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I Have Liver Disease

Personal Stories, Advice, and Support 53 People

    Non Alcoholic Liver Disease (nafld)

    Please let me first say that I respect and realise that many others here have more irrevocable conditions that the one I am facing- but I really am seeking a genuine place to talk with people about liver Disease- and I would love to hear your expereinces as well as share my own...
    Sekem Sekem 36-40, M 5 Responses Sep 29, 2010

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M 2 Responses May 19, 2013

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    I have not been diagnosed

    as of yet, I am 47 and use to be a fairly healthy drinker, all tests are normal,but I can tell something is very wrong. Dull pain under right rib cage, unexplained weight loss (20pounds) extreme sensitivity to even a sip of alcohol or red meat, weak legs, and occasional anxiety...
    skyriter88 skyriter88 46-50 5 days ago

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    Fighting With My Body

    Hi!  I am clearly new here and do not know exactly where to begin so here goes... About three years ago I as diagnoses with non-alcoholic fatty liver disease-Stage 4 cirrhosis with secondary portal hypertension.  I am 35 years old.  The anomaly which is also the reason my...
    hopefultc hopefultc 31-35, F 1 Response Oct 22, 2011

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    My Brother Has Alcohol Liver Disease

    i just wanted to share this story with people so others can have hope also... my brother who is just 32 has been a big drinker for many years but was alcohol dependant for the last 5years.. he has been told several times that he had an inflammed liver and had jaundice this was...
    jenny1981 jenny1981 26-30 3 Responses Jan 31, 2011

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    Can someone here explain to me the kind of pain

    and location they had/have during issues with their liver? And any other symptoms? I have been having mild but persistent acking, burning pain that kind of feels like cramping in my upper abdomen. There is also one tiny spot that hurts when I putt pressure on it. Also a slight...
    sugarcakes143 sugarcakes143 18-21, F 3 Responses Aug 28

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    Chronic Hebatitis B

    Been dieagnoses two or three years ago not sure not sever enough for treat ment thank god my health is perfect they say to me tho they tell me not to drink tho i do at times go on binges but im careful to take breaks in between to give my liver a chance to repair itself i...
    ccdo ccdo 22-25, F 2 Responses Nov 18, 2009

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    AIH

    Hey guys I'm a 23 year old with auto-immune hepatitis. I was diagnosed with it at 14, and been fighting it ever since. Like most of you on here, it affects my life in the usual ways. I don't drink, and I try to eat as little fatty foods as possible. If anyone wants to chat...
    homecoming1 homecoming1 22-25, M 1 Response Mar 8, 2013

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    Pain & Raised Enzymes Advised - Terrified

    Hi All, I am a long time user of co-codomaol and other migraine related medicines. I suffer from headaches daily and as such, to get through my day pop pills. When the migraines come, that intensifies, anyone who suffers will be all to aware you will do almost anything to...
    stevied553 stevied553 36-40 2 Responses Dec 7, 2011

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    I Turned Down A Liver. Did I Make The Right Decision?

    I have been on the transplant list for 5 years. I have hepatitis "C" and my MELD score has been stable for about a year. It stays right around 16. My blood type is B+ and I am 3rd on the list of patients with B type blood. The 2 people ahead of me have both developed liver cancer...
    ArizonaSteve ArizonaSteve 51-55, M Sep 24, 2012

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    Hi... I am new to this

    so trying to understand how this has all happened. In January this year I opened some boxes ... got really sick and as a result my body started to shut down. As the weeks went on I didnt get better... I had blood in my urine and was sent to a specialist ... they thought I had a...
    Suem01 Suem01 46-50, F 1 Response May 30

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    Scared...

    Well this is where it all started... I just had mine and my husband's second child on June 10th 2012. On the last day in the hospital my blood pressure shot up really high. We were able to leave the hospital with me on blood pressure meds. I went in to the doctor the next day for...
    Brittdaisy Brittdaisy 22-25, F 1 Response Dec 31, 2012

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    My Dad's Hope

    I want to share my Dad's story with the world, so his hope can spread. He was an heavy drinker for most of my life and quit over two years ago. A few months ago he was diagnosed with end stage liver disease. He was on the transplant list and not doing well. His meld score reached...
    lakebaby lakebaby 31-35 3 Responses Jul 11, 2013

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    Hi I was just diagnosed with AIH

    or autoimmune hepatitis. I'm 17 and hopeful. I started taking budesonide and after my next round of blood tests i will start taking Imuran. I'm still experiencing fatigue and chronic joint pain but I'm trying to stay active. There's a quote that says "Things turn out best for...
    Ahall96 Ahall96 16-17 2 Responses Jun 2

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    Just Diagnosed With Alcoholic Hepatitis And Terrified!

    Well, I drank for years due to depression, loneliness and going to New Orleans bars too often with my husband. I have always had an emotional and addictive personality. GI doc told me I had inflammed liver. I discovered that it was truly hepatitis by doing my own research and...
    AlabamaGirl56 AlabamaGirl56 56-60, F 1 Response Oct 30, 2013

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    To Others In The Same Boat...

    I'm 25yrs old and have liver disease caused by Porphyria (a hereditary disease). Liver disease isn't pleasant. The jaundice and ascites turns you into an oompaloompa (willy wonka reference). Just carrying that extra weight around is a strain alone. I once had 16L drained from my...
    MsMidnight MsMidnight 22-25, F 3 Responses Sep 5, 2010

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M May 19, 2013

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    I Have End Stage Liver Disease Secondary To Cirrhosis .

    I was a heavy drink and at the time I came down with a very bad kidney infection. Not realizing that my kidneys were shutting down and thus backing up my system to the point where I went into full renal failure. I was hospitalized for ovr 2 months and the Dr's did not expect me...
    enduser2941 enduser2941 36-40 3 Responses May 29, 2011

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    Lver Failure

    i was diagnosed with hep c in 1995 am currently in a great deal of pain, am currently on morphine contin 90 mg a day, this isn't working for the pain any sugestions, we don't have a pain clinic in the town i live in. not sleeping well up every 2 hours in pain. live with mom and...
    dennis3999 dennis3999 56-60, M Oct 4, 2013

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    Related Experiences

    I'm 29 y.o. now. Living in eastern Europe. For 8 year I'm aware that I have Lyme Disease. 8 years ago my neurological (only - no joint pain) blew up my life. I was a second college...
    someSadMan someSadMan 26-30, M 1 Response Aug 28

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    With Sept being thyroid awareness month, I wanted to share my experience w/ thyroid disease. Within a yr of separating from the Air Force in 2005, I started experiencing strange...
    afdragon afdragon 36-40, F a week ago

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    I know what you're going through and I'm so sorry that you are. When I read this group and the postings in it, I cried the entire time because your experiences are eerily close to...
    smgreen1703 smgreen1703 22-25, F Aug 24

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    I have really amazing news!!! I received Radioactive Iodine treatment about 4 months ago due to an incredibly large flare up that left me sick for a couple of months. But the...
    CharliBrown CharliBrown 16-17, F 2 Responses Sep 5

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    I found out I have Celiac in 2008. I cannot eat bread, pasta, or cereal that contains wheat, barley, or rye. Anyone want to share recipes for gluten free?
    jrice356 jrice356 46-50, F 1 Response Sep 1

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    I was diagnosed 7 years ago, after my first child was born. I was lucky enough not to experience any significant symptoms until just recently...and it just seems to be heading...
    suzeq42 suzeq42 31-35, F 2 Responses Sep 4

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    I was recently married and working at a full time job at a medical clinic. We were having our yearly wellness exam for our insurance. Not even 2 days later, I received my results...
    Ilovetosing626 Ilovetosing626 26-30, F Aug 22

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    I'm pretty sure I have Lyme Disease... And after reading everyone's experiences, I am almost positive. I pulled a tick off of me about three years ago and developed the signature...
    Efmatthe9 Efmatthe9 22-25, F 2 days ago

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    I have hepatitis B. But I don't know where, when, or how I got it. I just turned 27 in June. And just a day before my birthday, I woke up feeling like I have been crushed by a lawn...
    confusedHepB confusedHepB 26-30, F 1 day ago

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    i fell in love with my best friend when i was 17, her name was sarah.we always done everything together, even went to the same art course. she helped me out through some dark times...
    Thebrokengingerbreadman Thebrokengingerbreadman 22-25, M 1 Response Sep 4

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    Laser eye surgery in under a month l have no option but to try this l have a severe case of this disease and have to be taken off all of my steroids due to health risk/problems...
    Tspklondon Tspklondon 26-30, F Sep 6

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    My mom told me once that her disease made her feel like an octopus. I said what do you mean? She said her arms and legs feel like they are out of control. She wants me to take her...
    WildHydrangeas WildHydrangeas 26-30, F 2 Responses Aug 26

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    I was diagnosed about 3 years ago. Been sick for at least 5 years, probably longer. I have tried many meds and still can't get my disease out of an active state. Not sure what...
    Enaed Enaed 46-50, F Aug 29

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    I have seen a lot of people on EP and in real life throwing this word around like a hot potato. The two most inappropriately used words in this generation, in my personal opinion...
    AlexandriaDark AlexandriaDark 18-21, F Aug 30

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    I have had bloating and gas, alternating with constipation and hemorrhoids, and was told I had irritable bowel syndrome, for several years now. in 2006, I went through some very...
    gastricwoman gastricwoman 51-55 Aug 30

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    I believe it's a disease. It's sad that girls find that the right way to go even though everyone is best the way they are. No one should feel they need to change in order to keep...
    KingOfPerfection KingOfPerfection 16-17, M Sep 6

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    Depression is not a disease, you cant catch it you can not spread it, and depression can not be "cured" in the same way as say diabetes or a flu *rolls eyes*
    xXAriannaXx xXAriannaXx 13-15, F Sep 6

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    I have polycystic kidney disease. The largest cyst measures 6cm in right and 5cm in left kidney. the latest scan report says that 'corticomedullary differentiation lost in with...
    aneetasree aneetasree 31-35, F Aug 22

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    Yesterday, something happened to me that scared the crap out of me. For more than ten years, I have had Ménière's disease. I was shopping in Target when I was suddenly hit with...
    scottdavidsmith scottdavidsmith 46-50, M 1 Response Aug 22

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    Did anyone else contact this disease right after receiving vaccinations? I contacted this disease one week after receiving TDAP and Shingles vaccinations.
    Bluesntennis Bluesntennis 66-70, M 1 Response Aug 22

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    i went to the doctors one day for a physical, the lady sent me to endocrinologist. he took my blood work and said my levels were very low and i was too take a pill of 88 milligrams...
    mlhenry mlhenry 18-21, F 1 Response Sep 1

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    My dad was recently diagnosed with MELAS. He is 48 years old. He has been in and out of the hospital due to seizures and what we thought were strokes. He suffers from hearing loss...
    ering08 ering08 22-25, F 1 Response Sep 1

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    As a zoologist I have always depended on my physical wellness to support my life motivations. It was only around 2 years ago I noticed that there was a big change to my physical...
    nanedesu nanedesu 26-30, F Sep 5

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    I have a heart disease known as Tetralogy of Fallot, and I've had since before birth. This is a defect that causes a hole in ones heart, and I had surgery after I was born. This...
    StarShineGirl StarShineGirl 16-17, F 1 Response Sep 6

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    I struggle with it everyday. My mom thought this might help. Im trying new things so here goes nothing. I dont want to be defined by my disease, but everything i do is impacted by...
    BrittMari BrittMari 16-17 2 Responses 3 days ago

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    Today was the APDA Parkinson's Walk in Seattle. It was a pretty good turn out. In total the walk raised almost $26,000 for Parkinson's research. Personally I was able to raise...
    LifeinWoodinville LifeinWoodinville 41-45, M 1 Response 1 day ago

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    March, 2013 I was told I had polymyositis. My Doctor said I was using 20% of my muscle. I lost my job and living on SSD. My treatments are IVIG and predisone. When I first...
    Numberplay Numberplay 46-50, F Aug 17

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    I contracted q fever while visiting farms looking for a baby goat for my son for Easter in the spring of 2012. I was fatigued and my joints hurt something terrible. When it was...
    myfamilymatters myfamilymatters 36-40 Aug 27

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    I first started losing my hearing when I was 13. I suffered an abrupt and massive hearing loss literally over night when I was 13, and I had to be fitted for a hearing aid in my...
    Runningagainstthewind Runningagainstthewind 22-25, F Aug 29

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    I'm tired of struggling with this condition and everything it entails. I was dismissed from my doctor's office because I "dared" to have a thyroid ultrasound somewhere else and...
    deleted deleted 26-30 1 Response Aug 29

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