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I Have Just Been Diagnosed With Mctd

Personal Stories, Advice, and Support 43 People

    Even Young Children Can Get Mctd

    I was diagnoses with MCTD when I was 9 years old and in 3rd grade. I'm currently 17, I'll be 18 in 8 months and I'm a junior in high school working on getting my CNA certificate. I've been living with MCTD for 8 years.. It took the doctors for ever to diagnose me. Everyone...
    PeaceOutDude PeaceOutDude 18-21, F Jan 7, 2013

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    Living With Mctd

    I was diagnosed with MCTD approximately 2 years ago. I was so releived to finally have an answer. For several years I was being treated for each symptom. And believe me, there were several. It got to be so bad that I leterally felt as if I had been run over by a truck. I decided...
    Renee041079 Renee041079 31-35 5 Responses Aug 23, 2012

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    I Am 49 Was Diagnosed With Mctd 2 Years Ago After 20+ Years Of On & Off Symptoms

    It has been a long road but at least I know why I have had so many medical issues. Always told it was inflammation. I am now on plaquenil , Vemivo and Wellbutrin , this combination of Rx have done wonders for me. I finally have energy and a lot less pain. I take plaquenil 2xday...
    Kpages7 Kpages7 51-55 May 3, 2013

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    Any One Else Dealing With This?

    I have recently (within the last month) diagnosed with MCTD.  I am in the middle of a big flare up with lots of pain.  I have only been on 200mg of Plaquenil for 2 weeks and can't get in to see the rhuemy until Dec. 15.  I take Lortab or Ultram for pain, but worry...
    dewinparis dewinparis 46-50, F 1 Response Nov 26, 2009

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    Recent Diagnosis

    Good day all, Was just recently diagnosed last week with MCTD after my anti-RNP test came back positive. I've done my research on the disease and its a bit overwhelming. My doctor explained it as like a game of Russian Roulette. He said right now I'm in the aches and pains stage...
    msjackson87 msjackson87 26-30, F 1 Response Oct 7, 2013

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    Confused With Diagnosis

      I am a first timer with this type of thing but here goes. I worked at a skilled nursing facility (SNF) and "got scapies then staph". That was back in July. it's not Nov 1st. I have been seen by 4 doctors who said my skin condition was scabies and then a toxitiy of...
    TSiebold TSiebold 51-55, F Nov 2, 2012

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    "we Are Not The Disease, It Is Part Of Us, Don't Let It Win"by Controlling Your Every Moment".

    This was said to me once when I first realized that the disease was now progressing. It seems that we are in so much pain that we let this "disease" control our waking moment all, I guess, I don't know about you but I don't sleep much...and I am always analysing everything, I...
    fibrolupusleropolymyoitis fibrolupusleropolymyoitis 56-60, F 2 Responses Oct 26, 2012

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    Recently Diagnosed With Mctd

    I am 23 and have just recently been diagnosed with MCTD. I was wondering if there is anyone else out there my age that is going through the same thing as me.
    Artickat Artickat 22-25, F 4 Responses Dec 1, 2009

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    Mctd Awareness

    Ok so Mctd isn't a big deal. U would say this if u don't live with it. No one chooses an illness or when they get but maybe it is lack of understanding that makes the people with it reluctant to share with family and friends what it is. I expect there are many people living...
    skymum2012 skymum2012 36-40, F 1 Response May 13, 2012

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    I was diagnosed in 2009.

    I went to see my DR for a checkup when my back started to hurt. I originally thought it was a herniated disc because just before the pain set in I was trying to lift a heavy tv. I finally gave in 2yrs later (still with pain) she took tests and told me I MIGHT have lupus..which...
    deleted deleted 26-30 Nov 4, 2014

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    Any One Else Dealing With This?

    I have recently (within the last month) diagnosed with MCTD.  I am in the middle of a big flare up with lots of pain.  I have only been on 200mg of Plaquenil for 2 weeks and can't get in to see the rhuemy until Dec. 15.  I take Lortab or Ultram for pain, but worry...
    dewinparis dewinparis 46-50, F 1 Response Nov 26, 2009

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    Mctd Experience.

    I'm 14 and I was diagnosed with MCTD 5 months ago. When I was first experiencing pain, I had to visit like 5 doctors, who all thought different things. One said it was dengue or chikungunya, but i was tested negative for both. Another said it was just a viral, but we doubted that...
    igotcolors igotcolors 13-15 May 30, 2010

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    Related Experiences

    I have been more times than I can count. I was doing really well for a long time and then I took my abusive boyfriend back. It ended terribly, with restraining orders and me in a...
    xoPandoraBlack xoPandoraBlack 31-35, F 1 Response 1 day ago

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    This is a true story of what happened to Greg Zaffuto. I have just experienced much the same and do not want this to happen to you, so I am sharing the following. I apologize for...
    Grace2U Grace2U 66-70, F 3 days ago

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    Hey everyone, it's my first time posting, so I will keep it short. It's also 3:45 am. I wanted to talk about my sociopathic, violent brother. This guy lied and told us in great...
    LiftedCurse LiftedCurse 31-35, M 3 days ago

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    I am not so sure to tell my parents that I am going out late at night with my friends and that I have been in other places they would surely not permit me to go. I just lied...
    Jubbydith Jubbydith 18-21, F 1 Response 3 days ago

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    The Switch Was Displayed in Public Sometime, when I reached my early teens, my parents decided to add the willow switch to their arsenal of implements. They felt that whatever the...
    phillysteve phillysteve 36-40, M 4 days ago

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    and I still am! My boyfriend/Master is 13 years older than me. We have been together almost 3 years and we live together and are very happy
    ServingGirlUK ServingGirlUK 18-21, F 4 Responses 4 days ago

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    So at the end of 2014 I found out that my best friend of 9 years and her bf plotted to use me for my money and my helpfulness. We had always talked about our future and things we...
    aquamoongoddess aquamoongoddess 22-25, F 2 Responses 4 days ago

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    My son is 4 yrs old and was diagnosed with HD at 17 days old. He had his first surgery at 21 days old and gotten a colostomy bag. He had a reversal at four months, didn't work so...
    Rymae87 Rymae87 26-30, F 4 days ago

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    I have been blocked by some weird men .
    BlackVeilCoversMe BlackVeilCoversMe 36-40, F 3 Responses 6 days ago

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    I have been talking to guys on here and I kind of like it.
    deleted deleted 26-30 1 Response 6 days ago

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    I have been sick, really sick. It started before Christmas with cellulitis in the sinus cavity. Then my upper molar abscessed into the already infected sinus. It was one thing...
    akindheart akindheart 56-60, F 30 Responses a week ago

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    I'm back on a psych ward after being gone for just over a year. Initially I was on an "intensive care" unit where most things were restricted, including camera phones, which was...
    SolitaryFriend SolitaryFriend 36-40, M 1 Response a week ago

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    now I know this is nothing compared to some of the stories I just seen on here, but here it goes....I started dating my boyfriend almost 6 years ago...during the 6 years we have...
    teeq22 teeq22 18-21, F 3 Responses a week ago

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    Hi I'm new to this lol I'm looking for tips and support with people how are in the same situation my son was diagnosed with congenital hypothyroidism at 10 days old he's now 18...
    Fuse07 Fuse07 26-30, F a week ago

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    Yes, I like to go to nude beaches. However, it is not my first choice if I cab choose. I do prefer a secluded peaceful place . Doesn't matter if it is by the water, in the...
    niceskip niceskip 46-50, M 1 Response a week ago

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    Like sixsix68, I have been to Orient Beach on St. Martin long ago. My wife and I spent a day there.The most usual past of the day was that we took in the sales pitch for one of...
    beachlover492000 beachlover492000 61-65, M Feb 1

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    I have been photographed naked outdoors a few times, mostly on nude beaches in the Caribbean.States side nude beaches are few and far between. The only only time I can remember was...
    beachlover492000 beachlover492000 61-65, M 1 Response Feb 1

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    I dated a diagnosed psychopath. He showered me with love and affection and showed so much interest in me from the start that I was smitten. Also he was very charming and handsome...
    AnonymousKCQ AnonymousKCQ 22-25, F 7 Responses Feb 1

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    When I was three years old my parents were killed in a car accident. And I was sent to live with my aunt and uncle. My aunt and uncle loved me very much although my aunt was very...
    meneme2013 meneme2013 18-21, M 1 Response Jan 31

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    And it's probably not what you're expecting. Whenever I go walking I can always tell where hunters have been. First I see the tire prints of the truck in the mud and then all...
    growgirl growgirl 22-25, F 3 Responses Jan 31

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    My ex friend would stalk my sister on social media and then lie about it to my face after my sister confronted me. I had been friends with him for years at that point and he never...
    awaywego4 awaywego4 26-30, F Jan 31

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    The guy I was with recently dumped me and I realized that all the significant, romantic relationships I have been in have been abusive in some form. They've either flat out abused...
    terrywill15 terrywill15 18-21, F 2 Responses Jan 29

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    my name is Taylor, age 20. I have two kids with my husband of 3 years. I've wanted to leave my husband for 4 months because he has been sexually and physically abusive. if I could...
    Taylorlovesagain Taylorlovesagain 18-21, F 5 Responses Jan 29

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    There is an active Facebook page for us. Check out Eosinophilic Fasciitis Support Group. Lots of good discussion there.
    LauraOLeary LauraOLeary 56-60, F 1 Response Jan 29

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    I worked in construction for fifty years. Worked in wood houses and concrete and steel buildings. Have done things just to get it done now instead of waiting for all kinds of...
    boldtimer boldtimer 66-70, M Jan 28

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    I have been through two abusive relationships, I am out now and safe. I want to tell everyone out there that no abuse is exceptable no matter if it's emotional physical or sexaul...
    chockywhockydoda chockywhockydoda 51-55, F 1 Response Jan 27

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    Tonight he threw my dinner at the wall. I have been snowed in without access to my car as it is BURIED in snow. On my boyfriends way home I had asked him to pick up something...
    dcp1058 dcp1058 26-30, F 6 Responses Jan 27

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    I have been in an age-gap relationship for almost eight years. I'm 27 years old, my wife is 48. I love her very much, and I'm looking forward to many more years with her.
    CNSPRCYTHRY CNSPRCYTHRY 26-30, M 1 Response Jan 26

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    Today, I had another conversation with my mom. Yes, I love her. Yes, she was there and saw (all of the abuse of me and my siblings.) Hard for her. She spends her days trying to...
    frspch frspch 51-55, F 6 Responses Jan 25

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