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I Have Ledderhose Disease

A Ledderhose Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ledderhose Disease. You're not alone. 40 People

    I Have Ledderhose Disease, Please Educate.

    Hi, I am a 26 yr old female, I am married with 1 child. I began to notice "lumps" in the arches of my feet when I was around 18 yrs old, I knew there was a high chance I would get them because my mom, uncle, great grandmother, and great great grandmother had them. I went on...
    footsymomma footsymomma 26-30, F 6 Responses Apr 28, 2010

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    Scared About Surgery For Ledderhose Disease

    Hello, this is my first post. In Oct. 2010 I had surgery on my left foot for what I was told was a fibroma on my planter fascitis tendon. Turns out they did not get it all and in less than 10 months it was back. This time 4 X as large. Now I am told it is Ledderhose disease. I...
    alaskandiane alaskandiane 56-60 3 Responses Jan 26, 2012

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    A Bumpy Road

    The story starts about 3 years ago with the economic downturn. My family and I were forced to relocate and I returned to work. I have a good job but it requires being on my feet 8 to 12 hours a day. As the business grew so did the pain in my feet. First I was diagnosed with...
    bathnz83 bathnz83 46-50, F Aug 24, 2012

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    For Everyone Suffering From Ledderhose Disease

    I have been in unbearable pain for the past year... Getting painful cortisone shots in my left foot then going threw a minor surgery which hurt badly and left me unable to walk for 3 weeks, Only for it to return 3 months after the surgery, now the doctor wants me to go threw...
    naomi83 naomi83 26-30, F 3 Responses Nov 13, 2012

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    Hi I have ledderhose,

    I have thick tumors on the bottom of both feet and new small ones popping up, i had them taken out years ago but they came back, so bad my legs hurt, it is bad to have this diease but good to know I am not alone
    elviscentral elviscentral 51-55, F Dec 4, 2013

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    Ledderhose My Experience

    Growing up I was sure I had a little bump in the arch of my foot but there was no pain, no growth and nothing to be concerned about, then two years ago out of nowhere like the little menace that it is it started to grow and started to become really painful. I headed off to the...
    GaryKary GaryKary 22-25 1 Response Feb 1, 2012

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    I have just been diagnosed with Ledderhose

    Disease my specialist is recommended surgery followed by radiation therapy however I have been warned there is no guarantees the lump will not return. I would like to know what others have trie very scarred of surgery when the internet advice is surgery is the last resort.
    sibsOz sibsOz 46-50, F Jan 10

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    I Have Ledderhose & Dupuytren's Disease

    I am a 41 year old male who has Planter Fibroma on my feet and Dupuytren's on both hands. I am having surgery for my Ledderhose, despite all the horror stories I have read or heard regarding this method. The lump is the size of a large grape and I am nervous about the surgery. I...
    Metzie Metzie 41-45, M 2 Responses Jul 24, 2012

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    Ledderhose Disease

    I have had ledderhose disease for about 4-5 years. I have been getting cortisone shots that seem to help for awhile but the lump always comes back. I am on my feet quite a bit as I babysit my 2 young grandchildren and run after them all day. I have read so many stories about...
    herouxm herouxm 66-70 5 Responses Mar 4, 2012

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    Facing Second Surgery

    Had surgery on both feet for this 9 years ago. Lumps are back. Mom and sister Both have had multiple operatios. Don't want to do it again. Anyone have success with any other method?
    Sharonricewallis Sharonricewallis 51-55 2 Responses May 31, 2011

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    Please help anyone ..

    . I have just being diagnosed with Ledderhose's Disease this week :( I have a ultrasound scan to confirm its existence. This is all very new to me and I must say upsetting. The work I do entails me being on my feet all day. I am only seeing the Orthopaedic Surgeon next month...
    TheManicOz TheManicOz 46-50, M 2 Responses Dec 6, 2013

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    Lederhosen Story

    I am a 60 year old female with Lederhosen syndrome of both feet. I have been able to deal with the condition but lately, after wearing dress shoes with a heel I am experiencing severe cramping of my arches. Does anyone else have this? Is it related to Lederhosen or could I...
    Sorefeet1950 Sorefeet1950 56-60 14 Responses Feb 7, 2011

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    Ledderhose Disease In North Texas

    I've had numerous surgeries on my right foot and one on my left foot in 2005. The lumps reoccured in about 2 years but my surgeon retired and I've not found another surgeon willing to perform surgery. The three that I saw said I should just live with it. It is hard enough knowing...
    fiddlebows fiddlebows 56-60 5 Responses Jul 3, 2011

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    Suffering For Ten Years

    I have had ledderhose disease for over ten years now. I am at my wits end. I have gone to many doctors, acupuncturists, physical therapist. The only thing that seems to help is to have my feet on ice, or a good rub. I have not heard any promising reports on surgery. I have...
    CRUISERBUGS CRUISERBUGS 56-60 2 Responses Jul 22, 2011

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    My Story Without Surgery To Stop Or Reverse Progression...

    I noticed Ledderhose nodules around 3 years ago on both arches of my feet. They were pea sized and painful... After 2 years, they had progressed into marble sized and were very very painful. My left foot nodule is a little larger than the right. I showed my boss why I was...
    Garrett5302 Garrett5302 31-35, M 1 Response Feb 24, 2013

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    Related Experiences

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    purpleizzybee purpleizzybee 61-65 Apr 11

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    Don't know if it just happens to me .. But because I look ok everyone thinks nothing is wrong with me.. Autoimmune diseases you can't see them ... And having to explain to people...
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    I found Vitacost.com a long time ago and really like it,it has a lot of gluten free foods and other products.Here is my referral link for $10 off an order of $30 or more.If you are...
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    Hi, my name is Karla, I have been suffering with lymes chronic for the last 2 years. I need some advice on vitamins or foods that can help ease the pain and affects of lymes!!! I'm...
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    I slept in the hotel. The night produced an air raid of sound and light. I slept for only a few hours. Hardly a surprise to anyone familiar with me. I dreamt of a giant snake...
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    i was diagnosed of hep b in 2009 while i was in the university.. i constantly felt sick in the year 2006, when and how i had it i dont know. since 2011 i have been having series of...
    nanacquah nanacquah 26-30, M 1 Response 1 day ago

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    I was diagnose with polycythemia vera last 2010 but before the doctors found out that I have the disease I already suffered a lot of pain and agony, I was 43 years old at that...
    edcachero edcachero 46-50, M Mar 27

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    It feels so real, the thoughts keep coming. My brain whispers "your dying" "you can't breathe" "you have a disease" I can't sleep, I can't..I can't live like this..constant...
    girl3255 girl3255 16-17, F 2 Responses Mar 21

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    I have Lyme disease (not LYMES as some people tend to call it). I was diagnosed in November 2011. My first symptom was severe vertigo. Also, I experienced painful arthritis, brain...
    merelymandolin merelymandolin 31-35, F Apr 2

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    Intramarine Isolation Syndrome. It is what I have, my disease. Cool. Quiet. Sometimes green, sometimes blue. Dark, or shining in the sun, but it always feels like no one ever...
    WickedScullyOfTheWest WickedScullyOfTheWest 31-35, F Apr 6

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    For those of you who have this disease, you know it's not an easy one to deal with. It's annoying, painful, and stressful. You have to change your whole life style and listen very...
    Lo2011 Lo2011 22-25, F 4 Responses 2 days ago

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    Hello. My name is Channyn and here are 10 things that I've learned about myself since I've been diagnosed with Endometriosis that I would like to share with other Endo-sufferers...
    MrsHess MrsHess 18-21, F 1 Response Apr 4

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    My name is Tracy, I am 49 years old and have had HS since I was about 17, but this disease was only diagnosed with a name about 10 years ago. I honestly did not realize just how...
    pech0252 pech0252 46-50, F 1 hr ago

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    I have this horrible, painful, embarrassing disease as well. I just recently discovered that there was a support group for this. Even though I have my friends and family as a...
    pech0252 pech0252 46-50, F 2 hrs ago

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    i KNOW i can help. I have had Vestibular Migraines for 4 years now and I have a step by step way to take back control of your life and go back to living. Now before i go any...
    SOPHDOG SOPHDOG 22-25, F Apr 3

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    Dianaangel Dianaangel 18-21, F a week ago

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    I do not have Parkinson's disease but I added this experience because I plan to become a neurologist specializing in Parkinson's disease and I love reading what you have to say...
    emily39 emily39 18-21, F Mar 24

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    I was just diagnosed with Forestier's Disease or DISH...Diffuse Idiopathic Skeletal Hyperostosisin in my lower spine. I've had weakness in my legs, lower back for the past 4...
    halley888 halley888 46-50, F Mar 26

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    I have Lupus and Lupus nephritis an incurable autoimmune disease and kidney involvement. One of the issues of living with an incurable disease is that its also an invisible...
    Young24Lupus Young24Lupus 22-25, F 1 Response Mar 27

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    To the patients who have Lupus or other diseases, what diseases do you have? How long have you had it? Do you feel this diseases is going kill you? Got any "I almost died...
    heartbroken69 heartbroken69 36-40, F 1 Response Apr 2

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    As you know, this is a chronic disease with no known cure found in the Dermatology world. We are treating with Microcurrent and have had amazing results! The microcurrent is a very...
    drebertchiro14 drebertchiro14 56-60 2 days ago

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    I have been diagnosed with MCTD in May 13, 2013. I've been to doctors after doctors. Hospitals after hospital. None knew what was going on with me. I felt more weak each day...
    laquino98 laquino98 13-15, F Mar 20

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    I don't think people take anxiety seriously. It is a serious disease and i think it is a major symptom of depression and other psychological diseases. Experiencing a panic attack...
    Offing Offing 18-21, F 8 Responses Mar 30

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    I was never sick as a child-actually, quite the opposite. I was strong, rambunctious, energetic, and was constantly getting in to this I wasn't supposed to. Lol. So, fast forward...
    RustyJames2130 RustyJames2130 31-35, F Mar 23

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    TMI.... Or not enough? A week ago I had no idea what renal colic was. I knew it was bad and not something I wanted. A week ago a baby was still not entirely out of the question...
    owchimama owchimama 31-35, F Mar 25

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    The hardest thing about having something that makes you feel less desirable is you will start to believe you are. I found my mate when i was only 15 years old. I had only been...
    madi10 madi10 26-30, M 1 Response Mar 31

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    The hardest thing about having something that makes you feel less desirable is you will start to believe you are. I found my mate when i was only 15 years old. I had only been...
    madi10 madi10 26-30, M Mar 31

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    The hardest thing about having something that makes you feel less desirable is you will start to believe you are. I found my mate when i was only 15 years old. I had only been...
    madi10 madi10 26-30, M 2 Responses Mar 31

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    Tooth Loss- Understanding Tooth Loss and Dental Implants What Causes Tooth Loss? There are numerous reasons as to why people lose some, most or all of their teeth. One of the...
    suncitydental suncitydental 22-25, F Apr 4

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    I think I might have Cushing's Disease. Looking for someone who can explain what they went through with this.
    Jackson2033 Jackson2033 18-21, F 1 Response Apr 4

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    Depression is not a disease, no you aren't "crazy" there is nothing "wrong" with you because you hate this life. Really? There is something wrong with you just because you don't...
    superficialife superficialife 22-25, F 2 Responses Apr 5

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    I've had symptoms of Crohn's Disease since I was 13. Having gone through four doctors and two negative colonoscopies (among other tests), it was kind of a relief when I was finally...
    Maeliss Maeliss 18-21, F Apr 7

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    This is exactly what happens to me and gets mis-labelled as 'anxiety' or whatever. http://www.bcepilepsy.com/files/Information_Sheets/All_About_Partial_Seizures.pdf All About...
    Buckley4U Buckley4U 36-40, F 1 Response Apr 7

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    I'm in love with someone I know I can't have, and I've never felt so confused and alone. My story begins three years ago- I was an underclassman in high school when I fell very ill...
    lalarose lalarose 18-21, F 1 Response Apr 9

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    I'm 16 years old.There are 10 days till my birthday.I've been depressed for good 3 years.My whole puberty was a great mess.One year and two months ago,I got bulimic.Before that,I...
    mystiquebelle mystiquebelle 13-15, F 18 hrs ago

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    I was diagnosed in1983... my sister was diagnosed 4 yrs before that... at the time we were the only familial case on eaST COAST... I AM NOW TALKING BECAUSE IM OUT OF REMISSION BIG...
    seeblue35 seeblue35 51-55, F Mar 20

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