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I Have Just Been Diagnosed With Mctd

Personal Stories, Advice, and Support 44 People

    I Am 49 Was Diagnosed With Mctd 2 Years Ago After 20+ Years Of On & Off Symptoms

    It has been a long road but at least I know why I have had so many medical issues. Always told it was inflammation. I am now on plaquenil , Vemivo and Wellbutrin , this combination of Rx have done wonders for me. I finally have energy and a lot less pain. I take plaquenil 2xday...
    Kpages7 Kpages7 51-55 May 3, 2013

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    Living With Mctd

    I was diagnosed with MCTD approximately 2 years ago. I was so releived to finally have an answer. For several years I was being treated for each symptom. And believe me, there were several. It got to be so bad that I leterally felt as if I had been run over by a truck. I decided...
    Renee041079 Renee041079 31-35 5 Responses Aug 23, 2012

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    Even Young Children Can Get Mctd

    I was diagnoses with MCTD when I was 9 years old and in 3rd grade. I'm currently 17, I'll be 18 in 8 months and I'm a junior in high school working on getting my CNA certificate. I've been living with MCTD for 8 years.. It took the doctors for ever to diagnose me. Everyone...
    PeaceOutDude PeaceOutDude 18-21, F Jan 7, 2013

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    Mctd Awareness

    Ok so Mctd isn't a big deal. U would say this if u don't live with it. No one chooses an illness or when they get but maybe it is lack of understanding that makes the people with it reluctant to share with family and friends what it is. I expect there are many people living...
    skymum2012 skymum2012 36-40, F 1 Response May 13, 2012

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    Confused With Diagnosis

      I am a first timer with this type of thing but here goes. I worked at a skilled nursing facility (SNF) and "got scapies then staph". That was back in July. it's not Nov 1st. I have been seen by 4 doctors who said my skin condition was scabies and then a toxitiy of...
    TSiebold TSiebold 51-55, F Nov 2, 2012

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    I was diagnosed in 2009.

    I went to see my DR for a checkup when my back started to hurt. I originally thought it was a herniated disc because just before the pain set in I was trying to lift a heavy tv. I finally gave in 2yrs later (still with pain) she took tests and told me I MIGHT have lupus..which...
    goodwitch011070 goodwitch011070 41-45, F Nov 4, 2014

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    Mctd Experience.

    I'm 14 and I was diagnosed with MCTD 5 months ago. When I was first experiencing pain, I had to visit like 5 doctors, who all thought different things. One said it was dengue or chikungunya, but i was tested negative for both. Another said it was just a viral, but we doubted that...
    igotcolors igotcolors 13-15 1 Response May 30, 2010

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    Recent Diagnosis

    Good day all, Was just recently diagnosed last week with MCTD after my anti-RNP test came back positive. I've done my research on the disease and its a bit overwhelming. My doctor explained it as like a game of Russian Roulette. He said right now I'm in the aches and pains stage...
    msjackson87 msjackson87 26-30, F 1 Response Oct 7, 2013

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    Any One Else Dealing With This?

    I have recently (within the last month) diagnosed with MCTD.  I am in the middle of a big flare up with lots of pain.  I have only been on 200mg of Plaquenil for 2 weeks and can't get in to see the rhuemy until Dec. 15.  I take Lortab or Ultram for pain, but worry...
    dewinparis dewinparis 46-50, F 1 Response Nov 26, 2009

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    Recently Diagnosed With Mctd

    I am 23 and have just recently been diagnosed with MCTD. I was wondering if there is anyone else out there my age that is going through the same thing as me.
    Artickat Artickat 22-25, F 4 Responses Dec 1, 2009

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    Any One Else Dealing With This?

    I have recently (within the last month) diagnosed with MCTD.  I am in the middle of a big flare up with lots of pain.  I have only been on 200mg of Plaquenil for 2 weeks and can't get in to see the rhuemy until Dec. 15.  I take Lortab or Ultram for pain, but worry...
    dewinparis dewinparis 46-50, F 1 Response Nov 26, 2009

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    "we Are Not The Disease, It Is Part Of Us, Don't Let It Win"by Controlling Your Every Moment".

    This was said to me once when I first realized that the disease was now progressing. It seems that we are in so much pain that we let this "disease" control our waking moment all, I guess, I don't know about you but I don't sleep much...and I am always analysing everything, I...
    fibrolupusleropolymyoitis fibrolupusleropolymyoitis 56-60, F 2 Responses Oct 26, 2012

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    Related Experiences

    Its contagious, be careful, I don't know how long I have left to live.... My friend is a brilliant doctor for finding my prognosis and diagnosing me... (:D )
    philex2014 philex2014 13-15, F a week ago

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    I do not have MS! Drug induced lupus is a real thing. Please check your meds!
    kbuck9 kbuck9 26-30, F 3 days ago

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    It's not everyday. It's not all the time. But I have it. And they gave me medicine for it. But I stopped taking it a long time ago because I wanted to see if I could feel better...
    Allforaview Allforaview 18-21, F 12 hrs ago

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    I really have to wonder, does anyone really forgive and move on, without ever thinking about it again ? They said you haven't forgiven if you haven't forgotten...is that true? How...
    KrisKrosSk8 KrisKrosSk8 26-30, F 3 Responses Mar 27

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    ​So the other day I had ordered some breast forms because they were significantly on sale. I wasnt sure if they would help or hurt and just be a reminder that I dont have breasts...
    Napeti Napeti 18-21, T 1 Response Apr 10

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    I've forgiven my father who left but now I have to forgive my step-father who seems non-existent in my life and because he seems this way I treat him as such so when he says...
    ChelseaJN ChelseaJN 18-21, F Apr 10

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    my neighbour whos the same age as me bullied me throughout my childhood, we're both 21 now, i see her every now an then, she has a daughter now, it would only bother me worst to...
    apperentlyicanthavemynameagain apperentlyicanthavemynameagain 18-21, F 1 Response Apr 11

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    I really was struggling to forgive my STBX husband for the years of pain he caused me. He's not a bad man he has a good heart and he's an awesome Dad. He has some mental health...
    rosev2 rosev2 41-45, F 1 Response 1 day ago

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    This is something that's very hard for me. My boyfriend has cheated on me in the past, by flirting & contacting other women on social networks. And we broke up for a few months...
    shesdifferent516 shesdifferent516 18-21, F 12 hrs ago

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    and I know in order to heal, I must forgive.....
    flirtinglove flirtinglove 36-40, F 2 Responses Mar 28

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    Yet i fail miserably. Adi, to you who first showed me manipulation. Vlad, to you who always put the class against me for the sake of...nothing. Cele, to you who showed me you don...
    DestinyWriter DestinyWriter 18-21, M 1 Response Apr 10

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    I can't forgive my dad for what he done on my 13th birthday. I ended up in hospital for a week because he assaulted me. I've tried in the past to face him even though I can barely...
    MixedJayy MixedJayy 16-17, F 1 Response Apr 11

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    just seeing dad take his belt off makes me cry
    tonyaoneal18 tonyaoneal18 26-30, F 6 Responses 5 days ago

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    Hi, this is my first time here so, here goes nothing.......... I met my current boyfriend while working in another state, I never thought that I could actually find someone as...
    Silo6 Silo6 26-30, F 5 Responses 6 days ago

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    I have three adopted boys, my middle son has recently been diagnosed with SPD. I have found it to be a weight removed! now I understand the reason behind some of his behaviours...
    RobertaSunset RobertaSunset 36-40, F 3 Responses Mar 26

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    Hi my 5 year old son just been diagnosed with autism. He is high function n so smart. He has speech delays for his age. I turned to this network from som tips on how to raise him...
    jjcairo jjcairo 36-40, F 2 Responses Apr 7

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    I've been hospitalize 3 times. One in December 2013, one in March 2014 and another in November 2014. Been in two different hospitals. Been twice in one of them. The first time...
    AndreaCulea AndreaCulea 22-25, F 1 Response Mar 29

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    I have been married for 18 years to my highschool sweetheart. We have 2 children ages 20 and 14. My husband has cheated on me twice. The first was in 2007 and he wanted to be with...
    kbrown1974 kbrown1974 36-40, F 6 Responses 2 days ago

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    My Dad was recently diagnosed with terminal cancer, he has 2-6 month to live. The cancer is in his lungs, brain and liver. My dad has been absolutely horrible to me in the past and...
    noseatbeltsong noseatbeltsong 18-21 1 Response Apr 13

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    Alright...let me take a breather...so when I was about 6 or 7 my cousin came to my house and told me that he'll let me play his Nintendo on one condition,that I'd have to undress...
    SweetButPainfulRose SweetButPainfulRose 13-15, F 3 Responses 4 days ago

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    Hello my fellow EP members.I would like to share a personal experience that recently happen to me.I recently have been going threw some personal issues with my Family.I have been...
    Fruitypunch15 Fruitypunch15 31-35 23 hrs ago

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    I have been naked in a hardware store. I've driven my car with no pants. I've been naked in the woods. I've been naked in a laundry room at an apartment complex. I was just doing...
    FruitSlice FruitSlice 41-45, M 4 Responses Mar 27

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    Okay Im pretty much done with my friends. Like seriously I am really upset. I have always been the one to text my friends first so I decided it was their turn. It's been two weeks...
    LoveisBeautiful5013 LoveisBeautiful5013 18-21, F 3 Responses Mar 30

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    I've honestly never had friends, not even as a small child. I was always that one quiet kid that everyone thought was creepy or weird that played alone in the graveyard while...
    MechaKimochii MechaKimochii 18-21, F Apr 3

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    It's really been a while hasn't it? I have been behind on everything though so I guess I should update on some stuff. I have been going through a lot of stuff lately and I am...
    FiftyLyricsInAMiracle FiftyLyricsInAMiracle 13-15, F Apr 8

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    I recently started therapy for self-esteem issues that I should have sought help for many years ago. What started as a journey of self discovery has opened my eyes to the...
    ludix ludix 41-45, M 3 Responses Apr 9

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    There have been several groups monitoring his improvement, and there have been reports that Incarnati0n has already decided to a cope with Northern United states group Cloud9...
    masonrychan masonrychan 22-25, M Apr 12

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    I was bullied all throughout middle school, and most of high school. I've always been small and weak, I've been shoved into trash cans, I've been thrown over tables. I've been...
    wking225 wking225 18-21, M 1 Response Apr 12

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    It was September last year got with a girl and a couple nights after our first sexual encounter I noticed red bumps was hoping it was nothing but got tested and came back positive...
    necrothrash necrothrash 26-30, M 1 Response 6 days ago

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    I have been cheated on in the past and unfortunately I remember what it felt like to have been betrayed in that way. The problem is when you think you've encountered the person...
    Msprissy Msprissy 36-40, F 1 Response 7 hrs ago

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