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I Have Juvenile Myoclonic Epilepsy

A Juvenile Myoclonic Epilepsy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Juvenile Myoclonic Epilepsy. You're not alone. 25 People

    I'm 22 years of age and have had Juvenile

    Myoclonic Epilepsy since I was formally diagnosed when I was fourteen. Before that, I was just having Abscence seizure so they weren't officially sure what kind of epilepsy I had. Then when I was fourteen, I had a Myoclonic jerk in my grandma's kitchen and threw the cereal box...
    Kida07 Kida07 22-25, F 1 Response Jul 10

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    Jme

    I am in high school and I was just recently diagnosed with JME after having a seizure in class. When I went back to school a few days later I talked to a teacher and asked her for work I had missed and let her know that my doctors told me to avoid computers until they did me EEG...
    Ambrielle Ambrielle 18-21 2 Responses Jan 30, 2012

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    I Was 11 When My Symptoms Began

    Puberty is such a weird time for most children. Our body are going to changes that come so rapidly. Well this was the time my twitches began. I thought my twitches were "normal" and that they happened to everyone. I would find that when i would wake up for school my arms would...
    sescoto sescoto 16-17 4 Responses Apr 10, 2012

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    My Jme Nightmare

    I was diagnosed with JME in seventh grade after having a seizure at school. I was put in the hospital and endured several days of humiliating tests and finally got a diagnosis that would change my life. That was seventeen years ago. Now I am thirty and the divorced mother of...
    kkoc1027 kkoc1027 26-30 1 Response Aug 13, 2012

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    I'm 18. I had myoclonic jerks in the mornings

    throughout years of barely sleeping since I was 14. In early 2012 i had my first seizure at home getting ready for a school trip. I was so upset because I had been wanting to learn to drive for so long like all my friends and now I'd have to wait a whole year. I cleared up my...
    ssssmills ssssmills 18-21, F May 21

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    Related Experiences

    I have suffered from epilepsy since the age of five. It's mostly the ignorance of others that I suffer from. I'm an accounting major. I stopped listening to family members who want...
    Riverlioness Riverlioness 41-45, F 3 Responses Oct 31

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    First time we realized when I was 5. I passed out while I was watching cartoons. Once my sister didn't realized what the hell happened. But she decided to take me to the neurology...
    gregoryraven17 gregoryraven17 18-21, M Nov 9

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    i have had epilepsy since i was a young kid at school. thankfully i've not had any epileptic fits since i was a kid as it's been under control with my medication.
    GirlyAndrea1987 GirlyAndrea1987 26-30, M 2 Responses 4 days ago

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    I hate it,just been on E.R. this morning,cause of epy seizurre,got a shot against seizurres and infusion with vitamins B1 and B6 in it,layed in hospital bed,listened to an old lady...
    00pleasehelpme00 00pleasehelpme00 18-21 2 Responses Oct 30

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    Saturn is thought of to be essentially the most malefic planet of all. At the same time, its eventual impact is regarded to soothe out all the early ill-impacts.) Other than this...
    edward324 edward324 22-25, M Nov 12

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     Its been about three months since my last seizure. I'm expecting another one soon. I normally have them about every three months now. There has only been one time where I...
    Alisaperne6446 Alisaperne6446 18-21, F Nov 12

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    Diagnosed at 15 but have been having seizures most of my life, my parents were in denial and when my second grand mal hit is when they decided to get me evaluated..... I could have...
    SurpriseMeToday SurpriseMeToday 18-21, F 1 Response Nov 13

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    Please help. I'm currently experiencing dark thoughts, dark thoughts about just running away. I love all my Children but they have no respect for anything I have ever done for...
    RockingLikeAFetus RockingLikeAFetus 31-35, F 1 Response 12 hrs ago

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    My third anniversary on EP was in August 2014. I am a bit behind. You know how life keeps you busy. So it is time for me to share what I have learned in this past year. I hope you...
    PoetryNEmotion PoetryNEmotion 51-55, F 6 Responses 6 hrs ago

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    My mother is such a hypocrite. Usually I can just shrug it off but lately it's been getting to me. Today she yelled at me for finishing a bottle of root beer that she bought a...
    midnightdahlia midnightdahlia 22-25, F 3 hrs ago

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    I have liked this girl for 4 and a half years now. Actually it's much passed "like". I've had so many chances to make a move on her, but I was to cowardly to do so. I was too...
    yoomyman yoomyman 18-21, M 15 hrs ago

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    It borders on a year now, that I have had nightmares almost every night. My mind has been plagued by insecurity... And with it, came the nightmares. I wish I had the typical...
    Lullacus Lullacus 22-25, F 1 Response 14 hrs ago

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    Has anyone ever faced discrimination for having a tattoo? I have one down the side of my forearm, just some dainty writing (lyrics). Anyway, I had a job interview one hot day a few...
    Enna87 Enna87 26-30, F 4 Responses 12 hrs ago

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    to be honest i don't know how my life got this far off track. one minute im happily married the next i going thru a divorce and living with this "gift" that she gave me.... forever...
    livingpositively livingpositively 22-25, M 3 Responses 11 hrs ago

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    so, be and my mother have decided to do Black Friday for the first time... and well, K Mart opens up at 6:30 AM - and they have a sale : buy one pair of shoes/boots and get the...
    sugarcakes143 sugarcakes143 18-21, F 6 Responses 10 hrs ago

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    It's been a few months since joining The Experience Project, thank you to all who have visited and those who have kindly left comments & hearts. To be honest I lost the link and...
    Darklydancing Darklydancing 56-60, F 5 hrs ago

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    You tell me everything I have put you through.. But you don't acknowledge what you have put me through. This isn't a blame game but we act like it is one.. We are not right for...
    Nocturnallover Nocturnallover 18-21, F 1 Response 4 hrs ago

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    i have cheated on my husband multiple times. we have been married for 3 and half year and I started cheating since last year. It was an arranged marriage and I got married really...
    idontknowwhatiwant idontknowwhatiwant 26-30, F 1 Response 3 hrs ago

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    you know what I don't understand? why people think JUST because someone gets pregnant, they HAVE to marry the father... This thought came up because my grandpa said since Miley...
    sugarcakes143 sugarcakes143 18-21, F 1 Response 3 hrs ago

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    Hey my names Alex, I'm 20 years old. I found out I have had Cholesteatoma in my right ear for YEARS now, I noticed this lump behind my ear Years ago I'm thinking maybe 6-8 years...
    alex123098 alex123098 18-21, M 2 Responses 2 hrs ago

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    I always have showers at random times during the day, so it's not uncommon for someone to visit while I'm in there. I think most of my friends have seen my boobs, by accident and...
    IrishHayley IrishHayley 22-25, F 1 Response 2 hrs ago

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    Hey my names Alex, I'm 20 years old. I found out I have had Cholesteatoma in my right ear for YEARS now, I noticed this lump behind my ear Years ago I'm thinking maybe 6-8 years...
    alex123098 alex123098 18-21, M 2 hrs ago

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    When I am in social situations my mind goes blank, I have nothing to say. Its as though the people around me are speaking a foreign language. I have no connection with the...
    xxlouisebaby xxlouisebaby 22-25, F 2 hrs ago

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    ..and all of the various beasts i have had the honour to know. BTW, i'm Canadian; we already had our thanksgiving weeks ago so this is not about being thankful, etc. etc. yadda...
    JenRhaine JenRhaine 36-40, F 51 mins ago

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    somehow people always think i don't like them , or that i don't want to talk to them . i have been told that i have negative energy around me , that i always seem irritated or in a...
    antoneli antoneli 18-21, M 2 Responses 43 mins ago

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    I think deep down all I have ever wanted was to have a special female friend I was in love with. Really sex without feeling has not interested me. I do enjoy being adored or found...
    Podcast Podcast 18-21, M 36 mins ago

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    Sad predicament I know, but when I look back, I can see that the happiest times in my life have always been when I was between being in love. I felt like "Yay! I'm finally over...
    aag311 aag311 41-45, M 2 Responses 17 hrs ago

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    I have horrible anxiety. It's with me all day every day, never goes away. Mind is racing, chest is pounding, I can't concentrate most of the time. It sucks. I usually just act like...
    barbee0 barbee0 13-15, F 6 Responses 17 hrs ago

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    Yes I do it makes me upset with myself i have been able to cope with it but sometimes I burst into a firecracker and I just feel terrible. :(
    yeahis18 yeahis18 18-21, F 17 hrs ago

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    At first he happen to be caught in her glance, she had not noticed him her eyes were only focused on a friend as they whispered. Then slowly his existence started to grow, her eyes...
    Moonlight94 Moonlight94 18-21, F 16 hrs ago

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    Apparently I have an accent or speak odd to people. Apparently I don't pronounce my words correctly... I guess sometimes they don't come out correctly. Like haven't = 'aven't or he...
    InvaderGashloog InvaderGashloog 70+, F 7 Responses 16 hrs ago

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    I'm a cutter, and burner. When I'm alone with my feelings I have to let them go by just one cut or one small burn. That's my secret, can you keep it?
    LenaBena1430 LenaBena1430 16-17, F 1 Response 15 hrs ago

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    Facebook/Twitter/Instagram: People who write daily novels on their statuses. Same story every day. Usually somewhere along the lines of counting their daily blessings or how much...
    bombchu bombchu 22-25, F 15 hrs ago

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    I hate my aunt tomorow she is going to maried but i have to go eventhough at monday i"m going to have last semster test i mean what the hell her wedding going to take 2 days in a...
    reginacs reginacs 16-17, F 1 Response 14 hrs ago

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    A few : -I don't know how to forgive, even if I say I forgive someone. I always have this passive aggressive behavior towards you if you've got on my bad side -I would NEVER cheat...
    akaShaun akaShaun 16-17, M 1 Response 11 hrs ago

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    Just imagine a situation where you have a crush on your music teacher for more than a year and then suddenly he gets married when you are just getting over it. What happens...
    sindarin19 sindarin19 16-17, F 1 Response 10 hrs ago

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    ^.^ Yupp i do not have a problem at all
    Hopeisinme Hopeisinme 18-21, F 2 Responses 10 hrs ago

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    If I hear any song twice I can sing it myself on the identical pitch and even breathing technique as the original. Most people can't notice a difference. I honestly can sing on...
    Istaysecret Istaysecret 13-15, F 9 hrs ago

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    I think it would be fun to bring back some old words that have become obsolete. Any obsolete words you would like to endorse? Mine: Crapulous - To feel ill because of excessive...
    KCN33 KCN33 31-35, F 1 Response 9 hrs ago

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    Anyone take anything for anxiety? What works for you? I'm a overly sensitive person and have panic attacks sometimes, and get stressed very easily.
    fletcherx fletcherx 26-30, M 9 Responses 9 hrs ago

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    Almost one year since my divorce from my verbally abusive ex husband has been final. I am so much happier. I feel more like my old self every day. He was so mean to me. Always...
    jameshasmyheart jameshasmyheart 41-45, F 1 Response 8 hrs ago