Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Ivemark Syndrome

A Ivemark Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ivemark Syndrome. You're not alone.

    I Have Ivemark Syndrome And I Am 20

    I was told a while ago that i had something called ivemark syndrome i thought ok i don't care. A few yearsago iwas told that Ivemark syndrome is a rare and in most cases fatal disorder. I had been born with my stomach upsidown and my intestines twisted i had major sugery to fix...
    misty1710 misty1710 18-21, F Oct 4, 2011

    Your Response

    Cancel

    Related Experiences

    Would like to hear from anyone who would be willing to share serotonin syndrome experiences.
    monser monser 56-60, M 2 Responses 16 hrs ago

    Your Response

    Cancel
    Soooo i have an older bro with aspergers syndrome..... He's a little different though coz unlike most aspergers he is very loud and ttries to b sociable. It took me a long time to...
    Avreich Avreich 22-25, M 16 hrs ago

    Your Response

    Cancel
    I have to say, that this has been an extremely long road. My husband has Asperger's. We didn't know, we had a pretty normal life for the first two years or so. After we had a...
    DeeDoo1 DeeDoo1 41-45, F 1 day ago

    Your Response

    Cancel
    I was diagnosed with Basal Cell Nevus Syndrome in July 2015. Basal Cell Nevus Syndrome is a rare genetic disorder that affects 1 out of 100,000 people. I have a 50% chance of...
    Damocles19 Damocles19 13-15, M 1 Response 2 days ago

    Your Response

    Cancel
    I feel so ugly. Deformed, almost.
    lovelymoon11 lovelymoon11 18-21, F 2 Responses 2 days ago

    Your Response

    Cancel
    European Imperialism caused a lot of irreparable damage. Post Traumatic Slave Syndrome affects white people too . Most of the people I come across pretend to be in denial or are...
    Alylovespuppies Alylovespuppies 18-21, F 2 Responses 2 days ago

    Your Response

    Cancel
    I do not have ATS but my 13 y/o daughter does. She was originally diagnosed w/ a heart condition known as Polymyphoric Preventricular Tachycardia at that time she was in softball...
    mindy918 mindy918 36-40, F 3 days ago

    Your Response

    Cancel
    I have Asperger's syndrome and Selective mutism. I do talk but sometimes my voice cuts off and I am unable to, I can't explain this but it can be quite a hinderance. I feel that I...
    Randompi Randompi 13-15, F 1 Response 3 days ago

    Your Response

    Cancel
    I'm a 13 year old girl. and I have Brown Syndrome. As much as I try to ignore it. it prohibits me from doing more than people would think. I can't play staring games with my...
    Jay3421 Jay3421 13-15, F 3 days ago

    Your Response

    Cancel
    please join gitelman/bartter buddies on fb. we have a great support system
    lilmomma1411 lilmomma1411 26-30 3 days ago

    Your Response

    Cancel
    hey everyone. I have a group on fb called gitelman/bartter buddies. please join. we support eachother and learn from others.
    lilmomma1411 lilmomma1411 26-30 3 days ago

    Your Response

    Cancel
    My husband is a sweet man with Asperger's. The Asperger traits are mild in him, he has a job, he's social and has a normal kind of empathy. Still, It hurts. at times I feel like my...
    Gonnamakeapie Gonnamakeapie 36-40, F 1 Response 4 days ago

    Your Response

    Cancel
    I have autism and it feels to me like im in a whole different universe not in a good way though and everyday im always fighting myself not accepting change and just bein self...
    aaronpayne aaronpayne 22-25, M 5 days ago

    Your Response

    Cancel
    Just because I have Aspergers doesn't mean there's anything wrong with me, my final grades in high school were average and I'm considered to be one of the smartest people in my...
    BriarRose96 BriarRose96 18-21, F 1 Response 6 days ago

    Your Response

    Cancel
    I've always been much better than most men at multitasking, I wonder whether that is due to the Klinefelter Syndrome?
    KSPerson KSPerson 46-50, M 1 Response 6 days ago

    Your Response

    Cancel
    how is it with someone with aspergers syndrome? I have it. I had one serious relationship. I wonder if its very miserable being with me. since she cheated and my other short...
    kittyanthony kittyanthony 22-25, M 1 Response 6 days ago

    Your Response

    Cancel
    I can't seem to go in a public bathroom if someone is in there. This ruins my school days and field trips where I've had to hold it in until I get a free moment at school. My...
    GhettoMemeing GhettoMemeing 13-15, F 1 Response a week ago

    Your Response

    Cancel
    I was just recently diagnosed with fap - gardeners syndrome .. It's very scary at 17 having to deal with this , and since it is as rare as it is I have no one to share it with or...
    Escapeyourthoughts32 Escapeyourthoughts32 18-21 2 Responses a week ago

    Your Response

    Cancel
    I am a 32-year-old male. I got sick with the stomach flu at age 12 and was left with rumination syndrome, or something close. Within a couple of weeks of getting sick, I...
    nthgmvs nthgmvs 31-35, M Aug 25

    Your Response

    Cancel
    Hi im 16 and i've had rumination syndrome for 2 years now. When it first started happening for what i can remember it was only tiny bits that would come back up after i ate and...
    brookechambers2 brookechambers2 16-17, F Aug 24

    Your Response

    Cancel
    Does anybody have a GOOD experience with their Aspergers partner? For a while I thought I might've been attracted to somebody with the disorder, but everything on here sounds so...
    deleted deleted 26-30 3 Responses Aug 22

    Your Response

    Cancel
    Hey I am 15 and have had rumination syndrome/disorder for almost a year now. I hid it from my parents for 4 months because I was so horribly ashamed about it. I thought that it was...
    alexcarlson2018 alexcarlson2018 13-15, F Aug 21

    Your Response

    Cancel
    I have aspergers, mood disorder and depression when life is hard I feel that nobody cares I exist and I eat and write on here and play Rachel plattens fight song or look at my...
    FattyWithAttitude FattyWithAttitude 13-15, F Aug 21

    Your Response

    Cancel
    I'm proud to have it. My councillor told me I '10x the women any bully will ever be' and I know that's a good thing. I'm a minority, one of a small percentage effected by this...
    Randompi Randompi 13-15, F Aug 20

    Your Response

    Cancel
    Has anyone ever been to POTS Treatment Center in Dallas, TX? We have been saving up for me to go there and I was wondering if it helps at all.
    TavynKeylee TavynKeylee 13-15 Aug 18

    Your Response

    Cancel
    I recently found out I have ORS and will need another suregy (14th since I was 19) to remove the remnant and clean up the cysts and tumors that have grown since the original...
    Deena76 Deena76 36-40, F Aug 18

    Your Response

    Cancel
    hey there I am going though the 3rd stroke in 3 years now loss of vision in left eye. right eye going slowly. don't really know what to do I am taking a vitamin cocktail...
    bclogger75 bclogger75 36-40, M 1 Response Aug 17

    Your Response

    Cancel
    I have had CRPS for 5 years. I am a flight attendant and had a passenger fall on me. I first noticed weakness in my legs and a shooting pain down my legs and severe low back pain...
    dedelocken dedelocken 51-55, F Aug 17

    Your Response

    Cancel
    I might have AS. Any tips on how to manage it so as to avoid hurting people around me more (my spouse and family)?
    LolaHaze9 LolaHaze9 22-25, F Aug 17

    Your Response

    Cancel
    My mother is making me take a social skills class. I don't think I need it, but at least I'll meet some fellow aspies.
    beautifulmaggie beautifulmaggie 16-17, F 1 Response Aug 17

    Your Response

    Cancel
    I really need your help, I know you all are strangers but please... I think I have aspergers, the things I do in my daily life isn't "normal" to others. first off hi, I'm Andrew...
    deleted deleted 26-30 3 Responses Aug 16

    Your Response

    Cancel
    Syndrome from The Incredibles is what happens when you don't outgrow your emo phase.
    mattinsula mattinsula 16-17, M 1 Response Aug 16

    Your Response

    Cancel
    I do I have asperger syndrome
    Pedro1202 Pedro1202 18-21, M Aug 15

    Your Response

    Cancel
    Hi I don't personally have fibromyalgia, but I am with a US company for all natural products that help various medical conditions, products for pain/inflammation for instance, let...
    carolgem carolgem 46-50, F 1 Response Aug 15

    Your Response

    Cancel
    Can someone tell me what cvs is and explain what happens when you u have it
    CelticDragon561 CelticDragon561 51-55, M 1 Response Aug 15

    Your Response

    Cancel
    Cvs cyclic vomiting syndrome is something I have and it sucks so much! Is there a way to add this is the category??
    deleted deleted 26-30 1 Response Aug 14

    Your Response

    Cancel
    Within the last year, I have been diagnosed with PS. Unlike some of the stories I've glimpsed on here, it primarily is my dominant right hand. My hand was always small and...
    HypoplasticHand HypoplasticHand 18-21, F 1 Response Aug 14

    Your Response

    Cancel
    I have only known I have had pots for about 7 months now. I will be a sophomore in high school. I really wanted to letter in volleyball but I don't see that happening. :( I have...
    99lynn 99lynn 13-15, F 2 Responses Aug 14

    Your Response

    Cancel
    After 15 months FINALLY I have an answer. My symptoms were severe leg edema that turned into pitting edema swollen arms swollen hands and fingers with the curvature of my fingers...
    wandawoof2015 wandawoof2015 51-55, F 2 Responses Aug 13

    Your Response

    Cancel
    My 1 year old son was diagnosed last month with Williams Syndrome. It is a genetic disorder caused by a deletion of 26 genes on the long arm of chromosome 7. We found out after he...
    cthuluwhovian cthuluwhovian 22-25, F Aug 13