I Have Klinefelter Syndrome

A Klinefelter Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Klinefelter Syndrome. You're not alone. 78 People

    I was diagnosed with KS at 12

    or just when I went into puberty, I was tall, had man boobs or boy boobs and used to get picked on at school. after diagnosis I went in for a mastectomy, they removed my breast tissue and put me onto Testosterone injections through school my grades slipped, I was left behind in...
    ozyboyy ozyboyy
    70+, M
    May 12, 2014

    Curse Or Blessing?

    Growing up I was diagnosed with Klinefelter syndrome or XXY syndrome, a condition in which human males have an extra X chromosome. While females have an XX chromosomal makeup, and males an XY, those with Kilnefelters have two X chromosomes, like a female and one Y chromosome...
    samctv10 samctv10
    36-40, M
    22 Responses Oct 7, 2012

    I Have Klinefelter

    i have KS.i hate this!!!.iam 47 the doc told me 13 14yrs. he said no will have no chrilden ever.i had boobs at school it was a great not!.i hate school .i was dim i hate sport.i have 1 or 2 pal.i`am shy.i had stroke my speech is crap.type is low i can.sorry.i was 7 got raped...
    rossco333 rossco333
    46-50, M
    4 Responses May 27, 2012

    I have klinefelters syndrome abd always desire

    to become wife or something! Finally i accepted my feeling and to be femboy or sissy in 40 age!
    Widehip Widehip
    41-45, M
    1 Response Aug 1, 2015

    Struggles With KS.

    I was diagnosed when I was 27yrs old when my wife and I were trying to conceive a child. After performing a ***** test, my wife's unprofessionally OB's nurse blamed me for wasting their time on us. When I met my urologist - he knew just by looking at me that I was KS. At first...
    2bTall 2bTall
    36-40, M
    2 Responses Jul 22, 2013

    I was diagnosed with Mosiac Klinefleters

    Syndrome at the age of 38 I'm now 50.
    JohnThomas1st JohnThomas1st
    51-55, M
    2 Responses Aug 6, 2015

    Different From Birth

    Growing up, I had problems. At an early age, my parents knew something was different about me. My behaviors displayed in school were out of the ordinary. When I was ten years old, I found out I have Klinefelter Syndrome. I was being tested for something else, but that came up...
    morethanskindeep morethanskindeep
    36-40, M
    22 Responses May 17, 2010

    My 1month old lil boy was diagnosed with

    klinefelter. .the more I read on this the more am worried ,I keep wondering how this will affect him :( I keep praying that its not as bad as I feel it will be and readying some of these post makes me really sad and worried ... I also read that ur bones are weak any of u have...
    debnmar debnmar
    36-40, F
    1 Response May 18, 2015

    I discovered i had Klinefelter syndrome in

    august 2013. I was 22 and my father was slowly dying of his lung cancer. He insisted for me to come back home and talk to him face to face. This is how i finally found out what was wrong with me, why i felt so different. My parents told me that they did an amniocentesis before i...
    dnomeb dnomeb
    26-30, M
    1 Response Sep 9, 2015

    Hello mother of a lil guy

    that was diagnosed with klinefelter :( the more I read the more I worry about him. I have had diffrent doctors tell that they are not to sure what this is. Which confuses me even more. Weak bones? What does that mean am so afraid of what and how this will affect my 1month old...
    debnmar debnmar
    36-40, F
    2 Responses May 18, 2015

    Hi there, I want to share an experience however

    it keeps getting deleted! It's quite long so yeh. Just wondering, anyone here from Sydney ?
    mrharticuz mrharticuz
    22-25, M
    Jan 19, 2016

    I Have Klinefelter Syndrome Too

    I am 58 years old and recently learned that I have KS - and now, so many odd things in my life make sense. At 6'8" tall I present as male, but have always felt that I should have been female. I have suffered with Pemphigus (an auto-immune disorder), am infertile, have small B...
    kathleenlee kathleenlee
    2 Responses Jul 13, 2013

    Let'S Celebrate ! Thx God, I'M Not Alone

    If your discovered that you're KS, eat healthy foods, go green, go for a walk, try to join Yoga and Pilates classes with nice ladies. (No Joking, Yoga is a great way to be silenced social places) And There any many male Yoga Master's around the world. Because of that I've...
    moniguy moniguy
    36-40, M
    1 Response May 24, 2013

    To Late

    found out to late in life.found out when i was 50yrs old, im 54 now.leaning disabiltis growing up,idenity disorder,never been on hormonsof any kind.tough living!!!
    kennethks1 kennethks1
    1 Response Jan 25, 2011

    Are There Women Who'll Date A Man With Ks

    I'm 28 yrs old and I was diagnosed with KS when I was 25 or 27 yrs old, so it was a recent diagnosis right now I have no girlfriend because I'm not sure if there's a girl out there who would want to date someone with this condition. I've read that been able to have children plays...
    hawkeye0072001 hawkeye0072001
    13 Responses Sep 12, 2010

    I have been diagnosed with Klinefelter early

    last year 2014 in July. My wife and I have been trying to conceive a child for the last 3 years and without any luck I decided to see my GP. I did my ***** test and had my results confirmed that I had 0 *****. I was then referred to a specialist at a private hospital where he...
    deleted deleted
    1 Response Jul 9, 2015

    When I was 26 year old I found out I got

    Klinefelter Syndrome I get a hormone testosterone needle every 12 weeks for the rest of my life.
    deleted deleted
    3 Responses Sep 11, 2014


    Hello I have KS and was diagnosed at age 33 and I'm now 37. I have gained a total of 65 pounds and feel great most days! Just having diabetes and vein disease had changed my life style. Why do I have trouble keeping a relationship! I love women and just keeping a relationship is...
    1 Response Jan 15, 2013

    Hello.. I need answers please from any male

    willing to answer on emotional ways & Relationships ! My boyfriend of 4 years has KS (xxyy) I started looking in to his syndrome 6 months before we started dating and I always have tryed to under his depression, mood swings , why he feels nothing works out that he feels lost...
    MrsNeedit MrsNeedit
    41-45, F
    2 Responses Nov 15, 2015

    Haven't Disclosed To My Family I've Known Since I Was 13 I Have Ks.

    Growing up and going through puberty was a challenge because the more I grew, I kept noticing that I was looking more and more female. I was growing breasts and looking like a girl and got the attention of a hospital councellor when there was a "trick" that physicly impossible...
    xxylink xxylink
    36-40, M
    4 Responses Oct 22, 2012

    My 3rd grader has struggled in school from

    Headstart up to this very point. I noticed delays in his speech right before two years old. I expressed my concerns to his pediatrician who referred us to an early education program. The school district performed some standardized testing and diagnosed him with Developmental...
    Vette601 Vette601
    36-40, F
    Apr 19, 2016
More Stories