchHorribleThings SuchHorribleThings
    16-17, F
    Apr 7
    I am a faithful person, never cheated in a relationship and I have a good gentle husband. Because he is very religious I don't talk about my desire to be whipped although this...
    painwanted painwanted
    41-45, F
    22 Responses Apr 7
    i wanna have twins or triplets badly
    someoneimpregnateme someoneimpregnateme
    22-25, F
    Apr 7
    I loved him. But I hated him once. Now I love him again. What if that event did not happen? What if he were always the same kind father? Would I have become who I am today? I don...
    dreamhigh23 dreamhigh23
    18-21, F
    Apr 7
    Just because I said I don't like your favorite website or forum for personal reasons doesn't make me butthurt, I shouldn't have to bow down to anyone or suck up to them in order...
    Monstermaster13 Monstermaster13
    22-25, M
    Apr 7
    I have secret 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1. 1 1. the
    dragonkiller232 dragonkiller232
    13-15, M
    Apr 7
    Bad experiences coming out as DID: Family (at first!!) *Some* people at school (but I didn't really come out to them I guess, they just noticed or something) Fiancé's family...
    Indigo27 Indigo27
    16-17, F
    1 Response Apr 7
    So my best friend comes over last night, most of it is spent with him talking about his problems, which is fine, I didn't mind listening and talking about that. But when you spend...
    Redstar86 Redstar86
    26-30, M
    2 Responses Apr 7
    I don't tell my secrets to anybody that knows me. I wear a mask, smile and say I'm ok. I have a disguise that hides me well, if you did not know my secrets you would say there goes...
    deleted deleted
    26-30
    1 Response Apr 7
    LOL! i have two old friends that will gonna sleep later in my room. I just suddenly realized they might freaked out when they see my room. hahah. xD its so ******* weird. xD oh...
    yayepisoverimsad yayepisoverimsad
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    Apr 6
    I think it's time to take a stand ! I am going to reveal my personal top 5 two weeks before EP shuts down. For starters, my wife is the absolute number 1 on EP ! I still haven't...
    AdBlue AdBlue
    46-50, M
    2 Responses Apr 6
    There goes everything... All the feelings, All the hope, All gone... But to this I know there is something good coming from it. Something I will have to wait and find out...
    inquisitiveDamen17 inquisitiveDamen17
    16-17, M
    Apr 6
    Like a rare and dangerous drug, all I know is I can't get enough of you. Knowing you're there but can't ever reach you, even just to let you know how I'm really feeling, is a...
    CopperCoil CopperCoil
    36-40, M
    4 Responses Apr 6
    Good news: He hasn't opened my letter I gave him 3 weeks ago because I saw it still on his desk upopened today. I honestly was really scared what he was gonna say to me about it...
    Hipstercatlover Hipstercatlover
    16-17, F
    2 Responses Apr 6
    What about a closet that is made from like water or something and it picks out your clothes for you and it depends on the whether to decide and you can put in your favorite outfit...
    deleted deleted
    26-30
    Apr 6
    Y'all should follow me on Instagram. I just made an account and I don't have many followers yet Name: Brenden Eschelbacher Username: brenden_eschelbacher
    Bananaboy98 Bananaboy98
    16-17, M
    Apr 6
    I have bipolar depression and aspregers with anxiety!
    deleted deleted
    26-30
    2 Responses Apr 6
    I have the biggest crush on Seth MacFarlane. But I know that if I tell my religious friends. I for sure will be looked at differently. But hey! I can't help what I like. To be...
    Shxxxooo Shxxxooo
    18-21, F
    3 Responses Apr 6
    I've had depression since I was child, but my Dr suspects I may have had adhd first which then may have triggered the depression. I wasn't officially diagnosed until I was 19 but i...
    babydoll73 babydoll73
    22-25, F
    1 Response Apr 6
    I think I've posted here before basically I think I have SAD I mean I show all the symptoms like shakiness around people, can't eat around people and so on scared that people will...
    PositiveStateOfMind PositiveStateOfMind
    22-25, M
    4 Responses Apr 6
    Looking for other survivors of S.S. for support, as I work thru this Big Bowl of ****. Am going thru integration therapy and deal with chronic PTSD as a result of the years of...
    Rhonda87 Rhonda87
    51-55, F
    1 Response Apr 6
    i just made one and i dont have anyone to follow yet XD it would be so awesome if you would follow me and i'll follow back! :D and if you unfollow i'll ******* do the same as well...
    deleted deleted
    26-30
    1 Response Apr 6
    After an 18 months long intense cocoa be addiction I have him an ultimatum. Me or drugs, I spent the next six months helping him through his withdrawal - I failed to attend school...
    DarkNightsBrightStars DarkNightsBrightStars
    16-17, F
    1 Response Apr 6
    Today I went to my second therapy session. It went almost exactly the same as last week. He says I have to learn to breathe correctly and practice, practice, practice. I guess I've...
    DaydreamingSleepwalker DaydreamingSleepwalker
    41-45, F
    2 Responses Apr 6
    Had a good phone call tonight. He's told me in 3 months he can get ROTL (release on temporary license) which means he can come home for a day or even a weekend then has got back...
    TiffanyJadex TiffanyJadex
    18-21
    1 Response Apr 6
    If you enjoy showing off your ink, message me! I get thrills out of seeing other people's body art. I don't have any myself yet, but admire them greatly!
    curvycam curvycam
    18-21, F
    Apr 6
    I have one brother and four sisters. So we are six children and we all have the same Mam and Dad. I am the fifth child. The older ones have left home and have their own children...
    deleted deleted
    26-30
    Apr 6
    Before I joined EP, I was tiny 165 pounds of skin and bones. With the site closing, I felt I should update on where I am today. In the 4ish years I've been here, I have effectively...
    gettingsofat gettingsofat
    18-21, M
    4 Responses Apr 6
    You tragically discover you have six months to live! How do you spend your remaining time?
    picklebobble picklebobble
    51-55, M
    1 Response Apr 6
    imagine that tomorrow sees a piece of post that informs you that you have just inherited 50,000,000(fifty million)Your currency. What's the first thing you do?
    picklebobble picklebobble
    51-55, M
    2 Responses Apr 6
    I've been unhappy a while. I have been a life coach and when I ask myself the same questions I ask my clients the answer to the "magic" question is "I'd run away from everyone...
    Don0063 Don0063
    51-55, M
    Apr 6
    I really like having him around because my dad left when I was really young I grew up without a real male role model apart from my older brother but he's only two years older. From...
    stubo20601 stubo20601
    13-15, M
    Apr 6
    Who wants to stay in my friend circle in contact with me? Until April 21, we still have time. If any of you want to keep the contact, write me and I'll give you my data
    MistressNavel24 MistressNavel24
    22-25, F
    1 Response Apr 6
    Usually, when people call someone 'stupid', it's because they don't agree with what they have to say. Just because a person disagrees with you, doesn't mean they are stupid.
    Hannah1100 Hannah1100
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    Apr 6
    I have a small penis what do I do
    nudistakyy nudistakyy
    26-30, M
    1 Response Apr 6
    Actually I have my birthday today and I think today is a very mysterious day because of this. So I would like to have a prediction or something like that today as mystic energy is...
    DarkAlleysOfMyMind DarkAlleysOfMyMind
    18-21, M
    Apr 6
    We moved to new Zealand from Ireland to start a new life, we got unpack are boxes when my younger brother who was taller than me and a bit big than me came into my room < not warm...
    dad35 dad35
    41-45, M
    1 Response Apr 6
    Do you know how painful it is to punch a concrete wall so hard that your knuckles crack and bleed? Do you know that it's not normal for someone to be this angry? Do you know that...
    BlueJinx BlueJinx
    26-30, F
    1 Response Apr 6
    I feel so ******* angry a lot lately and I don't know why. When I was gone all I could think about was my family and now that I've been home a while they've been irritating the...
    BjKhann BjKhann
    26-30, M
    4 Responses Apr 6
    The person who is primarily responsible for my panic attacks caused another hysterical tantrum inside our house this morning. My mother and I are the ones who have to take it all...
    BlueJinx BlueJinx
    26-30, F
    Apr 6
    Today at school, at art class, 'I' did something that made a friend mad. I'm not a very friendly person, not at all! But because people have expections, I can't just act like I...
    Aleixan Aleixan
    18-21, F
    2 Responses Apr 6
    Well, i find myself coming to the end of my distraction project, and i feel a little sad about that. The only thing left to do now is to add the final page (for now - obviously...
    LoneSouls LoneSouls
    31-35, F
    Apr 6
    I've been recently diagnosed with ADHD. I'm 32 years old and suddenly my entire life makes sense. I have lots of mixed feelings about it
    brownie329 brownie329
    31-35, F
    1 Response Apr 6
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