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I Have Just Been Diagnosed With Mctd

Personal Stories, Advice, and Support 44 People

    Confused With Diagnosis

      I am a first timer with this type of thing but here goes. I worked at a skilled nursing facility (SNF) and "got scapies then staph". That was back in July. it's not Nov 1st. I have been seen by 4 doctors who said my skin condition was scabies and then a toxitiy of...
    TSiebold TSiebold 51-55, F Nov 2, 2012

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    Recently Diagnosed With Mctd

    I am 23 and have just recently been diagnosed with MCTD. I was wondering if there is anyone else out there my age that is going through the same thing as me.
    Artickat Artickat 22-25, F 4 Responses Dec 1, 2009

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    Recent Diagnosis

    Good day all, Was just recently diagnosed last week with MCTD after my anti-RNP test came back positive. I've done my research on the disease and its a bit overwhelming. My doctor explained it as like a game of Russian Roulette. He said right now I'm in the aches and pains stage...
    msjackson87 msjackson87 26-30, F 1 Response Oct 7, 2013

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    Even Young Children Can Get Mctd

    I was diagnoses with MCTD when I was 9 years old and in 3rd grade. I'm currently 17, I'll be 18 in 8 months and I'm a junior in high school working on getting my CNA certificate. I've been living with MCTD for 8 years.. It took the doctors for ever to diagnose me. Everyone...
    PeaceOutDude PeaceOutDude 18-21, F Jan 7, 2013

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    Mctd Awareness

    Ok so Mctd isn't a big deal. U would say this if u don't live with it. No one chooses an illness or when they get but maybe it is lack of understanding that makes the people with it reluctant to share with family and friends what it is. I expect there are many people living...
    skymum2012 skymum2012 36-40, F 1 Response May 13, 2012

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    Any One Else Dealing With This?

    I have recently (within the last month) diagnosed with MCTD.  I am in the middle of a big flare up with lots of pain.  I have only been on 200mg of Plaquenil for 2 weeks and can't get in to see the rhuemy until Dec. 15.  I take Lortab or Ultram for pain, but worry...
    dewinparis dewinparis 46-50, F 1 Response Nov 26, 2009

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    Any One Else Dealing With This?

    I have recently (within the last month) diagnosed with MCTD.  I am in the middle of a big flare up with lots of pain.  I have only been on 200mg of Plaquenil for 2 weeks and can't get in to see the rhuemy until Dec. 15.  I take Lortab or Ultram for pain, but worry...
    dewinparis dewinparis 46-50, F 1 Response Nov 26, 2009

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    "we Are Not The Disease, It Is Part Of Us, Don't Let It Win"by Controlling Your Every Moment".

    This was said to me once when I first realized that the disease was now progressing. It seems that we are in so much pain that we let this "disease" control our waking moment all, I guess, I don't know about you but I don't sleep much...and I am always analysing everything, I...
    fibrolupusleropolymyoitis fibrolupusleropolymyoitis 56-60, F 2 Responses Oct 26, 2012

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    I was diagnosed in 2009.

    I went to see my DR for a checkup when my back started to hurt. I originally thought it was a herniated disc because just before the pain set in I was trying to lift a heavy tv. I finally gave in 2yrs later (still with pain) she took tests and told me I MIGHT have lupus..which...
    goodwitch011070 goodwitch011070 41-45, F Nov 4, 2014

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    I Am 49 Was Diagnosed With Mctd 2 Years Ago After 20+ Years Of On & Off Symptoms

    It has been a long road but at least I know why I have had so many medical issues. Always told it was inflammation. I am now on plaquenil , Vemivo and Wellbutrin , this combination of Rx have done wonders for me. I finally have energy and a lot less pain. I take plaquenil 2xday...
    Kpages7 Kpages7 51-55 May 3, 2013

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    Mctd Experience.

    I'm 14 and I was diagnosed with MCTD 5 months ago. When I was first experiencing pain, I had to visit like 5 doctors, who all thought different things. One said it was dengue or chikungunya, but i was tested negative for both. Another said it was just a viral, but we doubted that...
    igotcolors igotcolors 13-15 1 Response May 30, 2010

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    Living With Mctd

    I was diagnosed with MCTD approximately 2 years ago. I was so releived to finally have an answer. For several years I was being treated for each symptom. And believe me, there were several. It got to be so bad that I leterally felt as if I had been run over by a truck. I decided...
    Renee041079 Renee041079 31-35 5 Responses Aug 23, 2012

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    Related Experiences

    I do not have MS! Drug induced lupus is a real thing. Please check your meds!
    deleted deleted 26-30 Apr 22

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    It's not everyday. It's not all the time. But I have it. And they gave me medicine for it. But I stopped taking it a long time ago because I wanted to see if I could feel better...
    Allforaview Allforaview 18-21, F Apr 25

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    I have been reunited with my first love.... We met in Job Corps in the early 90. At the time I had a boyfriend. But he was always around making me laugh. Till one day he ask me to...
    alwayshisbaby73 alwayshisbaby73 41-45, F 2 Responses 3 days ago

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    I met my soulmate when I was 18 years old. He truly is the love of my life. He completed me in every way possible. We planned our entire lives together and I could not see myself...
    S615 S615 18-21, F May 10

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    The Whippen of Mass Destruction I hesitate to tell this story. So severe was this punishment, that I fear it will motivate some parent to implement it when they feel they have no...
    phillysteve phillysteve 36-40, M 2 Responses 4 days ago

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    I really was struggling to forgive my STBX husband for the years of pain he caused me. He's not a bad man he has a good heart and he's an awesome Dad. He has some mental health...
    deleted deleted 26-30 1 Response Apr 25

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    This is something that's very hard for me. My boyfriend has cheated on me in the past, by flirting & contacting other women on social networks. And we broke up for a few months...
    shesdifferent516 shesdifferent516 18-21, F Apr 25

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    I HAVEN'T HAD THE PLEASURE YET!!! Okay this may or may not sound weird but I've decided that I want to find an older woman someone in her eighties that would like to experience...
    rayinman01 rayinman01 41-45, M 5 days ago

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    I think people who apologize again and again should stop begging for forgiveness and instead earn it.
    saddestfate saddestfate 31-35, F May 6

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    yeah obviously im still a teen so...this is pretty normal I must say
    yairdjudas999 yairdjudas999 16-17, M 1 day ago

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    Recently, I have had quite a few life changing events that have happened. Looking back on some things, I probably would have changed some things sooner, but I can’t control the...
    Haywee123 Haywee123 22-25, F May 5

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    A lot of times! For the last two years I have been living in Germany. Spas here are nude and mixed when attending a sauna or a steambath. Even poolareas and sauana gardens are...
    niceskip niceskip 46-50, M 2 hrs ago

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    I have been married for 18 years to my highschool sweetheart. We have 2 children ages 20 and 14. My husband has cheated on me twice. The first was in 2007 and he wanted to be with...
    kbrown1974 kbrown1974 36-40, F 6 Responses Apr 23

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    Long time ago I had a great job, working together with the management staff in an international engineering project, earning a lot of money. At the same time I was dealing with big...
    diaperuser71 diaperuser71 36-40, M May 12

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    The first time, I had attempted suicide around 30 years old, I attempted to cut my wrists, it was over the fact that I lost everything and I was a hardcore alcoholic, while in the...
    squeezenbiteme squeezenbiteme 31-35, M 1 Response a week ago

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    I am so glad I stumbled on this category of posts, because reading of other people's similar experiences is somehow helpful to me, although I'm sorry for all of your troubles. I...
    2323Anonymous 2323Anonymous 51-55, F May 11

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    Eight years ago I was thrown into parenthood. The cooking, cleaning, scolding, and the homework helping was all done by me. Eight years ago my mother was diagnosed with MS. It...
    zshley123 zshley123 18-21, F May 4

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    This last year has been all over the spectrum, from really really good, to just brutal. I think I am starting to understand why I am struggling so much with being confident in...
    loneranger91 loneranger91 22-25, F 1 Response May 6

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    It all goes back to May of 2012. At the time I was still in the process of disputing my claim for SSI (Supplemental Security Income) and still coping with the worst of my severe...
    WorldCreator WorldCreator 31-35, M 1 Response 5 days ago

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    I have been cheated on in the past and unfortunately I remember what it felt like to have been betrayed in that way. The problem is when you think you've encountered the person...
    Msprissy Msprissy 36-40, F 1 Response Apr 25

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    I have been busy and don't ever what to experience that feel for long durations again. Busy-ness, importance, and productivity are not synonymous. I know a lot of people take pride...
    Elsahen Elsahen 22-25, F 1 Response May 1

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    Dear N, I am beyond angry and sad at the hurt and devastation you have caused not only to me and the girls, but dozens of friends and family. I don’t fully understand why you...
    CapricornDad CapricornDad 41-45, M 1 Response May 1

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    I always wonder what would my life would have been like if I wasn't born in what seems to be my imagination. If people genuinely knew my existence and made a celebration out of it...
    deathnotefreak deathnotefreak 18-21, F 2 Responses May 4

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    I have been seen naked numerous times. I suppose the first time I was seen naked by someone other than my immediate family was when I was sleeping over at a friends house. We...
    gatordude gatordude 31-35, M 2 Responses May 5

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    Given that I've been really bummed out of late and there's no shortage of drugs available to me (methamphetamine and mdma is very prominent in my groups, opiates benzos etc is easy...
    chinawhite007 chinawhite007 26-30, M 2 Responses May 12

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    Emptiness, drowns you in black crippling depression, in water so deep you can't see the bottom and from the bottom cannot see the surface, I have been hurt I've been used I've been...
    ddmagnum ddmagnum 22-25, M 1 Response a week ago

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    Here is some of the dreadful things I experienced while being gangstalked. And yes. it does exist. This may help you if you are reading to identify with some, if not all. Also, at...
    goldenview goldenview 31-35 1 day ago

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    I'm the youngest of three brothers the oldest is 13 years older than me, the middle one is 9 years older. I should start by saying that I've had trouble making friends and getting...
    Caspianstorm Caspianstorm 36-40, M 1 day ago

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    I have been betrayed by my friend when i was in 6th grade because she was the "bystander who agrees with the bully" and she was also my "friend" . so when the bully would come...
    Rosey3686 Rosey3686 18-21, F 2 Responses Apr 22

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    I definitely should have been born a woman. Every time I am dressed up in a dress or something all I think about is being a woman in every way. The thing is I dress up almost...
    Jenni0127 Jenni0127 51-55, T Apr 23

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