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I Have Ledderhose Disease

A Ledderhose Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ledderhose Disease. You're not alone. 39 People

    Lederhosen Story

    I am a 60 year old female with Lederhosen syndrome of both feet. I have been able to deal with the condition but lately, after wearing dress shoes with a heel I am experiencing severe cramping of my arches. Does anyone else have this? Is it related to Lederhosen or could I...
    Sorefeet1950 Sorefeet1950 56-60 14 Responses Feb 7, 2011

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    Ledderhose My Experience

    Growing up I was sure I had a little bump in the arch of my foot but there was no pain, no growth and nothing to be concerned about, then two years ago out of nowhere like the little menace that it is it started to grow and started to become really painful. I headed off to the...
    GaryKary GaryKary 22-25 1 Response Feb 1, 2012

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    Ledderhose Disease

    I have had ledderhose disease for about 4-5 years. I have been getting cortisone shots that seem to help for awhile but the lump always comes back. I am on my feet quite a bit as I babysit my 2 young grandchildren and run after them all day. I have read so many stories about...
    herouxm herouxm 66-70 5 Responses Mar 4, 2012

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    Facing Second Surgery

    Had surgery on both feet for this 9 years ago. Lumps are back. Mom and sister Both have had multiple operatios. Don't want to do it again. Anyone have success with any other method?
    Sharonricewallis Sharonricewallis 51-55 2 Responses May 31, 2011

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    Please help anyone ..

    . I have just being diagnosed with Ledderhose's Disease this week :( I have a ultrasound scan to confirm its existence. This is all very new to me and I must say upsetting. The work I do entails me being on my feet all day. I am only seeing the Orthopaedic Surgeon next month...
    TheManicOz TheManicOz 46-50, M 2 Responses Dec 6, 2013

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    Scared About Surgery For Ledderhose Disease

    Hello, this is my first post. In Oct. 2010 I had surgery on my left foot for what I was told was a fibroma on my planter fascitis tendon. Turns out they did not get it all and in less than 10 months it was back. This time 4 X as large. Now I am told it is Ledderhose disease. I...
    alaskandiane alaskandiane 56-60 3 Responses Jan 26, 2012

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    A Bumpy Road

    The story starts about 3 years ago with the economic downturn. My family and I were forced to relocate and I returned to work. I have a good job but it requires being on my feet 8 to 12 hours a day. As the business grew so did the pain in my feet. First I was diagnosed with...
    bathnz83 bathnz83 46-50, F Aug 24, 2012

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    For Everyone Suffering From Ledderhose Disease

    I have been in unbearable pain for the past year... Getting painful cortisone shots in my left foot then going threw a minor surgery which hurt badly and left me unable to walk for 3 weeks, Only for it to return 3 months after the surgery, now the doctor wants me to go threw...
    naomi83 naomi83 26-30, F 3 Responses Nov 13, 2012

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    Ledderhose Disease In North Texas

    I've had numerous surgeries on my right foot and one on my left foot in 2005. The lumps reoccured in about 2 years but my surgeon retired and I've not found another surgeon willing to perform surgery. The three that I saw said I should just live with it. It is hard enough knowing...
    fiddlebows fiddlebows 56-60 5 Responses Jul 3, 2011

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    I Have Ledderhose & Dupuytren's Disease

    I am a 41 year old male who has Planter Fibroma on my feet and Dupuytren's on both hands. I am having surgery for my Ledderhose, despite all the horror stories I have read or heard regarding this method. The lump is the size of a large grape and I am nervous about the surgery. I...
    Metzie Metzie 41-45, M 2 Responses Jul 24, 2012

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    Suffering For Ten Years

    I have had ledderhose disease for over ten years now. I am at my wits end. I have gone to many doctors, acupuncturists, physical therapist. The only thing that seems to help is to have my feet on ice, or a good rub. I have not heard any promising reports on surgery. I have...
    CRUISERBUGS CRUISERBUGS 56-60 2 Responses Jul 22, 2011

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    Hi I have ledderhose,

    I have thick tumors on the bottom of both feet and new small ones popping up, i had them taken out years ago but they came back, so bad my legs hurt, it is bad to have this diease but good to know I am not alone
    elviscentral elviscentral 51-55, F Dec 4, 2013

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    I Have Ledderhose Disease, Please Educate.

    Hi, I am a 26 yr old female, I am married with 1 child. I began to notice "lumps" in the arches of my feet when I was around 18 yrs old, I knew there was a high chance I would get them because my mom, uncle, great grandmother, and great great grandmother had them. I went on...
    footsymomma footsymomma 26-30, F 6 Responses Apr 28, 2010

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    I have just been diagnosed with Ledderhose

    Disease my specialist is recommended surgery followed by radiation therapy however I have been warned there is no guarantees the lump will not return. I would like to know what others have trie very scarred of surgery when the internet advice is surgery is the last resort.
    sibsOz sibsOz 46-50, F Jan 10

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    My Story Without Surgery To Stop Or Reverse Progression...

    I noticed Ledderhose nodules around 3 years ago on both arches of my feet. They were pea sized and painful... After 2 years, they had progressed into marble sized and were very very painful. My left foot nodule is a little larger than the right. I showed my boss why I was...
    Garrett5302 Garrett5302 31-35, M 1 Response Feb 24, 2013

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    Related Experiences

    I'm 29 y.o. now. Living in eastern Europe. For 8 year I'm aware that I have Lyme Disease. 8 years ago my neurological (only - no joint pain) blew up my life. I was a second college...
    someSadMan someSadMan 26-30, M 1 Response Aug 28

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    With Sept being thyroid awareness month, I wanted to share my experience w/ thyroid disease. Within a yr of separating from the Air Force in 2005, I started experiencing strange...
    afdragon afdragon 36-40, F Sep 8

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    I know what you're going through and I'm so sorry that you are. When I read this group and the postings in it, I cried the entire time because your experiences are eerily close to...
    smgreen1703 smgreen1703 22-25, F Aug 24

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    I have really amazing news!!! I received Radioactive Iodine treatment about 4 months ago due to an incredibly large flare up that left me sick for a couple of months. But the...
    CharliBrown CharliBrown 16-17, F 2 Responses Sep 5

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    Can someone here explain to me the kind of pain and location they had/have during issues with their liver? And any other symptoms? I have been having mild but persistent acking...
    sugarcakes143 sugarcakes143 18-21, F 1 Response Aug 28

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    I found out I have Celiac in 2008. I cannot eat bread, pasta, or cereal that contains wheat, barley, or rye. Anyone want to share recipes for gluten free?
    jrice356 jrice356 46-50, F 1 Response Sep 1

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    I have not been diagnosed as of yet, I am 47 and use to be a fairly healthy drinker, all tests are normal,but I can tell something is very wrong. Dull pain under right rib cage...
    skyriter88 skyriter88 46-50 Sep 10

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    I was diagnosed 7 years ago, after my first child was born. I was lucky enough not to experience any significant symptoms until just recently...and it just seems to be heading...
    suzeq42 suzeq42 31-35, F 2 Responses Sep 4

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    HEYO!!! BE AWESOME ALWAYS EVERYDAY ALL THE TIME!!!
    AddieSwag AddieSwag 36-40 1 Response 4 days ago

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    I was recently married and working at a full time job at a medical clinic. We were having our yearly wellness exam for our insurance. Not even 2 days later, I received my results...
    Ilovetosing626 Ilovetosing626 26-30, F Aug 22

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    I'm pretty sure I have Lyme Disease... And after reading everyone's experiences, I am almost positive. I pulled a tick off of me about three years ago and developed the signature...
    Efmatthe9 Efmatthe9 22-25, F Sep 13

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    three more diseases to hit the world
    wessel wessel 51-55, M 4 hrs ago

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    My husband has just been diagnosed with Ocular cicatricial pemphigoid. Hoping to connect with others who also have this rare disease
    jroush jroush 51-55, F 3 hrs ago

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    i fell in love with my best friend when i was 17, her name was sarah.we always done everything together, even went to the same art course. she helped me out through some dark times...
    Thebrokengingerbreadman Thebrokengingerbreadman 22-25, M 1 Response Sep 4

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    Laser eye surgery in under a month l have no option but to try this l have a severe case of this disease and have to be taken off all of my steroids due to health risk/problems...
    Tspklondon Tspklondon 26-30, F Sep 6

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    My mom told me once that her disease made her feel like an octopus. I said what do you mean? She said her arms and legs feel like they are out of control. She wants me to take her...
    WildHydrangeas WildHydrangeas 26-30, F 2 Responses Aug 26

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    I was diagnosed about 3 years ago. Been sick for at least 5 years, probably longer. I have tried many meds and still can't get my disease out of an active state. Not sure what...
    Enaed Enaed 46-50, F Aug 29

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    I have seen a lot of people on EP and in real life throwing this word around like a hot potato. The two most inappropriately used words in this generation, in my personal opinion...
    AlexandriaDark AlexandriaDark 18-21, F Aug 30

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    I have had bloating and gas, alternating with constipation and hemorrhoids, and was told I had irritable bowel syndrome, for several years now. in 2006, I went through some very...
    gastricwoman gastricwoman 51-55 Aug 30

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    I believe it's a disease. It's sad that girls find that the right way to go even though everyone is best the way they are. No one should feel they need to change in order to keep...
    ThrivingIvory ThrivingIvory 16-17, M Sep 6

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    Depression is not a disease, you cant catch it you can not spread it, and depression can not be "cured" in the same way as say diabetes or a flu *rolls eyes*
    xXAriannaXx xXAriannaXx 13-15, F Sep 6

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    My mom has Chronic Lyme Disease.
    SpainPortugal SpainPortugal 18-21, F 1 Response 1 day ago

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    I have polycystic kidney disease. The largest cyst measures 6cm in right and 5cm in left kidney. the latest scan report says that 'corticomedullary differentiation lost in with...
    aneetasree aneetasree 31-35, F Aug 22

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    Yesterday, something happened to me that scared the crap out of me. For more than ten years, I have had Ménière's disease. I was shopping in Target when I was suddenly hit with...
    scottdavidsmith scottdavidsmith 46-50, M 1 Response Aug 22

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    Did anyone else contact this disease right after receiving vaccinations? I contacted this disease one week after receiving TDAP and Shingles vaccinations.
    Bluesntennis Bluesntennis 66-70, M 1 Response Aug 22

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    i went to the doctors one day for a physical, the lady sent me to endocrinologist. he took my blood work and said my levels were very low and i was too take a pill of 88 milligrams...
    mlhenry mlhenry 18-21, F 1 Response Sep 1

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    My dad was recently diagnosed with MELAS. He is 48 years old. He has been in and out of the hospital due to seizures and what we thought were strokes. He suffers from hearing loss...
    ering08 ering08 22-25, F 1 Response Sep 1

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    As a zoologist I have always depended on my physical wellness to support my life motivations. It was only around 2 years ago I noticed that there was a big change to my physical...
    nanedesu nanedesu 26-30, F Sep 5

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    I have a heart disease known as Tetralogy of Fallot, and I've had since before birth. This is a defect that causes a hole in ones heart, and I had surgery after I was born. This...
    StarShineGirl StarShineGirl 16-17, F 2 Responses Sep 6

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    I struggle with it everyday. My mom thought this might help. Im trying new things so here goes nothing. I dont want to be defined by my disease, but everything i do is impacted by...
    BrittMari BrittMari 16-17, F 2 Responses Sep 12

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    Today was the APDA Parkinson's Walk in Seattle. It was a pretty good turn out. In total the walk raised almost $26,000 for Parkinson's research. Personally I was able to raise...
    LifeinWoodinville LifeinWoodinville 41-45, M 3 Responses 6 days ago

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    I contracted q fever while visiting farms looking for a baby goat for my son for Easter in the spring of 2012. I was fatigued and my joints hurt something terrible. When it was...
    myfamilymatters myfamilymatters 36-40 Aug 27

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    I first started losing my hearing when I was 13. I suffered an abrupt and massive hearing loss literally over night when I was 13, and I had to be fitted for a hearing aid in my...
    Runningagainstthewind Runningagainstthewind 22-25, F Aug 29

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