I Have Lymphocytic Colitis

A Lymphocytic Colitis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Lymphocytic Colitis. You're not alone. 27 People

    I Just Found Out Today...

    Hello everyone,I just found out today that I share the disease with all of you.  After googling it for two hours, I find myself depressed.  I'm sure it will be fine but not knowing the long term is a bit scary.  I guess it is time to continue with the healthy diet.  I feel...
    sherilynns sherilynns
    51-55, F
    1 Response Aug 1, 2011

    Is There Life After Lc

    I was diagnosed with LC early this year from a colon biopsy. I have had diarrhea since Oct. 2010 as well as a bout with C-Diff infection. I had to be treated for the infection before they could treat the LC. I finally started on Colazal  middle of March. I take 9 - 750 mg...
    sandraswindoll sandraswindoll
    4 Responses Jun 26, 2011

    Lymphocytic Colitis

    My story - lymphocytic colitis Hey, I am 21 and was diagnosed with lymphocytic colitis. My diagnosis came following being admitted to hospital over 20 times in the space of a year, for at least a week each time. I was suffering from tachycardia, hypokalemia & chronic dehydration...
    rhiire rhiire
    26-30, F
    1 Response Jul 19, 2013

    Recent Diagnosis

    Several months ago I was diagnosed with lymphocytic colitis.   I am a 73 year old female. I welcome advice about diet and long-term prognosis.  I am interested in learning more about the condition from those who are more experienced; especially...
    csterling csterling
    1 Response Jul 12, 2010

    Just Diagnosed

    After having symptoms for 2 months I have been diagnosed with LC. It began with violent diarrhea in late July. I also had a sore throat and chills. Tested negative for E-Coli, Listeria, Giardia, etc. but I am still convinced i had something infectious. I still feel like...
    Srocc20655 Srocc20655
    1 Response Sep 29, 2012

    I Do A Lot Of Traveling In My Business.

    I'm having to wear protective underwear. I went through many stages with this disease which began almost two years ago. There was about eight months where I had no symptoms. But now it's worse than ever with bright green watery stools. This morning I found blood on my wet...
    share952 share952
    Apr 17, 2012

    I Have Lymphocytic Colitis

    I found out october 2008 when I had extreem pain and could not laugh move or push without crying. I was 133lbs and now I can barely hold 100lbs. sucks
    quanta quanta
    22-25, F
    3 Responses Dec 8, 2009

    Just Found Out

    I am 40 years old and just found out I have this condition, Lymphocytic Colitis. I'm so relieved to know I have something and I'm not going crazy. My work is driving me mad, cannot leave the house, have chronic runny stools. I'm so relieved to find this site! Seeing a specialist...
    tigahmo tigahmo
    Apr 20, 2012

    Diagnosed At Age 5

    I have been living with Lymphocytics colitis for 12 years (I'm 17). The steroids stunted my growth, made it hard to thrive, and caused thyroid problems. I have autoimmune problems. Some include hashimoto's, kidney problems, eczema, psoriasis, on top of lymphocytic colitis. It's...
    1 Response Jan 12, 2013

    Collegiate Athlete

    I am a runner for my university and have just been diagnosed with Lymphocitic Colitis. I have to say I feel worse than I ever have now in the whole year I've been having symptoms. Getting to this diagnosis took lots of ineffective treatments and procedures. My doctor says he has...
    meszac11 meszac11
    18-21, M
    4 Responses Nov 8, 2012

    Will It Ever End?

    I am now 21 years old and have been suffering from LC since I was 17 years old. Since this disease is mostly seen in women over 50, I am the youngest person my DR. has ever seen with the disease. I know that there are worse things out there, but there are few things more...
    smclaireb smclaireb
    18-21, F
    1 Response Apr 11, 2012

    Diagnosed Yesterday

    I have LC, found after one 5-week bout of diarrhea and discovery/treatment of H Pylori. For the last couple of years, too, I woke up every morning with discomfort in the center of my chest near the sternum. Before being eliminated with antibiotic therapy, the H Pylori damaged my...
    luann1210 luann1210
    Aug 15, 2013


    My mother has lymphocytic colitis and is having a difficult time getting the meds to work. She tried all the over the counter meds with no luck. She has tried Asocol (can't spell) and it made it worse and now she is on a powder you put in a drink or food and it seems to be...
    praying praying
    1 Response Aug 2, 2010
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