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I Have Liver Disease

Personal Stories, Advice, and Support 57 People

    Just Diagnosed With Alcoholic Hepatitis And Terrified!

    Well, I drank for years due to depression, loneliness and going to New Orleans bars too often with my husband. I have always had an emotional and addictive personality. GI doc told me I had inflammed liver. I discovered that it was truly hepatitis by doing my own research and...
    AlabamaGirl56 AlabamaGirl56 56-60, F 2 Responses Oct 30, 2013

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    I have not been diagnosed

    as of yet, I am 47 and use to be a fairly healthy drinker, all tests are normal,but I can tell something is very wrong. Dull pain under right rib cage, unexplained weight loss (20pounds) extreme sensitivity to even a sip of alcohol or red meat, weak legs, and occasional anxiety...
    skyriter88 skyriter88 46-50 Sep 10, 2014

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    My Brother Has Alcohol Liver Disease

    i just wanted to share this story with people so others can have hope also... my brother who is just 32 has been a big drinker for many years but was alcohol dependant for the last 5years.. he has been told several times that he had an inflammed liver and had jaundice this was...
    jenny1981 jenny1981 26-30 3 Responses Jan 31, 2011

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M 2 Responses May 19, 2013

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    Hi I was just diagnosed with AIH

    or autoimmune hepatitis. I'm 17 and hopeful. I started taking budesonide and after my next round of blood tests i will start taking Imuran. I'm still experiencing fatigue and chronic joint pain but I'm trying to stay active. There's a quote that says "Things turn out best for...
    Ahall96 Ahall96 18-21 2 Responses Jun 2, 2014

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    AIH

    Hey guys I'm a 23 year old with auto-immune hepatitis. I was diagnosed with it at 14, and been fighting it ever since. Like most of you on here, it affects my life in the usual ways. I don't drink, and I try to eat as little fatty foods as possible. If anyone wants to chat...
    homecoming1 homecoming1 22-25, M 1 Response Mar 8, 2013

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    Scared...

    Well this is where it all started... I just had mine and my husband's second child on June 10th 2012. On the last day in the hospital my blood pressure shot up really high. We were able to leave the hospital with me on blood pressure meds. I went in to the doctor the next day for...
    Brittdaisy Brittdaisy 22-25, F 1 Response Dec 31, 2012

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    Pain & Raised Enzymes Advised - Terrified

    Hi All, I am a long time user of co-codomaol and other migraine related medicines. I suffer from headaches daily and as such, to get through my day pop pills. When the migraines come, that intensifies, anyone who suffers will be all to aware you will do almost anything to...
    stevied553 stevied553 36-40 2 Responses Dec 7, 2011

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    I Have End Stage Liver Disease Secondary To Cirrhosis .

    I was a heavy drink and at the time I came down with a very bad kidney infection. Not realizing that my kidneys were shutting down and thus backing up my system to the point where I went into full renal failure. I was hospitalized for ovr 2 months and the Dr's did not expect me...
    enduser2941 enduser2941 36-40 3 Responses May 29, 2011

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    Non Alcoholic Liver Disease (nafld)

    Please let me first say that I respect and realise that many others here have more irrevocable conditions that the one I am facing- but I really am seeking a genuine place to talk with people about liver Disease- and I would love to hear your expereinces as well as share my own...
    Sekem Sekem 36-40, M 5 Responses Sep 29, 2010

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    I Turned Down A Liver. Did I Make The Right Decision?

    I have been on the transplant list for 5 years. I have hepatitis "C" and my MELD score has been stable for about a year. It stays right around 16. My blood type is B+ and I am 3rd on the list of patients with B type blood. The 2 people ahead of me have both developed liver cancer...
    ArizonaSteve ArizonaSteve 51-55, M Sep 24, 2012

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    My Dad's Hope

    I want to share my Dad's story with the world, so his hope can spread. He was an heavy drinker for most of my life and quit over two years ago. A few months ago he was diagnosed with end stage liver disease. He was on the transplant list and not doing well. His meld score reached...
    lakebaby lakebaby 31-35 3 Responses Jul 11, 2013

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    Chronic Hebatitis B

    Been dieagnoses two or three years ago not sure not sever enough for treat ment thank god my health is perfect they say to me tho they tell me not to drink tho i do at times go on binges but im careful to take breaks in between to give my liver a chance to repair itself i...
    ccdo ccdo 22-25, F 2 Responses Nov 18, 2009

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    Hi... I am new to this

    so trying to understand how this has all happened. In January this year I opened some boxes ... got really sick and as a result my body started to shut down. As the weeks went on I didnt get better... I had blood in my urine and was sent to a specialist ... they thought I had a...
    Suem01 Suem01 46-50, F 1 Response May 30, 2014

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    Can someone here explain to me the kind of pain

    and location they had/have during issues with their liver? And any other symptoms? I have been having mild but persistent acking, burning pain that kind of feels like cramping in my upper abdomen. There is also one tiny spot that hurts when I putt pressure on it. Also a slight...
    PsychGirl94 PsychGirl94 18-21, F 3 Responses Aug 28, 2014

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    To Others In The Same Boat...

    I'm 25yrs old and have liver disease caused by Porphyria (a hereditary disease). Liver disease isn't pleasant. The jaundice and ascites turns you into an oompaloompa (willy wonka reference). Just carrying that extra weight around is a strain alone. I once had 16L drained from my...
    MsMidnight MsMidnight 22-25, F 3 Responses Sep 5, 2010

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    Fighting With My Body

    Hi!  I am clearly new here and do not know exactly where to begin so here goes... About three years ago I as diagnoses with non-alcoholic fatty liver disease-Stage 4 cirrhosis with secondary portal hypertension.  I am 35 years old.  The anomaly which is also the reason my...
    hopefultc hopefultc 31-35, F 1 Response Oct 22, 2011

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    Lver Failure

    i was diagnosed with hep c in 1995 am currently in a great deal of pain, am currently on morphine contin 90 mg a day, this isn't working for the pain any sugestions, we don't have a pain clinic in the town i live in. not sleeping well up every 2 hours in pain. live with mom and...
    dennis3999 dennis3999 61-65, M Oct 4, 2013

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M May 19, 2013

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    Related Experiences

    I am 43 year old male. I have had digestive issues most of my adult life. On June 1, I go in to the GI doctor to see what is wrong with me. Why have I waited so long. To be...
    dynamic71 dynamic71 41-45, M Apr 2

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    Thought all you celiacs would enjoy this: Types of people when they find out I'm a celiac: The careless: oh, you have to digest it in order to get sick, right? I can play with my...
    SparkleSwirl SparkleSwirl 18-21, F 2 Responses Apr 9

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    Please be careful if you have any sort of liver disease : no grapefruit. No rosemary tea or oil. I had some of those and experienced liver pains and nausea and fatigue. Also with...
    HigherCalling HigherCalling 26-30, F 1 Response Apr 3

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    I feel like I haven't even come close to reaching my full potential, the potential as was possible in years past not the potential as is possible now, which is lesser. I am 30...
    zarpanzur zarpanzur 26-30, M Apr 13

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    It started when I was 4 and I just can't help it! I get so anxious, it becomes an obsession... I feel as though hate is part of it too... And... I need a ton of help! I know...
    ONESTARRYSTARRYNIGHT ONESTARRYSTARRYNIGHT 26-30, F 6 days ago

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    After 24 weeks of Sovaldi/Ribavirin treatment and another 6 months post-treatment, I was given a "cured" letter from my GI doc. I'm at the beginnings of stage 4 fibrosis...
    ExHepCinTX ExHepCinTX 46-50, M Apr 12

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    This is something that I have been considering for some time now. Before I go into my story, I will tell you a bit about me. I am a divorced, mother of three beautiful children...
    youchampion youchampion 36-40, F Mar 26

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    Its been hard, im very young and just found out i have h. I need someone rn who understands what i am going through that will be a friend to me, im still in highschool.. my parents...
    valxoxo48 valxoxo48 16-17, F 1 Response 11 hrs ago

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    When most people hear the words "eating disorder", they imagine a white middle-class teenage girl. And they think the girl chooses to restrict, binge, or purge her eating because...
    Musicwillsaveyoursoul Musicwillsaveyoursoul 16-17, F Mar 30

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    Lately I have been feeling so tired and weak and finding myself wanting to sleep all the time. This is not normal for me because all my life I've been a girl with tons of energy...
    hannahphillips hannahphillips 13-15, F 4 Responses 3 days ago

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    I was diagnosed with mixed connective tissue disease last year, I was miserable and desperate for a better life. I decided to fight back and I became a fitness coach for Team...
    lizmidkiff lizmidkiff 22-25 4 days ago

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    I have Trigeminal Neuralgia. Also known as "the suicide disease" because before effective treatments were available, people would take their own lives because of the agonizing...
    kayblue kayblue 36-40, F 5 Responses Mar 28

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    Just recently diagnosed with degenerative disc disease in L4; L5 :( i was a very active person,played basketball and gym mostly everyday. Im told not to engage in any high impact...
    giabaoc giabaoc 18-21, F 1 Response Apr 5

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    Research on Movement Disorders! If you live in the San Francisco Bay area or Boston area, we are looking for people to participate in a research study on the topic of living with...
    tovalynn tovalynn 26-30, F 1 Response Apr 15

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    Hi all, I Have a grown son with Hirschsprung's disease and would love to offer support or advice to any other mums out there who need it. Xx
    palmerli1 palmerli1 41-45, F 6 days ago

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    I took my child to the doctor for a blood test and the test results came out that she has celiac disease, I was confused because my child is always a healthy child without any...
    siujdisjiujs siujdisjiujs 70+, F 3 days ago

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    I was diagnosed with it three years ago. I slowly started to realize that my level of pain probably wasn’t in the average range when it increased with each day. I sometimes...
    mishale80 mishale80 31-35, F 1 Response Mar 30

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    I have congenital cervical stenosis (more about lumbar spine later) with severe degenerative disc disease. Saw a Neurosurgeon Monday and he says I need surgery. Problem is, I have...
    VixBux VixBux 56-60, F 1 Response Mar 31

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    Hi, I'm a 20 year-old-girl from Finland and I was diagnosed with en coup de sabre when I was 17, but I have had it for 6-7 years. Since diagnosed I have been going to a skin doctor...
    meeri95 meeri95 18-21 2 days ago

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    (1980) I was born while my parents were getting divorced. I saw my dad a handful of times. (1983) my mom remarries a man who likes little girls. My mom knew what was going on but...
    wingedvalkyrie7 wingedvalkyrie7 31-35, F 1 Response 1 day ago

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    Whenever I drive to LAX down the freeway, I see this huge *** factory. It's got the American Flag, with bright blues, reds and whites, hammered onto metal at the front of a copper...
    Fuzzies Fuzzies 56-60, M Apr 5

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    My Dad was recently diagnosed with terminal cancer, he has 2-6 month to live. The cancer is in his lungs, brain and liver. My dad has been absolutely horrible to me in the past and...
    noseatbeltsong noseatbeltsong 18-21 1 Response Apr 13

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    In july 23 2011 my father was diagnosed with lung and liver cancer. He was smoker. He was always in and out of that hospital. that year. The last day that we went out it was the...
    copenhagenkyle copenhagenkyle 18-21, M 1 day ago

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    Luckily some dont have that daily.
    convertihd convertihd 46-50, M 1 Response Mar 26

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