I Have Lujan Fryns Syndrome

A Lujan Fryns Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Lujan Fryns Syndrome. You're not alone. 4 People

    Just Diagnosed With Lujan Fryn's Syndrome

    hi everyone hope you are all well. I have just been diagnosed and my mom is very upset.  I still do not understand what this means for me and what lies a head.  Does anyone know any support groups or information help that i can get? Thank you all Matt
    dlasson dlasson
    18-21, M
    1 Response May 12, 2010

    My Family

    my brother sister and nephew have all got lujan fryns syndrome i am the main carer for them my nephew was diagnose with adhd at the age of 8 then further tests were done at a genetc clinic with the result the three of them were diagnosed with ljf i would like to hear frrom...
    eh526dp eh526dp
    Sep 5, 2012

    Lujan Fryns

    Is there anyone out there struggling with getting the proper medical attention for a loved one with Lujan Fryns? 
    jeanniej jeanniej
    6 Responses Jun 24, 2009
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