I Have Marfan Syndrome

This group is for anyone who has or supports someone with this disorder.





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"I Have Marfan Syndrome" Stories
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Marfan Syndrome

I have Marfan Syndrome .Most people are not very aware of this genetic disorder .As it is not very common.Or people have just not been diagnosed with ...
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2 comments| Viewed 486 times | 3 recommendations

I Have Beals Syndrome

Hi! My name is Sarah and I have a rare genitic mutation called Beals Syndrome. It is brother to Marfan's Syndrome.My Beals is the most extreme type on...
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4 comments| Viewed 1167 times | 2 recommendations

I Will Be the Last.

No more.I have a chance to say that now.My mom and grandmother didn't.My grandmother lived in an age where they dind't knew what marfan was.She had ch...
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4 comments| Viewed 330 times | 2 recommendations
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Members have said this page is also related to the searches below: I Have Marfan Syndrome , Do You Have Marfan Syndrome? , What is it Like to Have Marfan Syndrome? , Have Marfan Syndrome personal stories, Have Marfan Syndrome articles, Have Marfan Syndrome forums

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This is an experience group where everyone says: I Have Marfan Syndrome. It features support, personal stories and experiences, advice, chat, talk, forums, videos, pictures and resources from real people, just like you. It's free to join, and the people in this group would love to meet you! If you've had this experience, or plan on having it in the future, simply click 'Me Too' or 'Plan To' and add it to your experiences. As you add more experiences, we're better able to recommend interesting people to you that share many of your personal experiences.

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