Post

I Have Kienbock's Disease

A Kienbock's Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Kienbock's Disease. You're not alone. 146 People

    I Need A Joint To Soothe My Joints

    In the past 4 years I have had 2 total hip replacement surgeries, one revision surgery bc of a loose stem, and just recently bilateral hip revision surgery due to metallosis, all caused by avascular necrosis. Hips seem pretty stable for now, but guess what?! Now I've been...
    nickyrap nickyrap 31-35, M 1 Response Sep 9, 2013

    Your Response

    Cancel

    How Can This Be?

    I am in shock today. Just had an appointment and was informed of Kienbocks Disease. Following an MRI and my follow up appointment today I've been told Keinbock's and now being sent to a hand specialist. How can this have happened so fast? Just 4 1/2 weeks ago I was hit from...
    lalawithakiss lalawithakiss 41-45, F Sep 19, 2013

    Your Response

    Cancel

    I Have Had Keinbocks And I Am About To Have A Wrist Fusion

    I was diagnosed with Keinbocks five and a half years ago. My doctor thought it was a repetitive strain injury, but an MRI diagnosed Keinbocks. I was fortunate at the time as my consultant was a specialist in the disease, so at least I had a doctor who knew what he was doing...
    photomania photomania 56-60 1 Response May 21, 2011

    Your Response

    Cancel

    I Had Kienbocks For 10 Years.

    I have stage 4 keinbocks. I was 12 when the pain started and they are telling me I need surgery to fuse my right wrist. But they also tell me they can't garentee that it will help so i've been putting it off. Over the last couple of months my left wrist is starting to hurt. I'm...
    hmazc hmazc 31-35, F Mar 26, 2013

    Your Response

    Cancel

    My Kienbock'S Disease Is Now "Cured"

    I was diagnosed with Stage 1 Kienbock's disease after getting an mri of my right wrist about 2 months ago. In the mri, my lunate bone was bright white in some of the images, meaning that the bone was in trouble and was producing fluid inside the bone. However, my kienbocks was...
    boohoodman boohoodman 18-21 4 Responses Apr 6, 2013

    Your Response

    Cancel

    Kienbock's Killed My Career Dreams....

    I was 25 when I began having symptoms of Kienbock's; however, I was also pregnant at the time, so my OB told me that it was probably only CTS during my pregnancy. Apparently lots of women have this. After giving birth, my symptoms vanished. My daughter was about 15 months old...
    rstabler122079 rstabler122079 31-35, F 4 Responses Jan 14, 2013

    Your Response

    Cancel

    Hi , I am 18 years and 2 months ago i have been

    diagnosed with kienbocks disease.I have been crushed since that day they told me. I have been seeing a specialist and was told to put a cast for 3 months and i havent yet been told what stage i am at. is this normal??
    yess0725 yess0725 18-21, F 1 Response Jun 3

    Your Response

    Cancel

    Not Very Handy

    IN MY EFFORTS TO IGNORE THIS DISEASE I WENT TO FOUR DR'S... THREE OF WHICH DIAGNOSED ME WITH KIENBOCKS. I FLEW TO THE OTHER SIDE OF AUSTRALIA TO SEE THE GURU, HAD THE BONE SHORTENING THING DONE, NOW TWELVE MONTHS LATER, I AM IN PAIN ALL DAY AND NIGHT. CAN'T DO THE THINGS I HAVE...
    slaterbug09 slaterbug09 41-45 1 Response Feb 14, 2011

    Your Response

    Cancel

    Kienbock's Disease At Age 13 :(

    I was sent to a children's specialist in 2003. I was told that I had Keinbock's Disease. I had a radial shortening surgery to help take the pressure off of my bones. The doctor told me that when I was older I would have to have a bone graph to save it. A year and a half later I...
    jeosborne jeosborne 22-25, F 2 Responses Sep 24, 2013

    Your Response

    Cancel

    My Struggle With Kienbock's

    It all started when I was 12. I was playing basketball and knew something wasn't right. I figured that I just had a stress fracture or something like that. The pain just kept getting more severe as time went on and by softball season the pain was intolerable. I was at home...
    Cmau32 Cmau32 16-17, F Oct 27, 2013

    Your Response

    Cancel

    Keinbocks Disease

    I have just recently been diagnosed with Keinbocks and I am schelduled to go for surgery on this thurs. 5-13-10.. Im a little nervous and would like any advice or any understanding on this that anyone may have:) Thanks
    Blewis0003 Blewis0003 31-35, F May 9, 2010

    Your Response

    Cancel

    My Story At Just 18

    I'm 18 and just went to the doctor 2 days ago. They took x-rays and I will find out the results tomorrow. For last 3-4 years I've had wrist pain including: Pain in the top center of my left wrist ONLY when bending it upward or pressure such as push ups or pushing on my lower palm...
    USAFwife2011 USAFwife2011 18-21, F 3 Responses Mar 14, 2012

    Your Response

    Cancel

    Hello Everyone

    hope you excuse my writing for a possible vcabulary or grammar mistakes because English is my third language and I still learning hard. my name is kalouse and I am serving in the Army for over two years now. Two full years with pain and loss of hope. I did fall on the snow...
    kalouse kalouse 31-35, M Apr 27, 2010

    Your Response

    Cancel

    My So Far Successful Story

    hello all! my name is chelsi. i'm 23 years old and was diagnosed with kienbocks in february of 2012. i had fallen in march of 2011, bracing the fall with my right and dominant hand. after seeing my primary doctor and getting nothing on the xray, he determined my wrist pain was...
    chelsirose chelsirose 22-25, F 1 Response Jul 1, 2012

    Your Response

    Cancel

    Wrist Fusion :(

    I found out I had kienbocks disease about 10 years ago when I was 15. I was having a lot of pain and weakness in my wrist. I had radial shortening surgery to return more blood supply to my lunate bone. I saw a wrist specialist about a year after my surgery who said everything was...
    aingle aingle 26-30, F 7 Responses Jan 26, 2010

    Your Response

    Cancel

    Suprise! You Have Something You Have Never Heard Of Before.

    I am 39 years old. I was told I have Keinbock's Disease a week and a half ago. My wrist had been hurting for a while and I finally went to a doctor. This was in April. He thought that I had tendonitis. He gave me a shot, some anti-inflamation pills and told me to wear a...
    JJSMAMA JJSMAMA 36-40 3 Responses Jul 3, 2012

    Your Response

    Cancel

    Recently Been Diagnosed

    My story is a little different May 2012 I was working as a NAC at the local hospital when my patient grabbed my wrist and twisted it and pulled it in every direction. I then was put on light duty and a splint then I got jerked around by several doctors and was told I was stupid...
    mageteddy2 mageteddy2 36-40, F 1 Response Feb 25, 2013

    Your Response

    Cancel

    My son who is 15 has been diagnosed with

    kienbochs disease - they have put ha wrist in a cars and are hoping that the blod flow to the bones will return normally - we are in New Zealand and it sounds like no one too sure what to do - I am really worried - his other wrist is also in pain so we are getting an MRI...
    raegem raegem 46-50, F Jul 20

    Your Response

    Cancel

    My nightmare happenen March 2001,

    I was doing my job as a cake decorator when my world began to fall apart. I had injured my wrist my right hand which is also my writing hand, and for a yr the workers comp dr did this or that. Well after a yr I was finally sent to see a real dr and my world as I knew it was...
    Mm2metn Mm2metn 46-50, F Feb 24

    Your Response

    Cancel

    I Have Kd In My Right Dominant Hand.

    I have just completed my second attempt at an STT fusion.  The bones didn't fuse and the arthritic changes surrounding the bones of the STT joint has accelerated the affects of the KD.  I am currently at Stage III considering the lunate but now Stage IV because of the...
    geekgirl2000 geekgirl2000 46-50, F 4 Responses Feb 18, 2010

    Your Response

    Cancel

    Will The Pain Ever Go Away...?

    At 16 I was diagnosed with Kienbock's Disease. It started about 2 years ago with pain and weakness in my right wrist. After many doctor appointments and PT (I was continuosly being treated for tendonitis) the pain wasn't subsiding. I went to yet another doctor and discovered the...
    NikBrimeyer NikBrimeyer 22-25, F 8 Responses Jan 22, 2012

    Your Response

    Cancel

    I urge anyone who has Kienbocks Disease in the

    early stages to have surgery asap!!!! I developed it with no other explanation than overuse or genetics. I didn't fall or have some other kind of injury to the wrist. I started having decreased grip strength and pain in my right dominant wrist, so I went to a doctor about it. At...
    amcquiston amcquiston 31-35, F Dec 15, 2013

    Your Response

    Cancel

    Diagnosed At 55 With Kienboch's And Needing Direction

    I have had pain in my hand and wrist for the past 7 months. I went to my primary care physician who said I had tendonitis and prescribed Naprosyn for a month. An x-ray was taken at his office and I was told there was not any fractures and just a little bit of arthritis.  After a...
    penwood1185 penwood1185 51-55 4 Responses Aug 31, 2011

    Your Response

    Cancel

    It'S Back...

    Diagnosed in 2001. Had several surgeries that finally ended with a proximal row carpectomy. I've been able to get along with the very limited range of motion and occasional pain for 12 years. Until Friday night. Something happened and I don't know what. I placed my hand down to...
    waukeejamie waukeejamie 36-40, M 2 Responses Jul 28, 2013

    Your Response

    Cancel

    Frustrated Trying To Find A Specialist

    I developed significant left wrist/hand pain 3/11/11/ while at my fathers death bed. No known injury. I thought it was a terrible arthritis flare. I seen my rhumatologist who injectted it with no x-ray also thinking it was an arthritis flare, The pain did not improve, I went to...
    nelsenlori nelsenlori 46-50 3 Responses Jul 24, 2011

    Your Response

    Cancel

    I Have Kienbock's

    i am 16 years old and i was told i have kienbocks disease in february 2011. in december 2009 my wrist starting hurting out of no where. i thought it was just pains from different changes in weather. but the pain lasted all day for about 2 days. then it had gotten worse and it...
    riss04 riss04 16-17, F 2 Responses Jun 14, 2011

    Your Response

    Cancel

    Unsure If I Have It

    I'm scheduled for an MRI to "rule out Kienbock's" on Friday but, from what I've read, I don't believe I have it. It's in my blood to do research, however. I have a sharp pain on a bone near my wrist, down from my index finger (doesn't seem like the Lunate). I get a sharp...
    jachenault10 jachenault10 26-30 3 Responses Mar 13, 2012

    Your Response

    Cancel

    My Kienbock'S

    I was diagnosed with Kienbock's about 10 years ago after having wrist pain for a few months. I had to wear a brace for a year (not lifting more than 2 lbs) to see if it would heal by itself. It didn't so my Dr. told me the best thing to do was to have radial shortening surgery...
    mingus76 mingus76 36-40 May 17, 2013

    Your Response

    Cancel

    My name is Alexia. I am 22 years old

    and come from Sweden. I have had problems with my right wrist (I'm right-handed) since I was 15 when I injured it playing volleyball. I first had a big surgery to repair what they thought was a torn ligament. After 8 weeks in a cast, it was still painful and after years of scans...
    lexfish lexfish 22-25, F 2 Responses Dec 4, 2013

    Your Response

    Cancel

    Just Found Out Yesterday That I Have Keinbock's Diease...

    Yesterday, I found out that I have this Kienbock's Disease - not only in one wrist but both.   I am little confused as to how this happened.  I have never damaged my wrist in anyway.  I heard and read that this is very rare and in less than 200,000 people and even less than...
    bidosmom bidosmom 31-35 2 Responses Feb 10, 2011

    Your Response

    Cancel

    I Have Keinbock's Disease

    I was diagnosed when I was 16. I've been living with kienbock's in my dominant wrist for 18 years now. and I don't mean to sound depressing, but it just continues to get worse with time. I had the radial shortening when I was 20. the hope at the time was to unload the burden...
    fivefootshorty fivefootshorty 31-35, F 2 Responses Oct 31, 2013

    Your Response

    Cancel

    Vascularized Bone Graft

    I was diagnosed in March, and about a week and a half later was in surgery for a radial osteotemy. 8 months later the first operation did not work to fix it. I will be having a vascularized bone graft in a few weeks. Has anyone had this done who can tell me what type of pain to...
    jessml jessml 22-25 1 Response Nov 23, 2011

    Your Response

    Cancel

    Well I find out tommarow at what stage my

    disease😁doctor said stage 2 but after seeing other xrays I believe it's stage 3 nervous about surgery and want them to skip the four first surgeries and go stright to fusion so I guess I will find out!😳
    jeffbelcher jeffbelcher 41-45, M Jun 30

    Your Response

    Cancel

    Question

    It's been almost a year since I had a radial shortening done on my right arm. I've been generally pain-free, but have noticed a few odd things. My wrist has decided it wants to start clicking and my wrist has been giving out. I dropped a bowl of salad and fork out of nowhere in...
    chelsirose chelsirose 22-25, F 1 Response Mar 6, 2013

    Your Response

    Cancel

    I have had my right hand fixed three times my

    foot twice my shoulder once and my knee three time I was always told that my ligaments were bad but a year ago my left hand started to hurt but I put it off till a few months ago they told me again it was a ligament and sent me to my hand dr who had me go in for a miner surgery...
    Blue9532 Blue9532 31-35, F Dec 22, 2013

    Your Response

    Cancel

    Keinbocks 3b

    Hi, I am trying to avoid surgery at all costs. the dr was not gung ho about doing it. he told me it was a big commitment, that i would be in a cast for a year etc. But this pain is ridiculous. I banged it today and I hit the roof. Is anyone else here avoiding surgery?
    bugsnh bugsnh 36-40 3 Responses Apr 9, 2012

    Your Response

    Cancel

    Keinbocks Now A Broken Wrist!

    Hi, I am hoping to find someone in the same situation as myself. I have had Keinbock's disease for around 10 years, it was at stage 3, but I was coping well and held down a full time job, as well as being a Mum and wife. A few days agouti slipped over and broke my wrist in 3...
    laurah78 laurah78 31-35 1 Response Feb 3, 2013

    Your Response

    Cancel

    Question

    i have been having constant wrist pain in both wrists my right is a lil more painful most of the time though. everytime i move them they pop/crack multiple times. Idk what it is i havent been to a doctor bc frankly i dont like going lol. they are constantly hurting to where i...
    Kimmo89 Kimmo89 22-25 2 Responses May 15, 2013

    Your Response

    Cancel

    Looking For Hand Specialist What Knows About Kienbock's

    hello.          i had kienbock's disease since i was 21, now 37. the doc i have been  seeing told me i had the disease in both wrists. the only thing i had is painkillers and false promises. the doc told me about lots of...
    paul0121 paul0121 36-40, M 2 Responses Aug 27, 2010

    Your Response

    Cancel

    Hold Back On Any Surgery

    I was diagnosed with keinbocks in 1987 and have carried on as normal using my wrist every day since then. About ten years ago I had an MRI (refusing xrays - not good again and again) and the lunate was in four fragments. It has had bad spells where I've thought this is it, but...
    ianbray ianbray 51-55, M 4 Responses Jun 15, 2013

    Your Response

    Cancel

    No, I Don't Have Carpal Tunnel!

    I am 28 years old and just had a radial shortening on June 13 . I am the father of two young boys, a musician, and a electrician. I took a nasty fall on some ice outside my house in Jan. of 2011. I was told I sprained my wrist. I wore a split for a few weeks, the pain subsided...
    jrallen jrallen 26-30, M 2 Responses Jul 7, 2012

    Your Response

    Cancel

    more kienbocks surgery

    I found out I had kienbocks disease when I was 21. It all started when I was pregnant with my first son at 19. They thought it was carpal tunnel after I had my first son I went to an orthopedic who did xrays but couldn't understand why my lunate bone looked odd he...
    cntthinkofone cntthinkofone 26-30, F 19 Responses Nov 11, 2009

    Your Response

    Cancel

    I was told I had keinbock's about 12 yrs.

    ago had surgery to shorten bone in my right arm. That helped with pain for about two yrs. so I stayed working but since then pain has gotten worst and I can't work. I went back to dr. Said would take the metal plate out see if that helped plus on top of it I have carpal tunnel...
    icequeen029 icequeen029 31-35, F Aug 11

    Your Response

    Cancel

    Kienbock'S Disease :(

    I started having pain in my left wrist when I was 16 and my ortho dr told me it was tendonitis and gave me a brace and told me that should work. Well it didn't and 2 years later I complained that the pain was getting worse so he did a CT scan on my wrist and told me it was...
    kaitlynnsmomma kaitlynnsmomma 26-30, F Jun 11, 2013

    Your Response

    Cancel

    5 Months And Counting

    Unlike many of these stories, I was extremely fortunate to have my Kienbocks caught very early. I began to feel some wrist pain this December and since I live just a block away from my doctor I decided to get it checked out. An XRay came back normal but I have great health...
    matthewlh matthewlh 18-21, M 3 Responses Mar 19, 2013

    Your Response

    Cancel

    Kienbock Stage 4

    Just had PRC for stage 4 kienbock, a week ago.can anyone share what i should expect during recovery.
    lpmann lpmann 56-60, M Oct 23, 2013

    Your Response

    Cancel

    33yrs Old In Stage 4 Of Kienbocks

    I am 33 years old and am in stage 4 of Kienbocks. I am scared to get surgery and was wondering if it is possible to never get surgery for this disease? My doctor thinks i have had this for a long time and have been able to function with it so should wait on surgery. Does anyone...
    bigblue701 bigblue701 31-35 6 Responses Dec 3, 2011

    Your Response

    Cancel

    Yay...Still In A Cast...

    It's been nearly 4 months since my Kienbock's diagnosis, and nearly 3 that my right (dominant) wrist has been immobilized with a cast. My symptoms first started in May 2012, and initially (like most people) thought it must be carpal tunnel based on my job and how much time I...
    ambeeva ambeeva 26-30, F 2 Responses Mar 3, 2013

    Your Response

    Cancel

    more kienbocks surgery

    I found out I had kienbocks disease when I was 21. It all started when I was pregnant with my first son at 19. They thought it was carpal tunnel after I had my first son I went to an orthopedic who did xrays but couldn't understand why my lunate bone looked odd he...
    cntthinkofone cntthinkofone 26-30, F Nov 11, 2009

    Your Response

    Cancel

    Kienbock Surgeon

    There is a hand surgeon at University College London Hospital called Elliot Sorene.He has a particular interest in Kienbock's disease and does lunate replacements in addition to all of the usual surgeries.He is referred patients from all over the country and abroad.His website is...
    meravs007 meravs007 26-30 2 Responses Sep 17, 2011

    Your Response

    Cancel

    What Should I Do?

    I fell and fractured my right radius a year ago.  I had an MRI scan at the time which showed my lunate bone was dark.  One consultant was concerned about this but at the fracture clinic they said it wasn't a problem.  I have had a few twinges over the past year but now I find...
    1cathyking1 1cathyking1 41-45 1 Response Jun 30, 2011

    Your Response

    Cancel

    Beating the Odds So Far

    My story may not be typical. But it does reflect so little is known about this disease, and doctors can be wrong. I was diagnosed in Jan. of 2000 (Stage III-B) Like others, it just hit me out of the blue with almost no warning, I woke up on Jan 1st (that's how I started the...
    drawpoker drawpoker 56-60 5 Responses Sep 20, 2009

    Your Response

    Cancel

    Recently Diagnosed With Kienbock'S

    I was diagnosed with stage 1 Kienbock's Disease last month in my dominant hand. I am a 50 year old male with a labor intensive job. Pain started back in September when lifting or turning screwdrivers. Orthopedic surgeon wants to take a blood vessel from one of the bones in my...
    Tommy1962 Tommy1962 51-55, M 2 Responses Mar 19, 2013

    Your Response

    Cancel