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I Have Juvenile Myoclonic Epilepsy

A Juvenile Myoclonic Epilepsy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Juvenile Myoclonic Epilepsy. You're not alone. 23 People

    I'm 22 years of age and have had Juvenile

    Myoclonic Epilepsy since I was formally diagnosed when I was fourteen. Before that, I was just having Abscence seizure so they weren't officially sure what kind of epilepsy I had. Then when I was fourteen, I had a Myoclonic jerk in my grandma's kitchen and threw the cereal box...
    Kida07 Kida07 22-25, F 1 Response Jul 10

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    I Was 11 When My Symptoms Began

    Puberty is such a weird time for most children. Our body are going to changes that come so rapidly. Well this was the time my twitches began. I thought my twitches were "normal" and that they happened to everyone. I would find that when i would wake up for school my arms would...
    sescoto sescoto 16-17 4 Responses Apr 10, 2012

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    Jme

    I am in high school and I was just recently diagnosed with JME after having a seizure in class. When I went back to school a few days later I talked to a teacher and asked her for work I had missed and let her know that my doctors told me to avoid computers until they did me EEG...
    Ambrielle Ambrielle 18-21 2 Responses Jan 30, 2012

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    I'm 18. I had myoclonic jerks in the mornings

    throughout years of barely sleeping since I was 14. In early 2012 i had my first seizure at home getting ready for a school trip. I was so upset because I had been wanting to learn to drive for so long like all my friends and now I'd have to wait a whole year. I cleared up my...
    ssssmills ssssmills 18-21, F May 21

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    My Jme Nightmare

    I was diagnosed with JME in seventh grade after having a seizure at school. I was put in the hospital and endured several days of humiliating tests and finally got a diagnosis that would change my life. That was seventeen years ago. Now I am thirty and the divorced mother of...
    kkoc1027 kkoc1027 26-30 Aug 13, 2012

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    Related Experiences

    I've written in the section before how I was diagnosed following a car accident which left me very injured and diagnosed with epilepsy in five days it will be a year since the day...
    Cozzx Cozzx 18-21, F 1 Response Jul 8

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    I was diagnosed at 8 yr. old and now I'm 57,The seizures have been a part of my life, But there is more to epilepsy than seizures and it is this area that has given me the most...
    koltan88 koltan88 56-60 Jul 2

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    A little over 20 years ago I was born. And from the outset I had regular fits, at first every few hours, but they gradually subsided to more weekly/monthly events. I still don't...
    RhythmPsycho RhythmPsycho 18-21, M Jul 4

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    What about the rapid twitching at the corner of my eye, sometimes I can feel it twitching real fast like a flutter but you don't notice it visually. I wonder if that is related to...
    subsumedpat subsumedpat 36-40, M 2 Responses Jul 11

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    My first epilepsy was when I was 13 and then again at 15. The pre-seizure would happen to lots of zoning out, and seeing some pretty colorful spots it's slowly speeds up that seems...
    signbrat04 signbrat04 22-25, F 1 Response Jul 16

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    I was diagnosed Feb 2014. I'm 53 yrs old. I have been married 34 yrs to a wonderful man. The mother of 5 grown children and grandmother of 10 grandchildren. I have had epilepsy...
    GRSears GRSears 51-55, F 1 Response Jun 26

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    I have had epilepsy for almost 10 years. Since I was 6 years old. I have suffered from many tonic-clonic seizures & the cause of the first one was unknown. Luckily, I haven't had a...
    KMargatroid KMargatroid 16-17, F 6 Responses Jul 4

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    Won't ever forgot the diagnose... Blew me into submission. The worst part the meds can't prevent the seizures...and that as well the meds havee effects which are screwing me up...
    ThevoiceofOutcasts ThevoiceofOutcasts 18-21 2 Responses Jul 1

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    I have recently got an English Bull Terrier puppy & he is the most funniest thing ever!! His name is Fondue & he is 9 weeks, 2 days old. We didn't get him as a pet, we got him as a...
    KMargatroid KMargatroid 16-17, F Jul 4

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    I would appreciate your feedback!! I have had Petit since 8 YO! And at 40 I was hit with a change to Grand. With these seizures getting worse and lasting at times in excess 4 min...
    koltan88 koltan88 56-60 1 Response Jul 11

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    Why is it that a woman can like girl, boy and man stuff and no one bats and eye but if a man likes boy stuff he's juvenile or puerile and if he likes girl stuff he is gay or a...
    xlxSpiraxlx xlxSpiraxlx 26-30, F 2 Responses 3 days ago

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    6 years ago when I was 10 my father died.... my brother didn't know how to deal with it properly he had just finished primary school and was moving onto high school, when he...
    ajafueko ajafueko 16-17, F 1 Response Jun 27

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    I'm 16 & my boyfriend is going to jail on the 11th of this month. He got charged as a juvenile but he recently turned 18 about 2 weeks ago. Me & him have been on and off for about...
    heyliyaaaaah heyliyaaaaah 16-17, F 3 Responses Jul 8

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    I have never had the chicken pox. I had the mumps and the measles but not the chicken pox. And now that my daughter has chicken pox, it frightens me that I'll get infected, which I...
    thelonewood thelonewood 26-30 53 mins ago

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    I'm very worried currently. Delusions have returned full force and I keep slipping in and out of awareness of them. My raised anxiety levels and low levels of sleep is bringing it...
    PinkMellow PinkMellow 18-21, F 1 Response 7 hrs ago

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    well that's a lie. i think to be cheated on, you have to have been in a seriousness relationship so I guess it's not even a possibility that I've been cheated on fml
    amyrobbyy amyrobbyy 16-17, F 4 hrs ago

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    Psychic have told my parents i'm psychic to and I have an open mind and I previously only seen shadows that run past quickly but I see real figures now. I am freaking out as i'm...
    DreamCatcher2000 DreamCatcher2000 13-15, F 4 hrs ago

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    Its about the Muslim Break Fasting as I was most of my Life works in the Gulf Region I have experience different kinds of Iftar Party but all of the years that gone by the one that...
    tawam tawam 36-40, M 4 hrs ago

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    Yesterday I watched the video of Nick Vujicic... It was very inspiring and encouraging video.A man without legs and arms.He didn't give up or lose hope in life. How much more if he...
    Lovesweetlove Lovesweetlove 26-30, F 1 Response 4 hrs ago

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    I have been cheated on. I walked in on my fiancé' and what I thought was my best friend. It was the BEST thing that has ever happened to me! I moved out I found myself, I started...
    Chicgeekgal Chicgeekgal 22-25, F 4 Responses 2 hrs ago

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    Awww.... I know I shouldn't ask and express in this way. But Nahhh. screw it! I really want to have a lesbian affair! You, my lovely princess. I'm imperfect so please forgive me...
    EasyOrange EasyOrange 18-21, F 1 Response 1 hr ago

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    I have a YouTube channel now, I have put up a video today. if you wanna subscribe just type in YouTube my top doctor who cliffhangers and it the second video from the top.
    noahfaith noahfaith 16-17, M 1 Response 1 hr ago

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    One never knows what's going to happen in the next moment of life. It's within that moment of not knowing that something supernatural takes place; just when you least expect it...
    Alark1 Alark1 56-60, F 43 mins ago

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    I was diagnosed only a few months ago after having mysterious "boils" for years and years. My main issue is the scarring. I have been happily married for 3 years and my husband has...
    breeze90 breeze90 22-25, F 29 mins ago

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    My sister boyfriend is abusive, i called the police and now he is facing a prison sentence. My mother and sister seem to be on his side though, I heard them arguing and mum didn't...
    BulletproofLoneliness BulletproofLoneliness 16-17, F 2 Responses 28 mins ago

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    I've never seen so many imperfections on someone. I'm jealous of people who have high self confidence. I always compare myself to other girls and say wow she's beautiful. im not...
    xriiccii xriiccii 13-15, F 3 Responses 6 hrs ago

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    I just hate alcohol, smoking, weed, cigarettes or any kind of drugs. You can have fun with these but i really hate them and i am never gonna drink or smoke.
    mahdiraza mahdiraza 16-17, M 6 hrs ago

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    Well I wouldn't say I have a crush on him he's just sexy as hell to me
    litzz litzz 16-17, F 5 hrs ago

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    God...I'm so tired but can't fall back asleep! I have so much on my mind. I wish I had money, it would solve so many problems! Everyone thinks I'm a money tree and keeps asking...
    lostandlonelyone lostandlonelyone 36-40, F 2 Responses 5 hrs ago

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    Ugh. Feel so tired . And crap you know how when you have this app it says "EP would like to use your current location"? Well I always click no since I don't trust EP and I pressed...
    FunnyandNerdy FunnyandNerdy 16-17, F 1 Response 5 hrs ago

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    I have a super sense of smell! Tell me your sense of smell stories below in the comments!
    gillian90 gillian90 31-35, F 1 Response 3 hrs ago

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    I have her cam..report the scumbag ex...
    bestatwhatwedo bestatwhatwedo 46-50, F 1 hr ago

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    So i have a new friend. Met her at the beach. She's freaking pretty for me and i think i really like her n got crush on her. Is she pretty?? Grade her and guess also what raise is...
    pinkeyes03 pinkeyes03 18-21, F 2 Responses 57 mins ago

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    I had a boyfriend behind my parents back at the age of 19. Three times they found out, and each time they would beat me multiple times using their hands, a belt and a hanger...
    hanon93 hanon93 18-21, F 1 Response 33 mins ago

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    Idk why, some just drifted away. zI tried my best to be nice snd friendly to the butI guess they just wanted a better person for them. I miss some terribly. The ones that mattered...
    Wewerethereinthattime Wewerethereinthattime 18-21, F 19 mins ago

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    My fault, my failure, is not in the passions I have, but in my lack of control of them
    CoolLife3 CoolLife3 31-35, F 2 Responses 14 mins ago

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    I don't like when people tell me how to live my life just because I'm a woman I should be married and have children even I'm not crazy about marriage or kids right now. I don't...
    sham17 sham17 26-30, F Jun 26

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    I am 14 and I have a crush on my teacher. Mr . T was my middle school teacher. He was the reason I was not absent at all that year. Am I strange for liking my teacher even though...
    chikudontknow chikudontknow 13-15, F Jun 26

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    Idk why my parents just hate the **** out of me, like I have an older sibling nd they love her, like it really hurts sometimes bc they just say stuff about me nd don't think about...
    kungfuf kungfuf 16-17, F 1 Response Jun 26

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    Have you ever had a problem just shutting your brain down at the end of the day?
    DharmaFrost DharmaFrost 22-25, F 3 Responses Jun 26

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    I fell in love to a random guy on the internet. We decided to meet up and it turns out he's the ideal man I want in my life. However, after a week of spending the days with him, he...
    KarnevalNiji KarnevalNiji 18-21, F Jun 26

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    Ever since I got civilization 5 from the steam sale I can't go to sleep. There's a warning on the games page that says don't play at night. I should have listened cuz now I'm a...
    adav218 adav218 13-15, M 1 Response Jun 26

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