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I Have Levator Syndrome

A Levator Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Levator Syndrome. You're not alone. 2 People

    I Have Levator Syndrome

    I HAVE HAD LEVATOR SYNDROME FOR 19 LONG YEARS WITH HARDLY NO RELIEF.  I HAVE TRIED EVERYTHING OUT THERE AND SOME TIMES THE PAIN IS BEARABLE AND SOMETIMES IT IS EXCRUCIATING.  IT FEEL LIKE TIGHTNESS AND BURNING AND A SENSATION LIKE YOU HAVE A GOLF BALL STUCK IN THERE AND...
    JMB3000GT JMB3000GT 56-60 6 Responses Sep 21, 2010

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    Hi call me Sean. I'm 21 years of age and I have Poland syndrome. I am missing my left pec muscle and it haunts me practically everyday. I feel as if I have I've become alittle bit...
    Life1sinteresting Life1sinteresting 18-21, M 2 Responses Feb 28

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    i first found out i have turner syndrome when i was a babe my ma discovered i was on injection to help my growth i attend hospital evey six months but they have me in a adults...
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    I have Poland syndrome since I was born. I'm missing my right pec. I Struggled though school and when I left I sighed strait up for the army. I have found out that it is much...
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    I am Hispanic, female, 49 years old. On September 2012 started with progressive serious problems in my health. Weakness on my extremities, drastic loss of weight , foot drop...
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    Hi I am a 20 year old girl in the uk. I was diagnosed with mosaic turners when I was born but I've never even thought about the condition that I have, it's never really effected me...
    MissLisac MissLisac 18-21, F 3 Responses Feb 27

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    As a 16 year old girl, it's been a struggle to be a girl with polands syndrome, but luckily have had a great support system (both family and friends). Recently I have gotten my...
    hp6688 hp6688 18-21, F 1 Response Mar 7

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    I strongly suspect that I have 47,XXY Kleinfelter Syndrome. I was diagnosed with Hypogonadism two weeks ago. I'm 38. Previously I thought my issues were solely due to varicoceles...
    mjxxy mjxxy 36-40, M Mar 15

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    im self diagnosed i truly feel that i have it
    TomboyBeth TomboyBeth 13-15, F 2 Responses Mar 1

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    I'm looking for a little insight on Pica. I myself do not believe I have Pica but I believe my three year-old daughter does. Literally EVERYTHING she touches she tries to eat and...
    kasirae3192 kasirae3192 22-25, F 1 Response Mar 2

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    its hard living with this condition im an eighteen year old girl living in Ireland i was a babe when my mother found out i didnt know anything about it i was in hostiple most of...
    Atale Atale 18-21, F 3 Responses Mar 4

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    I am 26 and have been struggling with pica for 20 years. When I was a kid (6 years old) I started to eat the stuffing out of couches. It started off as a little here and there but...
    keepitlikeasecret keepitlikeasecret 26-30, F 1 Response Mar 5

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    I recently have been diagnosed with POTS. I'm fifteen years old. I have not yet started treatment but I hope to soon. Some days its really hard to get out of bed, go to school...
    kater837 kater837 13-15, F 1 Response Mar 5

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    Ok, I'm trying so hard to overcome this. But my cravings r out of this world! I have to satisfy it today or I'm gonna lose it. I'm trying to find substitutes for the dirt and...
    yummytummy610 yummytummy610 41-45, F 4 Responses Mar 9

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    Hello, new to this whole "me too" thing. I wanted to join to share my story of what I've been experiencing so far. I'm also looking for anybody out there that can relate. I've been...
    stinaleigh365 stinaleigh365 22-25, F Mar 9

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    through out my whole life I have suffered from daily headaches, dizziness when I stand up, nausea/ stomach upset and constant fatigue I have been to multiple doctors and specialist...
    kristykaz121 kristykaz121 18-21, F Mar 10

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    okay so i have Pica and have had for as long as i can remember its the foam in couches and cushion stuffing that gets me, I have a young son and since me and his father split up...
    Danii2015 Danii2015 22-25, F 2 Responses Mar 11

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    Im Julia, I was diagnosed with POTS 3 years ago. I went to the mayo clinic pain rehabilitation center last year. They tell you that you shouldn't talk about your pain because it...
    imafluffyunicorn imafluffyunicorn 18-21, F 3 Responses Mar 15

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    I am having a lot of trouble managing my aspergers on my own. I just moved out of a tight and strict home. I started to get off schedule my junior year before I knew about my...
    SwanelleGrace SwanelleGrace 18-21, F 2 Responses 17 hrs ago

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    THE MORE THEY TELL ME THEY CAN'T HELP ME OR COMPLETELY IGNORE ME OR MY ISSUES, THE MORE I LOOSE FAITH IN HUMANITY AND MY FELLOW MAN. "DISCRIMINATION", IS A LIFE LESSON FOR A PERSON...
    JEM404 JEM404 41-45, M 1 Response Mar 1

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    anyone with turner sydrome chat me please
    Atale Atale 18-21, F Mar 4

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    I can't get to any chalk, drywall, or dirt. Looking for a substitute. Must b gritty must taste of rain or earth. Thanks guys
    yummytummy610 yummytummy610 41-45, F 1 Response Mar 14

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    I just taught one of our DCD sisters how to prepare her drywall to eat. My mouth water for some DCD right now. TTYL gonna go buy some and prepare it. ????
    yummytummy610 yummytummy610 41-45, F 6 days ago

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    I chew on crushed ice CONSTANTLY. Not sure if you classify this as having Pica but I feel as if it is uncontrollable, and I'm not sure if it is iron related or not.
    lostndelirious lostndelirious 18-21, F 2 Responses 5 days ago

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    I chew bath sponges and eat radox bubbles, weird I know. It's nice though. My friend sniffs radox bubbles also but sometimes I just really want too stop but it's like an addiction
    lucymichellexo lucymichellexo 13-15, F 1 Response 5 days ago

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    I can't go anywhere with it being a problem .i hate this why can't it go away
    bree012356 bree012356 13-15, F 5 days ago

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    I don't know what to do with school because I can't go with goin home
    bree012356 bree012356 13-15, F 1 Response 1 day ago

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    Don't give up; there is hope. I'm 19 and when I was 16, I got my first symptoms of rumination syndrome. Like a lot of others, I thought it was a 24 hour sick bug but it just...
    alexxblanch alexxblanch 18-21, F Mar 4

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    I have Kleine Levin Syndrome, but I prefer calling it the sleeping beauty syndrome, it makes me more comfortable. I live in a very small town where no one knows about this...
    briannanicolex briannanicolex 18-21, F Mar 13

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    just wondering about others experiences with POTS syndrome. I have lost all strength in my legs and im in a nursing home. Therapist says ill be in a wheelchair for a month. was in...
    Jzimo Jzimo 22-25, M Mar 1

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    Pretty much self explanatory. Additional info for the clueless: http://www.urbandictionary.com/define.php?term=White+Knight+Syndrome
    aberrations aberrations 22-25, M Mar 1

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    I was known as the "Weirdo" during school. I have never had any real friends in my whole life until freshman year. Kids never wanted to play with me and called me "stupid" and...
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    Husband has Aspergers, delusional worthlessness syndrome, anxiety, and major depression disorder. Any suggestions?
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    Hi my name is Edward, I was diagnosed with Russell Silver Syndrome when I was every young. I'm 18 now and about to go off to college. My whole life I have known about my...
    EdwardLayman EdwardLayman 18-21, M Mar 17

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    I got diagnosed with Asperger Syndrome in grade 7.
    SithLordofCanada97 SithLordofCanada97 16-17, M Mar 18

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    I am 13 years old. I have been sick for around 10 months. It started as what appeared to be a stomach bug but has continued for months and months. They removed my gallbladder and...
    deleted deleted 26-30 3 days ago

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    I am 31 years old female and was diagnosed Guillain-Barré syndrome. I felt tingling weakness in my right leg and in few hours it started spreading to lower limbs and I realised...
    amishah154 amishah154 31-35, F 3 days ago

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    not me but my youngest son. we adopted him and his birth parents were drug and alcohol addicted. I am only just learning about this syndrome and the problems that my son will have...
    RobertaSunset RobertaSunset 36-40, F 1 day ago

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    I have just ran across DSPS today in researching and trying to find out what exactly has been wrong with me for most of my life. I've classified myself as a night owl since I was...
    CrowWoman CrowWoman 51-55, F 2 Responses Mar 2

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    I work in customer service (phone and email). I have been told before that I put too much pressure on myself, and I agree that I do. But I just don't know how NOT to. Well...
    enigma19020 enigma19020 46-50, M Mar 3

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    I don't know if because of the other medications I HAVE to take or what but I use Restasis every day twice a day like the frickin commercial says. I also take Fish Oil and...
    steverick steverick 56-60, M 1 Response Mar 3

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