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I Have Just Been Diagnosed With Mctd

Personal Stories, Advice, and Support 44 People

    Any One Else Dealing With This?

    I have recently (within the last month) diagnosed with MCTD.  I am in the middle of a big flare up with lots of pain.  I have only been on 200mg of Plaquenil for 2 weeks and can't get in to see the rhuemy until Dec. 15.  I take Lortab or Ultram for pain, but worry...
    dewinparis dewinparis 46-50, F 1 Response Nov 26, 2009

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    Any One Else Dealing With This?

    I have recently (within the last month) diagnosed with MCTD.  I am in the middle of a big flare up with lots of pain.  I have only been on 200mg of Plaquenil for 2 weeks and can't get in to see the rhuemy until Dec. 15.  I take Lortab or Ultram for pain, but worry...
    dewinparis dewinparis 46-50, F 1 Response Nov 26, 2009

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    Recent Diagnosis

    Good day all, Was just recently diagnosed last week with MCTD after my anti-RNP test came back positive. I've done my research on the disease and its a bit overwhelming. My doctor explained it as like a game of Russian Roulette. He said right now I'm in the aches and pains stage...
    msjackson87 msjackson87 26-30, F 1 Response Oct 7, 2013

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    "we Are Not The Disease, It Is Part Of Us, Don't Let It Win"by Controlling Your Every Moment".

    This was said to me once when I first realized that the disease was now progressing. It seems that we are in so much pain that we let this "disease" control our waking moment all, I guess, I don't know about you but I don't sleep much...and I am always analysing everything, I...
    fibrolupusleropolymyoitis fibrolupusleropolymyoitis 56-60, F 2 Responses Oct 26, 2012

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    I was diagnosed in 2009.

    I went to see my DR for a checkup when my back started to hurt. I originally thought it was a herniated disc because just before the pain set in I was trying to lift a heavy tv. I finally gave in 2yrs later (still with pain) she took tests and told me I MIGHT have lupus..which...
    goodwitch011070 goodwitch011070 41-45, F Nov 4, 2014

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    Recently Diagnosed With Mctd

    I am 23 and have just recently been diagnosed with MCTD. I was wondering if there is anyone else out there my age that is going through the same thing as me.
    Artickat Artickat 22-25, F 4 Responses Dec 1, 2009

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    Even Young Children Can Get Mctd

    I was diagnoses with MCTD when I was 9 years old and in 3rd grade. I'm currently 17, I'll be 18 in 8 months and I'm a junior in high school working on getting my CNA certificate. I've been living with MCTD for 8 years.. It took the doctors for ever to diagnose me. Everyone...
    PeaceOutDude PeaceOutDude 18-21, F Jan 7, 2013

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    I Am 49 Was Diagnosed With Mctd 2 Years Ago After 20+ Years Of On & Off Symptoms

    It has been a long road but at least I know why I have had so many medical issues. Always told it was inflammation. I am now on plaquenil , Vemivo and Wellbutrin , this combination of Rx have done wonders for me. I finally have energy and a lot less pain. I take plaquenil 2xday...
    Kpages7 Kpages7 51-55 May 3, 2013

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    Mctd Experience.

    I'm 14 and I was diagnosed with MCTD 5 months ago. When I was first experiencing pain, I had to visit like 5 doctors, who all thought different things. One said it was dengue or chikungunya, but i was tested negative for both. Another said it was just a viral, but we doubted that...
    igotcolors igotcolors 13-15 1 Response May 30, 2010

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    Living With Mctd

    I was diagnosed with MCTD approximately 2 years ago. I was so releived to finally have an answer. For several years I was being treated for each symptom. And believe me, there were several. It got to be so bad that I leterally felt as if I had been run over by a truck. I decided...
    Renee041079 Renee041079 31-35 5 Responses Aug 23, 2012

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    Mctd Awareness

    Ok so Mctd isn't a big deal. U would say this if u don't live with it. No one chooses an illness or when they get but maybe it is lack of understanding that makes the people with it reluctant to share with family and friends what it is. I expect there are many people living...
    skymum2012 skymum2012 36-40, F 1 Response May 13, 2012

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    Confused With Diagnosis

      I am a first timer with this type of thing but here goes. I worked at a skilled nursing facility (SNF) and "got scapies then staph". That was back in July. it's not Nov 1st. I have been seen by 4 doctors who said my skin condition was scabies and then a toxitiy of...
    TSiebold TSiebold 51-55, F Nov 2, 2012

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    I went to dinner at my dad's last Friday. He recently married a women with twin girls. They are 10. The twins were fighting at the table and my dad threatened to whip their...
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    I really have to wonder, does anyone really forgive and move on, without ever thinking about it again ? They said you haven't forgiven if you haven't forgotten...is that true? How...
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    I had a flashback of me when i was little, i won a short internship to study english when i was in middle school... so the first thing i did was calling my dad, it was...
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    my teacher neglected to watch us, and a boy I barely met sexually assaulted me. neither got in any trouble.
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    ??"love will lead you back, someday i just know that love will lead you back to my arms...where you belong..."??- it happened when i got separated and he just got married...
    sexydivide sexydivide 36-40, F 2 Responses 5 days ago

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    and I know in order to heal, I must forgive.....
    flirtinglove flirtinglove 36-40, F 1 day ago

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    I have three adopted boys, my middle son has recently been diagnosed with SPD. I have found it to be a weight removed! now I understand the reason behind some of his behaviours...
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    raquiellet raquiellet 36-40, F Mar 3

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    I have been hearing it a lot more this year, so I guess a thank you to puberty is in order lol :P
    BraedenPhillips BraedenPhillips 13-15, M 7 hrs ago

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    I have 2 boys and a girl all on the spectrum. The boys are diagnosed with aspergers syndrom. My daughter has Issues with sounds and bright lights.
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    I have been so many times near love .... under the sky with all the stars up there...looking at moon ... feeling my heart pumping....like a love ... but i have been so many times...
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    I should not say that all men have hurt me. I do not think that all men are evil or blame everyone in my life but I have been hurt by a lot of men. I don't want to be bitter and I...
    wingeyes wingeyes 31-35, F 1 Response Mar 4

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    So i have been in a relationship with my husband for 11 years and recently married. He has been to prison. Stolen. Lied. Cheated...the whole shabang! Hes been using since he was 12...
    bmfc5525 bmfc5525 36-40 4 Responses Mar 14

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    My life for these past few months has been a roller coaster ride and a whirlwind of events that has shaped me to be a somewhat stronger person. I have been in fights with my...
    olarte718 olarte718 18-21 Mar 18

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    I think we all have been told this line, even just once. IDK if its just me, but I'd rather receive any compliment than this. It makes me too dependent on my physical appearance...
    DeuxExMachina DeuxExMachina 18-21, F 1 Response Mar 21

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    Yahallo!~ This is Lydia returning from It's-been-forever-Land! A lot has been going on lately. I have moved in with my new gf (a bit hasty I know but we were just so compatible). I...
    Lydia93 Lydia93 18-21, T 1 Response 5 days ago

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    I consider myself straight. I prefer women. I cannot even imagine a relationship with a man. I am currently in a relationship with a truly remarkable woman. But I have been with...
    FruitSlice FruitSlice 41-45, M 1 day ago

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    I have been naked in a hardware store. I've driven my car with no pants. I've been naked in the woods. I've been naked in a laundry room at an apartment complex. I was just doing...
    FruitSlice FruitSlice 41-45, M 1 Response 1 day ago

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    I have been with my husband for almost 11 years and we have two beautiful children. He has been cheating on me for the past six months. It's pretty crazy what goes on in your head...
    sunnygirl29 sunnygirl29 26-30, F 2 Responses Mar 1

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    Hey, I was in an abusive relationship for 5 years and ill tell you my story. I have two children with this man they are still very young. He physically abused me basically everyday...
    maddzt maddzt 22-25, F 4 Responses Mar 1

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    My ex and I were in a long-distance relationship from April 2014 to June the same year, then again from September until January of this year. We took a break because his career...
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    On more than one occasion in my life I have been told that I am no good to anyone on this Earth and never will be. I have been told that I am useless and that I will never amount...
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    How could the one who vowed to love and protect me, the one man I shared my dreams with, bring me such misery and pain? How could he hurt me and think I should forgive so easily? I...
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    I have been in an emotionally abusive relationship for 11 yrs now. We have a 6 yr old son together. Things started off good he was laid back , funny, charming , hardworking...
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