Post
Hello - EP may be briefly unavailable shortly as we apply some critical server updates. Thanks for your patience!
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Just Been Diagnosed With Mctd

Personal Stories, Advice, and Support 44 People

    Living With Mctd

    I was diagnosed with MCTD approximately 2 years ago. I was so releived to finally have an answer. For several years I was being treated for each symptom. And believe me, there were several. It got to be so bad that I leterally felt as if I had been run over by a truck. I decided...
    Renee041079 Renee041079 31-35 5 Responses Aug 23, 2012

    Your Response

    Cancel

    Any One Else Dealing With This?

    I have recently (within the last month) diagnosed with MCTD.  I am in the middle of a big flare up with lots of pain.  I have only been on 200mg of Plaquenil for 2 weeks and can't get in to see the rhuemy until Dec. 15.  I take Lortab or Ultram for pain, but worry...
    dewinparis dewinparis 46-50, F 1 Response Nov 26, 2009

    Your Response

    Cancel

    Mctd Awareness

    Ok so Mctd isn't a big deal. U would say this if u don't live with it. No one chooses an illness or when they get but maybe it is lack of understanding that makes the people with it reluctant to share with family and friends what it is. I expect there are many people living...
    skymum2012 skymum2012 36-40, F 1 Response May 13, 2012

    Your Response

    Cancel

    Confused With Diagnosis

      I am a first timer with this type of thing but here goes. I worked at a skilled nursing facility (SNF) and "got scapies then staph". That was back in July. it's not Nov 1st. I have been seen by 4 doctors who said my skin condition was scabies and then a toxitiy of...
    TSiebold TSiebold 51-55, F Nov 2, 2012

    Your Response

    Cancel

    I was diagnosed in 2009.

    I went to see my DR for a checkup when my back started to hurt. I originally thought it was a herniated disc because just before the pain set in I was trying to lift a heavy tv. I finally gave in 2yrs later (still with pain) she took tests and told me I MIGHT have lupus..which...
    goodwitch011070 goodwitch011070 41-45, F Nov 4, 2014

    Your Response

    Cancel

    Recent Diagnosis

    Good day all, Was just recently diagnosed last week with MCTD after my anti-RNP test came back positive. I've done my research on the disease and its a bit overwhelming. My doctor explained it as like a game of Russian Roulette. He said right now I'm in the aches and pains stage...
    msjackson87 msjackson87 26-30, F 1 Response Oct 7, 2013

    Your Response

    Cancel

    Recently Diagnosed With Mctd

    I am 23 and have just recently been diagnosed with MCTD. I was wondering if there is anyone else out there my age that is going through the same thing as me.
    Artickat Artickat 22-25, F 4 Responses Dec 1, 2009

    Your Response

    Cancel

    Even Young Children Can Get Mctd

    I was diagnoses with MCTD when I was 9 years old and in 3rd grade. I'm currently 17, I'll be 18 in 8 months and I'm a junior in high school working on getting my CNA certificate. I've been living with MCTD for 8 years.. It took the doctors for ever to diagnose me. Everyone...
    PeaceOutDude PeaceOutDude 18-21, F Jan 7, 2013

    Your Response

    Cancel

    "we Are Not The Disease, It Is Part Of Us, Don't Let It Win"by Controlling Your Every Moment".

    This was said to me once when I first realized that the disease was now progressing. It seems that we are in so much pain that we let this "disease" control our waking moment all, I guess, I don't know about you but I don't sleep much...and I am always analysing everything, I...
    fibrolupusleropolymyoitis fibrolupusleropolymyoitis 56-60, F 2 Responses Oct 26, 2012

    Your Response

    Cancel

    Any One Else Dealing With This?

    I have recently (within the last month) diagnosed with MCTD.  I am in the middle of a big flare up with lots of pain.  I have only been on 200mg of Plaquenil for 2 weeks and can't get in to see the rhuemy until Dec. 15.  I take Lortab or Ultram for pain, but worry...
    dewinparis dewinparis 46-50, F 1 Response Nov 26, 2009

    Your Response

    Cancel

    Mctd Experience.

    I'm 14 and I was diagnosed with MCTD 5 months ago. When I was first experiencing pain, I had to visit like 5 doctors, who all thought different things. One said it was dengue or chikungunya, but i was tested negative for both. Another said it was just a viral, but we doubted that...
    igotcolors igotcolors 13-15 1 Response May 30, 2010

    Your Response

    Cancel

    I Am 49 Was Diagnosed With Mctd 2 Years Ago After 20+ Years Of On & Off Symptoms

    It has been a long road but at least I know why I have had so many medical issues. Always told it was inflammation. I am now on plaquenil , Vemivo and Wellbutrin , this combination of Rx have done wonders for me. I finally have energy and a lot less pain. I take plaquenil 2xday...
    Kpages7 Kpages7 51-55 May 3, 2013

    Your Response

    Cancel

    Related Experiences

    I was diagnosed yesterday me and my partner went to see a specialist that deals with Autism, We thought i had it and she has confirmed the i have Asperger's. So I hope now that my...
    Cuddlzboy Cuddlzboy 36-40, M a week ago

    Your Response

    Cancel
    I was driving home from a New Years Eve party in the early hours of New Years Day. I had been to a friends house with my boyfriend and I agreed not to drink so I could drive home...
    Sarah667 Sarah667 46-50, F 4 Responses Jan 2

    Your Response

    Cancel
    Usually at school when it was a group of us kids getting swatted with the teacher's paddle for some offense or other. Sometimes there would be 6 or 7 of us all watching each other...
    HorseAngel33 HorseAngel33 36-40, F 2 Responses Dec 27, 2014

    Your Response

    Cancel
    I ended up re - friending my ex friend on fb. All this because we liked the same guy. (No longer speaking to). I still have hurt from when I told her I liked him too. yet she went...
    meleternal meleternal 26-30, F 1 Response Jan 11

    Your Response

    Cancel
    So apparently I have enough skills to make a funny comment that gets everyone laughing but it backfires cause ones they take notice they initiate conversation which can't do and...
    AlexanderGarcia AlexanderGarcia 16-17, M Jan 16

    Your Response

    Cancel
    My momma use to wear my *** out with a belt.... It sucked but I needed it.
    AlwaysChellz AlwaysChellz 22-25, F 3 Responses a week ago

    Your Response

    Cancel
    It didn't help anything. It just made me afraid of belts, especially considering that my mom would ONLY ever use corporal punishment when she was grumpy about something that...
    Boulier Boulier 18-21, F 7 Responses 2 days ago

    Your Response

    Cancel
    Ugh, I know it sounds super white trashy or "First world" problematic, but if you are like me and spend most of your life online, you can relate. There's nothing worse than slow...
    chasetheweirdo8 chasetheweirdo8 13-15, M 1 Response Jan 3

    Your Response

    Cancel
    Forgive, but never forget.
    CascadingCoquette CascadingCoquette 26-30, F 2 Responses Jan 11

    Your Response

    Cancel
    Why do the ones who hurt us most always come back to hurt us again?
    CharlotteTeller CharlotteTeller 26-30, F 1 Response Jan 15

    Your Response

    Cancel
    Yesterday my 9 month old baby was diagnosed with hirschsprungs disease. His pullthrough is booked for thursday
    jenmitton jenmitton 22-25 7 hrs ago

    Your Response

    Cancel
    I'm warning you now that my experience is a book... I'm sharing because I want those who may be going through this right now to know that only one thing will make the relationship...
    DaylightDancer DaylightDancer 18-21, F 1 Response 7 hrs ago

    Your Response

    Cancel
    Nope. Not a mental hospital. That's what they told me. It's not a mental hospital. I was 15 years old. They told me (2 psychologists in a room with me, and I think maybe my parents...
    DarkwingGoslyn DarkwingGoslyn 31-35 1 Response Jan 10

    Your Response

    Cancel
    After being together for none years, six married, it's over. I found out she'd been cheating with several guys over the last couple years. Are there any good women left out there...
    decker5479 decker5479 31-35, M 4 Responses 5 hrs ago

    Your Response

    Cancel
    My son was diagnosed with myelodysplastic syndrome in 2012 during the summer before his senior year of high school. He had a bone marrow transplant and nearly died twice in the...
    lynnieruns lynnieruns 41-45, F Jan 4

    Your Response

    Cancel
    So now I was diagnosed with cluster headaches, for which there is nothing that helps, NOTHING, but I am trying the oxygen therapy now. Its something but I mean come on God or who...
    johnnystar4u johnnystar4u 41-45, M Jan 6

    Your Response

    Cancel
    I have been married to my husband for ten years, he was diagnosed about five years ago as bipolar but refuses to get help. He is very verbally abusive and I cannot take it any...
    greengeenie greengeenie 41-45, F 4 Responses Jan 11

    Your Response

    Cancel
    There is one time in particular that I still wonder about, did I do the right thing? I lied to my father at age 16 or so. My mom was there too. He asked me: "Tom (not my real...
    steverick steverick 56-60, M 3 Responses Jan 9

    Your Response

    Cancel
    I've been through so much in my life and I've been hurt so many times. I've been used, taken advantage of, cheated on played and lied to repeatedly by the ones I love so dearly. I...
    srb76 srb76 36-40, M 1 Response Jan 11

    Your Response

    Cancel
    Ok, so maybe i've been single for pretty much all of my life. I've been on dates of course, and I'm not a virgin either if that's what you're thinking, lol. There are a couple of...
    vikesfan06 vikesfan06 26-30, M 4 Responses Jan 17

    Your Response

    Cancel
    I had just turned 20 and I had been living with my first love for a year and a half, a handsome, charming man who abused me physically and emotionally. One day when he'd been...
    Brainyblonde Brainyblonde 66-70, F 3 Responses Dec 28, 2014

    Your Response

    Cancel
    I grew up being bullied throughout school... It started with yeasing through 5th, 6th, and 7th grades. 8th grade someone started a lie about me and people teased me the next 2...
    SissyEJ SissyEJ 36-40, M Dec 28, 2014

    Your Response

    Cancel
    I have been ******* off with other guy's dice I was 11. The largest group I've ever done it with at the same time was seven. When you've done it that long with that many guys in...
    TK1153 TK1153 18-21, M 1 Response Dec 29, 2014

    Your Response

    Cancel
    Really rough day. Was in tears and now just emotionally defeated and depleted but I need to pick myself up, dust myself off and try again tomorrow...the eternal optimist:) I need...
    Messybutbeautiful Messybutbeautiful 31-35 3 Responses Dec 30, 2014

    Your Response

    Cancel
    How about the enormous international banks, are they safe and trustworthy? Although they are safer than shell banks, there is two pressing reasons to not undergo a large...
    Darronbanksso0 Darronbanksso0 31-35, M 1 Response Jan 1

    Your Response

    Cancel
    When I was fourteen my mom told me something so I wouldn't have to hear it from her ex boyfriend. My mom went into an illegal abortion clinic while she was in her third term...
    tlee5001 tlee5001 22-25, F 2 Responses Jan 1

    Your Response

    Cancel
    I have been to multiple countries. I have visited many European countries over the years. I have been to Canada, Jamaica, and Mexico too.
    femaleat49 femaleat49 41-45, F 7 Responses Jan 1

    Your Response

    Cancel
    I allowed my son to move with his dad when he was 9. He is now 16. I have not seen my son in 3 yrs now. I live in Wisconsin and my sons dad lives in Tennessee. We habe joint...
    mischa27 mischa27 36-40, F Jan 4

    Your Response

    Cancel
    I have been to a few clothing optional beaches - Miami, San Diego. I happen to love Miami and Haulover Beach. I've been there many times. Otherwise I have people walk in or up on...
    RC4blue RC4blue 46-50, M Jan 6

    Your Response

    Cancel
    Seven years together and i still feel alone. I am 26 and have been with same man it seems like forever i have always been faithful even when opportunity's have presented themselves...
    tolongalone tolongalone 26-30, F 9 Responses Jan 8

    Your Response

    Cancel
    I have been to a number of beaches where I have ******** down completely naked and sun bathed and swam. The beaches have mainly been just secluded ones and a few designated nude...
    Ozdharma Ozdharma 56-60, M 6 Responses Jan 8

    Your Response

    Cancel
    The last time I've been to Montana was in 2010 I was at Glacier National Park Montana for a railroad convention the reason I was in Glacier National Park the Great Northern Railway...
    theinfo theinfo 22-25, M Jan 9

    Your Response

    Cancel
    all I ever wanted to do was to help other people. Honestly I wish I didn't, because I have been used, cheated on, and rejected because of it; as a result I have been depressed for...
    halcyondays2 halcyondays2 18-21, M Jan 10

    Your Response

    Cancel
    He told me yesterday that he cheated on me a few days ago. It was at a friend's birthday party and he was drunk. He is genuinely remorseful and sorry that he did it, and he said...
    SkyeDreams SkyeDreams 22-25, F 28 Responses Jan 10

    Your Response

    Cancel
    I've been prescribed 40mg of propranolol for public speaking - to be taken an hour or so before the presentation. However, I have a presentation at any point within a 2.5 hour gap...