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I Have Just Been Diagnosed With Mctd

Personal Stories, Advice, and Support 43 People

    Living With Mctd

    I was diagnosed with MCTD approximately 2 years ago. I was so releived to finally have an answer. For several years I was being treated for each symptom. And believe me, there were several. It got to be so bad that I leterally felt as if I had been run over by a truck. I decided...
    Renee041079 Renee041079 31-35 5 Responses Aug 23, 2012

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    Recently Diagnosed With Mctd

    I am 23 and have just recently been diagnosed with MCTD. I was wondering if there is anyone else out there my age that is going through the same thing as me.
    Artickat Artickat 22-25, F 4 Responses Dec 1, 2009

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    Any One Else Dealing With This?

    I have recently (within the last month) diagnosed with MCTD.  I am in the middle of a big flare up with lots of pain.  I have only been on 200mg of Plaquenil for 2 weeks and can't get in to see the rhuemy until Dec. 15.  I take Lortab or Ultram for pain, but worry...
    dewinparis dewinparis 46-50, F 1 Response Nov 26, 2009

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    I Am 49 Was Diagnosed With Mctd 2 Years Ago After 20+ Years Of On & Off Symptoms

    It has been a long road but at least I know why I have had so many medical issues. Always told it was inflammation. I am now on plaquenil , Vemivo and Wellbutrin , this combination of Rx have done wonders for me. I finally have energy and a lot less pain. I take plaquenil 2xday...
    Kpages7 Kpages7 51-55 May 3, 2013

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    Even Young Children Can Get Mctd

    I was diagnoses with MCTD when I was 9 years old and in 3rd grade. I'm currently 17, I'll be 18 in 8 months and I'm a junior in high school working on getting my CNA certificate. I've been living with MCTD for 8 years.. It took the doctors for ever to diagnose me. Everyone...
    PeaceOutDude PeaceOutDude 18-21, F Jan 7, 2013

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    Any One Else Dealing With This?

    I have recently (within the last month) diagnosed with MCTD.  I am in the middle of a big flare up with lots of pain.  I have only been on 200mg of Plaquenil for 2 weeks and can't get in to see the rhuemy until Dec. 15.  I take Lortab or Ultram for pain, but worry...
    dewinparis dewinparis 46-50, F 1 Response Nov 26, 2009

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    I was diagnosed in 2009.

    I went to see my DR for a checkup when my back started to hurt. I originally thought it was a herniated disc because just before the pain set in I was trying to lift a heavy tv. I finally gave in 2yrs later (still with pain) she took tests and told me I MIGHT have lupus..which...
    deleted deleted 26-30 Nov 4, 2014

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    Confused With Diagnosis

      I am a first timer with this type of thing but here goes. I worked at a skilled nursing facility (SNF) and "got scapies then staph". That was back in July. it's not Nov 1st. I have been seen by 4 doctors who said my skin condition was scabies and then a toxitiy of...
    TSiebold TSiebold 51-55, F Nov 2, 2012

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    "we Are Not The Disease, It Is Part Of Us, Don't Let It Win"by Controlling Your Every Moment".

    This was said to me once when I first realized that the disease was now progressing. It seems that we are in so much pain that we let this "disease" control our waking moment all, I guess, I don't know about you but I don't sleep much...and I am always analysing everything, I...
    fibrolupusleropolymyoitis fibrolupusleropolymyoitis 56-60, F 2 Responses Oct 26, 2012

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    Mctd Awareness

    Ok so Mctd isn't a big deal. U would say this if u don't live with it. No one chooses an illness or when they get but maybe it is lack of understanding that makes the people with it reluctant to share with family and friends what it is. I expect there are many people living...
    skymum2012 skymum2012 36-40, F 1 Response May 13, 2012

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    Mctd Experience.

    I'm 14 and I was diagnosed with MCTD 5 months ago. When I was first experiencing pain, I had to visit like 5 doctors, who all thought different things. One said it was dengue or chikungunya, but i was tested negative for both. Another said it was just a viral, but we doubted that...
    igotcolors igotcolors 13-15 May 30, 2010

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    Recent Diagnosis

    Good day all, Was just recently diagnosed last week with MCTD after my anti-RNP test came back positive. I've done my research on the disease and its a bit overwhelming. My doctor explained it as like a game of Russian Roulette. He said right now I'm in the aches and pains stage...
    msjackson87 msjackson87 26-30, F 1 Response Oct 7, 2013

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    Related Experiences

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    I always considered myself as a man. Except for one thing, I wanted to have women's breasts. 11 months ago I came across Transfemme resource. I decided to try this product for a...
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    I will have to write later. But I was in a 3 yr relationship with a man who was physically abusive. He would literally pin me down on the bed & threaten to kill me. He would have...
    Bluetangerine Bluetangerine 46-50, F 8 hrs ago

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    My husband and I were recently walked in on while having sex by my mother at her house. I was so close to an ****** that I didn't stop. I figured that all she could see were my...
    Wifeof1momof3nc Wifeof1momof3nc 31-35, F 4 Responses 2 days ago

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    Which takes a stronger person to do? 1.Stay married to someone who betrayed you, try to accept it and move on? 2. Get a divorce and start new, away from all the past hauntings of...
    iwillneverheal iwillneverheal 36-40, F 2 Responses 3 days ago

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    Last week when returning home from the pub I was groped in the bus. I felt terrified, insecure and good, all at the same time. I was not too drunk but I was tired as I had been...
    coldboy coldboy 26-30 1 Response 3 days ago

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    12 months ago I created my profile and picked a name for my feminine self. 12 months ago Jessica came into my life (Virgos rule, BTW) What a year it's been.... I won't bother...
    JessicaDale JessicaDale 51-55, T 5 Responses 4 days ago

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    This evening I had my first experience of the belt. I hope I make sure it's my last.
    HC43 HC43 41-45, F 4 Responses 5 days ago

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    I want to tell you about a spanking I got in my teen years. I think I learned how to be responsible and do the right thing due to this. I was dating this girl when I was in HS. She...
    davedexp davedexp 56-60, M 1 Response 5 days ago

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    It was 21 years ago. It was my 38th birthday. I had been married to my wife almost 6.5 years. My wife had been out with co-workers volunteering at a city event. She did not come...
    sppbeep sppbeep 56-60, M 6 Responses 5 days ago

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    If I can do my life all over again, I would have been a rockstar. I would have been like Roxette. Tough feminity, a solid band and sexy edgy hair. No harm dreaming isn't it. The...
    lpch lpch 26-30, F 1 Response 5 days ago

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    I am a switch, both submissive and dominant. But really have been submissive to only a handful of men but always felt in control of letting go. Because of my busy life, my first...
    AtropineHeart AtropineHeart 26-30, F 1 Response 6 days ago

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    I've been with this guy for about 5 years and I'm fed up with him. This story is a bit crazy. I use to check his Facebook page often and notice that he conversates a lot with his...
    FrancinePryor FrancinePryor 46-50, F 3 Responses a week ago

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    It has been a month now, since I found out my husband cheated on me. We have been together for 20 years and have two kids. It was a co-worker and it lasted 6 months. He told me he...
    Amyc76 Amyc76 36-40, F 18 Responses a week ago

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    Lateness is actually one of the personality trait. People who are late all the time cannot help it. Simplegirlstory 22-25, F 7 Answers 1 8 mins ago in Community hi...
    sogdianrock sogdianrock 56-60, M Aug 25

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    it makes me scream and cry from the first hit. yesterday i got 30 lashes my butt is still crimson red and it stings like hell.
    SadGirl2002x SadGirl2002x 13-15, F 8 Responses Aug 25

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    I saw my hematologist Fri and he decided to send me for a muscle biopsy and encouraged me to get a 2nd opinion from a rheumatologist. I had blood work done and he says my...
    wandawoof2015 wandawoof2015 51-55, F Aug 24

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    It was a picnic to the woods. My younger brother insisted for dipping into the small river for a swim together. only the three of us were there.
    peetboy peetboy 56-60, M 3 Responses Aug 24

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    I have been communicating with someone to seduce my beautiful 53 year old wife. She , of course, has no idea. She will be contacted(by email) anonymously soon. I will read the...
    NiceNEasy4U NiceNEasy4U 51-55, M 5 Responses Aug 23

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    Mabey because they still cause me pain I don't forgive
    deleted deleted 26-30 1 Response Aug 23

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    I still must go to cut my own switch in the garden ;( thet can be embarrassing sometimes
    deleted deleted 26-30 Aug 23

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    I have been chatting with this guy from school. I'm also a guy but I have a crush on him, he's a year younger than me. So, there's this welcome party for the freshmen in our...
    LeoNyxus LeoNyxus 18-21, M 2 Responses Aug 23

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    I have been through a lot for the past couple of years and I have been judged because of who I am or because of the way I look. I have been bullied for the people I like and why I...
    Nelly2003 Nelly2003 13-15, F 4 Responses Aug 22

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    I'm fourteen years old and a freshman in high school. I'm about 200 pounds. I haven't been able to forgive my mom for initially causing my weight. However, the truth is, obesity...
    EndTheFatKid EndTheFatKid 13-15, F 1 Response Aug 22

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    My bf has it @ 41. How does it not make you feel less than? How arousing can you get when you get no response from him yet he seems to get excited by pics of guns (no, just an NRA...
    jules021775 jules021775 36-40, F 9 Responses Aug 21

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    I was maybe about 16. He lied to me about his age... saying he was 17 when really he was 25. He used to cut me, choke me, and rape me. He used me for sex and then when i got...
    nicky3489 nicky3489 18-21, F 7 Responses Aug 21

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    Sorry if your mail and posts have gone unanswered, I started a new job and have been really busy, all is well and hope all is well with all my friends, I've missed talking to you.
    CDKristiK CDKristiK 51-55, M 2 Responses Aug 17

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    I have been lied, used, stabbed, threatened, blackmailed by some of my friends and by my ex. Now I have a serious problem with trusting someone. I know I'm still young but my ex...
    escede escede 18-21, F 2 Responses Aug 16

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    Actually, I have been helped more by strangers than by friends, it seems. For example, once me and a friend of mine were walking, when I felt faint, and stopped to catch my breath...
    Taurusedi Taurusedi 36-40, M 1 Response Aug 16

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    I have been dealing with Hidradenitis Suppurativa for few years. It is an autoimmune disorder affecting the skin. Anyhow, I started having so much pain and was told HS damaged some...
    SoulCoffee SoulCoffee 26-30, M Aug 14

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