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I Have Kienbock's Disease

A Kienbock's Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Kienbock's Disease. You're not alone. 170 People

    Just Found Out Yesterday That I Have Keinbock's Diease...

    Yesterday, I found out that I have this Kienbock's Disease - not only in one wrist but both.   I am little confused as to how this happened.  I have never damaged my wrist in anyway.  I heard and read that this is very rare and in less than 200,000 people and even less than...
    bidosmom bidosmom 31-35 3 Responses Feb 10, 2011

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    My son who is 15 has been diagnosed with

    kienbochs disease - they have put ha wrist in a cars and are hoping that the blod flow to the bones will return normally - we are in New Zealand and it sounds like no one too sure what to do - I am really worried - his other wrist is also in pain so we are getting an MRI...
    raegem raegem 46-50, F 1 Response Jul 20, 2014

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    I was diagnosed with DeQuarvains Syndrome mths

    ago after a terrible 18 mths of pain a mth after my toddlers birth. I had an apt to schedule surgery and my Dr canceled worried it could be something worse that is rare and could be a long hard road of surgeries recoveries and pain... not telling me what it was she thought it...
    slyfirefly slyfirefly 26-30, F Aug 10, 2015

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    Beating the Odds So Far

    My story may not be typical. But it does reflect so little is known about this disease, and doctors can be wrong. I was diagnosed in Jan. of 2000 (Stage III-B) Like others, it just hit me out of the blue with almost no warning, I woke up on Jan 1st (that's how I started the...
    drawpoker drawpoker 56-60 5 Responses Sep 20, 2009

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    Wrist Fusion :(

    I found out I had kienbocks disease about 10 years ago when I was 15. I was having a lot of pain and weakness in my wrist. I had radial shortening surgery to return more blood supply to my lunate bone. I saw a wrist specialist about a year after my surgery who said everything was...
    aingle aingle 26-30, F 7 Responses Jan 26, 2010

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    Kienbock'S Disease :(

    I started having pain in my left wrist when I was 16 and my ortho dr told me it was tendonitis and gave me a brace and told me that should work. Well it didn't and 2 years later I complained that the pain was getting worse so he did a CT scan on my wrist and told me it was...
    kaitlynnsmomma kaitlynnsmomma 26-30, F Jun 11, 2013

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    Will The Pain Ever Go Away...?

    At 16 I was diagnosed with Kienbock's Disease. It started about 2 years ago with pain and weakness in my right wrist. After many doctor appointments and PT (I was continuosly being treated for tendonitis) the pain wasn't subsiding. I went to yet another doctor and discovered the...
    NikBrimeyer NikBrimeyer 22-25, F 9 Responses Jan 22, 2012

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    Looking For Hand Specialist What Knows About Kienbock's

    hello.          i had kienbock's disease since i was 21, now 37. the doc i have been  seeing told me i had the disease in both wrists. the only thing i had is painkillers and false promises. the doc told me about lots of...
    paul0121 paul0121 36-40, M 2 Responses Aug 27, 2010

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    My So Far Successful Story

    hello all! my name is chelsi. i'm 23 years old and was diagnosed with kienbocks in february of 2012. i had fallen in march of 2011, bracing the fall with my right and dominant hand. after seeing my primary doctor and getting nothing on the xray, he determined my wrist pain was...
    chelsirose chelsirose 22-25, F 1 Response Jul 1, 2012

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    A

    I was diagnosed with keinbocks disease after having to deal with two years of pain. I was 16 at the time I was diagnosed and was already at stage 3. The doctor recommended a radial shortening but we were hesitant about going through with it because the doctor said that there was...
    Jemmaakkad Jemmaakkad 18-21 3 Responses Jun 6, 2013

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    Kienbock Surgeon

    There is a hand surgeon at University College London Hospital called Elliot Sorene.He has a particular interest in Kienbock's disease and does lunate replacements in addition to all of the usual surgeries.He is referred patients from all over the country and abroad.His website is...
    meravs007 meravs007 26-30 2 Responses Sep 17, 2011

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    33yrs Old In Stage 4 Of Kienbocks

    I am 33 years old and am in stage 4 of Kienbocks. I am scared to get surgery and was wondering if it is possible to never get surgery for this disease? My doctor thinks i have had this for a long time and have been able to function with it so should wait on surgery. Does anyone...
    bigblue701 bigblue701 31-35 5 Responses Dec 3, 2011

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    Diagnosed At 55 With Kienboch's And Needing Direction

    I have had pain in my hand and wrist for the past 7 months. I went to my primary care physician who said I had tendonitis and prescribed Naprosyn for a month. An x-ray was taken at his office and I was told there was not any fractures and just a little bit of arthritis.  After a...
    penwood1185 penwood1185 51-55 4 Responses Aug 31, 2011

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    My Struggle With Kienbock's

    It all started when I was 12. I was playing basketball and knew something wasn't right. I figured that I just had a stress fracture or something like that. The pain just kept getting more severe as time went on and by softball season the pain was intolerable. I was at home...
    Cmau32 Cmau32 18-21, F 1 Response Oct 27, 2013

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    My Kienbock'S

    I was diagnosed with Kienbock's about 10 years ago after having wrist pain for a few months. I had to wear a brace for a year (not lifting more than 2 lbs) to see if it would heal by itself. It didn't so my Dr. told me the best thing to do was to have radial shortening surgery...
    mingus76 mingus76 36-40 May 17, 2013

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    I Have Kienbock's

    i am 16 years old and i was told i have kienbocks disease in february 2011. in december 2009 my wrist starting hurting out of no where. i thought it was just pains from different changes in weather. but the pain lasted all day for about 2 days. then it had gotten worse and it...
    riss04 riss04 16-17, F 2 Responses Jun 14, 2011

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    more kienbocks surgery

    I found out I had kienbocks disease when I was 21. It all started when I was pregnant with my first son at 19. They thought it was carpal tunnel after I had my first son I went to an orthopedic who did xrays but couldn't understand why my lunate bone looked odd he...
    cntthinkofone cntthinkofone 26-30, F 21 Responses Nov 11, 2009

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    I Have Kd In My Right Dominant Hand.

    I have just completed my second attempt at an STT fusion.  The bones didn't fuse and the arthritic changes surrounding the bones of the STT joint has accelerated the affects of the KD.  I am currently at Stage III considering the lunate but now Stage IV because of the...
    geekgirl2000 geekgirl2000 46-50, F 4 Responses Feb 18, 2010

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    Hi , I am 18 years and 2 months ago i have been

    diagnosed with kienbocks disease.I have been crushed since that day they told me. I have been seeing a specialist and was told to put a cast for 3 months and i havent yet been told what stage i am at. is this normal??
    yess0725 yess0725 18-21, F 1 Response Jun 3, 2014

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    hi guys , 4 months ago i started getting pain

    from left wrist , i workout alot so i thought it was from training but after 2 week and pain was still there , i went to doctor and he thought its inflammation and i must give it a rest but after 3 months and pain didnt gone i took an mri and it said " there is a Possibility of...
    Al1r3zA Al1r3zA 22-25, M 3 Responses Feb 20, 2015

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    I Have Kiebocks Disease.

    Hello, I am an ultrasound technologist and i recently found out that i have Kienbocks disease stage 2. Should I continue working there? Or should i stop and find another job? Also, the doctor said I dont need surgery right now. It still hurts when I move it. If I continue to work...
    tamkeensyed101 tamkeensyed101 41-45 2 Responses Feb 5, 2011

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    I was told I had keinbock's about 12 yrs.

    ago had surgery to shorten bone in my right arm. That helped with pain for about two yrs. so I stayed working but since then pain has gotten worst and I can't work. I went back to dr. Said would take the metal plate out see if that helped plus on top of it I have carpal tunnel...
    icequeen029 icequeen029 36-40, F 1 Response Aug 11, 2014

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    One day my wrist just started to ache

    and then it never stopped. I never had any injury or sprain to the wrist so I didn't think much of it at the time. I ignored it for a few months until the pain became quite severe. I went to the doctor who referred me to a physiotherapist and they splinted my hand to see if it...
    Nimy56 Nimy56 22-25, F May 25, 2015

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    I urge anyone who has Kienbocks Disease in the

    early stages to have surgery asap!!!! I developed it with no other explanation than overuse or genetics. I didn't fall or have some other kind of injury to the wrist. I started having decreased grip strength and pain in my right dominant wrist, so I went to a doctor about it. At...
    amcquiston amcquiston 36-40, F 1 Response Dec 15, 2013

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    Unsure If I Have It

    I'm scheduled for an MRI to "rule out Kienbock's" on Friday but, from what I've read, I don't believe I have it. It's in my blood to do research, however. I have a sharp pain on a bone near my wrist, down from my index finger (doesn't seem like the Lunate). I get a sharp...
    jachenault10 jachenault10 26-30 3 Responses Mar 13, 2012

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    Suprise! You Have Something You Have Never Heard Of Before.

    I am 39 years old. I was told I have Keinbock's Disease a week and a half ago. My wrist had been hurting for a while and I finally went to a doctor. This was in April. He thought that I had tendonitis. He gave me a shot, some anti-inflamation pills and told me to wear a...
    JJSMAMA JJSMAMA 36-40 3 Responses Jul 3, 2012

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    I Have Keinbock's Disease

    I was diagnosed when I was 16. I've been living with kienbock's in my dominant wrist for 18 years now. and I don't mean to sound depressing, but it just continues to get worse with time. I had the radial shortening when I was 20. the hope at the time was to unload the burden...
    fivefootshorty fivefootshorty 36-40, F 2 Responses Oct 31, 2013

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    Kienbock Stage 4

    Just had PRC for stage 4 kienbock, a week ago.can anyone share what i should expect during recovery.
    lpmann lpmann 56-60, M Oct 23, 2013

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    It'S Back...

    Diagnosed in 2001. Had several surgeries that finally ended with a proximal row carpectomy. I've been able to get along with the very limited range of motion and occasional pain for 12 years. Until Friday night. Something happened and I don't know what. I placed my hand down to...
    waukeejamie waukeejamie 36-40, M 2 Responses Jul 28, 2013

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    Frustrated Trying To Find A Specialist

    I developed significant left wrist/hand pain 3/11/11/ while at my fathers death bed. No known injury. I thought it was a terrible arthritis flare. I seen my rhumatologist who injectted it with no x-ray also thinking it was an arthritis flare, The pain did not improve, I went to...
    nelsenlori nelsenlori 46-50 3 Responses Jul 24, 2011

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    Kienbochs

    I have kienbochs, it's painful and hinders my daily life. I have it in my left wrist, not my dominant hand, but cause some problems when I drive. I wear a support on my wrist for most of the day, and picking up my 19 month old son is almost impossible. Now my right wrist has...
    Vicxveasey Vicxveasey 26-30, F 3 Responses Jun 29, 2013

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    I Had Kienbocks For 10 Years.

    I have stage 4 keinbocks. I was 12 when the pain started and they are telling me I need surgery to fuse my right wrist. But they also tell me they can't garentee that it will help so i've been putting it off. Over the last couple of months my left wrist is starting to hurt. I'm...
    hmazc hmazc 36-40, F Mar 26, 2013

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    My name is Alexia. I am 22 years old

    and come from Sweden. I have had problems with my right wrist (I'm right-handed) since I was 15 when I injured it playing volleyball. I first had a big surgery to repair what they thought was a torn ligament. After 8 weeks in a cast, it was still painful and after years of scans...
    lexfish lexfish 22-25, F 2 Responses Dec 4, 2013

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    Keinbocks Disease

    I have just recently been diagnosed with Keinbocks and I am schelduled to go for surgery on this thurs. 5-13-10.. Im a little nervous and would like any advice or any understanding on this that anyone may have:) Thanks
    Blewis0003 Blewis0003 31-35, F May 9, 2010

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    I was diagnosed with Kienbock's last month.

    I will be seeing my hand/wrist specialist on the 9th of June to find out what stage I am in. My kd pain started when I was about 5 or 6 months pregnant with my daughter in the Summer of 2013. My obgyn said it was carpal tunnel and so I let it go untreated until last April 20th...
    Pumpkin1421 Pumpkin1421 26-30, F May 28, 2015

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    Hold Back On Any Surgery

    I was diagnosed with keinbocks in 1987 and have carried on as normal using my wrist every day since then. About ten years ago I had an MRI (refusing xrays - not good again and again) and the lunate was in four fragments. It has had bad spells where I've thought this is it, but...
    ianbray ianbray 51-55, M 4 Responses Jun 15, 2013

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    Question

    i have been having constant wrist pain in both wrists my right is a lil more painful most of the time though. everytime i move them they pop/crack multiple times. Idk what it is i havent been to a doctor bc frankly i dont like going lol. they are constantly hurting to where i...
    Kimmo89 Kimmo89 26-30 2 Responses May 15, 2013

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    Well I find out tommarow at what stage my

    disease😁doctor said stage 2 but after seeing other xrays I believe it's stage 3 nervous about surgery and want them to skip the four first surgeries and go stright to fusion so I guess I will find out!😳
    jeffbelcher jeffbelcher 46-50, M Jun 30, 2014

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    No, I Don't Have Carpal Tunnel!

    I am 28 years old and just had a radial shortening on June 13 . I am the father of two young boys, a musician, and a electrician. I took a nasty fall on some ice outside my house in Jan. of 2011. I was told I sprained my wrist. I wore a split for a few weeks, the pain subsided...
    jrallen jrallen 26-30, M 2 Responses Jul 7, 2012

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    diagnosed with kienbocks disease today

    In October of this year I fell and thought I had bruised my wrist. After about 2 weeks I had severe pain. Long story short after 2 months and a ct scan later, I was told today I have Kienbocks disease. All the Dr. told me was I have it, use my splint when needed, take advil and...
    chefkasie chefkasie 41-45, F 5 Responses Dec 6, 2013

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    Kienbock's Disease At Age 13 :(

    I was sent to a children's specialist in 2003. I was told that I had Keinbock's Disease. I had a radial shortening surgery to help take the pressure off of my bones. The doctor told me that when I was older I would have to have a bone graph to save it. A year and a half later I...
    jeosborne jeosborne 22-25, F 2 Responses Sep 24, 2013

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    How Can This Be?

    I am in shock today. Just had an appointment and was informed of Kienbocks Disease. Following an MRI and my follow up appointment today I've been told Keinbock's and now being sent to a hand specialist. How can this have happened so fast? Just 4 1/2 weeks ago I was hit from...
    lalawithakiss lalawithakiss 46-50, F Sep 19, 2013

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    I Need A Joint To Soothe My Joints

    In the past 4 years I have had 2 total hip replacement surgeries, one revision surgery bc of a loose stem, and just recently bilateral hip revision surgery due to metallosis, all caused by avascular necrosis. Hips seem pretty stable for now, but guess what?! Now I've been...
    nickyrap nickyrap 36-40, M 1 Response Sep 9, 2013

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    I Have Had Keinbocks And I Am About To Have A Wrist Fusion

    I was diagnosed with Keinbocks five and a half years ago. My doctor thought it was a repetitive strain injury, but an MRI diagnosed Keinbocks. I was fortunate at the time as my consultant was a specialist in the disease, so at least I had a doctor who knew what he was doing...
    photomania photomania 56-60 1 Response May 21, 2011

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    I am 16 years old, I was diagnosed with

    Kienbock's disease 2 years ago in Stage 2. I started getting pains in my dominant, right hand, so I went to the doctor, then a hand specialist, then tens of other doctors, none had ever seen it in someone my age. Me, my parents and my consultants looked into surgery but no...
    AnAwkwardTroll AnAwkwardTroll 16-17 2 days ago

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