I Have Mantle Cell Lymphoma

A Mantle Cell Lymphoma anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Mantle Cell Lymphoma. You're not alone. 56 People

    My Husband Has Mantle Cell Lymphoma

    "ChicagoKeith" is my husband. I originally posted his story under that heading, but have now created my own ID. Aug 2008: Keith was diagnosed with MCL, a rare incurable lymphoma.  It was so advanced, he would likely have died within a year without chemo. With chemo, he...
    MidwestMelissa MidwestMelissa
    41-45, F
    1 Response Feb 14, 2010

    Found Out Today Dad Has Mcl

    Today, we met with an oncologist after a biopsy was done last week and found out that he has MCL. Have just started looking online for what information we can get and support as we all go through this. Dad is 71 years old and other than being diabetic and a previous smoker has...
    nabs70 nabs70
    3 Responses Jan 11, 2012

    Brand New to This

    My family and I are still in shock.  Found out yesterday that my Uncle has MCL.  We're just trying to find out as much information as possible.  I really appreciate reading about other's experiences, strength and hope.  We are lost and searching at this...
    Kamhi Kamhi
    2 Responses Aug 22, 2009

    Hello Friends And Fellow Travellers.....

    I was diagnosed with MCL almost two weeks ago.  Stage 4.  I had already suspected lymphoma and done extensive research on the subject but hadn't come across this rare type of the disease before.  One question I asked the doctor was 'How long do I have without treatment?"  His...
    Aryalleah Aryalleah
    3 Responses Aug 28, 2011

    Confused About Mantle Cell

    I'm 33 and have been diagnosed with Mantle Cell Lymphoma.  My doctor says you go through several stages of feelings.  I have to say i'm still in themourning stage.  With a wife and 2 girls, 12 and 10, you just don't know what the future holds out for you. ( I am...
    nathanheidiz nathanheidiz
    4 Responses Apr 21, 2010

    Good News Day

    I wrote about my brother's diagnosis back in November. I am happy to say that today I learned his doctor is so pleased with his progress that he is not going to give him the last three of the nine treatments he had proposed at the start. My brother has had some tough times and...
    sistertoJ sistertoJ
    Apr 18, 2012

    New To This Group

    have MCL, 56, male. diagnosed 2008, watch and wait till 2010, started treatment. now dealing with low counts, neupogen shots weekly. look forward to discussion with others with this disease.
    cem55 cem55
    51-55, M
    1 Response Apr 1, 2011

    Taking Mcl A Day At A Time

    Dear Friends -    I was diagnosed with stage IV Mantle Cell Lymphoma in June 2010.  This came as a great shock to me as I have no bad habits, exercies daily, eat healthy and have no history of this type of cancer in my family.    For the past two or three...
    runningonfaith runningonfaith
    13 Responses Oct 5, 2010

    Living Free

    I have Mantle cell lymphoma.  I was diagnosed Oct 2009 and went through 7 rounds of hyper c chemo at Northwestern Hospital in Chicago.  I am now in remission and feel better than I have in years.  I will have a maintance drug infused every 2 months for the next 5...
    Nanarose Nanarose
    4 Responses Aug 8, 2009

    Advice, Support

    My husband is 56 and has just been diagnosed with MCL, we are so confused on what treatment course to follow, he absolutely has NO symptoms.  So far everyone thinks this is very, very early.  The disease was found during a routine colonscopy.  I have read so...
    vlrjpr vlrjpr
    7 Responses Feb 3, 2009

    Mantle Cell Lym MCL

    I diagnosed August 29th 2012. I felt something growing up in my lower left side of my body and was pushing my stomach that's why I wasn't able to eat. First one of our doctor friend suggest me visit his hospital at Detroit, can be stomach hernia. I got a ticket to fly Detroit, I...
    ardenarden ardenarden
    61-65, M
    3 Responses May 7, 2013

    Very Nervous At The Moment...Any Insight Would Help

    Hello. My name it Tommy Merrill. My father was diagnosed with MCL in December. He just finished his Cycle B R HYPER CVAD treatment. Yesterday he had completely debilitating headaches. He went to the hospital to have a CT Scan. Nothing abnormal. Went home. He woke up this morning...
    angusdog1 angusdog1
    4 Responses Feb 6, 2013

    My 68 Year Old Wife Was Recently Diagnosed With Mantle Cell Lymphoma

    My 68 year old wife is very fit and has been healthy all her life.  We work out daily on a Total Gym 1000, walk 3 1/2 miles and take day hikes in the mountains lasting three to six hours.  She has never smoked, drinks one glass of merlot with dinner and spends hours gardening...
    ttbg ttbg
    3 Responses Nov 13, 2011

    My Father

    My father was just diagnosed with mantle cell lymphoma along with dilated cardio mypathy and heart disease.  He has been held at Pittsburgh hospital for the past 2 weeks following a routine gall bladder surgery in which he coded on the table enroute to recovery.  He is...
    tamara2009 tamara2009
    1 Response Jun 12, 2009

    2 Months Ago Mantle Cell Lymphoma

    I have been diagnosed with NHL Stage 3a mantle cell Lymphoma. Oct. 10 2013. I have had two rounds of Chemo. {Bendamustine and Rituximab} I will be getting 6 rounds total and than a autologous stem cell transplant. Very little side effects just nausea and fatigue..
    bladams bladams
    61-65, M
    3 Responses Nov 26, 2013

    I Have Mcl

    Hi I was diagnosed with MCL in September 2005 in march 2006 I started oral chemo,this lasted for 5 months and seemed to be successfull.However about 2 years later I relapsed and after a CT Scan my doctor  decided that I should have further chemo which would be given...
    bobcat3 bobcat3
    2 Responses Apr 15, 2010


    Diagnosed with MCL stage 4B in April 2012. I'm in the UK and aged 61. Following the Nordic Protocol: alternating cycles of R-Maxi-CHOP and AraC. Just had my 3rd cycle and tolerating it well. Planned to have an allogeneic stem cell transplant in October - I have two older sisters...
    jaybeepee jaybeepee
    61-65, F
    Jun 16, 2012

    Mantle Cell Lymphoma

    I have Mantle Cell Lymphoma.diagnosed  June 2008Ive had R chop and other Chemo. I had a Stem Cell transplantFeb 2010.  Pet scan  Sept 2011No disease  Some stomach aches and pains.I am still tired. I take lorazepam  when I need it to sleep.My Question is .How long does it...
    trippoli5577 trippoli5577
    66-70, F
    2 Responses Sep 23, 2011

    Have Mcl, Would Like To Connect

    Hello, I was diagnosed with Mantle cell lymphoma  about 6 weeks ago. Just had my first PET scan yesterday don't know the results. Have been taking alternative therapy (Ayurvedic) for a month, My practitioner says I am getting better. The scan will give some answers. I will...
    Hamkmerlin Hamkmerlin
    2 Responses Dec 7, 2010


    Today day 11 since I was told. Start chemo this week. So little time left .
    thomasjcar thomasjcar
    2 Responses Dec 18, 2011

    Mantle Cell Lymphoma

    My father was just diagnosed. Feel like I'm lost
    lndo lndo
    1 Response Mar 27, 2012

    My Dad Has Mcl

    My dad is 64 years old and he was diagnosed with mantel cell lymphoma in January 09. Since then he has been through extensive chemo treatments. When his journey began he had lost 35 lbs and we were all concerened for his well being. While going through chemo he began to feel...
    Nikkijoey101 Nikkijoey101
    2 Responses Jul 27, 2009

    Mcl And Naturopathy

    I was diagnosed with stage 4 MCL in April of '08, spent the summer receiving R-CHOP w/ Valcade. It shrunk the cancer back pretty well and with the steroids and lots of effort, I rebuilt my stamina and muscle mass. Before chemo, I couldn't walk more than 20 feet. I was pretty far...
    portlandtom portlandtom
    51-55, M
    5 Responses Dec 20, 2009

    I Too Have Mantel Cell Lymphoma

    November 10, 2010 I was diagnosed with mantel cell lymphoma.  Scarry day as I know it is for anyone diagnosed with any cancer.Being diagnosed with a cancer that has no cure is so emotionally scarry, I,m beside myself.I had 6 rounds of chop chemo, finished April 7th, 2011, and...
    chasecreekcattleco chasecreekcattleco
    5 Responses May 7, 2011

    New To All This

    Hi everyone, on Dec 30th 2010 I had a kidney stone. It was the most painful experience of my life. I went to the ER and they gave me some pain medication and some anti-inflammatory drugs and sent me to the CT scanner where I had a CT scan of my abdomen and pelvis. Then they sent...
    joexray joexray
    1 Response Jan 20, 2011


    61-65, M
    Dec 30, 2013

    Support Groups -for Those With Mcl And For Their Loved Ones!

    Hi, I am recruiting for two existing groups on Facebook. One group is for those with MCL (and/or) for their Loved Ones/Caretakers. The other group is exclusively for the Loved Ones/Caretakers (ONLY.) Both are closed and private groups. (Only members of each group will be able to...
    MantleCellLymphomaGroups MantleCellLymphomaGroups
    2 Responses Sep 20, 2012

    Husband With Mcl With A Blastic Variant

    My husband was diagnosed yesterday with MCL with blastic varient which apparently adds an additional layer of agressiveness. We meet with ocologist Monday. I am RN and have started reading about this. Any one have any further personal info or particular questions we should...
    nursecec nursecec
    61-65, F
    3 Responses Feb 25, 2012

    I Have Mantle Cell Lymphoma

    Diagnosed Aug 2008, will be going through a stem cell transplant after the 1st of the year 2009. Am relatively healthy despite all the chemo. Just looking around for others with the same diagnosis.
    ChicagoKeith ChicagoKeith
    19 Responses Dec 9, 2008
    trippoli5577 trippoli5577
    66-70, F
    Jan 11, 2014

    Mantle Cell

    Be paitent I had it a year ago and went thru all the chemo and then finnaly bone marrow transplant. Everything will work out.
    billt1 billt1
    66-70, M
    Apr 23, 2012

    Diagnosed in June 2011 with leukemic phase

    (blood, marrow, spleen but not lymph nodes), stage 4 MCL. Entered a clinical trial in Oct 2012 with Bendamustine/Rituxan chemotherapy followed by Auto SCT. It is almost 1 year since SCT and I remain in complete remission - May 21 is my re-birthday! Woo-hoo ! ! My only...
    Jimbo262 Jimbo262
    66-70, M
    May 13, 2014

    My Brother Has Just Been Diagnosed With Mcl, I Feel Helpless

    My dear brother has just been diagnosed with MCL, he is in Australia and I am in the U.S. and I feel so helpless.  We are very close and are used to emailing every day.  This past week while he has been waiting for the results of his tests I have been looking on the internet...
    sistertoJ sistertoJ
    Nov 9, 2011

    New At This

    I'm 70, retired and just finished my first chemo treatment (CHOP).  My spirits are good and I'm feeling OK.  But I can't find out much about the range of results from the treatment.  I've only heard about the brother of a friend who lived five good years...
    owlguy owlguy
    70+, M
    4 Responses Jun 10, 2009
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