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I Have Ledderhose Disease

A Ledderhose Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ledderhose Disease. You're not alone. 39 People

    Facing Second Surgery

    Had surgery on both feet for this 9 years ago. Lumps are back. Mom and sister Both have had multiple operatios. Don't want to do it again. Anyone have success with any other method?
    Sharonricewallis Sharonricewallis 51-55 2 Responses May 31, 2011

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    I Have Ledderhose Disease, Please Educate.

    Hi, I am a 26 yr old female, I am married with 1 child. I began to notice "lumps" in the arches of my feet when I was around 18 yrs old, I knew there was a high chance I would get them because my mom, uncle, great grandmother, and great great grandmother had them. I went on...
    footsymomma footsymomma 26-30, F 6 Responses Apr 28, 2010

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    Ledderhose Disease

    I have had ledderhose disease for about 4-5 years. I have been getting cortisone shots that seem to help for awhile but the lump always comes back. I am on my feet quite a bit as I babysit my 2 young grandchildren and run after them all day. I have read so many stories about...
    herouxm herouxm 66-70 5 Responses Mar 4, 2012

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    Ledderhose Disease In North Texas

    I've had numerous surgeries on my right foot and one on my left foot in 2005. The lumps reoccured in about 2 years but my surgeon retired and I've not found another surgeon willing to perform surgery. The three that I saw said I should just live with it. It is hard enough knowing...
    fiddlebows fiddlebows 56-60 5 Responses Jul 3, 2011

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    I Have Ledderhose & Dupuytren's Disease

    I am a 41 year old male who has Planter Fibroma on my feet and Dupuytren's on both hands. I am having surgery for my Ledderhose, despite all the horror stories I have read or heard regarding this method. The lump is the size of a large grape and I am nervous about the surgery. I...
    Metzie Metzie 41-45, M 2 Responses Jul 24, 2012

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    For Everyone Suffering From Ledderhose Disease

    I have been in unbearable pain for the past year... Getting painful cortisone shots in my left foot then going threw a minor surgery which hurt badly and left me unable to walk for 3 weeks, Only for it to return 3 months after the surgery, now the doctor wants me to go threw...
    naomi83 naomi83 26-30, F 3 Responses Nov 13, 2012

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    Lederhosen Story

    I am a 60 year old female with Lederhosen syndrome of both feet. I have been able to deal with the condition but lately, after wearing dress shoes with a heel I am experiencing severe cramping of my arches. Does anyone else have this? Is it related to Lederhosen or could I...
    Sorefeet1950 Sorefeet1950 56-60 14 Responses Feb 7, 2011

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    Scared About Surgery For Ledderhose Disease

    Hello, this is my first post. In Oct. 2010 I had surgery on my left foot for what I was told was a fibroma on my planter fascitis tendon. Turns out they did not get it all and in less than 10 months it was back. This time 4 X as large. Now I am told it is Ledderhose disease. I...
    alaskandiane alaskandiane 56-60 3 Responses Jan 26, 2012

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    Please help anyone ..

    . I have just being diagnosed with Ledderhose's Disease this week :( I have a ultrasound scan to confirm its existence. This is all very new to me and I must say upsetting. The work I do entails me being on my feet all day. I am only seeing the Orthopaedic Surgeon next month...
    TheManicOz TheManicOz 46-50, M 2 Responses Dec 6, 2013

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    I have just been diagnosed with Ledderhose

    Disease my specialist is recommended surgery followed by radiation therapy however I have been warned there is no guarantees the lump will not return. I would like to know what others have trie very scarred of surgery when the internet advice is surgery is the last resort.
    sibsOz sibsOz 46-50, F Jan 10

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    My Story Without Surgery To Stop Or Reverse Progression...

    I noticed Ledderhose nodules around 3 years ago on both arches of my feet. They were pea sized and painful... After 2 years, they had progressed into marble sized and were very very painful. My left foot nodule is a little larger than the right. I showed my boss why I was...
    Garrett5302 Garrett5302 31-35, M 1 Response Feb 24, 2013

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    Suffering For Ten Years

    I have had ledderhose disease for over ten years now. I am at my wits end. I have gone to many doctors, acupuncturists, physical therapist. The only thing that seems to help is to have my feet on ice, or a good rub. I have not heard any promising reports on surgery. I have...
    CRUISERBUGS CRUISERBUGS 56-60 2 Responses Jul 22, 2011

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    Ledderhose My Experience

    Growing up I was sure I had a little bump in the arch of my foot but there was no pain, no growth and nothing to be concerned about, then two years ago out of nowhere like the little menace that it is it started to grow and started to become really painful. I headed off to the...
    GaryKary GaryKary 22-25 1 Response Feb 1, 2012

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    Hi I have ledderhose,

    I have thick tumors on the bottom of both feet and new small ones popping up, i had them taken out years ago but they came back, so bad my legs hurt, it is bad to have this diease but good to know I am not alone
    elviscentral elviscentral 51-55, F Dec 4, 2013

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    A Bumpy Road

    The story starts about 3 years ago with the economic downturn. My family and I were forced to relocate and I returned to work. I have a good job but it requires being on my feet 8 to 12 hours a day. As the business grew so did the pain in my feet. First I was diagnosed with...
    bathnz83 bathnz83 46-50, F Aug 24, 2012

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    Related Experiences

    I got diagnosed about a year ago and everyone's always thought I was always scared do to my bulging eyes turns out I have Graves' disease
    germany100 germany100 18-21, F Aug 12

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    I know what you're going through and I'm so sorry that you are. When I read this group and the postings in it, I cried the entire time because your experiences are eerily close to...
    smgreen1703 smgreen1703 18-21, F 2 days ago

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    i started having panic and anxiety attacks when i was 9. people thought i was being abused i wasnt and didnt know what anxiety was i was 9! it wasnt until i was 23 that a keen...
    ericseamless ericseamless 31-35, M 1 Response Aug 11

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    More truthfully, my 4 year old has Wolman Disease. Does anyone out there have this? Live with this? Have a child that is healthy and living a happy life despite this? I'd love...
    AquaMama AquaMama 31-35, F Aug 4

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    I was born with a small right ventricle that doesn't pump so now I am living with half a heart! Stroke survivor, open heart surgery surviver, 3 major heart surgery survivor.
    Klcataldo Klcataldo 18-21, F 1 Response Aug 12

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    I was recently married and working at a full time job at a medical clinic. We were having our yearly wellness exam for our insurance. Not even 2 days later, I received my results...
    Ilovetosing626 Ilovetosing626 26-30, F 4 days ago

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    Hello everyone, I have had to find a place to vent my frustrations and hope that putting my experience into words will help me on my current journey. The lack of support from...
    linrob14 linrob14 46-50, F Aug 4

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    Hello everyone, I have had to find a place to vent my frustrations and hope that putting my experience into words will help me on my current journey. The lack of support from...
    linrob14 linrob14 46-50, F Aug 4

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    At 12 I started to notice a mood and personality change and have chalked up my sadness, mood swings, lack of interest, and inconsistent insomnia to near comatose states to being a...
    Bobbyckat Bobbyckat 18-21, F 1 Response Aug 15

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    My mom told me once that her disease made her feel like an octopus. I said what do you mean? She said her arms and legs feel like they are out of control. She wants a tattoo. She...
    WildHydrangeas WildHydrangeas 26-30, F 7 hrs ago

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    Did anyone else contact this disease right after receiving vaccinations? I contacted this disease one week after receiving TDAP and Shingles vaccinations.
    Bluesntennis Bluesntennis 66-70, M 4 days ago

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    My family has a history of diseases, especially cancer. These diseases were what left my mother and her siblings orphans at young ages. I knew that one of my grandparents was...
    JumpingTomatoes JumpingTomatoes 16-17 Jul 30

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    After a childhood filled with severe pain, day after day in bed..... countless visits to Hospitals...Mri scans...specialist appointments which amounted to nothing, no one could pin...
    thedayyouwentaway thedayyouwentaway 36-40, M 2 Responses Jul 31

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    I have had the disease since I was little, it didn't bother me much as a child. My favorite thing to do as a kid was swim. All my birthday parties were at the pool ( I didn't have...
    Iaquinto Iaquinto 22-25, M 1 Response Aug 3

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    I am 37 and have been diagnosed with MSK for 10 years now. I have two fantastic boys ages 16 and 17 and a very loving husband who is always ready to go to take over when I am sick...
    stonergirlstwins stonergirlstwins 36-40, F Aug 11

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    I'm not sure if I'm even reaching the right support group. I'm 32 years old I have just been diagnosed with Mixed connective tissue disease a few months ago, I have had 3 grand mal...
    monim23 monim23 31-35, F Aug 11

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    I'm on Day 4 now. I noticed some rashes three days ago but ignored it. I thought that some insect may have bitten me. I was without symptoms in general. The other day, I noticed...
    mareliberum mareliberum 26-30 2 Responses Aug 11

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    March, 2013 I was told I had polymyositis. My Doctor said I was using 20% of my muscle. I lost my job and living on SSD. My treatments are IVIG and predisone. When I first...
    Numberplay Numberplay 46-50, F Aug 17

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    I have polycystic kidney disease. The largest cyst measures 6cm in right and 5cm in left kidney. the latest scan report says that 'corticomedullary differentiation lost in with...
    aneetasree aneetasree 31-35, F 5 days ago

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    Yesterday, something happened to me that scared the crap out of me. For more than ten years, I have had Ménière's disease. I was shopping in Target when I was suddenly hit with...
    scottdavidsmith scottdavidsmith 46-50, M 1 Response 4 days ago

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    so I've had gum disease for pretty much my whole childhood all the way to now; and last year it got real bad, part of my gums had swollen and I didn't know what to do! my grandma...
    gypsykk gypsykk 18-21, F 2 Responses Jul 27

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    I work in a VA hospital which makes the possibility of seeing death a daily fact of life. Before that I was a medic in a combat zone, again a daily chance of witnessing death...
    hawkeye67 hawkeye67 46-50, M 1 Response Jul 27

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    Like a diseased tree, I've cut off the final toxic branches of friendship, which has left me feeling a bit desolate and depleted. I am not talking about online friendships. I'm...
    PlasticRobot PlasticRobot 36-40, F Jul 28

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    My greatest fear is not being able to have children. Ever since I was little I knew that I would want to be a mum someday. Then I started having strange nightmares about babies...
    Starkillera Starkillera 22-25, F Jul 29

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    I remember when I thought about overdosing.. I still do.. I'm thinking about it right now. Most people when I tell them this they say stop being selfish and trying to take your...
    SPNPLL SPNPLL 16-17, F 1 Response Jul 31

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    I have had morphea since 1965 at the age of 14. Back then it was extremely rare to find a doctor who even knew what morphea was. My morphea started as a round spot on my wrist...
    Muffygirl Muffygirl 61-65, F 1 Response Aug 1

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    In 2009 I was diagnosed with pandysautonomia - POTS after getting ill from having a flu shot. It has completely taken everything away from me. I have had problems with my blood...
    Buffy2014 Buffy2014 31-35, F 1 Response Aug 5

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    So im in NC with my NM and also, my father and brother. The only way they could communicate with me is via email. This is a very weird question, but I want to know what you would...
    Misstaco Misstaco 26-30, F 1 Response Aug 6

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    304 million people live in the U.S. One in 25 people will have the disorders associated with 'no conscience' which include antisocial personality disorder, sociopath, and...
    TygerLylly TygerLylly 36-40, F Aug 6

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    304 million people live in the U.S. One in 25 people will have the disorders associated with 'no conscience' which include antisocial personality disorder, sociopath, and...
    TygerLylly TygerLylly 36-40, F 1 Response Aug 6

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    I was ready someones experience and they said they were the only one's around with no tattoos. After watching many Sci-Fi movies in my time I am reminded of low budget Canadian...
    starduster79 starduster79 51-55, M 2 Responses Aug 8

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    I look like I have some sort of strange disease at the moment.. But I'd just like to take the time to sit and examine my pale complexion. I can't tan. I sunburn but don't get...
    Pxppunkprincess Pxppunkprincess 16-17, F 1 Response Aug 8

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    INTERVIEW WITH PATRICK CALLAHAN, PARANORMAL EXPERIENCER By Deanna Jaxine Stinson, HPI Paranormal Diva Haunted and Paranormal Investigations - HPI International https://www.facebook...
    PaulDaleRoberts PaulDaleRoberts 51-55, M Aug 9

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    Hi there, I am 52 and have a little boy who is 10 and a husband. I am feeling very low at the moment. I used to be very physical, skiing, dancing, the gym. I am sitting here...
    felinemoonbeast felinemoonbeast 46-50