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I Have Ledderhose Disease

A Ledderhose Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ledderhose Disease. You're not alone. 42 People

    Ledderhose Disease In North Texas

    I've had numerous surgeries on my right foot and one on my left foot in 2005. The lumps reoccured in about 2 years but my surgeon retired and I've not found another surgeon willing to perform surgery. The three that I saw said I should just live with it. It is hard enough knowing...
    fiddlebows fiddlebows 56-60 5 Responses Jul 3, 2011

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    I Have Ledderhose & Dupuytren's Disease

    I am a 41 year old male who has Planter Fibroma on my feet and Dupuytren's on both hands. I am having surgery for my Ledderhose, despite all the horror stories I have read or heard regarding this method. The lump is the size of a large grape and I am nervous about the surgery. I...
    Metzie Metzie 41-45, M 2 Responses Jul 24, 2012

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    Hi I have ledderhose,

    I have thick tumors on the bottom of both feet and new small ones popping up, i had them taken out years ago but they came back, so bad my legs hurt, it is bad to have this diease but good to know I am not alone
    elviscentral elviscentral 51-55, F Dec 4, 2013

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    Facing Second Surgery

    Had surgery on both feet for this 9 years ago. Lumps are back. Mom and sister Both have had multiple operatios. Don't want to do it again. Anyone have success with any other method?
    Sharonricewallis Sharonricewallis 51-55 2 Responses May 31, 2011

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    Ledderhose My Experience

    Growing up I was sure I had a little bump in the arch of my foot but there was no pain, no growth and nothing to be concerned about, then two years ago out of nowhere like the little menace that it is it started to grow and started to become really painful. I headed off to the...
    GaryKary GaryKary 22-25 1 Response Feb 1, 2012

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    Suffering For Ten Years

    I have had ledderhose disease for over ten years now. I am at my wits end. I have gone to many doctors, acupuncturists, physical therapist. The only thing that seems to help is to have my feet on ice, or a good rub. I have not heard any promising reports on surgery. I have...
    CRUISERBUGS CRUISERBUGS 56-60 2 Responses Jul 22, 2011

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    I have just been diagnosed with Ledderhose

    Disease my specialist is recommended surgery followed by radiation therapy however I have been warned there is no guarantees the lump will not return. I would like to know what others have trie very scarred of surgery when the internet advice is surgery is the last resort.
    sibsOz sibsOz 46-50, F 1 Response Jan 10, 2014

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    A Bumpy Road

    The story starts about 3 years ago with the economic downturn. My family and I were forced to relocate and I returned to work. I have a good job but it requires being on my feet 8 to 12 hours a day. As the business grew so did the pain in my feet. First I was diagnosed with...
    bathnz83 bathnz83 46-50, F Aug 24, 2012

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    Lederhosen Story

    I am a 60 year old female with Lederhosen syndrome of both feet. I have been able to deal with the condition but lately, after wearing dress shoes with a heel I am experiencing severe cramping of my arches. Does anyone else have this? Is it related to Lederhosen or could I...
    Sorefeet1950 Sorefeet1950 56-60 14 Responses Feb 7, 2011

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    Scared About Surgery For Ledderhose Disease

    Hello, this is my first post. In Oct. 2010 I had surgery on my left foot for what I was told was a fibroma on my planter fascitis tendon. Turns out they did not get it all and in less than 10 months it was back. This time 4 X as large. Now I am told it is Ledderhose disease. I...
    alaskandiane alaskandiane 56-60 3 Responses Jan 26, 2012

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    I Have Ledderhose Disease, Please Educate.

    Hi, I am a 26 yr old female, I am married with 1 child. I began to notice "lumps" in the arches of my feet when I was around 18 yrs old, I knew there was a high chance I would get them because my mom, uncle, great grandmother, and great great grandmother had them. I went on...
    footsymomma footsymomma 26-30, F 7 Responses Apr 28, 2010

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    Ledderhose Disease

    I have had ledderhose disease for about 4-5 years. I have been getting cortisone shots that seem to help for awhile but the lump always comes back. I am on my feet quite a bit as I babysit my 2 young grandchildren and run after them all day. I have read so many stories about...
    herouxm herouxm 66-70 5 Responses Mar 4, 2012

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    Please help anyone ..

    . I have just being diagnosed with Ledderhose's Disease this week :( I have a ultrasound scan to confirm its existence. This is all very new to me and I must say upsetting. The work I do entails me being on my feet all day. I am only seeing the Orthopaedic Surgeon next month...
    TheManicOz TheManicOz 46-50, M 2 Responses Dec 6, 2013

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    For Everyone Suffering From Ledderhose Disease

    I have been in unbearable pain for the past year... Getting painful cortisone shots in my left foot then going threw a minor surgery which hurt badly and left me unable to walk for 3 weeks, Only for it to return 3 months after the surgery, now the doctor wants me to go threw...
    naomi83 naomi83 26-30, F 3 Responses Nov 13, 2012

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    My Story Without Surgery To Stop Or Reverse Progression...

    I noticed Ledderhose nodules around 3 years ago on both arches of my feet. They were pea sized and painful... After 2 years, they had progressed into marble sized and were very very painful. My left foot nodule is a little larger than the right. I showed my boss why I was...
    Garrett5302 Garrett5302 31-35, M 2 Responses Feb 24, 2013

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    Related Experiences

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    Has anyone else experienced enlarged sore breasts and numb pinky and ring fingers on the left hand ?
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    For anyone who had a rough time growing up I'm sure you'll understand when I say you always have those people who made you feel safe. I had 2, my grandmother who passed over 10...
    Recklessdesires Recklessdesires 31-35, F 5 Responses 1 day ago

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    It should be a crime to have kids if you have a family history of this disease. Around age 39 I contracted Epstein Barr virus which triggered SLE. My quality of life is very...
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    3 years ago my narcissistic mother got liver disease. Because I'm girl not like my golden brother who is working. I transferred to uni near my home to take care of her due to...
    nomin423 nomin423 22-25, F 2 days ago

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    I was diagnosed a few months ago and I had a really hard time dealing with it and I still do. I feel like no one cares that I have this disease because it's not cancer, so I won't...
    Haley145 Haley145 13-15, F 5 Responses 2 days ago

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    People defend doctors And pills And medical practices And military actions Then bash the disabled Or the government caring for broken While damaged By the wealthy...
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    The wealthy hoard And keep the poor in poverty. And keep society from improving Which makes earth sick But earth may survive them Or explode to remove them Like some...
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    I'm at that place in my life, where my mind has broke. Insanity follows me like a disease. I just... Idk...
    Drifter15 Drifter15 18-21, M 1 Response 4 days ago

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    My grandma had Alzheimer's disease before I was born then passed away when I was in high school. My dad always tells me that she's a strong woman and if she didn't have it, she...
    Roshiela Roshiela 18-21, F 1 Response 5 days ago

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    I lost my mother and my best friend/biggest fan best supporter - God i miss her so much:( -to Cancer-. She was diagnosed in ***1986*** (stage 4) she was told she had 6 months to...
    nsight nsight 46-50, F 2 Responses 5 days ago

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    Unfortunately, cancer is an equal opportunity predator. Watching a young, vibrant woman with young children lose her battle with this heart wrenching disease can certainly make...
    Olivia1962 Olivia1962 51-55, F 4 Responses 5 days ago

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    I look on here and am deeply saddened by the number of people who want to kill themselves. Many at such a young age, when they have not even begun to live their lives. They get in...
    GraceIsMine GraceIsMine 66-70, F 4 Responses 5 days ago

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    Im 13 almost 14 in 9th grade and I've had Crohns for 4 years now. But I've only been diagnosed with it about 4 months ago. I've been suffering with it without knowing that it was...
    Poptart020 Poptart020 13-15, F 1 Response 6 days ago

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    I have all 3 pleasurable diseases of OCD, Chronic Depression, and Anxiety. All eating away at my soul. I am in therapy..and it does work. However no one really understands the way...
    EleanorSmithson EleanorSmithson 18-21, F a week ago

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    I started getting my first stretch marks when I was a competitive cheerleader. I was 11-12 years old and pretty underweight. When I started gaining muscle so quickly, they came...
    ambiblue ambiblue 22-25, F 1 Response a week ago

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    Last week I tested positive for HSV1 and HSV2. My ex-boyfriend let me know he had it for 15 years. I guess it was a parting gift. He dropped the knowledge on me the night we broke...
    annab01 annab01 26-30, F 1 Response Jun 29

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    Do u think where there is love, it can break any barrier caused by a disease? ?
    kalpanapatel kalpanapatel 26-30, F 3 Responses Jun 28

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    I am a 17 year old girl from Pakistan. I was diagnosed with AIH in February. I was on 30mg deltacortril but my doc reduced it too quickly and my enzymes shot up to 2000. We changed...
    Saharbasit Saharbasit 16-17, F 1 Response Jun 27

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    I was diagnosed from my kidney doc after a Biopsy that I had sjogrens, but my Rhuemetologist says no ( I don't like him and am changing to a new one) I already have kidney disease...
    katsass katsass 46-50, F Jun 27

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    So this is embarrassing to admit, but my teeth are in poor shape because I didn’t take care of them for years. I haven’t had dental insurance for 8 years and when I went back...
    SpilledSecrets SpilledSecrets 26-30, F 1 Response Jun 27

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    my name is murtada , im from saudi arabia 29 years old ,, i need someone to help me about darier's , because now more than 15 years I have it ,, i use medicine but noting deferent...
    murtada1986 murtada1986 26-30, M Jun 26

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    My derm, said we could try humira i was desperate and agreed, the first month i used it, i was sick like i had the flu, they got me to stop for a month, then i picked up the...
    mtthwadair mtthwadair 46-50 Jun 26

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    Here's the picture of the lump sticking out of my knee. Unfortunately I will have this lump for the rest of my life :(
    HMC17 HMC17 13-15, M 7 Responses Jun 26

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    I have Osgood-Schlatter Disease and I hate it. It's painful, I have a permanent lump under my knee and it restricts the amount of exercise I do (which is a massive down point for...
    HMC17 HMC17 13-15, M 5 Responses Jun 26

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