I Have Klippel-feil Syndrome

Klippel-Feil Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Klippel-Feil Syndrome. You're not alone. 12 People

    Jbj1 Jbj1
    36-40, F
    Aug 4, 2015

    My Klippel Feil

    I'm not really sure if anybody is even in this group, but I hope that I can find some people with KFS too. I am 15 and have just gone into highschool. With my KFS, I am self conscious about everything. I can't help to think think that the first time someone meets me, they think I...
    trinityk trinityk
    13-15
    7 Responses Apr 30, 2011

    Son With Kfs

    Hello everyone! I have a 6 year old son, diagnosed shortly after birth with KFS. He has the very short neck and low hair line. He is the most energetic and happy kid! I am so scared that he will start to be hurt by people's comments. People already ask about him having no neck...
    kfsmama kfsmama
    31-35
    1 Response Sep 16, 2012

    Have problems standing

    and walking to kfs these days but decided to go back on a diet I'm not going to give in come through too much sh@t in life to give in currently on 1500 mg of gabapentin daily
    romantic2012 romantic2012
    31-35
    1 Response Jun 23, 2014
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