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I Have Just Been Diagnosed With Mctd

Personal Stories, Advice, and Support 44 People

    Living With Mctd

    I was diagnosed with MCTD approximately 2 years ago. I was so releived to finally have an answer. For several years I was being treated for each symptom. And believe me, there were several. It got to be so bad that I leterally felt as if I had been run over by a truck. I decided...
    Renee041079 Renee041079 31-35 5 Responses Aug 23, 2012

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    "we Are Not The Disease, It Is Part Of Us, Don't Let It Win"by Controlling Your Every Moment".

    This was said to me once when I first realized that the disease was now progressing. It seems that we are in so much pain that we let this "disease" control our waking moment all, I guess, I don't know about you but I don't sleep much...and I am always analysing everything, I...
    fibrolupusleropolymyoitis fibrolupusleropolymyoitis 56-60, F 2 Responses Oct 26, 2012

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    Even Young Children Can Get Mctd

    I was diagnoses with MCTD when I was 9 years old and in 3rd grade. I'm currently 17, I'll be 18 in 8 months and I'm a junior in high school working on getting my CNA certificate. I've been living with MCTD for 8 years.. It took the doctors for ever to diagnose me. Everyone...
    PeaceOutDude PeaceOutDude 18-21, F Jan 7, 2013

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    Any One Else Dealing With This?

    I have recently (within the last month) diagnosed with MCTD.  I am in the middle of a big flare up with lots of pain.  I have only been on 200mg of Plaquenil for 2 weeks and can't get in to see the rhuemy until Dec. 15.  I take Lortab or Ultram for pain, but worry...
    dewinparis dewinparis 46-50, F 1 Response Nov 26, 2009

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    I Am 49 Was Diagnosed With Mctd 2 Years Ago After 20+ Years Of On & Off Symptoms

    It has been a long road but at least I know why I have had so many medical issues. Always told it was inflammation. I am now on plaquenil , Vemivo and Wellbutrin , this combination of Rx have done wonders for me. I finally have energy and a lot less pain. I take plaquenil 2xday...
    Kpages7 Kpages7 51-55 May 3, 2013

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    Confused With Diagnosis

      I am a first timer with this type of thing but here goes. I worked at a skilled nursing facility (SNF) and "got scapies then staph". That was back in July. it's not Nov 1st. I have been seen by 4 doctors who said my skin condition was scabies and then a toxitiy of...
    TSiebold TSiebold 51-55, F Nov 2, 2012

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    Recent Diagnosis

    Good day all, Was just recently diagnosed last week with MCTD after my anti-RNP test came back positive. I've done my research on the disease and its a bit overwhelming. My doctor explained it as like a game of Russian Roulette. He said right now I'm in the aches and pains stage...
    msjackson87 msjackson87 26-30, F 1 Response Oct 7, 2013

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    I was diagnosed in 2009.

    I went to see my DR for a checkup when my back started to hurt. I originally thought it was a herniated disc because just before the pain set in I was trying to lift a heavy tv. I finally gave in 2yrs later (still with pain) she took tests and told me I MIGHT have lupus..which...
    goodwitch011070 goodwitch011070 41-45, F Nov 4

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    Mctd Experience.

    I'm 14 and I was diagnosed with MCTD 5 months ago. When I was first experiencing pain, I had to visit like 5 doctors, who all thought different things. One said it was dengue or chikungunya, but i was tested negative for both. Another said it was just a viral, but we doubted that...
    igotcolors igotcolors 13-15 1 Response May 30, 2010

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    Recently Diagnosed With Mctd

    I am 23 and have just recently been diagnosed with MCTD. I was wondering if there is anyone else out there my age that is going through the same thing as me.
    Artickat Artickat 22-25, F 4 Responses Dec 1, 2009

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    Mctd Awareness

    Ok so Mctd isn't a big deal. U would say this if u don't live with it. No one chooses an illness or when they get but maybe it is lack of understanding that makes the people with it reluctant to share with family and friends what it is. I expect there are many people living...
    skymum2012 skymum2012 36-40, F 1 Response May 13, 2012

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    Any One Else Dealing With This?

    I have recently (within the last month) diagnosed with MCTD.  I am in the middle of a big flare up with lots of pain.  I have only been on 200mg of Plaquenil for 2 weeks and can't get in to see the rhuemy until Dec. 15.  I take Lortab or Ultram for pain, but worry...
    dewinparis dewinparis 46-50, F 1 Response Nov 26, 2009

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    Related Experiences

    I was diagnosed 6 years ago when I was 25. Considering the circumstances I am doing very well. If anyone ever wants someone to talk to, I'm here <3
    danc3rz danc3rz 31-35, F 1 Response Nov 25

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    And I feel ya'lls daily pain.
    mentallytortured mentallytortured 18-21, F Dec 12

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    I am almost 40 years old and have been dealing with horrible headaches for 16 years now. I have tried all kinds of doctors, treatments, medications, even various surgeries...
    JunieMarie JunieMarie 36-40, F 1 Response Dec 7

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    Like most Scandinavians we have a small family yacht and our parents raised us to being able to sail it. It's about thirty metres long, and has a large mast as well as a very...
    Skjeggstad Skjeggstad 22-25, F 7 Responses Dec 7

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    It was just the once for me. It was a charity event in a pub I worked in about 20 years ago - I would have been 24 or 25 at the time. I think it must have been Children in Need. It...
    Sarah667 Sarah667 46-50, F 1 Response Dec 1

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    My parents are super strict, and I still get spanked whenever I'm in trouble. Sometimes it's just with a hand, others it's with a belt or paddle. They know how to spank me pretty...
    emilygirl1 emilygirl1 13-15, F 2 Responses Nov 30

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    Got it once and probably could benefit from getting it again occasionally. Its the most effective spanking I've ever gotten
    HorseAngel33 HorseAngel33 36-40, F 1 Response 3 hrs ago

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    I'm 14. If I start HRT now what can I expect?
    Mastivious Mastivious 13-15, M Nov 23

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    My husband has it. I ******* hate it. He says that it is him, not me, but deep down I think he just doesn't want me anymore. He offers oral sex or wants me to go down on him when...
    Nubian1973 Nubian1973 36-40 1 Response Dec 14

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    I had a question. And probably should not be here but could not find anywhere else my oh told me that the reason he does not like sex is because it's painful. I want him to see a...
    Pippa131 Pippa131 36-40, F 1 Response 4 days ago

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    my 7 year old son has ADHD. his first 2 years in school were awful and he hadn't been diagnosed. he started getting completely out of hand. to the point where he was punching and...
    Trinity2356 Trinity2356 22-25, F 1 Response 6 days ago

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    I have been extremely obese all my life. It's a genetic predisposition, because my mom is a really big woman too. And of course I always ate a lot and I hated it to move my body...
    ssbbwjean2000 ssbbwjean2000 41-45, F 1 Response 9 hrs ago

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    Again, excuse the awkward wordings to get around the censors, but it won't let me post this story without them. I was in one for six days in February, and then they forced me to...
    Boulier Boulier 18-21, F 5 Responses Dec 7

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    I sometimes wonder what my life would have been like if I wasn't diagnosed with cancer. If I could still walk and do things normal teens do.
    tiaa26 tiaa26 16-17, F 1 Response Nov 28

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    I have been seen naked... once i came out of the shower, and my towel came off me, i leaned forward to put it on again... i didnt care too much, but there is a mirror on my door...
    SophieBrown87 SophieBrown87 26-30, F 10 Responses 12 hrs ago

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    My daughter is 6 years old. I started her in Kindergarten 2 weeks after she turned 5 (she had done very well in Preschool for two years). Her first year of K she started having...
    kjreitz kjreitz 31-35, F Nov 23

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    Being stalked well was one of the weirdest and f**ked up time of my life, Recently Graduated tertiary studies and was about to join my dream career, So anyway at the start of 2013...
    Arizv11 Arizv11 22-25, M Nov 24

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    Once again I find myself as an inpatient at a psych ward. I have been under a lot of stress the last two weeks as there are projects to finish and exams coming up soon. I had been...
    lisa7 lisa7 31-35, F 1 Response Nov 25

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    Yeah I have been in hell. I have had my life taken away from me and sent into hell for 3 yrs and it took 5 yrs after just to cope. Dehumanized, captive, mentally tortured...
    mslvr01 mslvr01 46-50, M 3 Responses Nov 28

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    I don't know where to begin. Do u remember the first time we talked? I do. It was back at eminence in late 2013. Economics classes. It's like some twisted law of fate, I think I'm...
    Tearsinmycheek Tearsinmycheek 16-17, F Nov 29

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    I have been dressing from time to time since I was 7. However, the last three years it has been most if the time. About three years ago I started wearing panties, pantyhose, and a...
    Adam59 Adam59 56-60, M 4 Responses Dec 1

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    I have been feeling alone a lot lately. All my husband seems to be interested in is his video games and when we are intimate, right after, he just gets up, cleans up, and goes...
    Mystery08 Mystery08 22-25, F 1 Response Dec 2

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    It's been a difficult year. There have been some low lows and I'm wondering when the highs are coming back. I've applied to 50 jobs as of February. I've been interviewed 10 times...
    msrani msrani 31-35, F Dec 5

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    My 89 year old father, who has been my dad, coach, mentor, boss and so many other things to me, is basically a lump of human flesh. He doesn't know any of us any more, where he is...
    steverick steverick 56-60, M 3 Responses Dec 5

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    I've been told I have a good voice. Sexy seductive and also calm and soothing. Have been asked many times to tell someone a bed time story or to just talk till they fall asleep or...
    Cloudwolf1313 Cloudwolf1313 26-30, M Dec 10

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    I guess it's happened a couple times. The most recent: I work with the football team at my university. I'm pretty close with one of the coaches. He's not that much older than me...
    MyUnspokenWord MyUnspokenWord 18-21, F Dec 11

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    Not much to say other than I recently just got cheated on, and I really don't know what to do with myself or the questions I have that no one can really answer. Wrapping my head...
    Panoramicdemon Panoramicdemon 16-17, F 3 Responses Dec 12

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    my husband and i have been best friends for 20 years, in a relationship for 4 yrs and married for 1. I found out he was cheating on me just before we got married and was sending...
    mumofj mumofj 26-30, F 16 Responses 5 days ago

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    First, I know it's long, but please I need someone to help me. Any advice. Reading these stories bring tears to my eyes. I have been cheated on 3 times by the same guy. He lied...
    ArisDiCicco ArisDiCicco 18-21, F 4 Responses 5 days ago

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    I am contemplating divorcing my husband. The problem is that this will be my third divorce and I am only 43. I made some bad decisions in my twenties based on growing up in an...
    strikes3 strikes3 41-45, F 4 days ago

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    What are your symptoms??? I wanted to stay home last night, yesterday was a long day, but I went into the hospital emergency room. I guessed I would be left in the waiting room...
    LadyGypsy LadyGypsy 36-40, F 3 Responses 3 days ago

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    2, both female. I've had 2 different cyberstalkers in my internet lifetime. They were both female and both under the age of 25. Stalking is a very serious thing. Cyberstalkers are...
    DarkwingGoslyn DarkwingGoslyn 31-35 1 day ago

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    After he raped me, he stalked me for 2 days. I didn't tell anybody for years. I was so scared. But I changed my number. I'm just glad he didn't know where I lived because it...
    CreoleItalianwoman CreoleItalianwoman 31-35, F 2 Responses Nov 22

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    It is just so unfair, but I know that the hereafter has better in store. I cannot help but cry and hurt so much. I feel so suicidal. I really have been through so much. From birth...
    SadAbdul SadAbdul 26-30, M Nov 23

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