Post

I Have Levator Syndrome

A Levator Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Levator Syndrome. You're not alone. 2 People

    I Have Levator Syndrome

    I HAVE HAD LEVATOR SYNDROME FOR 19 LONG YEARS WITH HARDLY NO RELIEF.  I HAVE TRIED EVERYTHING OUT THERE AND SOME TIMES THE PAIN IS BEARABLE AND SOMETIMES IT IS EXCRUCIATING.  IT FEEL LIKE TIGHTNESS AND BURNING AND A SENSATION LIKE YOU HAVE A GOLF BALL STUCK IN THERE AND...
    JMB3000GT JMB3000GT 56-60 5 Responses Sep 21, 2010

    Your Response

    Cancel

    Related Experiences

     I don't actually have Aspergers Syndrome myself(that I am aware of). I am posting this story becauseI would like...
    Jugemu Jugemu 31-35, M Aug 3

    Your Response

    Cancel
    In April 2012 I was officially diagnosed w/POTS Syndrome after several months of symptoms of worsening symptoms. I was one of the fortunate few who came across a neurologist at the...
    Jill73 Jill73 41-45, F Aug 6

    Your Response

    Cancel
    Having Aspergers Syndrome is quite challenging for me. I have always felt like a ghost or a being living in another world in high school. Because of my particular interests, I have...
    loveVictorandDumas loveVictorandDumas 16-17, F 1 Response a week ago

    Your Response

    Cancel
    I'm 18 and every time I look at myself in my bra & panty..I stare. I stare at my reflection and I'm happy with how I was born; bare left chest no pectorals/nipple/muscle just my...
    ardorzie ardorzie 18-21, F 1 Response a week ago

    Your Response

    Cancel
    I have had POTS as a definite diagnosis for two years now, however I have had it for many years. I am 18 now, an have recently graduated May 24, 2014. During my junior year of...
    TheForestChild TheForestChild 18-21, F 3 Responses Jul 29

    Your Response

    Cancel
    Anybody who has POTS have photophobia (sensitivity to light)? Mine is really bad and worsening. I don't know if it's another symptom of POTS or should I get checked out
    december789 december789 16-17, F 3 Responses Jul 30

    Your Response

    Cancel
    I'm beginning to think I have it. I've been craving nail polish lately. I love the smell of it. And now I want to taste it. I don't get why I suddenly got this craving, but it's...
    oathtoorder oathtoorder 18-21, F Aug 1

    Your Response

    Cancel
    Hi all! I too have Pica. It all started wen i was at college. My frnds used to eat small pieces of slate pencil. And one day i too tasted them and liked them from then. I was...
    CuteCat21 CuteCat21 18-21, F Aug 7

    Your Response

    Cancel
    I have suffered from pica since i can remember. REMEMBER IT IS AN EATING DISORDER AND YOU SHOULD GET HELP. It started in primary school eating pencils and the grit off the pavement...
    xsamanthaclaire xsamanthaclaire 18-21, F 1 Response Aug 8

    Your Response

    Cancel
    I always loved the smell of earth after it rains. The smell made me search for the taste...of the smell. I found it! It"s dirt, soil, earth, whatever you want to call it. My...
    yummy2mytummy yummy2mytummy 41-45 Aug 10

    Your Response

    Cancel
    Im not actually sure that i am an aspie, but i have a LOT of the symptoms and i just took an online test that put me at borderline for having it. It was one of those short online...
    shinjorai shinjorai 36-40, M 1 Response Aug 11

    Your Response

    Cancel
    Hey, I only got diagnosed today after 4 years of trips to the optometrist. I'm 23 and only noticed it in the past few years & it's gotten worse in the past 6 months . Unless I tilt...
    rosielee21 rosielee21 22-25, F Aug 11

    Your Response

    Cancel
    YOU ARE THE MOST BEAUTIFUL PERSON SOMEONE COULD EVER WANT, YOU HAVE ALLWAY'S BEEN PERFECT JUST THE WAY YOU ARE!, LIFE OWE'S YOU EVERYTHING, JUST ASK!
    JEM404 JEM404 41-45, M Aug 16

    Your Response

    Cancel
    In January I was finally diagnosed with POTS. For the past three years I have been being misdiagnosed with depression, migraines, and other stuff. It was really hard because my...
    babyhunnybunny babyhunnybunny 16-17, F 1 Response Aug 17

    Your Response

    Cancel
    CAN I HAVE MORE RAT VENOM FOR MY MARTINI?
    JEM404 JEM404 41-45, M Aug 20

    Your Response

    Cancel
    My name is Kate. I live in Oscar, Louisiana. I started experiencing symptoms in November of 2012 while pitching in a softball game. It all started with right shoulder pain. I was...
    Katedebetaz Katedebetaz 13-15, F 2 Responses 4 days ago

    Your Response

    Cancel
    i too crave a lot for slate pencils . is thr any remedy to get rid of this?
    CuteCat21 CuteCat21 18-21, F Jul 30

    Your Response

    Cancel
    I had my follow up appt at mayo clinic and they concluded my diagnosis. Read about it at potsisthepits.com I promise my blog isn't boring
    cassidybute cassidybute 18-21, F Aug 11

    Your Response

    Cancel
    It's not a severe case. It's just annoying and embarrassing. People will stare at me and tell me that I blink a lot, or call me stupid **** like "blinky". Really, that's the best...
    Somejoygirl Somejoygirl 22-25, F Aug 13

    Your Response

    Cancel
    IT IS MY EXPERIENCE THAT A FACILITY I ATTEND, "ATTENDED", "WON'T AGAIN", DO'ES NOT TREAT BIRTH DEFORMITY, YES, THIS STATE FACILITY WON'T TREAT A PERSON FOR BIRTH DEFORMITY TRAUMA...
    JEM404 JEM404 41-45, M Aug 20

    Your Response

    Cancel
    Can anyone describe their chest pain with pots?
    cassidybute cassidybute 18-21, F a week ago

    Your Response

    Cancel
    Holy crap! Is this really on here? I've found my people.... Lol
    Keekeem Keekeem 31-35, F 16 hrs ago

    Your Response

    Cancel
    I have wasting syndrome and dementia but I'm currently taking medications for it and hopefully it helps me a bit so I won't have any of it anymore. & Yes it sucks a whole lot and I...
    jacedrew jacedrew 16-17, M 7 Responses Aug 3

    Your Response

    Cancel
    I have gitelmans syndrome. Ya it's weird... Anyone else?
    Keekeem Keekeem 31-35, F 17 hrs ago

    Your Response

    Cancel
    I used to really hate myself, I honestly did. But now, I'm happy I have what I have. When I was in elementary school, I never talked to anyone, I would walk around the playground...
    ThatRobotChick ThatRobotChick 18-21, F 1 Response 9 hrs ago

    Your Response

    Cancel
    I am 13 years old. My life has been all messed up because of aspergers syndrome. Aspergers syndrome is incurable. I dont like being bullied by anyone and if people bully me to my...
    Konerko555 Konerko555 13-15, M 8 Responses Aug 2

    Your Response

    Cancel
    All my life, I’ve felt different, like I just don’t quite belong in any group that I’m a part of. Trying to fit in has led to me to trouble. I’ve drank heavily, smoked weed...
    empoweredh22 empoweredh22 22-25, M 1 Response Aug 16

    Your Response

    Cancel
    I am at a loss and need some help! I went to urgent care in February because I had this horribly terrible rash that itched uncontrollably and was painful. I had clusters of what...
    SweetJFowler SweetJFowler 26-30, F 1 Response Aug 17

    Your Response

    Cancel
    I have been diagnosed with Asperger syndrome. Sometimes it just seems like it doesn't fit at all except the unsocial part as most of my routines has fallen apart well I guess this...
    Joiss Joiss 18-21, M 1 Response Aug 10

    Your Response

    Cancel
    Just recently I began researching on middle child traits. I've found out that middle child syndrome is very real and it's not only me who suffers from it. Growing up, I have...
    123eat 123eat 22-25, F 1 Response 5 days ago

    Your Response

    Cancel
    My nightmare was it was Gore In it I had a sister who was with down syndrome . we are in the house , the bunkbed room off from that was a room that was supposed to be of a...
    Organia Organia 46-50, F Jul 30

    Your Response

    Cancel
    I am named after a syndrome? Im special :] lol.
    xMikayla xMikayla 13-15, F 2 Responses Aug 12

    Your Response

    Cancel
    After my first bad concussion I became much more susceptible to them. Post concussion syndrome is terrible.
    Kingshelman Kingshelman 31-35, M 2 Responses 4 days ago

    Your Response

    Cancel
    After a childhood filled with severe pain, day after day in bed..... countless visits to Hospitals...Mri scans...specialist appointments which amounted to nothing, no one could pin...
    thedayyouwentaway thedayyouwentaway 36-40, M 2 Responses Jul 31

    Your Response

    Cancel
    Do anybody have worse symptoms POTS at night.. I how 5 time harder symptom of POTS at night. How evening is coming my symptoms are getting much worsen. How day is ending my blood...
    Drybrain Drybrain 26-30, M 1 Response Aug 3

    Your Response

    Cancel
    Two days ago my 20 yr old son(my youngest)told me he was going to become a father, this I told no one( at my sons request) today my 24 yr old son ( eldest) told me he was going to...
    Memamsdaughter Memamsdaughter 36-40 1 Response Aug 3

    Your Response

    Cancel
    I'm quite shy and have Asperger's syndrome, and I desperately want to find someone who loves me for who I am. I doubt it'll be easy, but I hope I find them someday.
    Juri17 Juri17 16-17, F 1 Response Aug 5

    Your Response

    Cancel
    In 2009 I was diagnosed with pandysautonomia - POTS after getting ill from having a flu shot. It has completely taken everything away from me. I have had problems with my blood...
    Buffy2014 Buffy2014 31-35, F 1 Response Aug 5

    Your Response

    Cancel
    I have a 7 yr old adopted daughter that I'm very concerned about. She and her twin sister were abandoned at the hospital, born 3 mos. premature, and positive for methamphetamine...
    mama27kidz mama27kidz 56-60, F Aug 5

    Your Response

    Cancel
    I actually don't know for sure if I have Sjogren's; my second appt with the rheumy isn't until the 19th. I've had horrible dry mouth, throat, eyes, etc., for a while now (3+yrs). I...
    Notasouthernbelle Notasouthernbelle 36-40, F 3 Responses Aug 6

    Your Response

    Cancel
    Hello I am 14 and I've had POTS since I was 10. It's been really hard for me and no one really understands what I'm going through. My friends and family try and help but they don't...
    TavynSantee TavynSantee 13-15 2 Responses Aug 8

    Your Response

    Cancel
    Hey to all the young potsies out there struggling thru this as I am still.....seriously I just want you to know that you're not in this alone. And whenever you start to feel that...
    Ktglisson87 Ktglisson87 26-30, F 2 Responses Aug 9

    Your Response

    Cancel
    Calling all women with POS!!! I haven't had a period in a year. The past week or so I have been lightly spotting with severe cramps. Yet still no period! Has this happened to...
    TheUnpredictable9 TheUnpredictable9 18-21, F Aug 11

    Your Response

    Cancel
    I'm an athlete and have always been an athlete. I was diagnosed with POTs a year and a half ago and it has taken complete control of my life. At first, doctors thought it was...
    Liv44 Liv44 18-21, F 1 Response Aug 12

    Your Response

    Cancel
    I have had raynauds since at least 4 years old, but I didn't know what it was until about 13yrs old. This disease has been so frustrating because I feel like nobody understands it...
    allisondela allisondela 18-21, F Aug 14

    Your Response

    Cancel
    My doctor put me on levelen and told me to skip the white pills, so that I wouldn't ovulate. She told me to take the while pills once every six months to allow my body to keep...
    ChloeMaay ChloeMaay 18-21, F Aug 16

    Your Response

    Cancel