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I Have Ledderhose Disease

A Ledderhose Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ledderhose Disease. You're not alone. 42 People

    For Everyone Suffering From Ledderhose Disease

    I have been in unbearable pain for the past year... Getting painful cortisone shots in my left foot then going threw a minor surgery which hurt badly and left me unable to walk for 3 weeks, Only for it to return 3 months after the surgery, now the doctor wants me to go threw...
    naomi83 naomi83 26-30, F 3 Responses Nov 13, 2012

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    Scared About Surgery For Ledderhose Disease

    Hello, this is my first post. In Oct. 2010 I had surgery on my left foot for what I was told was a fibroma on my planter fascitis tendon. Turns out they did not get it all and in less than 10 months it was back. This time 4 X as large. Now I am told it is Ledderhose disease. I...
    alaskandiane alaskandiane 56-60 3 Responses Jan 26, 2012

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    Facing Second Surgery

    Had surgery on both feet for this 9 years ago. Lumps are back. Mom and sister Both have had multiple operatios. Don't want to do it again. Anyone have success with any other method?
    Sharonricewallis Sharonricewallis 51-55 2 Responses May 31, 2011

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    I have just been diagnosed with Ledderhose

    Disease my specialist is recommended surgery followed by radiation therapy however I have been warned there is no guarantees the lump will not return. I would like to know what others have trie very scarred of surgery when the internet advice is surgery is the last resort.
    sibsOz sibsOz 46-50, F 1 Response Jan 10, 2014

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    Ledderhose Disease

    I have had ledderhose disease for about 4-5 years. I have been getting cortisone shots that seem to help for awhile but the lump always comes back. I am on my feet quite a bit as I babysit my 2 young grandchildren and run after them all day. I have read so many stories about...
    herouxm herouxm 66-70 5 Responses Mar 4, 2012

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    Please help anyone ..

    . I have just being diagnosed with Ledderhose's Disease this week :( I have a ultrasound scan to confirm its existence. This is all very new to me and I must say upsetting. The work I do entails me being on my feet all day. I am only seeing the Orthopaedic Surgeon next month...
    TheManicOz TheManicOz 46-50, M 2 Responses Dec 6, 2013

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    I Have Ledderhose Disease, Please Educate.

    Hi, I am a 26 yr old female, I am married with 1 child. I began to notice "lumps" in the arches of my feet when I was around 18 yrs old, I knew there was a high chance I would get them because my mom, uncle, great grandmother, and great great grandmother had them. I went on...
    footsymomma footsymomma 26-30, F 6 Responses Apr 28, 2010

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    My Story Without Surgery To Stop Or Reverse Progression...

    I noticed Ledderhose nodules around 3 years ago on both arches of my feet. They were pea sized and painful... After 2 years, they had progressed into marble sized and were very very painful. My left foot nodule is a little larger than the right. I showed my boss why I was...
    Garrett5302 Garrett5302 31-35, M 2 Responses Feb 24, 2013

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    Suffering For Ten Years

    I have had ledderhose disease for over ten years now. I am at my wits end. I have gone to many doctors, acupuncturists, physical therapist. The only thing that seems to help is to have my feet on ice, or a good rub. I have not heard any promising reports on surgery. I have...
    CRUISERBUGS CRUISERBUGS 56-60 2 Responses Jul 22, 2011

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    Lederhosen Story

    I am a 60 year old female with Lederhosen syndrome of both feet. I have been able to deal with the condition but lately, after wearing dress shoes with a heel I am experiencing severe cramping of my arches. Does anyone else have this? Is it related to Lederhosen or could I...
    Sorefeet1950 Sorefeet1950 56-60 14 Responses Feb 7, 2011

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    I Have Ledderhose & Dupuytren's Disease

    I am a 41 year old male who has Planter Fibroma on my feet and Dupuytren's on both hands. I am having surgery for my Ledderhose, despite all the horror stories I have read or heard regarding this method. The lump is the size of a large grape and I am nervous about the surgery. I...
    Metzie Metzie 41-45, M 2 Responses Jul 24, 2012

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    A Bumpy Road

    The story starts about 3 years ago with the economic downturn. My family and I were forced to relocate and I returned to work. I have a good job but it requires being on my feet 8 to 12 hours a day. As the business grew so did the pain in my feet. First I was diagnosed with...
    bathnz83 bathnz83 46-50, F Aug 24, 2012

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    Ledderhose My Experience

    Growing up I was sure I had a little bump in the arch of my foot but there was no pain, no growth and nothing to be concerned about, then two years ago out of nowhere like the little menace that it is it started to grow and started to become really painful. I headed off to the...
    GaryKary GaryKary 22-25 1 Response Feb 1, 2012

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    Hi I have ledderhose,

    I have thick tumors on the bottom of both feet and new small ones popping up, i had them taken out years ago but they came back, so bad my legs hurt, it is bad to have this diease but good to know I am not alone
    elviscentral elviscentral 51-55, F Dec 4, 2013

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    Ledderhose Disease In North Texas

    I've had numerous surgeries on my right foot and one on my left foot in 2005. The lumps reoccured in about 2 years but my surgeon retired and I've not found another surgeon willing to perform surgery. The three that I saw said I should just live with it. It is hard enough knowing...
    fiddlebows fiddlebows 56-60 5 Responses Jul 3, 2011

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    Related Experiences

    I think I may have Menieres Disease by the symptoms I've had for over a year. Loss of hearing, ringing high pitch sound, slight dizziness when standing. And now after researching...
    LivingLifeOneDayAtATime LivingLifeOneDayAtATime 41-45, M May 14

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    After more than a decade of eating poorly and being sedentary, I have developed heart disease. Currently, I'm trying to reverse it nutritionally and will have to start exercising...
    zarpanzur zarpanzur 26-30, M May 5

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    When I had braces I got a disease in my gum and my gum had reduced a little bit. I've had a gum graft done 4 times now. It still hasn't worked 100% but it's better then it was...
    epsarah94 epsarah94 18-21, F Apr 27

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    It started in December and we are still trying to figure out what's wrong but my doctor said it's a non-classic cause of Crohn's disease. I have ulcers in my stomach, intestines...
    stuff950 stuff950 18-21, F May 7

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    I have been suffering debilitating pain from celiac disease for the last 3-4 years and finally got a diagnosis February 3rd. I have been completely gluten free for 3 months but for...
    littlemissstaystrong littlemissstaystrong 16-17, F 1 Response May 11

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    When I was 17, I was diagnosed with Addisons disease after a severe crisis. I am now almost 21 and since then, I have handled it pretty well. I take 25mg of hydrocortisone...
    deleted deleted 26-30 2 Responses 5 days ago

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    Got diagnosed in 2005.. Had my thyroid removed in 06. There's really no cure since it's an autoimmune disorder.. You can kill the thyroid or take it out. I opted to take it out...
    deleted deleted 26-30 1 Response May 4

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    So four years ago almost during my GCSE's I started to bleed internally from somewhere. It was never often enough to freak me out. But it got bad so I saw a GP and I was told to go...
    Sparklychest Sparklychest 18-21, F May 5

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    Yay (that was a sarcastic Yay) - though I have no symptoms, so now I have to meet with a dietitian and go gluten free Yay again...I have been trying to lose another 10 pounds, I...
    fun4us2b fun4us2b 51-55, M 1 Response 3 days ago

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    Usually not a day-to-day issue for me. But when an infection flares up, watch out. Starting to feel one coming. Dammit.
    Sicarium Sicarium 36-40, M Apr 27

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    I'm feeling so defeated. I've been battling some health issues (presenting as autoimmune disorder) since last August and been through half a dozen doctors now with almost as many...
    Silc Silc 26-30, F May 8

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    I'm only 21 and I've been suffering from back and neck pain for nearly 2 years now. i was in a bad car accident last june that had made my back pain even worse ( i had already...
    darnswell13 darnswell13 18-21, F 1 Response 1 day ago

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    I was diagnosed with Polymyositis in 2005; it was the year where I would have to learn, how it would feel to walk a lonely path to reach my ultimate goal – to put my disease...
    david1000 david1000 26-30, M 47 mins ago

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    Anyone else get insulted when a Japanese tourist asks you for directions while wearing a humungous face mask???(obviously to protect them from the full hideous disease and sickness...
    GalateaSpheres GalateaSpheres 36-40, F 4 Responses 2 hrs ago

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    it began in 2014 when I had a disease called thyroid disease. I was depressed everyday.I told every teacher about my disease but only she cared about me. She asked me how I feel...
    anonymous0601 anonymous0601 16-17, M 1 Response 6 days ago

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    My sister and I both have been diagnosed with MELAS. I am 22 and my sister is 26. She was diagnosed first with the genetic disease when she was about 20. We both live in Toronto...
    hedyc hedyc 22-25, F 3 days ago

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    Am I a Monster? For me, the worst part of living with a mental disease was feeling like I can’t trust myself. When I was little, people told me I was different and I didn’t...
    kiarrafire kiarrafire 18-21, F 1 Response May 7

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    Hi, I'm a 20 year-old-girl from Finland and I was diagnosed with en coup de sabre when I was 17, but I have had it for 6-7 years. Since diagnosed I have been going to a skin doctor...
    meeri95 meeri95 18-21 Apr 24

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    (1980) I was born while my parents were getting divorced. I saw my dad a handful of times. (1983) my mom remarries a man who likes little girls. My mom knew what was going on but...
    wingedvalkyrie7 wingedvalkyrie7 31-35, F 1 Response Apr 24

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    Dear Crohn's Disease, I wish you would stop hurting me. You make me feel weak, and prevent me from participating in activities. I want to be stronger than you but it's hard. You...
    SpaceGlitch SpaceGlitch 16-17, F May 3

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    i was just recently diagnosed with hs. in the last year this disease has completely ruined my life. i have lost my job, my children have to watch me suffer. i am about to loose...
    htoure21 htoure21 31-35, F 1 Response May 5

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    What keeps me strong when the going gets tough is that i know that one day in Heaven, if I ever make it there that is, where there are no illnesses or diseases, I will get to meet...
    muffin93 muffin93 18-21, F 2 Responses May 9

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    Finally a diagnosis of chronic pain in the thoracic region and great difficulty swallowing, have bone spurs throughout my entire spinal region and need knee replacements etc...
    hellybell hellybell 46-50 1 Response May 11

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    I am Gay and part of every relationship in our community have is sex. It happened last 2014. I met this guy at the club somewhere in 2013 and had moments with him a couple of times...
    gayish gayish 22-25, M 2 Responses May 13

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    I have been just diagonised with AIH. Still looking for some literature on this disease and worst and best case scenarios. A bit worried about the unpredictability associated with...
    sonun sonun 36-40, F May 15

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    Yesterday went to a near by university and met some college students, their major is Physical Therapy for people with Parkinson's. I enjoyed meeting these young students. They...
    rjk01 rjk01 66-70, M 3 days ago

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    I have this condition. This chronic sickness. It’s called the dreamers disease because I dream. Dream of a an illusory world that resides only in my imagination. I am a writer...
    thesontheheir thesontheheir 26-30, M 3 days ago

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    When I was 45 I was at work and noticed my heart was skipping beats. Went to the emergency room and they passed it off as a weekend party heart. It came and went for several years...
    ronbn49 ronbn49 66-70, M 1 day ago

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