Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Krabbe Disease

Krabbe Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Krabbe Disease. You're not alone.

    I ruined it from the beginning because I didn't care.. and now I care :( I have hung out with a guy three times, about a month apart each and have made major dating mistakes every...
    shoffman22 shoffman22 22-25, F 7 hrs ago

    Your Response

    Cancel
    I need help with a friends with benefits situation that I want to be more.. I have hung out with a guy three times, about a month apart each and have made major dating mistakes...
    shoffman22 shoffman22 22-25, F 12 Responses 8 hrs ago

    Your Response

    Cancel
    Sometimes I just feel like giving up. Waking up everday carrying this pain of social anxiety is ruining my life. I have days where im positive and optimistic, then I have days like...
    painfullyconfident painfullyconfident 22-25, M 8 hrs ago

    Your Response

    Cancel
    What's gonna determine whether or not I can get out of bed and go to school Monday, is the infectious diseases doctor has to come in, look and examine my hand. Cause I have egsama...
    CreepypastaFan2016 CreepypastaFan2016 16-17, F 9 hrs ago

    Your Response

    Cancel
    Yes, I like tattoos but don't have any yet. I might get one someday but it would have to have some meaning behind it.
    PanHead1989 PanHead1989 26-30, M 11 hrs ago

    Your Response

    Cancel
    It was a Saturday, around nine o'clock. I remember I had been feeling particularly apathetic that day, since a second, strong bout of depression had hit me the beginning of that...
    Kaoruk100 Kaoruk100 18-21, F 12 hrs ago

    Your Response

    Cancel
    I never thought that it would happen. Especially not like this. I never thought of my family to become a divorced family. It was during my senior year of high school. Just last...
    YoSavvyGirl YoSavvyGirl 18-21, F 1 Response 12 hrs ago

    Your Response

    Cancel
    I have tried to post these thoughts before, but they mysteriously disappeared in a few hours, so let me try again. I get fed up with conservative politicians hi-jacking the Bible...
    carlton52 carlton52 61-65, M 2 Responses 1 day ago

    Your Response

    Cancel
    When people try to seal their brokenness by trying to break another person seem to not realise all they are doing is having a temporary high. Like treating a symptom but not the...
    Idolovemostofyourthoughts Idolovemostofyourthoughts 26-30, F 2 Responses 1 day ago

    Your Response

    Cancel
    My son is 4 yrs old and was diagnosed with HD at 17 days old. He had his first surgery at 21 days old and gotten a colostomy bag. He had a reversal at four months, didn't work so...
    Rymae87 Rymae87 26-30, F 1 day ago

    Your Response

    Cancel
    I've had crohns since I was 15. It slowly became a bigger issue in my lay 20's. I ended up with 3 weeks in the hospital, an iliostomy and they removed a significant amount of small...
    becann82 becann82 31-35, F 1 Response 2 days ago

    Your Response

    Cancel
    Having this disease is excruciating. Inside I rot and squirm unable to get rid of this feeling, and I just smile to the world to convince them that I'm okay. I can't move forward...
    artemicionmoon artemicionmoon 26-30, M 1 Response 3 days ago

    Your Response

    Cancel
    I have lost both of my parents to cancer. It is a terrible disease that hopefully we can end. Too much pain has been caused because of it. Too many people lost.
    aaronfunn aaronfunn 41-45, M 2 Responses 4 days ago

    Your Response

    Cancel
    Assume, presume exclude the truth. Teeter totter bicker bother. Life is so wondrous and full of fodder. As the garden grown the plants unfold into trees and bushes bushels of...
    Everyheartbeat Everyheartbeat 26-30 4 days ago

    Your Response

    Cancel
    Hi, I stumbled upon this site while searching ( as iv done thousands of times, for yeeears now) in hopes that I can find some magical supplement to cure the living hell that my...
    Hopelesslyfallen Hopelesslyfallen 31-35, F 4 days ago

    Your Response

    Cancel
    Stage 4 since 2014. Dxd in 2012 with stage 2-3. I've done a year and a half of Lupron, a year of Progesterone, 1 D&C, two laps, two hysteroscopys, 1 cystoscopy, a $400,000 DaVinci...
    apresm0i apresm0i 26-30, F 2 Responses 4 days ago

    Your Response

    Cancel
    I have a rare disease so I wear a medical ID necklace I never take off.
    MandyR34 MandyR34 22-25, F 1 Response 6 days ago

    Your Response

    Cancel
    I am 22 years old and have known since birth that I was a "carrier" for a genetic blood disease called Thalassemia. My parents told me from an early age that I was not sick but if...
    dgoodspeed dgoodspeed 22-25, F 1 Response 6 days ago

    Your Response

    Cancel
    Your wish means somebody else's downfall. Let's see; I wish all illnesses and diseases will go away. HOORAY! Science and medical no longer required. The doctors at medical centres...
    Sazzio Sazzio 26-30, M 6 days ago

    Your Response

    Cancel
    She threw herself at me. I took things slowly. After a few months, we were official. I was a part of her family's dinners. She was "the happiest they've ever seen her." She treated...
    standardmale standardmale 26-30, M 2 Responses a week ago

    Your Response

    Cancel
    the best they've explained it and from the x-rays it shows that L4 and L5 are too big for the rest of my spine. doc calls it an anomaly. what it means to me is pain and a lot of...
    girlonpause girlonpause 36-40, F 1 Response Jan 29

    Your Response

    Cancel
    Became a member on this site with the little gleam of hope that I still have. My story is very in depth, long, and to be blunt, f!&%>d up. I plan to share my story, and I hope my...
    Hopelesslyfallen Hopelesslyfallen 31-35, F Jan 29

    Your Response

    Cancel
    Just had seen a friend in a hospital yesterday this person just had their 30 th mental break down its nothing new but this person always seems to stop taking their medications as...
    Bella70 Bella70 41-45, F 3 Responses Jan 29

    Your Response

    Cancel
    Is there anyone out there who has scleroderma of their organs? I now have it in my esophagus and lungs. Is this a death certainty. All I read is no cure and short life span. 3-5...
    jojosig jojosig 46-50, F Jan 28

    Your Response

    Cancel
    Hello all I am new ,I was diagnosed in 2005 with familal periodic paralysis . I was hospitalized for 3 weeks having several full blown episodes daily while in the hosptial .I am...
    johnsonrobin59 johnsonrobin59 56-60, F 1 Response Jan 28

    Your Response

    Cancel
    and I want to keep this disease. If you have this disease it's not harmful in any way just remember this disease can leave randomly but it can come back and then leave and you get...
    aby2015 aby2015 13-15, F Jan 27

    Your Response

    Cancel
    If I were to describe my anxiety the word would be crippling. Each word after would be never-ending. My anxiety stems from the fact that I have been told since a young age I would...
    Freedgorgan Freedgorgan 16-17, M Jan 26

    Your Response

    Cancel
    GUYS I AM HAPPY TO ANNOUNCE THAT ONE PERSON HAS BEEN CURED FROM DIABETES! I AM SO EXCITED FOR THE FUTURE. GOD I AM CRYING TEARS OF JOY BECAUSE MY LIFE REVOLVES AROUND THE STUPID...
    kanissen kanissen 16-17, F 1 Response Jan 26

    Your Response

    Cancel
    Anyone negative with blood test but diagnosed with Lyme ?I show false positive but keep coming up negative.
    kellner27 kellner27 18-21, F 1 Response Jan 25

    Your Response

    Cancel
    I had my first Parkinson's related fall the other day. The only thing that saved me from hitting the ground was the kitchen counter, had that not been there I would have gone all...
    LifeinWoodinville LifeinWoodinville 41-45, M 6 Responses Jan 25

    Your Response

    Cancel
    Oscar...For Love About three years ago I was working with a woman who had alzheimers and a broken hip. She lived in a lovely beach home, and she had found a cat who had been...
    Rolle2323 Rolle2323 61-65, F Jan 24

    Your Response

    Cancel
    I'm not sure how I'll find a sense of self-worth. I'm a "fair weather friend" to myself. I don't support my own decisions. I don't believe myself. I doubt my intentions. I doubt...
    ODSi ODSi 18-21, M Jan 23

    Your Response

    Cancel
    I do have strange dreams and also "visions". The visions come when I'm wide awake. This has been happening since I was a very young child. My father would beat me for talking about...
    MourningDove7 MourningDove7 36-40, F 4 Responses Jan 23

    Your Response

    Cancel
    This should say "I no longer have PCOS". After 15-17yrs (dx in 2000-2001) of dealing with symptoms that changed my looks, my spirit, and left me unable to have children. All my...
    Nix820 Nix820 36-40, F 2 Responses Jan 21

    Your Response

    Cancel
    Was diagnosed two years ago still trying to get the medication balanced out where it needs to be. Hate the up and down periods just want life to go back to the way it was before.
    Katelynn7 Katelynn7 18-21, F Jan 21

    Your Response

    Cancel
    Dating website Sure to get babes flocking Intense bipolar Broken and diseased Lol Flunked the sell your good points class Went with honest But my fear now...
    JustBipolarMe JustBipolarMe 46-50, M Jan 21

    Your Response

    Cancel
    There's a pretty high chance I have this. This sucks 😕
    MzSlimshady MzSlimshady 13-15, F Jan 19

    Your Response

    Cancel
    No one understands how hard it is for me to go to work for 10 hours everyday some days are better then others but when it's bad it's bad I'm tortured the entire day if I can make...
    myreality1 myreality1 36-40, M Jan 19

    Your Response

    Cancel
    I was able to drive and I had all these three friends in the car. One day we are driving and pick up these other three kids that barely fit in the car. (The car is a small white...
    AngelAmongClouds AngelAmongClouds 13-15, F 1 Response Jan 18

    Your Response

    Cancel
    I'm 47 years old. My mother is 71 years old. My mother was diagnosed with Alzheimer's disease about a year ago. I'm afraid that I'm going to get it. And I don't want it. People say...
    MsInvis MsInvis 46-50, F 5 Responses Jan 17

    Your Response

    Cancel