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I Have Liver Disease

Personal Stories, Advice, and Support 58 People

    My Dad's Hope

    I want to share my Dad's story with the world, so his hope can spread. He was an heavy drinker for most of my life and quit over two years ago. A few months ago he was diagnosed with end stage liver disease. He was on the transplant list and not doing well. His meld score reached...
    lakebaby lakebaby 31-35 3 Responses Jul 11, 2013

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    My Brother Has Alcohol Liver Disease

    i just wanted to share this story with people so others can have hope also... my brother who is just 32 has been a big drinker for many years but was alcohol dependant for the last 5years.. he has been told several times that he had an inflammed liver and had jaundice this was...
    jenny1981 jenny1981 26-30 4 Responses Jan 31, 2011

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    To Others In The Same Boat...

    I'm 25yrs old and have liver disease caused by Porphyria (a hereditary disease). Liver disease isn't pleasant. The jaundice and ascites turns you into an oompaloompa (willy wonka reference). Just carrying that extra weight around is a strain alone. I once had 16L drained from my...
    MsMidnight MsMidnight 22-25, F 3 Responses Sep 5, 2010

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    Scared...

    Well this is where it all started... I just had mine and my husband's second child on June 10th 2012. On the last day in the hospital my blood pressure shot up really high. We were able to leave the hospital with me on blood pressure meds. I went in to the doctor the next day for...
    Brittdaisy Brittdaisy 22-25, F 1 Response Dec 31, 2012

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    I Have End Stage Liver Disease Secondary To Cirrhosis .

    I was a heavy drink and at the time I came down with a very bad kidney infection. Not realizing that my kidneys were shutting down and thus backing up my system to the point where I went into full renal failure. I was hospitalized for ovr 2 months and the Dr's did not expect me...
    enduser2941 enduser2941 36-40 3 Responses May 29, 2011

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    Hi... I am new to this

    so trying to understand how this has all happened. In January this year I opened some boxes ... got really sick and as a result my body started to shut down. As the weeks went on I didnt get better... I had blood in my urine and was sent to a specialist ... they thought I had a...
    Suem01 Suem01 51-55, F 1 Response May 30, 2014

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M 2 Responses May 19, 2013

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M May 19, 2013

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    AIH

    Hey guys I'm a 23 year old with auto-immune hepatitis. I was diagnosed with it at 14, and been fighting it ever since. Like most of you on here, it affects my life in the usual ways. I don't drink, and I try to eat as little fatty foods as possible. If anyone wants to chat...
    homecoming1 homecoming1 22-25, M 1 Response Mar 8, 2013

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    Non Alcoholic Liver Disease (nafld)

    Please let me first say that I respect and realise that many others here have more irrevocable conditions that the one I am facing- but I really am seeking a genuine place to talk with people about liver Disease- and I would love to hear your expereinces as well as share my own...
    Sekem Sekem 36-40, M 5 Responses Sep 29, 2010

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    Chronic Hebatitis B

    Been dieagnoses two or three years ago not sure not sever enough for treat ment thank god my health is perfect they say to me tho they tell me not to drink tho i do at times go on binges but im careful to take breaks in between to give my liver a chance to repair itself i...
    ccdo ccdo 22-25, F 2 Responses Nov 18, 2009

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    Fighting With My Body

    Hi!  I am clearly new here and do not know exactly where to begin so here goes... About three years ago I as diagnoses with non-alcoholic fatty liver disease-Stage 4 cirrhosis with secondary portal hypertension.  I am 35 years old.  The anomaly which is also the reason my...
    hopefultc hopefultc 31-35, F 1 Response Oct 22, 2011

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    Lver Failure

    i was diagnosed with hep c in 1995 am currently in a great deal of pain, am currently on morphine contin 90 mg a day, this isn't working for the pain any sugestions, we don't have a pain clinic in the town i live in. not sleeping well up every 2 hours in pain. live with mom and...
    dennis3999 dennis3999 61-65, M Oct 4, 2013

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    I have not been diagnosed

    as of yet, I am 47 and use to be a fairly healthy drinker, all tests are normal,but I can tell something is very wrong. Dull pain under right rib cage, unexplained weight loss (20pounds) extreme sensitivity to even a sip of alcohol or red meat, weak legs, and occasional anxiety...
    skyriter88 skyriter88 46-50 Sep 10, 2014

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    Just Diagnosed With Alcoholic Hepatitis And Terrified!

    Well, I drank for years due to depression, loneliness and going to New Orleans bars too often with my husband. I have always had an emotional and addictive personality. GI doc told me I had inflammed liver. I discovered that it was truly hepatitis by doing my own research and...
    AlabamaGirl56 AlabamaGirl56 56-60, F 2 Responses Oct 30, 2013

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    I Turned Down A Liver. Did I Make The Right Decision?

    I have been on the transplant list for 5 years. I have hepatitis "C" and my MELD score has been stable for about a year. It stays right around 16. My blood type is B+ and I am 3rd on the list of patients with B type blood. The 2 people ahead of me have both developed liver cancer...
    ArizonaSteve ArizonaSteve 51-55, M Sep 24, 2012

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    Pain & Raised Enzymes Advised - Terrified

    Hi All, I am a long time user of co-codomaol and other migraine related medicines. I suffer from headaches daily and as such, to get through my day pop pills. When the migraines come, that intensifies, anyone who suffers will be all to aware you will do almost anything to...
    stevied553 stevied553 36-40 2 Responses Dec 7, 2011

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    Hi I was just diagnosed with AIH

    or autoimmune hepatitis. I'm 17 and hopeful. I started taking budesonide and after my next round of blood tests i will start taking Imuran. I'm still experiencing fatigue and chronic joint pain but I'm trying to stay active. There's a quote that says "Things turn out best for...
    Ahall96 Ahall96 18-21 2 Responses Jun 2, 2014

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    Related Experiences

    * A disease known is half cured. * A drowing man will catch at astraw. * If something moves and is green=Biology; If something smells bad=Chemistry; If something doesn't function...
    be2u be2u 36-40, M 1 Response 1 day ago

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    * A disease known is half cured. * A drowing man will catch at astraw. * If something moves and is green=Biology; If something smells bad=Chemistry; If something doesn't function...
    be2u be2u 36-40, M 1 day ago

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    * A disease known is half cured. * A drowing man will catch at astraw. * If something moves and is green=Biology; If something smells bad=Chemistry; If something doesn't function...
    be2u be2u 36-40, M 1 day ago

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    * A disease known is half cured. * A drowing man will catch at astraw. * If something moves and is green=Biology; If something smells bad=Chemistry; If something doesn't function...
    be2u be2u 36-40, M 1 day ago

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    I don't have Crohn's disease. But I am truly sorry that any of you have to go through it. My boyfriend has had it since a child. However he has been in remission for most of the...
    Sunshinemms Sunshinemms 22-25, F 1 Response 2 days ago

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    I've had Lyme Disease for a long time, but was only diagnosed two years ago. I also have EDS, which symptoms are a lot like Lyme. I am 23, on disability, in pain 24/7 and have so...
    alwaysfaithful13 alwaysfaithful13 22-25, F 2 days ago

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    I am a computer engineer. I know danger of messing with big computers. Careless insertion of a few unnecessary letters in a programming code can halt a customer's operation for...
    katsuobushi katsuobushi 36-40, M 1 Response 2 days ago

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    I have end stage kidney failure. I only had one good kidney when I was born. The other was smaller and failed first. The thing is I am on dialysis for the rest of my life. Do I...
    comfi comfi 51-55, M 3 days ago

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    I was diagnosed with PTS almost 3 years ago after undergoing surgery to remove a bone spur. I still don’t have full use of my arm and still suffer pain, but have learned what...
    PDG1 PDG1 46-50 4 days ago

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    Part 2 at the Airport in Ireland (Dublin to be exact). While I was in the airport, I ended up living there for a number of days and not really sleeping much at all. I would sit in...
    SolitaryFriend SolitaryFriend 31-35, M 4 Responses 5 days ago

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    I have this disease which causes me to feel weak and without energy most of the time. I've always been kind of small for my age but I am also skinny and not very strong physically...
    laurenholliday laurenholliday 13-15, F 1 Response 5 days ago

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    had a dream I went fishing and I had to do this college assignment where Iwas supposed to dissect the fish and find its liver and use the liver to catch a large, rare fish.. but in...
    peaceinmiles peaceinmiles 18-21, F 2 Responses 5 days ago

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    Everyday I feel terrible because anxiety and fears are preventing me to enjoy my life to the fullest. 2 years ago my life changes because of this anxiety that I don't know how did...
    Nckoanglo Nckoanglo 18-21, M 6 days ago

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    My son had two malrotations before they found he had Hirschsprungs Disease. The first was at birth and the second was probably around 4-5 months old. We thought we were going to...
    tilaterese tilaterese 26-30, F 6 days ago

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    I was born with ischemic heart disease
    MrsButterfly90 MrsButterfly90 22-25, F a week ago

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    OMG other people .. that have ischemic heart disease I didn't think this was possible
    MrsButterfly90 MrsButterfly90 22-25, F a week ago

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    I've started experiencing regular chest pains but my diet is good and I do get moderate exercise every week.At the doctors office, my vital signs were normal though, with somewhat...
    shaandar shaandar 31-35, F 1 Response Jul 23

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    About a month ago, so to say from one day of another I came down with MG. At first I noted that I couldn't swallow very well. I also had a lot of salavia en my mouth. My wife...
    01Ledor 01Ledor 66-70, M Jul 23

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    I want chicken, I want liver, meow mix meow mix please deliver
    mslvr01 mslvr01 46-50, M 1 Response Jul 22

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    Glandular fever is horrific. I have had it for a year. In this year I could barely stay awake and it nearly cost me my degree. As a result of having had previous autoimmune...
    cathymcg123 cathymcg123 18-21, F Jul 21

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    Hi I am Madison, I am 16 years old and developed Darier’s disease when I was 2. The condition started with just a few bumps around my mouth, and by the time I was about eight I...
    Maddie314 Maddie314 16-17, F Jul 21

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    I have severe social anxiety, degenerative disc disease, spinal stenosis, nerve inpengment. I am losing my ability to walk. I don't trust people. what's worst, I'm engaged to a...
    PrincessMouse86 PrincessMouse86 26-30, F Jul 20

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    Hi, I am male and retired and was diagnosed with EF in July 2014. I started treatment in August 2014 and now it is a year later and I am already much better. I hope that gives you...
    mogfitz mogfitz 66-70, M Jul 20

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    A week ago I had my appendix out with and appendectomy. Last Thursday, I was told I have cancer in my appendix. I was also told that it is a very very rare cancer. Of all colon...
    emoenjr emoenjr 46-50, M 1 Response Jul 19

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    Hi.. I was recently diagnosed with hashimoto's a few months ago. My mom just got diagnosed and so did my 12 year old sister. I have been battling depression, bipolar, anxiety...
    twiztid187 twiztid187 22-25, F Jul 18

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