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I Have Liver Disease

Personal Stories, Advice, and Support 58 People

    Fighting With My Body

    Hi!  I am clearly new here and do not know exactly where to begin so here goes... About three years ago I as diagnoses with non-alcoholic fatty liver disease-Stage 4 cirrhosis with secondary portal hypertension.  I am 35 years old.  The anomaly which is also the reason my...
    hopefultc hopefultc 31-35, F 1 Response Oct 22, 2011

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    To Others In The Same Boat...

    I'm 25yrs old and have liver disease caused by Porphyria (a hereditary disease). Liver disease isn't pleasant. The jaundice and ascites turns you into an oompaloompa (willy wonka reference). Just carrying that extra weight around is a strain alone. I once had 16L drained from my...
    MsMidnight MsMidnight 22-25, F 3 Responses Sep 5, 2010

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 31-35, M 2 Responses May 19, 2013

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    Just Diagnosed With Alcoholic Hepatitis And Terrified!

    Well, I drank for years due to depression, loneliness and going to New Orleans bars too often with my husband. I have always had an emotional and addictive personality. GI doc told me I had inflammed liver. I discovered that it was truly hepatitis by doing my own research and...
    AlabamaGirl56 AlabamaGirl56 56-60, F 2 Responses Oct 30, 2013

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    My Dad's Hope

    I want to share my Dad's story with the world, so his hope can spread. He was an heavy drinker for most of my life and quit over two years ago. A few months ago he was diagnosed with end stage liver disease. He was on the transplant list and not doing well. His meld score reached...
    lakebaby lakebaby 31-35 3 Responses Jul 11, 2013

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    Chronic Hebatitis B

    Been dieagnoses two or three years ago not sure not sever enough for treat ment thank god my health is perfect they say to me tho they tell me not to drink tho i do at times go on binges but im careful to take breaks in between to give my liver a chance to repair itself i...
    ccdo ccdo 22-25, F 2 Responses Nov 18, 2009

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    I have not been diagnosed

    as of yet, I am 47 and use to be a fairly healthy drinker, all tests are normal,but I can tell something is very wrong. Dull pain under right rib cage, unexplained weight loss (20pounds) extreme sensitivity to even a sip of alcohol or red meat, weak legs, and occasional anxiety...
    skyriter88 skyriter88 46-50 Sep 10, 2014

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    Non Alcoholic Liver Disease (nafld)

    Please let me first say that I respect and realise that many others here have more irrevocable conditions that the one I am facing- but I really am seeking a genuine place to talk with people about liver Disease- and I would love to hear your expereinces as well as share my own...
    Sekem Sekem 36-40, M 5 Responses Sep 29, 2010

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 31-35, M May 19, 2013

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    Hi... I am new to this

    so trying to understand how this has all happened. In January this year I opened some boxes ... got really sick and as a result my body started to shut down. As the weeks went on I didnt get better... I had blood in my urine and was sent to a specialist ... they thought I had a...
    Suem01 Suem01 51-55, F 1 Response May 30, 2014

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    I Have End Stage Liver Disease Secondary To Cirrhosis .

    I was a heavy drink and at the time I came down with a very bad kidney infection. Not realizing that my kidneys were shutting down and thus backing up my system to the point where I went into full renal failure. I was hospitalized for ovr 2 months and the Dr's did not expect me...
    enduser2941 enduser2941 36-40 3 Responses May 29, 2011

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    My Brother Has Alcohol Liver Disease

    i just wanted to share this story with people so others can have hope also... my brother who is just 32 has been a big drinker for many years but was alcohol dependant for the last 5years.. he has been told several times that he had an inflammed liver and had jaundice this was...
    jenny1981 jenny1981 26-30 4 Responses Jan 31, 2011

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    Hi I was just diagnosed with AIH

    or autoimmune hepatitis. I'm 17 and hopeful. I started taking budesonide and after my next round of blood tests i will start taking Imuran. I'm still experiencing fatigue and chronic joint pain but I'm trying to stay active. There's a quote that says "Things turn out best for...
    Ahall96 Ahall96 18-21 2 Responses Jun 2, 2014

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    I Turned Down A Liver. Did I Make The Right Decision?

    I have been on the transplant list for 5 years. I have hepatitis "C" and my MELD score has been stable for about a year. It stays right around 16. My blood type is B+ and I am 3rd on the list of patients with B type blood. The 2 people ahead of me have both developed liver cancer...
    ArizonaSteve ArizonaSteve 51-55, M Sep 24, 2012

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    Pain & Raised Enzymes Advised - Terrified

    Hi All, I am a long time user of co-codomaol and other migraine related medicines. I suffer from headaches daily and as such, to get through my day pop pills. When the migraines come, that intensifies, anyone who suffers will be all to aware you will do almost anything to...
    stevied553 stevied553 36-40 2 Responses Dec 7, 2011

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    Scared...

    Well this is where it all started... I just had mine and my husband's second child on June 10th 2012. On the last day in the hospital my blood pressure shot up really high. We were able to leave the hospital with me on blood pressure meds. I went in to the doctor the next day for...
    Brittdaisy Brittdaisy 22-25, F 1 Response Dec 31, 2012

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    Lver Failure

    i was diagnosed with hep c in 1995 am currently in a great deal of pain, am currently on morphine contin 90 mg a day, this isn't working for the pain any sugestions, we don't have a pain clinic in the town i live in. not sleeping well up every 2 hours in pain. live with mom and...
    dennis3999 dennis3999 61-65, M Oct 4, 2013

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    AIH

    Hey guys I'm a 23 year old with auto-immune hepatitis. I was diagnosed with it at 14, and been fighting it ever since. Like most of you on here, it affects my life in the usual ways. I don't drink, and I try to eat as little fatty foods as possible. If anyone wants to chat...
    homecoming1 homecoming1 22-25, M 1 Response Mar 8, 2013

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    Related Experiences

    I am 16 years old, I was diagnosed with Kienbock's disease 2 years ago in Stage 2. I started getting pains in my dominant, right hand, so I went to the doctor, then a hand...
    AnAwkwardTroll AnAwkwardTroll 16-17 1 day ago

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    I was diagnosed with the most painful disease yesterday. I don't know how I got it but imagine it was from an ex that wasn't faithful I'm only 17 and I'm terrified I have the best...
    Princesskaylaxx Princesskaylaxx 16-17, F 1 day ago

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    About a year ago I was diagnosed with a rare autoimmune disease called relapsing polychondritis. There's no way to cure it and most doctors have no idea how to deal with it. The...
    mary909 mary909 16-17, F 1 day ago

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    I've been sick now for almost a year. I'm so so so tired of being sick. I think this past year has aged me ten or more. Without any kind of warning or any trigger that I know of...
    thatonewoman thatonewoman 31-35, F 3 Responses 2 days ago

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    So with the new 'Reboot' being so polarizing for the fandom [and for a lot of legitimate reasons] I thought perhaps there could be a TV cartoon set in the continuity of 'The Real...
    FluttershyLabeouf FluttershyLabeouf 18-21, M 1 Response 2 days ago

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    After thinking I was just tired and stressed from moving and selling my previous home and turning completely yellow (eyes and skin), I went to the doctor. I was hospitalized after...
    Zomar323 Zomar323 46-50, F 2 days ago

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    Chronic Obstructive Pulmonary Disease...the beginning stages of Emphysema.
    melbdad melbdad 51-55, M 4 days ago

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    just recently i had lost my grandma to pancreatic cancer .we bearly found this out right after thanksgiving or last year .she went into the hospital cause she has stomach pains and...
    rayy17 rayy17 16-17, F 2 Responses 5 days ago

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    When people try to seal their brokenness by trying to break another person seem to not realise all they are doing is having a temporary high. Like treating a symptom but not the...
    Idolovemostofyourthoughts Idolovemostofyourthoughts 26-30, F 2 Responses Feb 5

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    My son is 4 yrs old and was diagnosed with HD at 17 days old. He had his first surgery at 21 days old and gotten a colostomy bag. He had a reversal at four months, didn't work so...
    Rymae87 Rymae87 26-30, F Feb 4

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    I've had crohns since I was 15. It slowly became a bigger issue in my lay 20's. I ended up with 3 weeks in the hospital, an iliostomy and they removed a significant amount of small...
    deleted deleted 26-30 1 Response Feb 4

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    Having this disease is excruciating. Inside I rot and squirm unable to get rid of this feeling, and I just smile to the world to convince them that I'm okay. I can't move forward...
    artemicionmoon artemicionmoon 26-30, M Feb 2

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    I have lost both of my parents to cancer. It is a terrible disease that hopefully we can end. Too much pain has been caused because of it. Too many people lost.
    aaronfunn aaronfunn 41-45, M 3 Responses Feb 2

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    Assume, presume exclude the truth. Teeter totter bicker bother. Life is so wondrous and full of fodder. As the garden grown the plants unfold into trees and bushes bushels of...
    deleted deleted 26-30 Feb 2

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    Hi, I stumbled upon this site while searching ( as iv done thousands of times, for yeeears now) in hopes that I can find some magical supplement to cure the living hell that my...
    Hopelesslyfallen Hopelesslyfallen 31-35, F Feb 1

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    Stage 4 since 2014. Dxd in 2012 with stage 2-3. I've done a year and a half of Lupron, a year of Progesterone, 1 D&C, two laps, two hysteroscopys, 1 cystoscopy, a $400,000 DaVinci...
    apresm0i apresm0i 26-30, F 2 Responses Feb 1

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    I have a rare disease so I wear a medical ID necklace I never take off.
    MandyR34 MandyR34 22-25, F 1 Response Jan 30

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    I am 22 years old and have known since birth that I was a "carrier" for a genetic blood disease called Thalassemia. My parents told me from an early age that I was not sick but if...
    dgoodspeed dgoodspeed 22-25, F 1 Response Jan 30

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    Your wish means somebody else's downfall. Let's see; I wish all illnesses and diseases will go away. HOORAY! Science and medical no longer required. The doctors at medical centres...
    Sazzio Sazzio 26-30, M Jan 30

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    She threw herself at me. I took things slowly. After a few months, we were official. I was a part of her family's dinners. She was "the happiest they've ever seen her." She treated...
    standardmale standardmale 26-30, M 2 Responses Jan 30

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    I used to get drunk a lot (when younger) but I never needed it to have fun, I can have fun sober, in fact I'm quite jumpy and with a tendency to be joking all the time (to the...
    oneiric13 oneiric13 26-30, M Jan 29

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    the best they've explained it and from the x-rays it shows that L4 and L5 are too big for the rest of my spine. doc calls it an anomaly. what it means to me is pain and a lot of...
    nnysspawn nnysspawn 36-40, F 1 Response Jan 29

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    Became a member on this site with the little gleam of hope that I still have. My story is very in depth, long, and to be blunt, f!&%>d up. I plan to share my story, and I hope my...
    Hopelesslyfallen Hopelesslyfallen 31-35, F Jan 29

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    Just had seen a friend in a hospital yesterday this person just had their 30 th mental break down its nothing new but this person always seems to stop taking their medications as...
    Bella70 Bella70 41-45, F 3 Responses Jan 29

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