MELAS Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with MELAS Syndrome. You're not alone.
1 post. Updated a while ago |
Members Sharing the Experience "I Have Melas Syndrome"
20 Members
This Experience at a Glance
Story highlights
These snippets show some of the most common themes mentioned in this experience's stories:
These snippets show some of the most common themes mentioned in this experience's stories:
- "Â He said that I " might'have a mitochondrial disorder, but he gave up on me because he knew that I could not afford the extremely expensive DNA testing..."
- "sarah  I'm 56 years old and have been sick since the age of 15 with unexplained proximal muscle weakness in my arms and legs and other problems..."
- "He is now 17 and has began showing some signs of regression along with some major anger issues..."
And the Story Awards Go to...
Top Rated: Sister Is End Stage Melas
Most Popular: Sister Is End Stage Melas
Most Recent: My Melas Story So Far...
Most Commented: Recent Diagnosis
Statistics:
30% of people who have this experience are in their twenties, 30% are in their fifties, and 25% are in their forties. 86% of people who have this experience are women.
You may cite any I Have Melas Syndrome statistics, provided you link back to this page
Check out this group's What Is It Like To Have Melas Syndrome guide, where people with this experience share their tips and hints.
Members said this page is also related to:
Do You Have Melas Syndrome? , What is it like to Have Melas Syndrome? ,Have Melas Syndrome personal stories, Have Melas Syndrome personal experiences
Other experience groups that have been combined into this group include: None yet.
Other experience groups that have been combined into this group include: None yet.
This is an experience group where everyone says: I Have Melas Syndrome. It features support, personal stories and experiences, advice, chat, talk, forums, videos, pictures and resources from real people, just like you.
It's free to join, and the people in this group would love to meet you! If you've had this experience, or plan on having it in the future, simply click 'Me Too' or 'Plan To' and add it to your experiences. As you add more experiences, we're better able to
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