Lupus Erythematosus, Systemic anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Lupus Erythematosus, Systemic. You're not alone.
if you have a family history of this disease. Around age 39 I contracted Epstein Barr virus which triggered SLE. My quality of life is very diminished. I am fatigued and my joints hurt all the time. I wish I was never born.
and shed some light on what hell I have been going through. I am 34 years old and had a hysterectomy on Oct. 28th since the surgery I had a vaginal cuff abcess (surgery #2) then a bowel surgery to remove scar tissue (surgery #3) I have been so sick ever since I have a rash on my...
The story is simple, Lupus is no fun, no matter how small or how often you have flares and remissions.
I was diagnosed in 2001, after having my first child. I had many problems during my pregnancy, and was often having problems throughout times in my life. I am pretty certain I...
I was retired from the USAF in 1989. I was in the middle east in 1983 and after returning back to the states, I noticed I had a lot of fatigue and began to get a strange rash. I was given cortizone cream to use for the rash for a while until it got worse. ...
that has affected my kidneys, my pancreas , my heart, I've had a total knee replacement twice and 2 hip replacements, back surgery . I've had 3 heart attacks too. Lupus is systemic and can affect so many parts and organs. Lupus makes you tired and all the medicines for lupus...
I wonder when
You began to attack me.
Sunshine is the enemy.
Those heavy rays of tragedy
Ebonising from the sky; the light is
I only breathe to
Curse you at night, when my
Lungs are so tight, they swell
Underneath my spleen, and
Push on my Kidneys. My
so tired of feeling this illness. I feel and I know these doctor I visit every month and every two months they don't have a clue to treat my illness . They tell me it's my insurance that's why they will never give me the right treatment . I'm just a lab rat