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I Have Liver Disease

Personal Stories, Advice, and Support 55 People

    Pain & Raised Enzymes Advised - Terrified

    Hi All, I am a long time user of co-codomaol and other migraine related medicines. I suffer from headaches daily and as such, to get through my day pop pills. When the migraines come, that intensifies, anyone who suffers will be all to aware you will do almost anything to...
    stevied553 stevied553 36-40 2 Responses Dec 7, 2011

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    Fighting With My Body

    Hi!  I am clearly new here and do not know exactly where to begin so here goes... About three years ago I as diagnoses with non-alcoholic fatty liver disease-Stage 4 cirrhosis with secondary portal hypertension.  I am 35 years old.  The anomaly which is also the reason my...
    hopefultc hopefultc 31-35, F 1 Response Oct 22, 2011

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    To Others In The Same Boat...

    I'm 25yrs old and have liver disease caused by Porphyria (a hereditary disease). Liver disease isn't pleasant. The jaundice and ascites turns you into an oompaloompa (willy wonka reference). Just carrying that extra weight around is a strain alone. I once had 16L drained from my...
    MsMidnight MsMidnight 22-25, F 3 Responses Sep 5, 2010

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    I have not been diagnosed

    as of yet, I am 47 and use to be a fairly healthy drinker, all tests are normal,but I can tell something is very wrong. Dull pain under right rib cage, unexplained weight loss (20pounds) extreme sensitivity to even a sip of alcohol or red meat, weak legs, and occasional anxiety...
    skyriter88 skyriter88 46-50 Sep 10, 2014

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    Hi I was just diagnosed with AIH

    or autoimmune hepatitis. I'm 17 and hopeful. I started taking budesonide and after my next round of blood tests i will start taking Imuran. I'm still experiencing fatigue and chronic joint pain but I'm trying to stay active. There's a quote that says "Things turn out best for...
    Ahall96 Ahall96 18-21 2 Responses Jun 2, 2014

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    Just Diagnosed With Alcoholic Hepatitis And Terrified!

    Well, I drank for years due to depression, loneliness and going to New Orleans bars too often with my husband. I have always had an emotional and addictive personality. GI doc told me I had inflammed liver. I discovered that it was truly hepatitis by doing my own research and...
    AlabamaGirl56 AlabamaGirl56 56-60, F 2 Responses Oct 30, 2013

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    Lver Failure

    i was diagnosed with hep c in 1995 am currently in a great deal of pain, am currently on morphine contin 90 mg a day, this isn't working for the pain any sugestions, we don't have a pain clinic in the town i live in. not sleeping well up every 2 hours in pain. live with mom and...
    dennis3999 dennis3999 61-65, M Oct 4, 2013

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    I Turned Down A Liver. Did I Make The Right Decision?

    I have been on the transplant list for 5 years. I have hepatitis "C" and my MELD score has been stable for about a year. It stays right around 16. My blood type is B+ and I am 3rd on the list of patients with B type blood. The 2 people ahead of me have both developed liver cancer...
    ArizonaSteve ArizonaSteve 51-55, M Sep 24, 2012

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    Hi... I am new to this

    so trying to understand how this has all happened. In January this year I opened some boxes ... got really sick and as a result my body started to shut down. As the weeks went on I didnt get better... I had blood in my urine and was sent to a specialist ... they thought I had a...
    Suem01 Suem01 46-50, F 1 Response May 30, 2014

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    My Dad's Hope

    I want to share my Dad's story with the world, so his hope can spread. He was an heavy drinker for most of my life and quit over two years ago. A few months ago he was diagnosed with end stage liver disease. He was on the transplant list and not doing well. His meld score reached...
    lakebaby lakebaby 31-35 3 Responses Jul 11, 2013

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    Scared...

    Well this is where it all started... I just had mine and my husband's second child on June 10th 2012. On the last day in the hospital my blood pressure shot up really high. We were able to leave the hospital with me on blood pressure meds. I went in to the doctor the next day for...
    Brittdaisy Brittdaisy 22-25, F 1 Response Dec 31, 2012

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    My Brother Has Alcohol Liver Disease

    i just wanted to share this story with people so others can have hope also... my brother who is just 32 has been a big drinker for many years but was alcohol dependant for the last 5years.. he has been told several times that he had an inflammed liver and had jaundice this was...
    jenny1981 jenny1981 26-30 3 Responses Jan 31, 2011

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    I Have End Stage Liver Disease Secondary To Cirrhosis .

    I was a heavy drink and at the time I came down with a very bad kidney infection. Not realizing that my kidneys were shutting down and thus backing up my system to the point where I went into full renal failure. I was hospitalized for ovr 2 months and the Dr's did not expect me...
    enduser2941 enduser2941 36-40 3 Responses May 29, 2011

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M May 19, 2013

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    Non Alcoholic Liver Disease (nafld)

    Please let me first say that I respect and realise that many others here have more irrevocable conditions that the one I am facing- but I really am seeking a genuine place to talk with people about liver Disease- and I would love to hear your expereinces as well as share my own...
    Sekem Sekem 36-40, M 6 Responses Sep 29, 2010

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M 2 Responses May 19, 2013

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    Can someone here explain to me the kind of pain

    and location they had/have during issues with their liver? And any other symptoms? I have been having mild but persistent acking, burning pain that kind of feels like cramping in my upper abdomen. There is also one tiny spot that hurts when I putt pressure on it. Also a slight...
    LostandFading LostandFading 18-21, F 2 Responses Aug 28, 2014

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    AIH

    Hey guys I'm a 23 year old with auto-immune hepatitis. I was diagnosed with it at 14, and been fighting it ever since. Like most of you on here, it affects my life in the usual ways. I don't drink, and I try to eat as little fatty foods as possible. If anyone wants to chat...
    homecoming1 homecoming1 22-25, M 1 Response Mar 8, 2013

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    Chronic Hebatitis B

    Been dieagnoses two or three years ago not sure not sever enough for treat ment thank god my health is perfect they say to me tho they tell me not to drink tho i do at times go on binges but im careful to take breaks in between to give my liver a chance to repair itself i...
    ccdo ccdo 22-25, F 2 Responses Nov 18, 2009

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    Related Experiences

    Well I was the exact age I am now when I found out I had this disease. I didn't know I had it, I only knew that there was something wrong with me How did you find out about it? I...
    awsome2 awsome2 18-21, M 3 days ago

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    I'm 19 and I have Menieres Disease in both of my ears. My disease has affected my hearing more than anything. I'm half deaf, I cannot hear anything out of my right ear, and my left...
    Gabyy17 Gabyy17 18-21, F Feb 18

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    My Mum has celiac disease . One speck of gluten sends her dashing off to the bogs. So it's a gluten free zone in our household . Actually gluten is a bit like glue . It helps...
    Homejames Homejames 51-55, M 3 days ago

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    After months of stomach aches and losing a ton of weight and looking pale, a doctor finally figured it out. So I was diagnosed with Celiac Disease when I was about 2 and a half...
    SparkleSwirl SparkleSwirl 18-21, F Feb 6

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    It's so hard having celiac disease and no one in my house understands and doesn't take me seriously....nothing hurts more than seeing everyone eat pizza and having fun saying whats...
    glisteningheartz glisteningheartz 18-21, F 2 Responses Feb 6

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    22 years old. Already gone through menopause, why not also go through thyroid disease as well to really make me feel like I am in my 60's. The only young part about me is the way I...
    MyCrookedSmile MyCrookedSmile 22-25, F 4 Responses Feb 24

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    Me too, I was diagnosed when I was 9 (now I'm 14). I've been on the SCD diet to treat it since I was diagnosed and it's kept me in remission for most of that time. When I have a...
    ellajade ellajade 13-15, F Feb 18

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    Was diagnosed in 2012. It's still grumbling away and appears to be coming back. I can't remember what it feels like to be normal and happy. I'm a different person from who I used...
    Lalassa Lalassa 22-25, F Feb 20

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    I have a liver biopsy next week to confirm my doctor's suspicion that I have autoimmune hepatitis. I started with strep and mono at the beginning of this year along with being...
    Singer87 Singer87 31-35, F 2 Responses Feb 21

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    Hello people, I am 40 years old I have severe periodontal disease, I am not here for pity, its my fault I have this, poor hygiene in my younger years, smoking unfilterred cigrettes...
    Wakeup56 Wakeup56 36-40, M 1 Response a week ago

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    Okay this might going to be a long post Does this ever happen to you that you are living a ****** life and then you are straight transported to cloud 9 then again everything comes...
    eriloves1D eriloves1D 16-17, F 2 Responses 3 days ago

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    I have known since 22 that I have this disease. High BP has been my only symptom. Now I feel as though my torso is crowded. Breathing can be difficult especially after eating...
    panoon12 panoon12 31-35, F 1 Response Feb 24

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    I know I've written about this before. It's been a while but it is still up there on my profile as an experience. When I wrote that, it was still when my hair was growing out. I...
    Narp12 Narp12 18-21, F 1 Response Feb 17

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    Had it since I was about 4 or 5. I'm considering getting a medic alert tattoo, I figure I'll have this disease forever, and it could look cool.
    fireraven23 fireraven23 18-21, M 3 days ago

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    I've known my best friend for about 15 years. We've been through a lot together! I like to drink socially myself, but I try and limit it to the weekend, but I am very concerned...
    Moonstar14 Moonstar14 46-50, F Feb 8

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    Hi everyone! So I'll be posting my full story later but just wanted to do a short version. I'm 17 and was diagnosed in October 2014, they found out it was BCS after only being...
    Abbyrk Abbyrk 16-17, F 1 Response Feb 15

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    When you try your best and it all gets thrown back in your face 😔 last year I paid for an overnight birthday treat in Liverpool and I got repaid by him getting a cob on...
    Heartbroken46 Heartbroken46 41-45, F 4 Responses 4 days ago

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    PAN (Patient Access Network) Foundation Launches Financial Assistance for Patients Living with Parkinson’s Disease: http://www.panfoundation.org/news-article-list/365-pan...
    LifeinWoodinville LifeinWoodinville 41-45, M 1 Response Feb 23

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    Well I thought, for some silly reason, that I was the only person with Parkinson's Disease that had the horrible morning toes problem. Turns out it's more common then I thought...
    LifeinWoodinville LifeinWoodinville 41-45, M 2 Responses Feb 6

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    I have recently been diagnosed with Meningitis/Mycoplasma pneumonia encephalitis. I try to google this disease and BARELY find anything about it. What I do read scares the crap...
    amiedawn419 amiedawn419 36-40, F Feb 11

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    its with me daily has been since I was born - I am different because of it - no one can see it or notice it- its my invisible disease. I look healthy active happy and generally...
    blonde10 blonde10 36-40, F 2 Responses 5 days ago

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    I have known for 3 yrs that I have Hashimoto's but I believe I have had it for 25 yrs. It started during my 2nd pregnancy. My Dr over the years kept treating the symptoms with...
    physio56 physio56 56-60, F 3 days ago

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    For all the AIP sufferers, please check out the Porphyria Foundation they are there to help you deal with this disease. Yes you can get ssi or ssd in my case, ssd. Look up your...
    dee450 dee450 46-50 Feb 8

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    Lyme, CFS, MS??!?!?? I recently was diagnosed with Mycoplasma pneumonia encephalitis/meningitis which from what i understand, goes hand in hand with Lyme. The doctors also thought...
    amiedawn419 amiedawn419 36-40, F Feb 11

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    Hi everyone, I'm 20 college girl student. I've just diagnosed that I have TB and now I'm in medication since October last year. But I'm so afraid and so shy to tell the truth to...
    imegw imegw 18-21, F 3 Responses