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I Have Liver Disease

Personal Stories, Advice, and Support 50 People

    Scared...

    Well this is where it all started... I just had mine and my husband's second child on June 10th 2012. On the last day in the hospital my blood pressure shot up really high. We were able to leave the hospital with me on blood pressure meds. I went in to the doctor the next day for...
    Brittdaisy Brittdaisy 22-25, F 1 Response Dec 31, 2012

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    I Turned Down A Liver. Did I Make The Right Decision?

    I have been on the transplant list for 5 years. I have hepatitis "C" and my MELD score has been stable for about a year. It stays right around 16. My blood type is B+ and I am 3rd on the list of patients with B type blood. The 2 people ahead of me have both developed liver cancer...
    ArizonaSteve ArizonaSteve 51-55, M Sep 24, 2012

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    To Others In The Same Boat...

    I'm 25yrs old and have liver disease caused by Porphyria (a hereditary disease). Liver disease isn't pleasant. The jaundice and ascites turns you into an oompaloompa (willy wonka reference). Just carrying that extra weight around is a strain alone. I once had 16L drained from my...
    MsMidnight MsMidnight 22-25, F 3 Responses Sep 5, 2010

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    Non Alcoholic Liver Disease (nafld)

    Please let me first say that I respect and realise that many others here have more irrevocable conditions that the one I am facing- but I really am seeking a genuine place to talk with people about liver Disease- and I would love to hear your expereinces as well as share my own...
    Sekem Sekem 36-40, M 5 Responses Sep 29, 2010

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M 2 Responses May 19, 2013

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    Fighting With My Body

    Hi!  I am clearly new here and do not know exactly where to begin so here goes... About three years ago I as diagnoses with non-alcoholic fatty liver disease-Stage 4 cirrhosis with secondary portal hypertension.  I am 35 years old.  The anomaly which is also the reason my...
    hopefultc hopefultc 31-35, F Oct 22, 2011

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    Hi... I am new to this

    so trying to understand how this has all happened. In January this year I opened some boxes ... got really sick and as a result my body started to shut down. As the weeks went on I didnt get better... I had blood in my urine and was sent to a specialist ... they thought I had a...
    Suem01 Suem01 46-50, F 1 Response May 30

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    Pain & Raised Enzymes Advised - Terrified

    Hi All, I am a long time user of co-codomaol and other migraine related medicines. I suffer from headaches daily and as such, to get through my day pop pills. When the migraines come, that intensifies, anyone who suffers will be all to aware you will do almost anything to...
    stevied553 stevied553 36-40 2 Responses Dec 7, 2011

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    My Brother Has Alcohol Liver Disease

    i just wanted to share this story with people so others can have hope also... my brother who is just 32 has been a big drinker for many years but was alcohol dependant for the last 5years.. he has been told several times that he had an inflammed liver and had jaundice this was...
    jenny1981 jenny1981 26-30 3 Responses Jan 31, 2011

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    Hi I was just diagnosed with AIH

    or autoimmune hepatitis. I'm 17 and hopeful. I started taking budesonide and after my next round of blood tests i will start taking Imuran. I'm still experiencing fatigue and chronic joint pain but I'm trying to stay active. There's a quote that says "Things turn out best for...
    Ahall96 Ahall96 16-17 2 Responses Jun 2

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    I Have End Stage Liver Disease Secondary To Cirrhosis .

    I was a heavy drink and at the time I came down with a very bad kidney infection. Not realizing that my kidneys were shutting down and thus backing up my system to the point where I went into full renal failure. I was hospitalized for ovr 2 months and the Dr's did not expect me...
    enduser2941 enduser2941 36-40 3 Responses May 29, 2011

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    Chronic Hebatitis B

    Been dieagnoses two or three years ago not sure not sever enough for treat ment thank god my health is perfect they say to me tho they tell me not to drink tho i do at times go on binges but im careful to take breaks in between to give my liver a chance to repair itself i...
    ccdo ccdo 22-25, F 2 Responses Nov 18, 2009

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    My Dad's Hope

    I want to share my Dad's story with the world, so his hope can spread. He was an heavy drinker for most of my life and quit over two years ago. A few months ago he was diagnosed with end stage liver disease. He was on the transplant list and not doing well. His meld score reached...
    lakebaby lakebaby 31-35 3 Responses Jul 11, 2013

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    Just Diagnosed With Alcoholic Hepatitis And Terrified!

    Well, I drank for years due to depression, loneliness and going to New Orleans bars too often with my husband. I have always had an emotional and addictive personality. GI doc told me I had inflammed liver. I discovered that it was truly hepatitis by doing my own research and...
    AlabamaGirl56 AlabamaGirl56 56-60, F 1 Response Oct 30, 2013

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    AIH

    Hey guys I'm a 23 year old with auto-immune hepatitis. I was diagnosed with it at 14, and been fighting it ever since. Like most of you on here, it affects my life in the usual ways. I don't drink, and I try to eat as little fatty foods as possible. If anyone wants to chat...
    homecoming1 homecoming1 22-25, M 1 Response Mar 8, 2013

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    Lver Failure

    i was diagnosed with hep c in 1995 am currently in a great deal of pain, am currently on morphine contin 90 mg a day, this isn't working for the pain any sugestions, we don't have a pain clinic in the town i live in. not sleeping well up every 2 hours in pain. live with mom and...
    dennis3999 dennis3999 56-60, M Oct 4, 2013

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    Not Lucky

    im 29 years old with advanced liver disease due to alcohol..i do not drink daily maybe my body just dont have the ability to eliminate it. im from a country that liver transplant is so expensive i don't have the money to buy medications so im not taking any,im still working even...
    walkingdeadman walkingdeadman 26-30, M May 19, 2013

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    Related Experiences

    Hey guys I'm Megan I'm 15 years old I'm currently battling 2 disease lymes and POTS other known as postural othostatic tachycaridia syndrome. Also known as fatigue that's a whole...
    Megan2020 Megan2020 13-15, F 1 Response Jun 23

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    I remember the day it happened. I was arm wrestling and my wrist popped. It hurt pretty seriously but I just went on thinking it would go away. I was probably 17 at the time. I...
    Phillips299 Phillips299 26-30, M Jun 29

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    I went to the doctors today to check up on my lymes. Last Time I was in there they re tested me to make sure I had it we got the results today and it came back negative. But Iv...
    Megan2020 Megan2020 13-15, F 1 Response Jun 26

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    I was just diagnosed with Hashimotos this last week. My dentist told me to go get my thyroid checked. It turns out I have hashimotos. They had me do a sonogram and they also found...
    Kylee94 Kylee94 18-21, F 1 Response Jul 14

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    Anyone else hashimotos symptomatic but normal thyroid levels? If so what symptoms? I have brain fog, confusion, memory issues, tingling head, some sleeping issues, what seems like...
    CoachDanny CoachDanny 41-45, M 5 days ago

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    It took me 34 years to figure it out, but thankfully I have an answer to my health problems. I've suffered for years from numerous ailments, went through numerous medical...
    LostMittens LostMittens 31-35, F 1 Response 6 days ago

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    I'm 51 female with breast cancer history. Sixteen years ago I had a lumpectomy chemo and radiation. I developed lymphedema in my left arm afterward. About a year ago a doctor...
    damsel50 damsel50 51-55, F Jun 30

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    My symptoms started when I was 16. I began to experience widespread joint, muscle pain, and headaches. I was seen by multiple doctors who said that I was perfectly fine and just...
    eeeck eeeck 26-30 1 day ago

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    God I wish I had a friend. I feel like I need someone to tell me that I am okay, that things will get better if I try. I guess I don't believe in myself anymore... sometimes I...
    crazyhobo crazyhobo 26-30 1 Response Jul 8

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    My symptoms started when I was 16. I began to experience widespread joint, muscle pain, and headaches. I was seen by multiple doctors who said that I was perfectly fine and just...
    eeeck eeeck 26-30 1 Response 1 day ago

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    21 yrs of screaming the place down with pain, unbelievable fatigue, no diagnosis for 10 yrs, there was no internet back then. When I finally got diagnosed with fms I was put on...
    tubbypurple tubbypurple 51-55, F 2 Responses Jun 26

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    I had a liver transplant in 2003 for PSC. In 2013, PSC came back in a rage. I had bile duct surgery in June of 2013, now liver numbers are down, but liver biopsy shows liver is...
    tzeiher tzeiher 61-65, M 6 days ago

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    I think all those weddnings, parties, suppers and the other kinds of an official meetings are too often "supported" by an alcohol. I think we must be conscious that the most...
    michalmos michalmos 31-35, M 2 Responses Jun 30

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    I have CIDP- I am 21. I was diagnosed last year after being wrongly diagnosed for two years. My main problem is severe pain- it started with pinching feelings in my toes and slowly...
    dobermanlady93 dobermanlady93 18-21, F Jun 25

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    I have CIDP- I am 21. I was diagnosed last year after being wrongly diagnosed for two years. My main problem is severe pain- it started with pinching feelings in my toes and slowly...
    dobermanlady93 dobermanlady93 18-21, F Jun 25

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    I'm 20 years old and have been suffering with HS for about 4 years now. Looking at me I don't think anyone would ever guess that I struggle with this and only a handful of people...
    AlexandraSavannah AlexandraSavannah 18-21, F 3 Responses Jun 28

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    I have never heard of it but apparently its an obsessive disorder and people with borderline personality and anxiety disorder have it. I don't know how i am going to stop because i...
    Gentleandlovingsoul Gentleandlovingsoul 36-40, F Jul 1

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    My dad left before I was born. After I was born my mom was diagnosed with Huntington's Disease...it's a genetic disease. I was only 10. In those 10 years I watched her slowly die...
    blackbird08 blackbird08 18-21, F Jun 27

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    This website it is an incubator and all of its participants are spreading their disease like a plague. I will be fine I will be confident I will be happy and I will feel like I...
    darchuletagirl2 darchuletagirl2 16-17, F Jun 27

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    This website it is an incubator and all of its participants are spreading their disease like a plague. I will be fine I will be confident I will be happy and I will feel like I...
    darchuletagirl2 darchuletagirl2 16-17, F Jun 27

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    23+ years ago I was diagnosed with MS, even though I never had a positive test. No blood test, MRI, spinal tap,etc was ever positive for MS. My symptoms were never an exact match...
    bonsaigirl bonsaigirl 56-60, F Jun 29

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    After many years for a diagnosis I finally was diagnosed with Mixed Connective Tissue Disease. I am happy to have a diagnosis and am taking my medicine, Plaquenal. I understand...
    Oceanoftears Oceanoftears 41-45, F 2 days ago

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    Well I find out tommarow at what stage my disease😁doctor said stage 2 but after seeing other xrays I believe it's stage 3 nervous about surgery and want them to skip the four...
    jeffbelcher jeffbelcher 41-45, M Jun 30

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    Over a year ago I was diagnosed with Postural Orthostatic Tachycardia Syndrome. I've battled high school with this non curable disease, but I now I graduated and it is time for me...
    heyycutie16 heyycutie16 18-21, F 2 Responses Jul 13

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    Looking for people who have server Menieres Disease and has had the shunt surgery on my left ear but now I'm getting in my right ear
    gborron gborron 46-50, F 2 Responses 1 day ago

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    It's very difficult having a condition where you look fine on the outside but feel bad. People look at you and think " well she looks fine, what's her problem?" MS is definitely...
    andimann andimann 41-45, F Jul 1

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    This lady used to run a cam when her breasts were of a more manageable size. They appear to have never stopped growing. This must be the very scary side of the disease. Im...
    JohnAmenReveres JohnAmenReveres 51-55, M 2 Responses Jul 2

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    I have had HS since I was in ninth grade and it had grown worse over the years. I had a boil on my right arm pit that I had to have surgery on in 2007 when I was in 11th grade so...
    texasgirl2012 texasgirl2012 22-25, F 4 Responses Jul 5

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    I had a sudden urge to post my experience of MS with anyone who would read. I have only been on this journey since January, but boy has it been a long one. I am only 20 years old...
    youngwildfreedom youngwildfreedom 18-21, F 3 Responses Jul 6

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    I was diagnosed with Hidradenitis Suppurativa in January 2013. My first flare-up was under my right armpit. I went to the dermatologist thinking it was a boil that could simply...
    Amyhealing Amyhealing 31-35, F Jul 10

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    I was diagnosed May 2014 after seeing my GP for hip and lower back pain. She referred me to an orthopedic doctor for further review who did an MRI of my back after determining I...
    Deelue Deelue 46-50, F Jul 12

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    I have stage 4 chronic kidney disease since last nov. Of 2013,right before Thanksgiving. And I do have couple donors to help me but I guess the hospital is still gonna take awhile...
    letsbestrong letsbestrong 31-35, F 2 days ago