I Have Maffucci Syndrome

A Maffucci Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Maffucci Syndrome. You're not alone. 3 People

    I Have Maffucci Syndrome

    When I reached the age of 38 my life changed forever. I started having severe pain in my legs.  The pain was mostly located in my femur bones.  Although I was born with a rare vascular disorder and had pain due to that, this was new.  Long story short I found a...
    suziep8 suziep8
    46-50, F
    5 Responses Apr 9, 2010
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