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I Have Lyme Disease

Lyme Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Lyme Disease. You're not alone. 143 People

    I'm 29 y.o. now. Living in eastern Europe.

    For 8 year I'm aware that I have Lyme Disease. 8 years ago my neurological (only - no joint pain) blew up my life. I was a second college student. I quit it in 2006. Since then I was having large amount of antibiotics treatment. With some good and bad days. But without any...
    someSadMan someSadMan 26-30, M 1 Response Aug 28

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    Friends Without Lyme Don't Seem To Understand...

    I got bit in July and found out I had Lyme Disease not too long after (bullseye rash did appear) but because the antibodies didn't appear in my blood test they didn't want to diagnose me or give me medicine based on the rash alone. I waited months for them to continue to test me...
    greeneyes32 greeneyes32 22-25 10 Responses Oct 3, 2011

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    I Was Running From The Reeper!!!

    My story begins with when i was 19yrs old i was in a bad accident that lead to 5 back surgeries with the last one in 1993 they had to put metal rods & screws in my back, I almost died from this surgery, i had neck surgey & both knees operated on. I was a nurse & was able to work...
    lpn1110 lpn1110 46-50, F May 15, 2012

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    Dog Walker Who Loves Dogs And Hates Lymes

    It began with a splitting headache for two weeks followed by a chronic cough and flu symptoms in September of 2011. By October after a stressful day at work and many consecutive days of chest pain which I could no longer write off as heartburn I assumed I was having a heart...
    angelpn74 angelpn74 36-40 1 Response Mar 2, 2013

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    I was diagnosed with Lyme disease at the end of

    April 2014 after a few months of misdiagnoses from doctors. They told me I was having stress and anxiety symptoms and I needed a therapist. I knew something wasn't right, I am a healthy runner, soccer play, manager of a gymnastics gym, mother of 2 beautiful children. Why was I...
    runrgrl38 runrgrl38 41-45, F 4 Responses Jun 3

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    Be A Team

    We all joined this group to try and find answers and support from others...well i did any way...many views but barely any comments or communication!
    lilbabymay33 lilbabymay33 26-30, F 1 Response Aug 3, 2013

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    I found out a month and a half ago

    that I have lymes. I have been sick for three years, but didn't know I had lymes. My treatment isn't working and I am getting worse. I joined this group because I really need someone to talk to. This lymes can be so discouraging. Some days are better than others. I am in...
    smallmoments smallmoments 18-21 3 Responses Feb 3

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    Not Taken Seriously

    I've had lyme disease for almost 4 years now. I got it my senior year of high school but didn't get diagnosed until the middle of my freshman year of college. I know that I am very lucky to have a mild case of lyme compared to some people, but it is still really had sometimes. I...
    bkbarnes bkbarnes 18-21, F 1 Response Jun 9, 2012

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    Tanya

    for a year and a half, ive been battling with my healh. i have been itcjy all over at first, dirahea, nausea, unable to sleep, fever all the time. i went to 3 skin doctors i was itchy, they only say i was stressed, i felted this bitting me all over, and they would say its all in...
    tan99 tan99 26-30, F 1 Response Jun 26, 2012

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    Reaching Out To You.. Please

    Hello everyone, My name is Michelle, I am 20 years old, and I have Lyme Disease. The past 10 years of my life have been far from easy. At the age of 10 I developed Appendicitis, it ruptured, I developed peritonitis, and was within 2 hours of death. Needless to say my life has...
    GuardianAngel924 GuardianAngel924 18-21, F Dec 9, 2012

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    Rife Machine A God Send For Me And Others

    I was diagnosed with MS when I was 36 ( i know this is about lyme, bare with me) I tried different meds, beta seron, copaxone, avanox, even low dose kemo and steroids nothing really worked. In the beginning bee sting therapy did give some relief but I kept progressing. Lot of...
    flshbk56 flshbk56 56-60, M 1 Response Jul 26, 2012

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    Early Stage...

    I'm only 18, and I found out this year that the symptoms I've been having, that had been over looked and wrongly diagnosed as Lupus at one point, were really due to Lyme disease. I have the best support from my family and friends though. My mom was the one who kept having me...
    bkbarnes bkbarnes 18-21, F 1 Response Feb 13, 2010

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    I Didn't Know :((((((((((((((

    With little kids sometimes they get viruses that we just gotta let take their coarse. But with my son ~ the fever was on its third day and he developed a weird rash on his stomach. He couldn't move his neck, and he was simply crying and couldnt stand the TV on, no noise...
    Neveah Neveah 16-17, F 5 Responses Sep 30, 2009

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    Lyme Disease As An Athlete

    I was just diagnosed with Lyme disease. I am currently 18 years old trying hard to finish up my last year of high school so I can move on to college. My first symptoms started my sophomore year. I was in cross country and running everyday, eating healthy, and just an average...
    Lymeguy Lymeguy 18-21, M 2 Responses Feb 17, 2013

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    I Won

    Growing up in the woods of Wisconsin, having a tick on you at the end of the night was not unusual at all. From an early age we were taught to check ourselves for ticks and pluck them off. What we didn't know was how serious a tick bite could be.It was the summer after 5th grade...
    mcdonaldsworker mcdonaldsworker 18-21 3 Responses Jan 26, 2010

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    I Have Lyme Disease

    October 2012- My Lyme Disease update (6th month) Hi Bloggers, My name is Jaclyn Shutack, i am 17 years old, and i've had Lyme Disease for about 6 months now. Not only has this affected my home life, it has also ruined my social life. I feel alone, depressed and i'm in pain every...
    JaclynShutack JaclynShutack 16-17, F 4 Responses Oct 23, 2012

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    My Lymes Success!

    Hello everyone. I am going around to different forums sharing my story of my success to add to the void which is the positive stories of people overcoming lymes. Remember that the people on the forums and the people sharing their experiences are mostly the ones that had...
    brandonu brandonu 26-30, M 2 Responses Sep 5, 2013

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    No Idea I Had It

    I was diagnosed with lyme disease this past Friday. Ive been in horrible pain from my SI joint (pelvis and tailbone)...its been almost 4 months of no work, every day pain, dr visits, MRIs n xrays, shots n meds n therapy 3 times a week...after nothing showing in results and barely...
    lilbabymay33 lilbabymay33 26-30, F Jul 31, 2013

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    Don't Let The Lyme Bugs Bite

    Important: (This story is not mine, it's from my friend Marc Merullo who has a Lyme. Please read and help spread awareness of the Lyme Disease.) Many people spend a great deal of time outdoors. Parents take their children out for walks to the local park or around the...
    AlwaysPreoccupied AlwaysPreoccupied 26-30, F Mar 21, 2012

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    My Story/10 Month Update

    March, 2012- Hi bloggers! Here is how my Lyme Disease all started, and my 10 month update! It all began with splitting migranes for two months straight, all day..everyday. These migranes were followed by an unbearable shoulder pain that couldn't even allow me to sit still for a...
    JaclynShutack JaclynShutack 16-17, F Mar 19, 2013

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    Lyme Test ?

    I was dx with pots 1 1/2 yrs ago. Lyme and pots mimic the same symptoms. Was wondering if anyone knows why my band 66kd would come back positive. My dr say no to lyme, but gave me doxycylcine to take for 2 months. Any input? thanks!
    ezim77 ezim77 31-35, F 1 Response Dec 5, 2012

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    Very Very Confused

    Since my son developed lyme disease a few months ago I've been very confused about this whole thing.  I get different answers from different doctors, etc.  His was caught in the second stage, which to me, what I've read on line isn't good.  Neorological symptoms...
    Neveah Neveah 16-17, F 3 Responses Nov 7, 2009

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    Everybody With Lymes Has A Story.

    In fourth grade i was on the playground, when i noticed my body was in extreme pain. i didnt want to move. I was tested for lymes along with other things. my lymes came up as a false negative. during my eighth grade year i was tested again. this time i had seven active bands of...
    sammiewammie sammiewammie 16-17 Jan 3, 2013

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    My Mom Has It

            After my mom, I think it's been the hardest on me. Since she got it, she lived with her parents for a couple months. That was really hard on me since that was my first couple months in middle school. But she was never there, talking to a...
    basketballchick basketballchick 13-15 2 Responses Jul 3, 2009

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    Very Confused

    It all started with a walk and taking a short cut thruogh the woods. Never felt a thing until the next day behind my left knee. I had an ich and sure enogh I had a tick stuck on me. Yuck. I freeked out so much that my husband had to call our Doc. He told my husband to look ...
    wandairoo1 wandairoo1 41-45 2 Responses Aug 29, 2008

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    I was diagnosed with Latent Lymes Disease in

    September 2013. I experienced numbness in my right arm for a few months which led into sever muscle spasms and convulsions. Going into late October, I became very ill. I could no longer walk, I experienced neurological symptoms of memory loss and couldn't get my words out...
    katiec1993 katiec1993 18-21, F 2 Responses Jan 23

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    Cassie And Lyme

    I have been increasingly ill over the last few years. I am 41 years old. Two months ago I spent a week in the hospital after what I call 'a spell' of pain, vomitting, chills, sweats, and feeling the ability of being unable to move. I could only sleep for 15 minutes at a time...
    cassiepeterson cassiepeterson 41-45, F 2 Responses Nov 13, 2012

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    A Fight For Norm

    Everyday i fight to be normal. I tell myself that I'm okay that the pounding in my head will go away, the sweats and chills will end, that the aching in my joints will go away and that my sensitivity of light will disappear. I make excuses for the reasons I feel the way I do. As...
    beaniegirl1411 beaniegirl1411 18-21 4 Responses Apr 24, 2011

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    Trying To Stay An Optimist Is A Full Time Job

    I got bit by a tick on my scalp in May 2002, and was diagnosed in Nov. 2002 after going to an urgent care for an itchy rash that traveled all over my body. My first symptom was a heavy head and weak neck. Then fatigue, then leg limp, then arm paralysis that came and went. Then...
    lgaspard lgaspard 46-50, F May 9, 2013

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    Hope My Son Doesn''T Have It Like I Did

    when i was seven i got a tick bite on my stomach my aunt pulled the tick off and i went about my day..then weeks..I got these weird bumps on my leg and a bulls eye rash.I went to the hospital because my mom flipped out when she saw it and after several hours they misdiagnosed me...
    hatethisdisease hatethisdisease 22-25, F Jul 15, 2013

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    A Short Tale Of Infected Insects

    I've had many a tickbite over the years,I often go plunging off the beaten track,so it's not surprising.but never an infection... Then a few weeks ago I had the telltale "bullseye" rash which kept getting bigger...hello-fatigue,muddled thinking,irritability,nervous tension...I...
    dubkebab dubkebab 46-50, M 4 Responses Aug 27, 2010

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    Had 99% Of The Lyme Symptoms... Here's My Best Info

    I've had Lyme since 1997. There are many good resources on Lyme, here are one's I know for your own research: Organizations on Lyme: www.columbia-lyme.org Columbia University has a Lyme research/treatment group run by Dr. Fallon - this is the first place I would go for info and...
    Shudawudacuda Shudawudacuda 36-40 2 Responses Dec 2, 2011

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    Young And Sick

    My name is Mel, and I've had Lymes disease for about over a year now. I'm 18 years old. It's been a long struggle with my junior and senior year of high school being a complete trainwreck. I try to make the best of it but it's really hard. I got this account to try to connect...
    mel2804 mel2804 18-21, F 1 Response May 24, 2013

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    There IS Light At The End Of Lyme Disease

    Hi everyone my name is Liz and I have been diagnosed with Chronic Lyme Disease. I'll try to keep the story as short as possible. After months of misdiagnosis rash, some vision and hair loss, facial stiffness, joint pain, severe migraines, insomnia, memory loss depression...
    queen222 queen222 31-35 2 Responses Feb 5, 2013

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    I Feel Like My Brain Just Doesn't Work

    I was diagnosed 3 yrs ago but diagnosed with mental illness less than a year before(PTSD, general anxiety, chronic depresion) I have not been taking meds for 2 yrs now since I was pregnant and am still breastfeeding. I get too confused to really research anything about Chronic...
    charlibrownm charlibrownm 31-35 1 Response Jul 27, 2011

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    My Self Treatment And Education So Far.

    Hi, my name is Shelby, I am 21 years old. I believe I have had lyme since I was about 12. It was misdiagnosed as ptsd. I have been exhausted for years. I have had weird aches and pains. off and on allergy's. I could barely think most days. With all sorts of "little things...
    shellbeans shellbeans 18-21 Nov 15, 2012

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    Hardly Ever Sick

    I hardly ever get sick. Maybe the flu once a year. I contacted Lymes in 1986. Even though I went to many doctors, I was not diagnosed for six years. Because I had two children to take care of and couldn't afford to miss any more work, I went to my Doctor at lunch evergy day to...
    jeweldee jeweldee 56-60, F 1 Response Jan 15, 2013

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    Relief to Know What's Wrong

    I am by no means happy to know I have lyme desease. But am glad to know what is wrong with me. I have been progressively getting sicker for the last year and a half. I literally thought I was going crazy. Infact I remember telling my husband I think I am losing my mind. Throw...
    lovethewind lovethewind 46-50, F 1 Response Jul 6, 2008

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    My Lyme Memoir

    My Lyme memoir, "American Bread: Chronic Lyme Disease and the Tao of the Open Road" has recently been published. I wanted to share my experience with the disease. The book chronicles my 14 year, (and counting), battle with Lyme disease and the cross country adventures these...
    lymejourney lymejourney 31-35 Jan 30, 2013

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    I am currently struggling with the aftermath of

    a nasty lyme's disease infection. I used to be a two sport varsity athlete, a straight a student, a smiling, focused seventeen year old girl. It all started at the beginning of this past school year. We were preparing for the state cross country meet and I was thrilled to be in...
    SwooshZero SwooshZero 18-21, F 2 Responses May 17

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    Dirt Fishing In The Woods Results In Lyme

    hey guys, I'm new here as I just contracted lyme, I am an amateur treasure hunter, a metal detectorist or as I like to call it, Dirt Fisher...I walk around in the woods and look for old relics and coins from long before I was born. I just started this hobby this year, and got bit...
    dirtfisher315 dirtfisher315 31-35, M 1 Response Jun 24, 2013

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    I Just Found Out i have Lyme Disease But Not Sure How Long I Have Had It

    I just found out yesterday i have Lyme Disease i had a blood test done 12/20/2011 and i failed to go back for the results. well i got sick with Bronchitis and then after had severe migraines. I went back in yesterday and he told my my results. My Lyme AB IGM WB 41 KD Band was...
    sanderschantel sanderschantel 41-45, F Feb 1, 2012

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    A Cure For Lyme Is Available Today

    After 2.5 years of living in pure hell, I finally found someone who was competent enough to offer not just relief from the Lyme symptoms, but to kill the bugs causing such constant chronic discomfort without the use of heavy drugs. I lived in the Midwest back in 2006 and...
    drj2 drj2 56-60 6 Responses Apr 26, 2013

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    I Have Had Chronic Lymes Disease For 10 Years Now And No One Believes Me!

    My name is Alyssa, I am 23 years old and I have had Lymes Disease for 10 years now. I lived in Upstate New York, near Albany when I was diagnosed. It took the doctors a long time to figure out what was wrong with me. I was tested for cancers, cat scratch fever, and a million over...
    Apow11 Apow11 22-25, F 4 Responses Sep 11, 2013

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    Related Experiences

    I wanted to share this. Envita Publishes Important Chronic Lyme Disease Treatment Study SCOTTSDALE, AZ--(Marketwired - December 16, 2014) - A revealing new study on chronic Lyme...
    mynameisjeff28 mynameisjeff28 26-30, M 6 hrs ago

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    Developed a heart disease and had to stop playing softball which dropped my scholarship to college. If I don't get the expensive surgery I'll die from heart failure or drowning in...
    CaliArs CaliArs 18-21, F 5 days ago

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    it was twenty four years ago when I had bouts of severe stomach pain. the kind of pain that would double you over. it was scary because I was pregnant at the time. I thought...
    regalshewolf regalshewolf 41-45, F 1 Response Dec 2

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    Was diagnosed with Hashi's two months ago after two years of doctor after doctor, misdiagnoses and mismanaged meds. Extreme fatigue, dizziness, headaches, brain fog, exhaustion...
    craigrhodes craigrhodes 46-50 3 days ago

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    As much as I've tried not to let this effect me and define who I am, I've been out of work all year due to this illness, had 2 weeks training for a new job and my illness has...
    deejay2605 deejay2605 22-25, M 1 Response 1 day ago

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    well hello I am having the wide excision surgery at 11am tomorrow. I have been dealing with this hs for sometime. MY first slice and drainage happened the day of history 9/11. I...
    hopeful72 hopeful72 41-45, F a week ago

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    I have had herpes since 2011 and the doctor diagnosed it by the sores as something entirely else, but I know that is what it is. My fiance at the time had a cold sore on his mouth...
    iamdiva iamdiva 26-30, F 2 Responses