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I Have Juvenile Myoclonic Epilepsy

A Juvenile Myoclonic Epilepsy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Juvenile Myoclonic Epilepsy. You're not alone. 32 People

    My Jme Nightmare

    I was diagnosed with JME in seventh grade after having a seizure at school. I was put in the hospital and endured several days of humiliating tests and finally got a diagnosis that would change my life. That was seventeen years ago. Now I am thirty and the divorced mother of...
    kkoc1027 kkoc1027 26-30 1 Response Aug 13, 2012

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    Jme

    I am in high school and I was just recently diagnosed with JME after having a seizure in class. When I went back to school a few days later I talked to a teacher and asked her for work I had missed and let her know that my doctors told me to avoid computers until they did me EEG...
    Ambrielle Ambrielle 18-21 2 Responses Jan 30, 2012

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    I Was 11 When My Symptoms Began

    Puberty is such a weird time for most children. Our body are going to changes that come so rapidly. Well this was the time my twitches began. I thought my twitches were "normal" and that they happened to everyone. I would find that when i would wake up for school my arms would...
    sescoto sescoto 16-17 4 Responses Apr 10, 2012

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    I'm 18. I had myoclonic jerks in the mornings

    throughout years of barely sleeping since I was 14. In early 2012 i had my first seizure at home getting ready for a school trip. I was so upset because I had been wanting to learn to drive for so long like all my friends and now I'd have to wait a whole year. I cleared up my...
    ssssmills ssssmills 18-21, F May 21, 2014

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    I'm 22 years of age and have had Juvenile

    Myoclonic Epilepsy since I was formally diagnosed when I was fourteen. Before that, I was just having Abscence seizure so they weren't officially sure what kind of epilepsy I had. Then when I was fourteen, I had a Myoclonic jerk in my grandma's kitchen and threw the cereal box...
    Kida07 Kida07 22-25, F 1 Response Jul 10, 2014

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    Related Experiences

    I wouldn't exactly say I had anger issues, because I am that quiet one, but I feel like when people treat me like sh*t, I'll just let it go for that moment and go on with my day. I...
    MrBugsyMalone MrBugsyMalone 13-15, M 31 mins ago

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    When I was 15 years old, was when I had my first epileptic seizure. It was one night when my parents had taken my brother and I on a summer holiday. We stayed at the Holiday Inn...
    Sara600 Sara600 61-65, F 2 Responses Feb 1

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    Anyone with photosensitive epilepsy, I'd recommend wearing an eyepatch over one eye, it helps alot I've found
    EmilyBridge2187 EmilyBridge2187 16-17, F 1 Response Feb 1

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    I wish that I had been properly warned about the worst possible side effects of an RX drug that ruined my nervous system. I have found other people on this site who have developed...
    Boshie Boshie 61-65, F 1 Response Jan 31

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    I was fifteen, me and my friends had the bright idea to prank the cops. We went to the cemetery, dug up a grave, and took out the body. Then I got in and my friends called the cops...
    anonyme23 anonyme23 22-25, M 3 Responses Jan 30

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    Im not too sure if you would call it epilepsy, but when im extremely exhausted i get involuntary twitches. Haven't had any for a very long time.
    redphoenix02 redphoenix02 26-30, F 3 Responses Jan 25

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    I have uncontrollable seizures daily on on meds but they only control to a certain extent I'm on a waiting list to see yet another neurologist doctors are hopeless here they seem...
    beccalovesmovies beccalovesmovies 22-25, F 1 Response Jan 19

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    I'm in the middle of surgical evaluation which means test on top of tests on top of test, my last MRI showed 1.4 cm right frontal cortical dysplasia in my right frontal lobe and my...
    Leo2015 Leo2015 26-30, M Jan 17

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    I have 3 seizures today after school in my room
    deleted deleted 26-30 Jan 15

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    i am 30 years old and i have wanted to be a mother since my early 20's and my ex and i tried multiple times but nothing took i lost the baby before it was even developed. So i...
    Alexia85 Alexia85 26-30, F Jan 14

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    Patterns. The world is made up of patterns and we're all very uniform aren't we? This thought frightens me, it's straight and to the point. Nothing wavy about it, even though I...
    Sometimesilence Sometimesilence 18-21, F 1 Response Jan 12

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    OK, this dream is actually quite weird, and awkward, and a tiny bit gross. But I need to share it. I haven't told anyone about it, or about how I woke up sweating bullets, with...
    NancyDrewFan NancyDrewFan 16-17, F 1 Response Jan 12

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    I have completely given up on finding someone. I can actually say i've gone as far as to say that I don't believe it exists anymore. What is the point of any of this? I'm only 23...
    travelaround11 travelaround11 22-25, F Jan 12

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    I've known him about 7 years or so and I love him to pieces. Once upon a time we fooled around but eventually went on to be with other people but still talked. I never understood...
    Ordinarylady Ordinarylady 22-25, F 1 Response Jan 12

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    anyone have a Paypal i can borrow??
    watchyourgrammar watchyourgrammar 22-25, F 1 Response Jan 12

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    I just wish he would talk to me, and inspire me enough to want to talk to him about important issues, awful memories, our relationship and even bullshit with... When we're together...
    RKZeus24 RKZeus24 22-25, F 1 Response Jan 12

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    Not from just intimate relationships but from my mother, father, friends etc. I didn't have a great childhood. My mother was verbally and physically abusive, my father was in and...
    Hismom2015 Hismom2015 18-21, F Jan 12

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    Dear Luke, You probably hate me in many ways right now for ending things. I’m sorry. I don’t blame you if you don’t read this. I hope you got your key back safely by the...
    Chaleureuse Chaleureuse 31-35, F Jan 12

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    His name is Lewis Ross and he is the sweetest guy I have ever met and I love him so much. We met last year on the 22nd December 2014. I was out Christmas shopping on Union Street...
    deleted deleted 26-30 3 Responses Jan 12

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    Two years ago on the 9th November 2013, my fabulous mum lost the battle against cancer. She had been fighting it for months and she was getting more sick every day. It was terrible...
    deleted deleted 26-30 1 Response Jan 12

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    All my life I have never know who my real father is and after the age of five I stopped caring. if he wasn't prepared to be there at all for me then I wasn't prepared to ever see...
    deleted deleted 26-30 Jan 12

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    I have worked hard for it since I was that little chubby kid in primary 4. I have been really strict with myself and it has paid off. I have spent five to six days a week in the...
    deleted deleted 26-30 Jan 12

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    I don't know if it's me acting awkward, or that person doesn't like me. I haven't done anything wrong (that I know of), but I feel like she interacts with other people but not me...
    KT3535 KT3535 13-15, F 3 Responses Jan 12

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    i am 15 years old. I have been hospitalized various times. Recently i have been diagnosed with SSD. i am devastated. So many times i have been called a liar, and several hurtful...
    alyssastock123 alyssastock123 13-15, F Jan 12

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    My exs got a new gf, he was bragging about it in class, but when he say my face he stopped. At first I wanted to get mad and then I wanted to cry cuz I realised he's not mine i don...
    Abi0123 Abi0123 13-15, F Jan 12

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    I'm hoping these guys come at least within a couple hours of me when they go out touring for the new album. All the rock star deaths it seems like there have been here lately made...
    RememberTomorrow RememberTomorrow 31-35, M Jan 12

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    So I guess this probably doesn't concern anyone, since nobody usually cares about me anyways, but I needed to get it off of my chest. So school was cancelled today because of all...
    maddy292000 maddy292000 13-15, F 8 Responses Jan 12

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    EmpathyThe ability to sense another person's feelings and emotions, to understand their moods and feel with them.I find myself being more or less an empath that can sense things...
    NamDoc NamDoc 66-70, M 3 Responses Jan 12

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    I have an answer!!! I have a new diagnosis as of yesterday and I wanted to share in case someone else has the same thing. Last year I was sitting down studying and my hands and...
    Ash1zzle Ash1zzle 26-30, F Jan 12

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    got in a fist fight with my mother I barely touched her we both called the cops I was in worse condition than her and I had to leave the property I no longer have a home this was 3...
    lies18 lies18 18-21, F 3 Responses Jan 12

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    This is something I have always wished for, to find someone willing to be in this possition and to be mine, any female willing Bonuses for busty (F and up) short and younger, I...
    MonnyMon MonnyMon 26-30, M Jan 12

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    I hate when people don't believe I have social anxiety. This is real and I'm living through it. Simple things like ordering food can send my anxiety through the roof. I can't...
    Azzycarisi Azzycarisi 18-21 2 Responses Jan 12

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    It's time to apply for college and I have ZERO idea what I actually want to do. I am very scared. Everyone has gotten into college except for me. And i've already had a long break...
    Yuppierobo Yuppierobo 16-17, F 5 Responses Jan 12

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    I think I just don't have the right to complain how bad this site goes. When I joined they said it's wreck already lol.
    defiantmisfit defiantmisfit 36-40, F 1 Response Jan 12

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    I have cellulite and stretch marks and few scars and I do not give a damn.
    Indigololly Indigololly 31-35, F 1 Response Jan 12

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    At the moment I'm not on any medications or in any type of therapy to manage my anxiety. I'd be lying if I said managing panic attacks on my own was easy. Its never been easy and...
    Undyingtrust Undyingtrust 26-30, F 1 Response