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I Have Macrocephaly, Benign Familial

A Macrocephaly, Benign Familial anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Macrocephaly, Benign Familial. You're not alone.

    I was recently diagnosed with this disease.It is so frustrating to see doctors not having knowledge and more than that their unwillingness to help.It all started last yr in July...
    me317 me317 36-40, F 2 days ago

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    I shake at least 75% of the time. I can't write anything by hand, have a full cup of tea or even scratch an itch on cheek (I end up getting poked in the eye) without my tremor...
    scottdominic94 scottdominic94 18-21, M 2 days ago

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    I started getting these bumps on my nose when I was 5 years old and kids would tease me and call me ugly. they said the blind people could read my face and that I had herpes. it...
    13michellea 13michellea 26-30 Mar 30

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    At times, my right wrist will tremble a lot when I go to do anything. only started to notice it after my friend pointed it out as I was putting in my lenses. and when I'd finish a...
    SammiSakura SammiSakura 13-15, F 1 Response Apr 7

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    Research on Movement Disorders! If you live in the San Francisco Bay area or Boston area, we are looking for people to participate in a research study on the topic of living with...
    tovalynn tovalynn 26-30, F 2 days ago

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    My daughter is a junior at college and is an exceptional student with drive and clear goals for the future, which include graduate school, most likely at a university abroad. This...
    GTdM GTdM 46-50, F 1 Response Mar 24

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    I am the only one in my family on my mom's side, my dad's side and in the medical world who believes Joe truly loves me and didn't just say the words. I am a believer in God and...
    blankcheck4urhart blankcheck4urhart 36-40, F 1 Response Mar 31

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    Well, since I'm super bored, why not? :) 1. I am homeschooled. Yes, we actually have to do work and learn stuff! Shocker, right? 2. My favorite colors are lime green, royal...
    Rachel335 Rachel335 16-17, F 2 Responses Mar 20

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    I thought I had put up a fairly benign post this morning, but it sure attracted some real haters. My stand is normally to ignore these people, thinking if you don't pore gas on a...
    whynot13 whynot13 46-50, F 10 Responses Mar 28

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    It's not unusual for my Husband to be physically affectionate. We have a very close, very loving marriage. We're soul-mates who have been married 24 years (I'm 42, he's 52). He...
    xxLionessxx xxLionessxx 36-40, F 7 Responses Mar 30

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    Let me preface this by apologizing for being so wordy. This is my first post, and I have a lot to vent. Call me crazy, but I am the OW, and I believe it is going to work. I am...
    Randomgirl1122 Randomgirl1122 31-35, F 12 Responses Apr 1

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