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I Have Juvenile Myoclonic Epilepsy

A Juvenile Myoclonic Epilepsy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Juvenile Myoclonic Epilepsy. You're not alone. 25 People

    I'm 22 years of age and have had Juvenile

    Myoclonic Epilepsy since I was formally diagnosed when I was fourteen. Before that, I was just having Abscence seizure so they weren't officially sure what kind of epilepsy I had. Then when I was fourteen, I had a Myoclonic jerk in my grandma's kitchen and threw the cereal box...
    Kida07 Kida07 22-25, F 1 Response Jul 10

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    I Was 11 When My Symptoms Began

    Puberty is such a weird time for most children. Our body are going to changes that come so rapidly. Well this was the time my twitches began. I thought my twitches were "normal" and that they happened to everyone. I would find that when i would wake up for school my arms would...
    sescoto sescoto 16-17 4 Responses Apr 10, 2012

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    Jme

    I am in high school and I was just recently diagnosed with JME after having a seizure in class. When I went back to school a few days later I talked to a teacher and asked her for work I had missed and let her know that my doctors told me to avoid computers until they did me EEG...
    Ambrielle Ambrielle 18-21 2 Responses Jan 30, 2012

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    My Jme Nightmare

    I was diagnosed with JME in seventh grade after having a seizure at school. I was put in the hospital and endured several days of humiliating tests and finally got a diagnosis that would change my life. That was seventeen years ago. Now I am thirty and the divorced mother of...
    kkoc1027 kkoc1027 26-30 1 Response Aug 13, 2012

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    I'm 18. I had myoclonic jerks in the mornings

    throughout years of barely sleeping since I was 14. In early 2012 i had my first seizure at home getting ready for a school trip. I was so upset because I had been wanting to learn to drive for so long like all my friends and now I'd have to wait a whole year. I cleared up my...
    ssssmills ssssmills 18-21, F May 21

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    Related Experiences

    When I was 11(An estimate. it was after my 6th grade year was done) I was diagnosed with Epilepsy. For three years I was on a medication that failed every three months and each...
    Showjumper1 Showjumper1 18-21, F 1 Response Nov 30

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    i have had epilepsy since i was a young kid at school. thankfully i've not had any epileptic fits since i was a kid as it's been under control with my medication.
    GirlyAndrea1987 GirlyAndrea1987 26-30, M 2 Responses Nov 23

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    So I get to go to the neurologist tomorrow to go see about getting on some new medication because my seizures have kind of been out of control lately and it really scares me...
    BroadwayBound2014 BroadwayBound2014 18-21, F 4 Responses Dec 2

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    I am still so angry. I don't know how to process these feelings and they are eroding my adult life, holding me back from being a successful person. Mental illness runs in my...
    momshelle momshelle 26-30, F Dec 9

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    i was bus to the hospital friday night my boyfriend came home and found me unconscious on the floor when i get to the dr my blood pressure was 90 over 47 they have me taking 800...
    meemee09 meemee09 36-40, F 1 Response Dec 10

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    I am 19. I can't really do anything. I can't drive, I can't move out of my parents house. Medical history I had a small brain hemorrhage in December of 2012. They didn't do...
    CrystalLynn1995 CrystalLynn1995 18-21, F 2 Responses Dec 10

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    My abortion is tomorrow morning. I'm 21 and the father is 20. We've been friends since 4th grade and it was just a drunk one night stand. He said he would support whatever I...
    soitgoes810 soitgoes810 18-21, F 1 day ago

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    I don't know if this is really true. It is a bit absolute. Depending on how I feel and what I need, ....friendship is a word that can have many meanings. Like the untrue story that...
    tryingagainII tryingagainII 56-60, M 1 hr ago

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    You were so close to me when you held the door open I could smell the freshly smoked cigarette on your skin. If I would have been facing you i would have been dangerously close to...
    vivaciousspirit vivaciousspirit 22-25, F 1 hr ago

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    Had a conversation with a friend(aka niece's boyfriend). Me: It's been a while, so how are things back home? Friend: Well, nothing much, just having part time jobs for this moment...
    ZADoubleMesser ZADoubleMesser 22-25, F 40 mins ago

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    I may write more about this later. I have written about it in other posts. I like this story topic because it does force one to look at one's life from a different perspective.
    tryingagainII tryingagainII 56-60, M 1 hr ago

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    Last night I went to dinner with some very good friends who I hadn't seen in a while. Just sitting there waiting to order, my body temperature shot through the roof as I started...
    pnw21 pnw21 22-25, M 53 mins ago

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    its broken in pieces like that Chinese vase your grandmother keeps even though it was dropped by the nieces. picked up all the parts, one by one, held it in my hand and looked down...
    xxbrokenlinkxx xxbrokenlinkxx 22-25, M 19 mins ago

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    im new to this site but I was diagnosed with narcolepsy without cateplexy about a week ago. ive alqays had the symptoms but they have gotten worse over time. I started provigil...
    seclark8 seclark8 22-25, F 1 Response Nov 19

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    Hello everyone. I'm 51 yrs old and I suffer from Trichotillomania. I began pulling when I was about 8 years old. I am now almost completely bald. I have worn wigs, custom hair...
    SherBare SherBare 51-55, F Nov 19

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    Sometimes, I wonder why I do this. I go on here, or Twitter. Talk with people about pointless bs, and eventually, it all turns into a big moral crusade. Raging at people who'll...
    ShogunInTheShadows ShogunInTheShadows 22-25, M Nov 19

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    it's a never fleeting emotional roller coaster. One day I'm okay, the next all I want to do is bite into my wrist, like an apple and watch myself bleed. I don't have recent...
    RoyalxNicole RoyalxNicole 18-21, F 2 Responses Nov 19

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    I have a large internal system. my core fractured when I was 12. it is reweaving itself together now. my father was a Dr and did cruel things to me. he stopped my heart 9 or 10...
    susieladybug65 susieladybug65 56-60, F 2 Responses Nov 19

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    I've left my teenie bopper stalking crushes behind, but I still feel giddy inside when I think of my secret crush. Unfortunately, I still blush horribly so I have to avoid him at...
    ladybug76 ladybug76 36-40, F Nov 19

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    I feel like I'm the only girl on earth who can put their oldest kid on the bus, Take care of a six month old, invite three guys over and screw through out the day while my six...
    christnab8806 christnab8806 26-30, F 12 Responses Nov 19

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    Last weekend I attended my third Pilates class where a bendy ball was introduced. I did something wrong during the session and pulled my back. This continued all week but yesterday...
    jdansn jdansn 46-50, M Nov 19

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    It takes so much energy to be social. I get so nervous even when I have to pick a place to sit in a crowded area. I can only last for so long before I want to be by myself.
    Wsmith3 Wsmith3 22-25, M 1 Response Nov 19

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    ** I do not have Timothy Syndrome, my baby sister does, but she's too little to share her story ** My little sister was born a year and a month ago, premature. She was tiny and...
    allydoe allydoe 18-21, F Nov 19

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    Of course, I've already put up drawings from about 10 weeks ago on this page, but this is for anyone who actually cares and wants to see the things that I draw on a weekly basis...
    Akirasama Akirasama 18-21, M Nov 19

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    Anyone else prone to burst out laughing out of the blue because you remembered a random joke or funny moment that happened to you recently or ages ago? have you ever had a story...
    eriongtk eriongtk 26-30, M 8 Responses Nov 19

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    One of the main reasons I joined this sight was because of the vast number of people who had this disorder called trichotillomania. I don't remember when I started pulling...
    thxforthecoffe thxforthecoffe 13-15 1 Response Nov 19

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    I have nerve damage in both legs.. It worse when it cold. Anyone dealing with nerve damage and like to chat. It hard explaining to people that don't have nerve damage how much pain...
    horneybear79912 horneybear79912 36-40, M Nov 19

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    I lost my mom this January. actually she is my step mother but she raised me since I was 8 so she is my mom to me. her death was slow and painful and a very long time coming. I...
    omgeezus omgeezus 26-30, F 3 Responses Nov 19

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    I feel so angry right now! Its almost 4am and my companion and his kin are in the next room falling down drunk, blasting the radio so loud the cops should have been called by the...
    blad3runn3r blad3runn3r 31-35 1 Response Nov 19

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    So years ago, I met this guy at work. He was new, so to make him feel welcomed, I asked about his life. He was married with 1 child. I was single then, but I don't go after married...
    Holls215 Holls215 36-40, F 5 Responses Nov 19

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    I have a tattoo that says "Oblivion is inevitable."
    norwaybaby norwaybaby 16-17, F 1 Response Nov 19

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    True happiness is never having to say: "damn, i should have eaten that"...
    AntonioV AntonioV 46-50, M Nov 19

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    Hmm lets see.. My aspergers was pretty bad back when I was younger, but I managed to learn how to simply read situations from facial changes. I still have trouble finding my own...
    oracnid oracnid 16-17, M 2 Responses Nov 19

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    LOL well girls post I have never had a boyfriend but they never write I have never had a girlfriend :P well ive never had a girlfriend :D ive had like 20 boyfriends -.- but ive got...
    ILoveBilly ILoveBilly 16-17, F 1 Response Nov 19

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    I wonder how many guys have had crushes on me in school because seriously nobody ever made a move.. or it was me that didn't realize or made a wall around me..
    meandmythought meandmythought 26-30, F Nov 19

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    I feel like a fool I don't want to be a tool I have been hurt and I in turn have hurt I have loved deeply years ago but now I have run dry I am hesitant to even try All I do is...
    tan54321 tan54321 31-35, F 3 Responses Nov 19

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    itried all the surgery route and ended up with a metal plate in my neck with no change in my condition..suffer with numbness in my whole body...with spinal stenosis...finally a...
    derelwebb derelwebb 51-55, F Nov 19

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    This just happen yesterday: i am 5'3 i am 17. I go to the high school so i am the shortest girl there so i had a bet with my mom that i would have an A in health if not she got to...
    pAntie97 pAntie97 18-21, F 4 Responses Nov 19

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    My life will never be the same. In 2011, an extremely traumatic event happened to me and since then my life had never been the same. It's easiest to just list the thingsthat were...
    XxAlphaCentaurixX XxAlphaCentaurixX 26-30, T 1 Response Nov 19

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    Ok so, let me start when I was 5 years old. At the age of 5 I had size 5 adult shoes, I looked like a clown. My shoes stayed with my age until I reached 12 years old. Then my...
    ucha199 ucha199 18-21, M 2 Responses Nov 19

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    i cannot express the urgency to all ..to please try a chiropractor that uses alignment of the atlas of your spine and also uses an activator to align your spine ....out of the blue...
    derelwebb derelwebb 51-55, F Nov 19