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I Have Liver Disease

Personal Stories, Advice, and Support 58 People

    Pain & Raised Enzymes Advised - Terrified

    Hi All, I am a long time user of co-codomaol and other migraine related medicines. I suffer from headaches daily and as such, to get through my day pop pills. When the migraines come, that intensifies, anyone who suffers will be all to aware you will do almost anything to...
    stevied553 stevied553 36-40 2 Responses Dec 7, 2011

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    My Brother Has Alcohol Liver Disease

    i just wanted to share this story with people so others can have hope also... my brother who is just 32 has been a big drinker for many years but was alcohol dependant for the last 5years.. he has been told several times that he had an inflammed liver and had jaundice this was...
    jenny1981 jenny1981 26-30 4 Responses Jan 31, 2011

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    My Dad's Hope

    I want to share my Dad's story with the world, so his hope can spread. He was an heavy drinker for most of my life and quit over two years ago. A few months ago he was diagnosed with end stage liver disease. He was on the transplant list and not doing well. His meld score reached...
    lakebaby lakebaby 31-35 3 Responses Jul 11, 2013

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    Hi I was just diagnosed with AIH

    or autoimmune hepatitis. I'm 17 and hopeful. I started taking budesonide and after my next round of blood tests i will start taking Imuran. I'm still experiencing fatigue and chronic joint pain but I'm trying to stay active. There's a quote that says "Things turn out best for...
    Ahall96 Ahall96 18-21 2 Responses Jun 2, 2014

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    Lver Failure

    i was diagnosed with hep c in 1995 am currently in a great deal of pain, am currently on morphine contin 90 mg a day, this isn't working for the pain any sugestions, we don't have a pain clinic in the town i live in. not sleeping well up every 2 hours in pain. live with mom and...
    dennis3999 dennis3999 61-65, M Oct 4, 2013

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    Hi... I am new to this

    so trying to understand how this has all happened. In January this year I opened some boxes ... got really sick and as a result my body started to shut down. As the weeks went on I didnt get better... I had blood in my urine and was sent to a specialist ... they thought I had a...
    Suem01 Suem01 46-50, F 1 Response May 30, 2014

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M May 19, 2013

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    Fighting With My Body

    Hi!  I am clearly new here and do not know exactly where to begin so here goes... About three years ago I as diagnoses with non-alcoholic fatty liver disease-Stage 4 cirrhosis with secondary portal hypertension.  I am 35 years old.  The anomaly which is also the reason my...
    hopefultc hopefultc 31-35, F 1 Response Oct 22, 2011

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    I Turned Down A Liver. Did I Make The Right Decision?

    I have been on the transplant list for 5 years. I have hepatitis "C" and my MELD score has been stable for about a year. It stays right around 16. My blood type is B+ and I am 3rd on the list of patients with B type blood. The 2 people ahead of me have both developed liver cancer...
    ArizonaSteve ArizonaSteve 51-55, M Sep 24, 2012

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    Chronic Hebatitis B

    Been dieagnoses two or three years ago not sure not sever enough for treat ment thank god my health is perfect they say to me tho they tell me not to drink tho i do at times go on binges but im careful to take breaks in between to give my liver a chance to repair itself i...
    ccdo ccdo 22-25, F 2 Responses Nov 18, 2009

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M 2 Responses May 19, 2013

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    Scared...

    Well this is where it all started... I just had mine and my husband's second child on June 10th 2012. On the last day in the hospital my blood pressure shot up really high. We were able to leave the hospital with me on blood pressure meds. I went in to the doctor the next day for...
    Brittdaisy Brittdaisy 22-25, F 1 Response Dec 31, 2012

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    AIH

    Hey guys I'm a 23 year old with auto-immune hepatitis. I was diagnosed with it at 14, and been fighting it ever since. Like most of you on here, it affects my life in the usual ways. I don't drink, and I try to eat as little fatty foods as possible. If anyone wants to chat...
    homecoming1 homecoming1 22-25, M 1 Response Mar 8, 2013

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    I Have End Stage Liver Disease Secondary To Cirrhosis .

    I was a heavy drink and at the time I came down with a very bad kidney infection. Not realizing that my kidneys were shutting down and thus backing up my system to the point where I went into full renal failure. I was hospitalized for ovr 2 months and the Dr's did not expect me...
    enduser2941 enduser2941 36-40 3 Responses May 29, 2011

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    Non Alcoholic Liver Disease (nafld)

    Please let me first say that I respect and realise that many others here have more irrevocable conditions that the one I am facing- but I really am seeking a genuine place to talk with people about liver Disease- and I would love to hear your expereinces as well as share my own...
    Sekem Sekem 36-40, M 5 Responses Sep 29, 2010

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    To Others In The Same Boat...

    I'm 25yrs old and have liver disease caused by Porphyria (a hereditary disease). Liver disease isn't pleasant. The jaundice and ascites turns you into an oompaloompa (willy wonka reference). Just carrying that extra weight around is a strain alone. I once had 16L drained from my...
    MsMidnight MsMidnight 22-25, F 3 Responses Sep 5, 2010

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    I have not been diagnosed

    as of yet, I am 47 and use to be a fairly healthy drinker, all tests are normal,but I can tell something is very wrong. Dull pain under right rib cage, unexplained weight loss (20pounds) extreme sensitivity to even a sip of alcohol or red meat, weak legs, and occasional anxiety...
    skyriter88 skyriter88 46-50 Sep 10, 2014

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    Just Diagnosed With Alcoholic Hepatitis And Terrified!

    Well, I drank for years due to depression, loneliness and going to New Orleans bars too often with my husband. I have always had an emotional and addictive personality. GI doc told me I had inflammed liver. I discovered that it was truly hepatitis by doing my own research and...
    AlabamaGirl56 AlabamaGirl56 56-60, F 2 Responses Oct 30, 2013

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    Related Experiences

    I think I may have Menieres Disease by the symptoms I've had for over a year. Loss of hearing, ringing high pitch sound, slight dizziness when standing. And now after researching...
    SoScaredLifeIsOver SoScaredLifeIsOver 41-45, M May 14

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    After more than a decade of eating poorly and being sedentary, I have developed heart disease. Currently, I'm trying to reverse it nutritionally and will have to start exercising...
    zarpanzur zarpanzur 26-30, M May 5

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    When I had braces I got a disease in my gum and my gum had reduced a little bit. I've had a gum graft done 4 times now. It still hasn't worked 100% but it's better then it was...
    epsarah94 epsarah94 18-21, F Apr 27

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    It started in December and we are still trying to figure out what's wrong but my doctor said it's a non-classic cause of Crohn's disease. I have ulcers in my stomach, intestines...
    stuff950 stuff950 18-21, F May 7

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    I have been suffering debilitating pain from celiac disease for the last 3-4 years and finally got a diagnosis February 3rd. I have been completely gluten free for 3 months but for...
    littlemissstaystrong littlemissstaystrong 16-17, F 1 Response May 11

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    When I was 17, I was diagnosed with Addisons disease after a severe crisis. I am now almost 21 and since then, I have handled it pretty well. I take 25mg of hydrocortisone...
    deleted deleted 26-30 2 Responses 2 days ago

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    Got diagnosed in 2005.. Had my thyroid removed in 06. There's really no cure since it's an autoimmune disorder.. You can kill the thyroid or take it out. I opted to take it out...
    deleted deleted 26-30 1 Response May 4

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    So four years ago almost during my GCSE's I started to bleed internally from somewhere. It was never often enough to freak me out. But it got bad so I saw a GP and I was told to go...
    Sparklychest Sparklychest 18-21, F May 5

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    Yay (that was a sarcastic Yay) - though I have no symptoms, so now I have to meet with a dietitian and go gluten free Yay again...I have been trying to lose another 10 pounds, I...
    fun4us2b fun4us2b 51-55, M 1 Response 11 hrs ago

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    Usually not a day-to-day issue for me. But when an infection flares up, watch out. Starting to feel one coming. Dammit.
    Sicarium Sicarium 36-40, M Apr 27

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    I'm feeling so defeated. I've been battling some health issues (presenting as autoimmune disorder) since last August and been through half a dozen doctors now with almost as many...
    Silc Silc 26-30, F May 8

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    Hiya. Ive just found out I have hepatitis c, and as well as feeling quite unwell, im really scared, because my son has had a liver transplant for a different liver disease, and I...
    Propsta84 Propsta84 26-30, M 2 Responses 3 days ago

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    I had a wonderful Grammy who had Alzheimer's. She was my second mom, and the best there ever was. Alzheimer's is a nasty disease, I remember about a month before she passed I sent...
    DancesWithUnicorns DancesWithUnicorns 22-25, F 3 hrs ago

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    Well, I don't have calciphylaxis, but my mom did. I hate to say did, but she has just passed due to metabolic acidosis. The worst part is, she was actually being treated somewhat...
    rjean6688 rjean6688 46-50, F Apr 30

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    Steven Gerrard you are the greatest player to have ever captained Liverpool. You have brought glory and tears to Anfield. The day you leave will be the day a hole is left in...
    HMC17 HMC17 13-15, M 5 days ago

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    Lately I have been feeling so tired and weak and finding myself wanting to sleep all the time. This is not normal for me because all my life I've been a girl with tons of energy...
    hannahphillips hannahphillips 13-15, F 4 Responses Apr 23

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    it began in 2014 when I had a disease called thyroid disease. I was depressed everyday.I told every teacher about my disease but only she cared about me. She asked me how I feel...
    anonymous0601 anonymous0601 16-17, M 1 Response 3 days ago

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    My sister and I both have been diagnosed with MELAS. I am 22 and my sister is 26. She was diagnosed first with the genetic disease when she was about 20. We both live in Toronto...
    hedyc hedyc 22-25, F 12 hrs ago

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    Am I a Monster? For me, the worst part of living with a mental disease was feeling like I can’t trust myself. When I was little, people told me I was different and I didn’t...
    kiarrafire kiarrafire 18-21, F May 7

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    I took my child to the doctor for a blood test and the test results came out that she has celiac disease, I was confused because my child is always a healthy child without any...
    siujdisjiujs siujdisjiujs 70+, F Apr 22

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    Hi, I'm a 20 year-old-girl from Finland and I was diagnosed with en coup de sabre when I was 17, but I have had it for 6-7 years. Since diagnosed I have been going to a skin doctor...
    meeri95 meeri95 18-21 Apr 24

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    (1980) I was born while my parents were getting divorced. I saw my dad a handful of times. (1983) my mom remarries a man who likes little girls. My mom knew what was going on but...
    wingedvalkyrie7 wingedvalkyrie7 31-35, F 1 Response Apr 24

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    Dear Crohn's Disease, I wish you would stop hurting me. You make me feel weak, and prevent me from participating in activities. I want to be stronger than you but it's hard. You...
    SpaceGlitch SpaceGlitch 16-17, F May 3

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    i was just recently diagnosed with hs. in the last year this disease has completely ruined my life. i have lost my job, my children have to watch me suffer. i am about to loose...
    htoure21 htoure21 31-35, F 1 Response May 5

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    What keeps me strong when the going gets tough is that i know that one day in Heaven, if I ever make it there that is, where there are no illnesses or diseases, I will get to meet...
    muffin93 muffin93 18-21, F 2 Responses May 9

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