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I Have Juvenile Myoclonic Epilepsy

A Juvenile Myoclonic Epilepsy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Juvenile Myoclonic Epilepsy. You're not alone. 23 People

    I'm 22 years of age and have had Juvenile

    Myoclonic Epilepsy since I was formally diagnosed when I was fourteen. Before that, I was just having Abscence seizure so they weren't officially sure what kind of epilepsy I had. Then when I was fourteen, I had a Myoclonic jerk in my grandma's kitchen and threw the cereal box...
    Kida07 Kida07 22-25, F 1 Response Jul 10

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    I'm 18. I had myoclonic jerks in the mornings

    throughout years of barely sleeping since I was 14. In early 2012 i had my first seizure at home getting ready for a school trip. I was so upset because I had been wanting to learn to drive for so long like all my friends and now I'd have to wait a whole year. I cleared up my...
    ssssmills ssssmills 18-21, F May 21

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    My Jme Nightmare

    I was diagnosed with JME in seventh grade after having a seizure at school. I was put in the hospital and endured several days of humiliating tests and finally got a diagnosis that would change my life. That was seventeen years ago. Now I am thirty and the divorced mother of...
    kkoc1027 kkoc1027 26-30 Aug 13, 2012

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    I Was 11 When My Symptoms Began

    Puberty is such a weird time for most children. Our body are going to changes that come so rapidly. Well this was the time my twitches began. I thought my twitches were "normal" and that they happened to everyone. I would find that when i would wake up for school my arms would...
    sescoto sescoto 16-17 4 Responses Apr 10, 2012

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    Jme

    I am in high school and I was just recently diagnosed with JME after having a seizure in class. When I went back to school a few days later I talked to a teacher and asked her for work I had missed and let her know that my doctors told me to avoid computers until they did me EEG...
    Ambrielle Ambrielle 18-21 2 Responses Jan 30, 2012

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    Related Experiences

    I've written in the section before how I was diagnosed following a car accident which left me very injured and diagnosed with epilepsy in five days it will be a year since the day...
    Cozzx Cozzx 18-21, F 1 Response Jul 8

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    I was diagnosed at 8 yr. old and now I'm 57,The seizures have been a part of my life, But there is more to epilepsy than seizures and it is this area that has given me the most...
    koltan88 koltan88 56-60 Jul 2

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    A little over 20 years ago I was born. And from the outset I had regular fits, at first every few hours, but they gradually subsided to more weekly/monthly events. I still don't...
    RhythmPsycho RhythmPsycho 18-21, M Jul 4

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    What about the rapid twitching at the corner of my eye, sometimes I can feel it twitching real fast like a flutter but you don't notice it visually. I wonder if that is related to...
    subsumedpat subsumedpat 36-40, M 2 Responses Jul 11

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    My first epilepsy was when I was 13 and then again at 15. The pre-seizure would happen to lots of zoning out, and seeing some pretty colorful spots it's slowly speeds up that seems...
    signbrat04 signbrat04 22-25, F 1 Response Jul 16

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    I have had epilepsy for almost 10 years. Since I was 6 years old. I have suffered from many tonic-clonic seizures & the cause of the first one was unknown. Luckily, I haven't had a...
    KMargatroid KMargatroid 16-17, F 6 Responses Jul 4

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    Won't ever forgot the diagnose... Blew me into submission. The worst part the meds can't prevent the seizures...and that as well the meds havee effects which are screwing me up...
    ThevoiceofOutcasts ThevoiceofOutcasts 18-21 2 Responses Jul 1

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    I have recently got an English Bull Terrier puppy & he is the most funniest thing ever!! His name is Fondue & he is 9 weeks, 2 days old. We didn't get him as a pet, we got him as a...
    KMargatroid KMargatroid 16-17, F Jul 4

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    I would appreciate your feedback!! I have had Petit since 8 YO! And at 40 I was hit with a change to Grand. With these seizures getting worse and lasting at times in excess 4 min...
    koltan88 koltan88 56-60 1 Response Jul 11

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    Why is it that a woman can like girl, boy and man stuff and no one bats and eye but if a man likes boy stuff he's juvenile or puerile and if he likes girl stuff he is gay or a...
    xlxSpiraxlx xlxSpiraxlx 26-30, F 2 Responses 6 days ago

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    I'm 16 & my boyfriend is going to jail on the 11th of this month. He got charged as a juvenile but he recently turned 18 about 2 weeks ago. Me & him have been on and off for about...
    heyliyaaaaah heyliyaaaaah 16-17, F 3 Responses Jul 8

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    So an update is in order, since I have been so lax in my attendance on EP. I am home AGAIN from yet another week away with the kids. Relaxation and rest certainly does wonders...
    knittingbadsweaters knittingbadsweaters 41-45, F 2 Responses 3 hrs ago

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    I am a extremely secret person so I think I enjoy this site most of all because I have a place I can let things off my chest yet still be anonymous to some degree. Anyways; with...
    Chicgeekgal Chicgeekgal 22-25, F 5 Responses 10 hrs ago

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    I know I write a lot here, but it's very therapeutic for me because these thoughts are constantly racing around in my head and getting them out is healthy. I usually wouldn't write...
    Serenity14 Serenity14 26-30, F 7 hrs ago

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    My death. It will most probably be by my own hand. The days go by in endless cycles. There is nothing to give it any semblance of a meaning. This is particularly hard for me to...
    pretender1326 pretender1326 26-30, M 1 Response 4 hrs ago

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    I think most of my EP friends know I was gone for about a week recently, but most of you don’t know where I was. I was actually on a vacation with my family “across the pond...
    SaraBee1995 SaraBee1995 18-21, F 2 Responses 3 hrs ago

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    I have grown up with this deficiency. I am used to being the weird looking guy, and coming to grips with the fact that I fight an uphill battle trying to control my weight. If I...
    bigsully0511 bigsully0511 31-35 2 hrs ago

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    I sing but I don't feel like that well. I have had four bands. I have lead songs in four churches and for camps and missionaries. Many have said I have a nice voice. I don't agree...
    lonesojourner lonesojourner 46-50, M 27 mins ago

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    It's hard to do this. I was diagnosed with PTSD some time ago, but have repressed the damage as much as possible. Now, it all comes back in spades & I'm at a loss. I suffer from...
    howlingfantods howlingfantods 22-25, F 14 mins ago

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    I have red hair. I've been told I look like a leprechaun but that was the day after I kicked my elementary school bully's *** at Walmart... It was thru text messaging also lol...
    Mechawaffle Mechawaffle 13-15, M 1 Response 15 hrs ago

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    I don't know how I let this happen and my heart wants to be hopeful but reality just doesn't make it seem likely! We live half a world apart and every opposite in our social...
    starstuff79 starstuff79 31-35, F 3 Responses 15 hrs ago

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    Projectgwyn101 is so fuking sexy please have me or I'll have you.
    hate4life hate4life 16-17, M 1 Response 13 hrs ago

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    Well, its my wifes family. They're ok , just, I have NOTHING in common with them. Whenever there is a get-together I feel SO out of place. One sis-in-law and her husband are very...
    boxersoff4u boxersoff4u 51-55, M 13 hrs ago

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    I'm part Greek and Italian, so genetically I have a god tier big nose. A lot of people, both men and women, are often embarrassed or at least self concious about their big noses...
    LisaBella88 LisaBella88 18-21, F 1 Response 12 hrs ago

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    I have a Diploma in Viticulture and Wine Production. I spent two years at TAFE college learning how to grow and process grapes to be crushed and turned into wine I have done three...
    candywhite26 candywhite26 56-60, M 1 Response 9 hrs ago

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    I’ve rewatched every episode of Naruto & Naruto Shippuden at least twice. Some I’ve watched three to ten times and my favorites have been watched over fifty times. And...
    NarutoShippudenFanGirl NarutoShippudenFanGirl 16-17, F 7 hrs ago

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    I lost my phone so I lost all my friends numbers. I don't really have any friends that want to hang out with me on Facebook. But still like every hour at home I go on my Facebook...
    kevin1080123 kevin1080123 18-21, M 7 hrs ago

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    Finally found the man who I would love to spend my life with. Gives me more happiness caring and understanding I have ever been given. He try's his best to be understanding of my...
    awmusic awmusic 22-25, F 1 Response 6 hrs ago

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    I haven't always had it.. It's only been around a little less than a year. I think I know what caused it though.. Iv'e been shaving since I was twelve years old, Iv'e always used...
    Khaos69 Khaos69 16-17, F 5 hrs ago

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    That's what I've been most complimented on. I used to work at a call center and customers I'd talk to would say stuff like "you have wonderful diction and speak so clearly." Or the...
    Handyman25 Handyman25 22-25, M 5 hrs ago

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    I don't have any real friends at school. They're all fake and have stabbed me in the back one time or another. That's why for my junior year, I plan on avoiding them all. So I took...
    SomethingGrimm SomethingGrimm 16-17, F 5 hrs ago

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    But I don't have a feminine side ;A; But there's a side I have. It's called a awesome side c:< :D And sir if you think if I would ever think I would have a feminine side I don...
    DysfunctionalPiano DysfunctionalPiano 13-15, F 5 hrs ago

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    I am in love with a Mormon. Our relationship has been full of ups and downs, from the very start. We can't be together because of his religion and his family, but I am so in love...
    wpsiatwin wpsiatwin 18-21, M 2 Responses 4 hrs ago

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    I have nightmares about everything that happened this past year. I dreamt that my aunt was going to do surgery on my breasts. It was a nightmare because my aunt is horrible and a...
    Acebo Acebo 18-21, F 1 Response 4 hrs ago

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    You know when you have them dreams that last about 5 seconds then BOOM you wake up and you kinda jump? Do These dreams have any meanings those anyone know? :)
    Emily97x Emily97x 16-17, F 3 Responses 4 hrs ago

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    I have wanted to ask my stylist for a women's hair style now for years, but I never seem to work up the nerve. I feel that I need to develop a relationship with her first before...
    tpoh tpoh 46-50, M 1 Response 4 hrs ago

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    I have IC and PFP. Had a total historetomey in the 90's at a early age. This was due to endometriosis. In the late 90's I became . Incontinant and never ever having any bladder...
    MaryBarbie MaryBarbie 46-50, F 3 hrs ago

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    I just found out today that i've been infected with the HSV-2. I told my best friend who is very supportive but I have yet to tell my boyfriend because he is at work and I'd like...
    erskii23 erskii23 18-21, F 1 Response 3 hrs ago

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    I've really needed to remind myself of the good things in my life these last few days so I decided to write a list of things that make me happy :) Getting snap chats or messages...
    Magdamay Magdamay 26-30, F 1 Response 2 hrs ago

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    Most people have seen the light not the dark
    killerinstinke killerinstinke 13-15, F 1 Response 2 hrs ago

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    It did not work out the way that I'd hoped. I won't name the site that I used, but I created a profile about 2 years ago (2012ish), and figured it give it a shot. I answered a...
    moonchile moonchile 26-30, F 2 hrs ago

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    Here is ten more things about me, which makes it 30 now I've posted. 1. I have never done any kind of drugs or narcotics 2. I love southern food, BBQ ribs of any kind 3. I stand...
    jjoe01 jjoe01 41-45, M 2 hrs ago

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