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I Have Me Aka Cfs

Personal Stories, Advice, and Support 49 People

    My Daughter Too

    My daughter found out a month ago that she also has CFS. This is of no surprise to me at all. I knew since she was a few months old. I had a feeling. She was pale and slept so much and wanted to sleep. The throat infections and yeast infections. The look of her. So much like me...
    MsBlueDreamer MsBlueDreamer 41-45, F 2 Responses Jul 17, 2012

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    13 Years Experience ;)

    None of the general 'disability' groups seemed appropriate, and my apologies for using the term 'CFS'- search engines always change M.E to 'Me', making it impossible to find ;) I caught Glandular Fever when I was 17 and never recovered. That is the short story; the long one is...
    Oracle Oracle 26-30, F 6 Responses Aug 1, 2007

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    Hi i'm a 15 yr old girl

    and have CFS/M.E I've had it since I was 12 i also suffered from depression and panic attacks. I know sometimes you feel like giving up don't!! Keep going when you come through this you will be the strongest person you could imagine! Don't make your dreems any smaller aim higher...
    lottie15 lottie15 16-17, F May 17

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    Getting to Grips With Cfs

    It has bee na little over 2 months since My specialist finally agreed with me, That I've got CFS. The internet is such a great place to gain information. The only trouble is it can lead to overloading and sometimes causes panic. I've lived with the increasing worsening...
    StartingAfresh StartingAfresh 41-45, M 1 Response Dec 9, 2008

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    "I'm Sick and Tired of Being Sick and Tired"

    I got diagnosed with M.E. when I was 12, now I'm 20yrs old and am still battling, or should that be living, with the illness and its repercussions. I don't know quite what to say here, over the years I seem to have mutated from a person who suffered ME into an ME sufferer, and...
    HorizonSurfer HorizonSurfer 18-21, F 5 Responses Jul 15, 2008

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    It'S All In Your Head???!!!!

    I was diagnosed with my with I was 13 (now 21) after being bed bound for over 6 months the doctors finally told me I had M.E. I tried to live with my problem secretly but after missing most of my last 2 years at school and college, people began to notice! I lost many friends as...
    Nina91 Nina91 22-25, F 1 Response Feb 23, 2013

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    Just Finding Out

    I'm feeling so depressed. After reviewing my health cycles, I've just realised that I may have CFS. I haven't been myself since having glandular fever. I've been so tired. I always thought I just had a "weak immune system" but it's only today (after 3 years) I am facing...
    Folrig Folrig 22-25 Oct 19, 2008

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    Damn That Cfs!

    I do not like to complain, but when the flare of fibro and CFS get to a point - I want to scream and shout - in silence because it takes to much energy to do it out loud for real. I was going to meet with a support group with others' like me who have these two health issues and...
    stigmafree stigmafree 31-35 2 Responses Mar 6, 2011

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    I Have Chronic Fatigue Syndrome

    I too have Chronic Fatigue Syndrome, although I have been able to uphold my life as normally as possible. I also caught glandular fever afew years ago, right during my HSC. my doctor told me TWICE that it was only tonsillitis, so i continued to go to school which not only made it...
    Gomenasi Gomenasi 18-21, F Jul 7, 2008

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    M.e. Is Becoming "me"

    M.E. is becoming "me." Over the 9 years that I have suffered with ME/CFS more and more of my life, my identity, my personality and my existence has been chipped away at, lost to, or colonized by this illness. I now struggle to think of a single area in my life which is not in...
    LyingDormant LyingDormant 26-30, F 1 Response Dec 12, 2010

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    Diet Effects...

    Here are the symptoms and time-frame for certain foods I eat that affect my condition: Yeast, wheat, gluten - extreme cardiovascular fatigue and intellectual confusion that lasts two days (or takes two full nights sleep to get over). I literally cannot think straight with gluten...
    flutterly flutterly 36-40, F Jan 13, 2013

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    Rainy Day

    I was going to post this short bit in "I love the Rain" but I'm thinking it might fit this group better. I do love the sound of the rain, it's very relaxing. We've had weeks of sunshine here and it's lovely, bright, and makes my house plants and garden grow. It fills the house...
    MsBlueDreamer MsBlueDreamer 41-45, F Aug 14, 2012

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    I have had ME/CFS for about 4 years now.

    I find it very hard to cope sometimes. I am looking for a pen-pal. Someone who will be willing to write letters or emails every once in a while:) I am located in the UK, South Wales.
    MrsKAura MrsKAura 18-21, F Oct 1

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    It Came Out Of Nowhere...

    ... about four years ago... out of nowhere... I was suddenly reacting to milk and gluten... I was tested and came back clear, at the same time I was so worn out after the gym it took me the best part of a week to recover... and I started getting ill with the flu every few days...
    flutterly flutterly 36-40, F 1 Response Jan 12, 2013

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    Related Experiences

    I have had CFS for about 12 years and am sick of people either not believing that I have it or giving me "helpful" advice (such as: oh, just push yourself a little more each day...
    TealGirl TealGirl 31-35, F 1 Response 1 day ago

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    my cat Gary AKA Bomb Chucker Cretin The Antichrist Diced Mango Spanner /Spanner Head Terrorista (terrorist in Italian) Thing Gaz Mania Gazza PM Gary (prime minister Gary-he has...
    nodkat nodkat 26-30, F 1 Response Nov 30

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    so my ex-BFF just totally destroyed me, just riipped me out of her life(besides the fact i see her every day at school) now i will refrain from cursing so i can post this but hes...
    DaveEatsToast DaveEatsToast 13-15, M 1 Response Dec 1

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    I have a fear of intimacy, causes panic attacks around any sexual situation or the idea of it. aka genophobia
    lbear57 lbear57 16-17 Dec 3

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    I was diagnosed with ET back in 1987...I have been there and done that with the condition. I was diagnosed with Jak2 also. Platelet levels at times went up over a million, had TIA...
    Healed1 Healed1 51-55, M Dec 4

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    It's been a difficult year. There have been some low lows and I'm wondering when the highs are coming back. I've applied to 50 jobs as of February. I've been interviewed 10 times...
    msrani msrani 31-35, F Dec 5

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    I'm dying.... LEGIT DYING. Lol I can't breathe I am coughing like a mad woman! Aka dying chicken. Seriously, it took me legit like weeks fighting it until my immune system...
    ofthisgirl90 ofthisgirl90 22-25, F 3 Responses Dec 13

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    Had a conversation with a friend(aka niece's boyfriend). Me: It's been a while, so how are things back home? Friend: Well, nothing much, just having part time jobs for this moment...
    ZADoubleMesser ZADoubleMesser 22-25, F Dec 19

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    1. Consistency/Stability(staying in one place for as long as possible.) 2. Books 3. My mother(though we've never really gotten alone she is EXTREMELY important for stability...
    ZenithOmega ZenithOmega 18-21, F a week ago

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    She always has something to say to me. If I got a 99 on a test"Stupid, why didn't you get 100" If I get a good score in a competition"Stupid, so and so got higher." She calls me...
    IndianGirl123 IndianGirl123 13-15, F 6 days ago

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    : What would you name your future daughter? oooh well I have a few in mind, but I'll share one which Lyla 2: Do you miss anyone? not right this moment. But maybe soon. 3...
    wonderland63893 wonderland63893 16-17, F 3 hrs ago

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    Holy doolie what a crap day! I would love to know when grieving stops! I thought things were getting much better. Have been feeling generally so much better. It's the holidays...
    willbefreeiwill willbefreeiwill 36-40, F 4 hrs ago

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    I had just turned 20 and I had been living with my first love for a year and a half, a handsome, charming man who abused me physically and emotionally. One day when he'd been...
    Brainyblonde Brainyblonde 66-70, F 2 Responses 6 hrs ago

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    In Singapore, a pawn shop is only for gold. I sold a 999 baby finger ring for SGD $90+ that supported me for a week. I sold it away because it was something I picked up outside and...
    kucinta kucinta 26-30, F 1 Response 2 hrs ago

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    Hey, I am 18 and preparing for my university enterance exam. There is this course that helps you to practice for it. And there is a boy of course. Normally I am never sure if I...
    CutePerfectionist CutePerfectionist 18-21, F 6 hrs ago

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    I'm only 20 years old, and I've had premonitions since I was younger. I still remember the very first time it happen. At first, I didn't know what it ment when I suddenly felt...
    sde715 sde715 18-21, F 5 hrs ago

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    I'm only 20 years old, and I've had premonitions since I was younger. I still remember the very first time it happen. At first, I didn't know what it ment when I suddenly felt...
    sde715 sde715 18-21, F 5 hrs ago

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    Twice and by two different men, in London, I have heard the saying.... If I told you you have a beautiful body would you hold it against me. It seemed uncanny that two guys would...
    Skjeggstad Skjeggstad 22-25, F 5 Responses 4 hrs ago

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    I have been married for longer than it would seem likely for me to be here and in this situation. I did not just decide i want to experience something new,I have honestly tried all...
    MissingIt49 MissingIt49 46-50, M 2 hrs ago

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    It happned again today morning. My Boss was completly out of control shouted like hell with his maximum volume. told me " F u k off". told many things which are not suitable in...
    heartless2 heartless2 22-25, M 1 Response 1 hr ago

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    It happned again today morning. My Boss was completly out of control shouted like hell with his maximum volume. told me " F u k off". told many things which are not suitable in...
    heartless2 heartless2 22-25, M 1 Response 1 hr ago

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    It happned again today morning. My Boss was completly out of control shouted like hell with his maximum volume. told me " F u k off". told many things which are not suitable in...
    heartless2 heartless2 22-25, M 1 hr ago

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    It happned again today morning. My Boss was completly out of control shouted like hell with his maximum volume. told me " F u k off". told many things which are not suitable in...
    heartless2 heartless2 22-25, M 1 hr ago

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    first off i'm not looking for attention i'm looking for a way out of heart break and any suggestions are ok. i messed up when i moved away from my boyfriend of 3 yrs (fiancee for...
    beautifuldisaster1206 beautifuldisaster1206 18-21, F 6 hrs ago

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    And I still do... Whenever I think about you. Even if it has been years, I still feel the chills and butterflies whenever I think of the moments we have shared...... And I don't...
    MsDemeanorMe MsDemeanorMe 31-35, F 1 Response 6 hrs ago

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    Well, this group title is somewhat misleading, but I'll explain. Idk why, but I notice when I talk to people while they're depressed, they are more interesting. I mean, yeah sure...
    NatashaRose NatashaRose 18-21, F 4 hrs ago

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    It was finally pinpointed by my therapist in the 7th grade, that had social anxiety. It didn't really matter that much until freshman year when I started making new friends, and...
    Fallenangels444 Fallenangels444 13-15, F 1 Response 3 hrs ago

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    If you always at least try to tell the truth, you'll have the right people in your life. Who accept you for who you are and what you say and also will have similar morals...
    LGutes LGutes 31-35, F 1 hr ago

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    So..today is pretty emotional I just came back from the hospital..and I found out my cancer is getting worse..I might not have that long..what I really want more than anything...
    Scarsdontfade Scarsdontfade 18-21, F 1 Response 53 mins ago

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    I find it strange sometimes when men tell me that. At first it made me a little uncomfortable but I’m a lady so I smile and say thank you but I guess that little rebellious...
    SensualPassionbbw SensualPassionbbw 31-35, F 47 mins ago

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    finally have one after all my friends beged me to make one
    jamesb21 jamesb21 22-25, M 6 hrs ago

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    This may sound pathetic but I like the "time change" where it gets dark around 4:50pm. I feel more better because people can't see me. I do it subcontiously it's really weird...
    kjonesr kjonesr 18-21, F 5 hrs ago

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