I Have Lipoid Proteinosis of Urbach and Wiethe

A Lipoid Proteinosis Of Urbach And Wiethe anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Lipoid Proteinosis Of Urbach And Wiethe. You're not alone. 4 People

    Lipoid proteinosis

    Hi everyone, I have lipoid proteinosis also called Hyalinosis cutis et mucosae. I'm 23 years old man, and i wonder if there is someone with this disease, who have some good results in treatment. I know there is no cure, but maybe someone have some good results in preventing the...
    czeski czeski
    22-25, M
    1 Response Sep 7, 2008

    Hyalinosis Cutis And Mucosae / Lipoid Proteinosis / Urbach Wiethe

    Hello, my name is Anne, I am French, I am 30 years old. I have this disease and I want to talk with some people who have it too because I never meet anyone who have it. I want to know how people who have this disease live with it and how to have less pain. Thank you Anne PS...
    voixcassee voixcassee
    3 Responses Nov 4, 2010

    Lipoid Proteinosis And Peritoneal Encapsulation Syndrome

    I am 33 years old and recently diagnosed with Lipoid proteinosis.  I have always had a really hoarse voice and pox like scaring from dermatitis as a baby.  In addition, I have coarse elbows.  I had my cysts on my eyelids removed a few years ago.  Up until I...
    AB24eva AB24eva
    31-35, F
    2 Responses Feb 17, 2010
More Stories