I Have Lhermitte-duclos Disease

A Lhermitte-Duclos Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Lhermitte-Duclos Disease. You're not alone. 9 People

    My Son Has L'Hermitte Duclos Disease

    Hi my name is Amanda im a 24 year old single parent of two boys, my eldest son is Kyron, Kyron was diagnosed with ldd roughly 4 years ago, his now 5. Kyron has global development delay to a rate of a 3 year old, his balance and co ordination is quite poor of a child his age, he...
    amandacollis89 amandacollis89
    26-30, F
    Jun 26, 2013

    On Behalf Of My Daughter

    My daughter amy has been diagnosed with ldd, we are both search for information. She was diagnosed in 2001 and has had a vp shunt since birth. Her last surgery was for kiare syndrome and that is when we found out about the tumor? she just did a post follow up very out of...
    wabuskarn wabuskarn
    56-60, F
    1 Response May 4, 2012

    Hi Everybody

    HI MY NAME IS TINA.I'M 32 YRS. OLD.I FIRST FOUND OUT I HAD A BRAIN TUMOR WAS 1 MONTH AFTER MY 20TH BIRTHDAY.I HAD REALLY BAD HEADACHES. I KEPT GOING 2 THE DRS.THEY SAID I HAD A PULLED MUCSLE IN MY NECK.THEN MY EYES WENT CROSE.FINALLY FOUND THE RITE DR.WHO DID MY FIRST  3...
    tinaarlene tinaarlene
    31-35, F
    4 Responses Feb 20, 2009
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