Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Levator Syndrome

A Levator Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Levator Syndrome. You're not alone. 2 People

    I Have Levator Syndrome

    I HAVE HAD LEVATOR SYNDROME FOR 19 LONG YEARS WITH HARDLY NO RELIEF.  I HAVE TRIED EVERYTHING OUT THERE AND SOME TIMES THE PAIN IS BEARABLE AND SOMETIMES IT IS EXCRUCIATING.  IT FEEL LIKE TIGHTNESS AND BURNING AND A SENSATION LIKE YOU HAVE A GOLF BALL STUCK IN THERE AND...
    JMB3000GT JMB3000GT 56-60 6 Responses Sep 21, 2010

    Your Response

    Cancel

    Related Experiences

    ** I do not have Timothy Syndrome, my baby sister does, but she's too little to share her story ** My little sister was born a year and a month ago, premature. She was tiny and...
    allydoe allydoe 18-21, F 3 days ago

    Your Response

    Cancel
    I have been self-diagnosed with rumnation syndrome and am 100% sure that I have diagnosed correctly. This syndrome is making me refuse to eat. I am disgusted with my subconscious...
    sassyanus sassyanus 18-21 Nov 3

    Your Response

    Cancel
    WILL POWER. HAVING A POSITIVE ROLE, RESPECT, FUNDAMENTAL ETHICS ARE A GOD GIVEN RIGHT, SCARRY TO THINK SOME ARE LACKING...
    JEM404 JEM404 41-45, M Oct 24

    Your Response

    Cancel
    Hi, I was diagnosed with Limited Crest Syndrome around twelve years ago, having asked what it was I was told, too complicated, look it up on the internet....Anyway have the usual...
    gillybee77 gillybee77 66-70, F Nov 1

    Your Response

    Cancel
    How to get a adult diagnosis for ASD (Asperger's Syndrome) ... Do your homework .. It's a complex subject . Talk to those who have been diagnosed . The internet is a good place to...
    Homejames Homejames 51-55, M Oct 22

    Your Response

    Cancel
    Most people with Asperger's have co morbid's - mine is dyslexia - when I was being assessed for Asperger's I studied it intensely on the internet and I was great full to be able to...
    Homejames Homejames 51-55, M Oct 22

    Your Response

    Cancel
    I was only diagnosed at 16. It's been really hard for me though. I nearly failed out of high school. I can't focus. And pretty much have all the symptoms that show I have it...
    yourbrowneye yourbrowneye 18-21, M 1 Response Nov 1

    Your Response

    Cancel
    My whole life, I've been attracted to dry, dusty things. As a child, I used to volunteer to clean erasers at school so I could inhale the dust, but I never had a craving to...
    FaceFaceFace2 FaceFaceFace2 18-21, F Nov 9

    Your Response

    Cancel
    Does anyone have anything other than POTS?
    december789 december789 16-17, F 1 Response Nov 10

    Your Response

    Cancel
    I started having symptoms at age twelve but I had a complete brake down my junior year of high school. I was trying to balance high school, cosmetology school, and my pots symptoms...
    alyssaanna alyssaanna 18-21, F Nov 13

    Your Response

    Cancel
    I eat every type of soap anyone I can get my hands on sometimes my tongue is yellow and I have really bad side pains but I cant stop. I eat a bar of soap a month n it relaxes me...
    semorec semorec 18-21, F 5 days ago

    Your Response

    Cancel
    I found out when i was 13 years old and found out i cant have kids i tried Treatments gels tablets everything nothing worked so i went to anabolic steroids like dbol and it was...
    chris0478 chris0478 22-25, M 4 days ago

    Your Response

    Cancel
    Hmm lets see.. My aspergers was pretty bad back when I was younger, but I managed to learn how to simply read situations from facial changes. I still have trouble finding my own...
    oracnid oracnid 16-17, M 2 Responses 3 days ago

    Your Response

    Cancel
    I've just gotten into toothpaste. I really want to eat it, but I have to control myself. Better get some gum, lol
    NatashaRose NatashaRose 18-21, F 2 Responses 3 days ago

    Your Response

    Cancel
    What triggers episodes for you?
    december789 december789 16-17, F 1 Response Oct 25

    Your Response

    Cancel
    I eat drywall. Well I did but I stopped I'm still craving for it but I don't eat it. this has been going on for about 3-4 years. I'm just curious could this effect my baby in the...
    byancax33 byancax33 18-21, F 4 Responses Nov 5

    Your Response

    Cancel
    I'm pregnant and I loveeee to eat powder ! I tried to stop but I can't . Is there anyone like me ?
    BrokenGirl76 BrokenGirl76 18-21, F 2 Responses a week ago

    Your Response

    Cancel
    although they say I have lots of defects with language and speaking, i have been told its because of asperger's syndrome i am really good in maths physics and other subjects that...
    daniel147 daniel147 13-15, M 1 Response Oct 22

    Your Response

    Cancel
    In year 1992, I came down with Ramsay-Hunt Syndrome. Its been a long battle. My face first paralyzed on one side and three months later, the other. This has affected my vision...
    Gustavp Gustavp 70+, M 5 days ago

    Your Response

    Cancel
    My life will never be the same. In 2011, an extremely traumatic event happened to me and since then my life had never been the same. It's easiest to just list the thingsthat were...
    XxAlphaCentaurixX XxAlphaCentaurixX 26-30, T 1 Response 3 days ago

    Your Response

    Cancel
    Hello all I have dermatomyositis. About 12 years ago it started. Before that I was ok, except I had Raynauds from a teenager, I thought it strange but never went to a doctor with...
    gabrielsgirl gabrielsgirl 61-65, F Oct 22

    Your Response

    Cancel
    Hi all, I am writing from a television casting company. We are currently casting a new medical mystery show for Discovery and looking for patients whom have been diagnosed with a...
    mysticartpictures2 mysticartpictures2 36-40, F Oct 22

    Your Response

    Cancel
    I have RLS. I cannot just "stop moving". My legs twitch sometimes and sometimes, it just feels like I NEED to move. It's the most uncomfortable feeling I've ever had and it's...
    britteller britteller 18-21, F 1 Response Oct 23

    Your Response

    Cancel
    I'm writing this now because I need to get it out. I'm having trouble deciding what to do. School's been out for a few months and since then I've tried a 30 day free trial period...
    ftmFreddy ftmFreddy 18-21, T 1 Response Oct 24

    Your Response

    Cancel
    Considering that when I was at school no one had heard of Asperger's it doesn't surprise me that not many people my age have been diagnosed. So their must be thousands wandering...
    Homejames Homejames 51-55, M Oct 25

    Your Response

    Cancel
    I'm learning to deal with Asperger since my partner and his son moved with me and my son; his son has asperger and we have just known about it, it helps us to explain things... now...
    moniperu moniperu 46-50, F Oct 25

    Your Response

    Cancel
    I have been married to a man with undiagnosed Aspergers for 10 years. For the first 5 years of our marriage he was out to sea (Navy) the majority of the time ; it's not until he...
    njleoladye njleoladye 36-40, F 3 Responses Oct 25

    Your Response

    Cancel
    yeah it's called being better than you. B.T.Y. syndrome
    NotBiasedBAM NotBiasedBAM 18-21, M Oct 29

    Your Response

    Cancel
    Shock is obviously the first reaction but having then seen and spoke to her in a strange way I feel relief for her. This might help people who know anyone that is suffering with...
    NihilImpetus NihilImpetus 31-35, F Nov 2

    Your Response

    Cancel
    I was diagnosed with CIDP when I was 12 (year 7) and I laughed when they told me because even though I had no idea what it was and the name was such a mouthful, I was relieved to...
    AlexPeyton AlexPeyton 18-21, F Nov 2

    Your Response

    Cancel
    I have had a college soccer career ending concussion. It's frustrating yes. Days are hard and few understand. But I am blessed and when I get frustrated I take a deep breath and...
    am0116 am0116 18-21, F Nov 2

    Your Response

    Cancel
    I got a really bad call from the school yesterday. He's been supposedly acting out in class. He says his teacher never believes when he says another student is picking on him. My...
    flypiggie flypiggie 26-30, F 1 Response Nov 4

    Your Response

    Cancel
    I learned I had it at age 5 and they said I was lucky to be alive. The only downside is that I have trouble learning in school
    metalchick18 metalchick18 18-21, F 1 Response Nov 4

    Your Response

    Cancel
    I had a nervous breakdown 20 years ago and wasn't hospitalized. I lost my children to rich people and was homeless for 20 years. I have OCD< ADD, Fatherless Daughter Syndrome...
    growth60 growth60 61-65, F 1 Response Nov 9

    Your Response

    Cancel
    I suffer from ibs (irritable bowel syndrome) I am 13 years old and it sucks and hardly anyone has it at my age and honestly no one understands me it affects my everyday life I can...
    emilycatherine emilycatherine 13-15, F 1 Response Nov 11

    Your Response

    Cancel
    It turns out I have polycystic ovary syndrome and that causes my testosterone levels to be dangerously high, estrogen to be dangerously low, insulin to be really screwed up...
    polyglotparrot polyglotparrot 13-15, F Nov 14

    Your Response

    Cancel
    Anyone else here have this illness?
    leyla29 leyla29 26-30, F a week ago

    Your Response

    Cancel
    Marfan syndrome is the cause.
    MiddleSister45 MiddleSister45 41-45, F 4 days ago

    Your Response

    Cancel
    I think. I'm no doctor, but I was reading the symptoms and I know I know that's no way tell tell if you have it. I'm emotionless, I don't make eye contact, I'm clumsy and awkward...
    PsychedelicSmile PsychedelicSmile 18-21, F 14 hrs ago

    Your Response

    Cancel
    I have IBS (Irritable Bowel Syndrome). I've always had a very sensitive digestive system, but it became really bad in 2010-2011. It was triggered because I had severe depression...
    spacepixie spacepixie 26-30, F 2 Responses Oct 24

    Your Response

    Cancel
    Its harmed me a lot. I was bullied mercilessly up until the end of high school, and I'm still worried that people would want to exclude me socially. Although I now appear to be...
    Almostanonymous Almostanonymous 22-25, M 2 Responses Nov 9

    Your Response

    Cancel
    I was looking for the group "I have a hard life", but this group doesn't seem to exist. I guess my life has been pretty hard so far. It certainly has never been easy. But what...
    AmIAMaleHSP AmIAMaleHSP 26-30, M 1 Response 6 days ago

    Your Response

    Cancel
    This will be long and rambly, mostly because this is the first place I've found where I can vent to others who may be in similar situations that’s not FB related where everyone I...
    lisabug75 lisabug75 36-40, F 4 Responses 4 days ago

    Your Response

    Cancel
    I have suffered from hh since about 16 years of age(I am now 40).I have generalised sweating when I am nervous or anxious only, although I do have more generalised sweating when...
    Shez74 Shez74 36-40, F 3 hrs ago

    Your Response

    Cancel