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I Have Ivemark Syndrome

A Ivemark Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ivemark Syndrome. You're not alone.

    I Have Ivemark Syndrome And I Am 20

    I was told a while ago that i had something called ivemark syndrome i thought ok i don't care. A few yearsago iwas told that Ivemark syndrome is a rare and in most cases fatal disorder. I had been born with my stomach upsidown and my intestines twisted i had major sugery to fix...
    misty1710 misty1710 18-21, F Oct 4, 2011

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    Related Experiences

    I'm 13 and have known that I have Poland syndrome all my life I'm lucky though I'm only missing my right pictorial muscle, my breast is inverted and my fingers on my right hand are...
    Incorrect13 Incorrect13 13-15, F 1 Response May 19

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    I have Crest Syndrome, i'm only 20 years old, I've known about it for about 2 years now. I'm currently 14 weeks and 5 days pregnant. Just curious to know how everyone deals with...
    taylaelise taylaelise 18-21, F May 7

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    (I actually don't "have" it anymore, as I'd be well-over dead.) I had serotonin syndrome from 2011-2013. I confused it with mania, and I had never had a seizure before, so I didn...
    grindhound grindhound 22-25, T May 12

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    I invite everyone that has Poland Syndrome to visit my group on Facebook it is a closed group, I look forward to seeing you all there.
    Gene47 Gene47 46-50, M 1 Response May 1

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    Hi everyone, my name is Lindee and I am now 24-years-old going on my 6th year of having POTS syndrome. Aside from the dizzy spells, fatigue, anxiety, brain fog, confusion and...
    shultm1 shultm1 22-25, F May 15

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    Hi! I'm 17 years old, and I was diagnosed with Turner's syndrome when I was a baby. At school, a lot of people don't understand me, and so I don't have a lot of friends and often...
    musiclover48 musiclover48 16-17, F 1 Response May 1

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    first of all I found all if this by chance and I almost started to cry. I was diagnosed with PS when I was born (thank you Cali hospitals) my right hand was small and webbed and I...
    Everrisingmoon Everrisingmoon 18-21, F 1 Response May 1

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    I've been diagnosed since I was 17 so just over a year ago yay I have a tendency to make social blunders and meltdown at the smallest things I am also a somewhat rare female Aspie
    Robinwing Robinwing 13-15 2 Responses May 2

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    There's two types of people with aspergers . The ones who can't hold a conversation to save their life AND the ones who talk about anything and everything they know nonstop till...
    deleted deleted 26-30 8 Responses May 9

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    One of my reasons for being here is 2 meet peeps like me. Luckily for me, only my breast at my right hand side is affected, it hasn't grown at all, staying in boarding school and...
    4everoptie 4everoptie 16-17, F 2 Responses May 9

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    I crave baking soda ... It don't know why.. I do have low iron.. I've had several transfusions but I just can't stop.. I eat baking soda all day if I could.. N I also crave ice I...
    tee08 tee08 31-35 May 11

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    Hello mother of a lil guy that was diagnosed with klinefelter :( the more I read the more I worry about him. I have had diffrent doctors tell that they are not to sure what this is...
    debnmar debnmar 36-40, F May 18

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    My 1month old lil boy was diagnosed with klinefelter. .the more I read on this the more am worried ,I keep wondering how this will affect him :( I keep praying that its not as bad...
    debnmar debnmar 36-40, F 3 Responses May 18

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    My sister and I both have been diagnosed with MELAS. I am 22 and my sister is 26. She was diagnosed first with the genetic disease when she was about 20. We both live in Toronto...
    hedyc hedyc 22-25, F May 21

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    I'm wanting friends like me someone who understands and also thinks and sees things in away others don't. I want someone who hears i have AS and won't go off about how they are so...
    DriftingLeaf DriftingLeaf 18-21 2 Responses 6 days ago

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    I've been getting dizzy for ten years now... just found out it was pots a few months ago.. and now I'm pregnant and I feel like its getting worse
    steph1994 steph1994 18-21, F 18 mins ago

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    first of all I found this by chance and I almost started crying. I was diagnosed with PS when I was born. my right hand was small and webbed with the middle digits missing and my...
    Everrisingmoon Everrisingmoon 18-21, F 1 Response May 1

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    This is something I hate to admit.. After being kidnapped, used, and abused, it still makes me cringe when people say "he'll get what he deserves" and much worse.. I hated him for...
    LilVixen17 LilVixen17 16-17, F 1 Response May 9

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    How expensive is the Mayo Clinic Pain Rehab Program??
    december789 december789 16-17, F May 18

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    my name is cyerra and im only 16 i started eatting baking soda when i was 14 and i love it so much but my mom found out and stop buying it and my bidy was craving so bad for it so...
    Cyerra16 Cyerra16 16-17, F May 20

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    I have Asperger's Syndrome which is a high functioning form of autism. I got diagnosed at 7, but my parents told me I was BORN with it. I guess I was born abnormal after all. I...
    maialove maialove 22-25, F 1 Response 5 days ago

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    I invite you all to come over to my Poland Syndrome Suppport (USA) Facebook page, this is a closed group and we are very open and willing to lend advise.
    Gene47 Gene47 46-50, M May 1

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    I invite you all to come over to my Facebook group page, Poland Syndrome Support (USA).
    Gene47 Gene47 46-50, M May 1

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    I am a 16 year old girl and I'm still in high school, that's tough as it is but I do live with polands syndrome and its makes life harder especially in this day and age. When...
    MelissaM98 MelissaM98 16-17, F 4 days ago

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    Can anyone help me with sapho syndrome. .....
    agha1234 agha1234 31-35, M 1 Response 1 day ago

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    I am so glad I stumbled on this category of posts, because reading of other people's similar experiences is somehow helpful to me, although I'm sorry for all of your troubles. I...
    2323Anonymous 2323Anonymous 51-55, F May 11

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    Hello fellow CES survivors my heart is out to you all I had surgery on March 4 2015 laminectomy/discectomy emergency decompression was paralyzed for 30 hours .This syndrome is one...
    clint03 clint03 36-40, M a week ago

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    There are 2 wonderful doctors who work with a team of other doctors and specialist at Mayo Clinic in Scottsdale and Phoenix Arizona. These doctors are amazing. They are doctors...
    bgrady15 bgrady15 51-55, F 17 hrs ago

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    That is one thing I really don't like about the A.D.D. I have. It makes typing Stories here on E.P. more time-consuming than it really needs to be. I mean, I may start out every...
    Jugemu Jugemu 31-35, M 2 Responses May 7

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    I haven't been diagnosed yet. my Dr is trying to eliminate anything else it could be, but I am suffering. I'm having a hard time going to work everyday cuz i can't get out of...
    kareenmarie kareenmarie 36-40, F Apr 30

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    There was only one moment I remember when I was little, every time I drank a bottle of Dasani water, ALL I could think of was the "taste" of a robotic voice in my head. Once I...
    GeekyGangstaGirl GeekyGangstaGirl 22-25, F 4 Responses May 1

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    Breaking up is never easy regardless of condition. For someone with aspergers its all the more difficult. All the little things you would do in the day which revolved around having...
    Sakaratte Sakaratte 26-30, M 1 Response May 1

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    As ive done extensive research on the matter I, along with my 3 children ages 5,4,3 all have aspergers. It is a dominant genetic, heredetary trait. It's intelligence based and for...
    turbojc20 turbojc20 22-25, M May 2

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    Feeling sad. As an aspie, I'm wondering are we monsters? Because all we ever seem to do is hurt people. Never make them happy or feel loved, we just hurt them. It's not are...
    Amichelseaoramichris Amichelseaoramichris 18-21, T 3 Responses May 2

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    I once received a message board reply that went like this: "I think it would be than fair if I get banned over this comment and I would happily accept it.But I believe I've read...
    themagicsback themagicsback 22-25, F 2 Responses May 3

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    I do. However, I have no talent in anything whatsoever, I waste a lot of time and not to mention I wasted my life pretending to be someone I wasn't and never will be. I have a lot...
    FoxFan64 FoxFan64 13-15, M 2 Responses May 5

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    I think I have reached my breaking point. I have tried everything to save my marriage and it never gets any better. I need to get out, but I'm terrified. He's told me that he will...
    TiffanyPerkins TiffanyPerkins 36-40, F 2 Responses May 6

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    I'm a little concerned that I may have Benign Fasciculation Syndrome. I sometimes experience random pain on parts of my body and I have a lot of muscle twitches. I really wish I...
    moose73630 moose73630 16-17, M 1 Response May 7

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    God why are people with autism spectrum disorders so retarded and sensitive? They need to buck up! Okay so two weeks ago my other autistic friend spend the night with me because I...
    JoyJoy7 JoyJoy7 22-25, F 7 Responses May 11

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    If you have a username like kingdong and hugec0ck or whatever, you're clearly suffering from LDS- little d!ck syndrome
    dirtydarkness dirtydarkness 26-30, F 9 Responses May 12

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