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I Have Ledderhose Disease

A Ledderhose Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ledderhose Disease. You're not alone. 41 People

    Please help anyone ..

    . I have just being diagnosed with Ledderhose's Disease this week :( I have a ultrasound scan to confirm its existence. This is all very new to me and I must say upsetting. The work I do entails me being on my feet all day. I am only seeing the Orthopaedic Surgeon next month...
    TheManicOz TheManicOz 46-50, M 2 Responses Dec 6, 2013

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    Suffering For Ten Years

    I have had ledderhose disease for over ten years now. I am at my wits end. I have gone to many doctors, acupuncturists, physical therapist. The only thing that seems to help is to have my feet on ice, or a good rub. I have not heard any promising reports on surgery. I have...
    CRUISERBUGS CRUISERBUGS 56-60 2 Responses Jul 22, 2011

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    Lederhosen Story

    I am a 60 year old female with Lederhosen syndrome of both feet. I have been able to deal with the condition but lately, after wearing dress shoes with a heel I am experiencing severe cramping of my arches. Does anyone else have this? Is it related to Lederhosen or could I...
    Sorefeet1950 Sorefeet1950 56-60 14 Responses Feb 7, 2011

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    I have just been diagnosed with Ledderhose

    Disease my specialist is recommended surgery followed by radiation therapy however I have been warned there is no guarantees the lump will not return. I would like to know what others have trie very scarred of surgery when the internet advice is surgery is the last resort.
    sibsOz sibsOz 46-50, F Jan 10, 2014

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    Scared About Surgery For Ledderhose Disease

    Hello, this is my first post. In Oct. 2010 I had surgery on my left foot for what I was told was a fibroma on my planter fascitis tendon. Turns out they did not get it all and in less than 10 months it was back. This time 4 X as large. Now I am told it is Ledderhose disease. I...
    alaskandiane alaskandiane 56-60 3 Responses Jan 26, 2012

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    Facing Second Surgery

    Had surgery on both feet for this 9 years ago. Lumps are back. Mom and sister Both have had multiple operatios. Don't want to do it again. Anyone have success with any other method?
    Sharonricewallis Sharonricewallis 51-55 2 Responses May 31, 2011

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    I Have Ledderhose Disease, Please Educate.

    Hi, I am a 26 yr old female, I am married with 1 child. I began to notice "lumps" in the arches of my feet when I was around 18 yrs old, I knew there was a high chance I would get them because my mom, uncle, great grandmother, and great great grandmother had them. I went on...
    footsymomma footsymomma 26-30, F 6 Responses Apr 28, 2010

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    Hi I have ledderhose,

    I have thick tumors on the bottom of both feet and new small ones popping up, i had them taken out years ago but they came back, so bad my legs hurt, it is bad to have this diease but good to know I am not alone
    elviscentral elviscentral 51-55, F Dec 4, 2013

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    Ledderhose Disease In North Texas

    I've had numerous surgeries on my right foot and one on my left foot in 2005. The lumps reoccured in about 2 years but my surgeon retired and I've not found another surgeon willing to perform surgery. The three that I saw said I should just live with it. It is hard enough knowing...
    fiddlebows fiddlebows 56-60 5 Responses Jul 3, 2011

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    Ledderhose My Experience

    Growing up I was sure I had a little bump in the arch of my foot but there was no pain, no growth and nothing to be concerned about, then two years ago out of nowhere like the little menace that it is it started to grow and started to become really painful. I headed off to the...
    GaryKary GaryKary 22-25 1 Response Feb 1, 2012

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    A Bumpy Road

    The story starts about 3 years ago with the economic downturn. My family and I were forced to relocate and I returned to work. I have a good job but it requires being on my feet 8 to 12 hours a day. As the business grew so did the pain in my feet. First I was diagnosed with...
    bathnz83 bathnz83 46-50, F Aug 24, 2012

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    For Everyone Suffering From Ledderhose Disease

    I have been in unbearable pain for the past year... Getting painful cortisone shots in my left foot then going threw a minor surgery which hurt badly and left me unable to walk for 3 weeks, Only for it to return 3 months after the surgery, now the doctor wants me to go threw...
    naomi83 naomi83 26-30, F 3 Responses Nov 13, 2012

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    I Have Ledderhose & Dupuytren's Disease

    I am a 41 year old male who has Planter Fibroma on my feet and Dupuytren's on both hands. I am having surgery for my Ledderhose, despite all the horror stories I have read or heard regarding this method. The lump is the size of a large grape and I am nervous about the surgery. I...
    Metzie Metzie 41-45, M 2 Responses Jul 24, 2012

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    My Story Without Surgery To Stop Or Reverse Progression...

    I noticed Ledderhose nodules around 3 years ago on both arches of my feet. They were pea sized and painful... After 2 years, they had progressed into marble sized and were very very painful. My left foot nodule is a little larger than the right. I showed my boss why I was...
    Garrett5302 Garrett5302 31-35, M 1 Response Feb 24, 2013

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    Ledderhose Disease

    I have had ledderhose disease for about 4-5 years. I have been getting cortisone shots that seem to help for awhile but the lump always comes back. I am on my feet quite a bit as I babysit my 2 young grandchildren and run after them all day. I have read so many stories about...
    herouxm herouxm 66-70 5 Responses Mar 4, 2012

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    Related Experiences

    Well I was the exact age I am now when I found out I had this disease. I didn't know I had it, I only knew that there was something wrong with me How did you find out about it? I...
    awsome2 awsome2 18-21, M 3 days ago

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    I'm 19 and I have Menieres Disease in both of my ears. My disease has affected my hearing more than anything. I'm half deaf, I cannot hear anything out of my right ear, and my left...
    Gabyy17 Gabyy17 18-21, F Feb 18

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    My Mum has celiac disease . One speck of gluten sends her dashing off to the bogs. So it's a gluten free zone in our household . Actually gluten is a bit like glue . It helps...
    Homejames Homejames 51-55, M 3 days ago

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    After months of stomach aches and losing a ton of weight and looking pale, a doctor finally figured it out. So I was diagnosed with Celiac Disease when I was about 2 and a half...
    SparkleSwirl SparkleSwirl 18-21, F Feb 6

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    It's so hard having celiac disease and no one in my house understands and doesn't take me seriously....nothing hurts more than seeing everyone eat pizza and having fun saying whats...
    glisteningheartz glisteningheartz 18-21, F 2 Responses Feb 6

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    22 years old. Already gone through menopause, why not also go through thyroid disease as well to really make me feel like I am in my 60's. The only young part about me is the way I...
    MyCrookedSmile MyCrookedSmile 22-25, F 4 Responses Feb 24

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    Me too, I was diagnosed when I was 9 (now I'm 14). I've been on the SCD diet to treat it since I was diagnosed and it's kept me in remission for most of that time. When I have a...
    ellajade ellajade 13-15, F Feb 18

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    Was diagnosed in 2012. It's still grumbling away and appears to be coming back. I can't remember what it feels like to be normal and happy. I'm a different person from who I used...
    Lalassa Lalassa 22-25, F Feb 20

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    Hello people, I am 40 years old I have severe periodontal disease, I am not here for pity, its my fault I have this, poor hygiene in my younger years, smoking unfilterred cigrettes...
    Wakeup56 Wakeup56 36-40, M 1 Response a week ago

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    Okay this might going to be a long post Does this ever happen to you that you are living a ****** life and then you are straight transported to cloud 9 then again everything comes...
    eriloves1D eriloves1D 16-17, F 2 Responses 3 days ago

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    I have known since 22 that I have this disease. High BP has been my only symptom. Now I feel as though my torso is crowded. Breathing can be difficult especially after eating...
    panoon12 panoon12 31-35, F 1 Response Feb 24

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    I know I've written about this before. It's been a while but it is still up there on my profile as an experience. When I wrote that, it was still when my hair was growing out. I...
    Narp12 Narp12 18-21, F 1 Response Feb 17

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    I have a liver biopsy next week to confirm my doctor's suspicion that I have autoimmune hepatitis. I started with strep and mono at the beginning of this year along with being...
    Singer87 Singer87 31-35, F 2 Responses Feb 21

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    Had it since I was about 4 or 5. I'm considering getting a medic alert tattoo, I figure I'll have this disease forever, and it could look cool.
    fireraven23 fireraven23 18-21, M 3 days ago

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    PAN (Patient Access Network) Foundation Launches Financial Assistance for Patients Living with Parkinson’s Disease: http://www.panfoundation.org/news-article-list/365-pan...
    LifeinWoodinville LifeinWoodinville 41-45, M 1 Response Feb 23

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    Well I thought, for some silly reason, that I was the only person with Parkinson's Disease that had the horrible morning toes problem. Turns out it's more common then I thought...
    LifeinWoodinville LifeinWoodinville 41-45, M 2 Responses Feb 6

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    I have recently been diagnosed with Meningitis/Mycoplasma pneumonia encephalitis. I try to google this disease and BARELY find anything about it. What I do read scares the crap...
    amiedawn419 amiedawn419 36-40, F Feb 11

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    its with me daily has been since I was born - I am different because of it - no one can see it or notice it- its my invisible disease. I look healthy active happy and generally...
    blonde10 blonde10 36-40, F 2 Responses 5 days ago

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    I have known for 3 yrs that I have Hashimoto's but I believe I have had it for 25 yrs. It started during my 2nd pregnancy. My Dr over the years kept treating the symptoms with...
    physio56 physio56 56-60, F 4 days ago

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    For all the AIP sufferers, please check out the Porphyria Foundation they are there to help you deal with this disease. Yes you can get ssi or ssd in my case, ssd. Look up your...
    dee450 dee450 46-50 Feb 8

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    Lyme, CFS, MS??!?!?? I recently was diagnosed with Mycoplasma pneumonia encephalitis/meningitis which from what i understand, goes hand in hand with Lyme. The doctors also thought...
    amiedawn419 amiedawn419 36-40, F Feb 11

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    Hi everyone, I'm 20 college girl student. I've just diagnosed that I have TB and now I'm in medication since October last year. But I'm so afraid and so shy to tell the truth to...
    imegw imegw 18-21, F 3 Responses Feb 25

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    Have any of you kept up with news recently? Apparently, there are studies now that show this is a disease and the medical community will start treating it as a disease. Looks like...
    awesomesauce2 awesomesauce2 22-25, M 3 Responses a week ago

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    I was diagnosed with this disease 2 years ago at the age of 64. I am very angry about this. I don't know what could have caused this; it came out of nowhere. I recently moved into...
    PP711 PP711 66-70 1 day ago

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    I tell you where it's from Africa That's from where Ebola comes West Side It hides in the suitcase 2 days later It lands in USA I get it from my girlfriend & give it to my dad I...
    TheRoni3456 TheRoni3456 13-15, F 1 Response Feb 5

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    Hi, I can't describe what it is like to find others who understand the pain we all deal with everyday. I am 43, I was given the diagnosis about 15 years ago. Currently, I spend at...
    11061106s 11061106s 41-45 Feb 5

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    The longing for what exists only in your head is my deadly disease that will never be cured. I have to accept I am a dweller in my ideal words and a tourist in reality. Melancholia...
    Danceofhours Danceofhours 41-45, M Feb 7

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    I have Depression, BPD, and oh yeah, anxiety. It's ruined many great experiences and chances in my life. It had closed many doors. I hit rock bottom again and again. In less than 2...
    Vyper9 Vyper9 31-35, F Feb 9

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