I Have Lhermitte-duclos Disease

A Lhermitte-Duclos Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Lhermitte-Duclos Disease. You're not alone. 9 People

    My Son Has L'Hermitte Duclos Disease

    Hi my name is Amanda im a 24 year old single parent of two boys, my eldest son is Kyron, Kyron was diagnosed with ldd roughly 4 years ago, his now 5. Kyron has global development delay to a rate of a 3 year old, his balance and co ordination is quite poor of a child his age, he...
    amandacollis89 amandacollis89
    26-30, F
    Jun 26, 2013

    Hi Everybody

    HI MY NAME IS TINA.I'M 32 YRS. OLD.I FIRST FOUND OUT I HAD A BRAIN TUMOR WAS 1 MONTH AFTER MY 20TH BIRTHDAY.I HAD REALLY BAD HEADACHES. I KEPT GOING 2 THE DRS.THEY SAID I HAD A PULLED MUCSLE IN MY NECK.THEN MY EYES WENT CROSE.FINALLY FOUND THE RITE DR.WHO DID MY FIRST  3...
    tinaarlene tinaarlene
    31-35, F
    4 Responses Feb 20, 2009

    On Behalf Of My Daughter

    My daughter amy has been diagnosed with ldd, we are both search for information. She was diagnosed in 2001 and has had a vp shunt since birth. Her last surgery was for kiare syndrome and that is when we found out about the tumor? she just did a post follow up very out of...
    wabuskarn wabuskarn
    56-60, F
    1 Response May 4, 2012
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