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I Have Liver Disease

Personal Stories, Advice, and Support 57 People

    Fighting With My Body

    Hi!  I am clearly new here and do not know exactly where to begin so here goes... About three years ago I as diagnoses with non-alcoholic fatty liver disease-Stage 4 cirrhosis with secondary portal hypertension.  I am 35 years old.  The anomaly which is also the reason my...
    hopefultc hopefultc 31-35, F 1 Response Oct 22, 2011

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    Chronic Hebatitis B

    Been dieagnoses two or three years ago not sure not sever enough for treat ment thank god my health is perfect they say to me tho they tell me not to drink tho i do at times go on binges but im careful to take breaks in between to give my liver a chance to repair itself i...
    ccdo ccdo 22-25, F 2 Responses Nov 18, 2009

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    Lver Failure

    i was diagnosed with hep c in 1995 am currently in a great deal of pain, am currently on morphine contin 90 mg a day, this isn't working for the pain any sugestions, we don't have a pain clinic in the town i live in. not sleeping well up every 2 hours in pain. live with mom and...
    dennis3999 dennis3999 61-65, M Oct 4, 2013

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    Just Diagnosed With Alcoholic Hepatitis And Terrified!

    Well, I drank for years due to depression, loneliness and going to New Orleans bars too often with my husband. I have always had an emotional and addictive personality. GI doc told me I had inflammed liver. I discovered that it was truly hepatitis by doing my own research and...
    AlabamaGirl56 AlabamaGirl56 56-60, F 2 Responses Oct 30, 2013

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    My Brother Has Alcohol Liver Disease

    i just wanted to share this story with people so others can have hope also... my brother who is just 32 has been a big drinker for many years but was alcohol dependant for the last 5years.. he has been told several times that he had an inflammed liver and had jaundice this was...
    jenny1981 jenny1981 26-30 4 Responses Jan 31, 2011

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    To Others In The Same Boat...

    I'm 25yrs old and have liver disease caused by Porphyria (a hereditary disease). Liver disease isn't pleasant. The jaundice and ascites turns you into an oompaloompa (willy wonka reference). Just carrying that extra weight around is a strain alone. I once had 16L drained from my...
    MsMidnight MsMidnight 22-25, F 3 Responses Sep 5, 2010

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    Non Alcoholic Liver Disease (nafld)

    Please let me first say that I respect and realise that many others here have more irrevocable conditions that the one I am facing- but I really am seeking a genuine place to talk with people about liver Disease- and I would love to hear your expereinces as well as share my own...
    Sekem Sekem 36-40, M 5 Responses Sep 29, 2010

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    Pain & Raised Enzymes Advised - Terrified

    Hi All, I am a long time user of co-codomaol and other migraine related medicines. I suffer from headaches daily and as such, to get through my day pop pills. When the migraines come, that intensifies, anyone who suffers will be all to aware you will do almost anything to...
    stevied553 stevied553 36-40 2 Responses Dec 7, 2011

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    Scared...

    Well this is where it all started... I just had mine and my husband's second child on June 10th 2012. On the last day in the hospital my blood pressure shot up really high. We were able to leave the hospital with me on blood pressure meds. I went in to the doctor the next day for...
    Brittdaisy Brittdaisy 22-25, F 1 Response Dec 31, 2012

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    Hi... I am new to this

    so trying to understand how this has all happened. In January this year I opened some boxes ... got really sick and as a result my body started to shut down. As the weeks went on I didnt get better... I had blood in my urine and was sent to a specialist ... they thought I had a...
    Suem01 Suem01 51-55, F 1 Response May 30, 2014

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    I Turned Down A Liver. Did I Make The Right Decision?

    I have been on the transplant list for 5 years. I have hepatitis "C" and my MELD score has been stable for about a year. It stays right around 16. My blood type is B+ and I am 3rd on the list of patients with B type blood. The 2 people ahead of me have both developed liver cancer...
    ArizonaSteve ArizonaSteve 51-55, M Sep 24, 2012

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    My Dad's Hope

    I want to share my Dad's story with the world, so his hope can spread. He was an heavy drinker for most of my life and quit over two years ago. A few months ago he was diagnosed with end stage liver disease. He was on the transplant list and not doing well. His meld score reached...
    lakebaby lakebaby 31-35 3 Responses Jul 11, 2013

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M May 19, 2013

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    AIH

    Hey guys I'm a 23 year old with auto-immune hepatitis. I was diagnosed with it at 14, and been fighting it ever since. Like most of you on here, it affects my life in the usual ways. I don't drink, and I try to eat as little fatty foods as possible. If anyone wants to chat...
    homecoming1 homecoming1 22-25, M 1 Response Mar 8, 2013

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    I Have End Stage Liver Disease Secondary To Cirrhosis .

    I was a heavy drink and at the time I came down with a very bad kidney infection. Not realizing that my kidneys were shutting down and thus backing up my system to the point where I went into full renal failure. I was hospitalized for ovr 2 months and the Dr's did not expect me...
    enduser2941 enduser2941 36-40 3 Responses May 29, 2011

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    I have not been diagnosed

    as of yet, I am 47 and use to be a fairly healthy drinker, all tests are normal,but I can tell something is very wrong. Dull pain under right rib cage, unexplained weight loss (20pounds) extreme sensitivity to even a sip of alcohol or red meat, weak legs, and occasional anxiety...
    skyriter88 skyriter88 46-50 Sep 10, 2014

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M 2 Responses May 19, 2013

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    Hi I was just diagnosed with AIH

    or autoimmune hepatitis. I'm 17 and hopeful. I started taking budesonide and after my next round of blood tests i will start taking Imuran. I'm still experiencing fatigue and chronic joint pain but I'm trying to stay active. There's a quote that says "Things turn out best for...
    Ahall96 Ahall96 18-21 2 Responses Jun 2, 2014

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    Related Experiences

    I don't but, I'm looking for stories of people who have and to be an encouragement if I can. My dad passed away from it and brain cancer when I was young... Trying to get some...
    Likewise2 Likewise2 41-45, F 5 hrs ago

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    I doubt I have Fibromyalgia, I have been suffering from migraine since childhood.. I always feel tired, fatigue and dizzy. The tiring feeling is always with me and it increased...
    dare86 dare86 26-30, M 14 hrs ago

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    It's been it's been about 8 years now that I've had lymes. It's been hell. What more is there to say?
    0210love 0210love 18-21, F 20 hrs ago

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    It's really amazing that am cured of HERPES by a herbal medication. Oh is by this time last year I start feeling bad about my life, I feel pain everyday of my life but am very...
    TEGA32 TEGA32 26-30 3 Responses 1 day ago

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    I am 23 years old and a week ago it was confirmed that I have ankylosing spondylitis.... My WHOLE life it's always been a possibility, my father has it and over his 50 years of...
    AlRoberts AlRoberts 22-25, F 2 days ago

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    RABIES DISEASES God bless Dr. Adagba for his marvelous work in my life, I was diagnosed of RABIES DISEASES since 2010 and I was taking my medications, I wasn't satisfied i needed...
    markrobbin111 markrobbin111 41-45, M 3 days ago

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    My poor baby has autoimmune disease...my brother rescued him from being beaten by a bunch of kids and I've had him for about 2 years now and just love him to bits and now he's in...
    LilyAntoinette LilyAntoinette 18-21, F 3 days ago

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    I'm 63 just diagnosed with EF. This is something not to believed. You eat right, keep your weight under control. Exercise basically live a good life, and then this. I now know...
    Kscholes Kscholes 61-65, F 1 Response 4 days ago

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    How ironic, lupus is known as a woman's disease. 90% of all patients are women. 70 to 80% are black and ethic groups. And 20% are caucasion women. And 10% are male with the same...
    victoriasize6 victoriasize6 51-55, M 4 days ago

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    I considered posting this in an eating disorder category. But I really don't want to call it that. It feels like a bad word or disease. But I've struggled with this since I was...
    DeIuxedEdition DeIuxedEdition 18-21, F 1 Response 4 days ago

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    methacillian resistant staphylococcus aureus (mrsa) im not quite surr how i contracted it? either working in a hospital environment, or being a patient? this is a resistent strand...
    morganza504 morganza504 36-40 4 days ago

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    The doctors have diagnosed me with Spino Cerebellar Ataxia type 14. This means nothing. I don't trust the diagnosis. You see, I am 45 and have seen too many doctors for me to even...
    NMDewey NMDewey 41-45, M 1 Response 6 days ago

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    I was recently diagnosed with ET last February. My platelet counts were in the 700 range then. I currently live in Japan for work and have no other conditions besides high blood...
    Look4BeautyWithin Look4BeautyWithin 31-35, F 6 days ago

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    its important to get checked out and monitor. i not only had hyperthyroidism but it was caused from graves disease witch i inherited from my parents. i was severly hyperthyroidic...
    stormofself stormofself 18-21, M 6 days ago

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    Hello! I am doing a 10k run on October 4th 2015, for british heart foundation. I am doing this because i am a survivor of a heart disease, and would like to raise awareness and...
    amylouexoh amylouexoh 16-17, F a week ago

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    Hello! I am doing a 10k run on October 4th 2015, for british heart foundation. I am doing this because i am a survivor of a heart disease, and would like to raise awareness and...
    amylouexoh amylouexoh 16-17, F 4 Responses a week ago

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    Hello! I am doing a 10k run on October 4th 2015, for british heart foundation. I am doing this because i am a survivor of a heart disease, and would like to raise awareness and...
    amylouexoh amylouexoh 16-17, F a week ago

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    So I contracted hepres about 2 yrs ago from an ex boyfriend who had it and didn't tell me. I actually found out from someone else he was seeing at the same time. I haven't...
    luethel luethel 22-25, F 1 Response a week ago

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    never have! yuck! I like onions, but I don't like liver!!!
    morganza504 morganza504 36-40 Aug 22

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    I was diagnosed with DM in 2009 along with Celiac's disease, I guess I didn't realize what this disease was or how serious it was, at the time the Celiac's was my bigger concern...
    Jill2006 Jill2006 51-55, F Aug 21

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    Hi there my name is Nate And I'm a 25 year old male With cerebral palsy, On August 14 2015 I was diagnosed with Hashi modos I was shocked Because I have been a bodybuilder for the...
    natecr natecr 22-25, M Aug 21

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    have a extremely rare genetic brith defect and neurological disease that causes me to incontinent even surgery can't correct it i
    masterLLL masterLLL 56-60, M 1 Response Aug 20

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    I'm having a hard time dealing with my husbands recent diagnoses of stage 4 cirrhosis. We got more bad news today! I'm scared and overwhelmed and I think I'm going to have a...
    cynthiashortridge cynthiashortridge 31-35, F 2 Responses Aug 20

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    i was just diagnosed with ulcerative colitis last month. i'm new everything and i understand some days it's hard on others. if anyone needs someone to talk to feel free to message...
    alicia0090 alicia0090 22-25 2 Responses Aug 19

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    It's really hard to deal with the fatigue the ache, the pain, depression, Anxiety, the emotional issues that go with it. I'm single I don't no if I will find someone to love me...
    dkl79 dkl79 36-40, F 2 Responses