I Have Macrodactyly of the Hand

A Macrodactyly Of The Hand anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Macrodactyly Of The Hand. You're not alone. 24 People

    What to Say..

    I have Macrodactyly of the hand by birth. My right hand is affected with this problem. Want to do some thing about but do not know what. If any one have any suggestion....Please write to me... 
    arvindanabha arvindanabha
    41-45, M
    3 Responses Jul 18, 2009

    Growing Up With Giant Fingers

    I'm 30 and live in the UK. I was born with an enlarged middle and ring finger, intitially the doctors described it as a "genetic translocation" and then when I around 20 they started saying macro-dactyl. Reading through the stories hear I was very lucky: my parents found...
    telyn telyn
    26-30
    8 Responses Nov 3, 2011

    My Big Left Thumb

    I am 48 yrs old and have lived with a big thumb on my left hand all my life. I have had 3 surgeries to manage growth and pain. I was about 9 years old when I had the first surgery on my thumb. My doctor estimated it had reached the length it should be when I would be an adult...
    treebender treebender
    51-55, M
    2 Responses Jun 5, 2013

    MY Child

    MY DAUGHTER WHO WAS BORN IN 1994,WAS BORN WITH HER FINGERS OVERGROWN THAT IS THE FIRST THING I SAW WHEN SHE WAS OUT OF MY WOMB BUT I HAD NO IDEA WHAT IT WAS UNTIL SHE STARTED TO GET A LITTLE OLDER  SHE HAD 3 SURGERIES DONE ALREADY BUT NOW SHE IS 15 YEARS OLD AND GOING...
    kavellez kavellez
    31-35, F
    6 Responses Aug 13, 2009

    Me And My Big Thumb

    I was diagnosed with macrodactyly in 2009 when i was 30, throughout my childhood I was often made fun of or joked about for my "big thumb"; Its wasnt until i started to suffer from pain and pins and needles in my hand that i did anything about it. My doctor refered me to a hand...
    natounette natounette
    31-35
    5 Responses Feb 8, 2011

    My Son Has Macrodactyly

    WELL HERE IS MY STORY WHEN MY OLDEST SON WAS BORN IN JAN OF 2008ABOUT AN HOUR AFTER HE WAS BORN WE NOTICED SOMETHING WAS WRONGWITH HIS HAND BUT NOBODY WOULD TELL US WHAT WAS GOING ON.SO ME AND MY WIFE LET IT GO THINKING IT WAS NORMAL I WOOLD GO BACKIN A FEW DAYS WELL WE WERE...
    LOSTINTHISWORLD LOSTINTHISWORLD
    22-25, M
    6 Responses Jan 23, 2011
More Stories