Post
Hello - EP may be briefly unavailable shortly as we apply some critical server updates. Thanks for your patience!
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Me Aka Cfs

Personal Stories, Advice, and Support 48 People

    It Came Out Of Nowhere...

    ... about four years ago... out of nowhere... I was suddenly reacting to milk and gluten... I was tested and came back clear, at the same time I was so worn out after the gym it took me the best part of a week to recover... and I started getting ill with the flu every few days...
    flutterly flutterly 36-40, F 1 Response Jan 12, 2013

    Your Response

    Cancel

    Just Finding Out

    I'm feeling so depressed. After reviewing my health cycles, I've just realised that I may have CFS. I haven't been myself since having glandular fever. I've been so tired. I always thought I just had a "weak immune system" but it's only today (after 3 years) I am facing...
    Folrig Folrig 22-25 Oct 19, 2008

    Your Response

    Cancel

    I Have Chronic Fatigue Syndrome

    I too have Chronic Fatigue Syndrome, although I have been able to uphold my life as normally as possible. I also caught glandular fever afew years ago, right during my HSC. my doctor told me TWICE that it was only tonsillitis, so i continued to go to school which not only made it...
    Gomenasi Gomenasi 18-21, F Jul 7, 2008

    Your Response

    Cancel

    Rainy Day

    I was going to post this short bit in "I love the Rain" but I'm thinking it might fit this group better. I do love the sound of the rain, it's very relaxing. We've had weeks of sunshine here and it's lovely, bright, and makes my house plants and garden grow. It fills the house...
    MsBlueDreamer MsBlueDreamer 41-45, F Aug 14, 2012

    Your Response

    Cancel

    It'S All In Your Head???!!!!

    I was diagnosed with my with I was 13 (now 21) after being bed bound for over 6 months the doctors finally told me I had M.E. I tried to live with my problem secretly but after missing most of my last 2 years at school and college, people began to notice! I lost many friends as...
    Nina91 Nina91 22-25, F 1 Response Feb 23, 2013

    Your Response

    Cancel

    13 Years Experience ;)

    None of the general 'disability' groups seemed appropriate, and my apologies for using the term 'CFS'- search engines always change M.E to 'Me', making it impossible to find ;) I caught Glandular Fever when I was 17 and never recovered. That is the short story; the long one is...
    Oracle Oracle 26-30, F 6 Responses Aug 1, 2007

    Your Response

    Cancel

    M.e. Is Becoming "me"

    M.E. is becoming "me." Over the 9 years that I have suffered with ME/CFS more and more of my life, my identity, my personality and my existence has been chipped away at, lost to, or colonized by this illness. I now struggle to think of a single area in my life which is not in...
    LyingDormant LyingDormant 26-30, F 1 Response Dec 12, 2010

    Your Response

    Cancel

    "I'm Sick and Tired of Being Sick and Tired"

    I got diagnosed with M.E. when I was 12, now I'm 20yrs old and am still battling, or should that be living, with the illness and its repercussions. I don't know quite what to say here, over the years I seem to have mutated from a person who suffered ME into an ME sufferer, and...
    HorizonSurfer HorizonSurfer 18-21, F 5 Responses Jul 15, 2008

    Your Response

    Cancel

    I have had ME/CFS for about 4 years now.

    I find it very hard to cope sometimes. I am looking for a pen-pal. Someone who will be willing to write letters or emails every once in a while:) I am located in the UK, South Wales.
    MrsKAura MrsKAura 18-21, F Oct 1, 2014

    Your Response

    Cancel

    Getting to Grips With Cfs

    It has bee na little over 2 months since My specialist finally agreed with me, That I've got CFS. The internet is such a great place to gain information. The only trouble is it can lead to overloading and sometimes causes panic. I've lived with the increasing worsening...
    StartingAfresh StartingAfresh 41-45, M 1 Response Dec 9, 2008

    Your Response

    Cancel

    Diet Effects...

    Here are the symptoms and time-frame for certain foods I eat that affect my condition: Yeast, wheat, gluten - extreme cardiovascular fatigue and intellectual confusion that lasts two days (or takes two full nights sleep to get over). I literally cannot think straight with gluten...
    flutterly flutterly 36-40, F Jan 13, 2013

    Your Response

    Cancel

    My Daughter Too

    My daughter found out a month ago that she also has CFS. This is of no surprise to me at all. I knew since she was a few months old. I had a feeling. She was pale and slept so much and wanted to sleep. The throat infections and yeast infections. The look of her. So much like me...
    MsBlueDreamer MsBlueDreamer 41-45, F 2 Responses Jul 17, 2012

    Your Response

    Cancel

    Hi i'm a 15 yr old girl

    and have CFS/M.E I've had it since I was 12 i also suffered from depression and panic attacks. I know sometimes you feel like giving up don't!! Keep going when you come through this you will be the strongest person you could imagine! Don't make your dreems any smaller aim higher...
    lottie15 lottie15 16-17, F May 17, 2014

    Your Response

    Cancel

    Related Experiences

    I realized while ep was down that if It did go down permanently, I'd lose some friends and acquaintances.. So below are my other social medias if anyone wants to stay in touch...
    akaShaun akaShaun 16-17, M 3 Responses 1 hr ago

    Your Response

    Cancel
    Ok so this is important for anyone who has CFS or anything like it. I have had this illness for 4 1/2 years now, and I've been to a fair number of doctors. But it took awhile to...
    Invisibleninja12 Invisibleninja12 18-21, F 1 Response Jan 14

    Your Response

    Cancel
    Found a very good read! Check it out http://www.drmyhill.co.uk/wiki/CFS_-_The_Central_Cause:_Mitochondrial_Failure#Explanation_of_the_Fatigue_Problems_in_CFS_Patients
    awesomesauce2 awesomesauce2 22-25, M Jan 18

    Your Response

    Cancel
    How do you guys manage CFS? Seems like I can't live a normal life like I used to.
    awesomesauce2 awesomesauce2 22-25, M 4 Responses Jan 8

    Your Response

    Cancel
    (Spoiler alert btw)Okay so first things first. Akame ga kill seemed like a great series at first and after the first death i was all like,"OMG! what a tearjerker!" and at the...
    FlameThePrince FlameThePrince 16-17, M 1 Response Dec 29, 2014

    Your Response

    Cancel
    I was invited to go out with one of my friends and her sister and all her friends on New Years' Eve. I wish I could. I honestly wish I had it in me to stand up to that many people...
    Kreicht Kreicht 22-25, M 9 Responses Dec 28, 2014

    Your Response

    Cancel
    I recently just got my locs done, and I'm so happy with how they look(: but how do you guys wrap them at night? I have no idea as to what I should do.
    purplehorizons665 purplehorizons665 16-17, F Dec 31, 2014

    Your Response

    Cancel
    Fun fact: Late mobster James Burke aka Jimmy the Gent from the movie Goodfellas (played by Robert De Niro), used to live two houses away from mine. Just remembered cause I was...
    anonamanda001 anonamanda001 16-17, F 1 Response Jan 3

    Your Response

    Cancel
    I have these certain kind of days that just feel like an bounteous liquid flowing through my hands, warming my fragile fingers. My skin feels like a light oat flakes covering a...
    queenjellyfish queenjellyfish 16-17, F Jan 4

    Your Response

    Cancel
    Just a heads up to my friends and anyone else who's interested : I just made a tumblr ( akashaun.tumblr.com ) And ill be posting stuff there including Poems/stories/music/gifs and...
    akaShaun akaShaun 16-17, M Jan 6

    Your Response

    Cancel
    My brother aka my best friend just told me he is done with everything to do with life and I dunno what to do cause even though we ain't family I love him like he is. I know if he...
    spookiemoogie spookiemoogie 22-25, M 1 Response Jan 7

    Your Response

    Cancel
    Do you know the feeling that you need to be strong when around your family and also maybe friends even if you worried or sad... That you can't show it? I have crps and have had...
    kristhy kristhy 22-25, F 1 Response 5 days ago

    Your Response

    Cancel
    I have had it for a year along with Raynauds. I leave Monday to go to Children's hospital of Pittsburgh to try to get help for it.
    itstiffanylea itstiffanylea 13-15, F 1 Response 4 days ago

    Your Response

    Cancel
    I have had CRPS/RSD since 2002. Initially in left arm following Ulnar nerve transposition for cubital tunnel syndrome, but in 12 years it has spread to both feet/legs and small...
    eticketride eticketride 51-55, M 1 Response 2 days ago

    Your Response

    Cancel
    My story is an odd one im sure. I was conceived via an anonymous ***** donor who is my biological father, so someone i have never met and can never meet. My mom had me this way...
    samboooo samboooo 22-25, F 18 hrs ago

    Your Response

    Cancel
    So I like this girl who is a friend of a friend, and she used to like me back. But then I did some **** that I'm not proud of and she found out through the grapevine. I didn't have...
    rssooch rssooch 18-21, M 18 hrs ago

    Your Response

    Cancel
    So I have been on a journey trying to quit my addictions. So far I have quit smoking cigarettes(weed is a different story). I have quit coffee(this was sooooo hard and still is...
    orcore orcore 36-40, F 1 Response 14 hrs ago

    Your Response

    Cancel
    "We were once too ******* happy. Our hearts were filled so much love than the world can contain. This is why reality decided to punish us. Because happiness couldn't exist without...
    butterfliesndut butterfliesndut 18-21, F 2 Responses 12 hrs ago

    Your Response

    Cancel
    I'm warning you now that my experience is a book... I'm sharing because I want those who may be going through this right now to know that only one thing will make the relationship...
    DaylightDancer DaylightDancer 18-21, F 1 Response 10 hrs ago

    Your Response

    Cancel
    I take everything said to me to heart. Every bad word, every accusation, everything offensive or against my character. I listen to everyone, since I don't want to hurt anyone, it...
    DarkwingGoslyn DarkwingGoslyn 31-35 2 Responses 7 hrs ago

    Your Response

    Cancel
    This is kinda hard to write about just because it is embarrassing. .. I mean what 18 year old doesn't have friends?? I try and I have tried my whole life but nothing seems to...
    JaneEbony JaneEbony 18-21, F 3 hrs ago

    Your Response

    Cancel
    Anyone else have monologues with themself when they are alone in the house? I always do this. It's not something i have even thought about until now. It's really weird. I think i...
    ThinkingCat ThinkingCat 18-21, F 1 Response 19 hrs ago

    Your Response

    Cancel
    The fact that he's moved on so easily, that he's so able to say to me that he has a new girlfriend, it is killing me inside. I try to act strong, put a smile on my face and wish...
    grace97eun grace97eun 16-17, F 5 Responses 16 hrs ago

    Your Response

    Cancel
    STILL I still see her. When my mind starts to return from its nightly primordial sojourn, I see her, a lovely and smiling chimera drifting towards me much too slowly. It is close...
    DentedSyke DentedSyke 56-60, M 10 hrs ago

    Your Response

    Cancel
    I want to have a baby... But the baby that I want is one that I can't have because it goes against everything I was raised to believe. I was raised to be good and Christian and...
    Tigercass Tigercass 22-25, F 1 Response 10 hrs ago

    Your Response

    Cancel
    I'm 18 and I've failed my drivers test. The first two times the instructors yelled at me the whole time and I made basic mistakes which caused me to fail. Today, I was completely...
    baibai55 baibai55 18-21, F 7 hrs ago

    Your Response

    Cancel
    So after about 5 months my girlfriend wich was long distance broke up with just because, she didn't have a reason she told me, she said she was shallow and slef centered. In those...
    JustBeYourSelff JustBeYourSelff 22-25, M 6 hrs ago

    Your Response

    Cancel
    When people who don't have ADHD blame their stupidness on having it makes me go insane. EVERYONE GETS DISTRACTED AND EVERYONE WOULD RATHER MOVE THEN SIT STILL but if you don't have...
    LandonS LandonS 16-17, M 1 Response 4 hrs ago

    Your Response

    Cancel
    I am disappointed in a way that I am 24 years old and have yet to be married or have children, although- I had a long and very hard childhood which hindered my growth mentally and...
    Kaia99 Kaia99 22-25, F 2 Responses 3 hrs ago

    Your Response

    Cancel
    I have had herpes for 6 months. When I found out I was devastated. I felt disgusted, dirty, and actually had suicidal thoughts. Why live if I'll never be loved? Well, then I met...
    horsegirl33pony horsegirl33pony 16-17, F 2 hrs ago

    Your Response

    Cancel
    In my current situation I can't make a move, but I'm running out of time to have any real relationship. Plus I have no idea if she feels that way about me
    AnthonyC123 AnthonyC123 18-21, M 19 hrs ago

    Your Response

    Cancel
    I've always seen coworkers have affair after affair. So many "happily married" people having affairs with other "happily married" coworkers. I had a crush on one happily married...
    bongbabexo bongbabexo 31-35, F 19 hrs ago

    Your Response

    Cancel
    I have always grown up nudist. We just don't get dressed in the morning, its no big thing like we have to be naked all the time n stuff. My best friends (and my brother/sisters...
    purplelimeboyy purplelimeboyy 13-15, M 1 Response 19 hrs ago

    Your Response

    Cancel
    Since my anaesthetic several days ago, my brain has been going crazy especially when I sleep. I have so many dreams in a night, but this one was a special one when I had a nap. I...
    uggh uggh 22-25, F 1 Response 17 hrs ago