I Have Membranous Nephropathy, Idiopathic

A Membranous Nephropathy, Idiopathic anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Membranous Nephropathy, Idiopathic. You're not alone. 29 People

    4 Members... Really??

    I can't believe that there are only four people on here who have iMGN.  I was diagnosed 25 years ago and am now all these years later, facing transplant.  Anyone wanna talk about it?? :P  I figured I'd throw myself out there just in case there's a person with...
    Iffer Iffer
    31-35, F
    4 Responses Jun 6, 2010

    My Story

    Hello :) I was diagnosed with IMN after the birth of my son 9 years ago. I had severe toxemia . After having the biopsy to confirm I was started on blood pressure meds ,a diuretic and cholesterol meds. I was miserable with edema and headaches. I lost about 16 lbs of water in...
    HelenmaryF HelenmaryF
    36-40, F
    1 Response Jul 12, 2012

    Unaware Of Membranous Nephropathy

    I have been diagnoised with this disease. At first doctors sent me to heart specialist, then to the urologist, then to check to see if I had a blood clot in my legs to cause the swelling. My blood pressure went up higher and higher as the swelling continued. Finally going up to...
    porcelindoll33 porcelindoll33
    3 Responses Feb 28, 2011


    Hi I am 40 yrs. old, and was diagnosed with Membranous Nephropathy about a month and half ago.... I haven't felt good for 4 or 5 yrs....I have been on low doses of diuretic since i was 23 after having my 1st child...have always retained fluid since...but the diuretics always...
    nehorsegirl nehorsegirl
    1 Response Jul 15, 2013

    Third Time Around!!!

    I have just started my third flare up in ten years, and had my first infusion with Rituxan yesterday.  I was wondering if anyone has used this treatment or talked to their Nephrologist about it.  If so any side affects?
    ldahl1111 ldahl1111
    1 Response Oct 19, 2010

    An Iffer Update

    Hello iMGN peeps! Just wanted to give a little update on my progress with this disease. My other story tells how I've been dealing with it for over 25 years and just now at the age of 31 am I getting all ready to go under the knife for a kidney transplant. My mom is actually...
    Iffer Iffer
    31-35, F
    Jun 22, 2011

    High Rick Membranous Neuropathy

    Looking for others that are high risk (8000mg of protien or greater).... My husband has was diagnosed over 2 years ago and remains high risk with over 13000mg of protien. Trying to find new treatment options for him. All past medications have damaged his liver. We have tried...
    laniepc laniepc
    41-45, F
    1 Response Sep 4, 2013

    Mayo Clinic

    At this time I have more questions because this is still new to me. I read that the Mayo clinic in Rochester, MN is the #1 place for treatment for MNI. My question is has anyone gone there?
    fireqc7 fireqc7
    70+, F
    1 Response Sep 18, 2013

    My Experience With Membranous Nephropathy

    I was diagnosed with imn last December. So far I've been resistant to all the medications I've taken. Tacrolimus was the first and it showed slight improvement but not enough, so I moved onto cellcept. (I took prednisone and furosemide during this time) Cellcept also did not do...
    getmemuffinsnow getmemuffinsnow
    1 Response Dec 18, 2011

    Newly Diagnosed

    I was diagnosed with MN just a couple months ago. I have been sick for so long that I was beginning to think noone would ever find out what was wrong. I, like many of you, experience swelling so severe that I look freakish sometimes. When the doctor started me on high doses of...
    ideebaby ideebaby
    51-55, F
    Oct 12, 2012

    My Story And I Have Some Questions

    hay guys , im new to all this ... i had a kidney biopsy on may 11th but b4 that i was having kidney pains alot and thay told me it was kidney infections. in the past i have had alot of the other symptoms that go along with this , but what really frightens me is idk what it came...
    ink54 ink54
    22-25, F
    1 Response Jun 21, 2011

    Diagnosed with MG in 2001,

    with very high proteinuria (14g 24hr). Cytoxan and prednisone therapy failed. Cyclosporine worked, proteinuria down to 1.5g, Creatinine around 1.3. Stopped cyclosporine after 2 years. A year ago proteinuria started again, Creatinine up to 1.8. Trying again cyclosporine with...
    Ecofr Ecofr
    Dec 29, 2013
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