I Have Langerhans Cell Histiocytosis

A Langerhans Cell Histiocytosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Langerhans Cell Histiocytosis. You're not alone. 19 People

    Diagnosed With Langerhans Cell Histiocytosis

    Hello Everyone, I thought I would reach out to others that have this rare disease. I was diagnosed about a year ago and have been very fortunate to have experienced only skin lesions at this time. I find myself more frustrated that my doctors have no experience dealing with...
    cshanley78 cshanley78
    31-35, F
    4 Responses Feb 2, 2013

    My Husband Has Lch

    My husband was diagnosed with LCH last year. He has been on chemotherapy and has also gone through Radiation therapy as well. We were told about three weeks ago that he could stop the medications and they ran more scans to check the progress. Today he went to see his hematologist...
    LCHwife LCHwife
    2 Responses Aug 20, 2012

    Skull Lesion At Age 18; Now A Host Of Other Problems

    Hello all, I am a 25 year old wife, mother, and student. I was diagnosed with LCH in 2006 when a 5 cm lesion was found to have eaten through my skull. It was surgically removed, a mesh "plate" was set in place of the missing bone, and that was that. About 18 months ago now, I...
    idarbolt idarbolt
    2 Responses Apr 12, 2013

    Just Been Diagnosed With Langerhans Cell Histiocytosis Of The Lung

    Hello is there anyone out there that could share their thoughts and feelings, I have just been diagnosed with Langerhans Cell Histiocytosis of the lung. Feeling confused as the condition is so rare, I have no one to share my feelings with. Can anyone help? x
    quantum66 quantum66
    2 Responses Jun 25, 2012
More Stories