I Have Microscopic Polyangiitis

A Microscopic Polyangiitis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Microscopic Polyangiitis. You're not alone. 14 People

    After over 20 years and 3 doctors later,

    they finally figured out which autoimmune disease I have. I'm lucky that I am in remission right now but it has affected my kidneys. I have to see a Nephrologist every 3 months to monitor my kidney function. Honestly, I am sick of going to the doctor and sick if taking...
    deleted deleted
    26-30
    3 Responses Apr 18, 2014

    In Full Remission

    Many years ago I fought and beat breast cancer. That was nothing compared to the attack of microscopic polyangiitis that almost drove me out of my mind in June and July 2007. I am Canadian but I have been living in South Korea for a number of years. Just a little over a one year...
    Swan2 Swan2
    51-55
    5 Responses Aug 15, 2008

    Polyangiitis Wheres Research

    My name is jennifer my son is18 and has been hospitalized for two weeks. He was diagnosed with this and i dont know where to begin with research or how to move pass the shock. I never heard of this until recently. I live in ok. Is there support or research available here. I pray...
    jenn197304 jenn197304
    36-40, F
    May 15, 2012

    It started out as red eyes,

    muscle weakness in the legs then a emergency blood transfusion, then told i have chronic kidney disease stage 3, then told im otherwise healthy but unknown why my kidneys are failing, symptoms got worse, developed major headaches, light sensitivity, severe muscle weakness...
    shoshoneone shoshoneone
    26-30, F
    2 Responses Dec 17, 2014

    Please Help If U Know Anything About Microscopic Polyangiitis!!!!!!

    I am a newly diagnosed 45 yr old female with Micro. Poly. but with a twist !!!!!! I have lost my voice over and over for the past 4 years and have not been able to talk since August 3 , 2011 at 11:00 am this time.:) This disease has destroyed my life ( marriage, job as an Rph...
    btorras btorras
    41-45
    3 Responses Oct 3, 2011

    Polyangiitis Wheres Research

    My name is jennifer my son is18 and has been hospitalized for two weeks. He was diagnosed with this and i dont know where to begin with research or how to move pass the shock. I never heard of this until recently. I live in ok. Is there support or research available here. I pray...
    jenn197304 jenn197304
    36-40, F
    1 Response May 15, 2012
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