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I Have Liver Disease

Personal Stories, Advice, and Support 55 People

    My Dad's Hope

    I want to share my Dad's story with the world, so his hope can spread. He was an heavy drinker for most of my life and quit over two years ago. A few months ago he was diagnosed with end stage liver disease. He was on the transplant list and not doing well. His meld score reached...
    lakebaby lakebaby 31-35 3 Responses Jul 11, 2013

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    I Have End Stage Liver Disease Secondary To Cirrhosis .

    I was a heavy drink and at the time I came down with a very bad kidney infection. Not realizing that my kidneys were shutting down and thus backing up my system to the point where I went into full renal failure. I was hospitalized for ovr 2 months and the Dr's did not expect me...
    enduser2941 enduser2941 36-40 3 Responses May 29, 2011

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    Non Alcoholic Liver Disease (nafld)

    Please let me first say that I respect and realise that many others here have more irrevocable conditions that the one I am facing- but I really am seeking a genuine place to talk with people about liver Disease- and I would love to hear your expereinces as well as share my own...
    Sekem Sekem 36-40, M 6 Responses Sep 29, 2010

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    Can someone here explain to me the kind of pain

    and location they had/have during issues with their liver? And any other symptoms? I have been having mild but persistent acking, burning pain that kind of feels like cramping in my upper abdomen. There is also one tiny spot that hurts when I putt pressure on it. Also a slight...
    Scoodaloop Scoodaloop 18-21, F 2 Responses Aug 28, 2014

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    AIH

    Hey guys I'm a 23 year old with auto-immune hepatitis. I was diagnosed with it at 14, and been fighting it ever since. Like most of you on here, it affects my life in the usual ways. I don't drink, and I try to eat as little fatty foods as possible. If anyone wants to chat...
    homecoming1 homecoming1 22-25, M 1 Response Mar 8, 2013

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    Chronic Hebatitis B

    Been dieagnoses two or three years ago not sure not sever enough for treat ment thank god my health is perfect they say to me tho they tell me not to drink tho i do at times go on binges but im careful to take breaks in between to give my liver a chance to repair itself i...
    ccdo ccdo 22-25, F 2 Responses Nov 18, 2009

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    Pain & Raised Enzymes Advised - Terrified

    Hi All, I am a long time user of co-codomaol and other migraine related medicines. I suffer from headaches daily and as such, to get through my day pop pills. When the migraines come, that intensifies, anyone who suffers will be all to aware you will do almost anything to...
    stevied553 stevied553 36-40 2 Responses Dec 7, 2011

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    My Brother Has Alcohol Liver Disease

    i just wanted to share this story with people so others can have hope also... my brother who is just 32 has been a big drinker for many years but was alcohol dependant for the last 5years.. he has been told several times that he had an inflammed liver and had jaundice this was...
    jenny1981 jenny1981 26-30 3 Responses Jan 31, 2011

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    Fighting With My Body

    Hi!  I am clearly new here and do not know exactly where to begin so here goes... About three years ago I as diagnoses with non-alcoholic fatty liver disease-Stage 4 cirrhosis with secondary portal hypertension.  I am 35 years old.  The anomaly which is also the reason my...
    hopefultc hopefultc 31-35, F 1 Response Oct 22, 2011

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    Scared...

    Well this is where it all started... I just had mine and my husband's second child on June 10th 2012. On the last day in the hospital my blood pressure shot up really high. We were able to leave the hospital with me on blood pressure meds. I went in to the doctor the next day for...
    Brittdaisy Brittdaisy 22-25, F 1 Response Dec 31, 2012

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    Hi I was just diagnosed with AIH

    or autoimmune hepatitis. I'm 17 and hopeful. I started taking budesonide and after my next round of blood tests i will start taking Imuran. I'm still experiencing fatigue and chronic joint pain but I'm trying to stay active. There's a quote that says "Things turn out best for...
    Ahall96 Ahall96 18-21 2 Responses Jun 2, 2014

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    I Turned Down A Liver. Did I Make The Right Decision?

    I have been on the transplant list for 5 years. I have hepatitis "C" and my MELD score has been stable for about a year. It stays right around 16. My blood type is B+ and I am 3rd on the list of patients with B type blood. The 2 people ahead of me have both developed liver cancer...
    ArizonaSteve ArizonaSteve 51-55, M Sep 24, 2012

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    Just Diagnosed With Alcoholic Hepatitis And Terrified!

    Well, I drank for years due to depression, loneliness and going to New Orleans bars too often with my husband. I have always had an emotional and addictive personality. GI doc told me I had inflammed liver. I discovered that it was truly hepatitis by doing my own research and...
    AlabamaGirl56 AlabamaGirl56 56-60, F 2 Responses Oct 30, 2013

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    Lver Failure

    i was diagnosed with hep c in 1995 am currently in a great deal of pain, am currently on morphine contin 90 mg a day, this isn't working for the pain any sugestions, we don't have a pain clinic in the town i live in. not sleeping well up every 2 hours in pain. live with mom and...
    dennis3999 dennis3999 61-65, M Oct 4, 2013

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    I have not been diagnosed

    as of yet, I am 47 and use to be a fairly healthy drinker, all tests are normal,but I can tell something is very wrong. Dull pain under right rib cage, unexplained weight loss (20pounds) extreme sensitivity to even a sip of alcohol or red meat, weak legs, and occasional anxiety...
    skyriter88 skyriter88 46-50 Sep 10, 2014

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    Hi... I am new to this

    so trying to understand how this has all happened. In January this year I opened some boxes ... got really sick and as a result my body started to shut down. As the weeks went on I didnt get better... I had blood in my urine and was sent to a specialist ... they thought I had a...
    Suem01 Suem01 46-50, F 1 Response May 30, 2014

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M May 19, 2013

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M 2 Responses May 19, 2013

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    To Others In The Same Boat...

    I'm 25yrs old and have liver disease caused by Porphyria (a hereditary disease). Liver disease isn't pleasant. The jaundice and ascites turns you into an oompaloompa (willy wonka reference). Just carrying that extra weight around is a strain alone. I once had 16L drained from my...
    MsMidnight MsMidnight 22-25, F 3 Responses Sep 5, 2010

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    Related Experiences

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    I have Keratoconus.... That's one reason why my eyes are green also why my eyes are big.
    ANNI3PI3 ANNI3PI3 16-17, F 1 Response Mar 23

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    Okay this might going to be a long post Does this ever happen to you that you are living a ****** life and then you are straight transported to cloud 9 then again everything comes...
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    It has almost been two years since I have been diagnosed with myasthenia I have learn so much about it and from it. It is one frustrating disease. I try not to let it bother me it...
    lljones417 lljones417 18-21, F Mar 12

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    So I've been living with genital herpes for about a year now. Nothing much has changed. I haven't been happy since I got this, it hasn't gotten better, I still don't know who I got...
    ydnacybab ydnacybab 22-25, F 6 Responses Mar 21

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    This is something that I have been considering for some time now. Before I go into my story, I will tell you a bit about me. I am a divorced, mother of three beautiful children...
    youchampion youchampion 36-40, F 6 days ago

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    My dad has been a Liverpool fan all his life and when I was a little kid I told him I wanted a blue scarf. 'You want to be a blue noser?' 'What's a blue noser?' 'Everton supporter...
    ladyPlum ladyPlum 26-30, F 5 Responses Mar 18

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    When most people hear the words "eating disorder", they imagine a white middle-class teenage girl. And they think the girl chooses to restrict, binge, or purge her eating because...
    Musicwillsaveyoursoul Musicwillsaveyoursoul 16-17, F 3 days ago

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    March 21, 2015 The dream I had last night was far too accurate a metaphor for my life than I'm comfortable dealing with. It was long and drawn out, with many different twists and...
    ncbarr ncbarr 31-35, F Mar 21

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    I was diagnosed with a disease called trichotillomania which is a disease that makes you pull out your hair strand by strand. I've been doing this for almost 3 years now and a lot...
    WinglessSoul WinglessSoul 13-15, F 1 Response Mar 25

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    Today started with a visit from the neurologist. He asked how I was feeling and what I was able to accomplish. He had obviously already read what the nurses wrote though, since...
    ncbarr ncbarr 31-35, F 1 Response Mar 5

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    It's hard to get used to having to choose between all the little things you do in a day that you take for granted. This morning I walked to the shower (behind the wheelchair) and...
    ncbarr ncbarr 31-35, F Mar 8

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    March 9, 2015 The next person that tells me to be positive is going to get punched in the throat. Don't tell me how to deal with this if you've never been through it. I'm being...
    ncbarr ncbarr 31-35, F Mar 11

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    Okay so, a few things I want to talk about. I have made peace with this disease more quickly than most people. I was diagnosed with genital hsv1 on February 6, 2015. I truly felt...
    lil0miss0sunshine lil0miss0sunshine 22-25, F 4 Responses Mar 19

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    I was diagnosed with Crohn's when I was 10 (In 2001), and now I'm 23. (I'll be 24 in June) It's weird knowing you've had disease for over half your life and will continue to have...
    Catherdra Catherdra 22-25, F Mar 23

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    I've never known anyone who's more stronger than my mother, even when times are tough she may shed a tear but still stay strong with such a horrible disease. Although it has its...
    Fantasygamergirl Fantasygamergirl 18-21, F Mar 13

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    I got diagnosed in 2012 when I lost all feeling in my legs. They did not catch it in time for it to be cured, they tried but failed. I was luckily already seeing a doctor who also...
    briannanicolex briannanicolex 18-21, F 1 Response Mar 13

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    Hello everyone, I am 37years old and sick. I've been diagnosed congestive heart failure, and diabetes. My life right now is about meds and side effects. every day is different and...
    tman3737 tman3737 36-40, M 1 Response Mar 24

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    I was diagnosed with this disease 2 years ago at the age of 64. I am very angry about this. I don't know what could have caused this; it came out of nowhere. I recently moved into...
    PP711 PP711 66-70 Mar 3

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    I'm 22, I was diagnosed when I was 12. When my doctors told me I would go blind, I was sad, but I was naive. Being only 12, when my doctors said 'probably not until you're 80', it...
    szmb szmb 22-25, F 1 Response Mar 7

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    March 16, 2015 Today was my fourth day home. I had told myself and my family that I wanted three days to sleep and relax and just recover, and then I'd start working on getting...
    ncbarr ncbarr 31-35, F Mar 16

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    My story is not about the horrible effects of this disease on my body, my mind, my life. It is not about having to isolate myself from friends, my children, grandchildren, my...
    neckoflace neckoflace 70+, F 1 Response Mar 17

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    So I wrote on here about a little over a month ago. I have suffered through depersonalization since I was 18. I took this disorder as something I would never be able to overcome...
    katejen2 katejen2 22-25, F a week ago

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    I have Trigeminal Neuralgia. Also known as "the suicide disease" because before effective treatments were available, people would take their own lives because of the agonizing...
    kayblue kayblue 36-40, F 4 Responses 4 days ago

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