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I Have Juvenile Myoclonic Epilepsy

A Juvenile Myoclonic Epilepsy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Juvenile Myoclonic Epilepsy. You're not alone. 26 People

    Jme

    I am in high school and I was just recently diagnosed with JME after having a seizure in class. When I went back to school a few days later I talked to a teacher and asked her for work I had missed and let her know that my doctors told me to avoid computers until they did me EEG...
    Ambrielle Ambrielle 18-21 2 Responses Jan 30, 2012

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    My Jme Nightmare

    I was diagnosed with JME in seventh grade after having a seizure at school. I was put in the hospital and endured several days of humiliating tests and finally got a diagnosis that would change my life. That was seventeen years ago. Now I am thirty and the divorced mother of...
    kkoc1027 kkoc1027 26-30 1 Response Aug 13, 2012

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    I Was 11 When My Symptoms Began

    Puberty is such a weird time for most children. Our body are going to changes that come so rapidly. Well this was the time my twitches began. I thought my twitches were "normal" and that they happened to everyone. I would find that when i would wake up for school my arms would...
    sescoto sescoto 16-17 4 Responses Apr 10, 2012

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    I'm 18. I had myoclonic jerks in the mornings

    throughout years of barely sleeping since I was 14. In early 2012 i had my first seizure at home getting ready for a school trip. I was so upset because I had been wanting to learn to drive for so long like all my friends and now I'd have to wait a whole year. I cleared up my...
    ssssmills ssssmills 18-21, F May 21, 2014

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    I'm 22 years of age and have had Juvenile

    Myoclonic Epilepsy since I was formally diagnosed when I was fourteen. Before that, I was just having Abscence seizure so they weren't officially sure what kind of epilepsy I had. Then when I was fourteen, I had a Myoclonic jerk in my grandma's kitchen and threw the cereal box...
    Kida07 Kida07 22-25, F 1 Response Jul 10, 2014

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    Related Experiences

    Me to Drs. Don't know why or what caused me by having epilepsy but I have been clear for 1 month of them and I'm kind of. Proud of myself for that
    jannyjane jannyjane 18-21, F 2 Responses Jan 3

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    Since I was 8 or 9 years old. I'd have these strange feelings of being alone. It did not matter how many people were around, I was isolated from them. It was not scary just freaky...
    Scott1954 Scott1954 56-60, M Jan 12

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    I guess I have had NF since I was born. Not sure when the fibromas first appeared. Doctors were stumped and we were just left in limbo. I we were not to concerned, well mom worried...
    Scott1954 Scott1954 56-60, M 2 Responses Jan 12

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    Its not so much scared, its more worried. We're going to have a natural birth when we get pregnant. I'm kind of high risk (I have epilepsy and anemia) so there's one thing to be...
    WildFlowerChild19 WildFlowerChild19 18-21, F Jan 4

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    All I want is to try and decrease my dose but every time I see the neurologist they increase it. I have another appointment in two months but I don't want to go.
    niraken niraken 26-30, F 3 Responses Jan 13

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    Hi everyone - I've kinda been floating around this site for a while, finally decided to make myself a profile ;-) My name is Lyndsey, & I've been looking to see if I was the only...
    PhoenixFire777 PhoenixFire777 18-21, F 3 Responses Jan 20

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    Who in this group has a MONITORED EEG? Key word MONITORED. That is the ONLY way to asure of having a seizure episode recorded so your doctor can see where the seizures arise from...
    Scott1954 Scott1954 56-60, M 3 Responses Jan 22

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    I have Lupus and was just diagnosed with BP. I have allowed myself 48 hours of a pity party and now I am hitting the floor off and running with a positive attitude. I am refusing...
    silverlining29 silverlining29 41-45, F 1 Response Jan 23

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    med; levels spike. today was bad day, once things got going I knew what was wrong. my Dilantin level was too high. I was drunk most of day. this has happened before so I skipped...
    Scott1954 Scott1954 56-60, M 1 Response 3 days ago

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    I have the friends I grew up with still in my life. I have the friends I worked with. We send each other gifts or cards, we text and will always stay in touch. But miles have...
    rowenbumble rowenbumble 56-60, F 1 Response 58 mins ago

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    My mother came for a visit to my house 5 years ago and has yet to leave... No seriously. She has been one of the most clingy, needy and emotionally abusive people that I've ever...
    tajadaja tajadaja 31-35, F 11 hrs ago

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    I can never sleep well. I always wake up randomly during the night. I also can't sleep unless i'm really cold, but i still have to have a blanket or two on me. I also have to be...
    white701 white701 18-21, M 5 hrs ago

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    Guys, this (excuse my language) **** is not something to play with. It's not something for little kids and random people to do just for fun. It's meant to be taken maturely, and...
    HannahMarieX HannahMarieX 18-21 3 hrs ago

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    What the heck? I think someone who is reading some of my stories and comments on other stories has been flagging the replying comments. But I don’t know for sure. Comments by...
    Sarahbellas Sarahbellas 26-30, F 1 hr ago

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    I was born on the Philippines. As a baby I was adopted by my Swiss parents. I've always been told I've been a foundling and my biological parents probably died in a storm or...
    mishale80 mishale80 31-35, F 1 Response 9 hrs ago

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    Holy cow. I start my new high school on monday. Im nervous af!. I dont want to be noticed , but of course i have to go and be 6 foot 4 inches. So not being seen isnt easy for me...
    YungKhroniK YungKhroniK 13-15, M 8 hrs ago

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    I always wanted to have a relationship. The longest one was about 9 months thats it. It would be so nice to have one.
    igdesigner igdesigner 18-21, M 8 hrs ago

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    So I have PC and to be honest its not that bad but ocassionaly I get alittle depressed, nothing to bad. The main problem is that I'm insecure with girls and that's causing...
    sweefp sweefp 16-17 7 hrs ago

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    It makes me sad to see so much hate because a lot of people do not have perspective and/or understanding. I always feel the need to defend others, to help them be understood but I...
    topsykrit topsykrit 18-21, F 6 hrs ago

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    I always will love alvin and the chipmunks Simon was always my favorite when I looked at him for the first time I knew it was meant to be me and him I often got bullied because of...
    Rudolphlover28 Rudolphlover28 18-21, F 1 Response 6 hrs ago

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    I'm trying to overcome it. It's difficult but not 100% impossible. I will get there, it takes time but it is making my new relationship hard. Something has triggered it. I've...
    topsykrit topsykrit 18-21, F 2 Responses 6 hrs ago

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    ... by absolutely no one. I have a terrible singing voice. But I'm fantastic at lip-syncing :D
    lulubees lulubees 18-21, F 4 hrs ago

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    Ok so for the past week or so my dreams have been sooooo vivid! And one of my dogs has been in every single one of them ! They have been weird dreams that don't make any sense! In...
    Kay92kay Kay92kay 22-25, F 2 Responses 3 hrs ago

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    The evidence is everywhere--the global climate is changing and we have lots to do with it. Greedy jerks like the Koch brothers are committing crimes against humanity by actively...
    AboveTheTrees AboveTheTrees 46-50, F 2 hrs ago

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    I'm a 34 G now. My breasts have become larger as I have developed a little belly and put on some weight.
    rachelle87 rachelle87 26-30, F 2 hrs ago

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    I have a tibial plateau fracture. I have 10 more weeks of no weight bearing and I might lose my mind
    susanj34 susanj34 36-40, F 2 Responses 2 hrs ago

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    I have a strict morning routine. As soon as I wake, I go into the walkin closet of my soul. I pick out a smile for my face, a thankfulness for my heart, a helpful task for my hands...
    GJOFJ3 GJOFJ3 56-60, M 27 mins ago

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    I have earned multiple college degrees and in several different areas. I have dual degrees when it comes to bachelors and masters degrees. Also, I have a law degree. For those...
    middleagedfemalemom middleagedfemalemom 41-45, F 23 mins ago

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    Can't sleep at all. People standing outside house staring but have no facial features. Keeping curtains closed.
    woodsetton woodsetton 22-25, F 11 hrs ago

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    What does a glance mean? It's amazing how heavily a pair of eyes can influence a thought process. The ride of emotions and possibilities, all very entertaining to ponder on. I know...
    s0undgarden s0undgarden 16-17, M 10 hrs ago

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    I have a soft voice. It resounds with a slight huskiness. I am never shrill. My accent is particularly Niçoise. A mixture of French, Provençal, and Italian.
    Astrucbmt Astrucbmt 22-25, F 1 Response 9 hrs ago

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    I have visited 14 countries and I love travelling!!
    linbus linbus 31-35, F 8 hrs ago

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    I am so many nick names my name is Emily so I have been call em emi Emstar E bunny m an m and so many most
    wedgiefan247 wedgiefan247 16-17, F 8 hrs ago

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    He was only 36 years old and left two small children behind. He dies only two weeks after he was first diagnosed, he didn't have a chance. He was a quite and sweet person who was...
    Amillionstars Amillionstars 36-40 7 hrs ago

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    I often have dream deja vu. I visit a place in a dream, far different than waking reality, and later on in life whether it be in a few weeks, months or years I feel I dream of...
    topsykrit topsykrit 18-21, F 1 Response 7 hrs ago

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    I have a few but it differs to who is talking to me. (Wyatt) y, W, and my moms personal nickname Button.
    Sesshomaru031 Sesshomaru031 16-17, M 1 Response 6 hrs ago

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    Well I had another account which I deleted and then made this one, my old account was "Catmando05" so of yous may have read my posts on there before I deleted it. My ex is still in...
    domancat domancat 22-25, F 5 hrs ago

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    I have. Against flying insects. Flies I can handle, but everything else... like bees, wasps... even butterflies are a horror for me. It's worse inside than outside the house. But...
    Brokenshadowwings Brokenshadowwings 31-35, F 2 Responses 5 hrs ago

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    soo broken i cant feel anymore exhausted from tears i ask why they lie where are such girls like the fairytales all i have seen mostly are not ever close to those fairy tales...
    DevilPARADISE DevilPARADISE 18-21, M 2 Responses 5 hrs ago

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    sometimes I wonder what life would be like if my brushes with death had happened. would my family be in a better place? would my children have better lives? would the everyday...
    tsnuggles tsnuggles 36-40, F 4 hrs ago

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