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I Have Ivemark Syndrome

A Ivemark Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ivemark Syndrome. You're not alone.

    I Have Ivemark Syndrome And I Am 20

    I was told a while ago that i had something called ivemark syndrome i thought ok i don't care. A few yearsago iwas told that Ivemark syndrome is a rare and in most cases fatal disorder. I had been born with my stomach upsidown and my intestines twisted i had major sugery to fix...
    misty1710 misty1710 18-21, F Oct 4, 2011

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    I don't think I have pica syndrome or if it's just a nutrition deficiency but when I get a bath or something I sometimes have a chew on the sponge or something because I like the...
    lucymichelle lucymichelle 13-15, F 1 Response Sep 1

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    I have pica and I have done for as long as I can remember. Unlike most people who have the syndrome/disorder I have had cravings for a WIDE variety of things throughout my...
    Pandasaurusrex Pandasaurusrex 18-21 Sep 2

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    When I was 26 year old I found out I got Klinefelter Syndrome I get a hormone testosterone needle every 12 weeks for the rest of my life.
    blackcat055 blackcat055 41-45, M Sep 11

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    Having Aspergers Syndrome is quite challenging for me. I have always felt like a ghost or a being living in another world in high school. Because of my particular interests, I have...
    loveVictorandDumas loveVictorandDumas 16-17, F 1 Response Aug 21

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    I'm 18 and every time I look at myself in my bra & panty..I stare. I stare at my reflection and I'm happy with how I was born; bare left chest no pectorals/nipple/muscle just my...
    ardorzie ardorzie 18-21, F 1 Response Aug 22

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    CAN I HAVE MORE RAT VENOM FOR MY MARTINI?
    JEM404 JEM404 41-45, M Aug 20

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    My name is Kate. I live in Oscar, Louisiana. I started experiencing symptoms in November of 2012 while pitching in a softball game. It all started with right shoulder pain. I was...
    Katedebetaz Katedebetaz 13-15, F 2 Responses Aug 24

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    Wow!!! For as long as I can remember I have had cravings for weird non-eatable objects. I remember exactly when it started, I was about three my Mom and Dad had this ugly, green...
    RedVinekiss RedVinekiss 31-35, F Sep 3

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    I am not sure if I am diagnosed or not. My dr said I have tietze but he never did any real test on me. But the problems I am having are the same as with tietze, so that's who he...
    zerudahima zerudahima 22-25, F 2 Responses Sep 4

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    Does anyone spike a fever when they have episodes?
    december789 december789 16-17, F Sep 5

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    I call my self an oddity. There are so many strange things about me i keep most of them hidden. Like my Pica. I told my mom once but we are mexican (she doesn't belive in Pica...
    mashuthanna mashuthanna 22-25, F Sep 9

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    For many years I have "craved" really-hot radishes. I buy up to 6 bunches per week, and somewhat panic when I run out before shopping day. I only stopped for a short time...
    Omma41 Omma41 70+, F Sep 10

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    I HATE being so logical, but logically it's necessary and appropriate for people to think logically. See my problem? I don't love. Relationships make zero sense to me, I don't have...
    pianochick5254 pianochick5254 18-21, F 4 days ago

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    IT IS MY EXPERIENCE THAT A FACILITY I ATTEND, "ATTENDED", "WON'T AGAIN", DO'ES NOT TREAT BIRTH DEFORMITY, YES, THIS STATE FACILITY WON'T TREAT A PERSON FOR BIRTH DEFORMITY TRAUMA...
    JEM404 JEM404 41-45, M Aug 20

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    Can anyone describe their chest pain with pots?
    cassidybute cassidybute 18-21, F 2 Responses Aug 22

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    Holy crap! Is this really on here? I've found my people.... Lol
    Keekeem Keekeem 31-35, F 1 Response Aug 28

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    My dad was recently diagnosed with MELAS. He is 48 years old. He has been in and out of the hospital due to seizures and what we thought were strokes. He suffers from hearing loss...
    ering08 ering08 22-25, F 1 Response Sep 1

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    I want to make a POTS group that meets once a week or once a month. Who lives In Wisconsin and has POTS?
    december789 december789 16-17, F Sep 10

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    Just got compression stockings. Not feeling this at all, they're super tight
    december789 december789 16-17, F 1 Response 6 days ago

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    I've had it since I was 12. It's keeping me from performing everyday duties. Please pray for me.
    gratefulme gratefulme 22-25, F 3 days ago

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    Horrible day. Getting put on the 504 plan for school. These are the days when I wanna give up because I'll never be normal
    december789 december789 16-17, F 2 Responses 16 hrs ago

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    I have gitelmans syndrome. Ya it's weird... Anyone else?
    Keekeem Keekeem 31-35, F 1 Response Aug 28

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    My first hint that something wasn't right was walking back to our cruise ship with my daughter. I was having a hard time walking and thought maybe it was sciatica. I barely made...
    NixEgirl NixEgirl 56-60 Sep 7

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    With help from my psychologist (who's very successful and specialized in autism, along with other things.) shed a light over a little something that I've been thinking about for a...
    MissClueless MissClueless 16-17, F 3 Responses 5 days ago

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    Just recently I began researching on middle child traits. I've found out that middle child syndrome is very real and it's not only me who suffers from it. Growing up, I have...
    123eat 123eat 22-25, F 1 Response Aug 24

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    I used to really hate myself, I honestly did. But now, I'm happy I have what I have. When I was in elementary school, I never talked to anyone, I would walk around the playground...
    ThatRobotChick ThatRobotChick 18-21, F 4 Responses Aug 29

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    And through Asperger syndrome, I met a good friend on this website. Since then, we have met in person and he and I are beyond best friends; we are true brothers and always will be...
    chubbystringbean chubbystringbean 22-25, M 1 Response Sep 1

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    Hello my name is Mark Miller. I was diagnosed with Klinefelters Syndrome when I was 4 years old. My parents knew something was wrong when I could not speak words until I was 7...
    Mark7Miller Mark7Miller 18-21, M 1 Response Sep 3

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    I am 15 years old I have Russell Silver Syndrome however the doctors did not diagnose me until I was 13 luckily I don't have all of the side effects however I am only 4'9 and...
    UNIJordanQUE UNIJordanQUE 13-15, F 2 Responses Sep 3

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    Hi my name is Jaime I am 29 years old and in 2006 I was diagnosed with a very rare kidney disease called Gittleman's Syndrome its so rare that not very many people in the United...
    GSwife1313 GSwife1313 26-30 Sep 4

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    I am a 28 year old mother of two young children and a wife. In February of this year 2014 I was rushed into surgery do to CES. The surgery took care of the back and right leg pain...
    korinne44 korinne44 26-30, F 1 Response 1 day ago

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    After my first bad concussion I became much more susceptible to them. Post concussion syndrome is terrible.
    Kingshelman Kingshelman 31-35, M 2 Responses Aug 25

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    I wish I could talk to my Aspie husband about the issues I have with our relationship, but as soon as I say anything, he gets so defensive and turns it back on me or becomes...
    TiffanyPerkins TiffanyPerkins 36-40, F 2 Responses Sep 9

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    I love looking younger .. I'll be 43 in oct and it's helps with old man syndrome lol
    Justted Justted 41-45, M 1 day ago

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    Tonight, I have decided to reach out and find others like me. Others with Conversion Disorder. To this day, I still battle with the tics and tremors that made it so I quit high...
    bluestocking18 bluestocking18 18-21, F Aug 19

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    I am really struggling cos I have fibromylagia , migraines , ins , Pcos and so many others. the last year has been tough and I have been unable to complete my studies .
    ebitogu ebitogu 26-30, F Aug 19

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    I need help I can't find a girl that likes me and I mange to suppres. My tics really well and you would only really know if someone told you and well I think the girls I try to get...
    Sproketsocet Sproketsocet 18-21, M 2 Responses Aug 20

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    I have had RLS for about 5 years. It started after I tore my hamstring from my sits bone. At first it was constant. I couldn't sleep, I couldn't stand in one place for long or...
    Deedle623 Deedle623 51-55, F 1 Response Aug 25

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    Please help! Could someone clarify whether my symptoms could be endometriosis? I have been ill for over a year now and though many other conditions have been ruled out by my GP, a...
    NattieC NattieC 22-25, F Aug 25

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    I have had bloating and gas, alternating with constipation and hemorrhoids, and was told I had irritable bowel syndrome, for several years now. in 2006, I went through some very...
    gastricwoman gastricwoman 51-55 Aug 30

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    I have Asperger's Syndrome It helps me find it difficult to talk to girls in the real world that probably why I'm single but I can't change it I was born with it but it upsets me...
    JonnyBurrows10 JonnyBurrows10 18-21, M 3 Responses Aug 31

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    My mom and I have WPW. She was diagnosed when she was in her 50's. She talked about having a racing heart with each of her pregnancies. After she was diagnosed with WPW, one of...
    milesdeb milesdeb 61-65 Sep 3

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    I have suffered with CVS my entire life, from age two to now (Im 17). Along the way I've learned how to cope and help my episodes. All these helpful tricks may work for you but are...
    Platinumryan Platinumryan 16-17 Sep 4

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    I've taken 2 clonzepam, and a Requip, and two aspirins. I have stretched and rolled on my foam roller. It's 2:00 am and it will not stop. So tired. Need to sleep.
    Deedle623 Deedle623 51-55, F 2 Responses Sep 5

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    After being diagnosed and being put on a bunch of new medications, I gained 30 lbs in a matter of months. I was even eating healthier and trying to work out as much as I could...
    Samm86 Samm86 18-21, F 2 Responses Sep 5

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