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I Have Ledderhose Disease

A Ledderhose Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ledderhose Disease. You're not alone. 42 People

    Ledderhose Disease

    I have had ledderhose disease for about 4-5 years. I have been getting cortisone shots that seem to help for awhile but the lump always comes back. I am on my feet quite a bit as I babysit my 2 young grandchildren and run after them all day. I have read so many stories about...
    herouxm herouxm 66-70 5 Responses Mar 4, 2012

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    A Bumpy Road

    The story starts about 3 years ago with the economic downturn. My family and I were forced to relocate and I returned to work. I have a good job but it requires being on my feet 8 to 12 hours a day. As the business grew so did the pain in my feet. First I was diagnosed with...
    bathnz83 bathnz83 46-50, F Aug 24, 2012

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    I Have Ledderhose & Dupuytren's Disease

    I am a 41 year old male who has Planter Fibroma on my feet and Dupuytren's on both hands. I am having surgery for my Ledderhose, despite all the horror stories I have read or heard regarding this method. The lump is the size of a large grape and I am nervous about the surgery. I...
    Metzie Metzie 41-45, M 2 Responses Jul 24, 2012

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    My Story Without Surgery To Stop Or Reverse Progression...

    I noticed Ledderhose nodules around 3 years ago on both arches of my feet. They were pea sized and painful... After 2 years, they had progressed into marble sized and were very very painful. My left foot nodule is a little larger than the right. I showed my boss why I was...
    Garrett5302 Garrett5302 31-35, M 3 Responses Feb 24, 2013

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    Ledderhose Disease In North Texas

    I've had numerous surgeries on my right foot and one on my left foot in 2005. The lumps reoccured in about 2 years but my surgeon retired and I've not found another surgeon willing to perform surgery. The three that I saw said I should just live with it. It is hard enough knowing...
    fiddlebows fiddlebows 56-60 5 Responses Jul 3, 2011

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    Lederhosen Story

    I am a 60 year old female with Lederhosen syndrome of both feet. I have been able to deal with the condition but lately, after wearing dress shoes with a heel I am experiencing severe cramping of my arches. Does anyone else have this? Is it related to Lederhosen or could I...
    Sorefeet1950 Sorefeet1950 56-60 14 Responses Feb 7, 2011

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    Ledderhose My Experience

    Growing up I was sure I had a little bump in the arch of my foot but there was no pain, no growth and nothing to be concerned about, then two years ago out of nowhere like the little menace that it is it started to grow and started to become really painful. I headed off to the...
    GaryKary GaryKary 22-25 2 Responses Feb 1, 2012

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    For Everyone Suffering From Ledderhose Disease

    I have been in unbearable pain for the past year... Getting painful cortisone shots in my left foot then going threw a minor surgery which hurt badly and left me unable to walk for 3 weeks, Only for it to return 3 months after the surgery, now the doctor wants me to go threw...
    naomi83 naomi83 26-30, F 3 Responses Nov 13, 2012

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    I Have Ledderhose Disease, Please Educate.

    Hi, I am a 26 yr old female, I am married with 1 child. I began to notice "lumps" in the arches of my feet when I was around 18 yrs old, I knew there was a high chance I would get them because my mom, uncle, great grandmother, and great great grandmother had them. I went on...
    footsymomma footsymomma 26-30, F 8 Responses Apr 28, 2010

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    I have just been diagnosed with Ledderhose

    Disease my specialist is recommended surgery followed by radiation therapy however I have been warned there is no guarantees the lump will not return. I would like to know what others have trie very scarred of surgery when the internet advice is surgery is the last resort.
    sibsOz sibsOz 46-50, F 1 Response Jan 10, 2014

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    Hi I have ledderhose,

    I have thick tumors on the bottom of both feet and new small ones popping up, i had them taken out years ago but they came back, so bad my legs hurt, it is bad to have this diease but good to know I am not alone
    elviscentral elviscentral 51-55, F Dec 4, 2013

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    Facing Second Surgery

    Had surgery on both feet for this 9 years ago. Lumps are back. Mom and sister Both have had multiple operatios. Don't want to do it again. Anyone have success with any other method?
    Sharonricewallis Sharonricewallis 51-55 2 Responses May 31, 2011

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    Please help anyone ..

    . I have just being diagnosed with Ledderhose's Disease this week :( I have a ultrasound scan to confirm its existence. This is all very new to me and I must say upsetting. The work I do entails me being on my feet all day. I am only seeing the Orthopaedic Surgeon next month...
    TheManicOz TheManicOz 46-50, M 3 Responses Dec 6, 2013

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    Suffering For Ten Years

    I have had ledderhose disease for over ten years now. I am at my wits end. I have gone to many doctors, acupuncturists, physical therapist. The only thing that seems to help is to have my feet on ice, or a good rub. I have not heard any promising reports on surgery. I have...
    CRUISERBUGS CRUISERBUGS 56-60 2 Responses Jul 22, 2011

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    Scared About Surgery For Ledderhose Disease

    Hello, this is my first post. In Oct. 2010 I had surgery on my left foot for what I was told was a fibroma on my planter fascitis tendon. Turns out they did not get it all and in less than 10 months it was back. This time 4 X as large. Now I am told it is Ledderhose disease. I...
    alaskandiane alaskandiane 56-60 3 Responses Jan 26, 2012

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    Related Experiences

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    I have this disease which causes me to feel weak and without energy most of the time. I've always been kind of small for my age but I am also skinny and not very strong physically...
    laurenholliday laurenholliday 13-15, F 1 Response 1 day ago

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    My son had two malrotations before they found he had Hirschsprungs Disease. The first was at birth and the second was probably around 4-5 months old. We thought we were going to...
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    I was born with ischemic heart disease
    MrsButterfly90 MrsButterfly90 22-25, F 3 days ago

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    OMG other people .. that have ischemic heart disease I didn't think this was possible
    MrsButterfly90 MrsButterfly90 22-25, F 3 days ago

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    I've started experiencing regular chest pains but my diet is good and I do get moderate exercise every week.At the doctors office, my vital signs were normal though, with somewhat...
    shaandar shaandar 31-35, F 1 Response 4 days ago

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    01Ledor 01Ledor 66-70, M 4 days ago

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    cathymcg123 cathymcg123 18-21, F 6 days ago

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    Hi I am Madison, I am 16 years old and developed Darier’s disease when I was 2. The condition started with just a few bumps around my mouth, and by the time I was about eight I...
    Maddie314 Maddie314 16-17, F 6 days ago

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    I have severe social anxiety, degenerative disc disease, spinal stenosis, nerve inpengment. I am losing my ability to walk. I don't trust people. what's worst, I'm engaged to a...
    PrincessMouse86 PrincessMouse86 26-30, F a week ago

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    Hi, I am male and retired and was diagnosed with EF in July 2014. I started treatment in August 2014 and now it is a year later and I am already much better. I hope that gives you...
    mogfitz mogfitz 66-70, M a week ago

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    A week ago I had my appendix out with and appendectomy. Last Thursday, I was told I have cancer in my appendix. I was also told that it is a very very rare cancer. Of all colon...
    emoenjr emoenjr 46-50, M 1 Response Jul 19

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    Hi.. I was recently diagnosed with hashimoto's a few months ago. My mom just got diagnosed and so did my 12 year old sister. I have been battling depression, bipolar, anxiety...
    twiztid187 twiztid187 22-25, F Jul 18

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    I have a child that may have Pendred's syndrome. This is a rare recessive gene, passed down by parents causing deafness in one or both ears. My daughter has deafness in one ear...
    arebella arebella 41-45, F Jul 18

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    Granulomatosis with polyangiitis (GPA) or formerly known as Wegener's Granulomatosis. It started...ooooooooohhhh I really duno. probably SOMEWHERE between or after December 2014...
    Juls4 Juls4 18-21, F Jul 18

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    I laughed about this for the rest of the day. In the hospital I work in, when a patient has an infectious disease or a MRSA infection their door is marked with a yellow sheet with...
    Abayoumi Abayoumi 26-30, F Jul 17

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    Ranjan Das, CEO and MD of SAP-Indian subcontinent died after a massive cardiac arrest in Mumbai recently. One of the youngest CEOs, he was only 42. What killed Ranjan Das? He was...
    bvaghela bvaghela 26-30, M 1 Response Jul 17

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    Well, ****. I had a solid 4 posts ready to be written (plus a lot of the other usual 2-sentence nonsensical stuff)... It seems I can't write in public places. Performance anxiety...
    ambivalentFriability ambivalentFriability 18-21 Jul 16

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    I am eighteen and still a virgin. Yes, in case you're wondering, I am waiting for the right person to give it to. I don't mean that I will wait for marriage (I don't really follow...
    sunatdawn214 sunatdawn214 18-21, F 8 Responses Jul 15

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    I'm still getting bumps and I've had this disease for twenty years. I've found that time in the sun and swimming are helpful. It's always going to be hard but try not to let it...
    StillSexy StillSexy 36-40, F 1 Response Jul 15

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    I am about to be seventeen in August and I still haven't had my surgery. Most patient's with this problem get there final operation done by the time they are ten or eleven years...
    TruthIsTheBest TruthIsTheBest 16-17 1 Response Jul 14

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    I am 1 in a million! Well 1.8 actually, A few years ago I was diagnosed with a rare disease called pigmented villonodular synovitis (PVNS). It affected my right knee. It's an...
    Birabian Birabian 26-30, F 1 Response Jul 14

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    For those of you who have just been diagnosed, or are still having a hard time dealing with this disease, I just want to take a moment to say "You CAN get through this!" When I...
    lil0miss0sunshine lil0miss0sunshine 22-25, F 2 Responses Jul 14

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    50 Things I have learned by suffering from depression and anxiety 1. The biggest struggle in Life is with “The Self and Our Worth” i.e. our EGO-we create these day dreams of...
    passionate6 passionate6 26-30, F 1 Response Jul 14

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    I should be thankful that my outbreaks thus far have not been bad (other than the initial ob) like how outbreaks look on the internet. Granted it still sucks I have disease the...
    Eg9801 Eg9801 22-25, F 2 Responses Jul 13

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    I have a autoimmune chronic illness called Crohn's Disease. It's been really hard for me to adjust, because I was diagnosed this year. It feels like a part of me is gone replaced...
    deleted deleted 26-30 1 Response Jul 13

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    One week I was Lindy Hopping and the next I couldn't bend my knees. I thought I had Lyme Disease. My inflammatory markers—CRP & Sed--were up. I had mild pain in the soft tissue...
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