Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Juvenile Myoclonic Epilepsy

A Juvenile Myoclonic Epilepsy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Juvenile Myoclonic Epilepsy. You're not alone. 28 People

    I Was 11 When My Symptoms Began

    Puberty is such a weird time for most children. Our body are going to changes that come so rapidly. Well this was the time my twitches began. I thought my twitches were "normal" and that they happened to everyone. I would find that when i would wake up for school my arms would...
    sescoto sescoto 16-17 4 Responses Apr 10, 2012

    Your Response

    Cancel

    My Jme Nightmare

    I was diagnosed with JME in seventh grade after having a seizure at school. I was put in the hospital and endured several days of humiliating tests and finally got a diagnosis that would change my life. That was seventeen years ago. Now I am thirty and the divorced mother of...
    kkoc1027 kkoc1027 26-30 1 Response Aug 13, 2012

    Your Response

    Cancel

    Jme

    I am in high school and I was just recently diagnosed with JME after having a seizure in class. When I went back to school a few days later I talked to a teacher and asked her for work I had missed and let her know that my doctors told me to avoid computers until they did me EEG...
    Ambrielle Ambrielle 18-21 2 Responses Jan 30, 2012

    Your Response

    Cancel

    I'm 22 years of age and have had Juvenile

    Myoclonic Epilepsy since I was formally diagnosed when I was fourteen. Before that, I was just having Abscence seizure so they weren't officially sure what kind of epilepsy I had. Then when I was fourteen, I had a Myoclonic jerk in my grandma's kitchen and threw the cereal box...
    Kida07 Kida07 22-25, F 1 Response Jul 10, 2014

    Your Response

    Cancel

    I'm 18. I had myoclonic jerks in the mornings

    throughout years of barely sleeping since I was 14. In early 2012 i had my first seizure at home getting ready for a school trip. I was so upset because I had been wanting to learn to drive for so long like all my friends and now I'd have to wait a whole year. I cleared up my...
    ssssmills ssssmills 18-21, F May 21, 2014

    Your Response

    Cancel

    Related Experiences

    Hi to everyone EP.I go by Fruitypunch15 on here.I am looking to make friends on here.I am looking for friends that have Epilepsy too.I am tired of explaining to people that dont...
    Fruitypunch15 Fruitypunch15 31-35 2 Responses Apr 7

    Your Response

    Cancel
    I have had Epilepsy since I was 10 months old the doctors are not sure how I got it since it does not run in my family. And they can't find a reason why I have it. I had 8 a day...
    kmccrady12653 kmccrady12653 18-21, F 1 Response Mar 27

    Your Response

    Cancel
    Has anyone had much experience with having epilepsy and being pregnant or raising kids? I have a two year old step son, and I hate having seizures in front of him. My husband and I...
    Iammarriedtoamtftrans Iammarriedtoamtftrans 18-21, F 1 Response Mar 28

    Your Response

    Cancel
    Does anyone else deal with getting bullied because of epilepsy and the side effect of hands shaking, because of my medication my hands are shaky and everyone notices and I always...
    kmccrady12653 kmccrady12653 18-21, F 6 Responses Mar 29

    Your Response

    Cancel
    I have epilepsy since the age of 8. You have to grow ,with it:( . I had really big ones when i was little and until my 30. It changes your life and Some Things you cant do as...
    brussels25 brussels25 36-40, F 3 Responses 3 days ago

    Your Response

    Cancel
    I have epilepsy since I was seven im 29 it hard an nothing works meds wear off after awhile then on to another
    sissy2985 sissy2985 26-30, F 3 Responses 2 days ago

    Your Response

    Cancel
    The man I love is abusive and I have been with him for about a year now see he is a alcoholic abusive guy but he is 36 I am 21 almost 22 I am also paralyzed and have epilepsy but...
    kmccrady12653 kmccrady12653 18-21, F 4 Responses Mar 27

    Your Response

    Cancel
    (1980) I was born while my parents were getting divorced. I saw my dad a handful of times. (1983) my mom remarries a man who likes little girls. My mom knew what was going on but...
    wingedvalkyrie7 wingedvalkyrie7 31-35, F 1 Response 17 hrs ago

    Your Response

    Cancel
    Hello my fellow EP members.I would like to share a personal experience that recently happen to me.I recently have been going threw some personal issues with my Family.I have been...
    Fruitypunch15 Fruitypunch15 31-35 8 hrs ago

    Your Response

    Cancel
    REAL TALK POWER'S OF ENERGY GREETINGS!.. Its Me Icey! The Energy Manipulator, How are you all?.. Me? Im Well Thanks..And I've Got so much Stuff to talk to ya'll about! Its not...
    icey1 icey1 22-25, M 7 hrs ago

    Your Response

    Cancel
    Have any of you fully Gained your trust back up ? Is it truly worth working out ? I have read where some marriages are stronger after the apocalypse , how fu..ing long does it...
    jocu123 jocu123 31-35, M 4 Responses 7 hrs ago

    Your Response

    Cancel
    I have a crush on a it on Tinder... Idk if he only wants sex but we talk sexy all the time which I love. he's so cute and can turn me on like THAT haha We also talk about our lives...
    WhatChrisDid4Love WhatChrisDid4Love 18-21, M 12 hrs ago

    Your Response

    Cancel
    Yup and I never had one. Ever. I used to have girls that are friends but they didn't last long and I was too dense to notice that they probably liked me. I just didn't bother to...
    Xemplefied Xemplefied 26-30, M 11 hrs ago

    Your Response

    Cancel
    My ex was very mentally abusive to me. he had at one point hit me and my friends and family made me break up with him. I now see that it wasn't okay but I'm still in love with the...
    CopenhagenAngel427 CopenhagenAngel427 18-21, F 4 Responses 11 hrs ago

    Your Response

    Cancel
    My mother has this rude joke she makes if I don't show her something i am doing when she asks, I'm looking at "****" and "willies" and goes and tells my stepfather. She tells him...
    1lonelydaisy 1lonelydaisy 41-45 10 hrs ago

    Your Response

    Cancel
    I don't know why a part of me feels broken often times. As if I was empty. I manage to be good, to be kind, gentle and loving all the time but those things I do couldn't satisfy me...
    diane1996 diane1996 18-21, F 6 Responses 9 hrs ago

    Your Response

    Cancel
    I always know when my period comes because of the pain. It's pain that hurts but isn't at the stage where I'm thinking "I can't deal with this anymore". It's like an alarm clock...
    1lonelydaisy 1lonelydaisy 41-45 1 Response 9 hrs ago

    Your Response

    Cancel
    Boo! Did I get ya? I have never stopped. I never will stop. But if you're in this group you turned little ***** and quit, probably bowing to social pressure. Nothing can change...
    smokingrocks1 smokingrocks1 56-60, M 9 hrs ago

    Your Response

    Cancel
    So, he approached my friend and said, o really like your best friend and i have to tell her where is she, i looked up and he smiled , i went over and sat beside my friend, and he...
    FAIRYboobs FAIRYboobs 18-21, F 8 hrs ago

    Your Response

    Cancel
    My daughter is biracial. She was born very white and I thought that she would get a little darker with age, like many black and mixed babies do. She looks about the same now. I...
    Evesdaughter Evesdaughter 31-35, F 1 Response 7 hrs ago

    Your Response

    Cancel
    So before I tell the main part of my story id like to rewind a few years and give some backstory. When I was 5 years old I was molested by my neighbor. He never penetrated but a...
    Niavati23 Niavati23 18-21, F 2 Responses 6 hrs ago

    Your Response

    Cancel
    I have, me and my sister have fights with knives because we both like it and it turns us on, we play a game where we fight with knives and it's the first one to ten stabs to win...
    IWantToBeTortured IWantToBeTortured 18-21, F 5 hrs ago

    Your Response

    Cancel
    I haven't spoken to my twin in a while. Sometimes I wake up from my sleep in the morning with a random song stuck in my head which I haven't heard in years. When I play the song...
    krimsonlove krimsonlove 22-25, F 1 Response 3 hrs ago

    Your Response

    Cancel
    I wonder what it would be like, but frankly I have no time. I am not that interesting either, mostly just tired or negative. I know there should be some sort of "substance" to it...
    chairsmissing chairsmissing 22-25, F 2 hrs ago

    Your Response

    Cancel
    Just an update: so many little things have happened between us that I just builds on the electricity and vibe I feel we have. I remember my friend asked him if there was a future...
    Tigercass Tigercass 22-25, F 1 Response 40 mins ago

    Your Response

    Cancel
    My granddaughters don't accept me because of it . They wouldn't permit me to come to the wedding with an interpreter for my profound deafness. I don't like them any more. I'm not...
    MargaretCallinan MargaretCallinan 70+, F 2 Responses 12 hrs ago

    Your Response

    Cancel
    I met a man not too long ago. He's genuine and sincere. He actually cares about my feelings and has an incredible way of understanding everything. There are people you meet in life...
    hadyourchance hadyourchance 36-40, F 9 Responses 11 hrs ago

    Your Response

    Cancel
    It was really weird, me and him were falling and there was a small gap that only one of us could fit in so he pushed me into the gap while he fell through a wooden floor... But it...
    philex2014 philex2014 13-15, F 11 hrs ago

    Your Response

    Cancel
    It's interesting how I found this website: I googled "introverts anonymous" on a whim. I was actually thinking more along the lines of a sort of chatroom where I could Interact...
    sailman306 sailman306 22-25, M 10 hrs ago

    Your Response

    Cancel
    Was hanging out with a guy and he came over and we watched a movie. He started trying to get touchy feely and I told him I didn't want to do anything. He could tell something was...
    Redvelvet58 Redvelvet58 26-30, F 1 Response 10 hrs ago

    Your Response

    Cancel
    It's nice to have your prayers answered...just like the old times.
    Asurina Asurina 18-21, F 1 Response 10 hrs ago

    Your Response

    Cancel
    It used to be ok for keeping on touch with people. Now it's just targeted advertising, drama and updates about how nice a coffee was. Fine people want to use it but it I hate it...
    TheGrumpyDead TheGrumpyDead 31-35, M 2 Responses 8 hrs ago

    Your Response

    Cancel
    So I have a crush on my student teacher she is about 23/24. I don't know if she likes me back but she acts like she does. She will call me out of everybody a lot more than normal...
    jjjgjjjg jjjgjjjg 16-17, M 1 Response 7 hrs ago

    Your Response

    Cancel
    I buy a pdf and try to print it out but 1/2 way through the text becomes illegible - I have wasted 150 pages of ink pfffffffffft New rule - *Thou shalt not walk away from the...
    SolitaryElf SolitaryElf 41-45, F 2 Responses 6 hrs ago

    Your Response

    Cancel
    More on what exactly happened five months ago that flipped my world upside down: Someone noticed me, & it brought forth this life out of me that had been sleeping for years, maybe...
    saundra04 saundra04 26-30, F 2 Responses 5 hrs ago

    Your Response

    Cancel
    I have a rlly huge Fcking massive crush in Eminem and even he was playing as Slim Shady he is smoking hot
    Sarahkillzclock23 Sarahkillzclock23 13-15, F 1 Response 5 hrs ago

    Your Response

    Cancel