I Have Lyme Disease

Lyme Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Lyme Disease. You're not alone. 163 People

    Very Confused

    It all started with a walk and taking a short cut thruogh the woods. Never felt a thing until the next day behind my left knee. I had an ich and sure enogh I had a tick stuck on me. Yuck. I freeked out so much that my husband had to call our Doc. He told my husband to look ...
    wandairoo1 wandairoo1
    2 Responses Aug 29, 2008

    For three and a half years I suffered from some

    mystery illness. Started out feeling overwhelmingly tired even though I had been getting plenty of sleep. Felt like a strange flu but not exactly flu symptoms and wouldn't go away. Went to my doctor and they did a blood test but everything came back normal, so I just thought it...
    JustinNL JustinNL
    26-30, M
    1 Response Mar 22, 2016

    My Mom Has It

            After my mom, I think it's been the hardest on me. Since she got it, she lived with her parents for a couple months. That was really hard on me since that was my first couple months in middle school. But she was never there, talking to a...
    basketballchick basketballchick
    2 Responses Jul 3, 2009

    I found out a month and a half ago

    that I have lymes. I have been sick for three years, but didn't know I had lymes. My treatment isn't working and I am getting worse. I joined this group because I really need someone to talk to. This lymes can be so discouraging. Some days are better than others. I am in...
    smallmoments smallmoments
    4 Responses Feb 3, 2014

    I'm 29 y.o. now. Living in eastern Europe.

    For 8 year I'm aware that I have Lyme Disease. 8 years ago my neurological (only - no joint pain) blew up my life. I was a second college student. I quit it in 2006. Since then I was having large amount of antibiotics treatment. With some good and bad days. But without any...
    someSadMan someSadMan
    31-35, M
    Aug 28, 2014

    Dirt Fishing In The Woods Results In Lyme

    hey guys, I'm new here as I just contracted lyme, I am an amateur treasure hunter, a metal detectorist or as I like to call it, Dirt Fisher...I walk around in the woods and look for old relics and coins from long before I was born. I just started this hobby this year, and got bit...
    dirtfisher315 dirtfisher315
    31-35, M
    1 Response Jun 24, 2013

    Dog Walker Who Loves Dogs And Hates Lymes

    It began with a splitting headache for two weeks followed by a chronic cough and flu symptoms in September of 2011. By October after a stressful day at work and many consecutive days of chest pain which I could no longer write off as heartburn I assumed I was having a heart...
    angelpn74 angelpn74
    1 Response Mar 2, 2013

    My Self Treatment And Education So Far.

    Hi, my name is Shelby, I am 21 years old. I believe I have had lyme since I was about 12. It was misdiagnosed as ptsd. I have been exhausted for years. I have had weird aches and pains. off and on allergy's. I could barely think most days. With all sorts of "little things...
    shellbeans shellbeans
    Nov 15, 2012

    I Just Found Out i have Lyme Disease But Not Sure How Long I Have Had It

    I just found out yesterday i have Lyme Disease i had a blood test done 12/20/2011 and i failed to go back for the results. well i got sick with Bronchitis and then after had severe migraines. I went back in yesterday and he told my my results. My Lyme AB IGM WB 41 KD Band was...
    sanderschantel sanderschantel
    41-45, F
    Feb 1, 2012

    I Have Had Chronic Lymes Disease For 10 Years Now And No One Believes Me!

    My name is Alyssa, I am 23 years old and I have had Lymes Disease for 10 years now. I lived in Upstate New York, near Albany when I was diagnosed. It took the doctors a long time to figure out what was wrong with me. I was tested for cancers, cat scratch fever, and a million over...
    Apow11 Apow11
    26-30, F
    4 Responses Sep 11, 2013

    Don't Let The Lyme Bugs Bite

    Important: (This story is not mine, it's from my friend Marc Merullo who has a Lyme. Please read and help spread awareness of the Lyme Disease.) Many people spend a great deal of time outdoors. Parents take their children out for walks to the local park or around the...
    AlwaysPreoccupied AlwaysPreoccupied
    26-30, F
    Mar 21, 2012

    My Story/10 Month Update

    March, 2012- Hi bloggers! Here is how my Lyme Disease all started, and my 10 month update! It all began with splitting migranes for two months straight, all day..everyday. These migranes were followed by an unbearable shoulder pain that couldn't even allow me to sit still for a...
    JaclynShutack JaclynShutack
    18-21, F
    Mar 19, 2013

    I was diagnosed with Latent Lymes Disease in

    September 2013. I experienced numbness in my right arm for a few months which led into sever muscle spasms and convulsions. Going into late October, I became very ill. I could no longer walk, I experienced neurological symptoms of memory loss and couldn't get my words out...
    katiec1993 katiec1993
    22-25, F
    2 Responses Jan 23, 2014

    A Cure For Lyme Is Available Today

    After 2.5 years of living in pure hell, I finally found someone who was competent enough to offer not just relief from the Lyme symptoms, but to kill the bugs causing such constant chronic discomfort without the use of heavy drugs. I lived in the Midwest back in 2006 and...
    drj2 drj2
    6 Responses Apr 26, 2013

    There IS Light At The End Of Lyme Disease

    Hi everyone my name is Liz and I have been diagnosed with Chronic Lyme Disease. I'll try to keep the story as short as possible. After months of misdiagnosis rash, some vision and hair loss, facial stiffness, joint pain, severe migraines, insomnia, memory loss depression...
    queen222 queen222
    2 Responses Feb 5, 2013

    Anyone negative with blood test

    but diagnosed with Lyme ?I show false positive but keep coming up negative.
    kellner27 kellner27
    18-21, F
    2 Responses Jan 25, 2016

    No Idea I Had It

    I was diagnosed with lyme disease this past Friday. Ive been in horrible pain from my SI joint (pelvis and tailbone)...its been almost 4 months of no work, every day pain, dr visits, MRIs n xrays, shots n meds n therapy 3 times a week...after nothing showing in results and barely...
    lilbabymay33 lilbabymay33
    31-35, F
    Jul 31, 2013

    I first had Lyme when I was 12,

    it not only took away my happy and energetic personality but with my immune system down I got a vocal hemorrhage and couldn't speak. I walked around my 7th grade year with a white board. That time around the Lyme wasn't that bad... Headaches, fatigues, joint pain, enhanced...
    Brickerh Brickerh
    18-21, F
    1 Response Nov 5, 2015

    Everybody With Lymes Has A Story.

    In fourth grade i was on the playground, when i noticed my body was in extreme pain. i didnt want to move. I was tested for lymes along with other things. my lymes came up as a false negative. during my eighth grade year i was tested again. this time i had seven active bands of...
    sammiewammie sammiewammie
    Jan 3, 2013

    Relief to Know What's Wrong

    I am by no means happy to know I have lyme desease. But am glad to know what is wrong with me. I have been progressively getting sicker for the last year and a half. I literally thought I was going crazy. Infact I remember telling my husband I think I am losing my mind. Throw...
    lovethewind lovethewind
    46-50, F
    1 Response Jul 6, 2008

    I Won

    Growing up in the woods of Wisconsin, having a tick on you at the end of the night was not unusual at all. From an early age we were taught to check ourselves for ticks and pluck them off. What we didn't know was how serious a tick bite could be.It was the summer after 5th grade...
    mcdonaldsworker mcdonaldsworker
    3 Responses Jan 26, 2010

    Young And Sick

    My name is Mel, and I've had Lymes disease for about over a year now. I'm 18 years old. It's been a long struggle with my junior and senior year of high school being a complete trainwreck. I try to make the best of it but it's really hard. I got this account to try to connect...
    mel2804 mel2804
    22-25, F
    1 Response May 24, 2013

    I was diagnosed with Lyme disease at the end of

    April 2014 after a few months of misdiagnoses from doctors. They told me I was having stress and anxiety symptoms and I needed a therapist. I knew something wasn't right, I am a healthy runner, soccer play, manager of a gymnastics gym, mother of 2 beautiful children. Why was I...
    runrgrl38 runrgrl38
    41-45, F
    4 Responses Jun 3, 2014

    Hope My Son Doesn''T Have It Like I Did

    when i was seven i got a tick bite on my stomach my aunt pulled the tick off and i went about my day..then weeks..I got these weird bumps on my leg and a bulls eye rash.I went to the hospital because my mom flipped out when she saw it and after several hours they misdiagnosed me...
    hatethisdisease hatethisdisease
    26-30, F
    Jul 15, 2013

    I think I have Lyme disease have all the

    symptoms but keep having false positive.I heard Lyme disease hard to test for .How do you get accurate diagnosis???
    kellner27 kellner27
    18-21, F
    1 Response Jan 2, 2016

    I am 19 now, almost 20.

    .. I haven't been on here for a few years, but I think I'll give it a go. My parents and I thought I had Chronic Fatigue Syndrome for 4 years before discovering that it was probably Lyme the entire time. It's now a year and a half later, and I am sicker than ever. I am talking...
    Invisibleninja12 Invisibleninja12
    18-21, F
    Apr 17, 2016

    I Didn't Know :((((((((((((((

    With little kids sometimes they get viruses that we just gotta let take their coarse. But with my son ~ the fever was on its third day and he developed a weird rash on his stomach. He couldn't move his neck, and he was simply crying and couldnt stand the TV on, no noise...
    Neveah Neveah
    18-21, F
    5 Responses Sep 30, 2009

    Before I begin, I would like to point out

    that I haven't been diagnosed with lyme disease. This was the most relevant title. For the last two years I have been pushed from specialist to specialist and have been diagnosed with a list of condition including: Hypermobility Syndrome, Fibromyalgia, ADHD and Higher...
    LewLew95 LewLew95
    22-25, M
    3 Responses Oct 19, 2015

    In Australia, Lymes disease is not recognised.

    There is a shoking news article about a lady that went two decades misdiagnosed, BUT after she found out a clinic in Germany that offers. Hyperthermia treatments, she gained her quality of life back, here are the newspaper links: http://www.dailymail.co.uk/news/article-2845997...
    Dec 6, 2015

    Friends Without Lyme Don't Seem To Understand...

    I got bit in July and found out I had Lyme Disease not too long after (bullseye rash did appear) but because the antibodies didn't appear in my blood test they didn't want to diagnose me or give me medicine based on the rash alone. I waited months for them to continue to test me...
    greeneyes32 greeneyes32
    11 Responses Oct 3, 2011

    Lyme Disease As An Athlete

    I was just diagnosed with Lyme disease. I am currently 18 years old trying hard to finish up my last year of high school so I can move on to college. My first symptoms started my sophomore year. I was in cross country and running everyday, eating healthy, and just an average...
    Lymeguy Lymeguy
    18-21, M
    3 Responses Feb 17, 2013

    I've had Lyme Disease

    for a long time, but was only diagnosed two years ago. I also have EDS, which symptoms are a lot like Lyme. I am 23, on disability, in pain 24/7 and have so much guilt that I can't be a better, more active mom to my son. I'm currently herxing, so I'm REALLY sick. Some days I'm...
    alwaysfaithful13 alwaysfaithful13
    22-25, F
    Jul 29, 2015

    It all started in the fall of 2014,

    I think anyway.. well I kept getting sick back to back with what seemed like colds, and then in December 2014 I thought I was suffering from the flu. I then followed up with my doctor that same day I woke up with a pounding head ache, fever, and body aches. The results came...
    SpaceEmpress SpaceEmpress
    22-25, F
    2 Responses Jan 13, 2016

    Had 99% Of The Lyme Symptoms... Here's My Best Info

    I've had Lyme since 1997. There are many good resources on Lyme, here are one's I know for your own research: Organizations on Lyme: www.columbia-lyme.org Columbia University has a Lyme research/treatment group run by Dr. Fallon - this is the first place I would go for info and...
    Shudawudacuda Shudawudacuda
    2 Responses Dec 2, 2011

    My Lymes Success!

    Hello everyone. I am going around to different forums sharing my story of my success to add to the void which is the positive stories of people overcoming lymes. Remember that the people on the forums and the people sharing their experiences are mostly the ones that had...
    brandonu brandonu
    26-30, M
    4 Responses Sep 5, 2013

    A Fight For Norm

    Everyday i fight to be normal. I tell myself that I'm okay that the pounding in my head will go away, the sweats and chills will end, that the aching in my joints will go away and that my sensitivity of light will disappear. I make excuses for the reasons I feel the way I do. As...
    beaniegirl1411 beaniegirl1411
    4 Responses Apr 24, 2011

    My daughter was diagnosed with Lyme Disease

    after a 10 year period of misdiagnoses and frustration that cannot be imagined. Once diagnosed, we began the all to familiar process of getting the royal runaround from doctors who were loathe to acknowledge the diagnosis for fear of getting their licenses yanked. Finally...
    Sunnymornings Sunnymornings
    61-65, F
    1 Response Oct 8, 2015

    I Feel Like My Brain Just Doesn't Work

    I was diagnosed 3 yrs ago but diagnosed with mental illness less than a year before(PTSD, general anxiety, chronic depresion) I have not been taking meds for 2 yrs now since I was pregnant and am still breastfeeding. I get too confused to really research anything about Chronic...
    charlibrownm charlibrownm
    1 Response Jul 27, 2011

    Trying To Stay An Optimist Is A Full Time Job

    I got bit by a tick on my scalp in May 2002, and was diagnosed in Nov. 2002 after going to an urgent care for an itchy rash that traveled all over my body. My first symptom was a heavy head and weak neck. Then fatigue, then leg limp, then arm paralysis that came and went. Then...
    lgaspard lgaspard
    51-55, F
    May 9, 2013

    Early Stage...

    I'm only 18, and I found out this year that the symptoms I've been having, that had been over looked and wrongly diagnosed as Lupus at one point, were really due to Lyme disease. I have the best support from my family and friends though. My mom was the one who kept having me...
    bkbarnes bkbarnes
    18-21, F
    1 Response Feb 13, 2010

    Hardly Ever Sick

    I hardly ever get sick. Maybe the flu once a year. I contacted Lymes in 1986. Even though I went to many doctors, I was not diagnosed for six years. Because I had two children to take care of and couldn't afford to miss any more work, I went to my Doctor at lunch evergy day to...
    jeweldee jeweldee
    56-60, F
    1 Response Jan 15, 2013

    My Lyme Memoir

    My Lyme memoir, "American Bread: Chronic Lyme Disease and the Tao of the Open Road" has recently been published. I wanted to share my experience with the disease. The book chronicles my 14 year, (and counting), battle with Lyme disease and the cross country adventures these...
    lymejourney lymejourney
    Jan 30, 2013

    Reaching Out To You.. Please

    Hello everyone, My name is Michelle, I am 20 years old, and I have Lyme Disease. The past 10 years of my life have been far from easy. At the age of 10 I developed Appendicitis, it ruptured, I developed peritonitis, and was within 2 hours of death. Needless to say my life has...
    GuardianAngel924 GuardianAngel924
    18-21, F
    Dec 9, 2012

    Be A Team

    We all joined this group to try and find answers and support from others...well i did any way...many views but barely any comments or communication!
    lilbabymay33 lilbabymay33
    31-35, F
    Aug 3, 2013

    I am currently struggling with the aftermath of

    a nasty lyme's disease infection. I used to be a two sport varsity athlete, a straight a student, a smiling, focused seventeen year old girl. It all started at the beginning of this past school year. We were preparing for the state cross country meet and I was thrilled to be in...
    SwooshZero SwooshZero
    18-21, F
    3 Responses May 17, 2014
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