I Have Leiomyosarcoma

A Leiomyosarcoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Leiomyosarcoma. You're not alone. 25 People


    I was told I have leiomyosarcoma on the left kidney and liver the first of Mar.2011  As of yet I have not found a doctor that can help me.  They want to wait and do another cat scan in May.  I feel the longer I wait the worse it will get.  Chemo at 20% success is not worth it...
    bishy bishy
    3 Responses Apr 10, 2011

    It's Back!

    I was diagnosed with this cancer about 10 years ago. It was embedded in my pelvic w all and i had no symptoms at all, found by just a regular female exam. Had surgery to remove it and radiation. So, the devil rested a few years and now has come back with a vengeance. noticed a...
    jeanieweenie jeanieweenie
    1 Response Jul 16, 2013

    I was first diagnosed in January,

    2009. Stage 4 located in my Ureter that spread up and down. Had my right kidney removed, ureter and partial bladder. For 4 years it was a no show until 2013. For mother's day I was diagnosed with it in my lower spine. It was removed and I am okay for at least 7 months. Them it...
    rorra73 rorra73
    61-65, F
    May 11, 2014

    Allowing Natural Death

    i was first diagnosed with LMS IN 2009 during my fourth pregnancy. The tumor was growing in my bladder and had accelerated growth due to the pregnancy. And since I was pregnant, I had to wait till my son was 32 week gest. to deliver him, then wait another month after that to have...
    nursechristie26 nursechristie26
    26-30, F
    1 Response Jul 21, 2012

    Now What ?

    My story starts in august 2009, pain in my abdomen occured when walking, an activity I did a lot, the pain would cut my breath out, so it seemed. Firts doctor's appointment, then X-Rays, CT Scan, blood work etc, a couple of weeks pass by and I also start getting very swollen...
    0ceanblues 0ceanblues
    41-45, F
    5 Responses Jun 2, 2010

    Lms Of The Tibia

    I'm a 51 year old female who lives in Pennsylvania. Last fall I felt like I had a sprained ankle and after a couple weeks went to the doctor for x-rays.  They saw that I had a lesion in my tibia, near my ankle.  The doctor sent me for a  surgical biopsy and it...
    kbella1490 kbella1490
    51-55, F
    Apr 12, 2010

    1 Year Out

    I was diadnosed July 12, 2010 with LMS of the left kidney, which was removed right away. But I think I should tell another story.   In October 1974 I was diagnosed with stage 2a Hodgkins Lymphoma. Went through major surgery to remove spleen. appendix, tonsils, and a whole lot...
    djk56 djk56
    1 Response Jul 21, 2011

    My Brother Died

    I never knew that my brother would leave as quickly as he did. 44 years old with hope and dreams. He turned from a rough life style and went to college and got himself together and lived his life the way God intended. My brother was having lower back pain and the doctors told him...
    lilboggie lilboggie
    May 18, 2012
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