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I Have Liver Disease

Personal Stories, Advice, and Support 55 People

    Just Diagnosed With Alcoholic Hepatitis And Terrified!

    Well, I drank for years due to depression, loneliness and going to New Orleans bars too often with my husband. I have always had an emotional and addictive personality. GI doc told me I had inflammed liver. I discovered that it was truly hepatitis by doing my own research and...
    AlabamaGirl56 AlabamaGirl56 56-60, F 2 Responses Oct 30, 2013

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    Can someone here explain to me the kind of pain

    and location they had/have during issues with their liver? And any other symptoms? I have been having mild but persistent acking, burning pain that kind of feels like cramping in my upper abdomen. There is also one tiny spot that hurts when I putt pressure on it. Also a slight...
    BananaSmoothiee BananaSmoothiee 18-21, F 2 Responses Aug 28, 2014

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    I Have End Stage Liver Disease Secondary To Cirrhosis .

    I was a heavy drink and at the time I came down with a very bad kidney infection. Not realizing that my kidneys were shutting down and thus backing up my system to the point where I went into full renal failure. I was hospitalized for ovr 2 months and the Dr's did not expect me...
    enduser2941 enduser2941 36-40 3 Responses May 29, 2011

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    AIH

    Hey guys I'm a 23 year old with auto-immune hepatitis. I was diagnosed with it at 14, and been fighting it ever since. Like most of you on here, it affects my life in the usual ways. I don't drink, and I try to eat as little fatty foods as possible. If anyone wants to chat...
    homecoming1 homecoming1 22-25, M 1 Response Mar 8, 2013

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    Fighting With My Body

    Hi!  I am clearly new here and do not know exactly where to begin so here goes... About three years ago I as diagnoses with non-alcoholic fatty liver disease-Stage 4 cirrhosis with secondary portal hypertension.  I am 35 years old.  The anomaly which is also the reason my...
    hopefultc hopefultc 31-35, F 1 Response Oct 22, 2011

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M 2 Responses May 19, 2013

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    I have not been diagnosed

    as of yet, I am 47 and use to be a fairly healthy drinker, all tests are normal,but I can tell something is very wrong. Dull pain under right rib cage, unexplained weight loss (20pounds) extreme sensitivity to even a sip of alcohol or red meat, weak legs, and occasional anxiety...
    skyriter88 skyriter88 46-50 Sep 10, 2014

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    Pain & Raised Enzymes Advised - Terrified

    Hi All, I am a long time user of co-codomaol and other migraine related medicines. I suffer from headaches daily and as such, to get through my day pop pills. When the migraines come, that intensifies, anyone who suffers will be all to aware you will do almost anything to...
    stevied553 stevied553 36-40 2 Responses Dec 7, 2011

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    Hi I was just diagnosed with AIH

    or autoimmune hepatitis. I'm 17 and hopeful. I started taking budesonide and after my next round of blood tests i will start taking Imuran. I'm still experiencing fatigue and chronic joint pain but I'm trying to stay active. There's a quote that says "Things turn out best for...
    Ahall96 Ahall96 18-21 2 Responses Jun 2, 2014

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    To Others In The Same Boat...

    I'm 25yrs old and have liver disease caused by Porphyria (a hereditary disease). Liver disease isn't pleasant. The jaundice and ascites turns you into an oompaloompa (willy wonka reference). Just carrying that extra weight around is a strain alone. I once had 16L drained from my...
    MsMidnight MsMidnight 22-25, F 3 Responses Sep 5, 2010

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    Scared...

    Well this is where it all started... I just had mine and my husband's second child on June 10th 2012. On the last day in the hospital my blood pressure shot up really high. We were able to leave the hospital with me on blood pressure meds. I went in to the doctor the next day for...
    Brittdaisy Brittdaisy 22-25, F 1 Response Dec 31, 2012

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M May 19, 2013

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    I Turned Down A Liver. Did I Make The Right Decision?

    I have been on the transplant list for 5 years. I have hepatitis "C" and my MELD score has been stable for about a year. It stays right around 16. My blood type is B+ and I am 3rd on the list of patients with B type blood. The 2 people ahead of me have both developed liver cancer...
    ArizonaSteve ArizonaSteve 51-55, M Sep 24, 2012

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    Hi... I am new to this

    so trying to understand how this has all happened. In January this year I opened some boxes ... got really sick and as a result my body started to shut down. As the weeks went on I didnt get better... I had blood in my urine and was sent to a specialist ... they thought I had a...
    Suem01 Suem01 46-50, F 1 Response May 30, 2014

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    Chronic Hebatitis B

    Been dieagnoses two or three years ago not sure not sever enough for treat ment thank god my health is perfect they say to me tho they tell me not to drink tho i do at times go on binges but im careful to take breaks in between to give my liver a chance to repair itself i...
    ccdo ccdo 22-25, F 2 Responses Nov 18, 2009

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    My Brother Has Alcohol Liver Disease

    i just wanted to share this story with people so others can have hope also... my brother who is just 32 has been a big drinker for many years but was alcohol dependant for the last 5years.. he has been told several times that he had an inflammed liver and had jaundice this was...
    jenny1981 jenny1981 26-30 3 Responses Jan 31, 2011

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    My Dad's Hope

    I want to share my Dad's story with the world, so his hope can spread. He was an heavy drinker for most of my life and quit over two years ago. A few months ago he was diagnosed with end stage liver disease. He was on the transplant list and not doing well. His meld score reached...
    lakebaby lakebaby 31-35 3 Responses Jul 11, 2013

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    Lver Failure

    i was diagnosed with hep c in 1995 am currently in a great deal of pain, am currently on morphine contin 90 mg a day, this isn't working for the pain any sugestions, we don't have a pain clinic in the town i live in. not sleeping well up every 2 hours in pain. live with mom and...
    dennis3999 dennis3999 61-65, M Oct 4, 2013

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    Non Alcoholic Liver Disease (nafld)

    Please let me first say that I respect and realise that many others here have more irrevocable conditions that the one I am facing- but I really am seeking a genuine place to talk with people about liver Disease- and I would love to hear your expereinces as well as share my own...
    Sekem Sekem 36-40, M 5 Responses Sep 29, 2010

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    Related Experiences

    I have celiac disease. I where do I find a cook book for only gluten free foods
    dereksgirl22 dereksgirl22 18-21, F 9 hrs ago

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    I have a family history of cataracts, glaucoma and blindness on my maternal side. I just went to the eye doctor this past Saturday and I've been referred to a eye specialist for a...
    lemurgirl09 lemurgirl09 26-30, F 4 days ago

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    I was diagnosed with celiac when I was 4 and it's been 11 years. I've never had a pop tart or donut or Oreo. I want to know what they taste like. I'm highly allergic, so I would...
    Madscheers512 Madscheers512 13-15 1 Response Jan 6

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    Everyday is worse than the last. Ever second worse with each breath. No one is here, I am completely alone. My mother is in love with being intoxicated with alcohol and her...
    xmoonxchildx xmoonxchildx 13-15, F 1 Response Jan 9

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    Hi there. I think I have this disease. I am 16 years old. I know you all are like 30s-40s but I am unusual apparently lol. I have had these symptoms since I was 11. I get hives or...
    cailynrenee cailynrenee 16-17, F 1 Response Jan 13

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    I was just diagnosed with AIH. I have not started the treatment yet. My liver enzymes were up to 915 and 610 in November and then then dropped dramatically in December to 179 and...
    Ursula55 Ursula55 56-60, F Jan 22

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    Alright I know I shouldn't do this but I'll google "would you date someone with herpes" and the responses are awful. When I search something like "would you date someone with...
    extraordinarygirlll extraordinarygirlll 18-21, F 4 Responses Jan 2

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    What is Addiction? It is now one hundred years since drugs were first banned -- and all through this long century of waging war on drugs, we have been told a story about addiction...
    Ferric67 Ferric67 36-40, M 1 Response Jan 22

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    Extremely worried about BP I like to start off by saying I've been dealing with health anxiety and OCD since I was a teenager. I am 32 now. I've been with my doctor for over 6...
    highbpguy highbpguy 31-35, M 1 Response 4 days ago

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    Update - liver AST and ALT levels up to 1061 and 769... I wanted to get into to see a specialist in Miami but first appointment is June 2, 2015. I also wanted a fibroscan to...
    Ursula55 Ursula55 56-60, F 4 days ago

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    A cure for Parkinson's Disease? Every once in a while I get excited about some research that is being done as it relates to Parkinson's Disease. I'm not stupid, I know how these...
    LifeinWoodinville LifeinWoodinville 41-45, M 6 Responses Jan 5

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    I decided to put a whole bunch of my weight gaining life into this one experience. It's really long, but if you want to read it, do so :) My scales are sadly broken. The last...
    FlabPack FlabPack 26-30, M 2 Responses Jan 4

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    I was diagnosed with Grover's disease about 3 years ago. I tried many things but eventually found a solution that worked for me. I asked my dermatologist to prescribe UV light...
    nocompromise nocompromise 41-45, M Jan 4

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    about 3 years ago i was diagnosed with tspk... i went to the eye doctor thinking i had pink eye really bad, but knew it was something else. my eyes were completely bloodshot (i...
    Nebraskagirl21 Nebraskagirl21 22-25, F Jan 8

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    Yesterday my 9 month old baby was diagnosed with hirschsprungs disease. His pullthrough is booked for thursday
    jenmitton jenmitton 22-25 3 days ago

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    It's a hard diagnosis to swallow or accept, my enzymes were normal throughout my second pregnancy until after I developed preeclampsia after delivery and 6 weeks into drug therapy...
    andreab77 andreab77 36-40, F 1 Response Jan 5

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    Last night I had a very weired dream and I hope if somebody could interpet this dream for me .i dreamed that I lived in a flat next to an old woman who I did not know who she is...
    Anonymous79ea Anonymous79ea 31-35, F 5 Responses a week ago

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    Last night I had a very weired dream and I hope if somebody could interpet this dream for me .i dreamed that I lived in a flat next to an old woman who I did not know who she is...
    Anonymous79ea Anonymous79ea 31-35, F 2 Responses a week ago

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    Last night I had a very weired dream and I hope if somebody could interpet this dream for me .i dreamed that I lived in a flat next to an old woman who I did not know who she is...
    Anonymous79ea Anonymous79ea 31-35, F 3 Responses a week ago

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    Last night I had a very weired dream and I hope if somebody could interpet this dream for me .i dreamed that I lived in a flat next to an old woman who I did not know who she is...
    Anonymous79ea Anonymous79ea 31-35, F a week ago

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    Last night I had a very weired dream and I hope if somebody could interpet this dream for me .i dreamed that I lived in a flat next to an old woman who I did not know who she is...
    Anonymous79ea Anonymous79ea 31-35, F a week ago

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    My mother came for a visit to my house 5 years ago and has yet to leave... No seriously. She has been one of the most clingy, needy and emotionally abusive people that I've ever...
    tajadaja tajadaja 31-35, F 45 mins ago

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    It's been almost three years since we first met. I still remember the day. I had been back in my home town for a few months after I'd convinced myself to stay because I'd missed it...
    minernick minernick 22-25, M 1 Response Jan 4

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    we met when I was 15 he was 20 we fell in love it was an amazing 25 years few fights ( he was the only man I was with) he was a drinker but not terrible we married and had 2...
    SICKOFIT7 SICKOFIT7 46-50 4 Responses Jan 13

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    In July 2011 I became sick with encephalitis. Having encephalitis was like nothing I had ever experienced. I hurt so bad I wanted to die. I survived. The encephalitis went away...
    ag925silver ag925silver 41-45, M Jan 22

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    Your skin is what people see first, so be sure to make a great impression by taking care of it. The advice in this article will help you take better care of your skin and make...
    waypuma73 waypuma73 31-35, M 1 Response Jan 1

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    Its so crazy, 2 days ago I was "normal , " now I'm in a freaking herpes support group with other people "like me" smh happy birthday (no offence to anyone, I'm still in shock) I'm...
    Sharudy Sharudy 18-21, F 5 Responses Jan 2

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    "Well, ****" is what I thought when my doctor called today telling me that i had contracted herpes. Its kinda hard to articulate my emotions right now. I'm only 15, go to prep...
    gloom130 gloom130 13-15, M Jan 3

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