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I Have Macular Degeneration

Macular Degeneration anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Macular Degeneration. You're not alone. 49 People

    Research Into The Experience Of Living With Macular Degeneration

    Hello, My name is Amy Burton and I am a researcher at Aston University (http://www1.aston.ac.uk/lhs/research/centres-facilities/archa/researchers/amy-burton/). I am interested in the experience of living with age related macular degeneration, in particular with a view to...
    AstonResearcher AstonResearcher 26-30, F 3 Responses Oct 30, 2012

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    No More Shots??

    I am Francis. 80. Left eye was diagnosed as dry in 1985. No problems until 2010 when right eye went wet. I saw some weird things for 6 months before seeing a retina specialist. After diagnosis of wet in right but not in left I was very frightened. DR started lucentis shots...
    rhonda5432 rhonda5432 70+ 2 Responses Aug 29, 2012

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    Suspect This Is The Beginning Of Amd

    I knew I had a problem several years ago when my othomologist sent me to the Retina specialists because of my "torturous" veins .. a sign of diabetes and wet MD .. the Retina Doc dilated my eyes and took more photos. Said that no I didn't have Wet MD .. but I indeed have the...
    deleted deleted 26-30 1 Response Oct 16, 2012

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    Macular Degeneration

    I have dry Macular Degeneration in my right eye at the moment left eye ok. My main problem is the light on the T.V screen bothers me and i wear sunglasses to watch it. I have problems reading at night but manage better now i have a Kindle book reader. I put a light on it when...
    Scenic Scenic 61-65, F Nov 21, 2012

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    New Jersey And Seniors With Macular Degeneration

     i have wet macular degeneration.yesterdayi went to take astate sponsored boating test nj..the light was very poor at 8.45 pm i told the test examiner i was having   trouble reading the test he him self could not read my drivers license because of the poor light..he had  no...
    lilguys2 lilguys2 70+ Jul 13, 2011

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    Amd Now What??????

    I discorvered that I have macular degeration this year around April. I am 55 years old and a mother of a 16 year old and a 12 year old. I wonder how everyone copes with this. I know that I look normal to everyone and can get what I need in a store with out help most of the time...
    sandi55 sandi55 51-55, F 5 Responses Oct 18, 2012

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    My 7 Year Old Daughter Has Been Diagnosed With Wet Macular Degeneration

    My 7 year old daughter has just been diagnosed with Wet Macular Degeneration.  The retina specialist said our only treatment option would be the injections.  Her other eye is perfect, and suggested we only use the injections if we feel we really need to. If anyone has...
    amberdavis80 amberdavis80 26-30, F 3 Responses Dec 31, 2009

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    New Macular Degenerative Prevention Available In Tozal!

    In May of this year I was driving in my car and heard a commercial for Global Wellness Group.  I was looking for a company to work for where I could make my own hours and build a business that I could be proud of.  I went to one of their meetings and met Robin Friedman...
    JPerlman JPerlman 46-50, M 1 Response Jun 22, 2010

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    I have just been diagnosed with dry AMD.

    I'm finding it very hard to accept and keep crying all the time. Its in the very early stages apparently. Is there anything anywhere I can do?
    Lottie4me Lottie4me 70+ 2 Responses Sep 16

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    Stem Cell Treatment For Macular Degeneration

    MD Stem Cells announces availability of Stem Cell treatments for macular degeneration in the United States. MD Stem Cells- www.mdstemcells- is pleased to announce the availability of adult stem cell treatments in the United States, now being provided by a board certified...
    slmd slmd 56-60, M Sep 26, 2012

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    Macular Degeration

    Is it possible to have a macular degeration injection without experiencing temporary blindness followed by a bloody eye for a few days afterward?
    boguts boguts 70+ Nov 5, 2013

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    I Had Macular Degeneration

    I was diagnosed with MD by my eye doctor, He told me there was no cure.I heard about frequency generators, So I gave it a shot.Used it for two weeks, came back about 2 months later, he told me I was cured.Im not a doctor so cant say this will work for everyone, but its worh a...
    fred34 fred34 56-60, M 5 Responses Oct 22, 2011

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    Macular Degenerastion

    its not nice haveing this eye disease and reading about a child who has it is heartbreaking i was 34 when i first got it 36 now 2 years on 5 injections later blind spots life aint quite the same anymore
    clare88 clare88 36-40, F 2 Responses Apr 26, 2010

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    Legally Blind

    I had the worst time figuring out that what I had was macular degeneration. After all I was 11 years old. All of the eye doctors I went to told me I was pretending that I can't see to get attention. Until I went to a Dr. In Texas who looked in my eye with what looked like an...
    aliiwl aliiwl 22-25, F 3 Responses Oct 26, 2013

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    What Have I Got, Doc?

    "You've got macular degeneration, my son". Well, at least it's only the dry form in my case, and seems to be taking a long time to bite me. I don't know how far the degeneration is going to go, but I'm doing all I can to adjust to it as time goes on.
    batfromhell batfromhell 56-60 3 Responses Jun 20, 2008

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    I just found out that I have macular deg.

    Total BUMMER!!!! I use my eyes a whole lot, artist, READER, researcher. After crying abt. it, went to my Acupuncture Bible, and found that there is some hope for me to treat myself. I am a chiropractor, trained in Acupuncture, and my case does seem related to my very weak...
    rosehunter rosehunter 70+, F 1 Response Feb 15

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    Related Experiences

    22! Found out I have spinal degeneration... A few slipped disks, and I'm at the point were I can't sleep because my legs are always numb.
    FKK8 FKK8 22-25, F 1 Response Nov 17

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    Hello everyone I was diagnosed with gastropareis in 2008. I had a gastric stimulator placed and it worked great for 5 years. The doctor then tested me with a gastric emptying scan...
    justwaiting5 justwaiting5 41-45, F 4 hrs ago

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    After experiencing extreme painful monthly periods for more than 10 years I have finally had a lasting solution done to relieve me of all that pain. Yes I finally agreed to a total...
    namgal namgal 46-50, F 13 hrs ago

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    It started out as red eyes, muscle weakness in the legs then a emergency blood transfusion, then told i have chronic kidney disease stage 3, then told im otherwise healthy but...
    shoshoneone shoshoneone 26-30, F 13 hrs ago

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    I have a bedtime which is 10 PM. I also secretly have my unofficial going to sleep time. Which is generally much later than that.
    doodlebug224 doodlebug224 18-21, F 12 hrs ago

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    I have many infact but this one is my song for today and perhaps for weeks to come as it's very meaningful to me right now. http://youtu.be/PzRH8vaQViY Oh hey, I was listening...
    TheCoitalQueen TheCoitalQueen 31-35, F 12 hrs ago

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    I've been single for almost 20 years now and some of the guys I've dated have been married. But I have found that having a long term relationship with a MM is hard because they...
    TaxiDrivingMom74 TaxiDrivingMom74 36-40, F 1 Response 11 hrs ago

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    I have a Diploma in Viticulture and Wine Production. I spent two years at TAFE college learning how to grow and process grapes to be crushed and turned into wineI have done three...
    IwasCandyWhite26 IwasCandyWhite26 56-60, M 1 Response 11 hrs ago

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    I have had couple of times frustrated could not figure way out, most of the time it happens when I can't find my way out. During that time spent thinking, I have hunch of 'doubt...
    Puckerlipjunkie Puckerlipjunkie 22-25, F 9 hrs ago

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    I was adopted by a couple in the US. They're both dead now. They had no other children, adopted or biological. Their brothers and sisters and my adoptive cousins and I are not in...
    1solo1 1solo1 36-40, F 1 Response 9 hrs ago

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    Mine are probably the worst of you all... I have panic attacks for 3 years now. Those 2 years it's gotten really bad. I can't walk out of my house alone anymore just because of...
    Catwomann Catwomann 18-21, F 5 Responses 9 hrs ago

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    my husband and i have been best friends for 20 years, in a relationship for 4 yrs and married for 1. I found out he was cheating on me just before we got married and was sending...
    mumofj mumofj 26-30, F 12 Responses 8 hrs ago

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    I have decided that Christianity is not for me i don't fit in that circle i can only thank those who tried to encourage me but it just is not me i am more at home with the general...
    greyfriars2 greyfriars2 31-35, M 6 hrs ago

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    Ok so here is everything I wanna do during winter, hence forth, My Winter Bucket List: 1. Decorate a Christmas Tree 2.Enjoy some homemade hot chocolate 3. Throw Confetti on New...
    SweetcakesJr SweetcakesJr 13-15, F 1 Response 6 hrs ago

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    First, I know it's long, but please I need someone to help me. Any advice. Reading these stories bring tears to my eyes. I have been cheated on 3 times by the same guy. He lied...
    ArisDiCicco ArisDiCicco 18-21, F 1 Response 5 hrs ago

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    I love her enough to care and constantly worry about her but at the same time I cannot stand her inability to feel empathy for anyone. Even her brother who constantly gives up his...
    booboofuck booboofuck 22-25 2 Responses 4 hrs ago

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    I am 30 years old and have BIID. I am new here, and glad to see there are others that deal with this. I am a little farther a long than many as I do live full time as a...
    WendiWheels WendiWheels 31-35, F 2 Responses 4 hrs ago

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    This past year has been filled with intuitive events. I've tapped into my intuitive dreams, and feelings with others including a particular man. He is heaven sent. I wasn't sure...
    tfJo tfJo 36-40, F 1 Response 4 hrs ago

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    I have always had really big tonsils ever since I was little and I would have constant sore throats and had strep 3 separate times back to back in one summer. It was awful. When I...
    Harlequingal Harlequingal 18-21, F 1 Response 4 hrs ago

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    Right I have things to do I am not ignoring anyone ( just in case) I have to go and get sorted bye 😜😝😛
    zuese zuese 46-50, M 4 hrs ago

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    I have been really ill lately, I've been sick, have a really bad cough and have been getting bad headaches. Throughout all of this, my dog has not left my side. She has led beside...
    mejustbeingme123 mejustbeingme123 13-15, F 4 hrs ago

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    I could have died many times lol. Apparently since birth I was supposed to die. The dumb *** doctor gave my mom medicine so that I wouldn't be born that day, because I was only 8...
    lizardim lizardim 18-21, F 1 Response 4 hrs ago

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    I posted this already on year 2013, but then this group wasn't as active as it is now. And it's FREE, so, please, for your own good, give it a try! So I am posting this again in...
    Catwomann Catwomann 18-21, F 3 hrs ago

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    Well I finished the series of Harry potter...rinse lather repeat? Wish I had the first two. I wish it was all bad. I wish I didn't have such good memories with him. The only bad...
    searchingfar searchingfar 22-25, F 3 hrs ago

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    I am type 1, diagnosed at 18. I was told then that I could live a relatively normal life if I took my medication daily, no matter how I felt. I have done that, and no, I have not...
    justjessa justjessa 31-35, F 2 hrs ago

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    If you had have asked me a year ago what depression was, I would have given you that same old answer about how it just seems to be a thrown around term for people who "get a bit...
    Georgiana72 Georgiana72 16-17, F 1 Response 2 hrs ago

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    I have always felt like I want to die but can't kill myself because of what it would do to my family but mainly my daughter who I am so close to, I just don't want to face the hell...
    tealc2961 tealc2961 36-40, M 1 Response 2 hrs ago

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    TO THE SENSITIVE ONES... Do not be ashamed of your sensitivity! It has brought you many riches. You see what others cannot see, Feel what others are ashamed to feel. You are more...
    MilweePetite MilweePetite 18-21, F 1 Response 1 hr ago

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    My anxiety is getting worse by the second. Whenever I go out I feel like people are judging me on what I wear, how I wear my hair, what sort of makeup I have on and even my...
    notyourbitchxo notyourbitchxo 13-15, F 7 Responses 1 hr ago

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    Don't you ever said to yourself "I know my future girlfriend or wife it out there probably 3,000 miles away" or "let the fate come to me". You must determined and have a fricking...
    562alex 562alex 18-21, M 46 mins ago

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    I should say - HAD - an I phone 5s. Yesterday, some low life stole it. I had it for 5 weeks and loved it. It took me months to save up for it and now it's gone. I feel so bummed...
    kellysimon kellysimon 22-25, F 1 Response 30 mins ago

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