I Have Mastocytosis


Mast cell abnormalities

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12 Stories

Finally A Diagnosis

My name is Kim and I'm 43 years old. I have been activly searching for answers to health issues since 2007. I didn't realize that some of my...

All My Symptoms Seem To Fit, But I Can't Find A Good Doctor!

I am a 46 year old man who has suffered from asthma, hives, digestive troubles and generally itchy skin for the better part of my life. I...

Frustrated For Years

I have been suffering with an unknown illness for 3 years now. Have had several episodes of dangerously high blood pressure, followed by...

Research Studies

Hi, for those of you that don't know, a lot of clinical trials for mastocytosis can be found at www.clinicaltrials.gov.

New Life?

I was diagnosised with systemic Mastosytosis a few months ago after having my 1st flushing episode.  I was home alone with my 2 young...

MY Boyfriend Has Mastocytosis

HELLO EVERYONE  MY BOYFRIEND HAS MASTO, HE HAS HAD FOR ABOUT 6YEARS,  HE ALSO TAKES A CHEMO PILL, GLEEVEC, ALSO SOME ANTIHISTIMES...

What the Hell Do I Have?

 I have been suffering for a year from the severe itchiness.Finally I found a dr who knows what the problem is,but he knows only a...
Members Sharing the Experience "I Have Mastocytosis"
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I Have Mastocytosis Questions & Answers
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This Experience at a Glance
Story highlights
These snippets show some of the most common themes mentioned in this experience's stories:
  • "Â The stomach distress, the extreme vertigo, the unexplained high blood pressure, the flushing, the blind migraines without the headache..."
  • "I've read about systemic mastocytosis and think it seems similar, but that scared me b / c it sounds life threatening..."
  • "I have been activly searching for answers to health issues since 2007..."
And the Story Awards Go to...
Statistics:

29% of people who have this experience are in their forties, 24% are in their twenties, and 19% are in their fifties. 78% of people who have this experience are women.

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Check out this group's What Is It Like To Have Mastocytosis guide, where people with this experience share their tips and hints.
Members said this page is also related to: Do You Have Mastocytosis? , What is it like to Have Mastocytosis? ,Have Mastocytosis personal stories, Have Mastocytosis personal experiences

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