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I Have Late-onset Congenital Adrenal Hyperplasia

A Late-onset Congenital Adrenal Hyperplasia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Late-onset Congenital Adrenal Hyperplasia. You're not alone. 15 People

    Waiting For Results - I have had irregular periods since I was eighteen, and nothing before that.  Doctors never believed me--  I get sick at the drop of a hat...
    MagdelineMae MagdelineMae 31-35 1 Response Feb 15, 2009

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    Intersex Goups In Nyc -   My name is Roi and I'm a PhD student at Tel Aviv University. My dissertation deals with ethical implication of medical regulation for intersex...
    roishani roishani 36-40 Jun 10, 2011

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    i have early onset glaucoma
    brokenowl brokenowl 36-40, F 1 Response 1 day ago

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    I've had a lot of problems with fainting in the last few years and it is the most frightening experience I've ever had. For me, it always starts with an extreme nausea and then my...
    greatgig91 greatgig91 22-25, M Mar 21

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    Chapter 7 - The Mental/Fatal BlowLate in October of 1994 I was at our local American Legion to give blood as an annual civic duty. (sometimes biannual)I always felt super good...
    Batboy69 Batboy69 56-60, M Mar 19

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    I stay up late to party XD Awwww yeah ^_^ Things get to real to deal ;}D My homies ^_^ Hector: o_O....~_~ :{/ I'm already freakin' out but that's just because it's morning and I...
    SquirrellyChanLuvsAcorns83 SquirrellyChanLuvsAcorns83 18-21 Apr 5

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    Adrenal Fatigue, Hypothyroidism, Heavy metal toxins, elevated melatonin, low vitamin D, food intolerances Its best to start from the beginning, so here goes….I have been a...
    AnxietySoldier AnxietySoldier 36-40, M 1 Response Mar 24

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    No official diagnosis yet but it most likely CD. I have had migraines for 3 years. About 3 months ago I 'passed out.' I really don't remember myself. Here is what I do remember...
    Ajokd Ajokd 36-40, F Mar 22

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    After my mother died, I had them so often that I could almost predict the onset, I would just lay down and shake like a fish until it was over, once I realized the previous ones...
    mrrabbitdigital mrrabbitdigital 46-50, M 1 Response Mar 22

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    I was diagnosed with early onset Parkinson's several years ago, I will turn 50 later this year. Medication has helped me tremendously but I realize the effects of the medicine will...
    rss4764 rss4764 46-50, M Apr 5

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    It's affected my life in so many ways. My confidence, my relationships... It's always been holding me back. My anxiety has completely isolated me. It prevents me from reaching...
    Michimon Michimon 18-21, F 6 Responses Mar 30

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    The first panic attack I experienced has two very odd contributing factors. One being I had a very very strong latte at this little cafe. And the other involves a belly bar...
    SassySam77 SassySam77 18-21, F 1 Response Apr 1

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    I have really bad sports anxiety. I had in the past struggled horribly with social and school related anxiety but I beat it. A big reason is probably the anti depressants but...
    seanmike seanmike 22-25, M 2 Responses Apr 1

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    the urge the urge to discover, explore, chase after what makes my heart stutter, what gives me that adrenaline rush, being next to the truth, being overwhelmed with knowledge, I...
    FlorescentBeauty FlorescentBeauty 16-17, F 6 days ago

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    Only when I'm drunk! I'm a runner. I'm a jumper. And I'm a climber. I definitely run. I run away from my group so they have to chase me down in order to get a hold of me. I also...
    StrawberryMilkTime StrawberryMilkTime 18-21, F 6 days ago

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    I just had a terrible nightmare. I dreamt that someone was banging on the door. But that they wouldn't say who they were or anything when I ask. When I look out the peephole it's...
    hmmngbrd hmmngbrd 26-30, F 1 Response 4 days ago

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    Hi there. I'm 18 and I was told by my therapist that I have BDD (Body Dysmorphic Disorder). I have had a terrible self image for as long as I can remember. I don't remember a time...
    agolden agolden 16-17, F 1 day ago

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    I took the test. How much value should I put in this? Kind of think it just confirms how I already felt. The COMBINED GENDER IDENTITY AND TRANSSEXUALITY INVENTORY (COGIATI...
    Cindycharm Cindycharm 36-40, T 2 Responses 1 day ago

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    I recently had what you would call a "bad date". I hadn't been out in months and I barely knew the guy - I'm someone who takes the time to know someone before I feel comfortable...
    captaintera captaintera 22-25, F 1 Response Mar 26

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    Experience 21 Final years in my rental house in Glendora, CA I’m trying to keep this brief and tell my experiences in order. Previous story explain things to this point. Some...
    RiverBedView RiverBedView 56-60, M 2 days ago

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    Come a little bit closer before we begin Lemme tell you how I want it And exactly what I need I'm here for one drug I'm only here for one thing So come on and tell me, Can you fly...
    MascalzoneLatino MascalzoneLatino 18-21, M 2 Responses Mar 29

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    I had it done 17months ago and still feel the loss was at end of menapause and was diagnosed with hyperplasia so had robotic surgery came through fine but noticed that at about 10...
    katty1254 katty1254 56-60, F Mar 28

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    I am a 41 year old woman who is divorced from a man who loved me. I have gradually realized the main reason I have no close friends and can't maintain a relationship and it makes...
    BetsyLi BetsyLi 41-45, F 1 Response 1 day ago

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    It happened last year during my vacations in P. vallarta Mex. i was on the beach enjoying my last day in mexico, it was late around 7pm just before the sunset. there were around 30...
    simitrio simitrio 22-25, M Apr 8

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    Have you ever felt being so alone.. No one can hear you or be there for you? Like your adrenaline somehow control you? That it made you done something wrong.. something different...
    PartyPoison04 PartyPoison04 13-15, F 3 Responses Apr 3

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    Actually, I'm scheduled for open heart surgery on March 27th. I have a congenital defect: apical hypertrophic cardiopathy, which has caused AF and aflutter to the point where I...
    nwWarbler nwWarbler 61-65, F 1 Response Mar 17

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    I have been cursed with this stupid thought process. I see things in ways most normal people can't deal with. I know that the horrible messed up things in this world as damaging...
    dizlasthope dizlasthope 36-40, M Mar 27

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    I was born with a missing left arm below the elbow. Simple as that. There is a more complex explanation: Congenital Amputation, Type: LBE. I go to high school like a regular teen...
    beedotkay beedotkay 13-15, F Apr 5

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    " Associated Heart Problem - Congenital long QT syndrome . HCC = Hepato Cellular Carcinoma RCC = Renal Cell Carcinoma DTC = Differentiated Thyroid Carcinoma Cancer...
    AATHREYAARBEEKAY AATHREYAARBEEKAY 36-40, M 1 Response 6 days ago

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    I'm watching Star Trek XII aka Star Trek Into Darkness, for the umpteenth time and felt like sharing my thoughts. Star Trek has been around since 1966, covering half a dozen shows...
    orincowboy orincowboy 26-30 1 Response Mar 25

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    I'm watching Star Trek XII aka Star Trek Into Darkness, for the umpteenth time and felt like sharing my thoughts. Star Trek has been around since 1966, covering half a dozen shows...
    orincowboy orincowboy 26-30 Mar 25

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    I'm watching Star Trek XII aka Star Trek Into Darkness, for the umpteenth time and felt like sharing my thoughts. Star Trek has been around since 1966, covering half a dozen shows...
    orincowboy orincowboy 26-30 Mar 25

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    We had been warned of severe gales with gusts exceeding 70 mph, and I knew this was going to be one of the best experiences of our lives. We had reached our favourite remote spot...
    susanhampshire susanhampshire 26-30, F 1 Response Mar 17

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    I love sports cars! The adrenaline rush you get when you are racing is amazing! I love it! I had a 5.0 1987 mustang. It was loud, tough, and very strong! I was in love with it...
    Jaiyy76 Jaiyy76 18-21, F 1 Response Mar 18

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    My name is Cheyenne, and im almost eighteen now. but when i was just fifteen, my life was turned upside down. i was a good student, a principles pet, my family and friends where...
    CheyChey26 CheyChey26 16-17, F 1 Response Mar 19

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    How would I possibly just describe it? The aircraft was tiny, enough for around five of us to climb in and sit squashed up on the floor while the engine roared and we started...
    AngelofPink AngelofPink 18-21, F 3 Responses Mar 19

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    Time to Move On - Tom Petty It's time to move on, time to get going What lies ahead, I have no way of knowing But under my feet, baby, grass is growing It's time to move on, it's...
    QueenAwesomePants QueenAwesomePants 36-40, F Mar 20

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    I just read an awesome post that summarized pretty much said to be yourself on here and be open;) I haven't been quite open as I could be...almost as if hiding behind a curtain...
    Anarai Anarai 26-30, F 1 Response Mar 21

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    Before meeting you this morning, my heart leaped. I couldn't sleep for the whole night yesterday. I felt I was going mad with excitement. I felt sick to my stomach. In a good way...
    myheart99 myheart99 36-40, F 7 Responses Mar 22

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    All the time.... Literally all the time. Even now, i'm writing and thinking about man's true purpose while recalling Beethoven's Symphony no. 9 in D Major Molto Vivace Presto. I...
    LordOzymandias LordOzymandias 22-25, M Mar 22

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    As my work is so hectic the best time of the week is off day and going camping and fishing as it makes your adrenaline soars like a bird when you caugth something big and pull your...
    tawam tawam 36-40, M Mar 23

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    When I was really young (I believe it was the second grade), I was forcibly introduced by seating arrangement to a pretty (but bratty and snobbish) little brunette girl named Sheri...
    Unreasonable1 Unreasonable1 36-40, M 1 Response Mar 23

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    Experience 17 President Reagan and the FBI In 1981, I called the FBI to tell them the Mayor of Glendora (CA) had threatened to kill President Reagan. The agent answering the phone...
    RiverBedView RiverBedView 56-60, M Mar 24

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    I don't even know where to start. I had an adrenal tumor and before it was actually diagnosed, I had these horrible headaches. My primary care doctor referred me to a neurologist...
    misscarakitty misscarakitty 31-35, F Mar 24

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    I've signed up to an open mic night to perform some mediocre poetry which I wrote. The night is on thursday and as a generally quiet individual I am utterly out of my mind with...
    ManicRomantic ManicRomantic 18-21, M 1 Response Mar 25

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    Well what can I say I love kinkiness!!!! I call it adrenaline s**!!! Love it and wish I had more of it, but my husband is not in to it as much as I would like. I crave and need it...
    TandT0420 TandT0420 36-40, F 10 Responses Mar 28

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    I admit it - I like to cross-dress. Sometimes, I would put something on, and just for a bit of a rush, take a quick walk around the outside of the house (either from the front door...
    KatieTreat KatieTreat 51-55, T 1 Response Mar 28

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    Sad Melody~ That feeling, when your heart beats faster, as if it's about to come out of your chest. A heart, filled with rage. Adrenaline rush takes over. You have the urge to...
    deleted deleted 26-30 3 Responses Mar 30

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    Experience 19 Reagan and the FBI I’m trying to keep this brief and tell my experiences in order. Previous story explain things to this point. Some names were changed. Yes, all...
    RiverBedView RiverBedView 56-60, M Mar 31

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    Let's talk about seduction. Being a female and with my particular skill sets, and not to mention genetic assets, it's easier than not to seduce men/women for no reason at all...
    DarkVessel DarkVessel 18-21, F 1 Response Apr 5

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    I'm beginning to suspect that I have Misplaced Monday Syndrome, or MMS as I like to call it. I know whay you're thinking: what!? Hear me out. On holidays my Monday is fine; where...
    FolioJones FolioJones 41-45, M Apr 8

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    ALL THE TIME! If I'm not doing anything and I'm sitting down then you would catch me looking far ahead, not a blink in sight just daydreaming away! I have always daydreamed as...
    MilweePisces MilweePisces 18-21, F 2 Responses a week ago