I Have Liver Disease

Personal Stories, Advice, and Support 58 People

    I Turned Down A Liver. Did I Make The Right Decision?

    I have been on the transplant list for 5 years. I have hepatitis "C" and my MELD score has been stable for about a year. It stays right around 16. My blood type is B+ and I am 3rd on the list of patients with B type blood. The 2 people ahead of me have both developed liver cancer...
    ArizonaSteve ArizonaSteve
    51-55, M
    Sep 24, 2012

    Scared...

    Well this is where it all started... I just had mine and my husband's second child on June 10th 2012. On the last day in the hospital my blood pressure shot up really high. We were able to leave the hospital with me on blood pressure meds. I went in to the doctor the next day for...
    Brittdaisy Brittdaisy
    22-25, F
    1 Response Dec 31, 2012

    I Have End Stage Liver Disease Secondary To Cirrhosis .

    I was a heavy drink and at the time I came down with a very bad kidney infection. Not realizing that my kidneys were shutting down and thus backing up my system to the point where I went into full renal failure. I was hospitalized for ovr 2 months and the Dr's did not expect me...
    enduser2941 enduser2941
    36-40
    3 Responses May 29, 2011

    Just Diagnosed With Alcoholic Hepatitis And Terrified!

    Well, I drank for years due to depression, loneliness and going to New Orleans bars too often with my husband. I have always had an emotional and addictive personality. GI doc told me I had inflammed liver. I discovered that it was truly hepatitis by doing my own research and...
    AlabamaGirl56 AlabamaGirl56
    56-60, F
    2 Responses Oct 30, 2013

    Lver Failure

    i was diagnosed with hep c in 1995 am currently in a great deal of pain, am currently on morphine contin 90 mg a day, this isn't working for the pain any sugestions, we don't have a pain clinic in the town i live in. not sleeping well up every 2 hours in pain. live with mom and...
    dennis3999 dennis3999
    61-65, M
    Oct 4, 2013

    Hi I was just diagnosed with AIH

    or autoimmune hepatitis. I'm 17 and hopeful. I started taking budesonide and after my next round of blood tests i will start taking Imuran. I'm still experiencing fatigue and chronic joint pain but I'm trying to stay active. There's a quote that says "Things turn out best for...
    Ahall96 Ahall96
    18-21
    2 Responses Jun 2, 2014

    I have not been diagnosed

    as of yet, I am 47 and use to be a fairly healthy drinker, all tests are normal,but I can tell something is very wrong. Dull pain under right rib cage, unexplained weight loss (20pounds) extreme sensitivity to even a sip of alcohol or red meat, weak legs, and occasional anxiety...
    skyriter88 skyriter88
    46-50
    Sep 10, 2014

    Chronic Hebatitis B

    Been dieagnoses two or three years ago not sure not sever enough for treat ment thank god my health is perfect they say to me tho they tell me not to drink tho i do at times go on binges but im careful to take breaks in between to give my liver a chance to repair itself i...
    ccdo ccdo
    22-25, F
    2 Responses Nov 18, 2009

    My Brother Has Alcohol Liver Disease

    i just wanted to share this story with people so others can have hope also... my brother who is just 32 has been a big drinker for many years but was alcohol dependant for the last 5years.. he has been told several times that he had an inflammed liver and had jaundice this was...
    jenny1981 jenny1981
    26-30
    4 Responses Jan 31, 2011

    Fighting With My Body

    Hi!  I am clearly new here and do not know exactly where to begin so here goes... About three years ago I as diagnoses with non-alcoholic fatty liver disease-Stage 4 cirrhosis with secondary portal hypertension.  I am 35 years old.  The anomaly which is also the reason my...
    hopefultc hopefultc
    31-35, F
    1 Response Oct 22, 2011

    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman
    31-35, M
    May 19, 2013

    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman
    31-35, M
    2 Responses May 19, 2013

    Pain & Raised Enzymes Advised - Terrified

    Hi All, I am a long time user of co-codomaol and other migraine related medicines. I suffer from headaches daily and as such, to get through my day pop pills. When the migraines come, that intensifies, anyone who suffers will be all to aware you will do almost anything to...
    stevied553 stevied553
    36-40
    2 Responses Dec 7, 2011

    AIH

    Hey guys I'm a 23 year old with auto-immune hepatitis. I was diagnosed with it at 14, and been fighting it ever since. Like most of you on here, it affects my life in the usual ways. I don't drink, and I try to eat as little fatty foods as possible. If anyone wants to chat...
    homecoming1 homecoming1
    22-25, M
    1 Response Mar 8, 2013

    Non Alcoholic Liver Disease (nafld)

    Please let me first say that I respect and realise that many others here have more irrevocable conditions that the one I am facing- but I really am seeking a genuine place to talk with people about liver Disease- and I would love to hear your expereinces as well as share my own...
    Sekem Sekem
    36-40, M
    5 Responses Sep 29, 2010

    My Dad's Hope

    I want to share my Dad's story with the world, so his hope can spread. He was an heavy drinker for most of my life and quit over two years ago. A few months ago he was diagnosed with end stage liver disease. He was on the transplant list and not doing well. His meld score reached...
    lakebaby lakebaby
    31-35
    3 Responses Jul 11, 2013

    To Others In The Same Boat...

    I'm 25yrs old and have liver disease caused by Porphyria (a hereditary disease). Liver disease isn't pleasant. The jaundice and ascites turns you into an oompaloompa (willy wonka reference). Just carrying that extra weight around is a strain alone. I once had 16L drained from my...
    MsMidnight MsMidnight
    22-25, F
    3 Responses Sep 5, 2010

    Hi... I am new to this

    so trying to understand how this has all happened. In January this year I opened some boxes ... got really sick and as a result my body started to shut down. As the weeks went on I didnt get better... I had blood in my urine and was sent to a specialist ... they thought I had a...
    Suem01 Suem01
    51-55, F
    1 Response May 30, 2014

    Related Experiences

    I am having severe symptoms. I have reactive hypoglycemia, low blood pressure with fluctuations to high blood pressure. I have hyperpigmentation. My biggest and worst symptoms...
    snow4fun snow4fun
    41-45, F
    Apr 20
    I suffer through depression every day and people say stuff about it all the time not knowing that its a disease. It is and i have been left by people that i loved and many people...
    Rawr2132 Rawr2132
    13-15, F
    Apr 18
    I am 19 now, almost 20... I haven't been on here for a few years, but I think I'll give it a go. My parents and I thought I had Chronic Fatigue Syndrome for 4 years before...
    Invisibleninja12 Invisibleninja12
    18-21, F
    Apr 17
    Hello, I am a 34 year old female who just found out 2 weeks ago that I have a moderate PE. About 7 weeks ago I experienced a crushing pain in my chest and thought it was a heart...
    zitorobin zitorobin
    31-35, F
    Apr 12
    Folks, I've been suffering from this disorder since I was a teenager. I'm 46 now. I'm currently in remission. Here's my regimen: no nightshades, animal products, chocolate...
    jenn25601 jenn25601
    46-50, F
    1 Response Apr 11
    In 2015 I was diagnosed with Cushing's disease which was caused by a brain tumor. I had brain surgery on 20 July 2015. My best friend took leave the day of surgery and visited...
    Sanetvh Sanetvh
    41-45, F
    Apr 11
    My health hasn't been great since 2012. I had a few surgeries. Nothing serious. Last year I was diagnosed with a benign brain tumor that causes Cushings disease. I had brain...
    Sanetvh Sanetvh
    41-45, F
    Apr 11
    I suppose this is where I can speak freely, not revealing my identity. Honestly, writing about my life, a stupid, sob story, I feel skeptical about it. Not knowing if anyone cares...
    Aselfconsciousturtle Aselfconsciousturtle
    13-15, F
    Apr 10
    This is my story. It is long, but I hope you all can relate to it. A year ago I went on a catholic retreat called Kairos and I gave a speech on my ideals and how to find them and...
    cmom96 cmom96
    18-21, F
    Apr 9
    Hi everyone I wrote this post in 2014 and have included further information below about the development since. I’ve tried to summaries as best I could. I was diagnosed in June 2...
    mark01981 mark01981
    31-35
    1 Response Apr 8
    I've been recently diagnosed with Hashimoto's Disease and I'm two weeks post-op of having a partial thyroidectomy. I'm in hell. I have a hippie mother who doesn't fully understand...
    sicklylipstick sicklylipstick
    18-21, F
    1 Response Apr 7
    i hate that i can't communicate effectively. i know that my husband gets frustrated to the point of disgust. i just assume not talk to anyone. i have chronic pain and fatigue to...
    LITVET LITVET
    41-45, F
    1 Response Apr 5
    I have had temporal arteritis since 2009. I have been on steroids for over 6 years now and am wondering if any of you have had this disease as long as I have had it. I caught a...
    deleted deleted
    26-30
    Apr 4
    It was just a few short weeks from diagnosis to death. The doctors had thought his problem was his heart - leaking mitral and aortic valves and an 80% blocked artery, all of which...
    sophrai sophrai
    66-70, M
    2 Responses Apr 4
    People say that there is something about cigarette that is so addictive and it relieves stress and ****. But hey it's not that cigarette that makes you relief. It's you. Everything...
    rajbconnor rajbconnor
    18-21, M
    1 Response Apr 1
    I will present you parts of myself slowly if you are patient and tender. I will open drawers that mostly stay closed and bring out places and people and things sounds and smells...
    Mcinacann Mcinacann
    41-45, F
    1 Response Apr 1
    I'm looking for a boyfriend in the uk long distance if fine I'm 18 all I ask is that you have a good personality
    brettmushens brettmushens
    18-21, M
    Apr 1
    i hate this thing a lot :( like A LOT. ive never had daytime attacks but ive always been having panic attacks at night. i could sleep in the first 30 minutes and then woke up...
    whitenut whitenut
    16-17, F
    3 Responses Apr 1
    I'm a solvent abuser. I have been for over a year.
    deleted deleted
    26-30
    3 Responses Apr 1
    Has anyone here ever taken Abilify and if so, what are your thoughts? I have just started this new med along with what i'm already taking, and so far, i feel sick to my stomach...
    DaydreamingSleepwalker DaydreamingSleepwalker
    41-45, F
    6 Responses Apr 1
    Yep, don't have no real friends. Spend all my days by myself sometimes I have gone days without talking to anyone. The big thing is, it doesn't bother me in the least. My whole...
    deleted deleted
    26-30
    4 Responses Apr 1
    A year ago on here I asked for prayers as I was trying to conceive. Today I have an almost 5 month old baby girl who is the most beautiful being I have ever seen. Thank you to all...
    missstarrysky missstarrysky
    18-21, F
    1 Response Apr 1
    I have spent years of my life trying to fill the holes in my stability with sex. it leaves me feeling empty and insecure. I don't even know how to start a relationship. When...
    howdoigetthere howdoigetthere
    18-21, F
    Apr 1
    I've had crushes on a handful of men here coz they just seem to have substance and have their thinking caps on most of the time. Sadly, they'll never know who they are and I'd like...
    WynterSolstice WynterSolstice
    41-45, F
    3 Responses Apr 1
    One of the feelings I hadn't really acknowledged as being part of my anxiety until now are the intense feelings of anger I often get over small issues. When something small happens...
    ThunderWaffles ThunderWaffles
    22-25, F
    3 Responses Apr 1
    Hi guys, I have a YouTube channel. I'm going to link you to my most recent video, that went up maybe about a minute or so ago. It'd mean a lot if you could check it out. http...
    feelingfeminine feelingfeminine
    13-15, F
    1 Response Apr 1
    I have never participated in using or being around others who are into illegal drugs and those taking legal drugs for kicks or getting high. As for drinking alcoholic beverages I...
    coedinbikini coedinbikini
    22-25, F
    1 Response Apr 1
    I have no motivation to be awake and active. I'm jobless and can't care for myself. Tomorrow seems worse than the present because there will be no one at home if my parents die...
    lonelylifeindia lonelylifeindia
    26-30, M
    Apr 1
    yeah, and hopefully we'd meet. well it depends on the bond so it's exciting. I don't have much friends. it only got 3 or so ,I like traveling too.
    deleted deleted
    26-30
    1 Response Apr 1
    deep down I think I lost this happy, I'm glad to be alive part of me... I don't know how to explain the reason why but it's like I woke up one day and everything I loved doing...
    code95 code95
    18-21, F
    1 Response Apr 1
    I have learned you can't just wing tests or relationships. I rush into relationships thinking they like me and I end up getting hurt. I am the type of person who lives in the...
    Prettyinpink33 Prettyinpink33
    18-21, F
    Apr 1
    I don't really know how to use this website yet so I'm sorry if I'm doing this wrong. but anyways, I have really bad anxiety and it's so bad that I have panic attacks every time...
    panicatheparty panicatheparty
    13-15, T
    3 Responses Apr 1
    If anyone wants to keep in touch I have now set up profiles on these other websites. http://answermug.com/profile/lonelyguybc https://www.relatetothat.com/viewProfile?username...
    lonelyguybc lonelyguybc
    26-30, M
    Apr 1
    I have haphephobia, the fear of touching or being touched... It's sad to think that I used to be a hugger and now I can't even stand a pat on the back. I still do give and accept...
    Letmebee Letmebee
    22-25, F
    3 Responses Apr 1
    After gaining a huge amount of weight recently my belly has nearly doubled in size. I feel absolutely huge. I love to stuff my big belly to its limits and I love how round and...
    bellyrp bellyrp
    26-30, M
    1 Response Apr 1
    Mine isn't complete, but here's what i have so far. See the Grand Canyon. See Mount Rushmore. Vacation in Hawaii. Vacation, or cruise, in New England. Vacation in Europe, seeing...
    deleted deleted
    26-30
    2 Responses Apr 1
    I was thinking about what makes me be mad at her so much. I'm talking about the woman I was in a long-distance big age gap relationship with. And we broke up two months ago. So...
    deleted deleted
    26-30
    Apr 1
    i actually had a psychic reading before when i was still in high school with a hobo. xD she told me i will gonna have triplets. that im a good daughter to my parents... and, i...
    yayepisoverimsad yayepisoverimsad
    22-25, F
    Apr 1
    I have stories as well, I'm not the best writer or anything but I do like writing stories. I have three stories up and they are ongoing. I sort have stopped writing because I felt...
    Typingkeyboard Typingkeyboard
    18-21, M
    1 Response Apr 1
    Next week my Abilify dose is going to be raised to 4 mg. I'm mildly concerned about this because of the nausea side effect I've been getting. I've never actually thrown up yet, but...
    Hush92 Hush92
    18-21, F
    Apr 1
    I have secrets. Everyone does, it could either help or hinder you, I have many regrets but the coolest thing about it is the learning process of it.
    Typingkeyboard Typingkeyboard
    18-21, M
    1 Response Apr 1
    I have a secret not the usual ones a dirty perv secret
    oldmanofuk1 oldmanofuk1
    56-60, M
    1 Response Apr 1
More Stories