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I Have Juvenile Myoclonic Epilepsy

A Juvenile Myoclonic Epilepsy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Juvenile Myoclonic Epilepsy. You're not alone. 25 People

    My Jme Nightmare

    I was diagnosed with JME in seventh grade after having a seizure at school. I was put in the hospital and endured several days of humiliating tests and finally got a diagnosis that would change my life. That was seventeen years ago. Now I am thirty and the divorced mother of...
    kkoc1027 kkoc1027 26-30 Aug 13, 2012

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    I'm 18. I had myoclonic jerks in the mornings

    throughout years of barely sleeping since I was 14. In early 2012 i had my first seizure at home getting ready for a school trip. I was so upset because I had been wanting to learn to drive for so long like all my friends and now I'd have to wait a whole year. I cleared up my...
    ssssmills ssssmills 18-21, F May 21

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    I'm 22 years of age and have had Juvenile

    Myoclonic Epilepsy since I was formally diagnosed when I was fourteen. Before that, I was just having Abscence seizure so they weren't officially sure what kind of epilepsy I had. Then when I was fourteen, I had a Myoclonic jerk in my grandma's kitchen and threw the cereal box...
    Kida07 Kida07 22-25, F 1 Response Jul 10

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    I Was 11 When My Symptoms Began

    Puberty is such a weird time for most children. Our body are going to changes that come so rapidly. Well this was the time my twitches began. I thought my twitches were "normal" and that they happened to everyone. I would find that when i would wake up for school my arms would...
    sescoto sescoto 16-17 4 Responses Apr 10, 2012

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    Jme

    I am in high school and I was just recently diagnosed with JME after having a seizure in class. When I went back to school a few days later I talked to a teacher and asked her for work I had missed and let her know that my doctors told me to avoid computers until they did me EEG...
    Ambrielle Ambrielle 18-21 2 Responses Jan 30, 2012

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    Related Experiences

    The thing is that I was diagnosticated with TLE ; started treatment that has been something really complicated to me and have to face this almost by my self. Having this kind of...
    viajerasoy viajerasoy 31-35, F 1 Response 6 days ago

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    My dad was recently diagnosed with MELAS. He is 48 years old. He has been in and out of the hospital due to seizures and what we thought were strokes. He suffers from hearing loss...
    ering08 ering08 22-25, F 1 Response Sep 1

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    My uncle/godfather. My uncle was a very sincere, sensitive, cheerful man. He helped everybody very much. Suddenly, in 2007 he fell into a long pnemumonia. He was ill earlier due to...
    michalmos michalmos 31-35, M 1 Response a week ago

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    So me and my boyfriend are living together and we have argued a lot already and we have broken up. Honestly I believe it's a bunch of communication and trust issues and honestly I...
    Chipperme21 Chipperme21 22-25, M 1 Response 3 hrs ago

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    I want to have sex with a female teacher in my school teaches maths,she's not attached and is only a mere 22 years old she has an a body like an hourglass,all the curves in the...
    TheGamechanger TheGamechanger 18-21, M 3 hrs ago

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    I like at least three people on here. 4 including the deleted profile Austin who was close but not quite friends with Jay and Corey. However, most of them ended up taken. Some...
    xXxfakerhaterxXx xXxfakerhaterxXx 13-15, M 3 hrs ago

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    No one else on here appears - well I couldn't find a group about it.Anyway here are some I haveOne in the photo above I made myself on a glass blowing course - can you guess which...
    nunos nunos 51-55, M 1 Response 2 hrs ago

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    For some odd reason, i have been dreaming of a big red demon with horns and whiskers which sort of looks like a mix between a cat and a goat. This creature comes out from hell...
    DennP DennP 22-25, M 2 Responses 1 hr ago

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    Don't take it personal, but if you want to remain in my circle then act like it... I'm not just going to add people to build up a huge amount of friends, I'm not about the...
    Kirstenw23 Kirstenw23 22-25, F 2 Responses 4 hrs ago

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    I keep having nightmares at 3 am. From 3am and then I wake up as soon as my clock changes to 4. My dream..like 20 mins ago was something about my sister, she was possessed and..she...
    GabriellaFae GabriellaFae 13-15, F 1 hr ago

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    I have this crazy happy crush on my celeb crush that I get jealous whenever he is rumored to be dating someone. #Borderlineobsessed
    jellyace jellyace 18-21, F 3 Responses 1 hr ago

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    I have enough worries at 18 to last me a lifetime
    Xo12345 Xo12345 18-21, F 5 Responses Aug 19

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    I'm weird but i call it original (: I'm doing me n happy with myself n the way I am. I'm a ******* weirdo but a good weirdo aha . I'm the bestiest n funniest friend you'll ever...
    youngadult14 youngadult14 13-15, F 1 Response Aug 19

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    I've carried conversations with all types of people in my life, and in most cases, they aren't considerate of other types of people. I think I'm a lot of cultures in one person, so...
    Thediary Thediary 26-30 2 Responses Aug 19

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    My mom has a sixth sense. She always knows when I need her and she is always there for me. She always knows when I'm having a bad day. Today, I was in so much pain. I could barely...
    1MagicalMystery 1MagicalMystery 31-35, F Aug 19

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    Never been in a relationship and I'm 18. Maybe because I don't have the body guys don't like me or maybe because I can talk back..
    ki2su ki2su 18-21, F 2 Responses Aug 19

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    I get turned on by pregnant women so would live to have sex with one
    goonteam goonteam 16-17, M 2 Responses Aug 19

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    Long hair don't care! :) I'm lucky enough to have a close friend who is a hair stylist, she gave me an ombré which I'm loving at the moment! Love your hair, love yourself...
    awokensheepislittlebopeep awokensheepislittlebopeep 22-25, F 3 Responses Aug 19

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    I have the best mate ever! Love you Keller <3 <3 ^^
    KatoKangaroo KatoKangaroo 18-21, M 1 Response Aug 19

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    maybe i have insomnia or maybe it's just my wifi.
    queentheresa queentheresa 13-15, F 2 Responses Aug 19

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    I needed clarity and a break from a world that created a chaotic era for me. This time, one foot at a time, dipping one toe after the other. The water must be great and if it isn...
    ChaoticReason ChaoticReason 36-40, F Aug 19

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    I was fighting depression at the time of my symptoms started. First was the chomping of my tongue, then weeks later my voice changed drastically. I couldn't formulate words...
    euptlp euptlp 31-35, F Aug 19

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    Tonight, I have decided to reach out and find others like me. Others with Conversion Disorder. To this day, I still battle with the tics and tremors that made it so I quit high...
    bluestocking18 bluestocking18 18-21, F Aug 19

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    Umm I'm just not happy where I am now. but I believe thing it will get better when it comes right time. Since I have my med Zoloft for treat with anti-depression and have an...
    xoshorty21 xoshorty21 22-25, F Aug 19

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    My sweatpants have one "butt-pocket" on the right side.. Wtf? Why don't I have a pocket on the left side?!
    akaShaun akaShaun 16-17, M 4 Responses Aug 19

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    I think that doing this to myself was a symptom, not a disease. I pulled out all my eyebrow and eyelashes (and lots of hair in othe places too) when I was young and now I can see...
    dispossessed dispossessed 46-50, F 1 Response Aug 19

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    I lost my grandma who's been with me and my family all my life when I was 15. She adopted my dad and married a Filipino man who we took his last name from. I never met him...
    roselani2005 roselani2005 26-30, F 1 Response Aug 19

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    Literally almost every time I get on this site I get the urge to make a post that says "Did you know that I am secretly a goose?" I have no idea why, or where I heard it from, or...
    ZeroDigits ZeroDigits 16-17, F 3 Responses Aug 19

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    Make sure you be a part of us in providing one last cheer to all the oldsters that have shared their goals with the whole world, and also every one of the people who have labored...
    Laurenazrj90 Laurenazrj90 31-35, M 1 Response Aug 19

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    No matter how much you trust the police, always remember the police are trained to never trust you. With that being said, prayers will go out to families of anybody of any race who...
    DaQueenB92 DaQueenB92 22-25, F 1 Response Aug 19

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    I have so many siblings that I have to count. I have a mixture of step siblings and half siblings all from 5 women and two men, none of my siblings are by blood. Mandi Stephanie...
    Gonzales96 Gonzales96 18-21, F 1 Response Aug 19

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    I have an American Bulldog who loves attention if i am busy with work and not home as much as usual she gets moody with me and has to have a paw touching my leg or hand most of the...
    Brok3nSoul Brok3nSoul 22-25, F 1 Response Aug 19

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    So i am a closeted lesbian and have feelings for my boss. I have had them for close to 2 years maybe longer. We are friends and hang out with each other after work sometimes. She...
    Brok3nSoul Brok3nSoul 22-25, F Aug 19

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    I have been to Scotland, London and Denmark. I went to London alone but a 1 friend with me for the other places. I flew from Australia and met her in Scotland. The whole experience...
    Brok3nSoul Brok3nSoul 22-25, F Aug 19

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    I have a feeling that my relationship with my boyfriend is coming to an end. :( He seems very distant from me. I have not seen or really talked with him in a week. When I text...
    nicolem84 nicolem84 26-30, F 1 Response Aug 19

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    I dont think it is wierd really I think it is my mind thinking without me. I dream all night, seeing pictures of all my feelings Good puns and good allegories I have a good mind It...
    dispossessed dispossessed 46-50, F 2 Responses Aug 19

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    Yesterday was my birthday No one I know said happy birthday And my father said it once Makes ms kinda sad when I remember I have no one
    Tilou420 Tilou420 13-15, F 1 Response Aug 19

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    When your closest male friend who obviously likes you but never sought to give you the time of day because you wouldn't have sex with him gets mad at you everytime he remembers...
    VousEtesBelleCM VousEtesBelleCM 18-21, F 1 Response Aug 19

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    There was once a time when I would have thought my current level of spirituality was stupid. And I thought I had an open mind.
    medialahem medialahem 18-21 1 Response Aug 19

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    I would have never thought so myself to be honest. But I've been consistently complimented on how deep it is. Obrigado to the dudes and dudettes that have said it I guess. :L
    samuraiswordless samuraiswordless 18-21, M Aug 19

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    I try to hide my singing voice because I don't think it's good, I really wanna be a singer though! Yesterday I was singing to myself at my locker when a girl walks past me and...
    HappensForAReason HappensForAReason 13-15, M Aug 19

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    May you all have a good day, be safe out there.
    Original23 Original23 22-25, M Aug 19

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