Lupus Erythematosus, Systemic anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Lupus Erythematosus, Systemic. You're not alone.
I was retired from the USAF in 1989. I was in the middle east in 1983 and after returning back to the states, I noticed I had a lot of fatigue and began to get a strange rash. I was given cortizone cream to use for the rash for a while until it got worse. ...
if you have a family history of this disease. Around age 39 I contracted Epstein Barr virus which triggered SLE. My quality of life is very diminished. I am fatigued and my joints hurt all the time. I wish I was never born.
so tired of feeling this illness. I feel and I know these doctor I visit every month and every two months they don't have a clue to treat my illness . They tell me it's my insurance that's why they will never give me the right treatment . I'm just a lab rat
I wonder when
You began to attack me.
Sunshine is the enemy.
Those heavy rays of tragedy
Ebonising from the sky; the light is
I only breathe to
Curse you at night, when my
Lungs are so tight, they swell
Underneath my spleen, and
Push on my Kidneys. My
that has affected my kidneys, my pancreas , my heart, I've had a total knee replacement twice and 2 hip replacements, back surgery . I've had 3 heart attacks too. Lupus is systemic and can affect so many parts and organs. Lupus makes you tired and all the medicines for lupus...
The story is simple, Lupus is no fun, no matter how small or how often you have flares and remissions.
I was diagnosed in 2001, after having my first child. I had many problems during my pregnancy, and was often having problems throughout times in my life. I am pretty certain I...
and shed some light on what hell I have been going through. I am 34 years old and had a hysterectomy on Oct. 28th since the surgery I had a vaginal cuff abcess (surgery #2) then a bowel surgery to remove scar tissue (surgery #3) I have been so sick ever since I have a rash on my...