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I Have Juvenile Myoclonic Epilepsy

A Juvenile Myoclonic Epilepsy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Juvenile Myoclonic Epilepsy. You're not alone. 29 People

    I'm 22 years of age and have had Juvenile

    Myoclonic Epilepsy since I was formally diagnosed when I was fourteen. Before that, I was just having Abscence seizure so they weren't officially sure what kind of epilepsy I had. Then when I was fourteen, I had a Myoclonic jerk in my grandma's kitchen and threw the cereal box...
    Kida07 Kida07 22-25, F 1 Response Jul 10, 2014

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    Jme

    I am in high school and I was just recently diagnosed with JME after having a seizure in class. When I went back to school a few days later I talked to a teacher and asked her for work I had missed and let her know that my doctors told me to avoid computers until they did me EEG...
    Ambrielle Ambrielle 18-21 2 Responses Jan 30, 2012

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    I Was 11 When My Symptoms Began

    Puberty is such a weird time for most children. Our body are going to changes that come so rapidly. Well this was the time my twitches began. I thought my twitches were "normal" and that they happened to everyone. I would find that when i would wake up for school my arms would...
    sescoto sescoto 16-17 4 Responses Apr 10, 2012

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    I'm 18. I had myoclonic jerks in the mornings

    throughout years of barely sleeping since I was 14. In early 2012 i had my first seizure at home getting ready for a school trip. I was so upset because I had been wanting to learn to drive for so long like all my friends and now I'd have to wait a whole year. I cleared up my...
    ssssmills ssssmills 18-21, F May 21, 2014

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    My Jme Nightmare

    I was diagnosed with JME in seventh grade after having a seizure at school. I was put in the hospital and endured several days of humiliating tests and finally got a diagnosis that would change my life. That was seventeen years ago. Now I am thirty and the divorced mother of...
    kkoc1027 kkoc1027 26-30 1 Response Aug 13, 2012

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    Related Experiences

    So the other day I had blood tests done and I was diagnosed with Folic Acid Deficiency Anaemia and the doctor says I also need to go for further tests because she is sure I have...
    eibhlinalicejane eibhlinalicejane 22-25, F 13 hrs ago

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    well i dont know how it came about , i started hanging a around a freind with epilepsy who told me that i was having absence seizures, after a wile they got bad , minimum of 3...
    jodyjames2397 jodyjames2397 16-17, M 16 hrs ago

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    For the past 4-5 years I've suffered from Temporal Lobe Epilepsy. I get these seizures every other month, on average. This has significantly changed my life. It has affected my...
    loveoverignorance loveoverignorance 18-21, F 1 Response May 11

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    Hello everyone. When I was about 9 yrs old I was diagnosed with epilepsy. now, 15 yrs later, I have been diagnosed with 2 (possibly 3) other forms as well. They hit me very hard...
    tig1991 tig1991 22-25, F 1 Response May 18

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    I have Complex partial seizures. I am thankful all of the time that my seizures aren't worse. It is still a frustrating disorder. I can't drive a car, I forget things all the time...
    Hannah2112 Hannah2112 22-25, F 4 Responses May 19

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    Its true. I have Epilepsy.. I have a very minor version and usually seizures are barely noticeable (internal seizure) so it looks like i am spaced out in dream land when really i...
    CrystalSapphire CrystalSapphire 18-21, F 2 Responses 3 days ago

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    I used to be a serious binge drinking party girl until I was diagnosed with epilepsy at 23. My whole world changed. But on the positive side, I can go to a club and drink a...
    discotimelord discotimelord 26-30, F 1 Response May 21

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    My sister and I both have been diagnosed with MELAS. I am 22 and my sister is 26. She was diagnosed first with the genetic disease when she was about 20. We both live in Toronto...
    hedyc hedyc 22-25, F May 21

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    you are always arguing with yourself or some pissy little whiner who isn't taking the rotation well. I don't know if any messages are actually intended for me and i have less faith...
    1 Response May 9

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    I am a 17 year old girl living in Australia, and I have struggled with having a solid friend group my whole life. I have had good friends throughout the years, but mostly they have...
    spoorenism spoorenism 18-21, F 3 Responses 15 hrs ago

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    I feel like having my needs met is a constant battle. I feel really angry today. I feel like my needs aren't met, ever. I also believe my feelings are totally wrong. I feel like I...
    MayaKing MayaKing 31-35, F 2 Responses 19 hrs ago

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    I have a few. My freckles are not the amber colored smattering you see on gingers, like my husband. Mine are dark mauve brown, and few and far between. I have seven (not counting...
    AsomatousJaunt AsomatousJaunt 26-30, F 11 hrs ago

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    So i'm a relatively positive person and I guess that comes across to the people I surround myself with. I have been asked. "After everything you've been through and everything you...
    Raptax231 Raptax231 18-21, M 10 hrs ago

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    I have the most dysfunctional family. As a kid It was always an argument, fight and constant verbal abuse from the other four members of my family. They can all be very...
    JodyValero JodyValero 18-21, M 1 Response 5 hrs ago

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    Have you ever been privileged enough to see an angel? to be blessed by their love and have one touch your soul? I have, her name is Kimmy, she was sent to me from up above to...
    ChantouKimmy ChantouKimmy 41-45, F 1 Response 3 hrs ago

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    For those that do not know what PTSD is it stands for Past Traumatic Stress Disorder, I have only been diagnosed with it recently, last month or so and this is my experience so you...
    adaytorememberstaystrong adaytorememberstaystrong 16-17, F 1 Response 1 hr ago

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    "I don't have a heart" well, I'm a vampire. Wait, they have heart too. Then what I am.
    uglyidiotduckling uglyidiotduckling 22-25, F 2 Responses 23 hrs ago

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    A month ago I got back with my ex, that I have loved ever since I was 16. We had a bad relationship before, because when we were young, we drank a lot, and hurt one other. Now last...
    magpie1227 magpie1227 31-35, F 21 hrs ago

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    Yes indeed I do have tattoo's& plan on getting huge killa piece on my left side along rib cage of archangel Michael defeating satan holding a sword. His foot having his head pinned...
    Sugasug Sugasug 41-45, M 20 hrs ago

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    A lot of people have told me I have a nice ***, whatcha think?
    Lena5115 Lena5115 13-15, F 1 Response 19 hrs ago

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    Like I said, I haven't ever kissed anyone either. I've never dated, and I don't have friends.. I don't have a lot of control in my life.
    missfiona missfiona 18-21, F 3 Responses 17 hrs ago

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    I think I have some growing in now.. I can see part of one, and there's a big bump in my gums on the other side. I feel a tooth under it.. I hope I don't have to get these teeth...
    missfiona missfiona 18-21, F 1 Response 17 hrs ago

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    I have come to realize who my true friends are, even though you have your ups and downs with them.. They'll always be there for you no matter what.. Where as I've also realized not...
    K33024W K33024W 13-15 15 hrs ago

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    p.s : i dont think i have a good grammar so forgive me for that ... i had a dream ... i was in my old school and alot of small owl like birds were just sitting everywhere ... and...
    calmfeeling calmfeeling 18-21, M 1 Response 15 hrs ago

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    Texas weather has been in massive change this year. I thought I would share a few photos of that change. Some things to consider now. Six Flags over Texas rides are now all water...
    lasergraph lasergraph 61-65, M 9 Responses 15 hrs ago

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    i have a wild side when i get insomnia. i am a bi male and last year i could not sleep found an adult bookstore with private booths. did not take long for me to find a guy. he...
    stlguy45 stlguy45 41-45, M 1 Response 14 hrs ago

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    When I was a little 9 year old girl, my mother worked full time. My parents were young compared to other parents, so they were new in their professions, yet they desperately wanted...
    OMGMeToo OMGMeToo 51-55, F 14 hrs ago

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    I am not interesting person, don't have any special talents. Don't have the physical strength, beauty, charisma, powers. I am often weird, egoistic, insensitive, cynical...
    Lucije Lucije 26-30, F 2 Responses 13 hrs ago

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    Always. It is Given. But, Yet need Closer. I have a Crater in my Soul. 10000 Ft. Deep. A dead Volcano. Need Closer.
    CLUBill CLUBill 31-35, M 11 hrs ago

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    It's hard enough to love yourself and be comfortable in your own skin without having to worry how others see you. Those who are meant to be in your life, willingly , will choose to...
    Pand0rasCharm Pand0rasCharm 70+, F 9 hrs ago

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    I've had psoriasis in varying degrees since I was a kid. My dad had it, mostly on his elbows, and my mom had it on her scalp. My mom used to yell at me for leaning on my elbows...
    jnewcastle jnewcastle 41-45, F 4 hrs ago

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    It's taken over my life. I have no hope or dreams anymore. I know that there is no hope. No one understands me and medicine doesn't help. It's easier now that i have come to the...
    Greenyugi Greenyugi 16-17, M 4 hrs ago

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    I am a 23 year old male born with Bladder Exstrophy. I've had 20+ surgeries and now currently use a catheter to urinate. The catheter is a permanent thing now and I just have to...
    ashwinsahota ashwinsahota 22-25 1 Response 3 hrs ago

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    I am sorry but you have NO chance of being my woman if you don't look like these two chicks and have a body like them. I've worked too hard on my own physical appearance and will...
    icantdowithoutyou icantdowithoutyou 41-45, M 1 Response 2 hrs ago

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    People say I have a very relaxing voice. I work in a call centre in Manchester in the UK, and we take a lot of calls from America. More Americans seem to like my voice; they say...
    BexBaby84 BexBaby84 31-35, F 1 hr ago

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    No one ever sees it, but if anyone cared to understand me, they would understand why I am who I am and why I act the way I do. So much has never left my head... Way too much stuff...
    stewartgreen stewartgreen 18-21, M 51 mins ago

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