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I Have Juvenile Myoclonic Epilepsy

A Juvenile Myoclonic Epilepsy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Juvenile Myoclonic Epilepsy. You're not alone. 27 People

    My Jme Nightmare

    I was diagnosed with JME in seventh grade after having a seizure at school. I was put in the hospital and endured several days of humiliating tests and finally got a diagnosis that would change my life. That was seventeen years ago. Now I am thirty and the divorced mother of...
    kkoc1027 kkoc1027 26-30 1 Response Aug 13, 2012

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    Jme

    I am in high school and I was just recently diagnosed with JME after having a seizure in class. When I went back to school a few days later I talked to a teacher and asked her for work I had missed and let her know that my doctors told me to avoid computers until they did me EEG...
    Ambrielle Ambrielle 18-21 2 Responses Jan 30, 2012

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    I Was 11 When My Symptoms Began

    Puberty is such a weird time for most children. Our body are going to changes that come so rapidly. Well this was the time my twitches began. I thought my twitches were "normal" and that they happened to everyone. I would find that when i would wake up for school my arms would...
    sescoto sescoto 16-17 4 Responses Apr 10, 2012

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    I'm 22 years of age and have had Juvenile

    Myoclonic Epilepsy since I was formally diagnosed when I was fourteen. Before that, I was just having Abscence seizure so they weren't officially sure what kind of epilepsy I had. Then when I was fourteen, I had a Myoclonic jerk in my grandma's kitchen and threw the cereal box...
    Kida07 Kida07 22-25, F 1 Response Jul 10, 2014

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    I'm 18. I had myoclonic jerks in the mornings

    throughout years of barely sleeping since I was 14. In early 2012 i had my first seizure at home getting ready for a school trip. I was so upset because I had been wanting to learn to drive for so long like all my friends and now I'd have to wait a whole year. I cleared up my...
    ssssmills ssssmills 18-21, F May 21, 2014

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    Related Experiences

    I was diagnosed with epilepsy 5 years ago. However, it is still a very touchy subject. I believe it is still very touchy with me because of my age when being diagnosed many people...
    sammimel sammimel 18-21, F 1 Response Feb 19

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    I have ptsd... I was norn in 1974.. in care from day 1. I have been having flash backs from when I was in care for 1st yr of my life.. psycologist said it isnt my mind playing...
    stormricks stormricks 36-40, F 2 Responses Feb 5

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    Sooo....I got my phone taken away and haven't been on for several weeks. I got my laptop fixed a few days ago (which I'm ecstatic about :D) and now I'm here. I NEVER use the web...
    queenettejeanette queenettejeanette 13-15, F 2 Responses Feb 5

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    I have generalised tonic-clonic (grand mal) seizures about once a month. Do others that have these seizures feel like your memory, alertness and ability to process information is...
    anna8something anna8something 36-40, F 1 Response Feb 6

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    I wrote a real "humdinger" of a true story here about an event that happened to me many years ago. it was about sleep paralysis and explained a lot about the stages of sleep. it...
    jayciedubb jayciedubb 46-50, M Feb 9

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    After having a seizure a few days ago and coming out of it realising I was so close to cracking my head open from the impact of the fall you would think people would have a level...
    sammimel sammimel 18-21, F a week ago

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    He busted my lip several nights ago. He hit me hard when he was drunk and stoned. He promised me he would no longer get drunk and stoned because of his volatile nonsensical...
    Calmclarity Calmclarity 26-30 4 days ago

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    Yeah. This group makes no sense. Either the guy is an ******* or it's obvious that he--just like everyone else--has limits so this shouldn't be stated really. I see a lot of...
    RationalCutie RationalCutie 22-25, F 2 Responses 1 day ago

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    This is honestly the best console I've owned. It's the perfect system for a guy like me who used to be a more serious gamer. But, a lot of the "serious" games just got old with all...
    Frost119 Frost119 22-25, M 1 hr ago

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    I have been with my husband for almost 11 years and we have two beautiful children. He has been cheating on me for the past six months. It's pretty crazy what goes on in your head...
    sunnygirl29 sunnygirl29 26-30, F 2 hrs ago

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    Its not the most badass thing or i dont think it counts as breaking the law more like trouble with the law.But i was 12 (almost 13) and i was with my brother (10 almost 11) and our...
    HipHopMusic HipHopMusic 22-25, M 1 hr ago

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    This is a terrifying and violating experience and sometimes violent. I have been woken to what sounds like voices in my ear and found i could not move, as if someone extremely...
    LadySarahNight LadySarahNight 18-21, F 43 mins ago

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    I only have my tongue pierced but I'm wanting to get microdermals on my hip.. but I heard they have to cut your skin so now I'm like.. ehhhh ._____.
    CandiceH14 CandiceH14 18-21, F 30 mins ago

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    And it's these things that I have no regrets about! I'm pretty much done with swearing off of things. Idk who I'll be in the next ten years.
    Allforaview Allforaview 18-21, F 2 hrs ago

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    Have Had Over 20 Surgeries
    goodnites1091 goodnites1091 22-25, M 2 hrs ago

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    i think all of us have one :) a specific one, several, extreme, vanilla-ish... not wrong right?
    graciousindifference29 graciousindifference29 26-30, F 7 Responses 2 hrs ago

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    Always Have Room For More Friends
    goodnites1091 goodnites1091 22-25, M 2 hrs ago

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    I have never even hugged a girl except my mum. I'm 17
    J7442 J7442 16-17, M 1 Response 1 hr ago

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    I have work in four hours and I can't sleep the treatment was working for about a week but for the past two days I can't fall asleep I've only slept for about five hours up to this...
    SunshineLaura SunshineLaura 18-21, F 53 mins ago

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    that people break into my house and I do everything in my power to try and stop them from killing my family and I always fail and only one person lives besides me. then when I wake...
    slappadabba420 slappadabba420 18-21, F 41 mins ago

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    I have a personality disorder that makes it to where I find it nearly impossible to ever fall in love with anyone. I've spent the past 10 years trying to find someone that I've...
    nryoung nryoung 16-17, M 1 Response Feb 1

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    I use to do Japanese and Music, and I loved it, but then i moved to other subjects in the last year of year 10. Mom wasn't very happy, and when my uncle said that i was talented...
    papparrazzi papparrazzi 16-17, F Feb 1

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    they say i have a nice voice, but i cant sing for sh*t.
    andylovesyou23 andylovesyou23 13-15, M 3 Responses Feb 1

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    Been talking to this woman on here for several days and I have a huge crush on her. She doesn't live near me but I don't care. Is it wrong?
    dontgitbit dontgitbit 26-30, M Feb 1

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    Best friend: My stomach hurts, I think I may have constipation. Me: Meh. *shrugs* You've always been full of sh1t.
    TheMisanthropeOtaku TheMisanthropeOtaku 18-21, M 2 Responses Feb 1

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    I have horrible vision. I got glasses when I was young, around 6 or so. I am nearsighted, but I wear contacts normally.
    IngensImpetum IngensImpetum 18-21, M 1 Response Feb 1

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    It was so embarrassing!!! I know i have a poochy belly but I did not want a girl WHO LIVES ON MY STREET saying anything like that :(
    Jack4life101 Jack4life101 13-15, M Feb 1

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    Don't you find girls who are mostly friends with guys always the ones to get a boyfriend as soon as they are single? They always seem to give the reason that they have so many guy...
    jolley2k jolley2k 18-21, M Feb 1

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    iLove Too It seems I'm in sync with my iPhone, when I link to sync the updates, we are symbiotically in the same biome, and there's more, just wait… I take photos to try and...
    AaronLA AaronLA 31-35, M Feb 1

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    iLove Too It seems I'm in sync with my iPhone, when I link to sync the updates, we are symbiotically in the same biome, and there's more, just wait… I take photos to try and...
    AaronLA AaronLA 31-35, M Feb 1

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    -Understand where people are coming from -Learn from your mistakes -Don't beat yourself up all the time or be too hard on yourself -Be yourself -Don't live in the past -don't...
    torr62 torr62 13-15, F 1 Response Feb 1

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    Ok I am looking for people online right now who have PTSD. I have never spoke to my doctor about this but I just now jumped up out of sleep scared out of my mind and my heart is...
    sailorwinters sailorwinters 41-45, F 5 Responses Feb 1

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    But still hang with my ex (who I was friends with LONG before we dated) ...and I miss him. Hanging with him brings back so many memories and it doesn't help that I'm close to his...
    CBlaze22 CBlaze22 18-21 2 Responses Feb 1

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    I'm almost 33 and have never had a "real" girlfriend. I say "real" because I had a girlfriend in high school, but you're so young and it's such a learning experience can that be...
    dirtydan3 dirtydan3 26-30 Feb 1

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    I remember as i was a small baby my brothers whom at that time was studied in high school has reposing on the ground during his homework and played whit his feet as his knee was...
    godfathersun godfathersun 41-45, M Feb 1

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    Worst pain tonight. Came out of nowhere. Starts in my face at my cheeks and wraps around to the back of my head. Anyone else have this problem? Sinus aches too?
    katariffik katariffik 31-35, F 1 Response Feb 1

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    i have 2 stepsisters ages 21 and 19, i have a older full brother(17). then, i have 2 half siblings from my moms ex boyfriend, ages 13 and 7. i have a half sister from my dad and...
    andylovesyou23 andylovesyou23 13-15, M Feb 1

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    my eldest sister disappeared out of my life when I was 8, she ran away after I found a boy in her room.she moved back home on and off for years, she tried chocking me to death when...
    xchloeannex xchloeannex 16-17, F Feb 1

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    I can finally say that I am fully natural. Right now its kinda weird waking up in the morning and seeing a big puff ball on my head. i am not sure what hare type i have when wet it...
    ZariaRashay ZariaRashay 18-21, F 2 Responses Feb 1

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    I am 16 years old and I have poland syndrome. I was diagnosed when I was old enough to sit up by myself, I have coped with this for a long time, I was promised my reconstructive...
    Blondiee137 Blondiee137 16-17, F 2 Responses Feb 1

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    Like tonight, I have so much on my mind no way can I go to sleep. Then to make matters worse loneliness rears it's ugly head, starts gnawing at my insides,,, just had to vent
    bikeriam bikeriam 51-55, M 1 Response Feb 1