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I Have Juvenile Myoclonic Epilepsy

A Juvenile Myoclonic Epilepsy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Juvenile Myoclonic Epilepsy. You're not alone. 28 People

    I'm 18. I had myoclonic jerks in the mornings

    throughout years of barely sleeping since I was 14. In early 2012 i had my first seizure at home getting ready for a school trip. I was so upset because I had been wanting to learn to drive for so long like all my friends and now I'd have to wait a whole year. I cleared up my...
    ssssmills ssssmills 18-21, F May 21, 2014

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    I'm 22 years of age and have had Juvenile

    Myoclonic Epilepsy since I was formally diagnosed when I was fourteen. Before that, I was just having Abscence seizure so they weren't officially sure what kind of epilepsy I had. Then when I was fourteen, I had a Myoclonic jerk in my grandma's kitchen and threw the cereal box...
    Kida07 Kida07 22-25, F 1 Response Jul 10, 2014

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    Jme

    I am in high school and I was just recently diagnosed with JME after having a seizure in class. When I went back to school a few days later I talked to a teacher and asked her for work I had missed and let her know that my doctors told me to avoid computers until they did me EEG...
    Ambrielle Ambrielle 18-21 2 Responses Jan 30, 2012

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    I Was 11 When My Symptoms Began

    Puberty is such a weird time for most children. Our body are going to changes that come so rapidly. Well this was the time my twitches began. I thought my twitches were "normal" and that they happened to everyone. I would find that when i would wake up for school my arms would...
    sescoto sescoto 16-17 4 Responses Apr 10, 2012

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    My Jme Nightmare

    I was diagnosed with JME in seventh grade after having a seizure at school. I was put in the hospital and endured several days of humiliating tests and finally got a diagnosis that would change my life. That was seventeen years ago. Now I am thirty and the divorced mother of...
    kkoc1027 kkoc1027 26-30 1 Response Aug 13, 2012

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    I have had Epilepsy since I was 10 months old the doctors are not sure how I got it since it does not run in my family. And they can't find a reason why I have it. I had 8 a day...
    kmccrady12653 kmccrady12653 18-21, F 1 Response 4 days ago

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    Has anyone had much experience with having epilepsy and being pregnant or raising kids? I have a two year old step son, and I hate having seizures in front of him. My husband and I...
    sarbear82 sarbear82 18-21, F 1 Response 3 days ago

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    I've had epilepsy since I was 5
    goku0284 goku0284 26-30, M 1 Response Mar 9

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    I have about two seizures a week, and that's if I sleep well. Mine seem to happen if I had next to no sleep, or wake up throughout the night. I've been re-diagnosed with epilepsy...
    Bobbiin Bobbiin 18-21, F 3 Responses Mar 18

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    Does anyone else deal with getting bullied because of epilepsy and the side effect of hands shaking, because of my medication my hands are shaky and everyone notices and I always...
    kmccrady12653 kmccrady12653 18-21, F 2 Responses 1 day ago

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    since Wednesday night I experienced a seizure in the shower. normally I suffer grand mal seizures, drop fall and go unconcious but this seizure was scary. I didnt drop. I didnt...
    fOrEvErYoURs321 fOrEvErYoURs321 26-30, F 3 Responses Mar 11

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    Also, my neurologist never found on me anything that can be causing me to have seizures. I always get aura it's like a warning that I might start getting seizures. After my...
    abi805 abi805 22-25, F 5 Responses Mar 11

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    The man I love is abusive and I have been with him for about a year now see he is a alcoholic abusive guy but he is 36 I am 21 almost 22 I am also paralyzed and have epilepsy but...
    kmccrady12653 kmccrady12653 18-21, F 2 Responses 4 days ago

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    So basically most people who aren't that close to me don't know that I am a person who suffers from GAD (Generalized Anxiety Disorder). Some of the symptoms of GAD include...
    devinesoul94 devinesoul94 18-21, F 2 Responses 14 hrs ago

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    Girls with straight hair don't know how easy they have it. -_- The fact that I actually have to "do" my hair every morning in order for it to look it's best is annoying...
    Scoodaloop Scoodaloop 18-21, F 4 Responses 5 hrs ago

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    I am a 23 year old and was just charged with a DUI over the weekend. No one was hurt. No one else was involved. Just me. I always had a rule when driving after having drinks...
    lookahead49 lookahead49 22-25, M 2 Responses 5 hrs ago

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    I just got transferred from one community mental health center to another, and today the new psychiatrist asked me what I was diagnosed with during my last hospital stay. I said...
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    As I go about my daily run its my relationship that is running through my mind, how did it degrade to what its become? How could I make things better? Do I want to try and save it...
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    I have a few great friends that I have never met. Best friends* each message from them reminds me that I am not alone, but it hurts when all I need is a hug and no one is here...
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