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I Have Liver Disease

Personal Stories, Advice, and Support 58 People

    Hi I was just diagnosed with AIH

    or autoimmune hepatitis. I'm 17 and hopeful. I started taking budesonide and after my next round of blood tests i will start taking Imuran. I'm still experiencing fatigue and chronic joint pain but I'm trying to stay active. There's a quote that says "Things turn out best for...
    Ahall96 Ahall96 18-21 2 Responses Jun 2, 2014

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    Lver Failure

    i was diagnosed with hep c in 1995 am currently in a great deal of pain, am currently on morphine contin 90 mg a day, this isn't working for the pain any sugestions, we don't have a pain clinic in the town i live in. not sleeping well up every 2 hours in pain. live with mom and...
    dennis3999 dennis3999 61-65, M Oct 4, 2013

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    I have not been diagnosed

    as of yet, I am 47 and use to be a fairly healthy drinker, all tests are normal,but I can tell something is very wrong. Dull pain under right rib cage, unexplained weight loss (20pounds) extreme sensitivity to even a sip of alcohol or red meat, weak legs, and occasional anxiety...
    skyriter88 skyriter88 46-50 Sep 10, 2014

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M 2 Responses May 19, 2013

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    I Turned Down A Liver. Did I Make The Right Decision?

    I have been on the transplant list for 5 years. I have hepatitis "C" and my MELD score has been stable for about a year. It stays right around 16. My blood type is B+ and I am 3rd on the list of patients with B type blood. The 2 people ahead of me have both developed liver cancer...
    ArizonaSteve ArizonaSteve 51-55, M Sep 24, 2012

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    To Others In The Same Boat...

    I'm 25yrs old and have liver disease caused by Porphyria (a hereditary disease). Liver disease isn't pleasant. The jaundice and ascites turns you into an oompaloompa (willy wonka reference). Just carrying that extra weight around is a strain alone. I once had 16L drained from my...
    MsMidnight MsMidnight 22-25, F 3 Responses Sep 5, 2010

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    AIH

    Hey guys I'm a 23 year old with auto-immune hepatitis. I was diagnosed with it at 14, and been fighting it ever since. Like most of you on here, it affects my life in the usual ways. I don't drink, and I try to eat as little fatty foods as possible. If anyone wants to chat...
    homecoming1 homecoming1 22-25, M 1 Response Mar 8, 2013

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M May 19, 2013

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    Hi... I am new to this

    so trying to understand how this has all happened. In January this year I opened some boxes ... got really sick and as a result my body started to shut down. As the weeks went on I didnt get better... I had blood in my urine and was sent to a specialist ... they thought I had a...
    Suem01 Suem01 46-50, F 1 Response May 30, 2014

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    Fighting With My Body

    Hi!  I am clearly new here and do not know exactly where to begin so here goes... About three years ago I as diagnoses with non-alcoholic fatty liver disease-Stage 4 cirrhosis with secondary portal hypertension.  I am 35 years old.  The anomaly which is also the reason my...
    hopefultc hopefultc 31-35, F 1 Response Oct 22, 2011

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    My Brother Has Alcohol Liver Disease

    i just wanted to share this story with people so others can have hope also... my brother who is just 32 has been a big drinker for many years but was alcohol dependant for the last 5years.. he has been told several times that he had an inflammed liver and had jaundice this was...
    jenny1981 jenny1981 26-30 4 Responses Jan 31, 2011

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    Pain & Raised Enzymes Advised - Terrified

    Hi All, I am a long time user of co-codomaol and other migraine related medicines. I suffer from headaches daily and as such, to get through my day pop pills. When the migraines come, that intensifies, anyone who suffers will be all to aware you will do almost anything to...
    stevied553 stevied553 36-40 2 Responses Dec 7, 2011

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    Non Alcoholic Liver Disease (nafld)

    Please let me first say that I respect and realise that many others here have more irrevocable conditions that the one I am facing- but I really am seeking a genuine place to talk with people about liver Disease- and I would love to hear your expereinces as well as share my own...
    Sekem Sekem 36-40, M 5 Responses Sep 29, 2010

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    My Dad's Hope

    I want to share my Dad's story with the world, so his hope can spread. He was an heavy drinker for most of my life and quit over two years ago. A few months ago he was diagnosed with end stage liver disease. He was on the transplant list and not doing well. His meld score reached...
    lakebaby lakebaby 31-35 3 Responses Jul 11, 2013

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    I Have End Stage Liver Disease Secondary To Cirrhosis .

    I was a heavy drink and at the time I came down with a very bad kidney infection. Not realizing that my kidneys were shutting down and thus backing up my system to the point where I went into full renal failure. I was hospitalized for ovr 2 months and the Dr's did not expect me...
    enduser2941 enduser2941 36-40 3 Responses May 29, 2011

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    Chronic Hebatitis B

    Been dieagnoses two or three years ago not sure not sever enough for treat ment thank god my health is perfect they say to me tho they tell me not to drink tho i do at times go on binges but im careful to take breaks in between to give my liver a chance to repair itself i...
    ccdo ccdo 22-25, F 2 Responses Nov 18, 2009

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    Just Diagnosed With Alcoholic Hepatitis And Terrified!

    Well, I drank for years due to depression, loneliness and going to New Orleans bars too often with my husband. I have always had an emotional and addictive personality. GI doc told me I had inflammed liver. I discovered that it was truly hepatitis by doing my own research and...
    AlabamaGirl56 AlabamaGirl56 56-60, F 2 Responses Oct 30, 2013

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    Scared...

    Well this is where it all started... I just had mine and my husband's second child on June 10th 2012. On the last day in the hospital my blood pressure shot up really high. We were able to leave the hospital with me on blood pressure meds. I went in to the doctor the next day for...
    Brittdaisy Brittdaisy 22-25, F 1 Response Dec 31, 2012

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    Related Experiences

    I think I may have Menieres Disease by the symptoms I've had for over a year. Loss of hearing, ringing high pitch sound, slight dizziness when standing. And now after researching...
    LivingLifeOneDayAtATime LivingLifeOneDayAtATime 41-45, M May 14

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    After more than a decade of eating poorly and being sedentary, I have developed heart disease. Currently, I'm trying to reverse it nutritionally and will have to start exercising...
    zarpanzur zarpanzur 26-30, M May 5

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    It started in December and we are still trying to figure out what's wrong but my doctor said it's a non-classic cause of Crohn's disease. I have ulcers in my stomach, intestines...
    stuff950 stuff950 18-21, F May 7

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    I have been suffering debilitating pain from celiac disease for the last 3-4 years and finally got a diagnosis February 3rd. I have been completely gluten free for 3 months but for...
    littlemissstaystrong littlemissstaystrong 16-17, F 1 Response May 11

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    When I was 17, I was diagnosed with Addisons disease after a severe crisis. I am now almost 21 and since then, I have handled it pretty well. I take 25mg of hydrocortisone...
    deleted deleted 26-30 2 Responses May 19

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    Got diagnosed in 2005.. Had my thyroid removed in 06. There's really no cure since it's an autoimmune disorder.. You can kill the thyroid or take it out. I opted to take it out...
    deleted deleted 26-30 1 Response May 4

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    So four years ago almost during my GCSE's I started to bleed internally from somewhere. It was never often enough to freak me out. But it got bad so I saw a GP and I was told to go...
    Sparklychest Sparklychest 18-21, F May 5

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    Yay (that was a sarcastic Yay) - though I have no symptoms, so now I have to meet with a dietitian and go gluten free Yay again...I have been trying to lose another 10 pounds, I...
    fun4us2b fun4us2b 51-55, M 1 Response a week ago

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    I'm feeling so defeated. I've been battling some health issues (presenting as autoimmune disorder) since last August and been through half a dozen doctors now with almost as many...
    Silc Silc 26-30, F May 8

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    HI I am with a company of all natural products for various medical conditions, one product , probiotic that helps for "gut" health. If you are interested in learning more, message...
    carolgem carolgem 46-50, F 2 days ago

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    Hiya. Ive just found out I have hepatitis c, and as well as feeling quite unwell, im really scared, because my son has had a liver transplant for a different liver disease, and I...
    Propsta84 Propsta84 26-30, M 2 Responses May 18

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    I'm only 21 and I've been suffering from back and neck pain for nearly 2 years now. i was in a bad car accident last june that had made my back pain even worse ( i had already...
    darnswell13 darnswell13 18-21, F 2 Responses 5 days ago

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    I just found out I have this disease & told my boyfriend & he supports me but I'm having a hard time deAling with this how do you deal with this ? I feel like my life is over.
    raeganboo raeganboo 18-21, F 1 Response 8 hrs ago

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    I'm 21 years old in Los Angeles without any friends. I have maybe 1-2 friends that talk baseball with me but no one that is a true friend. People flake on me and treat me like I...
    IllusionaryGentleman39 IllusionaryGentleman39 18-21, M 6 hrs ago

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    Well, I don't have calciphylaxis, but my mom did. I hate to say did, but she has just passed due to metabolic acidosis. The worst part is, she was actually being treated somewhat...
    rjean6688 rjean6688 46-50, F Apr 30

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    Steven Gerrard you are the greatest player to have ever captained Liverpool. You have brought glory and tears to Anfield. The day you leave will be the day a hole is left in...
    HMC17 HMC17 13-15, M May 16

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    Hey, I'm 15 and I live in Liverpool, UK I am looking for anyone who love feet and want my feet. I have a Skype just pm for that but prefer actual foot force xx
    tomcumtom tomcumtom 16-17, M 5 days ago

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    One day my wrist just started to ache and then it never stopped. I never had any injury or sprain to the wrist so I didn't think much of it at the time. I ignored it for a few...
    Nimy56 Nimy56 22-25, F 4 days ago

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    I was diagnosed with Polymyositis in 2005; it was the year where I would have to learn, how it would feel to walk a lonely path to reach my ultimate goal – to put my disease...
    david1000 david1000 26-30, M 4 days ago

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    it began in 2014 when I had a disease called thyroid disease. I was depressed everyday.I told every teacher about my disease but only she cared about me. She asked me how I feel...
    anonymous0601 anonymous0601 16-17, M 1 Response May 18

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    My sister and I both have been diagnosed with MELAS. I am 22 and my sister is 26. She was diagnosed first with the genetic disease when she was about 20. We both live in Toronto...
    hedyc hedyc 22-25, F a week ago

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    Am I a Monster? For me, the worst part of living with a mental disease was feeling like I can’t trust myself. When I was little, people told me I was different and I didn’t...
    kiarrafire kiarrafire 18-21, F 1 Response May 7

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    Hello people! I wanna share my story of how I got this kind of disease. 4 years ago, my sister was positive in TB and she'd gone for 6mos treatment and she's okay after that. last...
    indie24 indie24 22-25, F 3 days ago

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    Where most diseases make patients go downhill gradually, mine is different. Little is known about what age I could reach because there is a lot of variation between patients. But...
    Gentle153 Gentle153 26-30, M 4 Responses 3 days ago

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    Besides the tea, i own a coffee line that promotes weight loss, heals chronic diseases, and detoxes the digestive system.My brand has a variety of different flavors: Cappuccino...
    candyg82 candyg82 18-21, F 3 hrs ago