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I Have Just Been Diagnosed With Mctd

Personal Stories, Advice, and Support 40 People

    Confused With Diagnosis

      I am a first timer with this type of thing but here goes. I worked at a skilled nursing facility (SNF) and "got scapies then staph". That was back in July. it's not Nov 1st. I have been seen by 4 doctors who said my skin condition was scabies and then a toxitiy of...
    TSiebold TSiebold 51-55, F Nov 2, 2012

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    Any One Else Dealing With This?

    I have recently (within the last month) diagnosed with MCTD.  I am in the middle of a big flare up with lots of pain.  I have only been on 200mg of Plaquenil for 2 weeks and can't get in to see the rhuemy until Dec. 15.  I take Lortab or Ultram for pain, but worry...
    dewinparis dewinparis 46-50, F 1 Response Nov 26, 2009

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    Mctd Awareness

    Ok so Mctd isn't a big deal. U would say this if u don't live with it. No one chooses an illness or when they get but maybe it is lack of understanding that makes the people with it reluctant to share with family and friends what it is. I expect there are many people living...
    skymum2012 skymum2012 36-40, F 1 Response May 13, 2012

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    Recently Diagnosed With Mctd

    I am 23 and have just recently been diagnosed with MCTD. I was wondering if there is anyone else out there my age that is going through the same thing as me.
    Artickat Artickat 22-25, F 4 Responses Dec 1, 2009

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    "we Are Not The Disease, It Is Part Of Us, Don't Let It Win"by Controlling Your Every Moment".

    This was said to me once when I first realized that the disease was now progressing. It seems that we are in so much pain that we let this "disease" control our waking moment all, I guess, I don't know about you but I don't sleep much...and I am always analysing everything, I...
    fibrolupusleropolymyoitis fibrolupusleropolymyoitis 56-60, F 2 Responses Oct 26, 2012

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    Any One Else Dealing With This?

    I have recently (within the last month) diagnosed with MCTD.  I am in the middle of a big flare up with lots of pain.  I have only been on 200mg of Plaquenil for 2 weeks and can't get in to see the rhuemy until Dec. 15.  I take Lortab or Ultram for pain, but worry...
    dewinparis dewinparis 46-50, F 1 Response Nov 26, 2009

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    Recent Diagnosis

    Good day all, Was just recently diagnosed last week with MCTD after my anti-RNP test came back positive. I've done my research on the disease and its a bit overwhelming. My doctor explained it as like a game of Russian Roulette. He said right now I'm in the aches and pains stage...
    msjackson87 msjackson87 26-30, F 1 Response Oct 7, 2013

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    I Am 49 Was Diagnosed With Mctd 2 Years Ago After 20+ Years Of On & Off Symptoms

    It has been a long road but at least I know why I have had so many medical issues. Always told it was inflammation. I am now on plaquenil , Vemivo and Wellbutrin , this combination of Rx have done wonders for me. I finally have energy and a lot less pain. I take plaquenil 2xday...
    Kpages7 Kpages7 46-50 May 3, 2013

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    Living With Mctd

    I was diagnosed with MCTD approximately 2 years ago. I was so releived to finally have an answer. For several years I was being treated for each symptom. And believe me, there were several. It got to be so bad that I leterally felt as if I had been run over by a truck. I decided...
    Renee041079 Renee041079 31-35 5 Responses Aug 23, 2012

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    Even Young Children Can Get Mctd

    I was diagnoses with MCTD when I was 9 years old and in 3rd grade. I'm currently 17, I'll be 18 in 8 months and I'm a junior in high school working on getting my CNA certificate. I've been living with MCTD for 8 years.. It took the doctors for ever to diagnose me. Everyone...
    PeaceOutDude PeaceOutDude 18-21, F Jan 7, 2013

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    I would like to find other people to share the challenges of MS with.
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    Usually my older sister spanks us. She's 17, I'm 15, our little sister is 13, our little brother is 9. So me and my sister were the only ones there at our house, our brother was...
    wdknod123456 wdknod123456 13-15, M 1 Response Mar 28

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    At my uncles house when I was probably 13 or something. My sister was running through the house with a cousin and was told to stop. My uncle grabbed her and my cousin and gave them...
    rainn2014 rainn2014 16-17, M 1 Response Apr 3

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    The rule was you had to spread your legs wide, keep your feet flat on the ground, and your palms flat on the table. With no clothes on, You could wiggle, writhe, and scream all you...
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    “Don’t go into my room!” He called out as he grabbed us drinks from the kitchen. “Yes sir!” I responded as my fingers delicately pushed the door to his room. Peeking in...
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    It doesn't happen very often, thank goodness. Dad saves this for the more serious offenses. It was a week before this last Christmas. Dad had to work at night and told me to stay...
    LoneStarGurl LoneStarGurl 16-17, F 9 Responses Apr 13

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    I will, but not just yet.Dixie Chicks "Not Ready To Make Nice"
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    My ex-bestfriend, my dad, my grandparents, my brother, my mom, my friend, my aunt, my uncle, my ex, and the people that bully me.
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    I'll never forgive the man who molested me and everyone in school who bullied me for yearsssss and I never did anything to them and I'll never forgive everyone else who just...
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    For a little over a year I have been trying to explain the reasons and motivations behind the way I have lived my life since I married my husband. I have never been able to explain...
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    My husbands suddenly gone from healthy to not healthy at all. He is scheduled for open heart surgery next week and I'm just shocked. We have been struggling with bills since he was...
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    I was dating a girl that I have been friends with and known since elementary school. We even went to the same college. We didn't date until the end of last year and it was great...
    Brennancr Brennancr 22-25, M 1 Response Apr 2

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    Just recently i moved up the street from my best friend that i have been friends with since i was 5 and things were going good until he started talking to my girlfriend and started...
    niceguy223 niceguy223 13-15, M 2 Responses Apr 6

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    It's My Fault - I couldn't help it, I became a control freak and I tried controlling my friend's character and tried making them do what I wanted. It's just well, i'm a...
    Monstermaster13 Monstermaster13 22-25, M 1 Response 3 hrs ago

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    I just checked my last story I posted and its almost been a year sense I have been on this site! Maybe its a sign I shouldn't work two jobs?
    starlight721 starlight721 18-21 4 hrs ago

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    I got diagnosed with major depression. I was a cutter but i found some coping skills. My parents make me so angry i just wanna die. well that is my first post lol
    Zoelynne Zoelynne 16-17, F 3 Responses Apr 15

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    In complete denial....... Hello all. I have read many posts of yalls dealing with this issue. I came searching for answers and help/support because I feel very alone and scared. I...
    ashoryb ashoryb 26-30, F 3 Responses Apr 7

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    My husband was diagnosed a year ago at Cleveland Clinic with SFN from sarcoidosis. He has fluid shifts at times, where he feels fluid building in his joints and his known sarcoids...
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    I have a brother with asperger but he was never diagnosed with asperger's. He was with some neurologists through childhood but all the time was the same thing "attention deficit...
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    Every day, I wonder how different things would have been if I never got into that car accident that night, and you were still here. I wonder if I would have been a good mother to...
    NYSlilAngel NYSlilAngel 26-30, F 1 Response Mar 29

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    when me and my bff where breaking up cuz her mom found out we had been watchingporn 2gther and i was s*xting guys i met on omegle after my breakup she wouldn't let us hang anymore...
    casssss casssss 13-15, F 3 Responses Apr 2

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    I was bullied alot in my elementary years ... And I didn't have many friends ... I kept moving alot and was bullied due to my weight...I've also have been called ugly , and stupid...
    emmawinterfrost emmawinterfrost 13-15, F Apr 12

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    I have been cheated on alot. My first long term relationship ended in me finding out he had cheated on me atleast 5 times. When i eventually moved on, i got cheated on again, same...
    Soldottern Soldottern 16-17, F 3 Responses Apr 15

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    Cause my mums in hospital I been stayin with my friend Keiran an his family an they got a cottage in Wales so we been there since start of the week ((: Monday was nice so we had a...
    HannahRb1999 HannahRb1999 18-21, F 1 Response a week ago

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    When I was little I was placed in my first residential I have been in and out of facilities most of my life and have been abused there also. I'm looking for someone out there who...
    Cierra212 Cierra212 16-17, F 1 Response 5 days ago

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    Today when I open my inbox. I have been 'blocked'. Why? am I wrong? So please informed  me if I wrong? And I have highlight the word, the red colour one. Above are some...
    Bert84 Bert84 26-30, M 3 Responses Mar 24

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    I have had someone stalking me for over ten years. It is mostly online but has completely ruined my life. I had to apply for jobs in person when I was job hunting. I landed a...
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    A Decision I Made... Years Ago. To have and to hold from this day forward. Sept 15, 2001 on this date I informed my spouse and said "I was going to transition into a woman, many...
    Trisha60ts Trisha60ts 61-65, T 3 Responses Mar 24

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    My husband and I have been married for 6 weeks now. I've loved him for 19 years though. Still just as much as I did when we met. He's been an addict his entire adult life. I...
    kct0314 kct0314 36-40, F 5 Responses Mar 26

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    I have been bullied for probably a good chunk of my childhood (Off and on from 3rd grade through my sophomore year of high school). It seemed to just stop after that. I never could...
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    unexpectedlove15 unexpectedlove15 26-30, F 1 Response Mar 31

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    I have been cyber bullied before
    lee521 lee521 13-15, F Mar 31

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    I was in the 4th grade, and I haved been bullied to where I couldn't stand it anymore. That's when I over reheated , because I got real mad and when we all came outside for P.E. I...
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