Klippel-Feil Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Klippel-Feil Syndrome. You're not alone.
Stories
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Members Sharing the Experience "I Have Klippel-feil Syndrome"
8 Members
This Experience at a Glance
Story highlights
These snippets show some of the most common themes mentioned in this experience's stories:
These snippets show some of the most common themes mentioned in this experience's stories:
- "But as a syndrome there could be many non spine additional anomolies associated with it..."
- "I'm left weak emotionally, But that's all another story..."
- " Total fusion of the neck apart from one unfused space between the upper and lower block of fused vertibra These fused Blocks are flattened and wider Plus with an additional complication a forward facing curve scoliosis which has pushed all soft tissue forward The end result of this leaves me with Limited L - R head movement due to the fusion and Cosmetically I appear to have no neck and no..."
Statistics:
38% of people who have this experience are in their twenties, 25% are in their teens, and 25% are in their thirties. 100% of people who have this experience are women.
You may cite any I Have Klippel-feil Syndrome statistics, provided you link back to this page
Check out this group's What Is It Like To Have Klippel-feil Syndrome guide, where people with this experience share their tips and hints.
Here are a few tips...
- It sux! But you GOTA live the best w what god gave ya.
Members said this page is also related to:
Do You Have Klippel-feil Syndrome? , What is it like to Have Klippel-feil Syndrome? ,Have Klippel-feil Syndrome personal stories, Have Klippel-feil Syndrome personal experiences
Other experience groups that have been combined into this group include: None yet.
Other experience groups that have been combined into this group include: None yet.
This is an experience group where everyone says: I Have Klippel-feil Syndrome. It features support, personal stories and experiences, advice, chat, talk, forums, videos, pictures and resources from real people, just like you.
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