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I Have Liver Disease

Personal Stories, Advice, and Support 55 People

    Fighting With My Body

    Hi!  I am clearly new here and do not know exactly where to begin so here goes... About three years ago I as diagnoses with non-alcoholic fatty liver disease-Stage 4 cirrhosis with secondary portal hypertension.  I am 35 years old.  The anomaly which is also the reason my...
    hopefultc hopefultc 31-35, F 1 Response Oct 22, 2011

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M May 19, 2013

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    Pain & Raised Enzymes Advised - Terrified

    Hi All, I am a long time user of co-codomaol and other migraine related medicines. I suffer from headaches daily and as such, to get through my day pop pills. When the migraines come, that intensifies, anyone who suffers will be all to aware you will do almost anything to...
    stevied553 stevied553 36-40 2 Responses Dec 7, 2011

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    Non Alcoholic Liver Disease (nafld)

    Please let me first say that I respect and realise that many others here have more irrevocable conditions that the one I am facing- but I really am seeking a genuine place to talk with people about liver Disease- and I would love to hear your expereinces as well as share my own...
    Sekem Sekem 36-40, M 5 Responses Sep 29, 2010

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    Scared...

    Well this is where it all started... I just had mine and my husband's second child on June 10th 2012. On the last day in the hospital my blood pressure shot up really high. We were able to leave the hospital with me on blood pressure meds. I went in to the doctor the next day for...
    Brittdaisy Brittdaisy 22-25, F 1 Response Dec 31, 2012

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    I Have End Stage Liver Disease Secondary To Cirrhosis .

    I was a heavy drink and at the time I came down with a very bad kidney infection. Not realizing that my kidneys were shutting down and thus backing up my system to the point where I went into full renal failure. I was hospitalized for ovr 2 months and the Dr's did not expect me...
    enduser2941 enduser2941 36-40 3 Responses May 29, 2011

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    To Others In The Same Boat...

    I'm 25yrs old and have liver disease caused by Porphyria (a hereditary disease). Liver disease isn't pleasant. The jaundice and ascites turns you into an oompaloompa (willy wonka reference). Just carrying that extra weight around is a strain alone. I once had 16L drained from my...
    MsMidnight MsMidnight 22-25, F 3 Responses Sep 5, 2010

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    Lver Failure

    i was diagnosed with hep c in 1995 am currently in a great deal of pain, am currently on morphine contin 90 mg a day, this isn't working for the pain any sugestions, we don't have a pain clinic in the town i live in. not sleeping well up every 2 hours in pain. live with mom and...
    dennis3999 dennis3999 61-65, M Oct 4, 2013

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    Can someone here explain to me the kind of pain

    and location they had/have during issues with their liver? And any other symptoms? I have been having mild but persistent acking, burning pain that kind of feels like cramping in my upper abdomen. There is also one tiny spot that hurts when I putt pressure on it. Also a slight...
    MeowOnMe MeowOnMe 18-21, F 2 Responses Aug 28

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    I have not been diagnosed

    as of yet, I am 47 and use to be a fairly healthy drinker, all tests are normal,but I can tell something is very wrong. Dull pain under right rib cage, unexplained weight loss (20pounds) extreme sensitivity to even a sip of alcohol or red meat, weak legs, and occasional anxiety...
    skyriter88 skyriter88 46-50 Sep 10

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    My Dad's Hope

    I want to share my Dad's story with the world, so his hope can spread. He was an heavy drinker for most of my life and quit over two years ago. A few months ago he was diagnosed with end stage liver disease. He was on the transplant list and not doing well. His meld score reached...
    lakebaby lakebaby 31-35 3 Responses Jul 11, 2013

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M 2 Responses May 19, 2013

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    I Turned Down A Liver. Did I Make The Right Decision?

    I have been on the transplant list for 5 years. I have hepatitis "C" and my MELD score has been stable for about a year. It stays right around 16. My blood type is B+ and I am 3rd on the list of patients with B type blood. The 2 people ahead of me have both developed liver cancer...
    ArizonaSteve ArizonaSteve 51-55, M Sep 24, 2012

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    Hi I was just diagnosed with AIH

    or autoimmune hepatitis. I'm 17 and hopeful. I started taking budesonide and after my next round of blood tests i will start taking Imuran. I'm still experiencing fatigue and chronic joint pain but I'm trying to stay active. There's a quote that says "Things turn out best for...
    Ahall96 Ahall96 18-21 2 Responses Jun 2

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    My Brother Has Alcohol Liver Disease

    i just wanted to share this story with people so others can have hope also... my brother who is just 32 has been a big drinker for many years but was alcohol dependant for the last 5years.. he has been told several times that he had an inflammed liver and had jaundice this was...
    jenny1981 jenny1981 26-30 3 Responses Jan 31, 2011

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    Just Diagnosed With Alcoholic Hepatitis And Terrified!

    Well, I drank for years due to depression, loneliness and going to New Orleans bars too often with my husband. I have always had an emotional and addictive personality. GI doc told me I had inflammed liver. I discovered that it was truly hepatitis by doing my own research and...
    AlabamaGirl56 AlabamaGirl56 56-60, F 2 Responses Oct 30, 2013

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    Hi... I am new to this

    so trying to understand how this has all happened. In January this year I opened some boxes ... got really sick and as a result my body started to shut down. As the weeks went on I didnt get better... I had blood in my urine and was sent to a specialist ... they thought I had a...
    Suem01 Suem01 46-50, F 1 Response May 30

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    AIH

    Hey guys I'm a 23 year old with auto-immune hepatitis. I was diagnosed with it at 14, and been fighting it ever since. Like most of you on here, it affects my life in the usual ways. I don't drink, and I try to eat as little fatty foods as possible. If anyone wants to chat...
    homecoming1 homecoming1 22-25, M 1 Response Mar 8, 2013

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    Chronic Hebatitis B

    Been dieagnoses two or three years ago not sure not sever enough for treat ment thank god my health is perfect they say to me tho they tell me not to drink tho i do at times go on binges but im careful to take breaks in between to give my liver a chance to repair itself i...
    ccdo ccdo 22-25, F 2 Responses Nov 18, 2009

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    Related Experiences

    Developed a heart disease and had to stop playing softball which dropped my scholarship to college. If I don't get the expensive surgery I'll die from heart failure or drowning in...
    CaliArs CaliArs 18-21, F Dec 13

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    Was diagnosed with Hashi's two months ago after two years of doctor after doctor, misdiagnoses and mismanaged meds. Extreme fatigue, dizziness, headaches, brain fog, exhaustion...
    craigrhodes craigrhodes 46-50 Dec 15

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    As much as I've tried not to let this effect me and define who I am, I've been out of work all year due to this illness, had 2 weeks training for a new job and my illness has...
    deejay2605 deejay2605 22-25, M 1 Response a week ago

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    Well where to start? I guess it's always better to just put it out there....I was recent tly told I have liver disease and they think it's acute and that means it showed up without...
    Squeekarose Squeekarose 31-35, F 1 Response 3 days ago

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    he told me he wants to wake up every morning to me. XD i just don't know what to say. I feel the same way. 100 percent. there is no doubt in my heart or mind this is the man I...
    HigherCalling HigherCalling 22-25, F 1 Response Dec 12

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    well hello I am having the wide excision surgery at 11am tomorrow. I have been dealing with this hs for sometime. MY first slice and drainage happened the day of history 9/11. I...
    hopeful72 hopeful72 41-45, F Dec 10

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    I had had pain in my joints & muscles for awhile...then it became constant. I was diagnosed with Fibromyalgia in November 2013. Some doctors & others don't believe it's a "real...
    RubyLane RubyLane 41-45, F 1 hr ago

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    I wanted to share this. Envita Publishes Important Chronic Lyme Disease Treatment Study SCOTTSDALE, AZ--(Marketwired - December 16, 2014) - A revealing new study on chronic Lyme...
    mynameisjeff28 mynameisjeff28 26-30, M 6 days ago

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    Thomas Marvelli is a popular Ophthalmologist, working at Marvel Eye Center. He is M.D. from Loyola University Stritch School of Medicine, Maywood, IL. He loves his job as a...
    ryangibello ryangibello 61-65, M Dec 5

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    Until you walk a mile in my shoes, it will be very easy to say "it's all in your head!" "You need to learn to cope!" Or my favorite, "is this even a real thing?" Misophonia...
    Annaelaine Annaelaine 13-15, F 1 Response Dec 7

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    I lost my dad on November 22. I watched a big strong healthy man become over powered by Alzheimer's and dementia. I watched these diseases slowly destroy him. When he died he was...
    abluerose abluerose 41-45, F 1 Response Dec 3

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    A few years ago, I moved from the east coast of the United States to the southwest to go back to university after taking a year long break from school, and I didn't know a single...
    uglyhands uglyhands 22-25, F Dec 4

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    It is on thanksgiving that I usually feel a little saddened and empty. Over 10 years ago, my grandma who had always lived with me became more ill. It was known to the family she...
    Hellokittybbgrl Hellokittybbgrl 31-35, F 1 Response Nov 26

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    Herbs Solutions By Nature is just the right destination for all those who have been looking for a herbal cure to their relevant disease. We are acquainted with the fact that herbal...
    herbsolutions herbsolutions 22-25, F Dec 3

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    Hello I'm MICHELLE buff by name, I'm giving a testimony about Dr. LAMANO the great Herbalist, he has the cure to all manner of diseases, he cured my herpes disease, though I went...
    Belaluv22 Belaluv22 22-25, F Dec 3

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    Hello I'm MICHELLE buff by name, I'm giving a testimony about Dr. LAMANO the great Herbalist, he has the cure to all manner of diseases, he cured my herpes disease, though I went...
    Belaluv22 Belaluv22 22-25, F Dec 3

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    Hello I'm MICHELLE buff by name, I'm giving a testimony about Dr. LAMANO the great Herbalist, he has the cure to all manner of diseases, he cured my herpes disease, though I went...
    Belaluv22 Belaluv22 22-25, F Dec 3

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    OCD is when: Numbers remind you of the worst moments of your life. You can't walk into that room because you have a bad feeling. You can't hurt that stuffed animal because it has...
    simplyOCD simplyOCD 16-17, F 1 Response Dec 6

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    I have crohn's disease . I was diagnosed in 2003 , I would say I'm a very strong person with all the pain I go through . but it seems ever since I had my daughter 7 years ago I've...
    queenbee03 queenbee03 22-25, F Dec 10

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    I was 7 when I found out. And my sister was the first to notice the symptoms. My eyes were yellow and my finger nails.. 3 days later I started to get bad cramps.. when I went to...
    kbrown818 kbrown818 13-15, F Nov 29

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    My 72 year old father is in Hospice Care just "waiting to die". Lung/liver cancer. Never smoked a day in his life. Hard working family man and this is how he gets to end his life...
    hazeleyedangel68 hazeleyedangel68 46-50, F 1 Response Dec 7

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    i cant stop drinking every ****** night, i dont feel like killing myself now but im doing a damn good job, only had a piece of pizza and a handfull of checks mix in 4 days. my...
    Pigmaginny Pigmaginny 22-25, M 1 Response 5 days ago

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    I give up, I haven't told you guy this but it's monster energy drinks that are making me ill and wrecking my liver and that's the reason I drink them, I have drang about 10 cans...
    james3950 james3950 13-15, M 1 Response 4 days ago

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    well this isnt about me. its about my friend. you see, she has a lot of bad things going right. tbh she isnt a she. she's a he (he had transgender) but people think of him as...
    bestchloe bestchloe 13-15, F 1 Response Nov 25

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    I am 99.999999% certain that this will be my last Thanksgiving with my mother. She hasn't slept since Friday (she sleeps for about 30 minutes at a time and then is up for hours...
    Myzery Myzery 31-35, F 2 Responses Nov 26

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    My mother may not make it through the night. But she might. I am unsure what I should do. She's trying to walk around...I am trying to stay out of the nurse's way as they try ti...
    Myzery Myzery 31-35, F 2 Responses Nov 29

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    My wife( 36, a twin, living in NZ), has MELAS. Hearing loss declined between 2007-2012. Had first grand mal seizures in 2012, diagnosed with mitochondrial disease/MELAS. Sadly had...
    Richeste Richeste 36-40, M Nov 29

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    I have been pulling for about 6 years, and I am now in college. I have pulled just about every type of hair on my body. There have been some periods of time where the pulling stops...
    uglicorn uglicorn 18-21 2 Responses Nov 29

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    My daughter has BCS. She's 6yrs old now. She was diagnosed when she was 18 months old. Her body was shunting itself when I was pregnant with her. She's currently on Coumadin. She...