Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Me Aka Cfs

Personal Stories, Advice, and Support 51 People

    M.e. Is Becoming "me"

    M.E. is becoming "me." Over the 9 years that I have suffered with ME/CFS more and more of my life, my identity, my personality and my existence has been chipped away at, lost to, or colonized by this illness. I now struggle to think of a single area in my life which is not in...
    LyingDormant LyingDormant 26-30, F 1 Response Dec 12, 2010

    Your Response

    Cancel

    My Daughter Too

    My daughter found out a month ago that she also has CFS. This is of no surprise to me at all. I knew since she was a few months old. I had a feeling. She was pale and slept so much and wanted to sleep. The throat infections and yeast infections. The look of her. So much like me...
    MsBlueDreamer MsBlueDreamer 46-50, F 2 Responses Jul 17, 2012

    Your Response

    Cancel

    It Came Out Of Nowhere...

    ... about four years ago... out of nowhere... I was suddenly reacting to milk and gluten... I was tested and came back clear, at the same time I was so worn out after the gym it took me the best part of a week to recover... and I started getting ill with the flu every few days...
    flutterly flutterly 36-40, F 1 Response Jan 12, 2013

    Your Response

    Cancel

    I have had ME/CFS for about 4 years now.

    I find it very hard to cope sometimes. I am looking for a pen-pal. Someone who will be willing to write letters or emails every once in a while:) I am located in the UK, South Wales.
    MrsKAura MrsKAura 18-21, F Oct 1, 2014

    Your Response

    Cancel

    Diet Effects...

    Here are the symptoms and time-frame for certain foods I eat that affect my condition: Yeast, wheat, gluten - extreme cardiovascular fatigue and intellectual confusion that lasts two days (or takes two full nights sleep to get over). I literally cannot think straight with gluten...
    flutterly flutterly 36-40, F Jan 13, 2013

    Your Response

    Cancel

    "I'm Sick and Tired of Being Sick and Tired"

    I got diagnosed with M.E. when I was 12, now I'm 20yrs old and am still battling, or should that be living, with the illness and its repercussions. I don't know quite what to say here, over the years I seem to have mutated from a person who suffered ME into an ME sufferer, and...
    HorizonSurfer HorizonSurfer 18-21, F 5 Responses Jul 15, 2008

    Your Response

    Cancel

    Just Finding Out

    I'm feeling so depressed. After reviewing my health cycles, I've just realised that I may have CFS. I haven't been myself since having glandular fever. I've been so tired. I always thought I just had a "weak immune system" but it's only today (after 3 years) I am facing...
    Folrig Folrig 22-25 Oct 19, 2008

    Your Response

    Cancel

    I Have Chronic Fatigue Syndrome

    I too have Chronic Fatigue Syndrome, although I have been able to uphold my life as normally as possible. I also caught glandular fever afew years ago, right during my HSC. my doctor told me TWICE that it was only tonsillitis, so i continued to go to school which not only made it...
    Gomenasi Gomenasi 18-21, F Jul 7, 2008

    Your Response

    Cancel

    Getting to Grips With Cfs

    It has bee na little over 2 months since My specialist finally agreed with me, That I've got CFS. The internet is such a great place to gain information. The only trouble is it can lead to overloading and sometimes causes panic. I've lived with the increasing worsening...
    StartingAfresh StartingAfresh 41-45, M 1 Response Dec 9, 2008

    Your Response

    Cancel

    Hi i'm a 15 yr old girl

    and have CFS/M.E I've had it since I was 12 i also suffered from depression and panic attacks. I know sometimes you feel like giving up don't!! Keep going when you come through this you will be the strongest person you could imagine! Don't make your dreems any smaller aim higher...
    lottie15 lottie15 16-17, F May 17, 2014

    Your Response

    Cancel

    13 Years Experience ;)

    None of the general 'disability' groups seemed appropriate, and my apologies for using the term 'CFS'- search engines always change M.E to 'Me', making it impossible to find ;) I caught Glandular Fever when I was 17 and never recovered. That is the short story; the long one is...
    Oracle Oracle 26-30, F 6 Responses Aug 1, 2007

    Your Response

    Cancel

    It'S All In Your Head???!!!!

    I was diagnosed with my with I was 13 (now 21) after being bed bound for over 6 months the doctors finally told me I had M.E. I tried to live with my problem secretly but after missing most of my last 2 years at school and college, people began to notice! I lost many friends as...
    Nina91 Nina91 22-25, F 1 Response Feb 23, 2013

    Your Response

    Cancel

    Rainy Day

    I was going to post this short bit in "I love the Rain" but I'm thinking it might fit this group better. I do love the sound of the rain, it's very relaxing. We've had weeks of sunshine here and it's lovely, bright, and makes my house plants and garden grow. It fills the house...
    MsBlueDreamer MsBlueDreamer 46-50, F Aug 14, 2012

    Your Response

    Cancel

    Related Experiences

    I just found out I got it today, and I cried, I haven't told my mom yet, but she has an idea. I called her crying and she came an picked me up, she knows I slept with someone...
    CleosMoon CleosMoon 22-25 1 hr ago

    Your Response

    Cancel
    I'm still in ptsd recovery, even years after the event. A lot of triggers I've been treated for and have moved past, for the most part. The one I can't escape or even work with is...
    omgwut omgwut 41-45, M 1 Response 1 hr ago

    Your Response

    Cancel
    Hey. I'm new at making Littlest Pet Shop videos. I used to make videos of these a few years ago when I was ten to eleven, but I stopped and deleted my account what I used at the...
    BeccaAna16 BeccaAna16 16-17, F 2 hrs ago

    Your Response

    Cancel
    Because of the fact that I was molested I thought that touching private parts was a type of game so I did it with other kids. I never forced anyone. I just asked because I just...
    Lookin4answers123 Lookin4answers123 13-15, F 2 hrs ago

    Your Response

    Cancel
    I rather know how many women with big all natural breasts would like to crush me with their bountiful wonders of chest meat aka man pillows to worship and adore...
    thebustierthebetter thebustierthebetter 46-50, M 4 hrs ago

    Your Response

    Cancel
    methacillian resistant staphylococcus aureus (mrsa) im not quite surr how i contracted it? either working in a hospital environment, or being a patient? this is a resistent strand...
    craigslist504 craigslist504 36-40 2 days ago

    Your Response

    Cancel
    I have conjunctivitis aka pink eye. it itches like crazy.
    craigslist504 craigslist504 36-40 Aug 19

    Your Response

    Cancel
    " know that your future is determined with how you view yourself and your life and how you view the world as you yourself are the only one letting you get in the way of what you...
    idkwhatiam idkwhatiam 13-15, M 2 Responses Aug 18

    Your Response

    Cancel
    School aka hunger games. There's no mercy !!! Let the games begin . . . on monday
    lilacadventures lilacadventures 18-21, F Aug 15

    Your Response

    Cancel
    August 9th 2015: The day I will never forget because I met the legend, my celebrity crush, the one and only Randy Blythe, the singer of Lamb of God aka my favorite band. Got a...
    crazysoul24 crazysoul24 22-25, T Aug 15

    Your Response

    Cancel
    I did it for some extra cash. It was hard, I was a maintenance worker (aka janitor) and a cart-pusher. They wanted me for Cashier, but they schedule their lunch/meal breaks SO much...
    Chrossy Chrossy 22-25, F Aug 15

    Your Response

    Cancel
    Within the last year, I have been diagnosed with PS. Unlike some of the stories I've glimpsed on here, it primarily is my dominant right hand. My hand was always small and...
    HypoplasticHand HypoplasticHand 18-21, F 1 Response Aug 14

    Your Response

    Cancel
    I love my puppy, Chuckwagon, aka Chuck, he turns a yrea next month on the 24th., everyday when I get home, it's like clockwork, he's at the door waiting, then he turns into...
    sargebill sargebill 46-50, M 1 Response Aug 13

    Your Response

    Cancel
    Here it is 12:30am an I'm up thinking bout how many calories I ate today..ive been struggling with this shyt since 14 sad part is I'm almost 7 months pregnant an I can't stop..ik I...
    P3rf3ctDisast3r P3rf3ctDisast3r 22-25, F Aug 13

    Your Response

    Cancel
    I can't believe the time I've wasted on some people. I cannot believe it. Sometimes I like to find something good in people, but honestly, if I am searching for something good that...
    Butterflying100 Butterflying100 18-21, F Aug 12

    Your Response

    Cancel
    I'm not 100% sure if I do, but judging by the symptoms, it's a possibility. I feel really achy, my headaches are getting worse, my sinuses are all over the place, my throat is...
    usernameinneed usernameinneed 26-30, M Aug 11

    Your Response

    Cancel
    I've been diagnosed with Pmdd and can trace episodes back to highschool. Even my family noted a dramatic shift in personality when I hit puberty aka moodswings/anger/confusion...
    Mcmille3 Mcmille3 22-25, F 1 Response Aug 11

    Your Response

    Cancel
    i am praying that God will pull my husband and i through this time and in the times to come. it is a scary place to be right now, but i am glad we have each other. his hip and leg...
    amazedbygrace amazedbygrace 26-30, F Aug 10

    Your Response

    Cancel
    I have rule 34 aka drawn **** on my phone
    deleted deleted 26-30 2 Responses Jul 31

    Your Response

    Cancel
    References to the Akashic Records, also known as the eternal Book of Life, stems from antiquity. The Old Testament has references that there is a collective storehouse of...
    bkurtis62 bkurtis62 41-45, F Jul 31

    Your Response

    Cancel
    The Notch. AKA Carbon based LifeformsIve shamefully been neglecting this band for too long. Time to put that right :)
    Hypnotia Hypnotia 51-55, M 1 Response Jul 31

    Your Response

    Cancel
    You know when you get the feeling something really isn't right? Well I'm sitting in bed, writing in my journal and I have such a strong feeling that something is horribly horribly...
    deleted deleted 26-30 1 Response Jul 28

    Your Response

    Cancel
    I lost my papa roughly 10 years ago to pancreatic cancer. now all these years later I may loose my last grandpa to aggressive prostate cancer because he didn't get checked early...
    shadewolf7 shadewolf7 18-21, M 2 Responses Jul 28

    Your Response

    Cancel
    And I'm tired of everyone pretty much trying to shove medicine down my throat. I hate the way it makes me feel. I don't want to lay around like a zombie. It makes me feel like I...
    HappilyMrsLetson HappilyMrsLetson 18-21, F 1 Response Jul 28

    Your Response

    Cancel
    I could not sleep for a week because I was freaking out about getting pregnant. I convinced myself that I had nausea, fatigue, tiredness. After spending hours researching, I have...
    deleted deleted 26-30 Jul 28

    Your Response

    Cancel
    Do you ever wonder if someone that you know in your daily life is on this site and you have no idea? ...maybe that guy who only writes about urinating in his pants is actually...
    BeachBumMom BeachBumMom 31-35, F 21 Responses Jul 28

    Your Response

    Cancel
    I have end stage kidney failure. I only had one good kidney when I was born. The other was smaller and failed first. The thing is I am on dialysis for the rest of my life. Do I...
    comfi comfi 51-55, M Jul 28

    Your Response

    Cancel
    I went to a counselor today, and I definitely related to her quite a bit, I filled out these question forms, and I apparently have severe anxiety. Then my mom started crying...
    Bflyboo14 Bflyboo14 13-15, F 2 Responses Jul 28

    Your Response

    Cancel
    I have dark brown skin and I hate it. I don't know why people wish they had it. It's like a dark brown skin. :( I wish I was lighter or white.
    BigGirlWithLove BigGirlWithLove 22-25, F 1 Response Jul 28

    Your Response

    Cancel