I Have Lupus Erythematosus, Systemic

Lupus Erythematosus, Systemic anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Lupus Erythematosus, Systemic. You're not alone. 59 People

    The Ugly Truth

    The story is simple, Lupus is no fun, no matter how small or how often you have flares and remissions. I was diagnosed in 2001, after having my first child. I had many problems during my pregnancy, and was often having problems throughout times in my life. I am pretty certain I...
    NicoleBoersma NicoleBoersma
    31-35, F
    2 Responses Nov 5, 2012

    I'm going through a flare up right now

    and I'm not really sure how to handle it. I was recently diagnosed and struggling a bit.
    jvanalstine15 jvanalstine15
    18-21, F
    Feb 8, 2016
    roadrunner34 roadrunner34
    36-40, F
    2 Responses Jun 6, 2014

    How Rare For a Man to Have Lupus

    I was retired from the USAF in 1989.  I was in the middle east in 1983 and after returning back to the states, I noticed I had a lot of fatigue and began to get a strange rash.  I was given cortizone cream to use for the rash for a while until  it got worse. ...
    bruce5149 bruce5149
    56-60, M
    4 Responses Jul 23, 2008

    A poem I wrote about my Lupus Sometimes,

    I wonder when You began to attack me. Sunshine is the enemy. Those heavy rays of tragedy Ebonising from the sky; the light is My nemesis. I only breathe to Curse you at night, when my Lungs are so tight, they swell Underneath my spleen, and Push on my Kidneys. My Unbeaten...
    ThePurpleWolf ThePurpleWolf
    18-21, F
    1 Response May 8, 2014

    I am hoping that someone will see this

    and shed some light on what hell I have been going through. I am 34 years old and had a hysterectomy on Oct. 28th since the surgery I had a vaginal cuff abcess (surgery #2) then a bowel surgery to remove scar tissue (surgery #3) I have been so sick ever since I have a rash on my...
    nanners1979 nanners1979
    36-40, F
    1 Response Jan 6, 2014

    It should be a crime to have kids

    if you have a family history of this disease. Around age 39 I contracted Epstein Barr virus which triggered SLE. My quality of life is very diminished. I am fatigued and my joints hurt all the time. I wish I was never born.
    dharmafox dharmafox
    36-40, M
    1 Response Jul 5, 2015

    I have Lupus and I'm

    so tired of feeling this illness. I feel and I know these doctor I visit every month and every two months they don't have a clue to treat my illness . They tell me it's my insurance that's why they will never give me the right treatment . I'm just a lab rat
    DivaMorgan DivaMorgan
    36-40, F
    1 Response Oct 11, 2014

    I have Lupus, it has been a difficult journey

    that has affected my kidneys, my pancreas , my heart, I've had a total knee replacement twice and 2 hip replacements, back surgery . I've had 3 heart attacks too. Lupus is systemic and can affect so many parts and organs. Lupus makes you tired and all the medicines for lupus...
    trishy777 trishy777
    56-60, F
    Mar 14, 2014

    I got lupus when I was 11

    and I have been in and out of the hospital so much these past years, I'm 16 now and I'm still fighting!
    RavenFerret RavenFerret
    18-21, F
    Jan 20, 2015

    Dazed And Confused

    they say I am too young to be this sick, I don't understand
    jesuismallory jesuismallory
    18-21, F
    1 Response Mar 27, 2012

    I would like to meet

    and make friends with people who have lupus for friendship and support.
    trishy777 trishy777
    56-60, F
    3 Responses Mar 16, 2014
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