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I Have Just Been Diagnosed With Mctd

Personal Stories, Advice, and Support 44 People

    Confused With Diagnosis

      I am a first timer with this type of thing but here goes. I worked at a skilled nursing facility (SNF) and "got scapies then staph". That was back in July. it's not Nov 1st. I have been seen by 4 doctors who said my skin condition was scabies and then a toxitiy of...
    TSiebold TSiebold 51-55, F Nov 2, 2012

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    Recently Diagnosed With Mctd

    I am 23 and have just recently been diagnosed with MCTD. I was wondering if there is anyone else out there my age that is going through the same thing as me.
    Artickat Artickat 22-25, F 4 Responses Dec 1, 2009

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    I was diagnosed in 2009.

    I went to see my DR for a checkup when my back started to hurt. I originally thought it was a herniated disc because just before the pain set in I was trying to lift a heavy tv. I finally gave in 2yrs later (still with pain) she took tests and told me I MIGHT have lupus..which...
    goodwitch011070 goodwitch011070 41-45, F Nov 4, 2014

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    Mctd Experience.

    I'm 14 and I was diagnosed with MCTD 5 months ago. When I was first experiencing pain, I had to visit like 5 doctors, who all thought different things. One said it was dengue or chikungunya, but i was tested negative for both. Another said it was just a viral, but we doubted that...
    igotcolors igotcolors 13-15 1 Response May 30, 2010

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    "we Are Not The Disease, It Is Part Of Us, Don't Let It Win"by Controlling Your Every Moment".

    This was said to me once when I first realized that the disease was now progressing. It seems that we are in so much pain that we let this "disease" control our waking moment all, I guess, I don't know about you but I don't sleep much...and I am always analysing everything, I...
    fibrolupusleropolymyoitis fibrolupusleropolymyoitis 56-60, F 2 Responses Oct 26, 2012

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    Mctd Awareness

    Ok so Mctd isn't a big deal. U would say this if u don't live with it. No one chooses an illness or when they get but maybe it is lack of understanding that makes the people with it reluctant to share with family and friends what it is. I expect there are many people living...
    skymum2012 skymum2012 36-40, F 1 Response May 13, 2012

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    Living With Mctd

    I was diagnosed with MCTD approximately 2 years ago. I was so releived to finally have an answer. For several years I was being treated for each symptom. And believe me, there were several. It got to be so bad that I leterally felt as if I had been run over by a truck. I decided...
    Renee041079 Renee041079 31-35 5 Responses Aug 23, 2012

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    Even Young Children Can Get Mctd

    I was diagnoses with MCTD when I was 9 years old and in 3rd grade. I'm currently 17, I'll be 18 in 8 months and I'm a junior in high school working on getting my CNA certificate. I've been living with MCTD for 8 years.. It took the doctors for ever to diagnose me. Everyone...
    PeaceOutDude PeaceOutDude 18-21, F Jan 7, 2013

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    Recent Diagnosis

    Good day all, Was just recently diagnosed last week with MCTD after my anti-RNP test came back positive. I've done my research on the disease and its a bit overwhelming. My doctor explained it as like a game of Russian Roulette. He said right now I'm in the aches and pains stage...
    msjackson87 msjackson87 26-30, F 1 Response Oct 7, 2013

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    I Am 49 Was Diagnosed With Mctd 2 Years Ago After 20+ Years Of On & Off Symptoms

    It has been a long road but at least I know why I have had so many medical issues. Always told it was inflammation. I am now on plaquenil , Vemivo and Wellbutrin , this combination of Rx have done wonders for me. I finally have energy and a lot less pain. I take plaquenil 2xday...
    Kpages7 Kpages7 51-55 May 3, 2013

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    Any One Else Dealing With This?

    I have recently (within the last month) diagnosed with MCTD.  I am in the middle of a big flare up with lots of pain.  I have only been on 200mg of Plaquenil for 2 weeks and can't get in to see the rhuemy until Dec. 15.  I take Lortab or Ultram for pain, but worry...
    dewinparis dewinparis 46-50, F 1 Response Nov 26, 2009

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    Any One Else Dealing With This?

    I have recently (within the last month) diagnosed with MCTD.  I am in the middle of a big flare up with lots of pain.  I have only been on 200mg of Plaquenil for 2 weeks and can't get in to see the rhuemy until Dec. 15.  I take Lortab or Ultram for pain, but worry...
    dewinparis dewinparis 46-50, F 1 Response Nov 26, 2009

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    Related Experiences

    I don't understand relationships, any kind. So I push everyone away. I am starting today to fight everything that tells me to isolate and to instead bring people closer.
    roaminglostsoul roaminglostsoul 31-35, F Feb 23

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    So for a few years now I've been dealing with my manic-depression and it's gotten better and worse through time. I began taking mediciation to help when I was 12 though it didn't...
    13nanna 13nanna 18-21, F Feb 22

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    Hello! I just wanted to share with everyone a natural and effective acne treatment. If you want to know more please check out my blog http://chadwickdesignmarketing.blogspot.co.uk...
    CDMargaret CDMargaret 22-25, F Feb 18

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    My dad has done a lot to hurt me. No, he did not sexually abuse me nor has he ever beaten me. But, getting drunk enough that I have to take care of him, and staying out so late...
    tRueInSAnItY tRueInSAnItY 16-17, F 1 Response Feb 21

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    I'm a high school teacher and coach, so I have deal with girls ages 14-18 every day. I'll have about one or two girls in each class trying to flirt with me. Then when there is...
    coachaxel coachaxel 26-30, M 6 days ago

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    Most infractions of my parents rules would earn an old fashioned padding by my mother - but that's another story. For serious misbehavior, we would merit a good strapping by my...
    whitebirch999 whitebirch999 66-70, M 2 Responses 5 days ago

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    It's such a struggle when you aren't physically who you are mentally. Most of my problems in life are because of my body. I hate my body. I hate being a male.
    CuriousCD66 CuriousCD66 46-50, T 1 Response Feb 11

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    I'll take the compliment but not trying to go to jail!
    FuntimesinAZ FuntimesinAZ 41-45, M a week ago

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    you knew i fancied you, your friends also knew. we had been getting along great, but i kinda knew we weren't going to go that way, you vaguely cited religion as a reason even...
    spiralvortex spiralvortex 26-30, F Feb 9

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    My daughter was born at only 25 weeks. She had some mild bleeding in her brain.As a tiny infant we were told that she had some stiffness on one side of her body, but we wouldn't...
    raquiellet raquiellet 36-40, F 1 day ago

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    I have 2 boys and a girl all on the spectrum. The boys are diagnosed with aspergers syndrom. My daughter has Issues with sounds and bright lights.
    ckolody ckolody 46-50, M 5 hrs ago

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    I should not say that all men have hurt me. I do not think that all men are evil or blame everyone in my life but I have been hurt by a lot of men. I don't want to be bitter and I...
    wingeyes wingeyes 31-35, F 1 Response 5 hrs ago

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    I hate when people use the word "Schizo." It is so deragatory. I thought that people who have actually been in a ward would understand terms like that are horrible. Phrases like...
    mstenorsaxplayer mstenorsaxplayer 18-21, F Feb 7

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    I have been called crazy multiple times in my life, I'm not fishing for compliments. They're right by the clinical definition. My past from what I can remember has been fairly...
    Edg3Runn3r Edg3Runn3r 26-30, M 1 Response Feb 9

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    I was actually diagnosed with ET well over four years ago, just never met or talked to anyone who has shared the same experiences. Would be nice to do so.
    MrsWhite78 MrsWhite78 36-40, F Feb 15

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    My 13yr old daughter is an aspie .It runs on my husband's side of our family. He himself is an aspie so is his 17yr old son. Our 11yr old son has autism. It primarily has affected...
    Allie9273 Allie9273 41-45, F Feb 6

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    A couple weeks ago, 6 days after my 20th birthday, I had had enough with stress and my depression. Granted, I wasn't taking my medication properly, which probably contributed in my...
    KorruptedKid KorruptedKid 18-21, F 1 Response Feb 6

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    Going out of my own country for the first time was quite an adventure and I was in my 20s before I managed it. I went to Switzerland - about the most expensive place in Europe...
    alanbt alanbt 61-65, M 2 Responses Feb 9

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    What a difference a year makes. 12 little months......Wow! I can scarcely believe it. Today is the first anniversary of my EP membership! When l look back, the year has flown.The...
    2BlossomBlue 2BlossomBlue 51-55, F 15 Responses Feb 15

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    i have been bullied since i was a kid i don't know why i'm depressed still going to school my sisters don't understand they also bullied me nobody understand how i feel i feel...
    gamergirlo gamergirlo 13-15, F 2 Responses a week ago

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    I have been so many times near love .... under the sky with all the stars up there...looking at moon ... feeling my heart pumping....like a love ... but i have been so many times...
    Jackk1992 Jackk1992 22-25, M 3 days ago

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    I'm glad to be here. Because before, I was past help. I didn't know how to voice my pain in any other way than that of self harm, and eventually, attempted suicide. But my mum...
    betruetoyourself14 betruetoyourself14 13-15, F Feb 7

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    I have been going out with my girlfriend for about 5 months.. before we started dating I knew she had a male friend for over 20 years. they would go to the movies go to his house...
    ihavesomeissues ihavesomeissues 41-45, M 1 Response Feb 8

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    Well it's been a while since I have been on...I guess the reasons are...my boyfriend and I broke up...and I also lost my pappy about a week ago
    SexySam93 SexySam93 18-21, F 9 Responses Feb 19

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    Things about where I live, my age and what I do, and about my health and my days. I have been asked why am I single.... And, now I have been asked what am I like in bed.... Am I...
    Rovigatti Rovigatti 18-21, F 3 Responses Feb 20

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    Yeah, I think I have been forgotten by the most important person in my life. He has up and forgotten me. I was, wait let me rephrase that, I AM in love with him. I have been since...
    wannaloveyou wannaloveyou 13-15, F 2 Responses Feb 22

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    I am currently the spouse of a cocaine addict. We have been together for 5 years and the addiction has been on and off in those years. We have a beautiful baby boy together and my...
    carriox carriox 22-25, F Feb 23

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    I have been with my husband for almost 11 years and we have two beautiful children. He has been cheating on me for the past six months. It's pretty crazy what goes on in your head...
    sunnygirl29 sunnygirl29 26-30, F 2 Responses 3 days ago

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    My ex and I were in a long-distance relationship from April 2014 to June the same year, then again from September until January of this year. We took a break because his career...
    Mollywobbles225 Mollywobbles225 26-30, F 1 Response 1 day ago

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    A lot of people have been asking about my disappearance from Experience Project. I have had school work and the play at my schools seems to be taking over my life at the moment. I...
    ningqin ningqin 13-15, F 1 Response 1 day ago

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    I'm proud to have been blocked by some of the people who have blocked me. They are the types that usually get blocked and thrive for that. I'm talking about the trolls. It feels...
    jayciedubb jayciedubb 46-50, M Feb 7