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I Have Just Been Diagnosed With Mctd

Personal Stories, Advice, and Support 44 People

    Confused With Diagnosis

      I am a first timer with this type of thing but here goes. I worked at a skilled nursing facility (SNF) and "got scapies then staph". That was back in July. it's not Nov 1st. I have been seen by 4 doctors who said my skin condition was scabies and then a toxitiy of...
    TSiebold TSiebold 51-55, F Nov 2, 2012

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    Any One Else Dealing With This?

    I have recently (within the last month) diagnosed with MCTD.  I am in the middle of a big flare up with lots of pain.  I have only been on 200mg of Plaquenil for 2 weeks and can't get in to see the rhuemy until Dec. 15.  I take Lortab or Ultram for pain, but worry...
    dewinparis dewinparis 46-50, F 1 Response Nov 26, 2009

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    Even Young Children Can Get Mctd

    I was diagnoses with MCTD when I was 9 years old and in 3rd grade. I'm currently 17, I'll be 18 in 8 months and I'm a junior in high school working on getting my CNA certificate. I've been living with MCTD for 8 years.. It took the doctors for ever to diagnose me. Everyone...
    PeaceOutDude PeaceOutDude 18-21, F Jan 7, 2013

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    I Am 49 Was Diagnosed With Mctd 2 Years Ago After 20+ Years Of On & Off Symptoms

    It has been a long road but at least I know why I have had so many medical issues. Always told it was inflammation. I am now on plaquenil , Vemivo and Wellbutrin , this combination of Rx have done wonders for me. I finally have energy and a lot less pain. I take plaquenil 2xday...
    Kpages7 Kpages7 51-55 May 3, 2013

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    I was diagnosed in 2009.

    I went to see my DR for a checkup when my back started to hurt. I originally thought it was a herniated disc because just before the pain set in I was trying to lift a heavy tv. I finally gave in 2yrs later (still with pain) she took tests and told me I MIGHT have lupus..which...
    goodwitch011070 goodwitch011070 41-45, F Nov 4, 2014

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    Recently Diagnosed With Mctd

    I am 23 and have just recently been diagnosed with MCTD. I was wondering if there is anyone else out there my age that is going through the same thing as me.
    Artickat Artickat 22-25, F 4 Responses Dec 1, 2009

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    Any One Else Dealing With This?

    I have recently (within the last month) diagnosed with MCTD.  I am in the middle of a big flare up with lots of pain.  I have only been on 200mg of Plaquenil for 2 weeks and can't get in to see the rhuemy until Dec. 15.  I take Lortab or Ultram for pain, but worry...
    dewinparis dewinparis 46-50, F 1 Response Nov 26, 2009

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    Recent Diagnosis

    Good day all, Was just recently diagnosed last week with MCTD after my anti-RNP test came back positive. I've done my research on the disease and its a bit overwhelming. My doctor explained it as like a game of Russian Roulette. He said right now I'm in the aches and pains stage...
    msjackson87 msjackson87 26-30, F 1 Response Oct 7, 2013

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    "we Are Not The Disease, It Is Part Of Us, Don't Let It Win"by Controlling Your Every Moment".

    This was said to me once when I first realized that the disease was now progressing. It seems that we are in so much pain that we let this "disease" control our waking moment all, I guess, I don't know about you but I don't sleep much...and I am always analysing everything, I...
    fibrolupusleropolymyoitis fibrolupusleropolymyoitis 56-60, F 2 Responses Oct 26, 2012

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    Mctd Awareness

    Ok so Mctd isn't a big deal. U would say this if u don't live with it. No one chooses an illness or when they get but maybe it is lack of understanding that makes the people with it reluctant to share with family and friends what it is. I expect there are many people living...
    skymum2012 skymum2012 36-40, F 1 Response May 13, 2012

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    Living With Mctd

    I was diagnosed with MCTD approximately 2 years ago. I was so releived to finally have an answer. For several years I was being treated for each symptom. And believe me, there were several. It got to be so bad that I leterally felt as if I had been run over by a truck. I decided...
    Renee041079 Renee041079 31-35 5 Responses Aug 23, 2012

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    Mctd Experience.

    I'm 14 and I was diagnosed with MCTD 5 months ago. When I was first experiencing pain, I had to visit like 5 doctors, who all thought different things. One said it was dengue or chikungunya, but i was tested negative for both. Another said it was just a viral, but we doubted that...
    igotcolors igotcolors 13-15 1 Response May 30, 2010

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    Related Experiences

    Aahh, what's not to like about visiting another country- the new sights, different cultures, the delicious cuisine. When traveling abroad I like to camp out a lot and that gives me...
    Golondrinas Golondrinas 51-55, M 1 Response 1 hr ago

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    my bf hits me with a belt when he's angry
    mk427 mk427 18-21, F 5 Responses 1 day ago

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    there is someone who i have written an experience a little while back around mid jury about how he has changed my life forever which he has. but recently there have been...
    idkwhatiam idkwhatiam 13-15, M 1 Response 1 day ago

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    I would constantly wonder what my life would have been like if I had cut certain people off sooner, gathered the courage to say hello to others, been brave enough to do or say...
    ThatOneGemini ThatOneGemini 16-17, F 2 days ago

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    The majority of dangerous situations that I have been in were either a product of my environment, or inevitable outcomes to repeated juvenile choices I wittingly made. Being in...
    bronzeeyedblonette bronzeeyedblonette 26-30, F 1 Response 3 days ago

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    The school uniform I wore back in the day had belts, albeit called "girdles" because of some kind of archaic quirk. We'd use them as weapons sometime, since they worked very well...
    Gauntlets28 Gauntlets28 18-21, M 1 Response 3 days ago

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    I'm not blind in one eye, the thing is I've only got one eye and I've had it since birth. See after being treated differently at school I strived to be different I learned the...
    LachlanJohnson LachlanJohnson 16-17, M 4 days ago

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    So...my boyfriend and i met online. We have been dating for 6 months. We have Skyped several times. Ever since the begging of our relationship, I've always felt like he doesnt care...
    erixaz erixaz 26-30, F 4 days ago

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    My Idiot Father Just Couldnt Let Me Be!-I eased the side door open and entered the house through the kitchen,then headed towards the front door to leave my shoes, so it would look...
    SoullessEyes SoullessEyes 18-21, F 3 Responses 5 days ago

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    Wow I don't even know where to start….but in a nutshell, my father has been emotionally manipulative and abusive for his entire life. I did not really feel the wrath of his evil...
    kimalee77 kimalee77 31-35, F 1 Response 5 days ago

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    Wow I don't even know where to start….but in a nutshell, my father has been emotionally manipulative and abusive for his entire life. I did not really feel the wrath of his evil...
    kimalee77 kimalee77 31-35, F 5 days ago

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    I have been here for only two days and yet I have already been blocked for refusing to fulfill a 30 year old man's sexual pleasure by not only refusing to see his penis but also...
    EgoSumProdigiosum EgoSumProdigiosum 13-15, M 2 Responses 6 days ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    tessaccaa tessaccaa 26-30, F 6 days ago

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    Soul mates aren't the ones who make you happiest. No. They're instead the ones who make you "feel" the most. Burning edges and scars and stars! Old pains and pangs. Captivating and...
    deleted deleted 26-30 6 days ago

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    I've been to several other countries to be honest. I can safely say that, so far, Malaysia and Indonesia have been my favourites!
    ctstranger ctstranger 41-45, F 1 Response a week ago

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    Bizarre title but it can happen. The summer after I finished high school I picked up a job in a poultry packing plant to earn money for college. I was working the 4 to midnight...
    Roastedacorn Roastedacorn 41-45, M 1 Response a week ago

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    I have been married for four months but we have been together for 8 years. I knew going in he was an addict but he was clean. he had a few relapses over the years but got clean...
    vanillasparkles vanillasparkles 26-30, F 1 Response Jul 24

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    I have been bullied a lot... and it has broken me so many times. I have been built back up only to be torn down again and I'm struggling with cutting and I'm trying to stop but I...
    zither29 zither29 13-15, F 4 Responses Jul 24

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    I have been married to my husband going on 3 years however we have been together for 6. We have a 4 year old daughter together and the last 9 or so months have been complete...
    magsssmae magsssmae 22-25, F 1 Response Jul 22

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    Dear Friend. Indeed, I did think of writing an experience... The ONLY reason I have thought about it is the 'invisibility' You have mentioned. I am a very introverted person now...
    becomeinvisible becomeinvisible 22-25, F 2 Responses Jul 21

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    I live in Central Florida, not too far away from a couple of fine nude beaches. My point with this post is to give you, who haven't visited yet, a little insight into Playalynda...
    Dave002 Dave002 56-60, M 1 Response Jul 20

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    So I go to the same place every day before work, I get a coffee, sometimes I get lunch there, and I buy my cigarettes there, I have been going there since they opened, well on...
    BroknGirl89 BroknGirl89 26-30, F Jul 19

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    My boyfriend of 6 years cheated on me in January and I barely found out about over a week ago... The only time he met up with the girl was when the cheating happened. But he...
    deleted deleted 26-30 2 Responses Jul 16

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    I was abused until the age of 24 (almost 25), and when I left the house my mom was finally able to have the courage to divorce my dad. She tried to get custody of my younger sister...
    LyraAlluse LyraAlluse 26-30, F 1 Response Jul 15

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    My mother and I are like oil and water. My father kept my mother and I settled and not too much at each other's throats. With my father gone, my mother now feels completely...
    sillysweetlil sillysweetlil 46-50, F 1 Response Jul 15

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    I have been to the Philippines when I was a baby and back to the United States then I went to the Philippines for a vacation when I was 7 years old and again when I was 9 years old...
    XxCuTiE14xX XxCuTiE14xX 16-17, F 1 Response Jul 13

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    Well kinda more been stuck in the middle of them. For the past several months I have been stuck in an odd situation where I know one of my siblings was in an abusive relationship...
    Sportser Sportser 26-30, M 1 Response Jul 13

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    just the sound of anyone unbuckling his belt makes me nervous. guess i am like this pavlov dog
    StrawberrryMilk StrawberrryMilk 18-21, F 3 Responses Jul 12

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    I met this chic through a chat site called "downelink" and we video chatted then eventually started talking on the phone. She was gorgeous and had this personality that just...
    deleted deleted 26-30 Jul 11

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    How HIV Children Are Injured And Kill By The Actions Of The City Of Salinas, Ca. The Salinas Valley is one of the largest agricultural centers in the USA and the city of...
    marcthegiantkiller marcthegiantkiller 56-60, M Jul 11

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